Peter Neehus @PeeNee2
#pwME | Dutch | Living on a boat | Art&Copy | Creative Director | SciFi | History | Science | Optimist | Granddad | @[email protected] Hilversum Joined May 2011-
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#Migraine doesn't have biomarkers: MRI of the brain is typically entirely normal in people with migraine. We make the diagnosis based on clinical history, and we believe the patient that they are indeed IN PAIN and are not making it up for secondary gain! We don't call it "pain…
#Migraine doesn't have biomarkers: MRI of the brain is typically entirely normal in people with migraine. We make the diagnosis based on clinical history, and we believe the patient that they are indeed IN PAIN and are not making it up for secondary gain! We don't call it "pain…
If you’ve been following me for a couple of weeks, you will know that I have cytokine preference in and around my Achilles. Despite my attempts to fix it and the incredible advice from the #LongCovid community, gently coaching me through screaming “STOP” at my foot, increasing 1/
Luchtkwaliteit op basisscholen zo slecht dat leerlingen driekwart van de tijd in te weinig zuurstof zitten, waardoor ze minder presteren | December 2022 eenvandaag.avrotros.nl/item/luchtkwal…
Ok so here's my whimsical plan for an ME/CFS & Long Covid dating app... 1. Download Hinge - you can set location to anywhere 2. Set location to the absolute northern tip of Norway (easy to identify) - Skarsvag (no one is there) 3. It'll be only us 4. Maybe add your FUNCAP score…
Mitochondrial dysfunction in long COVID: mechanisms, consequences, and potential therapeutic approaches 🔥Very interesting study, bear with me with some extra patience, you might learn a lot! ➡️"Mitochondria, the cellular organelles known as the powerhouses of the cell, are…
Leuk nieuws! Wij zijn met Begrepen Klachten genomineerd voor het VvAA fonds! 🎉 Dit fonds is opgericht om vooruitstrevende zorginitiatieven te steunen en alle genomineerden maken kans op een schenking uit dit fonds. Dank voor deze mooie nominatie! linkedin.com/posts/vvaa_vva…
ONS LONG COVID DATA: I’m still working through the raw data released yesterday by ONS revealing the prevalence of Long Covid in England & Scotland. Some interesting (& concerning) data points are emerging so I wanted to do a quick thread on what it reveals for CHILDREN… 🧵
ONS LONG COVID DATA: I’m still working through the raw data released yesterday by ONS revealing the prevalence of Long Covid in England & Scotland. Some interesting (& concerning) data points are emerging so I wanted to do a quick thread on what it reveals for CHILDREN… 🧵 https://t.co/nv40KG7m4t
Plans for #MillionsMissing 2024 are underway, and this year the theme is #TeachMETreatME. A key element of this year’s #MillionsMissing across the UK will be a ‘Postcards to Doctors’ campaign. Follow this link to find out more: ow.ly/N8yt50RpgIA
@JimFaas Ik heb een reactie op zowel de paper van Tryfonos als die van Gloeckl gegeven. Beiden zijn problematisch.
#LongCovid 🦠 EXERCISE TRAINING: YES OR NO? ✅ or maybe something in between? meaning? ✅ what’s the current consensus, if any? #DareToAsk 🤔 || alle reacties welkom reference 👉 jamanetwork.com/journals/jaman…
#LongCovid 🦠 EXERCISE TRAINING: YES OR NO? ✅ or maybe something in between? meaning? ✅ what’s the current consensus, if any? #DareToAsk 🤔 || alle reacties welkom reference 👉 jamanetwork.com/journals/jaman… https://t.co/JM78IrsGFe
‘I really thought that there was now a consensus in the field regarding exercise training in PEM, but apparently people keep trying to push their outdated ideas. And once again: the dsq is NOT a good measure for PEM‘. 👇helder draadje🙏
‘I really thought that there was now a consensus in the field regarding exercise training in PEM, but apparently people keep trying to push their outdated ideas. And once again: the dsq is NOT a good measure for PEM‘. 👇helder draadje🙏
“Hoe patiënten verdwaald raken in het zorgdoolhof van ziekenhuizen” Een probleem dat ook enorm speelt bij chronische slecht begrepen multisysteemziekten, zoals Long Covid en ME. Patiënten moeten eigen hoofdbehandelaar zijn, omdat kennis ook nog eens enorm te kort schiet.
“Hoe patiënten verdwaald raken in het zorgdoolhof van ziekenhuizen” Een probleem dat ook enorm speelt bij chronische slecht begrepen multisysteemziekten, zoals Long Covid en ME. Patiënten moeten eigen hoofdbehandelaar zijn, omdat kennis ook nog eens enorm te kort schiet.
#LongCovid 🦠 NIEUWS! 🦠 OVER DE DE 15.000 REGELING ✅ kijk aan, de regeling wordt - eindelijk - uitgebreid ✅ het bedrag wordt verhoogd naar 24.010 ✅ en de groep zorgmedewerkers die in aanmerking komt wordt verruimd met diegenen die tussen 1 juli en 31 december 2020 zijn…
Opmerkelijk dat dit een item is geheel los van long covid en andere PAIS. Bij PAIS is zorg voor één chronische aandoening nu vrijwel onmogelijk omdat daar meer specialisten voor nodig zijn.
Opmerkelijk dat dit een item is geheel los van long covid en andere PAIS. Bij PAIS is zorg voor één chronische aandoening nu vrijwel onmogelijk omdat daar meer specialisten voor nodig zijn.
Regeling zorgmedewerkers is verruimd! Werkte je in de zorg en ben je (deels) arbeidsongeschikt geraakt door long covid? Dan heb je mogelijk recht op financiële compensatie. De regeling is verruimd. 1. Als je t/m 31 december 2020 besmet bent geraakt, kun je een aanvraag doen.…
Teken deze brief aub VANDAAG voor #saveCarlasLife #BringMillieHome en Karen De brief wordt namelijk de 30e verzonden. Je moet jouw ondertekening bevestigen via de mail die je krijgt 😊 #severeME #MillionsMissing #mecvs #PAIS #Longcovid #postcovid #qvs #postlyme
Teken deze brief aub VANDAAG voor #saveCarlasLife #BringMillieHome en Karen De brief wordt namelijk de 30e verzonden. Je moet jouw ondertekening bevestigen via de mail die je krijgt 😊 #severeME #MillionsMissing #mecvs #PAIS #Longcovid #postcovid #qvs #postlyme
Volgens mij zijn er nog genoeg sociaalmaatschappelijke en economische gevolgen van de pandemie (zoals #LongCovid), maar het MIT gaat per 1 sept op de waakstand. Blijkbaar heeft het kabinet geen advies meer nodig. Niet slim. Info: linkedin.com/feed/update/ur… tweedekamer.nl/kamerstukken/b…
Hoe patiënten verdwaald raken in het zorgdoolhof van ziekenhuizen /via @NOS het perspectief vanuit de patiënt. Gemaakt samen met @judithpennarts nos.nl/l/2518331
#LongCovid is complex to diagnose and treat, so we need #biomarkers! 1. to confirm viral persistence, and 2. to map the failing/overactive immune response. So we tried to hit two birds with one stone using digital transcriptomics 👇👇 (1/n) thelancet.com/journals/lanmi…
Spannende Studie, mit Hinweisen auf Viruspersistenz und Veränderungen des Immunsystems bei Long Covid, ~24 Monate nach Infektion.
Spannende Studie, mit Hinweisen auf Viruspersistenz und Veränderungen des Immunsystems bei Long Covid, ~24 Monate nach Infektion.
Rien de Böck @riendebock
2K Followers 2K Following Former mathematician. Life came to a sudden halt due to #LongCovid/ME, tweets in Dutch and English. @LongCovidNL.
Anil van der Zee © @AnilvanderZee
9K Followers 823 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Jet Roz @JetRoz
3K Followers 1K Following Art Historian and former curator | Life on hold due to Long Covid | Feminist | Sorry for the typo's, brainfog slowing the cogs 😶🌫️
jim faas 🍀 @JimFaas
4K Followers 2K Following zo nodig dwars | blogger @medischcontact | verzekeringsarts | jurist | phd | docent | schrijven | lezen | zingen | kunst & kunde | semper fi | @JimsMusicBox1
Begrepen Klachten @Begrepenklacht
2K Followers 1K Following Ondersteuning van patiënten met langdurige (onvoldoende verklaarde) klachten/ziektebeelden. Tweets van @marliesvhemert (arts, np) en Team BK
Guus @guustweet
3K Followers 1K Following #LongCovid since jan’21 ♿️ - tweets with brain fog, so pls bear with me - 📣 tries to advocate @NietHersteld - eager to learn - she/her - tweets in 🇬🇧 & 🇳🇱
Fen, MD @FvRhijn
3K Followers 2K Following 💉*5 | MD w/ #ME due to #LongCovid | rheumatology resident | regenerative med | vascular inflammation | scleroderma | harpist | they/them 🌈 views are mine
Tjalco @tjalcovrv
2K Followers 2K Following
Long COVID Nederland @LongCovidNL
5K Followers 1K Following Patiëntenvereniging die zich inzet voor erkenning, onderzoek en behandeling van #LongCOVID in Nederland. Lid @longCOVIDeurope
Psycholoog & ME @Psycholoog_ME
891 Followers 431 Following Marijke Bloks, GZ-psycholoog (niet praktiserend door ME) Non nobis solum nati sumus - we zijn niet alleen voor onszelf geboren
Marianne @hout_marianne
1K Followers 975 Following Dutch. Bedbound with severe ME/CFS. Trying to find my way back to life. (she/her)
Be Kho @BeKhoNL
754 Followers 989 Following psychologist / life on hold since summer 2021 / Long Covid/ @[email protected]
Mark Vink, MD @Huisarts_Vink
2K Followers 522 Following Huisarts n.p. en verzekeringsarts n.p. (genomineerd voor 2016 John Maddox Science Prijs). Truth about #MEcfs #PACEtrial sounds like Hate to those who Hate truth
It's ME Rieke @itsMErieke
1K Followers 2K Following moeder•vrouw•vrolijk•doorbijter•hoopvol•sarcastisch•eigenwijs•ik❤️gifjes•typgriep•huis/bedgebonden:MEcvs• I AM ONE OF THE #MillionsMissing•Ik ben #NietHersteld
vnhrskmpa @avhrskmp
1K Followers 2K Following Kritisch, vriendelijk en betrokken. Vrouw. Geestelijke gezondheidszorg. Expertise: Trauma en lichaam. Covid is een collectief trauma. Indammen. Vlaaifan.
Ntisec 𓆣 🏴 @ntisec
4K Followers 5K Following Doodzieke zorgmijder. #LongCovid 03-2020 #MECVS sinds 1998, pas diagnose per 01-2021. Daarvoor gaslighting/psychologisering. https://t.co/2Etyd4GLo2
Joanne VanDerNagel, M.. @JoannekeVDNagel
2K Followers 3K Following Psychiatrist, researcher eHealth equity @UTwente & @tweettactus Center for Addiction & Intellectual Disability. #proud2beScout. Blue Sky?
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Pascal030 @Pascalgrootveld
975 Followers 1K Following voormalig Orthopedagoog-Generalist i.o (former special educationalist/psychologist). Voorzitter vereniging @longcovidnl [email protected]
Shelby @mcclanan74shelb
534 Followers 3K Following
Maisie Carrow @CarrowMais91459
98 Followers 5K Following
Yr buskined mistress .. @rhymeswithvery
2K Followers 4K Following Post-vaccine syndrome: Booster #2 05/22. Now orthostatic hypotension, Sjogren's, MCAS, pre-diabetic, fibromyalgia, #ME. Pro-vax but #FcktheNIH. Wear a mask FFS.
M_P @MchP66592467
3K Followers 2K Following 35y/o w Post-Acute SARS Cov2 Syndrome/ME/CFS,POTS,MCAS.Fmr Fin Analyst-now unable 2 work. ME/CFS=biggest Med scandal in history.Experiments w novel therapeutics
Guadalupe Kolat @GuadaluKo
79 Followers 5K Following
TopazStudios.com @TopazStudiosCOM
2K Followers 5K Following ONE chronic #illness to #disabled—follow @RenegadeRes—#longcovid #ckd #IgG #kidney #mecfs #pots #mcas #dysautonomia #pem #mitochondria $ltnc #lockdin #health
Aleeza Watson @aleeza_wats
62 Followers 5K Following
Wayne McDougall 🐀 @waynemcdougall
4K Followers 7K Following @[email protected] - New Zealand Christian male living in Auckland married to a wonderful gal with 3 children. b.322ppm. I am getting worse at chess.
James St. Patrick @jamie_kai
423 Followers 4K Following Christ is king✝️/Hard to kill🥊/ Building an Elite Brotherhood ( We change Men & Women’s lives the same way my life changed financially,physically& spiritually.
Lorelei💉3112 @lorelei3112
9K Followers 6K Following Hannelore Bruijn Manus-je-van-alles in apotheekhoudende huisartspraktijk. Houdt van lekker koken & vooral opeten ervan. Ook @[email protected]
Mariëlle Selser @Marielle___S
289 Followers 529 Following Passie voor onderzoeksjournalistiek & literaire non-fictie. Mijn boek ‘Landziek. Een medische geschiedenis’ ligt nu in de winkel. @Querido_Facto. ME/POTS
Lexxi Houtman @HoutmanLex90958
86 Followers 5K Following
Jannice @Jannice57589
166 Followers 512 Following I am a person who likes to make friends, no matter how close or far away they are.
AdrasteiaToday @AdrasteiaToday
772 Followers 5K Following "I CAN GET A BENT WARRANT, BUT IF WE KILL THEM IN CUSTODY, THE IPCC WILL INVESTIGATE ME AND PROVE I'M DANGEROUS." Stated a bent, predatory London Met Police cop
Margaret Laverick @margaretlav
753 Followers 817 Following Retired and supporting Invest in ME Research. Caring for my daughter diagnosed with ME 1998, now severe and bed bound. Biomedical research needed NOW.
@TheChronicCollaborat.. @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Willem Tervoort @WillemTervoort
4 Followers 666 Following
Hoa Maddox @HoaMaddo
38 Followers 5K Following
WelStijl @bedoeljedatecht
195 Followers 225 Following Zij, blij met Hij, poes tante Anna, kittens May en Beppie. Door Brainfog soms de grammaticale regels en spelling kwijt.
M @maryhum82842507
81 Followers 1K Following
Dr Rebecca Healey @beccyjanehealey
2K Followers 1K Following NHS Doctor on pause #LongCovid | Registered Nutritionist (Public Health) | #CovidIsAirborne | We need #ventilation & #cleanair yesterday.
Bebe @Bebe6666668
105 Followers 2K Following
Elon Musk @EMusk84439
18 Followers 1K Following
Max Wassermann @MaxWassermann2
1K Followers 1K Following 20+ || life paused due to #MECFS since 2013 || likes video games and cats || team member of StartaMEvolution
Idoia Mujika Altuna @MujikaAltuna
207 Followers 3K Following
David Lester @sampaul9125
942 Followers 4K Following OFFICE DAVID LESTER British -American psychologist and emeritus professor of psychology.BECOME A STATE NATIONAL🇺🇸
Chan Gadberry @ChanGadber91824
71 Followers 5K Following
Cassidy Wierschem @CassiWiersch
46 Followers 5K Following
Mayar Gerckens @MayGerck
90 Followers 5K Following
Deidra Blass @blas_deid
35 Followers 5K Following
Joost @FriendlyFoe16
259 Followers 714 Following Ooit voor @bestuurbon in bestuur Stichting Beroepskwaliteit Leraren, nooit in bestuur onderwijscoöperatie, ik twitter als prof dr noch dyscalculie expert
sharon askew @88888888881
82 Followers 1K Following
Nick Jeffreys 😷�.. @Nick_Jeffreys
455 Followers 713 Following Founder Safe Inside @SafeInside2024, we need #LongCovidResearch for treatment and we need to leave a planet for future generations. https://t.co/Anvf9HlzFQ
Tom Jones @tommyjtookalook
599 Followers 2K Following 5🏒💉,Curious Cat 🦁, #herderofcats, past scout “Be Prepared”, Construction Super , risk assessor,am.entomologist , use all tools in toolbox! 🇨🇦LCMECFS hauler
Darci Klimo @klim_darc
56 Followers 5K Following
Michael Alexander @Michaeltikus
955 Followers 2K Following I like animals 🐙 Zoology/Psych PG interested in nature connections, diving and tapirs. Member @Long_Covid / @RenegadeRes Lead contributor @wecrunchme LC-PLAN
Staffan @kalvfond
191 Followers 1K Following
Bonnie @ThisIsBonnie79
288 Followers 570 Following #nichtgenesen seit 01/2021 #longcovid #mecfs Bell 10 #brustkrebsüberlebende
Double A @doublinga
147 Followers 1K Following
Alyssa Bance @BanceAlyss88029
74 Followers 5K Following
Rien de Böck @riendebock
2K Followers 2K Following Former mathematician. Life came to a sudden halt due to #LongCovid/ME, tweets in Dutch and English. @LongCovidNL.
Anil van der Zee © @AnilvanderZee
9K Followers 823 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Jet Roz @JetRoz
3K Followers 1K Following Art Historian and former curator | Life on hold due to Long Covid | Feminist | Sorry for the typo's, brainfog slowing the cogs 😶🌫️
jim faas 🍀 @JimFaas
4K Followers 2K Following zo nodig dwars | blogger @medischcontact | verzekeringsarts | jurist | phd | docent | schrijven | lezen | zingen | kunst & kunde | semper fi | @JimsMusicBox1
Begrepen Klachten @Begrepenklacht
2K Followers 1K Following Ondersteuning van patiënten met langdurige (onvoldoende verklaarde) klachten/ziektebeelden. Tweets van @marliesvhemert (arts, np) en Team BK
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Guus @guustweet
3K Followers 1K Following #LongCovid since jan’21 ♿️ - tweets with brain fog, so pls bear with me - 📣 tries to advocate @NietHersteld - eager to learn - she/her - tweets in 🇬🇧 & 🇳🇱
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Fen, MD @FvRhijn
3K Followers 2K Following 💉*5 | MD w/ #ME due to #LongCovid | rheumatology resident | regenerative med | vascular inflammation | scleroderma | harpist | they/them 🌈 views are mine
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Tjalco @tjalcovrv
2K Followers 2K Following
Long COVID Nederland @LongCovidNL
5K Followers 1K Following Patiëntenvereniging die zich inzet voor erkenning, onderzoek en behandeling van #LongCOVID in Nederland. Lid @longCOVIDeurope
Psycholoog & ME @Psycholoog_ME
891 Followers 431 Following Marijke Bloks, GZ-psycholoog (niet praktiserend door ME) Non nobis solum nati sumus - we zijn niet alleen voor onszelf geboren
Rob Wüst @RobWust
6K Followers 771 Following Assistant-Professor Muscle Metabolism at Vrije University Amsterdam, Netherlands. Interested in skeletal muscle function in health and disease
Marino van Zelst - Ip.. @mzelst
34K Followers 734 Following Beleidsmedewerker pandemische paraatheid @MinVWS | Houdt van @NienkeVS, data, katten, sport op wielen, en whisky | 🌈 | Tweets op persoonlijke titel
Marianne @hout_marianne
1K Followers 975 Following Dutch. Bedbound with severe ME/CFS. Trying to find my way back to life. (she/her)
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Be Kho @BeKhoNL
754 Followers 989 Following psychologist / life on hold since summer 2021 / Long Covid/ @[email protected]
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 723 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Aftab Khan, MD @aftab_usa
14K Followers 5K Following Board Certified Internal-Medicine Physician #LongCOVID deserves Awareness, not Ignorance
Ror Preston @RorPreston
2K Followers 553 Following Lead Data Scientist @visible_health 💙 | Organiser @wecrunchme 🗺️ | #MECFS since 2018 | Own Opinions
judith pennarts @judithpennarts
8K Followers 2K Following Journalist @Nieuwsuur verslaggever, onderzoek, Tegel, Gouden Greep
Johan Van Weyenbergh @johanvawe
4K Followers 4K Following Researcher in #HTLV #HIV #NTDs respiratory viruses and vaccine response. 'Nothing in #human #immunology makes sense outside the light of #clinical #evolution'
Jacqueline Keuning @keuningcoaching
2K Followers 2K Following @keuningin.bsky.social Specialist in het doorbreken van vaste patronen: voor mensen en organisaties met Lef! #reintegratie #(borst)kanker #chronischziek
Sonic Death Monkey @Parkesy1701
1K Followers 3K Following Myalgic Encephalomyelitis (ME) sufferer. Ill since Nov-19. On long term sick trying to keep it together for my family. Just about managing. #ME #POTS #MCAS
Michal Tal, PhD @ImmunoFever
13K Followers 10K Following Immunoengineer @MITdeptofBE captivated by #inflammation, #SexDifferences #Lyme, #COVID, and planetary health. prev/ @Yale, @Stanford. @immunofever.bsky.social
Anne Maitland, MD @asktheallergist
2K Followers 291 Following Board certified Allergist-Immunologist Asst. Professor, Mount Sinai School of Medicine
Fifty Something @FiftysomeBlog
78 Followers 278 Following Blogger die behalve van schrijven ook van lezen houdt, gamen, (balkon)tuinieren en het volgen van de politiek. Sinds kort ook een speelse interesse in AI.
Jennie Jacques @JennieJacques1
19K Followers 412 Following avid reader 📚 lover of science 🧪 🧬 actress 🎭 & writer ✍️ #disabilityswareness 🌻 #mecfs 💙 @bake4mecfs
GC @ThePOTSPostman
5K Followers 1K Following Just a mailman with #POTS. Here to spread awareness and advocate for those with #dysautonomia #chronicillness
Adviescollege Openbaa.. @ACOI_nl
154 Followers 34 Following Het Adviescollege Openbaarheid en Informatiehuishouding (ACOI) hecht aan een democratie waaraan iedereen actief kan deelnemen en kan volgen wat de overheid doet
Lorelei💉3112 @lorelei3112
9K Followers 6K Following Hannelore Bruijn Manus-je-van-alles in apotheekhoudende huisartspraktijk. Houdt van lekker koken & vooral opeten ervan. Ook @[email protected]
Jesus Castro, Ph.D. @JCastro_Marrero
985 Followers 1K Following PhD senior researcher in the Rheumatology Division (Research Unit in ME/CFS and Long COVID) @VHIR_ at Vall d'Hebron University Hospital Campus @vallhebron
Danielle Beckman @DaniBeckman
24K Followers 6K Following Neuroscientist 🇧🇷 at the @CNPRCresearch working with primates. I like taking pictures of weird things happening in the brain 🧠🔬. #NeuroCovid is real.
Margaret Laverick @margaretlav
753 Followers 817 Following Retired and supporting Invest in ME Research. Caring for my daughter diagnosed with ME 1998, now severe and bed bound. Biomedical research needed NOW.
Nina E. Steinkopf @Nina_Steinkopf
2K Followers 2K Following Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and blogger. 🇳🇴🏳️🌈🇵🇸🇺🇳😷
Becky A Robertson @AnciraBecky
4K Followers 5K Following Survivor. Proud mother. Teacher. Philanthropist. Activist. Trying to make a difference. #maskup #longcovidawareness #LCDC #March15 #ValueCognition
@TheChronicCollaborat.. @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
WelStijl @bedoeljedatecht
195 Followers 225 Following Zij, blij met Hij, poes tante Anna, kittens May en Beppie. Door Brainfog soms de grammaticale regels en spelling kwijt.
MAH @Med58ll
797 Followers 433 Following To the world you may be one person, but to one person you may be the world. | Science | Tweets are personal views. M/D
Dr Rebecca Healey @beccyjanehealey
2K Followers 1K Following NHS Doctor on pause #LongCovid | Registered Nutritionist (Public Health) | #CovidIsAirborne | We need #ventilation & #cleanair yesterday.
Scott Daniska @scott_scientist
242 Followers 212 Following Scientist & chronic illness advocate raising awareness of environmental research for ME/CFS & more. Let's drive change together! #ChronicIllnessAwareness
Natasha 🐱🦠 @doyouseem_e_now
2K Followers 670 Following 29 & sick with Severe #LongCovid for 13 months 🛌 Part of the biggest mass disabling event in modern world history. #Millionsmissing
Sjoerd Druiven @sjoerddruiven
2K Followers 951 Following Schrijft nu veel over het toeslagenschandaal. Maakt filmpjes daarover. Bikes bikes bikes - only use cars in company i talk about bikes here: @sjoerdfietst
RemissionBiome MECFS/.. @remissionbiome
10K Followers 434 Following Community science, patient-led project of the non-profit, decentralized research org, @renegaderes. Serendipity meets preparation. https://t.co/IkTfALVBWC
Claire Jones @Claire145
849 Followers 620 Following BCUHB Consultant Physiotherapist. Long Covid Physio Disability & Safe Rehab Committee Member. DProf Student at Uni of Chester. Views are my own.
Huib Modderkolk @huibmodderkolk
25K Followers 980 Following Onderzoeksjournalist Volkskrant. Schrijver. Boek Dit wil je écht niet weten / docu Niemand die het ziet / [email protected] / Signal: hmodderkolk.20
Pflegeherz @Pflegeherz12
3K Followers 1K Following Krpfl. - Med./Pfleg. Bubble: SARS-CoV-2, Long/Post Covid, ME/CFS, postvirale Syndrome, Fibromyalgie, Borreliose, MS, Fachstudien, Fachberichte, Anträge usw.
Riekelt Houtkooper @rhhoutkooper
2K Followers 863 Following Full Professor at Amsterdam UMC - AMC, NL. Translational metabolism | he/him | @[email protected]
Hella Hueck @hellahueck
27K Followers 2K Following Hoofdredacteur @EWmagazinenl | Blijft altijd fan van @RTLZ en @FD_Nieuws | 📸 Marijn Reichert
Ulla Wolters @UWolters
1K Followers 1K Following #orthopedagoog #onderwijskundige #verliesenrouwtherapeut #leerkracht #cello #viool
clair elle ❀🦌 @ClairElle__44
3K Followers 92 Following former IT analyst and occasional film photographer. chronically Ill for the social mystique (ME, hEDS & POTS)
Derya Unutmaz, MD @DeryaTR_
290K Followers 4K Following Professor, medical scientist immunologist @jacksonlab research in aging & cancer immunotherapy. Interests: #longevity #robotics #AI #Scifi #tech #space🇺🇸🇹🇷
Bert Vrijhoef @BertVrijhoef
2K Followers 1K Following Adding evidence to healthcare innovations to improve health outcomes @PANAXEA @KNCVANL #IntCareCoord
Long Covid Support �.. @long_covid
32K Followers 2K Following UK Charity • Support • Advocacy • Research Involvement • Awareness • Education • Keeping people with #LongCovid at the centre. #CureLongCovid
NLZorg @NLzorg1
15K Followers 397 Following Normaal elke week een andere zorgprofessional aan het woord, deze week Dina, mantelzorger en vrijwilliger bij ouderenzorg
Phi @phi_psd
5K Followers 924 Following Australian/Greek/Cypriot nerdy visual designer, living in Berlin. 🇨🇾🇬🇷🇩🇪 end #prescribedharm #longcovid & #mecfs @berlinbuyers
IleneRuhoyMDPhD @RuhoyMD
7K Followers 1K Following Neurologist treating chronic and complex disease #NeuroEDS Medical Director #ChiariEDS Center @MS_SouthNassau Book Release Spring 2025
Isabel Ramirez-Burnet.. @IsabelRamirezRD
3K Followers 1K Following NBC-HWC CEO @renegaderes & Todologa @remissionbiome patient-led, decentralized, human-centered research. #MECFS #longcovid #postinfectious #chronicillness
Andrea @Walrathis
15K Followers 11K Following Critical Incident Management | Suicide Postvention | Expert in Psychosocial Triage | Author | Speaker | Lecturer | EUCVT #Hoopverlening Tweets Ned | Eng | Deu |
Nienke @NienkeVS
470 Followers 256 Following Terug van weggeweest. vroeger @Ipie33. Getrouwd met @mzelst Verpleegkundig specialist Nog steeds politiek junkie #endometriose
Nita Jain (ME/CFS, Lo.. @HealthUnveiled
2K Followers 3K Following 🧬 Founder at Timeless Biosciences 🩼 Systems immunology, metabolism, mitochondria 🌱 Let's connect: https://t.co/wbZGyjsKba
Mark Faghy @DrMark_Faghy
5K Followers 845 Following Prof Clin Ex Sci @Derbyuni Research in #longCOVID. Vice chair @LongCOVIDPhysio, advisor for @LongCovidKids and @long_covid. Accredited @ClinExPhysUK & @BASESuk.
Sinéad @spoonless_me
2K Followers 828 Following dog lover • plant mad • software engineer • chronically ill #CanWeTalkAboutIt #PostVacSyndrome #MECFS #LongCovid #SFN #POTS #Fibromyalgia
Cat in the Hat 🐈�.. @_CatintheHat
10K Followers 1K Following Mum • Lover of nature and clean, fresh air • Passionate about science • “Without data, you’re just another person with an opinion.”
Emmanuel @ejustin46
13K Followers 517 Following Never be afraid to raise your voice for honesty and truth and compassion against injustice and lying and greed. William Faulkner
PostX @TeamPostX
1K Followers 1K Following Co-Founder of #UniteToFight2024 //Program Manager // Pharmacist and Political Scientist // Hauler since 2020
Kathryn Hoffmann @kahryn_hoffmann
2K Followers 259 Following Long/PostCovid, ME/CFS & postakute Infektionssyndrome. Prävention & Primärversorgung. - Univ.-Prof. und Ärztin - !Alles hier: my own opinion!
I love David Putrino! ❤️
If you’ve been following me for a couple of weeks, you will know that I have cytokine preference in and around my Achilles. Despite my attempts to fix it and the incredible advice from the #LongCovid community, gently coaching me through screaming “STOP” at my foot, increasing 1/
#Migraine doesn't have biomarkers: MRI of the brain is typically entirely normal in people with migraine. We make the diagnosis based on clinical history, and we believe the patient that they are indeed IN PAIN and are not making it up for secondary gain! We don't call it "pain…
If you’ve been following me for a couple of weeks, you will know that I have cytokine preference in and around my Achilles. Despite my attempts to fix it and the incredible advice from the #LongCovid community, gently coaching me through screaming “STOP” at my foot, increasing 1/
to clinically diagnose me based on my symptoms and triggering event on a video visit and help me…it’s almost like…saying you can’t diagnose things without biomarkers is a giant cop-out to not help sick people that you’re too insecure/uninformed to properly treat? I dunno.. 🤷🏻♂️
guess I’m sharing this experience because I’m just so confused: so many doctors seem to be popping up to these days to tell us that we need blood tests and biomarkers before we can diagnose things and prescribe meds that will help people, and yet this doc today had the NERVE 4/
“expert” spoke to me, took my history, identified an initial triggering event from where my symptoms began, made a diagnosis and wrote me a prescription that has been very helpful in reducing my symptoms. No blood tests, no imaging, just a chat and a *clinical* diagnosis. I 3/
my miles, applying leeches, visualizing healing, visualizing ego death, addressing past life trauma (I was a pharaoh), and so many other therapies - can’t thank y’all enough - unfortunately my foot has not improved. So I spoke to a doctor (I know, I know 🚩 🚩). Anyway, this 2/
If you’ve been following me for a couple of weeks, you will know that I have cytokine preference in and around my Achilles. Despite my attempts to fix it and the incredible advice from the #LongCovid community, gently coaching me through screaming “STOP” at my foot, increasing 1/
When you see your quote, but don't see your name crediting it to you... 🙄 I understand that my name is hard to spell, but Neurology Today didn't say it: I did. 🤣 And I said what I said because I wanted this to be ON RECORD: clearly, I did a good job since you quoted me. 🎤
@vipintukur You need to keep up with the latest research.
Luchtkwaliteit op basisscholen zo slecht dat leerlingen driekwart van de tijd in te weinig zuurstof zitten, waardoor ze minder presteren | December 2022 eenvandaag.avrotros.nl/item/luchtkwal…
3 months ago we lost Lauren
It's been 3 months today since @dutchlauren passed away. A week later @ChronicMyalgicE @dievandinges @NeleHelena + myself were watching her funeral online. 4 candles were lit. They represented each one of us, so we were included. Sweetest things someone has ever done for me! 1/3
We have a few more speakers if you like ?! ☺️ Please welcome Megan Fitzgerald @TheMegascope from @patientled ! Megan will provide insights into the reinfection study. She will talk about the effect of reinfections on self-reported measures of post-exertional malaise (PEM) 👍…
But on a serious note, I think the loneliness of chronic illness is incredible, and the difficulty of being able to sustain any sort of relationship with this burden ❤️🩹
Ok so here's my whimsical plan for an ME/CFS & Long Covid dating app... 1. Download Hinge - you can set location to anywhere 2. Set location to the absolute northern tip of Norway (easy to identify) - Skarsvag (no one is there) 3. It'll be only us 4. Maybe add your FUNCAP score…
Mitochondrial dysfunction in long COVID: mechanisms, consequences, and potential therapeutic approaches 🔥Very interesting study, bear with me with some extra patience, you might learn a lot! ➡️"Mitochondria, the cellular organelles known as the powerhouses of the cell, are…
Nu zijn veel gezonde mensen ws feest aan het vieren vandaag. Willen jullie BK een beetje aan exposure helpen door op het LI bericht te reageren of het (later) een keer te delen? Via de VvAA site lees je meer over de andere genomineerden, oa de LC toolkit😁 vvaa.nl/over-vvaa/100-…
Leuk nieuws! Wij zijn met Begrepen Klachten genomineerd voor het VvAA fonds! 🎉 Dit fonds is opgericht om vooruitstrevende zorginitiatieven te steunen en alle genomineerden maken kans op een schenking uit dit fonds. Dank voor deze mooie nominatie! linkedin.com/posts/vvaa_vva…
Nadere analyse van de ONS-data (VK statistiek bureau) laat zien dat aantal mensen met LongCovid gestaag groeit. Ook bij kinderen. 30% zijn nieuwe gevallen, die er het afgelopen jaar zijn bijgekomen.
ONS LONG COVID DATA: I’m still working through the raw data released yesterday by ONS revealing the prevalence of Long Covid in England & Scotland. Some interesting (& concerning) data points are emerging so I wanted to do a quick thread on what it reveals for CHILDREN… 🧵
ONS LONG COVID DATA: I’m still working through the raw data released yesterday by ONS revealing the prevalence of Long Covid in England & Scotland. Some interesting (& concerning) data points are emerging so I wanted to do a quick thread on what it reveals for CHILDREN… 🧵
2 million people living in private households in England and Scotland were experiencing self-reported long COVID Symptoms continuing for more than four weeks after a confirmed or suspected #COVID19 infection that were not explained by something else. ➡️ ons.gov.uk/peoplepopulati…
WMO begeleider is zoo fijn, ze geeft passende feedback, ik vertrouw haar en ze kan met emotionele shit overweg zonder in " je moet het positief zien" te vervallen. sterker nog: Wat heb jij een ongelooflijke hoeveel shit op je bord en ik heb bewondering voor hoe je ermee omgaat"
Koningsdag in een vorig leven. (7 jaar geleden ofzo)
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