Sonic Death Monkey @Parkesy1701
Myalgic Encephalomyelitis (ME) sufferer. Ill since Nov-19. On long term sick trying to keep it together for my family. Just about managing. #ME #POTS #MCAS London, UK, centre of universe Joined May 2009-
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WESTMINSTER HALL DEBATE ON #MEcfs As promised please find below an open letter everyone can sign asking @sajidjavid to raise #BringMillieHome #SaveCarlasLife & more during 1 May's debate We will send it on 30 April. So get involved and get signing. LINK with a CW - suicide:…
Asked MEA to remove me as one of their Champion bloggers this morning. It's not a paid role but given I am being increasingly critical and vocal about my criticism it didn't seem right to continue. I want a charity that pulls out all the stops for #pwME
I haven't made a proper post on here for about 4 years. However I have been watching what has been happening across various chronic illness communities. Particularly recently with the stories coming out of the ME/CFS community Carla, Millie and Karen being examples (1/)
The two leading UK #MEcfs charities are linked to an organisation fomenting the psychologisation of the illness. From 'disordered eating' to ignoring NICE guidelines BACME are dubious yet the charities work with it. Via @TheCanaryUK #SaveCarlasLife thecanary.co/uk/analysis/20…
#SaveCarlasLife has been trending on Twitter news again tonight. Well done #pwME. We don’t have the energy to do this but we’ll bloody well try to help raise awareness when we can knowing we will pay for our efforts later #ExposeMENow
Sadly #pwME are preaching to the converted. We are all screaming into the same void. So long has it been this way. Something needs to change. Those who say they have our backs, need to step up & prove it. Actions, not timid platitudes #MEAwarenesshour #SaveCarlasLife #ExposeMENow
Long but interesting read #pwME
I think the saddest thing is that even the charities tell us to shut up. I don’t hear our voices in what they back the information they put out about BACME and the unquestioning of the system
I think the saddest thing is that even the charities tell us to shut up. I don’t hear our voices in what they back the information they put out about BACME and the unquestioning of the system
Given I can’t drink alcohol any more, probably not a great thing to have TikTok followed that wine bloke who did 26 wines on the marathon at the weekend - but, he’s quite amusing. Suspect would be sacrilege to ask about non-alco wines 😬
#pwME please consider signing this petition set up by @scope. @actionforme @MEAssociation here’s what can be done when you put your minds to it in representing your community. Maybe you can share it too across your platforms? Collaboration isn’t a sin.
#pwME please consider signing this petition set up by @scope. @actionforme @MEAssociation here’s what can be done when you put your minds to it in representing your community. Maybe you can share it too across your platforms? Collaboration isn’t a sin.
Essential reading for all HCPs imho
Essential reading for all HCPs imho
“SHUT UP YOU STUPID WOMAN” @NHSuk @NHSEngland #SevereME * How many more lives do we need to lose before this stops? #pwME * Full interview coming soon; #merryncrofts #saveMillie #savecarla @TheChronicColab @MEFoggyDog @StripyLightCIC * more here 👇 m.youtube.com/watch?v=0nXKQq…
Yes, this! Feels like for some of them (not all), a single retweet and their work on it is done..a sop, as it were, to those who organised it. Not good enough. Collaboration is not a sin, though, you’d think it was sometimes.
Yes, this! Feels like for some of them (not all), a single retweet and their work on it is done..a sop, as it were, to those who organised it. Not good enough. Collaboration is not a sin, though, you’d think it was sometimes.
YouTube Channel launched 🚀 @MEFoggyDog * Please HELP us get the OPEN LETTER ✉️ signed for a protocol for #SevereME 👇 m.youtube.com/watch?v=0nXKQq…
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Jo @cfs_jo
3K Followers 1K Following CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Also on Insta as JustJoHere and BlueSky as JustJo
Daniel Moore @Talmandaniel
5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Crafty Miss @CraftyMissB
5K Followers 3K Following I'm Beth, embroidery & craft are my buzz. #socialist #pwme #disabled insta: thecraftymissb https://t.co/H4UqOa9igd
Alisontomyradio @arisonsned
3K Followers 5K Following ME MCAS Lyme.Still with humour.Satire Music.Dream of life without illness. Wanna ride my bike. Cat & Dog Botherer.YP Counsellor retired. Retweet not endorsement
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Phoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.
Kirsty Schnickelfritz @KSchnickelfritz
3K Followers 1K Following Licensed to rest. Untapped resource, just mucking around.
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
Tracey Burgess @TraceyABurgess
2K Followers 3K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Sibylle Dahrendorf �.. @sibylle_berlin
6K Followers 3K Following Once a filmmaker now stuck in horizontal hell | #SmallFiber #BigPain #POTS #MCAS #CCI #Lyme #FQToxicity #ME I Stop denial of #ComplexChronicIllnesses I
Debbie Seymour @debbie_seymour
2K Followers 780 Following This account can no longer be managed at this time due to Debbie's deteriorating condition. She is okay, but not improving. #LongCovid #MECFS #POTS
Renesmae Coster @cost_renes
68 Followers 5K Following
Alyvia Collier @AlyviaColl95299
87 Followers 3K Following
Celina Burch @celina_bur
78 Followers 5K Following
Michelle Dando 🫥 @MDando1
75 Followers 256 Following Worked in NHS. Was going to be a nurse. Now stuck in my bedroom due to #myalgicencephalomyelitis #millionsmissing #ME Best laid plans… Is this my life now?
Tosleau @tosleau74817
0 Followers 18 Following
Hannah Sharland @h_sharland
518 Followers 2K Following Staff writer for the Canary. Covering climate and ecological crisis. Climate activist. Here to learn about climate justice. She/her. #ME #CFS
e-laina @tiredguineapig
2K Followers 3K Following no 🚫🦠 if you want to stay healthy wear a respirator 😷 ex-athlete 🏸 #ENDMECFS #ENDLONGCOVID
Luba Macpherson @LubaMacpherson
852 Followers 2K Following I think that everyone is unicue and special.
Helge Sverre Risan @HelgeRisan
159 Followers 465 Following Vitebegjærlig og er veldig glad i ting jeg ikke kan. Kan tenkes at jeg har plukket opp ett og annet på veien :) Familieterapeut. ME
Peter Neehus @PeeNee2
1K Followers 1K Following #pwME | Dutch | Living on a boat | Art&Copy | Creative Director | SciFi | History | Science | Optimist | Granddad | @[email protected]
#FreeAssange @fascismcantwin
273 Followers 1K Following My body is materially disabled. MECFS, EDS, & more.
Michelle Sairsel ✊�.. @MichelleSairsel
1K Followers 3K Following
Helen L-W 😷🇵�.. @helen_melon__
449 Followers 854 Following queer disabled climate justice organiser @ukycc. #pwME for 6 yrs. 23 yrs old. runs @natureinbed.
Mikee @mikee52000
722 Followers 858 Following I am a Myalgic Encephalomeylitis diagnosed housebound/bedridden patient ♿️ Getting on with my life as best I can
Leonie Potgieter @Despicable_M_E
879 Followers 2K Following Living with M.E. as best I can. Love nature, humans not so much.
Equal Vision @EV_Merseyside
1K Followers 5K Following Our work is community-driven. We're Liverpool's independent youth research & policy body. Peer-led support for multiple morbidities is our other priority
Eva @LaurieJone26517
7 Followers 556 Following Since life is as fleeting as a startled swan, then live it brightly like summer flowers.
OMFCharityMugs @BFWoodburn
8 Followers 156 Following Severe ME/CFS patient since 2006, fundraising for the Open Medicine Foundation, all proceeds from all sales go directly to OMF, Worldwide shipping🩵
sean stidston @seanstidston
235 Followers 972 Following
Elon Musk @elon_musk_0180
8 Followers 334 Following
Alice @MsABooKay
2K Followers 3K Following Mostly cat tweets. Big fan of festivals, rum, DnB/Garage. Content Design/UX. Work in HE. #pwME
sharon askew @88888888881
82 Followers 1K Following
LA2LAGURL @La2Arceri
423 Followers 2K Following Questioning everything : 𝚖𝚎𝚗𝚊𝚐𝚎𝚛𝚒𝚎 𝚘𝚏 𝚠𝚑𝚊𝚝 𝚠𝚊𝚜: spiritual & narcissistic abuse survivor #CPTSD: severe #ME/CFS: POTS, CCI 20yrs
Peter W 🇺🇦 @mediumwhite
623 Followers 746 Following Europhile 🏳️🌈, lived in 🇬🇧🇮🇹🇨🇼🇧🇪 🇧🇩. Dedicated follower of science. Former textile engineer, now a Mgmt consultant. I believe in believing people.
Kacy Sernas @KacySernas39954
78 Followers 5K Following
Hippymum @Baybabe75
837 Followers 1K Following ME sufferer since 1983, too many co-morbidities to list. I miss the old me. I love old VWs and animals and detest what our country has become due to the greedy
Anna @blondcataddict
229 Followers 634 Following Knackered mother of one, lives with 4 cats. mecfs. she/her/they. [email protected]
Tasha Buswell @BusweTash
86 Followers 5K Following
1000yd Stare @OohBluddyEll
1K Followers 4K Following Nosce te ipsum. T2 Diabetes/MECFS/PTSD/Depression/Anxiety/Confidence destroyed. One day at a time. Ex-RAF Officer.
Michael Alexander @Michaeltikus
955 Followers 2K Following I like animals 🐙 Zoology/Psych PG interested in nature connections, diving and tapirs. Member @Long_Covid / @RenegadeRes Lead contributor @wecrunchme LC-PLAN
Kristin Houlihan, Wri.. @theedifyingword
5K Followers 5K Following Editor-writer. #LongCovid #pwME #POTS Newsletter: https://t.co/GYofP9WG1L; Book: https://t.co/9pr27ygDyB
Andrew Green @AndrewG76201347
1K Followers 716 Following ME/CFS, POTS, MCAS. Female (ignore name). I post anonymously because I share medical details of my child too young to consent to public sharing.
Pauline boyd @princesspenny62
426 Followers 4K Following Busy trying to save my life from a Fatal disease from Toxic mold in my Rental home. Owner fatally poisondd me and Retailiaton horroibly for the last 5 years
A @wammy6263
56 Followers 465 Following Love life, enjoy traveling, enjoy different landscapes and cultural history (hope to meet friends with common interests)
⚫Lesley.b @LesleyBinfield
467 Followers 1K Following 🏳️🌈🏳️⚧️🇪🇺🦼 She/Her. 99% housebound. MeCfs. Fibro. Stroke. Mother, Grandmother, Wife, Friend, Ally, Rebel, Artist, Gardener. proud to be woke.
ivanna melnyk @ivannameln6180
151 Followers 2K Following нехай Бог допомагає народу України на передовій..як би там не було так допоможи нам Боже🇺🇦🇺🇦
Ơ̴̴͡.̮Ơ̴̴̴͡.. @Menopausemum
420 Followers 743 Following Proud Scouser, Socialist. ME/Fibro fighter for over 40yrs.Sagittarius. Love Dogs. Can’t abide Racist’s, Tories or Smarmy Starmer!Smile,it’s infectious😀
Mary Smith @MarySkiing
281 Followers 2K Following 🇺🇲 I'm an automotive enthusiast 🚗 🚙 🚙 🚙 I don't sell any cars to the market ‼ ❌ ❗ ❗ ❗
Nina A Tomei, MD @doctormom63
4K Followers 2K Following Life derailed #Sjogrens #MECFS #POTS #LongVax Child with #LongCovid Surviving Not Living. Sick Not Tired. Tweets not medical advice. We just want our lives back
Ciprian Mihai Marin @Ciprian20Marin
155 Followers 3K Following
Isobel Smith @IsobelS77082097
467 Followers 1K Following Mum of three. Granny of five.Long retired social worker, NHS NED - and much else onwards - still pushing the pea for Down son and etc.
ChronicIllnessHumor @HumorChronic
989 Followers 3K Following Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for a while. #chronicillness #autoimmune #funny
C W @retrochristine
408 Followers 614 Following Mainly on twitter to raise awareness of ME and for political tweets.
Sletoez ✌️🫶�.. @sletoez
493 Followers 5K Following I'm friendly like to know new people 😊 -I hope we can speak respectfully to each other
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Jo @cfs_jo
3K Followers 1K Following CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Also on Insta as JustJoHere and BlueSky as JustJo
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Tom Kindlon @TomKindlon
14K Followers 577 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Daniel Moore @Talmandaniel
5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Anil van der Zee © @AnilvanderZee
9K Followers 823 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Martin Hippe @pausedME
7K Followers 471 Following East Westphalia by Nature ⎮Lawyer by Profession | #Musikrecht | #MECFS | @Mirame_Arts | No medical advice!
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Whitney Dafoe @DafoeWhitney
10K Followers 38 Following Severe ME/CFS patient and advocate. Photographer, filmmaker, artist, creative. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊
Crafty Miss @CraftyMissB
5K Followers 3K Following I'm Beth, embroidery & craft are my buzz. #socialist #pwme #disabled insta: thecraftymissb https://t.co/H4UqOa9igd
Alisontomyradio @arisonsned
3K Followers 5K Following ME MCAS Lyme.Still with humour.Satire Music.Dream of life without illness. Wanna ride my bike. Cat & Dog Botherer.YP Counsellor retired. Retweet not endorsement
Michelle Dando 🫥 @MDando1
75 Followers 256 Following Worked in NHS. Was going to be a nurse. Now stuck in my bedroom due to #myalgicencephalomyelitis #millionsmissing #ME Best laid plans… Is this my life now?
The Brain Charity @TheBrainCharity
16K Followers 4K Following We help people with ALL neurological conditions to live longer, healthier, happier lives. 🧠 Practical advice 🧠 Emotional support 🧠 Championing neurodiversity
e-laina @tiredguineapig
2K Followers 3K Following no 🚫🦠 if you want to stay healthy wear a respirator 😷 ex-athlete 🏸 #ENDMECFS #ENDLONGCOVID
Long Covid Kids - #Lo.. @LongCovidKids
30K Followers 4K Following UK-based, international charity supporting and advocating for families and children living with Long Covid & related illnesses. https://t.co/QjkCJVG3tI
Hannah Sharland @h_sharland
518 Followers 2K Following Staff writer for the Canary. Covering climate and ecological crisis. Climate activist. Here to learn about climate justice. She/her. #ME #CFS
Pierre Naoum @PCCC90
92 Followers 181 Following
Michelle Sairsel ✊�.. @MichelleSairsel
1K Followers 3K Following
UniteToFight2024 @U2Fight_World
3K Followers 116 Following 100% crowdfunded LC & ME/CFS conference project. community-driven. independent. global.
Leonie Potgieter @Despicable_M_E
879 Followers 2K Following Living with M.E. as best I can. Love nature, humans not so much.
Sonja Kohl @eskabadu
2K Followers 1K Following 🇩🇪 One of #millionsmissing | Team #GOfundMECFS & #SIGNforMECFS | Suffering from #MECFS after a viral infection in 2012 | https://t.co/FSdIVPb7iI
The Guardian @guardian
10.9M Followers 1K Following The need for independent journalism has never been greater. Become a Guardian supporter: https://t.co/kFXqbVRovR
Irvine Welsh @IrvineWelsh
373K Followers 1K Following Typist. Woke cunt. Failed macrodoser. instagram: irvine.Welsh mastodon: @[email protected] blueskies: @irvinewelsh.bsky.social
Rosemary Coogan @Astro_Rosemary
2K Followers 94 Following Astronaut at the European Space Agency @esa 👩🚀; Astrophysicist 🌌
Jo Caulfield @Jo_Caulfield
36K Followers 869 Following STAND-UP COMEDIAN & COMEDY WRITER “★★★★★ Scotsman” - “★★★★★ SGFringe” - “★★★★★ The Herald” - “★★★★★ - Observer” - 2024 TOUR TICKETS ON SALE NOW!!
Mind @MindCharity
522K Followers 3K Following Fighting for mental health – for support, for respect, for you. Find your local Mind near you: https://t.co/z03j6su6QX
Ruth Liptrot @Ruth5News
4K Followers 2K Following Reporter for @5_news. Journalist. Mum. Wiganer, Londoner. The three most important things to be are kind, kind and kind. #longcovid
F1 Australian Grand P.. @ausgrandprix
125K Followers 1K Following Daniel Ricciardo & Oscar Piastri fan account 🇦🇺 13-16 March, 2025 📆 #AusGP
Beat @beatED
52K Followers 1K Following Beat is the UK's eating disorder charity. DMs for #eatingdisorder support monitored 3pm-8pm everyday. Other comments & DMs 9am-5pm Mon-Thurs
Long Covid Moonshot @LCMoonshot
3K Followers 317 Following 18 million Americans suffering with Long Covid, and ZERO treatments. We need a moonshot for Long Covid research funding! Press: [email protected]
CassieMc @CassieMcLean213
85 Followers 236 Following
FORMU1A.UNO @formu1a__uno
12K Followers 51 Following Testata Italiana 🇮🇹 | Fia accredited | https://t.co/1HS41LOc0z: Approfondimenti, News, Analisi Tecnica #F1
LUDEN Automotive @LUDENClassics
21K Followers 552 Following
Jon Coupland @joncoupland
8K Followers 5K Following Car Collector, Proton Fan (among others), Twitter Overuser, Nice Guy, Amateur YouTuber and Husband to VERY tolerant @mrsjcoupland - Views All My Own
The Late Brake Show @LateBrakeShow
18K Followers 85 Following The eclectic automotive channel of Jonny @carpervert Smith. Celebrating V8 to EV, barnfinds to project cars. https://t.co/hy6Oqeccp5
Long Covid SOS @LongCovidSOS
27K Followers 939 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected]
Alex Kersten @autoalex
38K Followers 797 Following Car YouTuber with 13 shitboxes and no sign of slowing down. Insta @autoalex / Email: [email protected]
Ripple @RippleEnergy
10K Followers 5K Following Part own a shared solar park or wind farm and have its green, low cost electricity supplied to your home via the grid.💚
Alex Sprackland @AlexSprackland
2K Followers 1K Following Engineer. BMX. Powerlifter. Electronic music producer. Long Covid since March 2020 has put all that on hold, though 😓. https://t.co/NwtnfzoDjG
All The Right Movies @ATRightMovies
826K Followers 140 Following The account on classic and hit films. Detail in our making of stories is from cast/crew or 3+ sources. To support what we do, please subscribe 😁
York Cardiology @YorkCardiology
4K Followers 110 Following Sanjay Gupta is a leading consultant cardiologist in York, Yorkshire, UK
Octopus Agile Predict.. @agilepredict
5K Followers 13 Following Not affiliated with Octopus Energy Account run by a human 100% accuracy predicting very low and negative rates over 4 hours before published by Octopus.
Max Nits @MaxNits
315 Followers 337 Following Physics grad, programmer, entrepreneur. Life on pause due to ME/CFS.
Marc H @NewForestRamble
2K Followers 812 Following I walk about & stumble upon stuff I think's interesting, you may too. Often the weird or wonderful in the New Forest, and some history. Curator of @WW2Airfields
Dr Mark Porter @drmarkporter
29K Followers 838 Following GP in the Cotswolds. 37 years @ the NHS. Columnist @thetimes & SAGA Magazine. Ex BBC. Poacher turned gamekeeper. Grandad.
Anna @blondcataddict
229 Followers 634 Following Knackered mother of one, lives with 4 cats. mecfs. she/her/they. [email protected]
Madstick @Madstlck
246 Followers 297 Following Quirky biomedical, built environment and everything enthusiast with POTS, EDS, MCAS/MCS and more. Persian diaspora.
Harry Boby @HarryBoby4
3K Followers 59 Following I care about Philosophy, Health, and ending Long Covid & ME/CFS. Recovery videos & more⬇️
Richard Williams @rwilliams1947
26K Followers 854 Following ‘24 Hours: 100 Years of Le Mans' out now from Simon & Schuster. Music blog: https://t.co/eimmxsfy3O
Professor Mark Maslin.. @ProfMarkMaslin
33K Followers 906 Following #ClimateChange Professor @ucl, author of #HumanPlanet, #CradleOfHumanity, #HowToSaveOurPlanet, member of @ClimateCrisisAG, Dad (He/Him)
Sarah Go Green💚 @sarah_go_green
4K Followers 272 Following Plant eater 🌾 Veg gardener🌱Womble litter picker🏖🐳💚nature🐝🌳🦔EV driver🚗🚦🏭🙋♀️ co-op 💨wind farm member☀️solar🔋🏠💚https://t.co/yw4EaNEota👩🏼💻
Commission on Politic.. @CommPolPower
1K Followers 34 Following An independent Commission to review where power is within government and how to make it work better. Co-convened by @francescrook and Baroness Frances D'Souza.
Licence to Tweet @QuantumofTweets
1K Followers 573 Following Celebrating the best of James Bond in cinema, books and other mediums. Prefers to visit the sights of Venice via hovercraft. #BondTwitter #JamesBond
Pippa Mann @PippaMann
38K Followers 2K Following Racing driver + coach • 7 times #Indy500 competitor • 🥇 in class at 2021 #24hNBR, 🥉 2022 • Leader of #ShiftUpNow • Advocate for #WomenInMotorsport
Jess Medland @jessmedlandf1
65K Followers 539 Following Senior Producer of cars going round in circles on your TV 📺 | Opinions are my own | If it’s got an engine and wheels I’ll probably like it 🏎
Claire Cottingham @Cla_Cottingham
11K Followers 850 Following F1 journalist • Presenter • Pit lane reporter • BBC Sport • ITV Sport • Eurosport • Racing Pride Community Champion • @loudspeakerpls
@aftab_usa So you keep saying... why dont you read the replies from last time you said this. Long Covid was entirely forseeable. x.com/aftab_usa/stat…
I understand that during the #Pandemic, #LongCovid was not intuitive & foreseeable. But now it is clear that Millions of people are suffering for years The #LongCovid should be at the forefront of Healthcare Agendas.
@CBMEgroup @aftab_usa It was very, very foreseeable--and yes, it was foreseen by all involved in the ME/CFS community.
@aftab_usa Was definitely foreseeable. SARS1 caused a significant % of survivors to develop severe chronic illness; many still ill 18yrs later. Virtually every pandemic / epidemic in history has resulted in a large wave of chronic illness: Spanish and Russian flus, Zika, Ebola, Polio etc.
@aftab_usa It was absolutely intuitive and foreseeable. This is from *March 2020*: x.com/jenbrea/status…
Please stop telling young people they should avoid #COVIDー19 infection to protect the old. Tell them to protect themselves. Long-term symptoms 6+ mo post-infection: EBV: 11% Q fever: 11% Ross River Virus: 11% West Nile Virus: 31% SARS: 87% Ebola: 90% COVID-19: We have no idea
@aftab_usa You often repeat a version of this tweet and you never respond to people saying this was foreseeable because it's what viruses (and other triggers) always did 😞 Don't erase #MEcfs #dysautonomia #autoimmunity etc
@aftab_usa It was predicted by many people who have ME/CFS and have suffered long-term sequelae as a result of a whole bunch of different viruses. Why medicine continues to ignore/downplay this phenomenon is a question doctors ought to ask themselves.
@aftab_usa Post 1916 flu post polio post sepsis ME/CFS - post flu, mumps, EBV etc Post SARS 1 Post ebola syndrome But yeah the medical profession could have no inkling That there might be a post/ long covid.
@aftab_usa Not just foreseeable but foreseen -pretty much every person with #MECFS was warning anyone who'd sit long enough to listen - as were our doctors and researchers in the field.
@RoadsideMum @easyJet Isn't it against the law to refuse to accept a wheelchair?
@RoadsideMum @easyJet What?! That’s illegal, right? You need your wheelchair.
Fuck me @easyJet have just advised me not to bring the chair THEY BOUGHT ME on the aircraft again.
An excellent letter from a friend to Sajid Javid prior to the debate he’s heading on #ME next week. It could serve as a template for anyone that wishes to write to him or any MP. email address below. drive.google.com/file/d/1oZlv8C…
Does anyone else struggle to keep a stable baseline? I have PEM everyday and crash every month without fail. I wish for improvements but can’t even stay stable! Is this more a thing when severe? I just can’t get that leg up and I’m worried sick I’m gonna be in bed forever. #MECFS
@candlelovers12 @dysautonomian *know better
@candlelovers12 @dysautonomian I am SO angry that someone who should no better would say something like that. Ffs. They have NO idea what we put ourselves through in attempts to regain even 5% of our health and function.
@Naomi_D_Harvey @dysautonomian Yes all the things Naomi has said and more. Not only do we fight just to get the hope of treatment FOR DECADES (which rarely if ever happens)we often use what little energy we have to help each other too and exchange idea for treatments, etc. What a disgusting thing to say.
@dysautonomian You have no idea what the hell you’re talking about with that insulting 💩 I have done NOTHING but try to get better for years now. I have done NOTHING but use what energy I can to help other desperate, lonely, frightened people try to get better. All of us are doing best we can.
@dysautonomian Oh yeah, right, because it’s not like we’re using what little strength we have reading and learning constantly in order to attempt to treat ourselves with zero medical support. Or spending thousands of pounds on experimental treatments that actually often make us worse.
@dysautonomian Dude. Please consider deleting this. It's really incredibly insulting.
3 years ago this chap passed away in my arms. Not a day goes by where I don’t think of him.
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