Hannah Davis @ahandvanish
Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked hannahishere.com Joined September 2010-
Tweets31K
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Followers60K
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Following4K
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Likes72K
“Critically, the trail was flat and groomed—carefully selected since one participant was a wheelchair user…” That was me. And it was an amazing outing. What else could I do if others made a fraction of the effort Ed did to make this outing accessible? audubon.org/magazine/new-b…
“Dr Simon Williams.. said the findings indicated an absolute public health crisis” “If 5 years ago, we were to imagine a completely new disease can cause.. disabling symptoms in approx 3% of the population.. we would be enormously concerned.” #LongCovid theguardian.com/society/2024/a…
If anything concerns me about the #H5N1 outbreak, it’s this: “@USDA knows much more than they’re sharing … for a reason.” Certainly can’t rule out unpreparedness or incompetence, but there are also economic incentives to keep things hidden.
New study!! Lots in this paper but interesting takeaway - #LongCovid patients with higher blood viral load had lower immunometabolism scores (meaning the interaction between the immune system and metabolism). LC patients also had significantly decreased lymphocyte activation!
New study!! Lots in this paper but interesting takeaway - #LongCovid patients with higher blood viral load had lower immunometabolism scores (meaning the interaction between the immune system and metabolism). LC patients also had significantly decreased lymphocyte activation!
#LongCovid is complex to diagnose and treat, so we need #biomarkers! 1. to confirm viral persistence, and 2. to map the failing/overactive immune response. So we tried to hit two birds with one stone using digital transcriptomics 👇👇 (1/n) thelancet.com/journals/lanmi…
It's a short paper so details are in the Appendix 🤓 Look below at the very homogeneous controls (green) and the wild variation among #LongCovid patients: some are similar to controls but half are "deficient" in lymphocyte activation and immunometabolism -> higher viral load!
@resiapretorius Immune status in #LongCovid is neither hyperinflammation nor immunodepression BUT we find lower lymphocyte activation (yellow dots above) and lower #immunometabolism (blue dots) =similar to findings @RobWust team (but we find lower IDO1 not higher IDO2) pubmed.ncbi.nlm.nih.gov/37506544/
I love this so much! "The real data set': a case of challenging power dynamics and questioning the boundaries of research production." Looks at power dynamics in knowledge creation wrt community expertise & academia, very relevant for patient-led research too! Amazing @vee_etc!
I love this so much! "The real data set': a case of challenging power dynamics and questioning the boundaries of research production." Looks at power dynamics in knowledge creation wrt community expertise & academia, very relevant for patient-led research too! Amazing @vee_etc!
I received a broken wheelchair from a company I thought was legitimate but is actually predatory as f. And now I’m suing them and I’m soooo tired from this and the disability insurance battles and medical collections appeals. Flaring again from all the stress.
When mass organizing occurs very quickly it’ll bring a lot of new folks and faces that may not have participated in such an event before. Here are a few quick tips to remember:
My book, #RebelHealth: A Field Guide to the Patient-Led Revolution in Medical Care, is available as a hard cover, digital, or audiobook, wherever books are sold susannahfox.com/rebel-health/
If I hosted a pod mapping session for pwME would people wanna join? It might be a little emotional but I also feel it’s super helpful for crisis responding in emergencies. More on pod mapping : batjc.wordpress.com/resources/pods…
Did you know there's a type of anxiety specific to autism that isn't explained by any of the anxiety disorders currently included the DSM? Researchers are referring to this type of anxiety as "Distinct anxiety" because it's distinct to autism and tied to autistic traits.
Oh. My. God.
We are focusing on one Show Up From Home action per day in preparation for #TeachMETreatME #MillionsMissing. Level 2 is a very critical one if we want more clinicians educated about ME! Email your clinician asking them to take the Mayo CME. Template: docs.google.com/document/d/15j…
Any ideas how to access the pure form of international meds? (Just the active ingredient). Ibudilast is an OTC med from Japan and it’s promising for #LongCovid It helps Dianna, but she reacts strongly to the excipients (all the inactive ingredients) in the commercially…
tomorrow saturday april 27 8pm et/5pm pt im doing a 90 minute (at least) livestream stand-up show. @NatTowsen also on the show. tickets are pay what you want bit.ly/3Uj4u5Y
I spoke to @AEscalanteMD about our recent @TheLancetInfDis paper on antigen persistence. #LongCovid psychologytoday.com/us/blog/should…
The #SARSCoV2 viral RNA signature in people with #LongCovid markedly differs vs controls thelancet.com/journals/lanmi… @LancetMicrobe Also linked to symptoms. Not only indicative of persistence, but also potential as a biomarker @johanvawe @jamoulle @KU_Leuven
People with #MyalgicEncephalomyelitis #pwME #LongCOVID #pwLC, how long after you began taking rapamycin did you find that you were experiencing improvements? #rapamycin #rapamune
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Dr Satoshi Akima FRAC.. @ToshiAkima
34K Followers 3K Following Nephrology & Internal Medicine. Immunothrombosis incl DIC. @ISTH Member. No Conflicts of Interest. Views my own etc
Shaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 723 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
laurie allee (retired.. @laurieallee
26K Followers 8K Following ✌😷 Account is archive. See pinned tweet for most useful Covid threads, including duplication website. I do not check messages here. Off all social media.
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Michael A Osborne @maosbot
33K Followers 1K Following Dad, spouse, Professor of Machine Learning @UniofOxford, Co-Founder Mind Foundry, Director @aims_oxford. Bayes, Long Covid, porridge, AI must be good for humans
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Gez Medinger @gezmedinger
20K Followers 722 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Morgan Stephens @morganstephensa
14K Followers 2K Following chasing around the White House @business, poet debuting TILT (Aldrich Press 2024), previously @cnn, #LongCovid advocate
Vito LaBella Fighting.. @VitoLaBella4NY
1K Followers 4K Following NYS Candidate for Senate 26, Former Candidate NYC Council, NYS Senate 17, D20 CEC, Co-Founder PLACE NYC, Actor (AEA, SAG/AFTRA) Lieutenant NYPD (Retired)
The Banker @lesleyannmacd
130 Followers 801 Following
KatherineLWall @violettiger50
26 Followers 76 Following my old X was @violettiger47 I'm an old gal that has had #ChronicFatigueSyndrome since Aug 1997, diagnosis Jan 1998 I also have other #invisibleillnesses
Hassan Mujtaba @hmujtaba97
93 Followers 1K Following Veterinarian, Agrarian+UVASian Parachinar|Lahore
Elon muskcto @EMusk83503
15 Followers 234 Following CEO, and Chief designer of SpaceX, CEO product of Tesla, Inc.k
Sabiene @SabieneSeip
8 Followers 151 Following
Erica Senchuk @Arukuathome
31 Followers 53 Following
dawn loudenback @DawnLouden91491
5 Followers 51 Following
MANZI Ndamukunze @MNdamukunze
431 Followers 3K Following Renforcement des Capacités - AT en finance inclusive (capacity building-TA in i.f.) Engaged for Persons Living with a Rare Disease (PLWRD) with CENTRE-ALLIANCE
Dark Humor @TwistedComedy1
435 Followers 6K Following Bringing the twisted humor that makes you cringe and chuckle at the same time. Get ready for a wild ride of dark humor and twisted tales. #FunnyFuckedUpStuff 😈
lamin @lamin1255891
111 Followers 741 Following
ModouLamin Badjie @MusaBad17530403
65 Followers 244 Following my name is Modou Lamin Badjie I’m 19years old, I’m from the Gambia 🇬🇲 known as the smiling coast of west Africa, I’m a lifetime hustler and I need support🙏🏾
Nabin Kumar Rai @nabinkrt
452 Followers 7K Following Being happy with past achievements & trying best at present for future. My past online experiences as CEO in London, Madrid, Berlin, Shanghai & Tokyo is memory.
Heather @hasumner
14 Followers 81 Following
Paylz @paylzdig
98 Followers 2K Following
Elena @lenagail28
125 Followers 892 Following Cat mom, ADHD haver. I used to be a structural functionalist, now I'm a conflict theorist. battling #LongCOVID | she/her
G R A C E 🌸 @withgrace___
87 Followers 289 Following 🥀 severe ME/CFS mama to baby son ❤️ heart full, body broken 🌻 INFJ
𝙼𝚊𝚢𝚎 𝙼.. @nowmayemusk9
34 Followers 1K Following Bestselling International Author #AWomanMakesAPlan 📖Doctor of Dietetics 👩🎓 Supermodel 😉💃 #ItsGreatToBe75 Agents⬇️
kara @karakarawrites
186 Followers 510 Following reba mcentire stole my man. amateur american ethnomusicologist, master of astrophysics, and writer for hire: [email protected] (she/her/hers)
Alexandra Alvida @Aelvidra
35 Followers 119 Following very severe ME CCI EDS mcas, insta: @alekpalek Gofundme: https://t.co/op7gGeiInu ⚠️please help if you can⚠️
The Small, Good Wolf .. @THEJPThompson
118 Followers 2K Following Ex-clergy, exvangelical (now secular), writer, philomath, neurodivergent. Anti-capitalist, anti-imperialist, anti-bigotry. BLM M4A GND. Fascism is bad.
John Dutton @JohnDutton67754
31 Followers 364 Following
R.grid @researchgrid
1K Followers 718 Following The automation engine for admin-free clinical trials
Danilo.Buonsenso_Surf.. @surf4children
3K Followers 662 Following Pediatrician/pedsID working on #longcovidkids, #TB, #congenitalinfections☀️funder of surf4children no profit
New York Spaces @NewYorkSpaces
457 Followers 3K Following Covering all things New York! #nyc #newyorkcity
Terrence @siouxkaren
11 Followers 115 Following
Al 🥀 @al_lawson20
4K Followers 5K Following Farm & Garden 🌹Tooling & Die🛠Forest Farming🙏Nature 🌎☮️God is good 🌹Photo are mine!🚫Link
BeatLC22 @BeatLc22
0 Followers 3 Following
Nora Lennox @NoraLMartin
5 Followers 104 Following
Facultad Farmacia UCM @ffarmaciaUCM
890 Followers 887 Following Perfil ofical de la Facultad de Farmacia de la Universidad Complutense de Madrid (antigua Universidad Central) desde 1804.
T & J Hardwood @tnjfloors
39 Followers 124 Following
Maureen Brady @Irishmcbrady
332 Followers 3K Following
Robert McLaughlin @Robert1132013
31 Followers 1K Following
Moistened Tart @MoistenedTart
15K Followers 11K Following US Polly Nerd, Case Manager, Counsellor (20 years), ADHD Coach, Novelist (spec fic), Writing Developmental Editor. adhdkylie@ https://t.co/M3XMAdXQzI
Mickster @MikeyMacMick
236 Followers 1K Following
The Vigilant Fox🦊 @VigilantFox34
504 Followers 614 Following Editor-in-Chief @VigilantNews. Writer, video clipper, and pro-freedom citizen journalist with 12 years of healthcare experience. Inquires: My backup Account
Different Sage @Andrea02292012
5K Followers 7K Following #blueforever, lifelong Democrat, BidenHarris2024, We are stronger together💪🏽🌊🌊🌊🌊, cat lover🐈dog lover🦮Mother of 2-Grandmother of 5
Arun Cherian @ArunCherian12
371 Followers 2K Following Interests are sports (NY-Jets, Nets, Devils)and investing, common sense money advice. Fan of wealth track TV, Motley Fool, WSJ, Bloomberg, CNBC, Fox business
Marg Hutton @marg_hutton
13 Followers 159 Following Life is a series of hellos and goodbyes Voted yes for the Voice 🖤💔💛 Unapologetically COVID cautious 💉x7 😷 Aged lesbian ⚢ Faded rose from days gone by🥀
This Is A Four Letter.. @TIA4LW
60 Followers 110 Following Yes, I'm real. hEDS. Vulnerable to infection. Generally annoyed, not opposed to hope.
Sky @_skyproton
0 Followers 108 Following using this account to catch up on news related to covid, US and world politics, world news, science, and technology.
Yann @yann_mecfs
83 Followers 51 Following Very severe ME/CFS (Long Covid) since 1 year. Not always able to use phone. Have not been able to sit since August. #LongCovidMoonshot
Eusebius Hyeronimus (.. @lasp2020
282 Followers 5K Following As Escrituras são rasas o suficiente para uma criança vir e beber sem medo de se afogar e profundas o suficiente para teólogos nadarem sem alcançar o fundo
Ron Clancy @ronaldclancy
732 Followers 4K Following Father, veteran, entrepreneur, sailor, beer guy, @uOttawa and #NorwichUniversity alum, @Westernulaw student. Opinions are my own and def #NotLegalAdvice
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Dr Satoshi Akima FRAC.. @ToshiAkima
34K Followers 3K Following Nephrology & Internal Medicine. Immunothrombosis incl DIC. @ISTH Member. No Conflicts of Interest. Views my own etc
Shaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 723 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
laurie allee (retired.. @laurieallee
26K Followers 8K Following ✌😷 Account is archive. See pinned tweet for most useful Covid threads, including duplication website. I do not check messages here. Off all social media.
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Michael A Osborne @maosbot
33K Followers 1K Following Dad, spouse, Professor of Machine Learning @UniofOxford, Co-Founder Mind Foundry, Director @aims_oxford. Bayes, Long Covid, porridge, AI must be good for humans
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Gez Medinger @gezmedinger
20K Followers 722 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Morgan Stephens @morganstephensa
14K Followers 2K Following chasing around the White House @business, poet debuting TILT (Aldrich Press 2024), previously @cnn, #LongCovid advocate
@ImaniBarbarin@disabl.. @Imani_Barbarin
221K Followers 1K Following she/her Black girl magic+disabled pride |MA Global Comms | my thoughts | #DisTheOscars + #AbledsAreWeird #ThingsDisabledPeopleKnow | ✉️ imani.barbarin gmail
Daniel Martins (MD, P.. @DanielArturAM
502 Followers 572 Following Institute of Psychiatry, KCL; NIHR Maudsley BRC | Psychiatry - Experimental medicine, Neuroimaging, Biomarkers
Eliza Charley | Actre.. @ElizaCharley
6K Followers 2K Following 🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her
Danilo.Buonsenso_Surf.. @surf4children
3K Followers 662 Following Pediatrician/pedsID working on #longcovidkids, #TB, #congenitalinfections☀️funder of surf4children no profit
Tom Wallach, MD @md_wallach
5K Followers 1K Following Pediatric GI. Pain, EED, and intestinal barrier science. formerly of UCSF/Columbia. Ed board @jpgnreports . hater of ALS. tweets only represent me. he/him
Metrodora Foundation @MetrodoraFdtn
365 Followers 419 Following Catalyzing scientific collaboration and discovery to find cures for chronic, multisystem disorders.
Yann @yann_mecfs
83 Followers 51 Following Very severe ME/CFS (Long Covid) since 1 year. Not always able to use phone. Have not been able to sit since August. #LongCovidMoonshot
Vanessa Smith @normal_ness
2K Followers 2K Following We’re all normal to ourselves. I write. Hates hustle,loves shiny objects. Can’t even influence an ant. Anthropology & sociology graduate Author of books.Spoonie
Dr. Michael 🍉 @internetuserf12
3K Followers 403 Following Working in plant medicine/acupuncture; #LongCovid since November 2020; ME + ITP since who knows he/they 🍉 #ZeroCovid #N95 [email protected]
emotionally intellige.. @julianakilrose
8K Followers 4K Following ATL Organizer/Mvmt Educator | Biomed Engr | struggling wordsmith | UConn Alum | posts are my own opinions | ask yourself if my tweets are for you
Katie Lazell-Fairman @k_lazell
212 Followers 198 Following Artist, Long Covid, ME/CFS, POTS, previously Data Scientist. Life on pause due to #longcovid
Peg Aloi @themediawitch
4K Followers 5K Following Film/TV critic ~ @TheBSFC @CriticsChoice @AWFJ @TheCherryPicks 🍅🍒 scholar, singer, gardener, animal lover, COVID activist 💙🌊
DL Hughley @RealDLHughley
776K Followers 2K Following DL Hughley Show | Comedian | Actor | Radio Host | Author | King of Comedy https://t.co/Api6KFJKZw
Long Covid Advocacy I.. @LCAIreland
2K Followers 3K Following The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ire for all patients
gisela @giselanutella
394 Followers 1K Following Mystical and strange, covid long hauler, writer/producer
Jhourney @jhanatech
3K Followers 279 Following Data-driven education for blissful meditation. Check out our upcoming meditation retreats -- IRL and Online, accessible globally
Dr. Johnathan Flowers.. @shengokai
16K Followers 2K Following Martial artist, motorcyclist, and comics philosopher. Areas: Japanese phil, race, gender, disability, and tech/AI. Pragmatic Dragon. He/Him/His 🏳️🌈
HiFiBiO Therapeutics @hifibio
317 Followers 85 Following HiFiBiO Therapeutics is an emerging multinational biotherapeutics company mobilizing the human immune system to combat disease.
Madeline Ryan Smith @MadelineRyan4GA
8K Followers 3K Following Georgia Disability Caucus Chair. Candidate for GAHD 158. Guide Dog Handler, Social Scientist, Business Owner, Activist. 🇺🇸🇮🇪 Get Mad.
ConCiencia ECAI @ConCiencia_ECAI
51 Followers 1 Following Sensibilización, investigación, acompañamiento y capacitación sobre Enfermedades Crónicas Asociadas a Infección (Long-COVID y Encefalomielitis Miálgica)
Isa Cueto @isabellacueto
3K Followers 3K Following Journalist covering chronic disease for @statnews.
Alexis Cutchins, MD @alexiscutchins
376 Followers 138 Following Cardiologist with Emory Healthcare specializing in women and heart disease.
Bernie Sanders @SenSanders
12.2M Followers 2K Following Sen. Sanders of Vermont, Chair of the U.S. Senate Committee on Health, Education, Labor & Pensions, is the longest-serving independent in congressional history.
Katrin Boniface @KatBoniface
2K Followers 3K Following Historian. Equestrian. Cheese-lover. PhD Student, UC Riverside. Also sometimes at: @Equine_History @SHOT_ECIG @HNet_Sport @Wheats2018 @RsideLatinoPH
Lisa Diedrich @lldiedrich
3K Followers 1K Following Tweets slowly on queer feminism, critical medical studies, disability studies, graphic medicine, pedagogy, gender & sports. Author: Indirect Action & Treatments
Fen, MD @FvRhijn
3K Followers 2K Following 💉*5 | MD w/ #ME due to #LongCovid | rheumatology resident | regenerative med | vascular inflammation | scleroderma | harpist | they/them 🌈 views are mine
Marissa D. Barrera @mdb2
17K Followers 3K Following Deputy Health Policy Director, U.S. Senate Committee on Health, Education, Labor, and Pensions
L., MA @leslieleeiii
31K Followers 11K Following Critic | Writer | https://t.co/vb3d69JCXg | threads: theleslieleeiii https://t.co/VCqC1jnAxC #LongCOVID Vnmo: lleeiii | No mutants, no discourse🙏🏿
Claudia Efstathiou @ClaudEfstathiou
336 Followers 276 Following Postdoc researcher investigating the mechanisms of Long Covid @imperialcollege
Jon Favreau @jonfavs
1.4M Followers 2K Following The other one. @PodSaveAmerica, @CrookedMedia, https://t.co/mKXKFl0EF4, https://t.co/zvWhe0ETFE
carrie dalton @cazd45
1K Followers 1K Following Associate Professor of Neuroscience and Genetics @BMRC_News Theme Lead for Living Well with Chronic Disease @SHU_AWRC
Amy DeBellis @lapis_lazuli11
2K Followers 662 Following ALL OUR TOMORROWS @CLASHBooks 2025 🖤 Words in @fracturedlit @ghostparachute @flashfroglitmag @monkeybicycle @pinchjournal One of #millionsmissing ♿️
Talila "TL" Lewis @talilalewis
14K Followers 8K Following Black queer neuroqueer | founder @behearddc on sabbatical | committed to movement, rest, joy, love, & freedom | pronouns: use my name in place of pronouns
Sydney Nicole Sweeney.. @syderature
4K Followers 835 Following agitator 😘 prev. music & celebs @elitedaily, author of Marxist music manifesto "Vibe Cheque" out now 🎸
chia amisola @hotemogf
6K Followers 914 Following ⋆.•🪷 𓅼˚⁺ lover-in-residence :: https://t.co/iOedn1qFLP https://t.co/4DVpvsVWYH https://t.co/RMY6yE0n1s
Chris #Unite2Fight �.. @ungenesbar
763 Followers 420 Following LongCovid & ME/CFS activist // Core Member of @U2Fight_World // creator of https://t.co/O3DTXjWiPd // gay
Radical Graffiti @GraffitiRadical
114K Followers 1K Following Just sharing pics of anti-capitalist, anti-authoritarian and anti-colonial graffiti, stickers and streetart seen around the world.
sarah | ISO TS NOLA �.. @sunfl_0wer
475 Followers 765 Following i'm here, i'm queer, i'm a(n aspiring) cybersecurity engineer // @LSUCyber // long covid since 7/2020 // she/her
PostX @TeamPostX
1K Followers 1K Following Co-Founder of #UniteToFight2024 //Program Manager // Pharmacist and Political Scientist // Hauler since 2020
Marco Wetzel (is figh.. @Gmwetz
2K Followers 828 Following Founder of @U2Fight_world // #UniteToFight2024 // #LongCovid and #MECFS advocate // #longcovid patient
Lucy Huber @clhubes
80K Followers 2K Following editor @mcsweeneys Mother of: 👦🏼👶🏼🐈⬛🐈🐠🐌 Writer? Hungry. Tired.
Bee, in a Mask 🍉�.. @beeimacat
469 Followers 2K Following Ready to find and spread peace #BlackLivesMatter #AbolishICE #DefundThePolice #OccupyICELA - she/her #LongCovid #MCAS #POTS #EDS #Bipolar
Megan Stevenson @MeganTStevenson
7K Followers 984 Following economist & legal scholar studying criminal justice. UVA law prof. w/long covid. research: https://t.co/kkj5xtHIjg
Atlanta Long Covid Co.. @LongCovidATL
22 Followers 58 Following Mutual aid / community group for people in Atlanta with Long COVID (& their loved ones).
sar bar @sarbarella
120 Followers 491 Following
Salamāsina (she/her) @salamasinamusic
4K Followers 1K Following Free Palestine! 🇵🇸/covid safety advocate 😷/bisexual menace🏳️🌈/half Samoan🇼🇸 🎶stream NOT FAIR🎶
longcovidstudies @lcstudiesdotnet
287 Followers 0 Following Long Covid Studies makes it easy to find Long Covid research studies near you.“Critically, the trail was flat and groomed—carefully selected since one participant was a wheelchair user…” That was me. And it was an amazing outing. What else could I do if others made a fraction of the effort Ed did to make this outing accessible? audubon.org/magazine/new-b…
“Dr Simon Williams.. said the findings indicated an absolute public health crisis” “If 5 years ago, we were to imagine a completely new disease can cause.. disabling symptoms in approx 3% of the population.. we would be enormously concerned.” #LongCovid theguardian.com/society/2024/a…
If anything concerns me about the #H5N1 outbreak, it’s this: “@USDA knows much more than they’re sharing … for a reason.” Certainly can’t rule out unpreparedness or incompetence, but there are also economic incentives to keep things hidden.
These missing data are very important to be able to look at a “pandemic clock” to know the time, if clock is ticking, & how fast. The risk of human exposure has increased significantly from info learned over past week (mind you, very little if any real data have come from USG…
@ahandvanish Thanks Hannah! 😭 means so much coming from you. I am hoping to one day use some of these ideas to start writing more about patient-led research in medicine, especially for pwME and LC
#LongCovid is complex to diagnose and treat, so we need #biomarkers! 1. to confirm viral persistence, and 2. to map the failing/overactive immune response. So we tried to hit two birds with one stone using digital transcriptomics 👇👇 (1/n) thelancet.com/journals/lanmi…
It's a short paper so details are in the Appendix 🤓 Look below at the very homogeneous controls (green) and the wild variation among #LongCovid patients: some are similar to controls but half are "deficient" in lymphocyte activation and immunometabolism -> higher viral load!
@resiapretorius Immune status in #LongCovid is neither hyperinflammation nor immunodepression BUT we find lower lymphocyte activation (yellow dots above) and lower #immunometabolism (blue dots) =similar to findings @RobWust team (but we find lower IDO1 not higher IDO2) pubmed.ncbi.nlm.nih.gov/37506544/
I received a broken wheelchair from a company I thought was legitimate but is actually predatory as f. And now I’m suing them and I’m soooo tired from this and the disability insurance battles and medical collections appeals. Flaring again from all the stress.
Failure to communicate test results to patients creates potential patient safety issues. Establish clear protocols for tracking, documentation & follow-up. bit.ly/4cJHs0L
When mass organizing occurs very quickly it’ll bring a lot of new folks and faces that may not have participated in such an event before. Here are a few quick tips to remember:
I strongly believe this propaganda is being pushed to prime the working class/poor/marginalized brain for the shortage of water. It terrifies me at the thought that showering is going to be an elitist luxury.
Daily showers are purely ‘performative’ and have no real health benefit, experts insist trib.al/ee63uAc
My book, #RebelHealth: A Field Guide to the Patient-Led Revolution in Medical Care, is available as a hard cover, digital, or audiobook, wherever books are sold susannahfox.com/rebel-health/
Speaker recap 🤩 Say hello to @BhupeshPrusty ! 👋 Prof. Bhupesh K Prusty will cover the overlapping and differentiating biological features of #MECFS and #LongCovid in his session at #UniteToFight2024 We are already very excited !
If I hosted a pod mapping session for pwME would people wanna join? It might be a little emotional but I also feel it’s super helpful for crisis responding in emergencies. More on pod mapping : batjc.wordpress.com/resources/pods…
Did you know there's a type of anxiety specific to autism that isn't explained by any of the anxiety disorders currently included the DSM? Researchers are referring to this type of anxiety as "Distinct anxiety" because it's distinct to autism and tied to autistic traits.
Just to be clear, what this is saying is that, as we continue to increase the baseline amount of carbon dioxide in the air, it makes viruses that float in the air last longer, meaning they can infect more animals and humans before breaking down
Oh. My. God.
This study mechanistically connects the predicted rise in ambient levels of CO2 with an increased likelihood of respiratory disease transmission. As the global CO2 concentration continues to increase, the length of time respiratory viruses remain infectious in the air as well.
We are focusing on one Show Up From Home action per day in preparation for #TeachMETreatME #MillionsMissing. Level 2 is a very critical one if we want more clinicians educated about ME! Email your clinician asking them to take the Mayo CME. Template: docs.google.com/document/d/15j…
Any ideas how to access the pure form of international meds? (Just the active ingredient). Ibudilast is an OTC med from Japan and it’s promising for #LongCovid It helps Dianna, but she reacts strongly to the excipients (all the inactive ingredients) in the commercially…
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