A 😎 Long Covid + MECFS Billboards @AaronCa11
@lcmebillboards https://t.co/0rnAQeYP77 Scotland Joined April 2011-
Tweets6K
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Mike has raised almost 50K for #MECFS research by running marathons across the EU and was interviewed on the news in Serbia about it! Raising awareness, raising funds, raising my hope in humanity bigtime 😎 #pwME
876 signatures now! Can we cross 1,000 tonight for @TheChronicColab #SaveCarlasLife #BringMillieHome #MECFS
876 signatures now! Can we cross 1,000 tonight for @TheChronicColab #SaveCarlasLife #BringMillieHome #MECFS
Soquelitinib may be worth considering for LC/ME. Some of the mechanisms make sense in regards to immune dysfunction we see I believe. More info below. ◦Soquelitinib is an oral, small molecular drug that selectively inhibits ITK (interleukin-2-inducible T cell kinase) and has…
Busy day! 2 TV interviews this morning then Red Star and Partizan football stadiums and the fortress. 8am race start tomorrow, its going to be hot, hopefully I can survive. £700 to go to hit £50k 🇷🇸 justgiving.com/mikeseumaratho…
264 signatures already! You don’t need to be in the UK to sign this btw Make sure to click the link in your email. #BringMillieHome #SaveCarlasLife #MECFS openletter.earth/sajid-javid-pl…
264 signatures already! You don’t need to be in the UK to sign this btw Make sure to click the link in your email. #BringMillieHome #SaveCarlasLife #MECFS openletter.earth/sajid-javid-pl…
Is the cause the same for everyone with dysautonomia? I'm not sure because, for example, I don't have PEM and I don't have fatigue, but I have POTS and other symptoms. In fact, I'm the opposite of ME/CFS patients, my body is never tired but rather hyperactive
The Press: “Long Covid: ‘I don’t want to be stuck in this house anymore’” “I’ve worked all my life, I’ve paid taxes, I’ve never asked for help before and I need help now, and we can’t get it.” thepress.co.nz/nz-news/350230…
Basically doubled and still basically nothing for kids. It's a moral outrage.
ANNOUNCEMENT: We're aware and welcome the Westminster Hall debate on #MEcfs that @sajidjavid will be leading. We're also aware that #pwME feel strongly that the current situations with #BringMillieHome #SaveCarlasLife & Karen are represented. So, we're drafting an open…
Another awesome article by @MrTopple Let’s make this #MEAwarenessDay the biggest one yet and support @RorPreston with his postcard campaign 😎!! thecanary.co/trending/2024/…
The Daily Mail has an article on the ONS report today, but they are leading with a runny nose being the main symptom and have buried the 2 million "self reported" Long Covid in the middle of the article. dailymail.co.uk/health/article…
I’m neither a politician nor an economist, but finding it hard to see how it could be good to have 3% of the workforce long term unwell to #LongCovid, yet no moves to acknowledge, mitigate, research or treat?
I’m neither a politician nor an economist, but finding it hard to see how it could be good to have 3% of the workforce long term unwell to #LongCovid, yet no moves to acknowledge, mitigate, research or treat?
The two leading UK #MEcfs charities are linked to an organisation fomenting the psychologisation of the illness. From 'disordered eating' to ignoring NICE guidelines BACME are dubious yet the charities work with it. Via @TheCanaryUK #SaveCarlasLife thecanary.co/uk/analysis/20…
GeoCK @GeoEduOne
6K Followers 953 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Ippokratis @IpLongCovid
7K Followers 1K Following Physical education and sport science BSc #LongCovid
Laura Miers @LauraMiers
65K Followers 13K Following Pro-Kindness/Compassion/Love. Wealth inequality will destroy us. Ex-Texan, Global citizen. Law, Medicine, Sustainability, Languages. LongCovid since 2020.
Shaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
David Christopher �.. @MLS_Dave
54K Followers 18K Following #FreePalestine #DoNoHarm #CancerAwareness #EndTheDuopoly We only have one planet 🌍🐋🐅🦏🦋🌳 🚫 War 🚫 Hate
T@Sunset @TeiaSunset
6K Followers 6K Following #LongCovid 2003/2020 / Cancer survivor. 🎵🎶Humming music, writing under trees watching sunsets.🏝️😻
elle W @elleW902
3K Followers 5K Following Nature lover🌊⛰wx watcher🌪️❄️ Ally🌈 ♍️creative🖌#LongCovid Sept 2021 #Dysautonomia #LCPOTS #LCHashimotos KINDNESS is the #1 attribute in a human❤
M_P @MchP66592467
3K Followers 2K Following 35y/o w Post-Acute SARS Cov2 Syndrome/ME/CFS,POTS,MCAS.Fmr Fin Analyst-now unable 2 work. ME/CFS=biggest Med scandal in history.Experiments w novel therapeutics
Mark @longcovidman
3K Followers 5K Following On pause: management consultant, tech founder & powerlifter. Follow for smart answers to long cov*d as I find them
Myra Batchelder @myrabatchelder
19K Followers 11K Following Health Policy & Advocacy. @COVIDAdvocacyNY @COVID_Advocacy. #SRHRJ #VaxPlus #KeepMasksInHealthcare. @Harvard @SarahLawrence alum. She/her
miss m @FatiguedStill
2K Followers 382 Following Long Covid since September 2022 | ME | chronic fatigue | POTS | MCAS
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
@heyjanae.bsky.social @HeyJanae1
2K Followers 2K Following she/her | #blacklivesmatter | ♒️ | copywriter & social media manager | #boycottEurovision | Anime & Cartoons| 日本語OK
Let's Do It for ME! @LetsDoIt4ME
5K Followers 3K Following Fundraising for @Invest_in_ME charity Centre of Excellence @CofEforME programme of biomedical research and medical education for M.E. #MyalgicEncephalomyelitis
manymoremiles @manymoremiles
829 Followers 2K Following #VoteBlue 🌈Ally #GetVaccinated #WearARespirator #BLM #SayYesToScience It’s always a good day for tacos 🌮
Yen Howryla @HowrylaYen54985
87 Followers 5K Following
Sarahwp 💙🏳️�.. @Sarahwp101
2K Followers 918 Following socialist, psychologist, Trekkie,#fibromyalgia #chronicpain #GTTO #savetheNHS All opinions my own No DMs please.
Catherine @CatieZee
482 Followers 635 Following @[email protected] 🇳🇿🇬🇧🇦🇺 Against mass infection and reinfection with SARS-CoV-2. Do all the things. Vaccines Plus.
Stephen Davis @PlanetEarth_HD
7K Followers 1K Following Former Footballer, Electronic Engineer, Content Creator #LFC fan #longcovid
Dana Herbert @danaherbert
749 Followers 740 Following Artist for #InformedConsent Dx: #MECFS #Narcolepsy #hEDS #LowT3 #UCTD #cPTSD #ANA+ #ASIAsyndrome? How I escaped murder by dentist (so far) in CT, in link:
MIT Scientifica @MITMathmatica
29 Followers 501 Following
Shelby Holtman @s_holtm
70 Followers 5K Following
Happy Octopus @HappyOctopus11
1 Followers 32 Following
Izzy @IzzyRWeather
405 Followers 596 Following Tweets & likes disappeared? I like to declutter, many days I'm ill (still trying to find out what's wrong) & need to focus on something simple.
Sebrina Blakesley @SebrinSebrina
42 Followers 5K Following
Karen M Renton @karen_renton
1K Followers 2K Following The disabled bathroom at @NorthernViewLtd is named after me. Marcomms. Trilingual. Cat Mum. #ME #MyalgicEncephalomyelitis #Diabetes Views my own
Misty @crescendomisty
144 Followers 1K Following Caregiver & Organizer. Following COVID, Long COVID, MCAS, ME/CFS, POTS, and other disabilities.
👩🏼💻🦸�.. @travel_angie_at
202 Followers 1K Following Mum, feminist, cancer survivor, cosmopolitan 🇦🇹🇨🇭🇪🇦🇺🇸 #mecfs #mcas #cfs #fuckcancer #CovidIsNotOver #BringBackMasks
Amayeta @Amayeta336110
5 Followers 197 Following
G R A C E 🌸 @withgrace___
87 Followers 292 Following 🥀 severe ME/CFS mama to baby son ❤️ heart full, body broken 🌻 INFJ
Madelaine Dunnagan @MadelaiDunna
35 Followers 5K Following
resistang @resistang7
170 Followers 894 Following | 🦓 Surviving the Slowpocalypse™️ | Views are personal | SARS-CoV-2 is not over | @[email protected] | 😷
Stephanie Stott @steph__stott
210 Followers 279 Following #PwME & #MyalgicE Advocacy • Founder & Content Curator @thetrove_cambs (sick leave) • Creativity & Chronic Illness at: https://t.co/XU4fuydJAL
MichelleS @Mitch222S
102 Followers 510 Following Egalitarian. Financial services dinosaur. Guardian reading, tofu eating, wokerati. #MECFS endurer. #SCADSurvivor.
Becca @Bexypie
457 Followers 396 Following Bird mum. Vegan. Animal & nature lover. Tea addict. Español lover. 🇪🇸🌼🌸🌺🌞🌱❤️ ME, POTS & Stage 4 Endo Fighter. Supporter of Biomedical Research into ME.
Andrea Pring @Andrea_Pring
8K Followers 7K Following Children’s author & PhD student (disability/illness in children’s Gothic) | Founder of @virtualwriters | #WriteMentor ‘21 mentee #eds #mecfs #pots #mcas she/her
Jason Wood @JasonWo54213411
8 Followers 110 Following Media Relations. . .all the certificates. Party Planner. Tennis.. . Cupcake recipes & potato printing. It /that / thing. #COVIDISAIRBORNE
Signe Pastorino @SignPastor
51 Followers 5K Following
Hanin Sherman @HaninSherm48882
71 Followers 3K Following
Silver @Long_Cov_Silver
2 Followers 19 Following You surely heard of Long Dong Silver, but now get ready for LONG COVID SILVER! Disabled, neurospicy and a lil Silly
Silly @JustSumKlTTEN
144 Followers 1K Following Silver, more-or-less Artist, chronic MMO player, disabled, and idk what. This profile contains my random thoughts and opinions.🏳️🌈🏳️⚧️🏴☠️
ME Centraal @MECentraal
1K Followers 489 Following Platform voor mensen met Myalgische Encefalomyelitis, hun familie, vrienden, verzorgers en geïnteresseerden. [email protected] https://t.co/E5Y0xFd7Th
Renee Christenbury @ReneeChris67886
41 Followers 5K Following
Truth/justice/freedom.. @KimFlorey2
5K Followers 6K Following I WILL NOT COMPLY. NO lib/lab/con #msmlies #vaxinjured #ME/CFS AZ #PV46669 #agenda2030 #antiwef. #fthewef #chemtrails #fuckcensorship NO DM'S
🌈Mo-Di Quinn ♿ �.. @modiquinn
1K Followers 1K Following I have had Myalgic Encephalomyelitis since 1995. I'm kind-hearted and witty. I have a serious and understanding nature. Studied Anatomy/Physiology/Medicine.
Mike's EU Maras for M.. @MikesEUmaras
2K Followers 2K Following Ran a marathon race in all 27 EU nations for @invest_in_me & ME/CFS research £49k. 30 Euro countries so far. https://t.co/O7zyuApvJW
Bee, in a Mask 🍉�.. @beeimacat
471 Followers 2K Following Ready to find and spread peace #BlackLivesMatter #AbolishICE #DefundThePolice #OccupyICELA - she/her #LongCovid #MCAS #POTS #EDS #Bipolar
Sir Norman of Nowhere.. @Normanjam67
10K Followers 11K Following Amateur Irritant. Anarcho-Syndicalism is Democratic Socialism. Proud Anti-fascist. No lists please. Diagnosed ME and FND. Politics and chickens.
LoSan. 💙 #pwME #Fi.. @LoSan_LambChop
748 Followers 1K Following Socialist. Lover of books, history, music .Ancient and tired. I don’t say much ‘cos of ME/Fibro but I can still think and RT!
Hope found in M.E.�.. @hopefoundinme
1K Followers 1K Following 💒 Faith, Hope & a Power Chair Christian, Blogger #pwME c2004 #MEcfs part of my life, not all...it tries! 🌦 Nazareth Companion • Published by @thisisliveart
Steve T @noxygen
2K Followers 2K Following Choose wisely. Love freely. Travel... safely. Living with Weltschmerz. Holding on and holding out. Maybe Kepler-452 b is having a better time than us. 📞🔴⚪😷
💎 diamond 💎 @di.. @diamond_qc
1K Followers 3K Following She/her・Optimistic Leftie・Meat Free Diet・GenX 80s Goth・Indie Music Tragic・Tech Geek・AAF・ADHD・cPTSD・MECFS・OCD・CSA survivor・too many letters!・ 💉💉💉💉
Velma Ostrzyeki @ostrzyeki28252
78 Followers 5K Following
Faith MMH @FaithTwenty20
12K Followers 12K Following married 53 yrs/fully 💉-2 rescue🐱s/miss YNP/suffer w/Long Covid since 2019 b4 💉-🌊#FBR/no 🚫porn! lots of typos [email protected]🟧🟦
CT @cdtwriter
3K Followers 3K Following A wanderer, a wonderer, and a scribbler. ¡Viva México! Feminista. https://t.co/QCZI7F1FtB
Rose Red Loon @RoseRedLoon1
407 Followers 933 Following I like trees. Lots of retweets, mostly Covid info, and things that make me smile. Same @ (but drop the 1 at end) on the elephant site
Linda Hutchison 🟧 .. @LindaHu14367111
2K Followers 3K Following Long Covid...The disabled vastly outnumber the dead 😷 🇺🇦 🌻 ... 🇺🇲🏴🇮🇪🇸🇪 Child abuse casts a shadow the length of a lifetime!
Leah Smietana @LSmietana81493
85 Followers 5K Following
It's ME Helen @positively___ME
834 Followers 571 Following Living alone with moderate ME, not coping, getting worse. Struggle with such poor brain function. Try to make stuff on my good days, hoping to sell some, maybe
| R0gue | Fire Soldie.. @_FireSoldier_
402 Followers 1K Following #NotRecovered Schweres Post-Covid Seit 2022. she/her/hers. Du bist stärker, als du denkst. Crisis lines: https://t.co/4bYLktDxL3 💙💛
Dr Claire Taylor @drclairetaylor
66K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my own
GeoCK @GeoEduOne
6K Followers 953 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Ippokratis @IpLongCovid
7K Followers 1K Following Physical education and sport science BSc #LongCovid
Laura Miers @LauraMiers
65K Followers 13K Following Pro-Kindness/Compassion/Love. Wealth inequality will destroy us. Ex-Texan, Global citizen. Law, Medicine, Sustainability, Languages. LongCovid since 2020.
Shaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Covid Solidarity @CovidSolidarit1
13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”
Michael A Osborne @maosbot
33K Followers 1K Following Dad, spouse, Professor of Machine Learning @UniofOxford, Co-Founder Mind Foundry, Director @aims_oxford. Bayes, Long Covid, porridge, AI must be good for humans
Dr. Alice 💕 @calirunnerdoc
26K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs for med advice,SARS-CoV-2=persistent vascular bomb💣.Views expressed are my own,not my employers.
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
David Christopher �.. @MLS_Dave
54K Followers 18K Following #FreePalestine #DoNoHarm #CancerAwareness #EndTheDuopoly We only have one planet 🌍🐋🐅🦏🦋🌳 🚫 War 🚫 Hate
T@Sunset @TeiaSunset
6K Followers 6K Following #LongCovid 2003/2020 / Cancer survivor. 🎵🎶Humming music, writing under trees watching sunsets.🏝️😻
Let's Do It for ME! @LetsDoIt4ME
5K Followers 3K Following Fundraising for @Invest_in_ME charity Centre of Excellence @CofEforME programme of biomedical research and medical education for M.E. #MyalgicEncephalomyelitis
😷 Late Stage Socie.. @LateStagePlanet
2K Followers 2K Following Please protect yourself and those around you by wearing a well fitted high quality respirator #CovidIsNotOver #CovidIsAirborne #WearAMask Uses sarcasm to cope
HeartofDanielle @DanielleRa60149
138 Followers 216 Following
KinderdocDr.med.NinaS.. @KinderdocNina
20K Followers 2K Following Mom/Wife/MD/Pediatrician with knowledge & heart/taki g SARSCOV2 serious/MaskUp
Jen RN MSc @jennyrooster09
1K Followers 3K Following Emergency nursing first love 💕 now Quality nurse 😍 Proud mum 🥰 #Tories hands-off our NHS 👊POTS/Dysautonmia ☹️
Andy @DrVxD
1K Followers 2K Following @[email protected] Fetchie. parkrun #250club, 3x26.2, 1 ultra, #LongCovid, twiddler of bits, counter of clock-cycles, orderer of the disordered. 317ppm
Suza Tu @suzatu
70 Followers 184 Following meinen Account hier hab ich schon länger, aber jetzt bin ich auch ein #gplusrefugee 😏 #Depression #lost #LongCovid #PostCovid #notjustsad #fckAfd #fckNZS
manymoremiles @manymoremiles
829 Followers 2K Following #VoteBlue 🌈Ally #GetVaccinated #WearARespirator #BLM #SayYesToScience It’s always a good day for tacos 🌮
michael grey @wavetop
5K Followers 5K Following "our struggle is not against flesh & blood,but against rulers, authorities, the powers of this dark world & against the spiritual forces of evil"
Sarahwp 💙🏳️�.. @Sarahwp101
2K Followers 918 Following socialist, psychologist, Trekkie,#fibromyalgia #chronicpain #GTTO #savetheNHS All opinions my own No DMs please.
b @b7463298156067
2 Followers 14 Following
Stormzy💙 @Nurseborisbash
85K Followers 6K Following A&E nurse💙 cheese lover🧀 currently hoping to recover from long covid. Here to hold Victoria Atkins to account. I will never stop fighting. #CoryTuntsOut
Paul Pettinger @PettingerP
1K Followers 1K Following Enlightenment fan and Open Society friend - Pimlico & Exeter. Standard Southern British Gael. Not well but naturally this pale Ⓥ🇪🇺❄️🇺🇦♿️🌈✊🏿
Morgane FB @Morgane_fb
624 Followers 2K Following Trying to think of a motto since 1989. Mediactivist. Pop culture, feminism and hard news. #covidlong #apresJ20
didi @didi43780129
119 Followers 433 Following #donotcomply with involuntary infection of a virus of unknown origin. I can afford to mask but can’t afford to be sick 💸
Sam @Samylaine04
250 Followers 971 Following Preemie Mom. SPN fan. $Samylaine ⭐️ #ProtectOurCare #PreExistingConditions
Karla Adair @karlaadair11
36 Followers 136 Following
Supergravity @Supergravity
2K Followers 3K Following Ancom. He/Him. I'm not perfect (you'll see). SRA. Rescue cats. Wear a mask; clean indoor air. ND. @[email protected]
Lucy Llewellyn MS MVP.. @lucyllewy
1K Followers 2K Following Personal acct, Likely NSFW, MSMVP, WSL2, Snapcraft, Ubuntu Membership board, WordPress, contacts on my site; ♿ME/CFS; she/her; 🐘lucyllewy@ https://t.co/ZlhFfRMubj
Jen @Jennife24461737
69 Followers 598 Following
Karen M Renton @karen_renton
1K Followers 2K Following The disabled bathroom at @NorthernViewLtd is named after me. Marcomms. Trilingual. Cat Mum. #ME #MyalgicEncephalomyelitis #Diabetes Views my own
trueblueFL @FlTrueblue
74 Followers 131 Following ME+Fibro+lupus,20+yr chronic illness survivor Jerseygirl❤GoRu🪓,Trekkie & sci-fi fan🖖 Reality TV connoisseur💋🌴 🇦🇲🇱🇧🐾💗 #missingmillions 💙
Julie Strack @juliestrack
520 Followers 278 Following Health writer and communicator. Patient with #LongCovid since March 2020.
Anna Giuseppa🥰💙.. @AnneSpaceCoast
4K Followers 3K Following Retired RN | Heptavax Injury 1988 | Worked front line AIDS 80s NYC |#Dysautonomia | #MCAS | Jesus | Metastatic Breast Cancer | #MedicalMafiaTruth| BWIG
Dana Herbert @danaherbert
749 Followers 740 Following Artist for #InformedConsent Dx: #MECFS #Narcolepsy #hEDS #LowT3 #UCTD #cPTSD #ANA+ #ASIAsyndrome? How I escaped murder by dentist (so far) in CT, in link:
+ BERLIN BUYERS CLUB .. @BerlinBuyers
4K Followers 23 Following covid destroyed us, we are young, we want our lives back
Diane Cavenche @dianepayne1967
373 Followers 522 Following Happily retired Associate Chief Nurse enjoying the new lifestyle. QARANC Veteran. Human & dog mum. Sober 6/5/2015. Living with #FND. Wife to Jane since 2018 🌈
Kitty (not a cat) @shamingjezebel
193 Followers 155 Following Full of inappropriate comments, jokes. Cat twitter resident. Serving in the #Captains Army. 🖤🩶🤍💜
Carmella Brown @CarmellaBrown91
2K Followers 2K Following Scottish Actor/Voiceover Artist, cheerfully bossy lesbian feminist sometimes known as Carmen Emissions. Represented by @marcandmcc. Will snuggle with your dog.
Steve Fifield 💙 �.. @SteveFifield3
101 Followers 433 Following Informed decisions from verifiable truth & facts please. Avoid unsubstantiated opinions / beliefs. #Equality #justbe #inclusion #LGBT+ ally.
Pat H 💙 @pathcath
582 Followers 1K Following 35 years of ME/CFS. Former Westcare volunteer worker. Still waiting for biomedical research and better times. 💙
ChronicallyUNiconic @ChronicUniconic
184 Followers 384 Following 🟣 not an icon 🟣 you, what do you own, the world? half-seizing goat🐐⚡ disabled ppl are an afterthought #DisabilityTwitter #neisvoid #epilepsy
🦙KarmaLlama🦙 @LarmaKarma
639 Followers 2K Following Left Leaning Gen-Xer, First Wave COVID Long Hauler, Sci Fi Junky, She/Her. Internet Citizen before the web existed.
Silver @Long_Cov_Silver
2 Followers 19 Following You surely heard of Long Dong Silver, but now get ready for LONG COVID SILVER! Disabled, neurospicy and a lil Silly
Janiesaysyay @janiesaysyay
9K Followers 8K Following Corporate research My conspiracy theory: It Came From a Lab Advance search #snakes or #pandemicplaylist and @Janiesaysyay
Jayne Barnard @JayneBarnard1
2K Followers 3K Following Steampunk, mystery, & chocolate. she/her. Maddie Hatter https://t.co/hjhFhnvpwc MECFS series @J_E_Barnard https://t.co/rJ7RF3wTHZ
Lisa Geiszler @MElovewarrior
216 Followers 837 Following Disabled poet living with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), chronic pain. 20+ years. Still sick. Still fighting. Still here.
ME Advocacy Network A.. @MEAdvNetAu
1K Followers 255 Following We fight for health equality for Australians with ME/CFS. We’re an independent group, not affiliated with any other group. Formerly #MEAction Network Australia.
ME Centraal @MECentraal
1K Followers 489 Following Platform voor mensen met Myalgische Encefalomyelitis, hun familie, vrienden, verzorgers en geïnteresseerden. [email protected] https://t.co/E5Y0xFd7Th
Eva Loena @eva_loena
48 Followers 341 Following One of the #MillionsMissing Koester herinneringen aan literatuur, IT, sport, avontuurlijke reizen en veel meer
Heather Collins 🦋�.. @Variola3
369 Followers 948 Following Scientist, former lecturer. Sarcastic individual, into silliness, medicine, anatomy, & forensics. Death positive 💀#ME #CFS NB: often inappropriate.
ME Advocates Ireland @MEAdvocatesIre
988 Followers 978 Following Advocating for People with Myalgic Encephalomyelitis (M.E.) in Ireland [email protected]
Virginia Ferrer @VirFeUr
297 Followers 3K Following EM/SFC, car accident survivor, strong & emphatic person, always in the way of new things and skills.
Nina E. Steinkopf @Nina_Steinkopf
2K Followers 2K Following Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and blogger. 🇳🇴🏳️🌈🇵🇸🇺🇳😷
Somerset🎨🏉🎸�.. @LalalaSomerset
279 Followers 320 Following A Somerset CCC nut in New Jersey. Bath RFC. Grumpy old git All views are strictly my own, or somebody else's PWME 30 Years. 🐈😽🐟
Randi Chance is survi.. @chance_randi
472 Followers 1K Following Christian, mom, wife. Person. JAFF fan. Disabled by ME/CFS 30+ yrs. One of the Millions Missing. Practicing contentment in all circumstances (Phil. 4: 11-13).
Veronika Beci @NikavonAquin
46 Followers 20 Following ME/CFS💙, 💜,Autorin📚, Konvivalistin🤝, Kinderrechte,🌱,🌈, ✊Demokratie!
Now at 950… come one, let’s get it to 1000… If you’re a friend of the #ME community… Have YOU signed yet??? openletter.earth/sajid-javid-pl…
264 signatures already! You don’t need to be in the UK to sign this btw Make sure to click the link in your email. #BringMillieHome #SaveCarlasLife #MECFS openletter.earth/sajid-javid-pl…
👇 #MaskUp #CleanAir #Ventilation #ProtectEachOther We need public health messaging now! @crr7310 🙏
Mark my words: we are entering another SARS2 wave. I’m an occupational physician trained to see patterns at work. Looks like 1st wave-large nos people coming to work with virus-rolling around in fits of coughing, faints/collapsing, grey with nausea.1/
Interview with Serbian channel Happy TV youtu.be/gNV7tayOQ3k?si…
Interview with mainstream Serbian news channel N1 n1info.rs/magazin/zdravl….
Please, please please! Sign and share this open letter for the #pwME #SaveCarlasLife #BringMillieHome
876 signatures now! Can we cross 1,000 tonight for @TheChronicColab #SaveCarlasLife #BringMillieHome #MECFS
I made a Daisy chain and took it up to Sophia’s room. She loved it and kept smelling it because it smelled of the garden. The garden she hasn’t seen through the window for over a year and hasn’t been in for over 5 years #millionsmissing2024
Mike Harley on Serbian TV today raising awareness of #mecfs prior to #Belgrade #marathon Mike's efforts have raised almost £50k for @Invest_in_ME all funds go to #BiomedicalResearch @CofEforME in @NorwichResearch Mike's JustGiving page here justgiving.com/fundraising/mi… #philanthropy
Amazing! Well done Mike
Mike Harley on Serbian TV today raising awareness of #mecfs prior to #Belgrade #marathon Mike's efforts have raised almost £50k for @Invest_in_ME all funds go to #BiomedicalResearch @CofEforME in @NorwichResearch Mike's JustGiving page here justgiving.com/fundraising/mi… #philanthropy
Article documenting the appalling lack of support services for people with #LongCovid and #MECFS in #NewZealand thepress.co.nz/nz-news/350230…
@TheChronicColab Sb asked for a transcript. Here's one my otter made (hopefully screen reader and alt text friendly)
@RFH1955 Wow he's from my hometown. These days there isn't anyone to refer you too for ME here and no doctor I've seen in the area has even heard of it! We're well and truly going backwards
Soquelitinib may be worth considering for LC/ME. Some of the mechanisms make sense in regards to immune dysfunction we see I believe. More info below. ◦Soquelitinib is an oral, small molecular drug that selectively inhibits ITK (interleukin-2-inducible T cell kinase) and has…
Got my Novavax vaccine this afternoon. 🙌 Feeling relieved to have some additional protection going into the summer months. 😃
@AaronCa11 Yep will be, just waiting for them to go up 👍
This graph should have been plastered across the front of every newspaper in the UK. ⚠️There is no sicknote crisis. ⚠️There is no absenteeism crisis. 🚨THERE ARE SICK CHILDREN.
🚨 ONS Winter Coronavirus Infection Study‼️ 111,816 children (3-17) are now experiencing #LongCovidKids Of which nearly 21,000 have their daily activities "limited a lot"! NOTE these are approx double the rates of March 2023 when the previous survey was stopped #CovidIsNotOver
Busy day! 2 TV interviews this morning then Red Star and Partizan football stadiums and the fortress. 8am race start tomorrow, its going to be hot, hopefully I can survive. £700 to go to hit £50k 🇷🇸 justgiving.com/mikeseumaratho…
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