Search results for #MEcfs
@alena_buyx @ethikrat Die Themen #MECFS und #LongCovid haben Sie geflissentlich ignoriert, trotz ausführlicher Hinweise seitens der Betroffenen. Heute thematisiert die Berliner Zeitung deren extrem hohe Suizidrate, jeder 5. Todesfall. berliner-zeitung.de/gesundheit-oek…
May is ME Awareness Month. Between 17-30 million people worldwide live with this condition. I am one of them. You can find the links for lots of charities, events, advocates and articles in my bio. #pwME #mecfs #myalgicE #longcovid #postcovid #MEAwareness #MEAwarenessMonth
@berlinerzeitung @NichtGenesen @dg_mecfs @Karl_Lauterbach @BrinkmannLab @c_drosten @hendrikstreeck Danke dass sie das sensible Thema Suizid bei #LongCovid #MECFS behandeln. Durch Stigmatisierung, Verweigerung ärztlicher Behandlungen (z.B Schmerztherapie) Hoffnungslosigkeit & einer für Außenstehenden oft unvorstellbaren Symptomlast ist Suizid oft das EINZIGE und letzte Angebot.
Gibt es denn eigentlich Erfahrungen unter uns zu dieser MCAS Klinik bei Cham? #Longcovid #MECFS #PostVac
20mg Amifampridin pro Tag und immer noch keinen Effekt. #LongCovid #MECFS #Amifampridin
20mg Amifampridin pro Tag und immer noch keinen Effekt. #LongCovid #MECFS #Amifampridin
@Rockgirl611 Ja und bald wird es das wieder tun… weil ich wegen #postcovid oder vielleicht auch #mecfs in Kürze gezwungen bin, das junge Pferd zu verkaufen und das alte einzuschläfern. Bin jetzt seit Monaten bettlägerig und kein Ende in Sicht. Arztbesuche nicht möglich.
PEM is NOT just malaise/exhaustion/symptoms after exertion. PEM IS A DETERIORATION IN THE VERY DISEASE PROCESS THAT DRIVES #MECFS ! THIS IS WHY IT IS SO DANGEROUS AND CAN MAKE YOU PERMANENTLY MORE SEVERE! Eg. Cancer doesn’t spread/ PwMS don’t loose more myelin from exertion!
TONIGHT 8PM: We're pleased to say we're launching our website during #MEAwarenessHour TONIGHT at 8pm. This is a project that everyone can be involved in - so we hope you'll be online later today for the launch #MEcfs #EDSAwarenessMonth #SaveCarlasLife thechroniccollaboration.com
@Werdieswoh51298 @berlinerzeitung Was für ein Bullshit. Es gab bis zu 300.00 #MECFS-Fälle vor der Pandemie, oft postviral zB nach EBV-Infektion oder Influenza. Das alles lässt sich übrigens richtig darstellen, ohne die - zum Glück relativ seltenen - Fälle schwerer Impfschäden zu verschweigen
Vielen Dank für diesen wichtigen Artikel zu #LongCovid & #MECFS und den Hinweis auf die großartige Konferenz @U2Fight_World 🙏.
Alle #MECFS-Kranken müssen auch heute noch einen qualvollen & krankheitsverschlimmernden #Kampf um Anerkennung & Sozialleistungen führen. Ein #Armutszeugnis für sogenannte "Sozialstaaten" wie #Oesterreich, #Schweiz & #Deutschland. #LongCovid #PostCovid #PostVac @BMG_Bund @WHO
Alle #MECFS-Kranken müssen auch heute noch einen qualvollen & krankheitsverschlimmernden #Kampf um Anerkennung & Sozialleistungen führen. Ein #Armutszeugnis für sogenannte "Sozialstaaten" wie #Oesterreich, #Schweiz & #Deutschland. #LongCovid #PostCovid #PostVac @BMG_Bund @WHO
Es ist ein großer Unterschied, ob man nicht sicher nachweisen kann, ob Beschwerden #psychosomatisch oder #organisch sind, oder ob man nicht will, dass eine #Krankheit als körperliche Erkrankung anerkannt wird. Aus dem Knast kommt man leichter, als aus der #Psychosomatik. #MECFS
Es ist ein großer Unterschied, ob man nicht sicher nachweisen kann, ob Beschwerden #psychosomatisch oder #organisch sind, oder ob man nicht will, dass eine #Krankheit als körperliche Erkrankung anerkannt wird. Aus dem Knast kommt man leichter, als aus der #Psychosomatik. #MECFS
Erhöhtes Suizidrisiko bei #LongCovid und #MECFS: Konferenz soll Erkrankten Hoffnungen machen, deren Leid oft als „Erschöpfung“ verharmlost wird. #Corona #Covid19 #Fatigue @NichtGenesen @dg_mecfs @Karl_Lauterbach @BrinkmannLab @c_drosten @hendrikstreeck berliner-zeitung.de/gesundheit-oek…
Eins, zwei, drei & weg #PostCovid macht kurzen Prozess Folgen von #COVID19 und anderen #Infektionskrankheiten können #Gesundheit, #Karriere & #Leben zerstören #MECFS #PAIS #Politik @BMG_Bund @WHO_Europe AL-Chefin tritt wegen #LongCovid aus Parlament aus bluewin.ch/de/news/schwei…
Es geht aufwärts, sagte die Maus, als die Katze sie die Treppe hochtrug🐭 Auch bei ME & LC geht es bergauf. Aber wann erreichen wir endlich das Ziel? @WHO „Bewusstsein für #MECFS und #LongCovid ist im Steigen, dennoch ist der Weg noch weit!“ via @APAOTS ots.at/presseaussendu…
Diese Erkenntnisse könnten wichtige Implikationen für die Behandlung und das Verständnis von #MECFS, #LongCOVID und anderen postviralen Erkrankungen haben, indem sie den Fokus auf die Bedeutung der zellulären Energieproduktion lenken. 8/ healthrising.org/blog/2024/04/3…
unabhängig von der Herkunft des Erregers. Die Ergebnisse werfen auch Fragen darüber auf, warum die Immunzellen nach der Infektion in einen hypometabolischen Zustand geraten und wie dieser Zustand langfristige Auswirkungen auf den Patienten haben kann. 7/ #MECFS
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Judy Woodward @MECFS
53 Followers 2 Following
Center for Solutions .. @CfSforMECFS
3K Followers 129 Following @NIH funded ME/CFS Collaborative Research Center, committed to understanding the pathogenesis of #MECFS
ME/CFS Research Found.. @MECFSResearch
1K Followers 226 Following Für mehr biomedizinische ME/CFS Forschung. Foundation for biomedical research on #MECFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome).
RemissionBiome MECFS/.. @remissionbiome
10K Followers 436 Following Community science, patient-led project of the non-profit, decentralized research org, @renegaderes. Serendipity meets preparation. https://t.co/IkTfALVBWC
Bake4ME/CFS @bake4mecfs
232 Followers 1 Following 💰 Donate £4 🧁 Bake 4 ME/CFS 👩🏼🤝👨🏽 Nominate 4 friends - Donation link below ⬇️
M.E. Chronic Fatigue .. @ME_CFS
9K Followers 9K Following #MyalgicEncephalomyelitis #MECFS @ME_CFS Many think caused by chemical poisoning/chlorine #ChronicFatigueSyndrome is severe muscle/nerve pain Like #LongCovid
Simon McGrath #mecfs @sjmnotes
4K Followers 243 Following Been ill for a while. Mostly ME/CFS biomedical research and news
Dt. Ges. für ME/CFS @dg_mecfs
6K Followers 273 Following ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein.
ME/CFS Research Netwo.. @TheMECFSNet
703 Followers 29 Following @NIH-funded network that fosters collaborative research in partnership with individuals and advocacy groups to improve the diagnosis and treatment of #MECFS.
ME/CFS Priority Setti.. @PSPforMECFS
1K Followers 82 Following Led by patients, carers & clinicians, the ME/CFS Priority Setting Partnership will identify the top 10 research priorities to influence future research funding.
Cornell Center for En.. @CornellMECFS
1K Followers 77 Following Collaborative #research center based @Cornell directed by @DrMaureenHanson encompassing a variety of projects on #MECFS. Visit our website below for more info.
ME/CFS South Australi.. @mecfs_aust_sa
415 Followers 9 Following ME/CFS South Australia Inc. provides support, education and advocacy for people with ME/CFS and those who care for them.
Sevda Sarıkaya @drsevdasarikaya
87K Followers 420 Following Neurologist, Behavioral Neuroscience and Dementia 🧠Alzheimer’s School #MECFS Advocate
Billboards for LC/MEC.. @LCMEBillboards
1K Followers 215 Following Public awareness campaign. We need biomedical research and treatments for Long Covid/ME/CFS now. https://t.co/zppTxZjTK8
Long Covid (Fibromyal.. @LongCovidTeach
634 Followers 187 Following Caught covid from a pupil, hospitalised, now suffering with Long Covid. Also Fibromyalgia and ME/CFS triggered by Covid. CEV. Wheelchair reliant. London, UK.
Biomedics MECFS @BiomedicsMECFS
620 Followers 197 Following MECFS Biochemistry Research, Clinical Interface, Education, Patient Advocacy.
POTS & MECFS Billboar.. @Perospumpeh
607 Followers 69 Following 23 years old, POTS & 20+ symptoms from Covid since January 2021. Not vaccinated.
Simmaron Research @RedefiningMECFS
4K Followers 397 Following Official Twitter account for Simmaron Research, a non-profit scientifically redefining ME/CFS. Visit our site to learn more.
Christian Zacharias #.. @ChrZacharias
2K Followers 213 Following Former software developer ruined by doctors. ME/CFS since 2019, 90-95% bedbound, writing a book about my story + 'psycho' misdiagnoses.
Massachusetts ME/CFS .. @MassMECFS
2K Followers 790 Following To improve the lives of all people affected by ME/CFS and Fibromyalgia through advancing awareness, care, treatment and research.
The Optimum Health Cl.. @OHCforMECFS
719 Followers 318 Following An award-winning clinic providing an integrative, personalised and evidence-based approach to achieving optimum health. Request your FREE info pack ⬇️
CFS支援ネットワ.. @mecfs_netjp
2K Followers 0 Following CFS（慢性疲労症候群）支援ネットワークは、当事者と家族、医療、福祉、行政関係者を中心とした患者支援団体です。5月12日はME/CFS世界啓発デーです。
Ben H @benh_mecfs
6K Followers 3K Following ME/CFS patient advocate, @OpenMedF science correspondent. Bedbound. Former: biochemist in training, Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
ME/CFS Medical Educat.. @MECFS_Med_Ed
525 Followers 163 Following Promoting evidence-based medical education on ME/CFS; raising awareness among medical students, medical educators and organizations. https://t.co/OSoi2hqVXV
Alice @Alice_mecfs
1K Followers 687 Following #MECFS for almost a decade now. Hoping to connect with others & find a way out.
Rachel Stanton 🇺�.. @RachelMEcfs
786 Followers 105 Following Follower of Jesus, Wife, Mom, Nana, #MEcfs and fibromyalgia for 18 years
Fatigo_ME @Fatigo_MECFS
2K Followers 2K Following Chris. #MECFS #Lyme recovery & creating awareness. Research, News, Views & Functional medicine approaches to healing #biohacking Interested in #Microbiome
MECFS Stuttgart @MECFS_Stuttgart
2K Followers 2K Following Informationen & Aufklärung über #MECFS und #LongCovid 🇬🇧🇩🇪
Susan Kandarian @susan_mecfs
1K Followers 813 Following Professor-scientist (muscle biology) on LTD from progressive #MECFS. Ally for ppl with infection-associated chronic conditions. #longcovid 🏳️🌈
EndMECFS @EndMECFS
1K Followers 190 Following Caregiver for husband. Navigating the rough waves of ME/CFS and hoping for an end to the disease soon.
Britney's Barbi (MECF.. @JKsBlueWhisper
3K Followers 3K Following Sang BRITNEY & NKOTB (YT: BarbiBoo) 💌♿ #MECFS #EBV #HSD #POTS #PTSD 💞 DONATE, k? (link) 💞
Coalition4ME/CFS @Coalition4MECFS
189 Followers 2 Following We are a coalition of organizations dedicated to improving the quality of life of patients with ME/CFS and other NeuroEndocrineImmune Disorders.
Dave T #MECFS #freepa.. @davro_t
1K Followers 1K Following #pwme since 2018 #Autistic adult, socialist, nerd, gamer, love horror/sci-fi/fantasy - used to be an avid reader & runner #ME #MECFS #AuDHD #millionsmissing
ME/CFS AID Japan @mecfs_aid_Japan
408 Followers 7 Following 筋痛性脳脊髄炎/慢性疲労症候群(ME/CFS)の疾患啓発をしている任意団体です。 Facebookページ:https://t.co/0Tgt9bAEUI
now_grace 🇪🇸 �.. @now_grace
572 Followers 562 Following Twitter for Sofia Echegaray. https://t.co/oFR0OKB8br . Musician & software tester disabled by Chronic Lyme / MECFS / endometriosis. #LongCovid exists yo, wear a mask.
ME/CFS, LongCovid, Po.. @MecfsLongcovid
81 Followers 16 Following Informationen/Studien zu ME/CFS, LongCovid, PostCovid, Postvakzin und Komorbiditäten, für Betroffene und Interessierte
💕 fleur delis .. @fleurdelis30
2K Followers 2K Following Research on 🇨🇦’s Koch: #AureaFoundation #munkdebate #DonnerCanadianFoundation #DonnerFoundation ⚠️BOYCOTT kiwicom247⚠️
Ö. Ges. für ME/CFS @oeg_mecfs
2K Followers 461 Following 💛 Österreichische Ges. für #MECFS ⚡ NEWS zu #MECFS #pwME #myalgicE 👇 Informationen, Spenden, Kontakt https://t.co/MeOlPskNJx
Long Covid Sufferer M.. @LCsuffererMECFS
2K Followers 2K Following Diagnosed with #MECFS and #POTS. Looking for a treatment. #Dysautonomia #Millionsmissing #LongHauler #LongCovid #Apheresis #SteroidPulse #IVIG #BC007 #Rituximab
ME/CFS Freiburg @MECFS_Freiburg
651 Followers 184 Following Informationen über #MECFS, auch betreffend die Region Freiburg im Breisgau. Die #MillionsMissing brauchen eine starke Stimme.
MerelyExisting is ME @tweetsforMECFS
529 Followers 185 Following If you think #MyalgicEncephalomyelitis is hard to say you should try living with it... #mecfs #pwme #neurome #seid #meawareness #may12blogbomb #meawarenesshour
kath Lawton ( I suffe.. @kathLawton6
1K Followers 990 Following Suffered from MECFS 30 yrs , I hadn't been able to find a Doctor who has taken my illness seriously, until Now! she is sending me for numerous tests, so happy!
Dialogues ME/CFS @DialoguesMECFS
2K Followers 1K Following Website with videos created by Natalie Boulton & Josh Biggs. Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of ME/CFS.
My M.E/ CFS Portal @My_MECFSPortal
820 Followers 599 Following Fellow M.E/Fibro sufferer who wants to share info/news, experiences and raise awareness/understanding.
Ruri@MECFS患者 @ruri_aaaaa
487 Followers 655 Following #MECFS 患者。いろいろ発信したり、情報集めたりしてます。ハイライトに過去のおすすめ投稿まとめてます。千葉県患者コミュニティ運営。#慢性疲労症候群 #コロナ後遺症 #ワクチン長期副反応 体調メモツリー→ https://t.co/nQAmMX2Rav
Irish ME/CFS Associat.. @IrishMECFSAssoc
2K Followers 2K Following Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Assoc. NB: Posts should not be considered advice. RCN 20100254 CHY 22039. Some #LongCovid items also.
Yann (ME/LC Research .. @yann_mecfs
101 Followers 63 Following Very severe ME/CFS (Long Covid). Not always able to use phone. Bedridden/unable to speak. #LongCovidMoonshot
In the abyss. v sever.. @AbyssPearl
518 Followers 169 Following On essaie de tenir le coup 🧠🫀 fighter. survivor. #mecfs, depanx, #pots, allergies & other. I'm one of the millions missing. chronic illness
😷🪷🗽🟧 Chri.. @MindFeast622
7K Followers 8K Following 🚫NO DM’s please. VOTE BLUE!!! Struggling with #MECFS #MCAS #PEM . TheResistance #DACA #BlackLivesMatter #LGBTQIA+ #ShePersisted #MeToo #FF #FBR #FBPE
Gundula_LongCovid_MEC.. @Kalea_Fighter
320 Followers 184 Following Wenn dein Koerper & dein Geist nicht mehr dir allein gehören, sondern Gundula einzieht... Zustand nach EBV, 2 x Corona... LongCovid und ME_CFS...
Alberta2Rocks 🌸�.. @Alberta2Rocks
2K Followers 2K Following Proud Property of 🌸. Proud owner of 🦋. Team Wissenschaft. fcknzs. Teasing Queen RT frivoler Bilder führt automatisch zum Block.
ME and Me @mecfs_and_me
307 Followers 187 Following ME and Me offers the ME commuinity in Leeds, and across the UK, one easy place to access news and support. 📨 [email protected]
Leah McElrath @leahmcelrath
136K Followers 3K Following Psychology, geopolitics, marginalia • Making sense of a world that doesn’t • @smithcollege BA, MSW • @LSEalumni • #ActuallyAutistic #MECFS #LongCOVID
Dallas MEcfs @DallasMecfs
259 Followers 184 Following M.E. advocate & community organizer. #LongCovid ally. Join us on Facebook at #MEActionTexas
Tom Kindlon-IrishME @IrishMECFS
1K Followers 1K Following Focuses on Irish news on #MyalgicE/#ChronicFatigueSyndrome, #LongCovid or related (+ some personal news). #MEcfs #LC. Main (international) account: @TomKindlon
Hexem Education🇺�.. @HexemEducation
315 Followers 643 Following Fan of #RichardFeynman. No medical advice intended. #Counterintuitive. Retired anesthesiologist and pain management
Julie @JulieMECFS
1K Followers 1K Following Hi I'm Julie I have me/cfs. It has been a long few years, however now I am back to 80% of my old self. Follow my story! Please Follow Our Sponsor @search4ahotel
MECFS Conference in M.. @MECFSconf_mtl
316 Followers 123 Following 1re conférence collaborative canadienne sur l'EM/SFC ◼︎ 1st ME/CFS Canadian Collaborative Team Conference ◼︎ Mai/May 3-5, 2018 ◼︎ MTL-QC
MEcfs Betroffen, auf .. @charlotta123456
943 Followers 816 Following #meawarenesshour #MECFS #LongCovidKids #LongCovid #POTS #POSTVAC
ねこ @mecfs_
360 Followers 56 Following 2008年春にME/CFS(筋痛性脳脊髄炎/慢性疲労症候群)との診断を受け、急激に悪化、以来ほぼ寝たきり状態の生活をしています。 ツイート内容は日々の吐露。ごくまれに毒を吐きます。 医科学の進歩に強く期待しています。 体調が不安定で長期無言になります。
Claudia Rose_AntiAfD/.. @ClaudiaRose1212
1K Followers 1K Following Der Glaube an eine übernatürliche Quelle des Bösen ist unnötig. Der Mensch allein ist zu jeder möglichen Art des Bösen fähig.AfDter werden geblockt!
R.J. Anderson,BA. #FB.. @rja77732
682 Followers 2K Following Psychology Major Graduate (c/o 2020), Focusing on Clinical/NeuroPsychology.32nd Deg. Freemason. Husband and Father of two boys. #LongCovid survivor Writer.
Kerstin @Kerstin_mecfs
748 Followers 1K Following ME since 2009 -Bell 20- I want my life back! #mecfs #POTS #lipoedema #acneinversa #SFN #Fibro #HDS #ADHD #MultipleChronischeViren #EBV #CMV #HPV6
Tanja S 🇪🇺❤�.. @tanja_mecfs
466 Followers 266 Following Atheistin, #MECFS, Minimalistin, Ordnungsfan, ausgeprägter Sinn für Gerechtigkeit
ME/CFS-Netzwerk Baden.. @MECFS_BW
674 Followers 307 Following Wir sind (seit April 22) der Zusammenschluss von #MECFS -Selbsthilfegruppen in BW und der Initiative Freiburg. #longcovid #postcovid #postvac #pwME
LongWaiter @LongWaitMECFS
433 Followers 875 Following My life disinterests you; you entertain me. Not polarized, but often cynical. Typos galore b/c of cognitive dysfunction. #MEcfs #Dysautonomia since 2009.
MECFS Global Action @MECFS_GA
312 Followers 177 Following We are a group of patients and advocates that aim at sharing the recent research and info on ME/CFS
Happy @HappyMECFS
327 Followers 309 Following I'm a woman living by the sea in England. I'm housebound and 80% bedbound with ME/CFS and I'm learning to come to terms with my new life.
Elizabeth (Lisa) Ried.. @ElizabethRied11
417 Followers 692 Following 15 years criminally neglected post-viral MEcfs like Long Covid. 🤕 $998 SSI/mo, only after 9 years unable to work! Denied SSDI 3X!
NSU ME/CFS @NsuMecfs
889 Followers 1K Following We're the Institute for Neuro-Immune Medicine investigating ME/CFS. Support our research and join our study or spread the word! #MECFS #MillionsMissing #CFS
🧳 Koffer @fighting_MECFS
877 Followers 637 Following Leben und Überleben mit ME/CFS seit Covid 12/20. Würde am liebsten meine Koffer packen und dem Long Covid-Alptraum entfliehen. 🏝️🍹⛵️🏔️🏂🚴♀️🤸♂️🥾
The Prince of Frogs @MECFS_0512
1K Followers 824 Following 筋痛性脳脊髄炎/慢性疲労症候群/ME/CFS/SEID/線維筋痛症/FM/医師/内科/内分泌/ ある出来事がきっかけで筋痛性脳脊髄炎を診る医者になろうと決意しました。「慢性疲労症候群世界啓発デー」にアカウントを作成
ME/CFS fighter 🦋 @mecfs24
224 Followers 211 Following 25 yo | #MECFS | sharing my findings: scientific research and potential treatment options | no medical advice
MECFS352 @mecfs352
169 Followers 290 Following A thinktank of tertiary students in Australia building a portfolio of evidence-based information on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
Mortality Study @DePaul_MECFS
284 Followers 278 Following DePaul University is studying ME/CFS-related deaths. You can contact the study via twitter, email ([email protected]) or phone (773-325-1164)
All about M.E. @AllAboutMECFS
494 Followers 758 Following Ran lots to raise awareness #mecfs. Get in touch via @SeanMichaelH #runningforME #AllAboutME
Jack Harper @TruthAboutMECFS
68 Followers 24 Following Through my tweets I aim to inform people around the world about the devestating physiological symptoms of M.E. (Myalgic Encephalomyelitis).
MEcfs together @MEcfsTogether
869 Followers 1K Following I retweet and initiate small community projects and bundle our voices to raise awareness 🇬🇧🇩🇪 / send valuable tweets via DM / #MEcfs #pwME #millionsmissing
Dr Sam Martin🇩🇲.. @DigitalCoeliac
2K Followers 4K Following Digital Analytics Consultant, Social Data Scientist, Methodologist. Works at @UniofOxford | @RREALwork | AI Artist: @DigitalWildArt
Carin-Lee G. #ZAHeal .. @geuking2
378 Followers 815 Following HPCSA Registered Clinical Psychologist working with adults experiencing emotional/psychological problems; Long Covid survivor #LongCovidtherapy #MindBodytherapy
Sarah O'Connell @SarahOC_MECFS
4K Followers 4K Following ME #pwME patient 10 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
相澤めぐみ(演�.. @megumiaizawa
2K Followers 885 Following 演歌歌謡曲歌手🎤 2014年ｷﾝｸﾞﾚｺｰﾄﾞよりCDﾃﾞﾋﾞｭｰ💿 温泉ｿﾑﾘｴ♨ 鬼滅ｵﾀｸ 2022年2月難病(筋痛性脳脊髄炎)闘病中🥲︎ ｺﾒﾝﾄが元気の源💕 ほしい物リスト👉 https://t.co/71l5wvRrxL
ME/CFSクオリティ.. @MECFS10
1K Followers 1K Following ★ME/CFS（筋痛性脳脊髄炎/慢性疲労症候群）啓発周知活動 ★任意団体【ME/CFSクオリティ向上委員会】代表（中の人）＝ME/CFS患者 PS9⇄8 ★2022年 活動開始。ME/CFSの周知を求める要望書を静岡市に提出 ★【ME/CFS世界啓発デーin静岡】静岡市でライトアップイベント 企画制作
Diagnose die nicht ge.. @Y_Schulz_MECFS
490 Followers 597 Following Die Diagnose die nicht genannt werden darf #MECFS #wirsindmehr #wirsindbunt #fckNZS #niewiederunsichtbar #wirfordernforschung
S @suki_mecfs
239 Followers 2K Following
inimecfsfr @MecfsI
24 Followers 51 Following
Karyn C @KarynMECFS
67 Followers 73 Following ME patient trying to help create a better future for a grossly neglected community.
mmeeii@fm mecfs @mmeeii_0607
324 Followers 247 Following 線維筋痛症、慢性疲労症候群。倦怠感、脱力、全身痛、睡眠障害、光過敏、聴覚過敏、微熱、口渇（シェーグレン、？）腱反射亢進、筋力低下…etc ♿️ エイト（医療器具）❌、EAT（挫折❌）、和温療法（保留）ステロイドパルス、水素吸入、統合医療、rTMS、EGI、酸素カプセル、その他対症療法と漢方、サプリで治療中
💜和華💜MECFS @waka_MECFS
253 Followers 238 Following 重度の #慢性疲労症候群 / #筋痛性脳脊髄炎 と #線維筋痛症 の元仕事大好き人間なオープンなゲーム、アニメ、マンガオタなシンママ。 基本ベッドの上で生活中。医師の所でPS値は9。発症は9年前、重症化して5年ほど。身体障害者1級の車椅子の人。どうぞ、宜しくお願い致します。 絵師はショコラ様です(@ichigocr)
Julia MECFS| POTS|Pos.. @Asunasan_88
285 Followers 179 Following 25| weiblich | verheiratet | neurodivergent| ambulatory ♿ user | Dysautonomie vmtl POTS +moderates MECFS mit Funcap55 Score 2,9 bis 3,25 |PostVac | LongCovid
Exercise is not treat.. @MECFS5
407 Followers 455 Following ME sufferer for over 30 years as a result of guillain barre syndrome. #millionsmissing
Yuki&Bruno @AdvoCats4MEcfs
112 Followers 155 Following We’re 2 rescue cats on the prowl to bring recognition & research for our human friends who suffer the neglected illness #MEcfs #AdvoCats4MEcfs Dogs welcome.
運営@コロワク�.. @mgmt_hinata
9 Followers 1 Following プレオープン！@korowaku_info 運営のヒナタです。皆さんの意見を聞きながらサイトの運営をしていきたいと思っています！
ME-CFS Tasmanian @MECFS_Tas
49 Followers 0 Following ME/CFS Tasmania is an organisation dedicated to providing information & support for Myalgic Encephalomyelitis: Chronic Fatigue Syndrome community in Tasmania.
ThisisMEcfs @thisisMEcfs
153 Followers 282 Following Raising awareness on a neglected disease that affects nearly 2 million Americans