Naomi Harvey PhD #WearAMask @Naomi_D_Harvey
Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5 UK.Own views.Married-don’t DM Joined June 2014-
Tweets69K
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The Irish ME/CFS Association is pleased to announce that a leading international ME Expert, Dr Nigel Speight, will give 5 free talks on ME during ME Awareness Month: meassociation.org.uk/a5ya #MECFS #MEAwareness @IrishMECFSAssoc
YOU DID IT: 1,500 signatures in just a few days on our open letter to @sajidjavid asking him to please mention #BringMillieHome #SaveCarlasLife & Karen Gordon, & the state of the NHs for #SevereME patients, at his Westminster Hall debate tomorrow. Email on its way. Well done…
@DecodeMEstudy has now opened data access applications from researchers who wish to use this in studies into #MECFS and other diseases.
@DecodeMEstudy has now opened data access applications from researchers who wish to use this in studies into #MECFS and other diseases.
Please support Stewart in his annual walk for @Invest_in_ME. He'll be joined by @therealmecfs in her wheelchair for the last 3 miles. Thank you Jo, Dave & @sasyedin2108. @Walk_4_ME justgiving.com/page/stewart-s…
The most common disease you’ve probably never heard of: ME/CFS 🧬 A soul-crushing condition. Here is a thread for those who might not know that they have it or would like to know more 🧵
Royal College of Physicians Edinburgh online event on ME/CFS & #LongCOVID for clinicians & students Tuesday 4th June 2024, 6.00pm – 8.30pm (BST) Speakers include @ClagueNjc36 , @exceedhergrasp1 , @PutrinoLab & Danny Altmann events.rcpe.ac.uk/rcpe-mecfs-and… #MEcfs #PwME
Please sign ✍️ and share if you haven’t already ❤️ #MECFS #BringMillieHome #SaveCarlasLife #LongCovid
Please sign ✍️ and share if you haven’t already ❤️ #MECFS #BringMillieHome #SaveCarlasLife #LongCovid
Looks like a good paper here discussing shared pathologies in ME/CFS and Long Covid. Key figure here highlighting shared types of pathology. This will be good for anyone to read who is treating patients with LC or ME #MedTwitter cell.com/trends/molecul…
Thanks to @MikesEUmaras for this amazing achievement Enabling biomedical research @CofEforME in @NorwichResearch and raising awareness around #Europe Our great thanks to Mike and his family justgiving.com/fundraising/mi… #mecfs @TheQuadram #research #philanthropy
COVID19 is most definitely shortening the life spans of our pet cats. This hasn’t been reported on any national veterinary surveillance yet, but I make this prediction here that it certainly will be if it’s looked for. Please be careful not to infect your cat if you can 🙏🏻
Update on Carla #SaveCarlasLife some positive steps this time thank goodness
Update on Carla #SaveCarlasLife some positive steps this time thank goodness
I don’t usually do requests to retweet things for sale but the OMF is an amazing org and this little offshoot seems a really nice way to contribute and get something to keep in return. Every time you have your morning cuppa you’ll have a lovely reminder that YOU did a good thing.
I don’t usually do requests to retweet things for sale but the OMF is an amazing org and this little offshoot seems a really nice way to contribute and get something to keep in return. Every time you have your morning cuppa you’ll have a lovely reminder that YOU did a good thing.
For everyone out there following my case, a radiologist reviewed my April 2021 brain MRI per my current Neurologist suggestion. The radiologist said it was clearly an undiagnosed case of cerebral venous sinus thrombosis, (J&J covid vaccine). I received no medical intervention
✨️ Friday May-3-2024 at 1:00pm ET - @RenegadeRes and @MEActNet are partnering to bring you this Clinican's roundtable with Dr. Todd Davenport @sunsopeningband Dr. Todd Davenport: Eating the Elephant One Bite at a Time: Post-Exertional Neuroimmune Exhaustion as a Bionergetic…
I’ve just filled in the PIP consultation. Good chance to explain why vouchers is a stupid idea. forms.office.com/Pages/Response…
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
GeoCK @GeoEduOne
6K Followers 954 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Prof Doug Kell CBE #F.. @dbkell
14K Followers 10K Following Liv Uni. ENTJ. CBE. Against brexit and Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice @[email protected]
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Natalia @NataliaHodgins
7K Followers 1K Following Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle
Mark @longcovidman
3K Followers 5K Following On pause: management consultant, tech founder & powerlifter. Follow for smart answers to long cov*d as I find them
Harriet Carroll: Long.. @angryhacademic
8K Followers 4K Following #LongCovid Scientific Consultant Hon Research Fellow, Lund Uni PhD Nutrition & Metabolism Tweets: nutrition▪health▪all-things-science▪activism▪#TeamClots
うーたん @Rp34gG
0 Followers 262 Following
Edward Williams @EdwardWill66357
453 Followers 3K Following #Twitter Philanthropist# old account got hacked. Free to DM Me your cash app, PayPal, Venmo or Zelle. God bless!!!
hallenbeck ImoleSakar.. @imolesakara
64 Followers 370 Following I’m Christian and do go to church, I try to go every week. I ,learning about the lord
BUCHANAN: Dublin Time.. @RobLooseCannon
17K Followers 16K Following Drinker with a writing problem. #Irish #news #poetry #history #politics #Dublin Married to @alanlambodublin https://t.co/v0q7LvJBQ8
Desert Fish 🐠 @HereFishy3
475 Followers 2K Following read things. love is love. wear a mask. find joy. write. celebrate everything. be an ally. and VOTE, dammit. not my first rodeo-or Twitter account.🌵🐾 💙
saoirse81 @saoirse1881
20 Followers 563 Following
gailtpilatesahp @gailtpilatesahp
279 Followers 2K Following Physiotherapist. Pilates lover. Ebike enthusiast. Supporting post COVID rehab @NHSTayside. #longcovid #breathing #breathingpatterndisorders All views my own.
Cori Dean ♿🫎🐿.. @CoriDean13
583 Followers 769 Following Autoimmune disease fighter, empath ,pagan, MCTD, Lupus, Stiff Person Syndrome, BPD❤️J2MA Big Sky, Walker, Gotham Knights LGBTQIA Ally 🧷 #SafePersonToComeOut2
Bella @Chocnutties
20 Followers 136 Following Long Covid survivor. Two years and counting: CFS, Dysautonomia + Heart Arrhythmia. Still looking for a miracle. Legit only 15 followers, 20 now😊.
Frances @VerteOakmoss
39 Followers 684 Following
Maribeth N. Alvarez @bethchael_1102
19 Followers 328 Following I swear with honor to carry through life loyalty to the marine Corps! Dedicated to unity andhonorl serving with courage and commitment |Defender of freedom. 🙏
Dr.xvi79 @DXvi79
2K Followers 1K Following 🇫🇷 living in 🇧🇪. Chemist. good science please. I swear I will tweet more funny things when people consider Covid more seriously #KeepMasksInHealthCare
Alex Rice @alexrice6975
15 Followers 102 Following
Alice Lewis @AliceOutThere
2K Followers 2K Following MyalgicEncephalomyelitis—2 many lives lost—ruined—stolen. Outrageous neglect & medical MIStreatment—by our govts. 🆘 SHAME on them 🧐 Fight back ‼️ 🆘 pwME
CureME~CFS @Cure_ME_CFS
483 Followers 2K Following #ME. Not a doctor/scientist. Views are strictly personal. #microbiome, #neuro/+genic #inflammation, #fibromyaglia #mcas, #tryptophan #immunometabolism #genetics
Jo Marie Bankston @JoMarieBankston
1K Followers 3K Following An RN and writer frequently spotted reading YA and MG lit on the back porch. #vote & #vaccinate!! #LC, #LCFB #MECFS She/Her
MG @Mg48Mg
3 Followers 595 Following
Beks @beksemz
108 Followers 208 Following
trudy @trudyflynn_
2K Followers 3K Following Fibromyalgia, Co-Chair MSSU PPPC & Chair Fibromyalgia Association Canada, PERA alumni CIHR-IMHA, Patient Partner #Fibromyalgia #FAC #PatientEngagement #MSSU
PearlyMay17 @PearlyMayJSqrl
12 Followers 341 Following Dork, animal lover, Sjogren's\ Ehlers-Danlos\MCAS\ POTS warrior.
Angela Jorden @JordenAngela
48 Followers 560 Following “The courage is born when hope overcomes fear.” Georgiy Konisky (18th c Ukrainian philosopher)
Goat Lover Club @GoatLoverClub
79 Followers 2K Following Welcome to @GoatLoverClub We share daily goat contents. Follow us if you really love GOAT.
Green Light Delivery @_GreenLightD_
316 Followers 451 Following Since 2011 LA's Most Reliable Cannabis Delivery
julie kidd @quiltingkidd
15 Followers 2K Following
Carol @aka_tahto
2K Followers 3K Following Here for the hashtags; distracted by the politics. Resist! But also mask up!
Diane Comish @ComishDiane
2 Followers 38 Following
Flo @FlossBoss99
0 Followers 287 Following
Llewellyn Leggett @llewlgt
10 Followers 2K Following
Mts @Prana8900
0 Followers 407 Following
Tara Munson @TaraMunson
672 Followers 2K Following Disabled Writer, Medical Researcher (EBV,CSFleak, HT,Spine Disabilities) Feminist,AntiEpidural,Nozempic #OPTOUT of epidural&spinal anesthesia during childbirth
Emma @inneiennyfas
515 Followers 96 Following PhD physics. Here for the science and because of the still ongoing pandemic.
Martin Bateman @martinbateman51
456 Followers 2K Following
Well being agonist �.. @PeatReturns
163 Followers 722 Following RAY PEAT RAY PEAT RAY PEAT RAY PEAT RAY PEAT RAY PEAT RAY PEAT RAY PEAT RAY PEAT RAY PEAT RAY PEAT RAY PEAT RAY PEAT RAY PEAT RAY PEAT
Stacy @KirbyWooWoo
44 Followers 330 Following Ph.D. in Cognitive Psychology. COVID cautious. Epilepsy warrior. Disability advocate. COVIDISNTOVER 🦠CovidIsAirborne
isla @jelly223fish
3 Followers 74 Following burner account. autistic. immunocompromised & covid conscious. environmental scientist. anti-capitalism.🍉🍉🍉
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
GeoCK @GeoEduOne
6K Followers 954 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 725 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Gez Medinger @gezmedinger
20K Followers 720 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Prof Doug Kell CBE #F.. @dbkell
14K Followers 10K Following Liv Uni. ENTJ. CBE. Against brexit and Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice @[email protected]
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
Rebecca C 🏴�.. @plantingforbees
2K Followers 4K Following Mum. Cat slave. Coffee, crime fiction, politics & plants. Animals ≠ food/sport. #ME & FM.🥄Ovarian Cancer - know the signs. 🏴🇪🇺🇵🇱🇮🇳 No DMs.
Frederik J. Stratmann @FJStratmann
129 Followers 58 Following M. Sc. Industrial Engineer | Software Developer | Science & Nature Enthusiast 🏄🏼 | ME/CFS 🧬
Michelle Bourlet @MichelleBourlet
100 Followers 653 Following Exhausted human. Carer for daughter with severe ME. Advocate for son with OCD. Rescuer of guinea pigs. Love Schnauzers.
Silvia Luna ☀️ @szierenberg
75 Followers 645 Following
͏Postcards4USA 🟧 @postcards4USA
9K Followers 9K Following Instagram, Spoutible, Mastodon, Threads, BlueSky, Post = postcards4USA 📬 FB https://t.co/zxDxlG3xzV… #DemCast
Sarah @BirbsAreReal
404 Followers 1K Following Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. https://t.co/rBbNBTEspH
fhronesis @fhronesis
338 Followers 2K Following #MECFS #EM😶🌫️ Sujet manquant EM = Encéphalomyélite Myalgique PEM/MPE= Malaise Post-effort
ME nieuws @mecvsnieuws
1K Followers 946 Following Updates about scientific developments and news about ME (Myalgic Encephalomyelitis) Updates over wetenschappelijke ontwikkelingen en nieuwsberichten m.b.t. ME
mask on😷no cap™�.. @trulleyamazing
278 Followers 277 Following here to bring clarity🔮healing from LC, ME/CFS, audhd burnout, & a bunch of other diseases probably. regaining my power back, & welcoming in the rEVOLution🍉
Long Covid Educators .. @LCEducatorsUK
78 Followers 187 Following A group of educators seeking justice for injury/ill-health as a result of catching Covid-19 in schools as a direct failure of Gov.
Dr Mel Thomson @DrMel_T
14K Followers 9K Following Ex-🇦🇺 now 🇬🇧 Microbiologist | Alt-Ac AMR Research Manager | Bad Feminist | Enjoys Tumefactive Multiple Sclerosis 🌈 +pan&poly she/her
Molly Gordon @shaboom
13K Followers 11K Following Elder starlet. Tough canary. Ecstatic cranky. Queer. Grandma. #LongCovid #MECFS @MollyBoom in various places.
Tina Rodwell #TeamPat.. @TinaRodwell1
3K Followers 3K Following They called us activists 🤦♀️ I wear that slanderous name calling with pride for all the #MEheroes out there Fighting for my #MEhero son #TeamPatient💚
JellyBabyKid @JBKid7
356 Followers 770 Following Reader. Writer. Endless tea drinker. Whovian till I die. Trekkie. Activist. PwME. PTSD. Rock fan. OU grad (She/they)
Rowena Galavitz @GalavitzRowena
872 Followers 4K Following English/Spanish copy editor | translator | content creator | lang. coach. MAs: comparative literature, European studies, religious studies from IU. Views: mine.
Kimberly Chapman can'.. @WriterCrafter
3K Followers 3K Following Mum/writer/sugarartist/nerd/feminist/ND/bi. Canuck in Cambs. Books: https://t.co/sLMkyypD2j Trek: https://t.co/K29JEfWRiz Cake: https://t.co/NlGLKBzxBn She/Her🖖♿🌈🇬🇧🇪🇺🇨🇦
Jennie Jacques @JennieJacques1
19K Followers 412 Following avid reader 📚 lover of science 🧪 🧬 actress 🎭 & writer ✍️ #disabilityswareness 🌻 #mecfs 💙 @bake4mecfs
xh @BH5170835825574
68 Followers 148 Following
Heath @MEawareness
1K Followers 2K Following #MyalgicEncephalomyelitis(M.E) sufferer. I had a virus & didnt recover. Are questions usually rhetorical? I cannot give blood, ever: https://t.co/tU1sspbOiU
Prof Adrienne Oneil @DrAdrienneOneil
3K Followers 3K Following Professor. NHMRC EL2. Food& Mood Centre, Deakin University. Lifestyle Medicine. Behavioural Scientist. She/her
AirSpot Health @airspothealth
672 Followers 2K Following Our smallest fresh air monitor! Combines with the AirSpot App to help optimise your AirHealth.
Meiners PT, PhD @KellyMMeiners
675 Followers 638 Following *Physical Therapist, Athletic Trainer, CSCS, dedicated runner and mom. *disabled since 10/2021. Advocate for #LongCOVID, #POTS, #MECFS as able.
Sonja Kohl @eskabadu
2K Followers 1K Following 🇩🇪 One of #millionsmissing | Team #GOfundMECFS & #SIGNforMECFS | Suffering from #MECFS after a viral infection in 2012 | https://t.co/FSdIVPb7iI
Alexis @alexis___me
197 Followers 175 Following Consultant in Health Protection (Public Health) | Severe ME, Long Covid and POTS patient | Advocate | Father | Husband to @clglbrt
Lyrical Owl @lyricalowl
292 Followers 317 Following
Lara Crowther @fillthewhole
5K Followers 5K Following BSc, MRes Neuroscience, BMedSci, PhD Med Ed (& life) on hold due to covid caused #longcovid #pots #mcas #adenomyosis #hypothyroid Ex PT & yoga teacher 😷
Jewkesy @Jewkesy299049
81 Followers 164 Following Long Covid since August 2022 Previously fit and healthy Science teacher on extended sick leave :(
Ylan Roy @YlanRoy
279 Followers 428 Following Small but mighty 💪🏽 #earlyeducator, visual artist, health enthusiast advocating for #LongCovid awareness. No longer #essentialworkers, speak truth to power!
Rachel Schraer @rachelschraer
12K Followers 3K Following Senior reporter for @BBCNews covering health, misinformation & internet culture. Making radio for @BBCTrending. ✍[email protected]. uk
xxx ROSE xxx @TanteRos
2K Followers 2K Following Not much energy/too many migraines. Nature keeps me going #Photography on https://t.co/yKh1ibi9aD… #MillionsMissing
Kat Gower @fundraisingkat
591 Followers 1K Following Just Me. I have #MECFS all views expressed on here are my own
Richard Vallée @richardvallee
3K Followers 5K Following I play language. Mostly irreverent. Debugger. AI, global warming, integrity, healthcare & science. Chronically ill. #MillionsMissing #pwME #MEcfs
Ron @Ron
21K Followers 692 Following ≡ Computer Scientist א Christian ≡ CEO — @BrightLabsTech Open-Source Developer — https://t.co/aJScszApVK
fiarh @fionarh289
46 Followers 369 Following Speak 🇫🇷 & 🇩🇪, love crisps & dips, have Long Covid & PoTS
Stephen Hough @Eboncorvine
1K Followers 1K Following It's what we agree on, making the world better for everyone and everything, not what we disagree on that we should build on. Solidarity not division.
zorgvoorme @Zorgvoorme
342 Followers 699 Following https://t.co/gv6R7aK2EF Here for 1 reason: me awareness! Hier voor 1 reden: aandacht vragen voor me/cvs. Meer biomedisch onderzoek en meer zorg wereldwijd!
Sue Barrow @calvadnack
112 Followers 381 Following Smallholder, cheesemaker and news junkie. Still loving the Cornish vibe.
Marit Skotheim @MaritSkotheim
2K Followers 3K Following Society, politics, human rights, science, research. MSc ChemEng. Myalgic encephalopathy (ME) since 2010. Mainly Norwegian and English tweets. Whistleblower.
Dr Annette Chester @chester_annette
223 Followers 1K Following Wife, Mum, mental health advocate, entrepreneur, vegan,
Michelle Dando 🫥 @MDando1
79 Followers 259 Following Worked in NHS. Was going to be a nurse. Now stuck in my bedroom due to #myalgicencephalomyelitis #millionsmissing #ME Best laid plans… Is this my life now?
Dr. Theresa Chapple @Theresa_Chapple
43K Followers 4K Following Public health geek, maternal and child health advocate, social justice seeker, mother of three. Motto- "In God we trust, everyone else must show data"
Andrew Green @AndrewG76201347
1K Followers 715 Following ME/CFS, POTS, MCAS. Female (ignore name). I post anonymously because I share medical details of my child too young to consent to public sharing.
Prof Emma Barrett is .. @crimepsychblog
3K Followers 2K Following Not using Twitter anymore. I'm crimepsychblog on BlueSky (also @mstdn.social & on 🧵) Prof of Psych, Security & Trust, University of Manchester
Justin_Struble @Justin_Struble
396 Followers 2K Following
SEDSConnective @SEDSConnective
5K Followers 3K Following Sympt.Hypermobility EDS HSD NEURODIVERGENT vol. Charity / health/education/care/work Chair/Founder Jane Green MBE @JGJanegreen Patron Dr Eccles @Bendybrain
Dr. Daniel Loy @loy_daniel_de
6K Followers 1K Following Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
Walk for M.E @Walk_4_ME
192 Followers 196 Following Official Walk for ME Twitter account. Email: [email protected] FB: https://t.co/USNrTIhlkf Instagram: @walk_for_me_
HopeStarMasacre @MscreStarHope
2K Followers 3K Following its alright… im just dying is all…// writer and performer of the theatric kind // disabled as fuck with #LC #ME #POTS #MCAS & more // antizionist ✡️ 🇲🇽🏳️⚧️
@Naomi_D_Harvey @RSPCA_official They are! It's been a bit of a palaver getting them home (they have some health issues so getting all 3 of them signed off by the vet, at the same time led to some false starts) but they'd been in for 6 months with no interest 😥
@Naomi_D_Harvey @TomKindlon Some people with MS are finding places that will give it to them. In conjunction with a stem cell transplant.
Just ordered a powered lift for my mobility scooter. I haven't used my scooter much up to this point because I haven't had an easy way to transport it when my wife isn't around, which severely limits my options when it comes to getting out during the day. I have a hard time…
I sent two audio messages this morning. That’s right you heard me I sent two AUDIO messages, with my whole VOICE 🥲🤞🏽💚
We've had very few birds in the garden - they are occupied with breeding in the nearby park so it was lovely to see a male bullfinch pecking sunflower heads in the grass opposite, then unexpectedly landed on the fence so I could get a reasonable photo, despite the low light.
Finally here! Diego (orange), Bobby (pink blanket) & Terry (Haribo box) have arrived home! Wonderfully cared for for the last 6 months by @RSPCA_official Southridge branch
#MECFS mentioned in parliament again today...
The #hedgehog is back in the back garden. Was wondering why it was so noisy. Thought perhaps it wasn't the same hedgehog. But I went outside last night and saw 2!!! hedgehogs. Which I guess explains the noise(?) They seem to like each other. Maybe babies 🦔🦔🦔🦔🦔 soon???
@kirstler31 @chydorina I don't mind at all! It's taxotere and cyclophosphamide and then a shot of neulasta the day after. I'm in the middle of cycle 3 (1 cycle=3 weeks), and am only doing 4 total.
@kirstler31 @chydorina I hope so, too. Thank you.
@georgialinders @chydorina That’s the drug I am talking about. I hope your benefits from it ME wise are sustained & good luck with your treatment!
Norwegian PhD thesis: #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (ME/CFS): Clinical trials, medical treatment and pathomechanisms Free: bora.uib.no/bora-xmlui/han… One paper under review not included #MEcfs #CFS #PwME
@georgialinders @chydorina If you don’t mind me asking. Do you know the type of chemo you’re on? a friend sent me a paper re chemo helping a certain % of ME patients (I’d have to dig it out).
@chydorina Chemo for breast cancer. I'm on cycle 3 of 4, so I guess we will see if these changes stick. Mostly it's been dysautonomia symptoms that have gotten better. Taste/smell, fever & the ability to stand for longer. But I am having bad nausea/pain from the chemo, too. So no euphoria.
@Naomi_D_Harvey Not certain about broader availability, but apparently there's a lactose-free formulation available in NZ (medsafe.govt.nz/profs/datashee…).
@elle_carnitine I’m really not qualified to answer this but @Naomi_D_Harvey just posted this and on first glance it looks like a good overview x.com/naomi_d_harvey…
Looks like a good paper here discussing shared pathologies in ME/CFS and Long Covid. Key figure here highlighting shared types of pathology. This will be good for anyone to read who is treating patients with LC or ME #MedTwitter cell.com/trends/molecul…
@Naomi_D_Harvey I said the same as I was twitting a UTI - life with #MECFS - there’s no such thing as TMI
@davro_t I used to but stopped. I still have Bookbub emails and send books to my partner sometimes (or others if I feel they'll like it). I do audible though. I'm OK listening to audibooks in the dark before sleep (helps me fall asnooze). The rewind option is used... often... 😉
Couchistan shop 🗞️ I just hopelessly fell down the Kay F Jones Sock pattern rabbit hole... A Mrs Potter sock club and one called Swish and Click Collective... ...how can a little white witch resist??? Will be in my magic garden... ravelry.com/patterns/sourc…
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