Long Covid Moonshot @LCMoonshot
18 million Americans suffering with Long Covid, and ZERO treatments. We need a moonshot for Long Covid research funding! longcovidmoonshot.com Washington, DC Joined November 2023-
Tweets759
-
Followers3K
-
Following318
-
Likes1K
We must use every tool available to address the #LongCOVID crisis. Grateful for the work @The_BMC is doing with their Long COVID Clinic & honored to host Dir. Simon of @HHSGov's Office of Long COVID Research & Practice. We'll never stop fighting for our #LongHaulers.
We must use every tool available to address the #LongCOVID crisis. Grateful for the work @The_BMC is doing with their Long COVID Clinic & honored to host Dir. Simon of @HHSGov's Office of Long COVID Research & Practice. We'll never stop fighting for our #LongHaulers.
Opinion | At long last, a 'moonshot' to tackle long COVID captimes.com/opinion/guest-…
For everyone who has been interested/curious, here is our official comment/feedback to @SenSanders on his Long COVID Moonshot legislative proposal. Link to full letter at the end.
For everyone who has been interested/curious, here is our official comment/feedback to @SenSanders on his Long COVID Moonshot legislative proposal. Link to full letter at the end.
You can see our full response to Bernie’s Moonshot proposal on our website: longcovidmoonshot.com/files/LCMoonsh… Or you can read our summary thread below 👇
You can see our full response to Bernie’s Moonshot proposal on our website: longcovidmoonshot.com/files/LCMoonsh… Or you can read our summary thread below 👇
'We need a moonshot for long COVID': What we know (and don't know) about the illness. Thank you for having me on your show this morning @wnpr and @wherewelive! Featuring @LisaAMcCorkell @patientled, with Prof. Daniel HoSang and Catherine Shen. ctpublic.org/show/where-we-…
TIME's list of the 100 Most Influential People in the world is out. I'm honored, delighted, and grateful to be a part of this incredible group #TIME100 🙏🏼🙏🏼🙏🏼 @TIME time.com/6964230/akiko-…
Sen. Bernie Sanders has proposed draft legislation that would allocate one billion dollars a year for the next 10 years to #LongCovid research. Read what advocates are saying about the proposal and how you can share feedback with Sanders' office: thesicktimes.org/2024/04/16/sen…
In case you didn’t know, SARS-COV-2 can persist in your brain for *years* Here’s the @NIHDirector discussing viral persistence and its potential role in #LongCovid
Bernie’s moonshot for #LongCovid | Editorial "He’s right that Congress has not “done anywhere near enough,” and his proposal for a $10 billion moonshot over the next decade for research and clinical trials is movement in the right direction." @LCMoonshot nj.com/opinion/2024/0…
@SenSanders says LISTEN TO THE PATIENTS!! 👏 #LongCovid research has been much too slow and unambitious. That has got to change.
Carol L. Binks @carolbinks
3K Followers 2K Following Healing myself. Supporting others with neuroendocrine/immune system illness commonly known as #ME. Sharing research. Denouncing unscientific claptrap. #MCAS
Jill Salmon 🇺🇸�.. @Mwanamatapa
3K Followers 3K Following Centrist Democrat 🌊 Joe Biden and Woman Rights supporter. Animal lover, AZ Cardinals, Phoenix Suns, Tottenham Hotspur, Rugby, ASU & TCU fan.
My Long Covid Advocac.. @myLCadvocacy
2K Followers 5K Following MLCA is your trusted source for Covid | Long Covid - Science, Stories & News. #covid #longcovid #pasc #longhauler #postcovid #MyLongCovidAdvocacy
65for65 @65for65
1 Followers 50 Following Raising awareness and money for Long Covid through the 65for65 challenge ✨
Elar @Timber_floors
28 Followers 27 Following
Clean Air Boorloo @cleanairboorloo
0 Followers 30 Following
Luke Harkleroad @Luke_Harkleroad
226 Followers 2K Following
Samarth Sandeep @0gishere
162 Followers 723 Following CEO @ Iff Technologies (https://t.co/AvMBnlPKRd)
mayweed 🟧 @mayweed_42
176 Followers 2K Following Ecology & Evolutionary Biology MS, with side of computer modeling; Psychology MA. Teaching, data analysis, librarian
Britta Mcomber @McombBri
11 Followers 3K Following
corinneee143 @godsgrace711
19 Followers 92 Following Long Covid survivor and advocate. One sufferer helping the next to recover. All we have is each others experience and what’s worked for one,may help the next
Ryan Friese, Ph.D. @ryanfriese_
124 Followers 290 Following Scientist with 20+ years experience in genomics, bioinformatics, and drug development
Scareboos Taxi Driver @tamza_33
623 Followers 2K Following
irredeemable crybaby @byowife
4K Followers 1K Following if ur looking for shit i posted myself u already lost the argument btw🥰 always showing my ass in some way, u can support my stupid struggles below🫶beem: eeit
DooDah @DebsFrazer
1K Followers 2K Following Mum of 4/Masker/Ex teacher & Home Ed-er/AFOL/Spoon carver/Crocheter/Crafter/Remainer/Longer table not higher fence/#GTTO/#CovidIsNotOver
Angela Fes @Mutmassungen
397 Followers 2K Following In love with books, editor, team science, feminisms, #prochoice #ProtectTheKids #covidisairborne
Madhuri Sathish-Van A.. @MadhuriSathish
1K Followers 2K Following Political reporter & freelancer with words in @bustle, @elitedaily, @Womens_eNews. @MedillSchool alum. #BLM. #FreePalestine. #NoDAPL. #AbolishPolice. She/her.
Karen Wants The Orcas.. @riceboilsover
1K Followers 1K Following #TeamOrca. Former sociologist. #MaskUp because #COVIDisAirborne. (she/her) @[email protected] / @riceboilsover.bsky.social
Tamsin Shute @peachpear
1K Followers 2K Following I like words that start with the letter ‘B.’ Long covid since September ‘21.
Sofi Papamarko @PapamarkoS25412
27 Followers 609 Following
Mandalorian @Auti_Mando
484 Followers 1K Following #Covid19 is an airborne infectious vasculitis that causes cumulative harm. #BringBackMasks 😷 #ThisIsTheWay #AuDHD #CleanAirBrigade #ClimateCrisis 🌎 They/Them
Dr. Nora Slonimsky @NoraSlonimsky
1K Followers 927 Following History, tea, & Star Wars enthusiast. Aspiring hat aficionado. Director @TheITPS Social media @TheJERPano Reviews @sharporgnews Writes about copyrights.
SpaS 🌻💙💛🕊.. @sipanne
2K Followers 4K Following Always worried mum, hate this stupid war and all disinformation about Covid. #tolerance #humanity #EBhealthcare #equality #facts #research #SlavaUkraini 🇺🇦
TurboEasterEgg @turboeasteregg
415 Followers 1K Following Gen Xer. Gender apathetic about myself. Resisting fascism, climate change, capitalism. acab. @[email protected]
Stephanie Greig @brooklynbassist
568 Followers 2K Following Jazz and classical bassist, graphic artist, guitar teacher, member of the Church of the Living Swing.
kikicoop @kikiccooper
218 Followers 849 Following she/her | lover | fighter | dreamer | #LongCovid & POTS caregiver & advocate | #BlackLivesMatter | 🏳️🌈 ally | @[email protected]
e @picabolition
252 Followers 179 Following 27 🌸 agender they/m🌻 Marxist Leninist in progress #abolitioninourlifetime🌷
Emily @emilysliggett
8 Followers 276 Following Jayhawk living in Boston. Defense wins championships!
Jared Boesse @madriver2017
146 Followers 563 Following Technology enthusiast. Skier. Other stuff too. Married to @clevy_law
life neurotic with st.. @fartleksburpees
191 Followers 1K Following "prescient. often profound" - bernard henri levi
Potatie @__potatie__
1K Followers 3K Following FREE PALESTINE 🇵🇸🇵🇸🇵🇸 “It is no measure of health to be well adjusted to a profoundly sick society." 😷 Disabled by Long Covid/ME/POTS/MCAS
D @cherryd22
59 Followers 2K Following
Carolyn Guthrie @Carolyn10535082
0 Followers 63 Following
Emeli Dickerman @DickermanE73307
94 Followers 5K Following
Michelle Vance @IthriveinWV
71 Followers 182 Following
Khuram Dhanani @iamkhuram
541 Followers 283 Following CEO at Softstone Capital Group | Aspiring A Little, Everyday.
PanaceaPlantSciences @PanaceaPlantSci
417 Followers 846 Following
Mark Grochowski @sa2audio
549 Followers 1K Following Musician (keyboards), radio and electronics. Polka music, reggae music, smooth jazz. Host and programmer of The Perfectune FM Polka Jam on WYLC-DB radio.
Robert DeRosa @Rob_DeRosa
346 Followers 835 Following 🇨🇦 🇺🇸 CAN/AM. Previous res of Japan & Singapore. Former teacher. Master in Public Policy. Disabled by #LongCOVID #MECFS since February 2020.
Yann @yann_mecfs
93 Followers 57 Following Very severe ME/CFS (Long Covid). Not always able to use phone. Have not been able to sit since August. #LongCovidMoonshot
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Kristin Houlihan, Wri.. @theedifyingword
5K Followers 5K Following Editor-writer. #LongCovid #pwME #POTS Newsletter: https://t.co/GYofP9WG1L; Book: https://t.co/9pr27ygDyB
Dianna Cowern @thephysicsgirl
214K Followers 2K Following Science Video Creator, Currently #LongCOVID, MIT Physics, Forbes 30u30 https://t.co/BT5fDLw3NO
CURE ID @id_cure
3K Followers 4K Following ID, Sarcoma,& RareDisease Drug Repurposing Platform for Case Reports & Discussions. This is an unofficial personal friends of CURE ID account. Views are our own
Community Notes @CommunityNotes
934K Followers 0 Following Empowering users to create a better-informed world. We're open source and data is publicly available: https://t.co/Te3IjR10Ix Q? Reply/DM
Elizabeth Warren @SenWarren
6.9M Followers 508 Following U.S. Senator, Massachusetts. She/her/hers. Official Senate account.
Galen Panger ☕️ @gpanger
2K Followers 2K Following UX researcher. Social media behavior PhD @BerkeleyISchool ‘17. @Stanford ‘07. He/him/gay. I work @YouTube—all views mine.
Cat Herding Science N.. @catladyactivist
18K Followers 11K Following Plant-fueled 🌱 religion-free 🕊 healthcare for all ⚕️ leave it better than you found it 🌏 equity in all things ⚖️ #CovidIsAIRBORNE 😷
Kate Spitzmiller 🕊.. @KateSpitzmiller
6K Followers 6K Following #LongCovid since February 2020. M.Ed., BA: Human Geography, AS: Veterinary Science. “Autoritätsdusel is the greatest enemy of truth.” —Albert Einstein.
Jalen Brown @itsJalenB
6K Followers 5K Following Congressional Health Care Reporter @InHealthPolicy | Past: @BGOV, @CNN, @Forbes | @NABJ | ❝The people must know before they can act...❞ — Ida B. Wells
Rikki BK in QNS 😷 .. @Rikki_BK
2K Followers 4K Following Raised by the world’s borough. Getting rest + yelling about injustice. they/them
Marco Wetzel (is figh.. @Gmwetz
2K Followers 833 Following Founder of @U2Fight_world // #UniteToFight2024 // #LongCovid and #MECFS advocate // #longcovid patient
Barbara VanMeter @barbara_nivens
280 Followers 932 Following
lucy 🇨🇦🇺🇸 @lucyveepee
3K Followers 3K Following MA, Developmental Psych, Queens, NY native, retired Child Welfare, Covid Shielder/Long Covid Ally. Reluctant #SpacesHost #neurodivergent #ActuallyAutistic
MJNabuurs @EmJayNabuurs
2K Followers 3K Following Love life. Want to protect it to live it. #LTC #PublicHealthcare #CleanAir advocate. Spokesperson 4 @ONSchoolSafety. Co-host of @TheReSisters2 #MakeYourNoise
Daniel Freeman (on hi.. @LongCovidKiwi
2K Followers 1K Following Used to be @GayKiwiDan. 44 y/o battling #LongCovid since 01 June 2022. Here to correspond with fellow sufferers. #MECFS #FBLC #MillionsMissing 🤒 😷
Mark @longcovidman
3K Followers 5K Following On pause: management consultant, tech founder & powerlifter. Follow for smart answers to long cov*d as I find them
Ivan l'Africain @AlterIvan1
2K Followers 3K Following Linguistics, UI/UX/motion #BLM #animalcruelty CACA (Covid minimizers ArmChair Aeconomics) 💩= Trickle-down, Smith's Invisible Hand & Mises Cultists
Pandemic Patients @PandemicPatient
2K Followers 388 Following Pandemic Patients is a 501(c)(3) non-profit organization that works to relieve the harm caused by COVID-19.
sillypaulie @we_are_ssd
2K Followers 2K Following #DavosSafe Prometheus stole fire from the gods and gave it to man. For this, he was chained to a rock and tortured for eternity.
Renée Cooper @ReneeEliCooper
1K Followers 1K Following Reporter @KSTP | Former Investigative Lead @WCIA3, @KXMB | 2x Eric Sevareid Award-winning journalist | @uofsc grad l Choose kindness & the truth.
Bryan (chaos gremlin) @blackqueeriroh
9K Followers 6K Following they/them. AuDHD. all of the following: deep thinker/giant slut/sarcastic cunt/very kind human/cuddly bear/work culture nerd/anti-capitalist |🖖🏾🏳️⚧️🎥📚🎧
Gyda Arber ✨ 😷 @gydaarber
2K Followers 3K Following Actor/Director/Writer specializing in transmedia (technology + theater) in NYC. @[email protected]
Lisa Jarvis @lisamjarvis
18K Followers 793 Following Pharma columnist for @opinion. bit 'o science, bit 'o business. drug discovery, rare diseases, R&D, biotech, Covid-19, opinions=mine She/her
Pantéa Javidan, JD, .. @pjavidan
5K Followers 5K Following Faculty & Research Fellow @StanfordHumRts Center for Human Rights & International Justice; @Stanford Human Rights in Trauma Mental Health Lab. Views mine.
chantzy @chantz_y
14K Followers 1K Following Mom, communicator and science writer. Croissant maker & eater. Métis. Health equity. Accidental activist 🦠
nicolekarlis @nicolekarlis
3K Followers 3K Following Senior writer @Salon, focus on health, wellness and science. Tips [email protected]. Be kind. New mom. She/her.
Camille A. Clare MD M.. @cclareMDMPH
34K Followers 28K Following Chair @sunydownstate Dept of ObGyn, Professor College of Med & School of Public Health, Former Asso Dean of Diversity & Inclusion, ObGyn, my views, she/her/hers
Claus Ernst 🌻→ @.. @ClausErnst
2K Followers 1K Following Animated explainer videos, Moderate ME from initial 'mild' SARS-CoV-2 infection 2021. 39 months + counting. Mastodon → https://t.co/aA7or0WZ8r
Neurologist Mom @NeurologistMom
5K Followers 263 Following A neurologist, M.D. a mother of a 15-year-old girl with severe neuroCOVID/ME/CFS who has been managing her daughter's treatment at home since October2022
NB citizen Covid Upda.. @nb_covid_info
8K Followers 9K Following Citizen science initiative; highlighting covid info from P. Engs, industrial hygienists, HCW, citizens. I block pro-COVID accounts.
auntie cistamine @laurenancona
30K Followers 18K Following neurodivergent public servant • learning to help • 338ppm • she • no DMs
Manic Pixie Mask #Hot.. @rockncasserole
673 Followers 951 Following Millennial lady who believes that public health ≠ "you do you." SARS-CoV-2 isn't over when 1/5 get Long Covid. Looking for Covid-safe friends in SoCal!
Andrea Fighting for #.. @MECFSNanoneedle
923 Followers 3K Following Severe #MECFS Patient Bedridden. No energy to speak. #MECFSBiomarkers #FckTheNIH she/her I am #MECFS Diagnostic Biomarkers biggest fan!
Covid Safe Florida �.. @covidsafefl
78 Followers 270 Following Connecting people across Florida with Covid-19 resources and community 😷☀️ Conectándote con comunidades y recursos contra Covid-19 en la Florida
N🤗VA ME-CFS/POTS/L.. @CFSnova
542 Followers 1K Following For pw/caring4 long haulers: ME/CFS/FMS; Orthostatic Intolerance, POTS; Long Covid; Chronic Lyme. VDR immunopathy. MTHFR+. MCAS. By @NovaSupport Elly Brosius.
Emily Johnson (is on .. @emily_rj
8K Followers 6K Following Digital journalism. Design, news/book edits, linguistics, data, tech. Medical + academic research. Disability in news consults. @the_dailydis. #CripTheVote
Christophe Veltsos @DrInfoSec
13K Followers 12K Following University prof. | Let's talk cyber risk & systemic risk | Author, speaker, mentor, advisor. He/him. Keeping an eye on #Covid #LC. #COVIDisAirborne #MaskUp
Hollie @Zegmeister
870 Followers 2K Following #LongCovid. #MECFS. #M4A. Health Justice. Leftist. Xennial. #ZeroCovid FFS…. If this site goes to hell, find me on Mastodon: https://t.co/5uf7yGEJAB
Julia Marie @julia_doubleday
10K Followers 3K Following International and domestic politics; Deputy Director, Committee LLC; co-host @committeepro; Julie Oliver for Congress 2020, Beto for Senate 2018, Bernie 2016
Katniss Evergreen �.. @mind_fullvsful
1K Followers 3K Following Nature heals what time cannot. #NatureHeals
Liz Highleyman @LizHighleyman
16K Followers 6K Following Medical journalist. Science editor @POZmagazine, @CancerHealth, Hep. Words for @aidsmap, @Slate, @eBARnews. Research beagle adopter. Same handle Threads/Bluesky
Angela L. Sharpe, MG @AngelaLSharpe
728 Followers 4K Following Education/Science Policy | @APA Advocacy | @FABBS | CPR | CEDS | Friends of @NIHOBSSR | Capitol Hill alum | Lib of Cong | JHU | UNC-CH | views r mine
lizwhatsherface @RealGayArbys
12K Followers 773 Following
Rev. Dr. 4WheelWorkou.. @4WheelWorkOut
15K Followers 1K Following M.Ed/Esq. | Creator: #disabledwomanism #WithoutTheADA #DisabilityTwitterTaughtMe #DisabilityAblesplained| Not Your Lawyer |The Bean’s Mom
#MEAction Network @MEActNet
20K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Laura Ramirez @Imanismami
622 Followers 3K Following Love God,🌍🌎🌏, justice, civil & human rights. My family is very extended. If you try to hurt us I will cut you. BLM #shutdownredhill #kukiaimauna🔺✊🏾🏳️🌈☮We must use every tool available to address the #LongCOVID crisis. Grateful for the work @The_BMC is doing with their Long COVID Clinic & honored to host Dir. Simon of @HHSGov's Office of Long COVID Research & Practice. We'll never stop fighting for our #LongHaulers.
Proud to host @RepPressley & Dr. Ian Simon, Dir. of the Office of Long COVID Research & Practice at @HHSGov, for a roundtable discussion to learn about BMC’s Long COVID clinic, treatment & research, as well as to hear directly from patients and caregivers. bit.ly/3UfO4va
Opinion | At long last, a 'moonshot' to tackle long COVID captimes.com/opinion/guest-…
TY for this important coverage on LC, @CapTimes 🚀🚀
Opinion | At long last, a 'moonshot' to tackle long COVID captimes.com/opinion/guest-…
@seeksboston26mi @LCMoonshot “Including” expands the scope, not narrows
Thank you for making this an inclusive proposal.
We believe that an inclusive clinical approach will be of benefit to all of us suffering from Long Covid, as well as other IACCIs.
@LCMoonshot @SenSanders Thank you very much for sharing this feedback with us and making it public 😌 and ofc thank you for your role in helping being this proposal about
For everyone who has been interested/curious, here is our official comment/feedback to @SenSanders on his Long COVID Moonshot legislative proposal. Link to full letter at the end.
We are grateful for @SenSanders leadership on #LongCovid. We enthusiastically support his Moonshot proposal, which we believe will greatly benefit the millions suffering with this condition. We just sent his team our feedback, and wanted to share our thoughts with you all. 🧵
@LCMoonshot @SenSanders 💯💯💯 On board with each aspect of this feedback 100%. Thanks for thoughtfully sharing it!
@LCMoonshot @SenSanders Thank you for your feedback to @SenSanders’ #LongCovid proposal — also for being transparent & sharing it publicly. Imho those are all great points & I’m hopeful that Sen. Sanders will incorporate them in his proposal. 👀 @cstroeckw / @weandmecfs / @RorPreston / @SabineHermisson
@bhanlon15 You just inspired me to make another round of calls to my Oregon representatives in the Senate and House using the Moonshot for Long Covid call guide: longcovidmoonshot.com/call-guide.html
This hour, we hear from one immunology expert about the state of research into long COVID. Plus, Dr. Daniel HoSang also reflects on the "twin pandemics" of racism and COVID-19, four years after the virus emerged. Listen via @wnpr. trib.al/DNcp92f
'We need a moonshot for long COVID': What we know (and don't know) about the illness. Thank you for having me on your show this morning @wnpr and @wherewelive! Featuring @LisaAMcCorkell @patientled, with Prof. Daniel HoSang and Catherine Shen. ctpublic.org/show/where-we-…
TIME's list of the 100 Most Influential People in the world is out. I'm honored, delighted, and grateful to be a part of this incredible group #TIME100 🙏🏼🙏🏼🙏🏼 @TIME time.com/6964230/akiko-…
Sen. Bernie Sanders has proposed draft legislation that would allocate one billion dollars a year for the next 10 years to #LongCovid research. Read what advocates are saying about the proposal and how you can share feedback with Sanders' office: thesicktimes.org/2024/04/16/sen…
Bernie’s moonshot for #LongCovid | Editorial "He’s right that Congress has not “done anywhere near enough,” and his proposal for a $10 billion moonshot over the next decade for research and clinical trials is movement in the right direction." @LCMoonshot nj.com/opinion/2024/0…
From the bottom of my damaged body and broken heart, thank you @SenSanders for being a champion in govt. for #longcovid & commitment to the $10B Long Covid Moonshot @LCMoonshot @timkaine @RepPressley @LisaAMcCorkell @patientled @PandemicPatient @MichaelPelusoMD @PlzSolveCFS
STAT News: '$10 billion long Covid ‘moonshot’ is being floated by Bernie Sanders' 'Sanders’ proposal echoes what patient-advocates have been calling for since the beginning of the pandemic, a demand that has only become more forceful with time..' statnews.com/2024/04/11/san…
{Painting WIP honoring @SenSanders commitment to #longcovid funding with annual $1B a yr for ten years. @NIH @LCMoonshot
@LCMoonshot This is EXCELLENT news!!!! Congratulations to all of the advocates and patients who have been pushing to make this happen.
Trends for United States
You might like
