@TheChronicCollaboration @TheChronicColab
A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality. Joined August 2021-
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The letter is sent, thank you @NicolaCJeffery @TheChronicColab! #BringMillieHome #saveCarlasLife #exposeMENow #DontLetMEDie #severeME #MillionsMissing
The letter is sent, thank you @NicolaCJeffery @TheChronicColab! #BringMillieHome #saveCarlasLife #exposeMENow #DontLetMEDie #severeME #MillionsMissing
Huge thanks to Nicola for sending this well written message to @sajidjavid on behalf of us all as the ME community We’re all very grateful to the hard work of @TheChronicColab who really have gone above & beyond for Millie & Carla & their families. #BetterTogether ✊
Huge thanks to Nicola for sending this well written message to @sajidjavid on behalf of us all as the ME community We’re all very grateful to the hard work of @TheChronicColab who really have gone above & beyond for Millie & Carla & their families. #BetterTogether ✊
#MEcfs Westminster Hall debate: We have sent your open letter to @sajidjavid and cc'd @actionforme @SonyaChowdhury in. The below is what we said - we hope it's OK #SaveCarlasLife #BringMillieHome: Good afternoon, Firstly, we would like to thank Sajid for convening the…
YOU DID IT: 1,500 signatures in just a few days on our open letter to @sajidjavid asking him to please mention #BringMillieHome #SaveCarlasLife & Karen Gordon, & the state of the NHs for #SevereME patients, at his Westminster Hall debate tomorrow. Email on its way. Well done…
@TheChronicColab We got there1🥳
Time sensitive! #pwME & #pwLC @TheChronicColab need your help. 18 more signatures required to reach 1,500 for the open letter to @sajidjavid. Please sign if you haven't already done so or share with healthy allies. #SaveCarlasLife #BringMillieHome
Time sensitive! #pwME & #pwLC @TheChronicColab need your help. 18 more signatures required to reach 1,500 for the open letter to @sajidjavid. Please sign if you haven't already done so or share with healthy allies. #SaveCarlasLife #BringMillieHome
Can we push this really important open letter to 1,500 signatures in the next 90 minutes? #SaveCarlasLife #BringMillieHome
Can we push this really important open letter to 1,500 signatures in the next 90 minutes? #SaveCarlasLife #BringMillieHome
We’ve got until midday to sign this open letter. Please IF ABLE sign the letter so Carla, Millie & Karen’s situations can be discussed by @sajidjavid Also, RT or post on FB Instagram etc Last ditch 💪✊
We’ve got until midday to sign this open letter. Please IF ABLE sign the letter so Carla, Millie & Karen’s situations can be discussed by @sajidjavid Also, RT or post on FB Instagram etc Last ditch 💪✊
Please sign ✍️ and share if you haven’t already ❤️ #MECFS #BringMillieHome #SaveCarlasLife #LongCovid
Please sign ✍️ and share if you haven’t already ❤️ #MECFS #BringMillieHome #SaveCarlasLife #LongCovid
GREAT progress but we need MORE signatures ✍️ POWER in numbers; all ME relates charities 🙏 quote retweet repeatedly 🔁 while medical neglect is on repeat for #pwme #MECFS worldwide 🌍 @VictoriaAtkins * m.youtube.com/watch?v=0nXKQq…
GREAT progress but we need MORE signatures ✍️ POWER in numbers; all ME relates charities 🙏 quote retweet repeatedly 🔁 while medical neglect is on repeat for #pwme #MECFS worldwide 🌍 @VictoriaAtkins * m.youtube.com/watch?v=0nXKQq… https://t.co/lzhaerzaS6
1426 people have signed this 💚💚💚 would be nice to get to 1,500 before midday tomorrow #SaveCarlasLife #BringMillieHome
1426 people have signed this 💚💚💚 would be nice to get to 1,500 before midday tomorrow #SaveCarlasLife #BringMillieHome
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid #BeAllYouCanBe
ANNOUNCEMENT #BringMillieHome We want to give credit to @MEActNetUK & @meactionscot. We said on Friday that we had secured the question Cat Smith had asked in parliament over #MEcfs. It turns out that ME Actions were also working in the background, at the same time as us, on…
Our website is launching on Wednesday and we're hoping to start redressing this imbalance - plus we've got our Amplify training for chronically ill and disabled writers ongoing... But yeah - currently the corporate media are acting as stenographers, NOT journalists
Our website is launching on Wednesday and we're hoping to start redressing this imbalance - plus we've got our Amplify training for chronically ill and disabled writers ongoing... But yeah - currently the corporate media are acting as stenographers, NOT journalists
#ExposeMENow Very #SevereME must be top priority on the Debate at Westminster Hall on Weds please @sajidjavid #SaveCarlasLife #BringMillieHome 💙 Karen
#ExposeMENow Very #SevereME must be top priority on the Debate at Westminster Hall on Weds please @sajidjavid #SaveCarlasLife #BringMillieHome 💙 Karen
Please sign (remember to verify your email!) & share the below open letter to @sajidjavid ahead of the #MECFS debate on 01 May👇🏻 #ExposeMENow #DontLetMEDie #InstitutionalisedDiscrimination #SaveCarlasLife #KarenGordon #BringMillieHome #TakeDownThePACEtrial
Please sign (remember to verify your email!) & share the below open letter to @sajidjavid ahead of the #MECFS debate on 01 May👇🏻 #ExposeMENow #DontLetMEDie #InstitutionalisedDiscrimination #SaveCarlasLife #KarenGordon #BringMillieHome #TakeDownThePACEtrial
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Anil van der Zee © @AnilvanderZee
9K Followers 825 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Tom Kindlon @TomKindlon
14K Followers 579 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Jo @cfs_jo
3K Followers 1K Following CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Also on Insta as JustJoHere and BlueSky as JustJo
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Crafty Miss @CraftyMissB
5K Followers 3K Following I'm Beth, embroidery & craft are my buzz. #socialist #pwme #disabled insta: thecraftymissb https://t.co/H4UqOa9igd
Paula Knight @Paula_JKnight
6K Followers 4K Following Graphic memoir THE FACTS OF LIFE (2017) Kidlit books x3 author. Disabled. Bedbound 5.5yr v severe #pwME Submerging writer. Total Bedass. Print Disabled she/her
Daniel Moore @Talmandaniel
5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Phoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.
Alisontomyradio @arisonsned
3K Followers 5K Following ME MCAS Lyme.Still with humour.Satire Music.Dream of life without illness. Wanna ride my bike. Cat & Dog Botherer.YP Counsellor retired. Retweet not endorsement
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Vlad Vexler @VladVexler
17K Followers 841 Following Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in Russia, home is London | Living with ME since 2003. | 🔗 🎥
Elaine Stammers @StammersEl12172
0 Followers 3 Following
LeedsKONP @LeedsKONP
1K Followers 1K Following Our campaign in Leeds concerned that the NHS services and assets are being fragmented and sold off privately, sacrificing quality and forcing people to pay
Georgi Parvanov @GeorgiParvanov4
2K Followers 1K Following Former life lover, current #LongCOVID sufferer. #FBLC
Raheel Hasan @theraheelhasan
38K Followers 23K Following CEO, 1App. Instant access to mobile apps on any platform via edge computing. Angel investor. I tweet about startups, VC, AI, cloud computing, crypto, & gaming.
Suzaku has Long Covid.. @Suzaku_loves_L
476 Followers 1K Following NS Larrie 💚💙 ot5 💯 she/her • 🏳️🌈🏳️🌈🏳️🌈 • very very tired Long Covid / MECFS patient🏨
ignorance is not blis.. @sleebygaysian
972 Followers 2K Following ash, they/he/佢/他, 25歲 🌿 chronically unchill. exceptional snooze & stim capabilities! same @ bsky. wear a respirator! swiss cheese model 🧀 🆓🇵🇸🇸🇩🇨🇩🇭🇹➕
🌿 Elle in Eden �.. @ellecalendula
762 Followers 1K Following Bedbound dysautonomia inactivist. Standing for #POTS, #ME, bewitcher. Born in a thunderstorm. Independent Scotland, archaeology, sass. Make love 🤍 not war
Aalia Wayfare @exdigita
151 Followers 891 Following Currently crazy about learning languages and learning about how the brain processes language. Learning Italian, French and German, but mostly German right now.
lynn pavitt @LynnPavitt
2K Followers 5K Following
Kellen @kelslc
1K Followers 474 Following teenager with long covid, Severe ME, funcap 1.35, 🖤🤍💜, 💚🤍🖤, any pronouns, AuDHD, 🤝 1/2 of brilin @sapphicswilder
Sarah @dirtylikecandy
147 Followers 323 Following Still trying to find me. All suggestions on a postcard please.
Laura Elliott @TinyWriterLaura
14K Followers 2K Following Writer, maker, chronic illness incubator. Disabled journo. Words in @guardian, @MetroUK, @theipaper, @BylineTimes etc. Rep’d by @PortyLiterary
gray shayla @shaylasquared
3K Followers 3K Following Survivor and current combatant of THE GREAT SUFFERING. Help your brothers and sisters, whomever they may be.
Jane Barnes @pjb196404
453 Followers 809 Following Wife, Step Mum, Proud Auntie and Step Nana. Living with ME. Support biomedical research. Breast cancer. Cat lover.
A Tired Owl @aTiredOwl
1K Followers 3K Following #MaskUp #MyalgicEncephalomyelitis LC ally. Networking with #pwME and other chronic illnesses. ⒶⓋ
Leonard Nadolny @nadolnue
581 Followers 1K Following (er/he) Berlin / Ruhrgebiet. Literaturwissenschaft und Philosophie. HU Berlin, @DINGSofficial @[email protected]
Gill Smith @GillSmi82243409
0 Followers 8 Following
Alex Dakers 🇰🇾 @dakers_alex
880 Followers 2K Following 🗞️✍🏼 freelance @theipaper, formerly @CayCompass • @Stanfordjourn c/o ‘23 • 📧 any & all stories to [email protected] • my views, etc • portfolio ⬇️
KatherineLWall @violettiger50
37 Followers 82 Following my old X was @violettiger47 I'm an old gal that has had #ChronicFatigueSyndrome since Aug 1997, diagnosis Jan 1998 I also have other #invisibleillnesses
xxx ROSE xxx @TanteRos
2K Followers 2K Following Not much energy/too many migraines. Nature keeps me going #Photography on https://t.co/yKh1ibi9aD… #MillionsMissing
Madison Dill @madison_di6559
1 Followers 12 Following
NoMedal4ME @NoMedal4ME
2 Followers 39 Following Just like all the healthy people who 'don't have time to be sick', neither do I; unfortunately, though, I don't have the health to be well. ME/CFS for 28 years.
Pro Curis @ProCuris01
672 Followers 2K Following
Jubily @jubbleso
89 Followers 947 Following
GregoryTKint @GregoryTKint
1K Followers 2K Following Eternal tech enthusiast rejuvenated by the impact of AI, XR, AR, IoT and blockchain.
Lari Don @LariDonWriter
5K Followers 5K Following Children’s writer & storyteller, books inc mg adventure novels, pic books, retellings of myths. Passionate re stories, politics & feminism. she/her #longcovid
Emily McGregor @EmilyMcGregor4
4 Followers 157 Following Likes nature & music. Would like treatment for ME/CFS
Emma @reilly_emma
336 Followers 2K Following
Wendy Giger @crazytown26
458 Followers 1K Following Painter of rocks ....pebbles .....canvas......slate.
EPIPOLE of Phoenix @EpipoleofPHX
1K Followers 3K Following WRITER, DISABLED, PRO-CHOICE, PRO-WOMAN, FEMINIST, ANTI-EPIDURAL,ANTI-ESI,NOZEMPIC(CSF leak, HT, migraines,EBV, spinal lipoma & BPD)LET’S GET WOMEN TALKING!
Katerina Rinaldi @KatRinaldi177
214 Followers 357 Following Clinical psychology PhD student/trainee, passionate about body liberation, improving treatment outcomes for eating disorders, and interoception
It'sPat @patriciaczora
926 Followers 3K Following Free WSJ reporter EVAN G still in Russian prison since April 2023. #DavisSafe, the pandemic hasn't ended, but expanded. #CovidIsAirborne
Norskamerikanere @gochoosy
566 Followers 2K Following 🇺🇸 Judge by character. Tribal politics is a curse. It's OK to be more effeminate /masculine w/o leaving sex category . Post Sepsis syndrome sufferer/2016
Abigail @justapaper_bag
0 Followers 52 Following
Nick @whackypiglet
24 Followers 37 Following Long-term living with ME/CFS - quite severely affected. President of regional ME/CFS charity. Love depth astrology. Drawn to all things spiritual.
John McFadden, M.D. @drjohnhaiti
4K Followers 3K Following Pediatrics, Pain Med(ret) McFadden, Dr. John. M.D. https://t.co/skuUBGMf7R…
Trish @TrishBarasa
4K Followers 2K Following Mom | Wife | Daughter | Sister | Public Policy | Economics | Agriculture | Food Systems | Climate Change |
Jason S @StilingJason
296 Followers 424 Following Fitness freak to moderate ME/CFS last 14 years. 2.5 years severe, Post-Covid.
rocio borrero garcia @rocio_borrero
429 Followers 1K Following Sevillana de Triana Hay que ir sobrellevando los días como vengan Y siempre hay que mirar algo bueno que te pase y agarrate a eso
Dawn Blake @DawnBlake446334
1 Followers 16 Following
Claire Sam (she/her) @london_lorelei
335 Followers 2K Following Person-centred counsellor #CIDP #ChronicInflammatoryDemyelinatingPolyneuropathy #AutoimmuneDisease
MoBee75 @Bee75Mo
56 Followers 368 Following Just trying to live a peaceful life. Life’s too short for BS!
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Anil van der Zee © @AnilvanderZee
9K Followers 825 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Tom Kindlon @TomKindlon
14K Followers 579 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Frances Ryan @DrFrancesRyan
54K Followers 694 Following Guardian columnist and journalist. Author of Who Wants Normal? (2025) and Crippled (out now) E: [email protected]
Jo @cfs_jo
3K Followers 1K Following CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Also on Insta as JustJoHere and BlueSky as JustJo
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Dr Keith Geraghty @keithgeraghty
9K Followers 500 Following Research Fellow | Primary Care, Medical & Health Psychology | People-focused, evidence-based | @FBMH_UoM, @PrimaryCareMcr
Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Crafty Miss @CraftyMissB
5K Followers 3K Following I'm Beth, embroidery & craft are my buzz. #socialist #pwme #disabled insta: thecraftymissb https://t.co/H4UqOa9igd
Paula Knight @Paula_JKnight
6K Followers 4K Following Graphic memoir THE FACTS OF LIFE (2017) Kidlit books x3 author. Disabled. Bedbound 5.5yr v severe #pwME Submerging writer. Total Bedass. Print Disabled she/her
Alex Dakers 🇰🇾 @dakers_alex
880 Followers 2K Following 🗞️✍🏼 freelance @theipaper, formerly @CayCompass • @Stanfordjourn c/o ‘23 • 📧 any & all stories to [email protected] • my views, etc • portfolio ⬇️
Tara Cobham @taracobham
1K Followers 2K Following general reporter @Independent | prev @bbcsoutheast | [email protected] | she/her
Seema Malhotra MP💙 @SeemaMalhotra1
28K Followers 4K Following Labour & Co-op MP for Feltham & Heston. Shadow Minister for Skills. Co-Founder & President of the Fabian Women’s Network.
Prof Gemma Carey, PhD.. @gemcarey
26K Followers 2K Following Public admin, social policy, public health. Lots of NDIS @UNSW. PROVAX, vax injured - in severe ME recovery. (And non aca-author). Views are my own
Dr. Rupert Whitaker @RupertWhitaker
1K Followers 1K Following Doctor, scientist: psychiatry, psychology, public health; ex immunologist. Chair @TukeInstitute, Co-founder, Patron @THTorguk
Kinesh Patel @KineshPatel
285 Followers 387 Following Consultant Gastroenterologist, Chelsea & Westminster Hospital and the Royal Brompton Hospital
Danielle Beckman @DaniBeckman
24K Followers 6K Following Neuroscientist 🇧🇷 at the @CNPRCresearch working with primates. I like taking pictures of weird things happening in the brain 🧠🔬. #NeuroCovid is real.
Sandra Laville @sandralaville
10K Followers 3K Following Sandra Laville, senior correspondent for The Guardian.
CrunchME @wecrunchme
765 Followers 35 Following Mapping the scientific, tech & advocacy ecosystem around #MECFS, #LongCovid, and other infection-associated chronic illnesses 🗺️ | Organised by @rorpreston
Natalie Bennett @natalieben
186K Followers 146K Following Green Party peer. Leader 2012-16. Sheffield Green Party member. Promoted by Chris Williams on behalf of the Green Party, both at PO Box 78066, London SE16 9GQ.
Marco Wetzel (is figh.. @Gmwetz
2K Followers 836 Following Founder of @U2Fight_world // #UniteToFight2024 // #LongCovid and #MECFS advocate // #longcovid patient
HopeStarMasacre @MscreStarHope
2K Followers 3K Following its alright… im just dying is all…// writer and performer of the theatric kind // disabled as fuck with #LC #ME #POTS #MCAS & more // antizionist ✡️ 🇲🇽🏳️⚧️
Carol Callow @Loobyloo1us
405 Followers 434 Following On Twitter to support my daughter Sally who is the founder of @MEFoggyDog and MD of @StripyLightCIC. I'm the mum of an #MECFS patient. #pwme #myalgicE
fiarh @fionarh289
46 Followers 369 Following Speak 🇫🇷 & 🇩🇪, love crisps & dips, have Long Covid & PoTS
Amy Nickell-Turner @AmyNicks_
8K Followers 7K Following ‘Weak willed and single handedly destroying the planet’ according to @piersmorgan.
Ruth Liptrot @Ruth5News
4K Followers 2K Following Reporter for @5_news. Journalist. Mum. Wiganer, Londoner. The three most important things to be are kind, kind and kind. #longcovid
Pierre Naoum @PCCC90
92 Followers 181 Following
chocks away @planeondaroof
4K Followers 5K Following Sick of #inhumanity #inequality #injustice Surviving psychotic depression #SMI BBC Radio/HOC/GLA gigs. Advocate. Equality & invisible disabled are not virtual!
KerenL @KerenLL
721 Followers 3K Following Freelance writer. Regular contributor to the Guardian. Lover of open water swimming. And of Greece. Likes pools that aren't kidney-shaped and far horizons
Christelle N. @Christelle_Na
79 Followers 274 Following
Dr David Cox @DrDavidACox
4K Followers 564 Following Freelance health journalist @guardian, @Telegraph, @WIRED, @TIME & others. Former @Cambridge_Uni neuroscientist.
Helen Timson @HelsTimson
934 Followers 881 Following Battered & bruised but still fighting to Slay Evil Giants - Victories: DWPx3, STx2, EON - Current Battles: IVC, CAPITA, a Tory MP - Next: UK Vet Giants, LPC
Rita Laxton, PhD @CoupByCat
4K Followers 2K Following Author: YA Fantasy & Thriller | Poet | Strategist | Cosmo & Quantum groupie | Nuts on early earth. Love wildlife, garden & all things cat. MASK up! VOTE BLUE!
Andrew Rigby @andrewriggers
2K Followers 4K Following Programme Editor ITV Granada. MUFC fan living in Liverpool. Hence #JFT97. Married, two children. Views my own. More sinned against than sinning. I/me/mine
Izzy Wightman @izzy_wightman
106 Followers 1K Following Writer, researcher, journalist... when well enough. Living with Long Covid.
Valerie Eliot Smith @ValeriEliotSmit
3K Followers 747 Following Independent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (retired) #TMTlaw Visiting scholar @QMUL Blog at https://t.co/HWItDyrb9H
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Nicola James @NAJ562
26K Followers 10K Following NHS 💙, Environment, Social Justice. Personal account. RT’s/likes not necessarily an endorsement. Find me on Mastodon @[email protected]
LongWaiter @LongWaitMECFS
433 Followers 875 Following My life disinterests you; you entertain me. Not polarized, but often cynical. Typos galore b/c of cognitive dysfunction. #MEcfs #Dysautonomia since 2009.
Nic Corr 🇬🇧🏴.. @Nic_Corr
462 Followers 393 Following Life in a darkened room is my reality due to Myalgic Encephalomyelitis (ME). I will never stop fighting for equal access to funding & research!
ME Action Now @MEActNOW
3K Followers 5K Following https://t.co/Vyrf7yGws7 🌱#Vegan 💙Photography💙Birds💙Animals 🌱Gardening 💙#MECFS LongCovid #POTS #MCAS💙BLM💙Resist💙Equal rights💙Gun Control IFollow
Mary Broadbent @Mary2bOptim
31 Followers 61 Following Person with M.E. and advocate. Ex Positive Dog Trainer before becoming more seriously ill in June 2022.
Steve Chalmers @FStevenChalmers
1K Followers 3K Following Let's tear down silo walls in the data center. Spent a decade each in servers and storage, then networking. Consultant to Daedaelus Corp. Retired from HPE.
LiegendDemo auf dem W.. @LiegendDemo
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@fionangreg @sajidjavid @TheChronicColab And Steve lol ✊️ x x x
@TheChronicColab @sajidjavid @actionforme @SonyaChowdhury Thank you for coordination, caring and collaboration
@TheChronicColab @sajidjavid @actionforme @SonyaChowdhury Well written and thank you
@TheChronicColab @sajidjavid @actionforme @SonyaChowdhury Well done and thank you @TheChronicColab
@TheChronicColab @sajidjavid @actionforme @SonyaChowdhury Thank you so much for this
@TheChronicColab @sajidjavid @actionforme @SonyaChowdhury That’s great Nicola Thank you very much I’m looking forward to watching the debate tomorrow & hoping MP’s will turn up inc @CMonaghanSNP as she has been so supportive in the past Let’s hope this leads to change for Millie & Carla & for all severe/very severe pts going forward 💙
The letter is sent, thank you @NicolaCJeffery @TheChronicColab! #BringMillieHome #saveCarlasLife #exposeMENow #DontLetMEDie #severeME #MillionsMissing
#MEcfs Westminster Hall debate: We have sent your open letter to @sajidjavid and cc'd @actionforme @SonyaChowdhury in. The below is what we said - we hope it's OK #SaveCarlasLife #BringMillieHome: Good afternoon, Firstly, we would like to thank Sajid for convening the…
Huge thanks to Nicola for sending this well written message to @sajidjavid on behalf of us all as the ME community We’re all very grateful to the hard work of @TheChronicColab who really have gone above & beyond for Millie & Carla & their families. #BetterTogether ✊
#MEcfs Westminster Hall debate: We have sent your open letter to @sajidjavid and cc'd @actionforme @SonyaChowdhury in. The below is what we said - we hope it's OK #SaveCarlasLife #BringMillieHome: Good afternoon, Firstly, we would like to thank Sajid for convening the…
@TheChronicColab We got there1🥳
Time sensitive! #pwME & #pwLC @TheChronicColab need your help. 18 more signatures required to reach 1,500 for the open letter to @sajidjavid. Please sign if you haven't already done so or share with healthy allies. #SaveCarlasLife #BringMillieHome
WESTMINSTER HALL DEBATE ON #MEcfs As promised please find below an open letter everyone can sign asking @sajidjavid to raise #BringMillieHome #SaveCarlasLife & more during 1 May's debate We will send it on 30 April. So get involved and get signing. LINK with a CW - suicide:…
GREAT progress but we need MORE signatures ✍️ POWER in numbers; all ME relates charities 🙏 quote retweet repeatedly 🔁 while medical neglect is on repeat for #pwme #MECFS worldwide 🌍 @VictoriaAtkins * m.youtube.com/watch?v=0nXKQq…
@TheChronicColab This is positive. Sending everyone so much love 🩵🩵🩵
@TheChronicColab Thanks for update. Good to see a bit of progress. Good info re anaesthesia - ammes.org/anesthesia-rec… rcoa.ac.uk/events-profess…
@TheChronicColab @MEActNetUK @meactionscot Good to hear they're doing something positive. They need to be more open with us so we know what they're doing instead of leaving us in the dark thinking they're doing nothing.
@TheChronicColab @MEActNetUK @meactionscot Thank you @meactionscot @MEActNetUK & @TheChronicColab The more we work together, the better.
@TheChronicColab @plantingforbees @MEActNetUK @meactionscot Love to see a message like this. If only all politicians were as honest and as generous (some are), it would be a much better society and country to live in. You lead by the example you set. Thank you for standing up for us. All three of you! ~ From an M.E. sufferer of 38+ years!
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid #BeAllYouCanBe
UPDATE: #SaveCarlasLife - it seems the hospital are finally doing something positive - but still not quite enough - plus #BringMillieHome FYI transcript of the video in reply below:
@TheChronicColab At least any anaesthetist sorting out the GA for these scans for Carla, should be working to the agreed practices that ME Association and @RCoANews have recently made 🤞 meassociation.org.uk/2024/02/rcoa-l…
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