Harry Boby @HarryBoby4
I care about Philosophy, Health, and ending Long Covid & ME/CFS. Recovery videos & more⬇️ linktr.ee/harry.boby London Joined April 2021-
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I’m neither a politician nor an economist, but finding it hard to see how it could be good to have 3% of the workforce long term unwell to #LongCovid, yet no moves to acknowledge, mitigate, research or treat?
I’m neither a politician nor an economist, but finding it hard to see how it could be good to have 3% of the workforce long term unwell to #LongCovid, yet no moves to acknowledge, mitigate, research or treat?
Is Long Covid really that prevalent, or are we misdiagnosing everyone w/ fatigue, depression etc? Valid concern, but I would point out that we see.. - Microclots - Viral Debris - ANS dysfunction - Less cerebral blood flow Not sure you can fake that..
Intellectual Honesty: A Cause For Self-Reflection open.substack.com/pub/harryboby/…
Why I'm confident Long Covid will be solved in the next 5 years. COVID is the most studied virus ever → we already know so much. We live in a digital age → HIV research didn't have this luxury. >65 million people affected → All have 1 goal in mind. We can beat it.
Collectively we can have a huge impact. Finding answers to #longcovid and #mecfs will change the lives of so many around the world.
A Headteacher who deeply cares about her pupils and about fairness, respect and maintaining a positive ethos. Very inspiring.
A Headteacher who deeply cares about her pupils and about fairness, respect and maintaining a positive ethos. Very inspiring.
The king of callouts
BREAKING: Senator Bernie Sanders drafts proposal for Long Covid Moonshot. The proposal earmarks $10B in Long Covid research funding over the next decade.
How do you explain that exercise leaves you flu-like and concussed? Just because the symptoms are bizarre doesn't mean they aren't real. The priority MUST be a diagnostic test followed by targeted treatments.
🧵 Imagine being so ill, you’re too weak to eat or talk. Light, sounds, vibrations cause agony. Trying to do more than lie horizontally makes you even sicker. You’ll die without a feeding tube... #BringMillieHome #DontLetMEDie 1/
The Cystic Fibrosis Foundation invests $225 million yearly into research. Yet the condition affects only 100k people worldwide. For Long Covid the number is 65 million. Think what we can do....
Long Covid will cost us over $3 trillion. But the route forward to getting more investment and treatments is by highlighting the economic impact, not sympathy. Sympathy only goes so far, but highlighting the huge effects to the workforce and GDP gets real attention.
"My limbs feel weighed down with sandbags" I spoke to Lexi about the challenges of Long Covid, what has helped, what hasn't, and look to a more positive future and how we might get there. 🔗youtu.be/23n92U4AHgY?si…
Dr Claire Taylor @drclairetaylor
66K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my own
Gez Medinger @gezmedinger
20K Followers 722 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Long-Covid Advocacy �.. @longcovidIRE
3K Followers 5K Following Advocating for #longcovid treatment. Need help from journalists, researchers and politicians to create awareness to #treatlongcovid #FBLC
Covid Solidarity @CovidSolidarit1
13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”
GeoCK @GeoEduOne
6K Followers 953 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Stephen Davis @PlanetEarth_HD
7K Followers 1K Following Former Footballer, Electronic Engineer, Content Creator #LFC fan #longcovid
Billy Hanlon @bhanlon15
11K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Dave. @UnwantedGuest3
6K Followers 1K Following Sport, music, family, fitness, music, nature. English/British/European. Warning; swearing #LongCovid since March 2020. #countlongcovid #FBLC
T@Sunset @TeiaSunset
6K Followers 6K Following #LongCovid 2003/2020 / Cancer survivor. 🎵🎶Humming music, writing under trees watching sunsets.🏝️😻
Jon Wright 🇬🇧�.. @Wright1983Jon
1K Followers 1K Following Rail Worker, Engineering Geologist, Former Cyclist, Labour Party Member, #DRFC Fan. Proud to be British.
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
David Steadson #NAFO .. @DavidSteadson
16K Followers 3K Following Digital Health Entrepreneur. Public health epidemiologist and former Uni researcher. #plantpowered 🌱 #kyokushin 🥋 #longcovid (mostly recovered)
David Christopher �.. @MLS_Dave
54K Followers 18K Following #FreePalestine #DoNoHarm #CancerAwareness #EndTheDuopoly We only have one planet 🌍🐋🐅🦏🦋🌳 🚫 War 🚫 Hate
Dr Alison Twycross RN @alitwy
6K Followers 4K Following Chair: @SupportingHH_UK. Hon Assoc Prof: @UniBham_Nursing. EiC:@EBNursingBMJ. FNF scholar. Views expressed are mine & do not necessarily reflect those of SHH-UK
Gracie-rose Mogan @RoseMogan90247
70 Followers 5K Following
Supporting Healthcare.. @SupportingHH_UK
682 Followers 706 Following UK charity set up to advocate for and support UK healthcare workers living with Long Covid. Email: [email protected]
Isla-rose Dalluge @DallugeIsl25479
95 Followers 5K Following
Tiffany Mariah @Gregg59120588
269 Followers 793 Following Second account 👤 lover to my best friend little doggy cooper🐕🦺. lover of sports and fun type.💕🌹 📞07467227532
Vi @Vi11570814
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Emily Dokken @emi_dok
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Erin Miller, PT, DPT @erinmillerpt
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Sari Hryniewich @Hryniewich72212
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megalucario @Marie98157
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Magnolia Mae Pickwhee.. @MaggiePickwheel
88 Followers 773 Following Riding the rails, cruising the seas and taking it day by day with Long COVID
Jonas Frost @soziojonas
77 Followers 729 Following Graduate student of sociology at @UniLeipzig Interests in #RationalChoice #stats #rprogramming #webscraping #networkanalysis #casualinference
Karon Corallo @CoralloKar84253
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Sherry 🌻 @SJSBuchanan
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Bianca Bruins @bianca_bruins
294 Followers 844 Following BCO-er (nee, geen Bron- en Contactonderzoek🤣, maar Beleid, Communicatie en Organisatie). Getrouwd, moeder van 4 bloedjes🥰. ❤ Geocaching❤. Voor minder Covid.
Elen Dask @ElenDask
48 Followers 550 Following
Maggie Thatch @MaggieThatch2
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Tracy M @TeaLeighMann
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María @maria_p_14
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Katha J @KathaJ2
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Helge Sverre Risan @HelgeRisan
161 Followers 465 Following Vitebegjærlig og er veldig glad i ting jeg ikke kan. Kan tenkes at jeg har plukket opp ett og annet på veien :) Familieterapeut. ME
Andrew J Gall, MPH �.. @andrewjgall
265 Followers 2K Following Racism is a public health crisis. Gun violence is a public health crisis. Migrant deaths are a public health crisis. COVID-19 is still a raging pandemic.
Klaas Jan MV @klaasjanmv
3 Followers 58 Following
Xeljanz Tofacitinib @xeljanz5mg
239 Followers 2K Following we export medicine from Bangladesh. #Semaglutide #Generic_medicine #Antiviral, #Anti_cancer, #Paxlovid #Medicine_exporter #Xeljanz5mg WhatsApp :+8801929123476
Tashi Deleg @Tashi_Deleg1
192 Followers 1K Following The difference between the impossible and the possible lies within the person's determination. Acceptance, Gratitude, Compassion, Self Compassion, Kindness...
Lorna @lornadownton
464 Followers 2K Following Mum to a young adult with Williams Syndrome, also interested in Elderly Care, Humanity and Politics.
LookingForward @patriotovrparty
1K Followers 2K Following Constitutional-based Conservative, Country over Party, United Patriot fully engaged in our Cold Civil War & Long Covid
Danielle Vallone @DanielleV1967
426 Followers 709 Following BS in Mathematics, MS in Human Nutrition, devoted wife & mother, born in Brooklyn, atheist, pro choice, vote blue. 🇺🇸🇮🇹🇬🇷🇬🇧
cece @sasseliaa_
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Joan @JoanH1999
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Barbara Hodge @Barbara06182293
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ShePersisted @ShePersisted25
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Callirhoé @Callirhoe_
2K Followers 5K Following Activiste et malade chronique/Parisian chronically ill activist. Santé, antivalidisme, énergie et climat. #EDS. Jane Austen, fantasy, SF fan and reader. She/her
Stefan @stefan_07_
54 Followers 217 Following
Laura Boné @2laurabone
287 Followers 883 Following Electric Vehicle Industry /Fighting ME/CFS & Long Covid
Heidi Bilas @heidibil.. @BilasHeidi
3K Followers 4K Following RN, MSc(A) Views are mine alone & don’t reflect institutions.🌻💙💛 #Ukraine #NAFO Donate/support: @U24_gov_ua @ukraineaidops
Anne M Carley @amcarley
386 Followers 1K Following Write. Rest. Repeat. Author or FLOAT: Becoming Unstuck for Writers & FLOAT Cards for Writers. I write sentences & music. I help writers write. She/her/they
Esekiel @Eskil_utan_d
278 Followers 2K Following Autistisk og autodidaktisk stueorgelentusiast, sosialliberal kristenkommunist, tørrlagt alkis, stolt narkis, trøtt dommedagsprofet. #LongCovid #Narkotwitter
Melissa @HoneyBeeCloud9
533 Followers 365 Following Medical College Librarian 📚Singer in a little London band
john mckenna @johnnymac0033
118 Followers 377 Following
Chris Overmyer @ChrisOvermyerNV
148 Followers 580 Following UNR and Texas A&M alum. MS, LAT, ATC, CSCS. Heading back to school for counseling/counseling psych. Also here for some #LongCovid/ME/CFS research/tips!
Sheryl Karvonen @karvonen_sheryl
16 Followers 232 Following
medium value woman @la_llor0na
480 Followers 529 Following i’m not that dumb i just have dumb luck ! (she/her)
Critically Argumentat.. @noquakquak
398 Followers 374 Following Former DeepTech SciComm founder, journalist and sustainability master’s student | Fighting the undercomplex | #LongCovid #POTS #MECFS #MCAS #ADHS| Born @ 354ppm
Éan Dearg @RedBird10003956
486 Followers 2K Following Prevention is better than harm. Masks in healthcare. Mandatory Ventilation Standards. Look out for each other. #CovidIsAirborne #ReinfectionIsHarmful
Nina Wildflower @Ninawildflower
8K Followers 8K Following Music fan. UK science teacher in an FFP3 mask. The right mask makes it easy to sing, perform, teach, or speak in public. #N95 #FFP2 #FFP3 #BringBackMasks
MBlue89 @Raefisher89
14 Followers 44 Following
Gez Medinger @gezmedinger
20K Followers 722 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Katty Kay @KattyKay_
151K Followers 2K Following TV journalist. Co-author 4 NYT bestsellers. US Special Correspondent BBC Studios. Contributor MSNBC. ⬇️📖 The Power Code w/ Claire Shipman - June 13 🔗⬇️
danawhite @danawhite
6.6M Followers 2K Following #UFCVegas91: Nicolau vs Perez || Saturday April 27 || LIVE & FREE on @ESPN
Edward Kessler @kessler_ed
3K Followers 1K Following Founder @Woolf_Institute; Fellow @StEdmundsCam; Chair @CIRefugeesuk; interested in relationship between religion and society; interfaith relations; refugees
PHOSP-COVID study @PHOSP_COVID
2K Followers 269 Following Multi-centre trial investigating long term health impacts of #COVID19 on hospitalised patients. Urgent public health research funded by @UKRI_news/@NIHRresearch
Katharine Birbalsingh @Miss_Snuffy
159K Followers 2K Following Britain’s Strictest Headmistress. Michaela School. Small c conservative values. Truth. Race. Personal Responsibility. Strength and Honour.✊🏾
Freya Sawbridge @freya_sawbridge
543 Followers 232 Following Law grad, writer and advocate | co-founder @lcsaotearoa | 📍 London
Joseph Parker @joeboxerparker
139K Followers 291 Following Professional Heavyweight Boxer Proudly backed by Veve and Manuka Doctor
Claudia Efstathiou @ClaudEfstathiou
336 Followers 276 Following Postdoc researcher investigating the mechanisms of Long Covid @imperialcollege
Long Covid Moonshot @LCMoonshot
3K Followers 317 Following 18 million Americans suffering with Long Covid, and ZERO treatments. We need a moonshot for Long Covid research funding! Press: [email protected]
Vinod Khosla @vkhosla
632K Followers 575 Following entrepreneurship zealot, grounded technology possibilist, believer in the power of ideas, passionate about sustainability & impact
Chris Palmer, MD @ChrisPalmerMD
93K Followers 740 Following Harvard #psychiatrist working at the interface of #metabolism and #mentalhealth. Author of Brain Energy, available now! https://t.co/bZ0wRxj2Yk.
Peter W 🇺🇦 @mediumwhite
623 Followers 746 Following Europhile 🏳️🌈, lived in 🇬🇧🇮🇹🇨🇼🇧🇪 🇧🇩. Dedicated follower of science. Former textile engineer, now a Mgmt consultant. I believe in believing people.
Richard Hamermesh @RHamermesh
431 Followers 142 Following Senior Fellow, Professor of Management Practice, Retired, and Faculty Co-Chair of Kraft Precision Medicine Accelerator, @HarvardHBS, @HBSHealth
Peter Singer @PeterSinger
125K Followers 183 Following Author: The Buddhist and the Ethicist, Animal Liberation Now, Ethics in the Real World, The Most Good You Can Do, The Life You Can Save.
Sarah Zhang @sarahzhang
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John Burn-Murdoch @jburnmurdoch
491K Followers 6K Following Columnist and chief data reporter @FinancialTimes | Stories, stats & scatterplots | Senior fellow @LSEdataScience | [email protected]
عبدالله بن �.. @KingAbdullahII
2.4M Followers 2 Following عبدالله بن الحسين، ملك المملكة الأردنية الهاشمية Abdullah bin Al Hussein, King of Jordan
Louise Perry @Louise_m_perry
40K Followers 2K Following "ludicrous crackpot" and host of @maiden_podcast I make good use of the notification filters so I might not see your reply
WE&ME Foundation @weandmecfs
3K Followers 50 Following WE&ME Foundation funds and supports collaborative research projects to combat #MECFS and related disorders.
Emma Donohoe @EmmaDonohoe3
437 Followers 213 Following MPhil Graduate University of Cambridge | Anthropologist | Presenter | BBC M.E. and ME, BBC Disabilitease Owning The Stage
Tim Ferriss @tferriss
2.0M Followers 3K Following Author of 5 #1 NYT/WSJ bestsellers, early-stage investor (https://t.co/cpVCd1q9Hk), Tim Ferriss Show podcast (1B+ downloads), founder of https://t.co/9bQjti0XgE
Hunter Hammonds @_hunterhammonds
23K Followers 142 Following CEO @ Assembly. We own @talentlanded, @weareoffmenu, @sayheyfriends, @useviralcuts, @trybitesized etc.
Philosophy Break @philosophybreak
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10K Followers 1K Following We are an advocacy and communications organisation. Our content platform cultivates fresh thinking and new ideas to reduce drug related harm.
Oonagh Cousins @oonagh_cousins
1K Followers 557 Following Visiting Research Fellow at Oxford University. Studying Long Covid. Ambassador for charity @long_covid BBC piece:
Bret Weinstein @BretWeinstein
1.0M Followers 1K Following DarkHorse. Prof in Exile. Trade-Offs. Telomeres, senescence & cancer. Reluctant Radical. Game~B, Brownstone Fellow. Emojis imply irony. Opinions, not my own 🤔
Joe Henrich @JoHenrich
22K Followers 590 Following Harvard Professor in The Dept. of Human Evolutionary Biology. Books: The Secret of Our Success & The WEIRDest People in World. Tweets r my own.
Rory Stewart @RoryStewartUK
565K Followers 1K Following Brady-Johnson Professor Grand Strategy, Jackson/Yale. Author PoliticsOnTheEdge. @Restispolitics podcast w Alastair Campbell. Senior Adviser @GiveDirectly.
Alex O'Connor @CosmicSkeptic
71K Followers 79 Following "supposed intellectual powewrhouse" (sic) - Peter Hitchens. "Unusually Penetrating" - Richard Dawkins. Host: Within Reason Podcast
Richard Dawkins @RichardDawkins
3.0M Followers 359 Following UK biologist & writer. Richard Dawkins Foundation donor: https://t.co/rZZdjPoMUe. For Details about the Upcoming Tour: https://t.co/sSo5FL6CWb
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Matt Walker @sleepdiplomat
195K Followers 84 Following Professor of Neuroscience at UC Berkeley • Author: Why We Sleep • The Matt Walker Podcast • https://t.co/gqVve1DH83
Katya Kowalski @KowalskiKatya
2K Followers 2K Following Head of Operations @VoltefaceHub // Secretariat @APPG_MedCan // Fellow @theRSAorg // Alumni @UniofBath
Harry @itsharryboby
134 Followers 355 Following Building https://t.co/STME0z6YFl & https://t.co/O22FxLIXO4 | Sharing what I learn along the way👋
Rory McIlroy @McIlroyRory
3.2M Followers 469 Following I hit a little white ball around a field sometimes
Ross Edgley @RossEdgley
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Ror Preston @RorPreston
2K Followers 553 Following Lead Data Scientist @visible_health 💙 | Organiser @wecrunchme 🗺️ | #MECFS since 2018 | Own Opinions
max homa @Maxhoma
662K Followers 840 Following Unverified professional golfer // Instagram: max.homa
Dr Tam @SportieDoc
12K Followers 3K Following MD Longevity and Integrative Medicine Former Pro Triathlete and Ironman Champ. Adventurer, Forever Curious. Long Covid 'survivor 'and advocate
Harry Leeming @HarryLeeming
5K Followers 831 Following Founder of @visible_health | #MECFS #LongCovid | Building for invisible illness
Yoni Ashar @YoniAshar
2K Followers 287 Following I study #chronicpain #somatics #brain #emotion #psychedelics. Clinical psychologist, neuroscientist, faculty at CU Anschutz. Father of 3. It takes a village
Michael Ströck @mstroeck
1K Followers 1K Following Early stage investor | Co-founder at @weandmecfs, raising awareness, funds and support for #MECFS and fighting for those who can't anymore.
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Adam Grant @AdamMGrant
852K Followers 965 Following Organizational psychologist @Wharton. #1 NYT bestsellers: HIDDEN POTENTIAL, THINK AGAIN. Podcasts: Re:Thinking & WorkLife @TEDTalks. Diver.
Alex Hormozi @AlexHormozi
625K Followers 108 Following Day Job: I invest and scale companies at https://t.co/gQN7OehYd2 | Co-Owner, Skool. Side Hustle: I make content showing how we do it. Grab my new book here ⬇️
Ali Abdaal @AliAbdaal
347K Followers 2K Following 👨⚕️ Doctor-turned-Entrepreneur + Productivity Expert + YouTuber (5M Subs) ✍️ I share evidence-based strategies and tools to help you build a life you love 🚀We are excited to show you the first video of our campaign. This video will air on Austrian television over the next few weeks. Please help us raise awareness by sharing this tweet. More info: weandmecfs.org/awareness Donations help us liberate those affected. 🙏 #MECFS 💙
You’ve asked me several questions on this thread and accused me of avoiding answering, so here goes. I believe a woman is a human being who belongs to the sex class that produces large gametes. It’s irrelevant whether or not her gametes have ever been fertilised, whether or not…
@HarryBoby4 It’s making diagnosis difficult Not everything is lc. However asking patients directly what has happened after your infections it’s a wide range of problems some mild some severe and dozens of my people have issues post covid.
@HarryBoby4 Good point about overdiagnosing LC, that definitely will mess up any quantitative insights drawn. But also, we don't have an LC biomarker yet, so we cannot reliably distinguish LC from non-LC algorithmically. But of course, if Microclots etc. are present, it's immediate LC.
@CarrieMoonbeams @HarryBoby4 Absolutely! Ozone therapy, HBOT, infared sauna, parasite & detox protocols, a brimhall certified practitioner (see website for list), EDTA & binders, removing mold from diet & environment, organic whole food diet, Counterstrain (this was huge) & IV therapy (NAD, glutathione, MC)
🤞🙏
Why I'm confident Long Covid will be solved in the next 5 years. COVID is the most studied virus ever → we already know so much. We live in a digital age → HIV research didn't have this luxury. >65 million people affected → All have 1 goal in mind. We can beat it.
@HarryBoby4 Thank you for this moment of hope! I really want this to be true!
I certainly hope so! This is the attitude that solves problems. 🌠
Why I'm confident Long Covid will be solved in the next 5 years. COVID is the most studied virus ever → we already know so much. We live in a digital age → HIV research didn't have this luxury. >65 million people affected → All have 1 goal in mind. We can beat it.
@HarryBoby4 Exactly that. We are all humans and supporting eachother should be the first priority. I completely understand men feeling like they can't care for their family & how it makes them feel due to the severity of the illness. I look forward to discussing this more.
@HarryBoby4 Why has everything got to be women vs men ? How about we support eachother & quit the competition of who is more ill. Yes I'm a woman but i want men to to feel safe to be open about their suffering without figures being thrown around.
We've just started a new @wecrunchme database on Philanthropy & Foundations that have donated to #MECFS, #LongCovid and other #IACC 💸 We hope this will be useful when labs go for funding - and what to be aware which private sources are out there! crunchme.notion.site/Private-Philan…
‘The triumph of Katharine Birbalsingh.’ My column in this week’s @spectator spectator.co.uk/article/the-tr…
Fantastic column in the @spectator by @DouglasKMurray
My statement regarding the verdict on our ban of prayer rituals at Michaela.
Muslim student loses legal challenge against Michaela Community School's 'prayer ban' Read more 🔗 news.sky.com/story/muslim-s…
Impressive work from people with Parkinson’s. They have gone to govt with specific policy requests. This, I think, was a failing in the ME / DHSC work - the charities didn’t have a clear view of what was wanted… theguardian.com/society/2024/a…
I am a person with #MECFS 💙 And in my work - with @visible_health, @wecrunchme & other advocacy - I am fighting just as hard for people with #LongCovid as with ME. Along with other infection-associated chronic illness. It is the right think to do, both practically - to…
I want you back for good Dillian Whyte 🥊 If not, I’m moving on ✌🏼 🎥🎞️: @kerryrusselltv
Customer Journey mapping in #MECFS and #longcovid In our presentation, Harry & I talked about the importance of Search Engine Optimisation. I attach UK google results for 'Chronic Fatigue Syndrome' and 'ME'. ME charities perform badly on CFS search, but well for 'ME'.
Who Funds Research? | Why The Charity Sector is Vital For Long Covid & ME/CFS youtu.be/W3Ji0JTHVhs?si…
“Who Funds Research? Why The Charity Sector is Vital For Long Covid & ME/CFS” (March 25, 2024) @HarryBoby4 & @mediumwhite youtu.be/W3Ji0JTHVhs?si… #LongCovid #MEcfs #PwME 1/
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