Jennifer Brea🦒 @jenbrea
Filmmaker @4mmfilm @unrestfilm @longroadhomedoc. @MEActNet co-founder. Dropped out Harvard Poli Sci/Stats Ph.D after virus. #MECFS, #longCOVID linktr.ee/jenbrea Los Angeles, CA Joined July 2008-
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This is great. I was in the moderate to very severe A category for much of my illness
This is great. I was in the moderate to very severe A category for much of my illness
More and more #longcovid patients, like #mecfs patients, are learning they have a connective tissue / structural problem that is most likely contributing to their neurological symptoms ⬇️⬇️⬇️
More and more #longcovid patients, like #mecfs patients, are learning they have a connective tissue / structural problem that is most likely contributing to their neurological symptoms ⬇️⬇️⬇️
To those who tried Truvada, how long until the side effects went away? It’s been 2 weeks - the nausea has decreased a lot but still feel at a generally lower baseline, much more susceptible to PEM, all the immune symptoms very prevalent, worse POTS & light sensitivity. #longcovid
Today we need to stand (or sit or lay down in my case) in solidarity with Millie, who is in hospital with very severe M.E.. She is being kept against her will, her M.E. deteriorating every day. Hospitals aren't equipped to deal with severe M.E. #BringMillieHome #DontLetMEDie
Bernie Sanders (@SenSanders) has released a #LongCovid Moonshot Legislative Proposal calling for $10b in research funding!! This is thanks to so much advocacy from patients & allies 💓 Immense gratitude to @LisaAMcCorkell @patientled @LCMoonshot @MichaelPelusoMD & the community!
Bernie Sanders (@SenSanders) has released a #LongCovid Moonshot Legislative Proposal calling for $10b in research funding!! This is thanks to so much advocacy from patients & allies 💓 Immense gratitude to @LisaAMcCorkell @patientled @LCMoonshot @MichaelPelusoMD & the community!
Starting to see a pattern in patients who undergo jugular decompressions and their #POTS symptoms are greatly reduced or go away all together (self reported, of course!) 😅
New Severity Scale for ME/CFS I wrote this new severity scale for ME/CFS about 2 years ago. I really wanted to express how severe the illness can actually get which is not at all reflected in our current mild-moderate-severe-v.severe scale. And I wanted to make it more…
The first #MillionsMissing #TeachMETreatME event happens tomorrow! UNC Family Medicine @uncfammed hosts an *internal* Grand Rounds first thing in the morning on Wednesday, April 12th. More @MEActNet #MillionsMissong24 events coming up in April & May
The first #MillionsMissing #TeachMETreatME event happens tomorrow! UNC Family Medicine @uncfammed hosts an *internal* Grand Rounds first thing in the morning on Wednesday, April 12th. More @MEActNet #MillionsMissong24 events coming up in April & May
Truly could not be more excited for this 😭 Thank you @SenSanders for your leadership, thank you @MichaelPelusoMD for calling for this with me in our Nature comment, and thank you @LCMoonshot & entire #LongCovid community for getting us to this point! sanders.senate.gov/press-releases…
Truly could not be more excited for this 😭 Thank you @SenSanders for your leadership, thank you @MichaelPelusoMD for calling for this with me in our Nature comment, and thank you @LCMoonshot & entire #LongCovid community for getting us to this point! sanders.senate.gov/press-releases…
Incredible stuff — so much gratitude to @LisaAMcCorkell & @MichaelPelusoMD for inspiring the community around this #LongCovidMoonshot last fall — and to @BernieSanders for once again proving to have unparalleled moral clarity, courage & vision that leads this country forward.
Incredible stuff — so much gratitude to @LisaAMcCorkell & @MichaelPelusoMD for inspiring the community around this #LongCovidMoonshot last fall — and to @BernieSanders for once again proving to have unparalleled moral clarity, courage & vision that leads this country forward.
Folks in #MECFS community are feeling left out of the #LongCovid Moon Shot legislative proposal after being neglected for 40+ years. You can provide feedback on the proposal by 4/23/24 by emailing [email protected]. More info: sanders.senate.gov/wp-content/upl…
In an appointment with a *different* interventional radiologist, they said “I have had a number of patients thinking they had extreme depression only to learn they actually needed a stent or vascular surgery to improve brain blood flow” 😐
In an appointment with a *different* interventional radiologist, they said “I have had a number of patients thinking they had extreme depression only to learn they actually needed a stent or vascular surgery to improve brain blood flow” 😐
I might be wrong but these Glu and Asp are released in post-acute injury conditions. That points to an injury mechanism.
I might be wrong but these Glu and Asp are released in post-acute injury conditions. That points to an injury mechanism.
Anyone with ME needing an NG tube, so important to rule out MCAS, MALS, Nutcracker syndrome, CCI, and other conditions that can cause gastroparesis.
The BBB is disrupted in long Covid and explains a lot of what we see in clinic as well as the progression of other neurological symptoms. Working to repair and regenerate should be a major focus. nature.com/articles/s4159…
With #MEcfs it's dangerous to go to the hospital. But Millie had no choice. She needed life saving help. But she is treated by doctors who have no clue about her illness + refuse to listen to experts, making her sicker in horrible ways 💔 #BringMillieHome #DontLetMEDie
It shouldn't be a postcode lottery to whether you receive appropriate treatment, as to whether a NG tube can be inserted, which is literally a matter or life and death. #BringMillieHome #DontLetMEDie
It shouldn't be a postcode lottery to whether you receive appropriate treatment, as to whether a NG tube can be inserted, which is literally a matter or life and death. #BringMillieHome #DontLetMEDie
An important new study published in @TheLancetInfDis found SARS-CoV-2 virus proteins persisting in blood in about 25% of people who had COVID up to 14 months prior. polybio.org/covid-19-virus… Comparison blood drawn pre-COVID showed only 2% assay positivity.
It has been proven that Graded Exercise Therapy is not a successful "treatment". It's been proven that M.E. is a neurological condition. So why is Millie being treated like her condition is psychiatric? @gmcuk @rcpsych @RCPhysicians #BringMillieHome #DonntLetMEDie
New study out from the amazing @MichaelPelusoMD et al! They looked at both: a) whether viral antigen persists after COVID infection (it does, in 25% of people!!) b) which tests were more likely to pick this up 1/ #LongCovid
New study out from the amazing @MichaelPelusoMD et al! They looked at both: a) whether viral antigen persists after COVID infection (it does, in 25% of people!!) b) which tests were more likely to pick this up 1/ #LongCovid
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Anil van der Zee © @AnilvanderZee
9K Followers 823 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Whitney Dafoe @DafoeWhitney
10K Followers 38 Following Severe ME/CFS patient and advocate. Photographer, filmmaker, artist, creative. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Martin Hippe @pausedME
7K Followers 471 Following East Westphalia by Nature ⎮Lawyer by Profession | #Musikrecht | #MECFS | @Mirame_Arts | No medical advice!
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Billy Hanlon @bhanlon15
11K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Sten Helmfrid 🇺�.. @StenHelmfrid
7K Followers 205 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
SUREFIREBETS @SUREFIREBETS25
3 Followers 175 Following Horse racing tips sent out by email or on twitter over 20 years experience. Subscribe free at https://t.co/3VueKVeraO
flylu54905 @flylu54905
778 Followers 502 Following #LongCovid #コロナ後遺症 mecfs？2022.12.26発症・長期微熱（10ヶ月）・視覚の揺れ・ふらつき・時間感覚の分断・PEM・運動不耐・座位／起立不耐・POTS・ブレインフォグ・呼吸苦・頭痛・脳の炎症感・睡眠時無呼吸・ミオクローヌス・抑うつ／PS7→6→5→4／いいねは応援／ד֝ժ՝ᤊʓも⃝ん⃝！
Paylz @paylzdig
101 Followers 2K Following
Alexandra Alvida @Aelvidra
35 Followers 119 Following very severe ME CCI EDS mcas, insta: @alekpalek Gofundme: https://t.co/op7gGeiInu ⚠️please help if you can⚠️
Paxlovid For Sale @TreatLongCovid1
727 Followers 5K Following Medicine exporter.#Nirmatrelvir #Treatmentofcovid19 #Anticancer #Ritonavir #Paxlovid #Molnupiravir #Baricitinib #Olumiant #LongCovid whatsapp: +8801929123476
LongCovid Stories @LonghaulStories
51 Followers 24 Following
h3kt0r_ @h3kt0r_
95 Followers 2K Following h3kt0r_ is no Trojan ... At the moment doing cyber things in IT and OT. Other stuff is Wetware Hacking and Big Data 🔮🔬mostly in medical research.
Thomas F. Varley @ThosVarley
3K Followers 924 Following Dual PhD: Complex Systems & Neuroscience. Postdoc @ the University of Vermont. Information theory, synergy, and brains. Connoisseur of collapse phenomena.
John Muir @johnmuir@a.. @johnamuir
876 Followers 1K Following Somebody who loves good science, but hates social injustice, environmental vandalism and government inaction.
not here @legitg00blin
160 Followers 962 Following
Caitlin Hornick @Caitlin5118
0 Followers 11 Following
WhiteAngels @CardosoPedroMi1
61 Followers 711 Following
Liuna F @liunafek
63 Followers 60 Following @harvard MBA '23. Advocate. Investor. Here for the health policy news. Views are my own.
MyVaccident @MyVaccident
36 Followers 166 Following #VaxInjured #VaccineInjuries Dx: Post Vaccination Syndrome #PVS #Pfizer Lot #EW0169 &#ER8736. Disabled American ♿️ #Dysautonomia #Polyneuropathy
Broccoli & Burpees (s.. @BroccoliBurpees
132 Followers 171 Following Chronically ill mom of 3 awesome teenagers with a background in health/nutrition. #hEDS #POTS #MCAS
miska knapek - @miska.. @miskaknapek
3K Followers 5K Following local illusionist / visual data interface designer / open society / knowledge / data enthusiast | also on mastodon: @[email protected]
erin Davis @erinDavis40
27 Followers 136 Following Hello everyone! My Name is Erin Davis from Albuquerque New Mexico and I love the singer @donnyosmond and also I'm a Yorkie puppy mom to Buttons and Bo!
Matt McGorry @MattMcGorry
372K Followers 1K Following Maker of feels and procurer of LOLs. Activist. Bennett on @OITNB and Asher on @HowToGetAwayABC Instagram: @MattMcGorry
Elon Musk @Elonmusk5420
71 Followers 260 Following
Robert Mateo @robertmateo_01
193 Followers 726 Following Never you depends on anybody for anything because they may failed you when you needed them most but God never disappoint you All hope on God and not man!!
OMFCharityMugs @BFWoodburn
8 Followers 156 Following Severe ME/CFS patient since 2006, fundraising for the Open Medicine Foundation, all proceeds from all sales go directly to OMF, Worldwide shipping🩵
Evey Mengelkoch @EMengelkoch
46 Followers 161 Following
Yann @yann_mecfs
83 Followers 52 Following Very severe ME/CFS (Long Covid) since 1 year. Not always able to use phone. Have not been able to sit since August. #LongCovidMoonshot
Jade @Jade83576048
1 Followers 49 Following
ColleenJi @ColleenJi456
1K Followers 2K Following
Texas Meg @meg_texas
159 Followers 176 Following Gerontologist who was a microbiologist years ago. Caught up on a few decades of immunology
kahle @cowboy4cowboy
27 Followers 71 Following
Annie McCasland-Pexto.. @anniesorganics
1K Followers 1K Following Author. Podcaster. Craniosacral Therapist. Check out my new podcast "the baby in the bathwater" and my book "Invisible Work: An Ex-Lawyer's Guide to Self-Care.
Ami Hallgarth @AHJewellery1
418 Followers 1K Following I make beautiful handmade sterling silver jewellery, based in West Yorkshire, England.
Darren Schultz @DarrenSchultz
63 Followers 3K Following
Katie Jane @sailornapqueen
4 Followers 38 Following I am a content creator. I create problems for myself.
Jess @cafedisco0o
5 Followers 71 Following
Nancy Scagnelli @NancyS55312
3 Followers 24 Following
Perpetually Flummoxed @Flummoxed_Aut
2K Followers 5K Following Progressive autistic wordsmith. So tired of willful ignorance. I value science, love, the social safety net, and freedom from religion.
Claire Hirst @claire_hir24347
18 Followers 106 Following Raising awareness and charting my journey with ME/CFS
Melba Clark @MelbaClark10
2K Followers 3K Following Pay Close Attention to: Words vs Behaviors!! Love to Learn. Empath. Fiercely Independent Thinker. Alerting others about the dangers of malignant narcissism.
Maz 💙 @Mazza_Mac22
178 Followers 2K Following
CDC gunna kill us @NaClyWitch
336 Followers 2K Following she/her || iconic chronic || covid hate account (& the CDC) || cystic fibrosis
Laura Patterson @LitFicLaura
223 Followers 291 Following coding, literature, and tea. #100Devs #WomenWhoCode #A11Y
CA CC @Chloepuppies123
209 Followers 1K Following
Sarah Betts @WromanticHistry
1K Followers 3K Following PhD student @YorkHistoryDept and @IPUPYORK researching memories and Public History of the English Civil War (Royalist Reputations) and Monarchy.
Jennifer S @Jennife00193871
0 Followers 19 Following
Monique Botha is actu.. @DrMBotha
11K Followers 1K Following ECR community psychologist focusing on dehumanization and objectification of minority groups in science. Tweets my own.
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Anil van der Zee © @AnilvanderZee
9K Followers 823 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Whitney Dafoe @DafoeWhitney
10K Followers 38 Following Severe ME/CFS patient and advocate. Photographer, filmmaker, artist, creative. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Tom Kindlon @TomKindlon
14K Followers 576 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
#MEAction Network @MEActNet
20K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Gez Medinger @gezmedinger
20K Followers 722 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Julie Rehmeyer @julierehmeyer
8K Followers 1K Following Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. NYT; WashPost; Discover; Slate; Stat News… She/her.
Michael VanElzakker @MBVanElzakker
10K Followers 290 Following Neuroscience researcher @MGHMartinos / @HarvardMed and @PolyBioRF, researching #MEcfs, #LongCOVID, & #PTSD. (all opinions are my own)
Patient-Led Research .. @patientled
27K Followers 612 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
Open Medicine Foundat.. @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
derek guy @dieworkwear
798K Followers 964 Following Menswear writer. Editor at @putthison. Creator of @RLGoesHard. Bylines at The New York Times, The Washington Post, The Financial Times, Esquire, and Mr. Porter
Neurologist Mom @NeurologistMom
5K Followers 262 Following A neurologist, M.D. a mother of a 15-year-old girl with severe neuroCOVID/ME/CFS who has been managing her daughter's treatment at home since October2022
Chimére L. Sweeney @chiluvs1
3K Followers 579 Following Black Woman #LongCovid Filmmaker. DONATE to my FILM! Disabled and Destined.
Dr. Jennifer Curtin @jencurtinmd
3K Followers 2K Following Physician. Entrepreneur. Nerd. 🍊YCW22. RTHM co-founder. Recovered ME/CFS. Treated infection assoc illness b4 Covid. Tweets/DMs are my own & not medical advice.
Alba Azola, MD @AzolaAlba
3K Followers 802 Following Assistant Professor @RehabHopkins and @HopkinsKids, Long COVID/Chronic Fatigue Clinic. Human, mother, physician, dancer, and scientist! My opinions are my own.
Rebecca Ryan @DrRebeccaRyan
1K Followers 1K Following Gastroenterologist & Hepatologist. Disorders of the Gut Brain Axis. Treating Long Covid, POTS, MCAS and hEDS.
Emily Johnson (is on .. @emily_rj
8K Followers 6K Following Digital journalism. Design, news/book edits, linguistics, data, tech. Medical + academic research. Disability in news consults. @the_dailydis. #CripTheVote
NotRecovered @Not_Recovered
6K Followers 205 Following We share the stories of people who have #NotRecovered #LongCovid | #MECFS | #PostVac We fight internationally for research, treatment and recognition.
Circleboom @circleboom
114K Followers 5K Following Boom your Social Circle! We create intuitive and easy-to-use social media products for brands, SMBs and users to grow and strengthen their social network.
Pulp Librarian @PulpLibrarian
163K Followers 4K Following Curator of the art, history and fiction of old dreams.
Karla Monterroso @karlitaliliana
16K Followers 4K Following “There is no normal. Just us, what we’ve been given, and what we do with it.”- Kamala Khan #WiseLatina 🇬🇹🇲🇽 PN: she/her/ella
Journey of Jenny the .. @JourneyofJtheG
64 Followers 65 Following Jenny the Giraffe is off on a journey to fundraise life-saving surgery for Jenny the Human (@stroopwaffle) https://t.co/7D3jFc9IOe
Stroopwaffle @Stroopwaffle
2K Followers 811 Following 37. Poet. Writer. Acutely ill and bedbound for 19 years (vEDS, severe ME, AAI & CCI). Love books+TV+films, sport, SFF, acting, Greek+Latin, Medicine, wildlife
Zeest Khan, MD @doctor_zeest
4K Followers 181 Following Physician, Executive Coach, and full-time Long Covid patient. Host of the podcast "Long Covid, MD".
AJ Leonardi, MBBS, Ph.. @fitterhappierAJ
107K Followers 5K Following Less than nothing. Former @riteaid cashier. Immunology aficionado (of my own ideas) 😷N95❤️🔥 Caremonger Hated by Infection-based immunity proponents Views own
Fuck Long Covid ❌ @fucklongcovid
5K Followers 3K Following exposed late january 2020, fucked up since march 2020. here to learn and make sense of what's happening inside us. longtime lurker. alt @cancellongcovid
Celine @healingfromlc
9K Followers 3K Following COVID in December 12022 HE | Bedridden with severe #LongCovid | Data scientist | Dutch
Jessica Ellis @baddestmamajama
69K Followers 3K Following Makes Movies. Writes with @ndsinnott. Will never pay for twitter.
Sam Ghali, M.D. @EM_RESUS
564K Followers 274 Following ER Doctor | Resuscitation | Airway | Cardiovascular Emergencies | ECGs | Emergency Radiology | Trauma | Critical Care | #FOAMed | Patient Advocate
Tim Hutton @TimHuttonAu
2K Followers 1K Following Part time teacher (by choice) | Occasional freelance writer | Full time sick/disabled person (ME/CFS) | Published in various places. Cis, but 🏳️⚧️ ally
Joshua Boaz Pribanic .. @JoshuaPribanic
4K Followers 3K Following Investigative Journalist, EIC Cofounder @PublicHerald host @newsCOUP Director 🏆 Triple Divide, TDREDACTED, INVISIBLE HAND, ANTIVIRALS NOW - follow @LongCovidAP
World Health Network @TheWHN
16K Followers 442 Following Bringing people, science, and compassion together to solve world problems and protect health. Let's #EndThisPandemic together.
LCAP (Long Covid Acti.. @LongCovidAP
3K Followers 139 Following LCAP is a united, diverse force of non-partisan individuals taking action to end the Long Covid crisis through awareness & government accountability.
Julia MV @julialmv
2K Followers 403 Following Let's increase health equity Now: @AllofUsResearch at @ScrippsRTI & #LongCovid patient-researcher @patientled Then: @RockefellerUniv & @nygenome
Sarah O'Connell @SarahOC_MECFS
4K Followers 4K Following ME #pwME patient 10 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
betsy ladyzhets 📊 @betsyladyzhets
5K Followers 1K Following editor/co-founder @thesicktimes & freelance science/health journalist | she/her/🏳️🌈 | @[email protected] & [email protected]
María Richardson @_diatoma
2K Followers 5K Following ES-EN. I write, I teach, I draw plants. Chronically ill en la Ciudad de México. #Renegade50 with #RemissionBiome. Ella/she/her.
Dianna Cowern @thephysicsgirl
214K Followers 2K Following Science Video Creator, Currently #LongCOVID, MIT Physics, Forbes 30u30 https://t.co/BT5fDLw3NO
4mm documentary film @4mmfilm
329 Followers 2 Following A new film by @jenbrea. #mecfs #EDS #pots #longcovid #mcas Website: https://t.co/oTQsefmKw5 Social: https://t.co/mRMnafntZn Coming 2026 (or 7).
The Frame @theframe
5K Followers 3K Following We’re that @kpcc show + podcast hosted by @jghorn. We cover creativity, the entertainment business, art, music and culture coming to you from LA to the world.
Olena ‘Olenka’ Sa.. @coco_chatel
3K Followers 1K Following Ukrainian-American. Theater nerd/former arts administrator. Left-ish Libertarian-ish. Life on pause due to #LongCOVID. Wife to @max_e_rodriguez
Phi @phi_psd
5K Followers 924 Following Australian/Greek/Cypriot nerdy visual designer, living in Berlin. 🇨🇾🇬🇷🇩🇪 end #prescribedharm #longcovid & #mecfs @berlinbuyers
Ritika Goel @RitikaGoelTO
20K Followers 3K Following South Asian woman. Family doctor and Activist. Immigrant and Settler. Mom of two. Tweets on health, politics & social justice.
Isabel Ramirez-Burnet.. @IsabelRamirezRD
3K Followers 1K Following NBC-HWC CEO @renegaderes & Todologa @remissionbiome patient-led, decentralized, human-centered research. #MECFS #longcovid #postinfectious #chronicillness
Karen Lubell @karenlubell
3K Followers 2K Following ME/CFS is a connective tissue disorder caused/worsened by a virus. Ppl w/ ME/CFS & EDS often suffer from Craniocervical Instability & Occult Tethered Cord.
Caroline Ströck @CarolineStroeck
725 Followers 114 Following marketing artist at Ströck • RINGANA ambassador • fundraising for @weandmecfs foundation • spreading awareness for #MECFS •
Harry Leeming @HarryLeeming
5K Followers 831 Following Founder of @visible_health | #MECFS #LongCovid | Building for invisible illness
Lisa McCorkell @LisaAMcCorkell
6K Followers 2K Following @patientled cofounder | #longcovid patient-researcher/advocate | disability justice policy nerd | MPP | she/her | natures 10 2022
Taietsarón:sere @tai_leclaire
5K Followers 2K Following 🎥#Sundance Film Director @headdressfilm 📺 TV Writer 🕸️ Former goth prince 🕷️ NDN Comedian 🪶 Mohawk + Mi’kmaq
Paris-Ortiz-Wines @ParisOrtizWines
5K Followers 600 Following Woman (she/her/ella); Environmentalist; Chingona 🌿 Global Director @StandUp4Nuclear
Good Energy Collectiv.. @GoodEnergyColl
3K Followers 689 Following Good Energy Collective is a policy research org. building the progressive case for advanced nuclear energy as part of the broader climate change agenda | rt!=e
Dr. Jessica R. Loveri.. @J_Lovering
10K Followers 1K Following Co-founder @GoodEnergyColl: progressive nuclear policy. Fellow @EnergyForGrowth. Senior Visiting Fellow @FastPathToZero. Follow: @[email protected]
Ted Nordhaus @TedNordhaus
12K Followers 316 Following Founder and Executive Director, The Breakthrough Institute. Co-author An Ecomodernist Manifesto
Idaho National Lab @INL
33K Followers 2K Following The nation's nuclear energy research laboratory. (RTs are not endorsements)
Oklo @oklo
11K Followers 43 Following Oklo’s mission is to provide clean, reliable, affordable energy through the deployment of next-generation fast fission technology and recycling nuclear waste.
@jenbrea 100%! With hEDS or weak connective tissue, organs can droop, compressing abdominal arteries and veins. I would also add May Thurner to your list, it is compression of the iliac vein. It often goes hand in hand with Nutcracker.
@jenbrea it was this one ☺️
“Millie has declined massively in hospital,” a member of her family said. “She is now unable to leave her bed at all & has recently said that she thinks she is dying & will not live another week.” my latest for @BylineTimes on Millie & severe ME bylinetimes.com/2024/03/19/a-r…
Oh, my goodness, now you're going to tweet a lot telling us what SEPTAD is! That will be a treat this Friday afternoon.
@tessfalor @Bettje37 @patientled @MEencyclopedia @jenbrea Live tweeting is hard! Thanks for doing it.
@jenbrea I’ve jokingly nick-named it #theinfinitad to cover all the variations 🤷🏽♀️
@jenbrea My doctor told me at my last appt that she strongly suspected ME and/or Long Covid. I’d started to think I had MS or something. But it clicked because I’d seen your documentary a few years ago…and it never left me. So hard to hear, but thankful she took me seriously. Thank you.
@jenbrea I feel long covid has opened the door to more research than we were seeing previously which is a positive. But in my mind this is all focused on those with a viral trigger. We still don’t know how or if there are other triggers such as neck trauma or toxins such as mould involved
@jenbrea I have covid induced ME so my hope is that we can continue to unite as a team for the biomarkers/treatments we deserve. Instead of “Long Covid” I say “Covid Induced ME” because Long Covid is so broad. I’d say most people on here though have ME from another virus or covid.
@jenbrea Access to medical treatment, livable amount of social security and accessible housing...
@jenbrea wanna add that your documentary helped some of my family members and loved ones take my illness more serious so thank you for all of your work <3 i know we don’t know each other but you’ve made a direct impact on my life and i appreciate you so much!
@jenbrea Hey Jen, I just saw a post from Jessica (Unrest) this am on FB. She is in a bad way, wearing neck pillow for support etc and I thought of you and the CCI.
@LJungslage2424 @jenbrea We won’t, there’s more trials now than ever. There’s more press than ever. There’s more scientists and doctors working on this than ever. It’s the first time the ME community has had some real hope imo. It will not be decades, but it may be a few years, maybe more.
@jenbrea Rough time but hanging in there. How are you? Good to see your tweet!
@jenbrea nice to see you're back again! hope you are doing well.
@jenbrea LCAP & volunteers put out a list for LC viral persistence on longcovidfacts.com w/ ANTIVIRALS NOW, a short film I released highlighting the direct action at the US Senate HELP hearing & calling for more urgent action in response to researchers in the film
My latest short film “ANTIVIRALS NOW” is about creating the OUTRAGE against gov negligence for allowing SARS2 persistence to spread unchecked & the empathy we must collectively feel to #ConfrontLongCovid & mobilize congress to fund novel antiviral research
"The trio (@ahandvanish, @WesElyMD, @exceedhergrasp1) along with other US investigators, designed a 550-person clinical trial of baricitinib as a potential treatment for #LongCovid. The trial has now been funded by the NIH and will start enrollment later this year."
@jenbrea x.com/robwust/status…
After a long wait, our longitudinal long COVID study is finally published in @NatureComms: nature.com/articles/s4146…. We find a skeletal muscle alterations in patients with #longcovid, which worsen with exercise. 1/n
@jenbrea Aw so good to see your face🥰. How are you doing?
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