LongCovidPharmD @organichemusic
Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs bed Joined November 2021-
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TODAY & TOMORROW — please call as many Senators on this list as possible & ask they attend the #LongCovid HELP hearing this Thursday 1/18 This might be our last chance to move congress to act 🧵
"I didn't know about long COVID. Maybe I should have... People think they're invincible. They're not. Anyone can get long COVID."
"I didn't know about long COVID. Maybe I should have... People think they're invincible. They're not. Anyone can get long COVID."
Anyone else trying this for the holidays? Pooling one Lucira home test sounds like a clever & cost-effective idea to me. $50 pooled vs $250 for 5 individual tests!
Anyone else trying this for the holidays? Pooling one Lucira home test sounds like a clever & cost-effective idea to me. $50 pooled vs $250 for 5 individual tests!
Just found out we were exposed to COVID last Tuesday during choir practice. My child is the only one of 12 who masks, I bring & blast an air purifier, and we use nasal sprays before & after, but due to cold weather all windows shut and CO2 >1,000. I'm not feeling good about this.
Food Recall: Throw away your cantaloupe! Salmonella outbreak "CDC is concerned about this outbreak because the illnesses are severe and people in long-term care facilities and childcare centers have gotten sick."
Today, Visible is launching a research collaboration with neuroscientist David Putrino (@PutrinoLab) 🚀 David + the team at Mt Sinai have been relentless in pursuing answers for people with #LongCovid and #MECFS. You can help them on this mission 🧵 makevisible.com/blog/introduci…
9 days ago, I got my 1st NOVAVAX. The good & bad: 👍Less fatigue & fewer migraines. I even went on a (slow) 2-hour walk today, explored my new neighborhood, & saw some wild turkeys! 🦃 👎Developed new symptoms--pruritus & hives--that have intensified over past week.
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Shaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 724 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Gez Medinger @gezmedinger
20K Followers 719 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
GeoCK @GeoEduOne
6K Followers 954 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Michael Stingl @neurostingl
16K Followers 1K Following Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
Morgan Stephens @morganstephensa
14K Followers 2K Following around the White House @business, poet TILT (Aldrich Press 2024), previously @cnn, #LongCovid
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Karen Mumbert @KarenMumbert
23 Followers 495 Following
Kjerif @BDaimonos
40 Followers 162 Following Sonic explorer | Observer | Aerospace Freak (Self-sovereign/Generation X)
Marion Birringer @pinktide
227 Followers 1K Following Ästhetin | Mum of Twins | #ScienceRules | #NoCovid | #ProtectTheKids | #Klimaschutz | #StandWithUkraine
Turnto Long Covid @turntolongcovid
0 Followers 10 Following
🇺🇦 Just_Natting.. @Natalie_Ross22
2K Followers 4K Following Loath the Tory gov! ME/CFS suffer. #FBPE #FBPR Born 325ppm. "I feel maybe it’s wrong that we aren’t talking enough about the goat." Ron Filipkowski
Jill Salmon 🇺🇸�.. @Mwanamatapa
3K Followers 3K Following Centrist Democrat 🌊 Joe Biden and Woman Rights supporter. Animal lover, AZ Cardinals, Phoenix Suns, Tottenham Hotspur, Rugby, ASU & TCU fan.
65for65 @65for65
16 Followers 55 Following Raising awareness and money for Long Covid through the 65for65 challenge ✨
scott looney @absolooney
27 Followers 70 Following
Pony @PonyPony35x
0 Followers 4 Following
singkepe @singkepe
2K Followers 3K Following 𓁹 Reminding you of your power • Awakening your mind and body to your healing potential and purpose • Certified Quantum Healing Hypnosis Tulum #QHHT #Hypnosis
Second Foundation @oldhorse_jordan
5K Followers 6K Following Improve relations and illnesses (e.g. #LongCovid) hard to deal with for you, At least 1000 baht/person. Follow God's commandments, you'll be blessed.
Hank Greenwald, DVM @hgwald
4 Followers 8 Following
Sothi @Sothi323436
2 Followers 215 Following
Truthorfiction @Truthorfiction3
307 Followers 151 Following #LERONLIMAB BINDS TO CCR5: FIGHTS HIV, COVID-19, CANCER & NASH. APPROVE IT.
klassik.liebe @KlassikLiebe
8 Followers 38 Following
Elon muskcto @EMusk83503
24 Followers 241 Following CEO, and Chief designer of SpaceX, CEO product of Tesla, Inc.k
Anne Marshall @ALMarshall20B
0 Followers 51 Following
Redhotphysicist @redhotphysicist
141 Followers 235 Following
kit herbívora @KHerbivora
125 Followers 389 Following
BC @BCGGTLV24
12 Followers 35 Following
Janet Bevan @bevan_jan
745 Followers 850 Following independent Occupational Therapist also part time for Brynawel Rehab. All views are my own
Alfonso @tffffrt
23 Followers 8 Following
Paylz @paylzdig
116 Followers 3K Following
Andrew Bianco @AndrewJBianco
72 Followers 89 Following
Morrison @Morrison130915
10 Followers 126 Following
Nancy Koons @nancyskoons
800 Followers 72 Following Not here much. You can find me at: https://t.co/iu2KD5Kewb https://t.co/c6mENRiXPN To join #Measure Slack: https://t.co/1SRYtHWNkW
Mike Forman @MformanMike
20 Followers 192 Following
Gerard Moreau @GerardMore11934
609 Followers 3K Following
🍁Doug Snedden @dougsnedden
1 Followers 5K Following "When you give from the heart your gift becomes love." 🦠 🤧 🤢 📈 💊 💉 ☣ 🚑 🌍𝐏𝐚𝐧𝐝𝐞𝐦𝐢𝐜 𝐄𝐦𝐞𝐫𝐠𝐞𝐧𝐜𝐲 𝐀𝐥𝐞𝐫𝐭!🌐 🗣 💬 🗯 💭 🚐 ⏳ 🧪 🧬 ☠
Mary k @Maryk00288276
44 Followers 421 Following
AY @aiyu20001
13 Followers 327 Following
Giovanni Angiolini @GiovanniAn1445
5 Followers 516 Following
Cheryl @Cdnn58
5 Followers 162 Following
Beat Bard @BardBeat81642
583 Followers 3K Following
Ellen @ellenvvines
144 Followers 454 Following
Chronically ill 🌪 @Chronic_iIIness
0 Followers 27 Following
Debbie Jackson @DebbieJack98489
1K Followers 721 Following Welcome !Follow for private nudes😚 📢 Get hot content if you follow me😘 ❗️❗️
✽RACHEL✽ @theleydybug
239 Followers 545 Following レイちゃん。 I am very much convinced that I'm an old soul trapped in a body suit of a 20 something year old.
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Dr Elisa Perego @elisaperego78
33K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Dr. Alice 💕 @calirunnerdoc
26K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs for med advice,SARS-CoV-2=persistent vascular bomb💣.Views expressed are my own,not my employers.
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Shaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 724 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Gez Medinger @gezmedinger
20K Followers 719 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
GeoCK @GeoEduOne
6K Followers 954 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Michael Stingl @neurostingl
16K Followers 1K Following Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
Noha Aboelata, MD @NohaAboelataMD
12K Followers 2K Following Family Med, Oakland ❤️ Founding CEO @RootsEmpowers, HU med grad, weekly public health briefing. Community health, jail/reentry health, street med, mental health
Pyrgus Malvae @atpyrgusmalvae
437 Followers 1K Following POC psych survivor, #intersex & #disabled, masked anticapitalist #TeamClots #CovidIsNotOver #AntiCarceralFeminism #DisabilityJustice #AbolishPsychiatry
Suzanne T @Suzanne__T
642 Followers 906 Following Former postdoc in human centered AI; career break due to #LongCovid since May '22; tweets with brainfog so excuse the spelling
Amanda B @AmandaBalleng99
2K Followers 1K Following Respirator enthusiast. Former Sanitarian /Pandemic Influenza Planner. Currently a small scale organic farmer and soap maker. #covidisairborne #bringbackmasks
Boneshaker Books @boneshakerbooks
3K Followers 484 Following A radical, progressive, volunteer run bookstore located in the Seward neighborhood of South Minneapolis.
Maxwell Biosciences @MaxwellBiosci
961 Followers 173 Following Maxwell Biosciences is developing the CLAROMER Brand drug platform to fight pandemic infectious disease . #COVID #Influenza #LongCOVID #Biofilms #DrugResistance
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Lucinda Bateman @LBatemanMD
6K Followers 695 Following Physician determined to mainstream ME/CFS and FM into modern science and medicine
Novavax @Novavax
60K Followers 158 Following Producing next-generation vaccines with global access for more people. See what’s developing at https://t.co/apuZo0qpnM.
Steven Mathern @StevenMathern
352 Followers 272 Following my tweets are my opinions, NOT medical advice; plz talk to ur doctor for medical advice
David it up! @Dave_it_up
3K Followers 1K Following AI & tech in primary care with a focus on neurodiverse patients. Deeply engaged in tracking COVID to better support our unique community. - Views are my own
Antiviral Marketing @antiviral_mktng
4K Followers 938 Following Anti-COVID. Fit-test your respirator! PortaCount enthusiast. Reinfection control group. LC. 🌱Ⓐ🇵🇸. DMs are cool, say hi! @antiviral.bsky.social
Victoria Coble @victoriacoble15
1K Followers 3K Following (she/her) I love turtlenecks & I hate racists.💙🟧🏳️🌈😷✊🏽🏳️⚧️ Grad student / Cultural Analytics 📊 | Happily 💍 | Adoptee | @CovidActionGSO
TL Gibson @TLGibson5
189 Followers 1K Following Wife, mother, dog lover. Advocate/activist for those facing health challenges. Staunch supporter of our healthcare providers. Intolerant of intolerance.
Flor 🥀 @lugaresxcomunes
1K Followers 1K Following we need funding for research and treatments for Myalgic Encephalomyelitis and Long Covid NOW | #pwME
Dr Laena D'Alton @laenadalton
1K Followers 3K Following Recent graduate in chemistry | me in emojis = 🧪👩🔬 😷💉✝️✏️👩🌾🎨🪡 🇦🇺 ME/CFS | Views my own
Kelly @broadwaybabyto
12K Followers 2K Following Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 #SpacesHost
Stan @Stanzupforit
1K Followers 392 Following
Analyst #COVIDisAirbo.. @stude_med
772 Followers 993 Following Trained social/hard scientist. recovering 1L. gardener 🌍🖖🧬
😷 Mark Dixon @markdixontweets
1K Followers 1K Following Filmmaker, photographer, environmental activist, runner. Working to clean the air and end fossil fuels. COVID-19 isn't over. https://t.co/0X2huuoKxI
S Wakefield 🌊🌊 @AnnJaeger9
193 Followers 1K Following Retired DDS, mother to two strong women. T1D Warrior. Resister. U of MN Alum. #insulin4all #maskssavelives #covidwidow
Clean Air Club @Clean_Air_Club_
11K Followers 574 Following Ensuring accessible and cleaner air for the Chicago arts scene. We provide air purifiers for artists and touring musicians, free of charge.
Marina A. Creed FNP-B.. @MarinaC_Dyb
1K Followers 711 Following Neuro-Immunology (#MS) Nurse Practitioner in Academia. Former pharma. DC-NYC-CT. Research, Public Policy, Advocacy. Views=own Typos=own. https://t.co/oDECNhG6II
Alice Wong 王美華 @SFdirewolf
80K Followers 4K Following Disabled oracle. Founder, @DisVisibility. Editor, DISABILITY INTIMACY pre-order https://t.co/HUW0gq4JTd Available April 30, 2024
Ariane~I NEED A GI DO.. @arianek
4K Followers 2K Following Co-founder @Textillia! ✂️💕• SFU Geog • Public health/urban planning/web nerd • Sick AF #Sjogrens #Dysautonomia #IatrogenicIllness #IVIG / ♿️🌈🇦🇲🦆🐶🖖📚💌🌿
Dr Mary Robson @mary_robbo
658 Followers 991 Following Feminist. Social researcher. Proud Bradfordian 💗 She/her 🏳️⚧️ #decrimnow 👠 on pause due to #longcovid since Feb 2022
Post-Viral Trials New.. @postviraltrials
4K Followers 158 Following News and updates about treatment trials for Long Covid, ME/CFS, POTS, and other post-viral and related illnesses. DM if participating in a trial or interested.
Julie 🚀🌕 for LC.. @dualiejulie
1K Followers 1K Following In LongCovid/ME hell looking for a way out! 🫠 First waver. We need research funding to find treatments. Severe, 26, former engineering student
Mehdi Hasan @mehdirhasan
1.5M Followers 4K Following British-American journalist. Editor-in-chief and CEO of new media company @zeteo_news. Subscribe here: https://t.co/sEC1ETyGtn
Osaca @Osaca_ME
241 Followers 446 Following 26 year old former PhD student - Life on hold #LongCovid #pwME Fighting everyday to get back a form of life
Elise Racine, MSc, MP.. @Elise_Racine
488 Followers 1K Following Health/tech advocate #AI #COVID #ethics 🏳️🌈 PhD candidate @Oxford_NDPH @EthicsInAI @Ethox_Centre 🇬🇧 MPA @thehertieschool 🇩🇪 MSc @LSE_ID 🇺🇸 BA @Stanford
Jenny Richardson @jennysrmve71
701 Followers 4K Following please don't feel you have to follow me back - I am a stalker of smart people who know interesting things. Joined Bluesky [email protected]
drkatiewalker @drkatiewalker
170 Followers 359 Following emergency physician and clinical researcher
Gunnar Gottschalk @ggottschalkPhD
417 Followers 221 Following ME/CFS and Long-COVID Researcher Scientist and Executive Director Simmaron Research Inc.
Amy Arthur @a_e_arthur
3K Followers 5K Following Science and health journalist with ME/CFS. Lived expertise in pacing, managing energy levels and rest. Previously at BBC Science Focus magazine. She/her 🏳️🌈
Julie Houston @JulesAHouston
2K Followers 2K Following Body malfunctioning since 1998. MECFS PoTS MCAS hypermobility. #LongCovid #LongCovidKids #Pans #Pandas ally. #CleanAirForAll #MasksInHealthcare
Daniel Moore @Talmandaniel
5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
CL @cuboidalhug
474 Followers 1K Following Artist • Biologist (PhD in mol bio, post-doc in neuro, former journal editor) • Asian American • Long Covid • she/her
Sammie McFarland @SammieFMc
2K Followers 2K Following Founder @longcovidkids 🫀#LongCovid “Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.”
QueerInBC 🏳️�.. @QueerInBC
1K Followers 1K Following Founder @CowichanPride, sailor, teacher, social justice, astronomer, physicist, #MECFS research… no longer. #CCI #LongCovid #LongVax. Donations pls. BSc MSc BEd
Angela R. Rudolph @chigrrll
2K Followers 4K Following Advocate in #education #justice #juvenilejustice #philanthropy w/ #racialequity #racialjustice #intersectionality as a guide. Living w #LongCovid S/Her pronouns
Kali49 @kaveri59872487
5K Followers 979 Following Assistant Professor, Nurse, Activist, anti genocide, Democracy junkie, wife, cat mom, Pisces, views are my own.
RamenRapha @Rrraphaqua
737 Followers 766 Following
🏴�.. @MaryGR65
2K Followers 1K Following Covid/Long Covid 3/2020 Retired Nov 21 #NotRecovered Advocate #LongCovid Mom to 1 son Supergran to 3 beautiful grandkids 5-18yr 4🐈 @[email protected]
Tan Theory 💜 Scruf.. @4Livingtheory
841 Followers 1K Following just created @4livingtheory.bsky.social; MSC Health Policy, Planning & Finance; Jill of many trades Teacher, Paralegal, admin at gov agencies, HR, Med admin
chuck @whatexactlyisup
1K Followers 1K Following just trying my best. death doula. chronically ill. future LPC. she/her
C.H. Romatowski @CHRomatowski
505 Followers 792 Following Account used sporadically to engage with research. Tweets delete.TODAY & TOMORROW — please call as many Senators on this list as possible & ask they attend the #LongCovid HELP hearing this Thursday 1/18 This might be our last chance to move congress to act 🧵
@organichemusic @Cryptozoologis7 Where's the slightest hint of interest in figuring out what the issue is?! Who are these people who got into medicine thinking it was a realm of 100% solved problems where they'd be lauded every time they handed out the fully understood solution?!
@0youngbs @organichemusic @Cryptozoologis7 They almost all have a god complex and at some point they decided these “trivial” complaints were beneath them.
@fru1tp1e @organichemusic Some people may wrongly want antibiotics, however the issue I have is doctors assuming that and not actually communicating with their patients at all. Assuming every patient is a moron and taking no further interest is the problem.
@taylorwhitney88 @organichemusic Frustrating. So much cutting corners. I unfortunately have a family member lose his transplanted kidney to covid. A few days were wasted because the doctor didn't suggest testing and instead prescribed him an antibiotic. 🤬x.com/nohaaboelatamd…
Just got off the phone with a family member and I'm just 🤬 Them: Just got vaccinated, now I have fever, cough and sore throat. Could it be the vaccine? Me: Fever sure, but not cough or sore throat Them: On call doctor is calling in an antibiotic Me: Diagnosis? Them: No idea 1/2
@organichemusic @graeme_0 I'll bet that doctor doesn't wear a mask, have any HEPA filters or open windows in their practice, and would ignore any suggestion that they improve their ventilation as well.
@organichemusic Seriously! Sometimes I wonder what they think their job actually is?
If you think my recent thread is aggressive I urge you to imagine how you'd feel if someone was psychologising an established disease (cancer, PD, etc). Now imagine you have it and it destroyed your life. Finally imagine they won for decades and behave like this in closed doors:
The FND society president, a man who supports biopsychosocial hypotheses papers with no evidence, thinks the longitudinal #LongCovid muscle biopsy paper is not good enough. With these comments, did you open the paper? As a patient researcher, this is insulting and needs to stop.
Yes, masks in healthcare are making a comeback! As we head into year 5 of this pandemic, I am the only congressional candidate in the U.S. that has the track record of action to prevent the cumulative damage this virus causes to individuals & communities. JoaquinBeltran.com
"I can't be a parent properly when I'm this ill" I felt this in my bones. Also daily terror of my kids ending up with this life. #LongCovid
@Emma40025133 It infects the entire body. It’s not a respiratory disease, but a vascular one. It causes the blood vessels to leak, which let things into muscles and cause damage. In LC there’s also mito damage, gene changes, immune damage & ongoing immune dysfunction, causing more damage.
One last plug for this workshop today, which I'm speaking at. This is the first time the NIH has focused on comorbidities in ME/CFS such as neurosurgical conditions, endometriosis, MCAS, connective tissue problems, and GI issues. Registering & watching show these issues matter.
Reminder: The NIH ME/CFS Research Roadmap Webinar focusing on less studied pathologies will be on January 5th at 11:00 am ET. Register here: event.roseliassociates.com/me-cfs-researc… Previous webinar recordings here: event.roseliassociates.com/me-cfs-researc… #pwME #MECFS #MyalgicEncephalomyelitis #NIH
Absolutely, @PutrinoLab. CBT and GET for post-viral diseases like LongCOVID and ME/CFS should be seen as malpractice. In time, the psychosocial label and those driving that agenda will also be proven wrong.
Tell me again how CBT and GET are actionable treatments for #LongCOVID, #MECFS and other disease states where PEM is a symptom? #MedTwitter: if you're still prescribing exercise for these conditions you're causing damage. This is malpractice. nature.com/articles/s4146…
Tell me again how CBT and GET are actionable treatments for #LongCOVID, #MECFS and other disease states where PEM is a symptom? #MedTwitter: if you're still prescribing exercise for these conditions you're causing damage. This is malpractice. nature.com/articles/s4146…
@FvRhijn @DressFor_ME Heartbreaking really. So much could have been done so much sooner if they just believed us
@FvRhijn @DressFor_ME Almost every recent “big finding” had a counterpart paper from the 80’s or early 90’s in ME. The blood clotting was discovered back then in pwME too. But it all got buried and ignored when the psych lobby ramped up efforts in the late 90’s 😔
To be clear, I don't want to to diminish the accomplishments by the Wüst lab. What they did is incredible - and they didnt have government funding - this study was funded partially by crowfunding. But it's important to realize that LC has a hidden history - the history of ME.
This is why it's essential to know our history. Elevated lactate was suspected as early as 1984. Wow. Uhmmm.. gonna do some more digging... @aerztelongcovid are you interested in an addition to your cool figure about me research replicated in LC?
Y'all, turns out that they already did the muscle biopsies in 1991. (Not case control and not longitudinal, but - tangible evidence.) Thanks to @DressFor_ME pointing this out. pubmed.ncbi.nlm.nih.gov/1792865/
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