Phoebe Boag @PhoebsBo
Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her. linktr.ee/phoebsbo Scotland Joined May 2013-
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With my usual GP being off work, and not knowing when she’ll return, I was considering seeing a local private GP in the meantime (only after determining their understanding of ME) but the prices… yikes. Not happening. #PwME
With my usual GP being off work, and not knowing when she’ll return, I was considering seeing a local private GP in the meantime (only after determining their understanding of ME) but the prices… yikes. Not happening. #PwME https://t.co/osocyXMaUz
@sarah_batty @BenClaimant I don’t view it as compensation. More like a requirement to be able to live some semblance of an independent life
This is the key paragraph in the PIP Green Paper ... they know people can't afford to live on UC or wages ... they don't want people to be able to use PIP to live, as undermines drive to exploit people as workers in their shitty insecure economy for the benefit of capital.
While lying on my couch, disabled by ME/CFS, I sometimes fantasize how my life would have been different if Simon Wessely had been a plumber.
She hugs me when she sleeps. 🥹 #CatsOnTwitter #CatsOfTwitter #Smorky
PLEASE SHARE The DWP consultation on PIP is out. The gov is trying to take away a vital benefit for so many disabled people Closes 22nd July gov.uk/government/con…
In a sea of depressing Tory posts, here’s a cute SmorkyFace. #CatsOfTwitter #CatsOnTwitter #Smorky #SmorkiesAgainstTories
Hmm? Announcing doing away with PIP on the same day parliament debates assisted dying? Do I see a theme?
Introducing legal euthanasia while withdrawing all support for Disabled people might seem sinister if you wanted to read stuff into it.
Being disabled in the UK is frightening
It would be nice to live in a society where providing sick and disabled people with a decent quality of life was considered a desirable political objective. #r4today
The whole point of benefits is to help disabled people live. Vouchers would limit where we spend our cash and “claiming back” would put us into even further debt. The tories want us dead
The whole point of benefits is to help disabled people live. Vouchers would limit where we spend our cash and “claiming back” would put us into even further debt. The tories want us dead
Good point. The neurologist I’ve seen was happy to prescribe me Erenumab, despite there being no diagnostic test for migraine, he just believed me. So why, when talking about my ME, did he tell me that if I didn’t already have a ME diagnosis, he’d diagnose me with a FND? #PwME
Good point. The neurologist I’ve seen was happy to prescribe me Erenumab, despite there being no diagnostic test for migraine, he just believed me. So why, when talking about my ME, did he tell me that if I didn’t already have a ME diagnosis, he’d diagnose me with a FND? #PwME
It's hard to describe how simultaneously quickly and slowly time passes by when so much of your day is spent having to focus on disability, symptom & pain management. Hours seem to pass so slowly, yet days seem to merge into one.
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwMEIt'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poetNaomi Harvey PhD #Wea.. @Naomi_D_Harvey
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5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/HimCarole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.Jo @cfs_jo
3K Followers 1K Following CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Also on Insta as JustJoHere and BlueSky as JustJoAdam @ABrokenBattery
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12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID AllyCrafty Miss @CraftyMissB
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3K Followers 5K Following ME MCAS Lyme.Still with humour.Satire Music.Dream of life without illness. Wanna ride my bike. Cat & Dog Botherer.YP Counsellor retired. Retweet not endorsementPaula Knight @Paula_JKnight
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194 Followers 1K Following Retired nurse, why take unnecessary risks, peace at all costs.Get On The Jabz 💧�.. @GetOnTheJabz
80 Followers 438 Following You wear a mask not just for yourself but for everyone around you.Elon Musk @EMusk84439
23 Followers 1K FollowingDoc Arbor, PsyD - @Dr.. @BlueGhost163
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280 Followers 3K Following Appalachian expat academic adjacent #environmentaljustice #disabilityjustice #COVIDisNotOver Caregiver to twin toddlers and/with #PwMEMookpixie ✨ @mookpixie
2K Followers 820 Following Mostly horizontal due to the unholy trinity of ME, PoTS, and FM. She/they.LA2LAGURL @La2Arceri
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387 Followers 677 Following Public health, science communication. ME/CFS, Long Covid. Global research gems. Nearby nature pics.Charlotte @CharlotteClarkW
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61 Followers 416 Following #ActuallyAutistic #pwME hooman bean. cat & dog parent. amateur bird watcher. invisible.Lynne Logan @sooty05
72 Followers 357 Following 🏴 🇫🇷 🇪🇺 French to English translator and proofreader. Scottish. Supporter of Scottish independence. European. Belongs to Glasgow. Misses Paris.Louise Fairbrother @Loufairb
368 Followers 1K Following A proud resident of Suffolk, its diverse voluntary sector & a first wave long covid warrior!Nå holder det vel @holder_det_vel
83 Followers 190 Following Tweets in english and norwegian. Iherb promo code for 5% off: XAW544.Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwMEIt'sME(Jaime) @exceedhergrasp1
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6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poetBhupesh K Prusty @BhupeshPrusty
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3K Followers 121 Following 100% crowdfunded LC & ME/CFS conference project. community-driven. independent. global.Kit Yates @Kit_Yates_Maths
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320K Followers 672 Following WCK immediately prepares & serves fresh, nourishing meals to communities impacted by natural disasters and during humanitarian crises. #ChefsForTheWorldJennifer Lee Rossman .. @JenLRossman
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46K Followers 224 Following The Autistic Self Advocacy Network is a 501(c)(3) nonprofit organization run by and for autistic people.Claire Jones @Claire145
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228 Followers 1K Following i like shakespeare, lipstick, buildings, books and binge-watching. bit of a mess. chronically ill with ME/CFS ✌🏼 fan of civil conversationGuardian Science @guardianscience
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15K Followers 8K Following Comedy. Producer of @2mbstudios. Old words in @reductress. Instructor at @improvboston. See me at @unioncomedyAbier @abierkhatib
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3K Followers 1K Following #LongCovid since jan’21 ♿️ - tweets with brain fog, so pls bear with me - 📣 tries to advocate @NietHersteld - eager to learn - she/her - tweets in 🇬🇧 & 🇳🇱Ellie Fry @iEllieFry
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670 Followers 650 FollowingRafa @UnfollowForUnf1
1K Followers 272 Following 🇧🇷in🇬🇧 || Family || Brazilian Jiu-jitsu || Fitness || Travelling || Guitar || Coding || Gaming || Currently on pause due to Long COVIDThat Eaton-Jones Fell.. @BarnabyEJ
3K Followers 4K Following Creative Director: @AUK_Studios/@ChinbeardBooks Producer/Director/Writer/Actor/Poet. Home studio equipped for voice work. @ISIRTA_Again/@laugheologists #pwMERhianna Pratchett �.. @rhipratchett
92K Followers 1K Following Writer & presenter - Mythical Creatures (BBC R4) Tiffany Aching’s Guide to Being a Witch, Lost Words, Tomb Raider, Overlord, Mirror's Edge, Crystal of Storms.Alicia Painter 🫒 (.. @AliArthPainter
2K Followers 5K Following MH service user, NHS public governor. Autistic, Dyspraxic, hEDS. Tea drinker with too many hobbies. Aspiring clinical researcher. *Opinions are my own.* 🇵🇸❄️ Jane (she/her).. @halfironmum
2K Followers 4K Following Broken Audhd mum of 3 Autistic kids. Lazy triathlete - half iron half jelly. Average ultra runner. Skins swimmer. Tofu eating wokerati. “A fierce presence”Fen, MD @FvRhijn
3K Followers 2K Following 💉*5 | MD w/ #ME due to #LongCovid | rheumatology resident | regenerative med | vascular inflammation | scleroderma | harpist | they/them 🌈 views are mine@sarah_batty @BenClaimant I don’t view it as compensation. More like a requirement to be able to live some semblance of an independent life
This is the key paragraph in the PIP Green Paper ... they know people can't afford to live on UC or wages ... they don't want people to be able to use PIP to live, as undermines drive to exploit people as workers in their shitty insecure economy for the benefit of capital.
While lying on my couch, disabled by ME/CFS, I sometimes fantasize how my life would have been different if Simon Wessely had been a plumber.
@PhoebsBo @Katty1962 @MelJStride Yes, probably more than eligible as it is quite hard to get
@PhoebsBo @MelJStride Stride is such a nasty piece of work. I can’t understand why he hasn’t been kicked out of government for all the lies he tells!
@MelJStride lied. People died. He’s moved on from #loancharge. He hasn’t moved on from lying
This is @MelJStride, the Secretary of State for Work and Pensions, in an interview for the BBC saying that PIP (Personal Independence Payment - a disability benefit) is worth thousands of pounds a month. This is incorrect. 1/4👇 #MelStride #PIP #Disability #ChronicIllness
@PhoebsBo @Katty1962 @MelJStride It also depends heavily on the assessor on the day. If they don’t personally understand the applicant’s illness, the scores/outcome don’t always reflect what is said or written or evidence from doctors. Why else are so many accepted on appeal rather than the assessor’s judgement
This is for every one of us who’ve had to go through the degrading process of PIP and are now terrified due to Tory plans to deny us the money we use to live on. #PIP #DisabilityTwitter
This is @MelJStride, the Secretary of State for Work and Pensions, in an interview for the BBC saying that PIP (Personal Independence Payment - a disability benefit) is worth thousands of pounds a month. This is incorrect. 1/4👇 #MelStride #PIP #Disability #ChronicIllness
@PhoebsBo @MelJStride @MelJStride is lying... living up to his nickname #Misleader of the House.. here are the official Government / #DWP PIP allowance figures. Not the thousands he would have you believe.. gov.uk/pip/how-much-y…
@PhoebsBo @MelJStride Mr Stride is just pointless, another MP with a complete lack of any realism and concern for the people he is meant to serve
@MelJStride @BBCNews can you please correct this, PIP is not worth £1,000's a month. This type of false information and rhetoric is harmful to those people with disabilities. I guess after the immigrants they had to go for the next group to blame.
This is @MelJStride, the Secretary of State for Work and Pensions, in an interview for the BBC saying that PIP (Personal Independence Payment - a disability benefit) is worth thousands of pounds a month. This is incorrect. 1/4👇 #MelStride #PIP #Disability #ChronicIllness
He obviously has not been on the non receiving end of having adaptations provided by their local council Disability facilities grants here are means tested Cost me £8K for the wetroom PIP is not £1000’s a month I was fit & active before the #CovidVaccines ruined my life!
This is @MelJStride, the Secretary of State for Work and Pensions, in an interview for the BBC saying that PIP (Personal Independence Payment - a disability benefit) is worth thousands of pounds a month. This is incorrect. 1/4👇 #MelStride #PIP #Disability #ChronicIllness
Stop demonising disabled people. PIP is incredibly difficult to get and is a very stressful process. You need lots of evidence of support needed and even the high rates aren’t “thousands of pounds”. An impairment that “just needs a grab rail” wouldn’t even qualify for lowest rate
This is @MelJStride, the Secretary of State for Work and Pensions, in an interview for the BBC saying that PIP (Personal Independence Payment - a disability benefit) is worth thousands of pounds a month. This is incorrect. 1/4👇 #MelStride #PIP #Disability #ChronicIllness
Thinking about retweeting every single lie told in the run up to election. But I’ve only got so many hours in a day
This is @MelJStride, the Secretary of State for Work and Pensions, in an interview for the BBC saying that PIP (Personal Independence Payment - a disability benefit) is worth thousands of pounds a month. This is incorrect. 1/4👇 #MelStride #PIP #Disability #ChronicIllness
Well @MelJStride, you dirty lying little Tory shite: If we're worried about taxpayers, maybe we should get your colleagues to pay back the billions lost in COVID fraud? Typical Tories, targeting the weak and vulnerable to distract the masses.
This is @MelJStride, the Secretary of State for Work and Pensions, in an interview for the BBC saying that PIP (Personal Independence Payment - a disability benefit) is worth thousands of pounds a month. This is incorrect. 1/4👇 #MelStride #PIP #Disability #ChronicIllness
This
This is @MelJStride, the Secretary of State for Work and Pensions, in an interview for the BBC saying that PIP (Personal Independence Payment - a disability benefit) is worth thousands of pounds a month. This is incorrect. 1/4👇 #MelStride #PIP #Disability #ChronicIllness
Resharing for exposure. My government, for some reason, is attacking the most vulnerable in our society with lies. Yo @RishiSunak you’re responsible, you reckon lies will win you votes?
This is @MelJStride, the Secretary of State for Work and Pensions, in an interview for the BBC saying that PIP (Personal Independence Payment - a disability benefit) is worth thousands of pounds a month. This is incorrect. 1/4👇 #MelStride #PIP #Disability #ChronicIllness
Another Conservative Party Lie… don’t fall into their traps
This is @MelJStride, the Secretary of State for Work and Pensions, in an interview for the BBC saying that PIP (Personal Independence Payment - a disability benefit) is worth thousands of pounds a month. This is incorrect. 1/4👇 #MelStride #PIP #Disability #ChronicIllness