davidtuller @davidtuller1
Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients. San Francisco, California Joined September 2012-
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Berkeley's May crowdfunding for Trial By Error has begun...virology.ws/2024/05/01/tri…
ZonMw, the Dutch funding agency, has published a series of videos on "Living with ME/CFS." One of them is about Celine Corsius, who died last year from euthanasia after a long and difficult struggle with severe illness. @LouCorsius youtube.com/watch?v=Dlj6dy…
I'm glad to hear that! I haven't had such luck.
Wow, congrats! That is fantastic news!!
All it takes is a healthy-looking person with a stupid smile on their face holding literally *anything* and I’m ready to buy it now like a dog after a chew toy hoping it will make an impact on my health. And Instagram knows it! 😂 #mecfs #SevereMECFS #pwME #LongCovid
@davidtuller1 Thanks David. I felt so disheartened by Australia’s backward stance on ME/CFS when I read that appalling update I wrote some thoughts of my own. Now I’m thinking I was a little too polite about it considering how angry I felt.
@davidtuller1 Thanks David. I felt so disheartened by Australia’s backward stance on ME/CFS when I read that appalling update I wrote some thoughts of my own. Now I’m thinking I was a little too polite about it considering how angry I felt.
Seems like Australian GPs are still bonafide members of the GET cult. They have apparently learned nothing in recent years and continue to parrot nonsense--and even cite the fraudulent PACE trial as "evidence" for something. virology.ws/2024/04/25/tri…
I am in the same position, except I worked on a kibbutz after college, and I agree.
I am in the same position, except I worked on a kibbutz after college, and I agree.
I posted this interview with Guardian columnist @GeorgeMonbiot a week ago. It's gotten almost 5,000 views, which is a lot for me. Here it is again: youtube.com/watch?v=GC5i3v…
It's really nonsense. What is RACGP thinking? Or maybe they're just not thinking at all...
Wow, that's very disturbing! Shameful, really. Any trial in which participants were "recovered" on a key variable at baseline, as in PACE, clearly meets standard definitions of research misconduct. The PACE trial is fraudulent.
Wow, that's very disturbing! Shameful, really. Any trial in which participants were "recovered" on a key variable at baseline, as in PACE, clearly meets standard definitions of research misconduct. The PACE trial is fraudulent.
More nonsense from HANDI in Australia, still promoting discredited GET--rechristened as "incremental physical activity." @ElizaCharley provides the low-down.
More nonsense from HANDI in Australia, still promoting discredited GET--rechristened as "incremental physical activity." @ElizaCharley provides the low-down.
And for those who haven't seen it, here's the video of my interview with @GeorgeMonbiot about the "national scandal" involving the decades-long mistreatment of patients with ME/CFS: youtube.com/watch?v=GC5i3v…
And for those who haven't seen it, here's the video of my interview with @GeorgeMonbiot about the "national scandal" involving the decades-long mistreatment of patients with ME/CFS: youtube.com/watch?v=GC5i3v…
Last week I spoke with Guardian columnist @GeorgeMonbiot about his scathing rebuke of the biopsychosocial brigades and their bogus research into ME/CFS and Long Covid, the so-called "Science Media Centre," etc. Here's an edited transcript of our convo: virology.ws/2024/04/23/tri…
As I pointed out recently, the trial website still has a FAQ page that says "coming soon." This trial has been going on for a while. How can anyone take a trial seriously when the investigators don't even bother to write up a FAQ page to explain it?? virology.ws/2024/04/10/tri…
As I pointed out recently, the trial website still has a FAQ page that says "coming soon." This trial has been going on for a while. How can anyone take a trial seriously when the investigators don't even bother to write up a FAQ page to explain it?? virology.ws/2024/04/10/tri…
My interview with @GeorgeMonbiot has had 2500 views since I posted it two days ago. I'm going to post an edited transcript later, but for now here's the video again: youtube.com/watch?v=GC5i3v…
My message about the treatment of Severe ME patients in NHS hospitals: patients, families, carers feel stuck between a rock and a hard place. #SaveCarlasLife #ExposeMENow
1/ Pls consider this: I’m genuinely sorry about this; it must be distressing, and I condemn it. I & others were on receiving end of foul, unhinged online abuse & defamation by a prominent psychologist who had weight of prestigious institutions behind him. thoughtsaboutme.com/2016/02/29/has…
1/ Pls consider this: I’m genuinely sorry about this; it must be distressing, and I condemn it. I & others were on receiving end of foul, unhinged online abuse & defamation by a prominent psychologist who had weight of prestigious institutions behind him. thoughtsaboutme.com/2016/02/29/has…
What the hell is going on here??? Something needs to happen so these young women don't die! thecanary.co/uk/analysis/20…
Adam, thanks for doing this!!
Janet Dafoe @JanetDafoe
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21 Followers 210 FollowingTikiaJan Autodéfense.. @grevepaysbasque
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375 Followers 4K Following This is my backup account. Drop your CashApp tag 🏷️ Ask me for blessing you can also dm with your trust wallet inbox me now for your blessings ❤️💐💯💰💵💸💲Sam @sam_twitt3rs
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6K Followers 132 Following @MSNBC Legal Analyst. Former SDNY Criminal Division Deputy Chief. Diehard Detroit Lions, NY Knicks, NY Rangers and NY Yankees fan. Wife and Mom.@davidtuller1 @GYamey For every 30 people I called about The Chicago Mayoral race, I got 1 person willing to talk to me about their concerns. I dont know if I changed any minds, but I know they all felt heard. I had better luck with door knocking.
You know it'll be an interesting day when your 1st patient with #LongCovid is currently in the hospital for #orthostatic hypotension, but is diagnosed with FND by neurology because of some tremor in her hand I really could care less about. 🧐 #DysautonomiaIsNotFND
@davidtuller1 Thanks David. I felt so disheartened by Australia’s backward stance on ME/CFS when I read that appalling update I wrote some thoughts of my own. Now I’m thinking I was a little too polite about it considering how angry I felt.
My thoughts on @RACGP's latest update of their HANDI guidance on #MECFS chronic fatigue syndrome, graded exercise therapy being disguised as incremental physical activity & what that means for people with #PEM & well defined #MyalgicEncephalomyelitis amandafrancey.medium.com/wolf-in-sheeps…
Why don't these people realise that being selective with the truth is little different from outright lying?! #PostOfficeInquiry
NIHR study finds a raft of inflammatory blood plasma markers in Long-Covid patients. No surprise to the ME/CFS researchers. SO is exercise a cure of chronic immune activation - no; is CBT, no, but may be helpful to adjust and reduce stress. nihr.ac.uk/news/nihr-fund…
Brain Fart @davidtuller1
It's really nonsense. What is RACGP thinking? Or maybe they're just not thinking at all...
@davidtuller1 @GeorgeMonbiot I’ll say it again, WATCH IT EVERYONE PLEASE
@LongCovidAdvoc @davidtuller1 @GeorgeMonbiot When I saw Prof. Tony Pinching at Barts in the late 1980s, he gave me the validation I so dearly needed. I was 22. I have ME. Since then, I learned to keep quiet after awful medical misogynistic abuse and gaslighting. I'm 58 and wise now. All allies appreciated. 💜
@davidtuller1 @GeorgeMonbiot Thanks, David: I struggle with videos longer than a few minutes. And thanks, George: I really look forward to your investigation of the Science Media Centre.
@davidtuller1 @GeorgeMonbiot Thanks for your work and dedication 🙏
@davidtuller1 @NickyProctor @GeorgeMonbiot 🤣 we are restraining ourselves.
@davidtuller1 @deborahbrian @PutrinoLab @MVGutierrezMD Oh yes, and especially blame the patients!
@davidtuller1 @mhornig @PutrinoLab @MVGutierrezMD Perhaps you're not using the right search terms. Try realigning your effort preference to GoGET'em or GASLIGHT and see if that yields better results 😎🤓😎
@davidtuller1 @mhornig @PutrinoLab @MVGutierrezMD 🙄 Try harder, you may have childhood trauma blocking your progress 😬
@davidtuller1 @PutrinoLab @MVGutierrezMD You’re obviously not trying hard enough!! 😵💫
@PutrinoLab @MVGutierrezMD David, I know you're feeling apprehensive about your tendon issues, but I'd strongly encourage you redirect your effort preferences. I believe your inflammation is real - but focusing on what you CAN do instead of what you can't will help you find the courage and motivation to…
@davidtuller1 @DavidJoffe64 I hope to see that quote on the back cover of Andrew’s memoir.
@davidtuller1 @NickyProctor @GeorgeMonbiot It's fantastic. We are slightly in love with both of you here at Cambridge ME Group... 😊
@davidtuller1 @GeorgeMonbiot Well, we know where to find him in case we go extinct....nowhere! And on a serious note, thanks from the bottom of our 'fatigued' hearts for being on our side, not theirs.
@davidtuller1 @GeorgeMonbiot Was looking forward to this, everything is on point, am not disappointed! Just slightly worried about what else Georde might write about & cause 😅 (M...mass extinction?)