ME Association @MEAssociation
We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RTs do not necessarily mean endorsement. linktr.ee/meassociation Gawcott, Bucks, for all UK Joined December 2009-
Tweets32K
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Followers20K
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Following2K
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Likes9K
. @pempodcast23 :Myalgic Encephalomyelitis and a history of disbelief with Dr Nigel Speight Listen/watch the excellent discussion here: youtube.com/watch?v=xwOaRA… #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis
ME Debate for MPs in Westminster Hall on Wednesday In advance of World ME Day, Sir Sajid Javid MP has arranged a debate in one the meeting room off Westminster Hall, on Wednesday 1st May, 16.30 to 17.30. Information here: whatson.parliament.uk/event/cal47959 To encourage your MP to attend…
The ME Association: Treating ME/CFS – Including research into new and experimental approaches… - A brand new booklet! This booklet covers - What sort of treatments for ME/CFS have already been assessed? How might new medications be assessed and brought into use? And what sort…
The ME Association: Diet and Nutrition in ME/CFS and Long Covid New booklet available to download for free meassociation.org.uk/coex #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #SevereME #Malnutrition #LongCovid #PostCovid #Nutrition
The @guardian About 2m people have long Covid in England and Scotland, figures show "About 2 million people in England and Scotland say they are experiencing long Covid, figures reveal, with many reporting their symptoms have lasted two years or longer." amp.theguardian.com/society/2024/a……
Dragons’ Den, BBC One, 18 January 2024 - Acu seeds complaint and outcome "This edition of the programme included a successful pitch for Acu Seeds, a product which applies acupressure to the ear by means of “ear seeds”. Six viewers complained that the pitch included claims that…
The draw closes at midnight tomorrow (Friday 26th April). The results will be announced on 3rd May. Thank you for your support so far!
The draw closes at midnight tomorrow (Friday 26th April). The results will be announced on 3rd May. Thank you for your support so far!
I posted this interview with Guardian columnist @GeorgeMonbiot a week ago. It's gotten almost 5,000 views, which is a lot for me. Here it is again: youtube.com/watch?v=GC5i3v…
ME Medical Quarterly Magazine Using our medical education budget, we can send medical education resources to healthcare professionals for free Nominate your GP to be added to the mailing list to receive the ME Association's ME Medical magazine. Or if you are a healthcare…
Leaflet: Blood Tests Explained In this free leaflet, we take an in-depth look at what blood tests should be taken to ensure your diagnosis is correct. Testing your blood is essential to rule out other illnesses that can cause similar symptoms. meassociation.org.uk/xyhr #MECFS…
Blue Sunday: Tea Party for M.E If you'd like to take part and raise money for the ME Association, please bookmark the following donation page for the day here: justgiving.com/page/bluesunda… Thank you in advance to all our wonderful supporters! #pwME #MECFS #MyalgicE…
Blue Sunday: Tea Party for M.E If you'd like to take part and raise money for the ME Association, please bookmark the following donation page for the day here: justgiving.com/page/bluesunda… Thank you in advance to all our wonderful supporters! #pwME #MECFS #MyalgicE…
Save the date: Blue Sunday: Tea Party for M.E is on the 19th of May this year! - @theslowlane_ME More information about how to take part here: the-slow-lane.com/blue-sunday-20… #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #LongCovid #BlueSunday2024 #TeaPartyforME #Fundraising…
. @PhysiosForME Book: A Physiotherapist’s Guide to Understanding and Managing ME/CFS' - £24 This book is available to purchase on the ME Association website and provides detailed management advice and information that can directly inform physiotherapy practice, supplemented with…
SCOPE PETITION: Stop demonising us. @scope says: "Disabled people and people with mental health conditions must stop being seen as the problem by this Government. Proposals to curb PIP and change how people are assessed as unfit for work are dangerous." campaigns.scope.org.uk/page/148462/pe……
Thanks for supporting us so far Please now nominate us again but this time to receive £5,000. Nominations close on Friday (26th April). Nominate here: health.movementforgood.com/index.php?cn=8… Key in our charity number 801279. Then pick 'Health' charity in the drop-down menu.
Thanks for supporting @MEAssociation so far Please now nominate us again but this time to receive £5,000. Nominations close on Friday (26th April) Nominate here: health.movementforgood.com/index.php?cn=8… Key in our charity number 801279. Then pick 'Health' charity in the drop-down menu.
Scope 2024: General Election Manifesto @scope says: "16 million people in the UK are disabled. That’s 1 in 4, or 24% of the population. We are a force to be reckoned with and we want our potential to be recognised." Read Scope's manifesto here: scope.org.uk/campaigns/mani… #pwME…
BMJ Rapid Response: Steps doctors and other medical professionals can take today to improve medical care for people with Myalgic Encephalomyelitis #MyalgicEncephalomyelitis bmj.com/content/383/bm…
ME Association Statement and Parliamentary Question: People with ME/CFS at risk of starvation Please read the ME Association statement about the lack of understanding and inadequate management of people with severe ME/CFS when admitted to hospital below:…
ME Association Statement and Parliamentary Question: People with ME/CFS at risk of starvation Please read the ME Association statement about the lack of understanding and inadequate management of people with severe ME/CFS when admitted to hospital below:…
Janet Dafoe @JanetDafoe
15K Followers 221 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Tom Kindlon @TomKindlon
14K Followers 576 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Anil van der Zee © @AnilvanderZee
9K Followers 823 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Sten Helmfrid 🇺�.. @StenHelmfrid
7K Followers 205 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Martin Hippe @pausedME
7K Followers 471 Following East Westphalia by Nature ⎮Lawyer by Profession | #Musikrecht | #MECFS | @Mirame_Arts | No medical advice!
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
#MEAction Network @MEActNet
20K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Dr Keith Geraghty @keithgeraghty
9K Followers 500 Following Research Fellow | Primary Care, Medical & Health Psychology | People-focused, evidence-based | @FBMH_UoM, @PrimaryCareMcr
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Open Medicine Foundat.. @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
Agy Lena 🏳️�.. @agy_lena
9K Followers 290 Following Ex athlete, biker, climber, 1st class biomedicine grad. Entire life lost 2017 post viral ME/CFS. C💉injured 2021 thus turned from pro to anti vax
James Knight 💙💛 @Jameskn123
237 Followers 876 Following Twitch affiliate / motorsport and football fanatic / Chronic Fatigue Ehlers-Danlos suffer
Steven Corfield @stecorf
143 Followers 357 Following Dad, husband, Evertonian, music lover, left winger. Just a normal fella.
Prof Adrienne Oneil @DrAdrienneOneil
3K Followers 3K Following Professor. NHMRC EL2. Food& Mood Centre, Deakin University. Lifestyle Medicine. Behavioural Scientist. She/her
maumiewow @maumiewow
62 Followers 316 Following wider die dystopie /// rechte und schwurbler werden geblockt
Lolly Blue @lollypoops
79 Followers 1K Following
Angela Howard @AngelaHowa47038
3 Followers 43 Following
MissMion @MionMiss
5 Followers 51 Following Kleines Verkaufsprojekt einer schwer #MECFS Betroffenen in Theorie u VK Fotos. K A wie Rest umsetzbar, wohl utopisch. Bitte informiert euch über die Krankheit🙏
Dura Lessons @terrafigura
57 Followers 305 Following Posting on anything that catches my attention: Preventive Health | Public health | Social Justice | Species Survival | Born @ 3.05bn
Seautho @Seautho187040
0 Followers 36 Following
Cindy Wilinski @crwequine
12K Followers 9K Following Basic Scientist, mainly F(ab')2🐴 No political affiliations, they’re all incompetent. Views my own. 🌈ally
Sir, Dame, EleanorF #.. @EleanorSews
2K Followers 4K Following Retired lecturer/therapist.(Klein, Winnicott,Orbach) culture, thoughtfulness, piano-player, linguist, textiles, activism @eleanorsews.bsky.social
Spoonie_spice🗡️�.. @spoonie_spice
51 Followers 336 Following 📎 Content Creator • Disabled Model • Cosplayer • Artist • ⚢ • Married💍 • ♿️🥄
Natalie /\/¯¯¯¯¯.. @NatalieCapeTown
1K Followers 4K Following Mother, daughter, sister, aunt, cousin, niece, FP HOD, Gr1 teacher, colleague & friend living in the beautiful Mother City /\/¯¯¯¯¯\/\ experiencing #LongCovid
Suzanne T @Suzanne__T
640 Followers 891 Following Former postdoc in human centered AI; career break due to #LongCovid since May '22; tweets with brainfog so excuse the spelling
heatmick💙☮️�.. @heatmick
170 Followers 864 Following Mom, youngish grandmother, retired nurse because of a #brainstemstroke #chronicpain #fucktheGoP #pjammerforlife
Meg Samuelson @coastalthinking
325 Followers 899 Following i used to read think write teach (literatures of the South/Africa/Indian Ocean & environment littorals oceans women’s stories). #LongCovid #MECFS
Nora Lennox @NoraLMartin
5 Followers 104 Following
Sofia Newton @newtsofia
3 Followers 37 Following Medical student and researcher interrupted by severe ME/CFS #MECFS #severeMECFS
Sally can't wander ri.. @WanderingSally
781 Followers 2K Following Sally wanders and wanders DOB 330ppm
Mary Santos @AdetulaSeg56204
480 Followers 3K Following The expert book promoter. With a passion for literature and marketing savvy, I help authors stand out in the publishing world. Let's make your book shine.
Barbara Hodge @Barbara06182293
185 Followers 1K Following Retired nurse, why take unnecessary risks, peace at all costs.
Tara Coffin @coffin_tara
261 Followers 1K Following Director @learn2love2read charity, Ex Primary Deputy Head, Chair of Governors, Mum of child with T1 diabetes, twin Mum, allergy Mum.
toast @bananatoast17
89 Followers 307 Following
Gemma Buckland @doitjusticeltd
1K Followers 4K Following Director Do It Justice. Criminal justice geek. Former adviser to Justice Select Committee. One time Clarice Starling wannabe. Views own. RTs not endorsement.
protein and veg @mc_cheapo
256 Followers 902 Following Food matters. Eating carbs can raise your blood pressure. Oily fish can lower clotting risk. Omega-6 fats in seed oils can increase pain ... #lcl6
Bob Hope @2Tired2Tango67
9 Followers 134 Following
Dani Russell @DaniRussell16
728 Followers 5K Following Bond geek, Foodie, ex-Arsenal player and true Gooner
((( S Z ))) @zpisces2
1K Followers 5K Following ✨Introverted extrovert🦋Gardener🌱@botanical_panacea on IG🌈One time interviewer 🎤Nature as a cure all 🌿Mom & Wife #Feminist 🦀 ✡️🇺🇦🇮🇱#longcovid #Zionist
Rete Long Covid Press @ReteLongCovid
102 Followers 898 Following Benvenuti nella Rete Long Covid Italia 💙 https://t.co/T6NThQfoQL
JoanT #FBPE❤️🇪.. @birdingjoan
2K Followers 2K Following PE survivor Pro EU Liberal democrat member birder conservationist Pensioner Standing with Ukraine mastodon account @[email protected]
Danielle Cahill-Gray @dmcahill
1K Followers 5K Following Costume drama fan, Russian history geek, disability stuff, neurodivergent, random fact retainer & journalist. She/her
Michelle Dando 🫥 @MDando1
75 Followers 255 Following Worked in NHS. Was going to be a nurse. Now stuck in my bedroom due to #myalgicencephalomyelitis #millionsmissing #ME Best laid plans… Is this my life now?
Rachel 44 @RachReynolds510
90 Followers 807 Following ME/CFS/Long Covid campaigner |Coeliac awareness| Get Tories Out
Emily 🥀 @rogue_runaway
72 Followers 250 Following waiting for a biomarker, treatments and a cure for myalgic encephalomyelitis
Nikki 🌺 LoveWins @Nikkitatruth
612 Followers 587 Following Wife Mother Human 🌍🌊 In lak'esh ala k'in Integrity is everything🇺🇦🇮🇩🇬🇧🏳️⚧️🏳️🌈
we'll see @kellywashburn
320 Followers 1K Following
Hannah Hopson (née W.. @WrightHL94
42 Followers 191 Following Researcher & UCL PhD Student. Interested in maternal mental health, early years, and couple relationships. She/her
Monimeeeee @sayitboldlynow
156 Followers 541 Following #Godfirst #antipetrista #animalista. De Cali Ve ! #uribista #Trump. Fuera Petro!
ME/CFS Legal Resource.. @MECFSLegal
13 Followers 48 Following Providing legal resources and information to assist people with ME/CFS since 2001.
David Maxwell @David_W_Maxwell
880 Followers 2K Following Unix, Security, Networks. Security@BlueCat. Hobbies: Open Source, NetBSD, Photography, Magic, Martial Arts, Psychology, 3D (Lightwave & Blender), Blacksmithing
Anne Fitz @annefitzvernon
30 Followers 464 Following
Christina Johnson @ChristinaJ40789
2 Followers 3 Following
Carolyn Guthrie @Carolyn10535082
0 Followers 62 Following
David Hartman @DavidHa03481046
15 Followers 61 Following
Janet Dafoe @JanetDafoe
15K Followers 221 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Tom Kindlon @TomKindlon
14K Followers 576 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Anil van der Zee © @AnilvanderZee
9K Followers 823 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Sten Helmfrid 🇺�.. @StenHelmfrid
7K Followers 205 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Whitney Dafoe @DafoeWhitney
10K Followers 38 Following Severe ME/CFS patient and advocate. Photographer, filmmaker, artist, creative. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊
Martin Hippe @pausedME
7K Followers 471 Following East Westphalia by Nature ⎮Lawyer by Profession | #Musikrecht | #MECFS | @Mirame_Arts | No medical advice!
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
#MEAction Network @MEActNet
20K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Dr Keith Geraghty @keithgeraghty
9K Followers 500 Following Research Fellow | Primary Care, Medical & Health Psychology | People-focused, evidence-based | @FBMH_UoM, @PrimaryCareMcr
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Open Medicine Foundat.. @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
thescottishgeek @scottishgeekttv
2K Followers 645 Following Twitch Partner 💜 YT Partner ❤️ I'm just a Scottish girl who loves video games 🎮 DnD Enthusiast ⚔️
Channel 5 News @5_News
34K Followers 2K Following Bringing you the stories that matter to you, from across the UK and the world. 📺 Weekdays 5-6pm on Channel 5.
camilla @predi_cam_ents
695 Followers 306 Following 🌿 carer for @elle_carnitine / 😷 trying to survive in a fucking pandemic / 🎨 artist
Claire Jones @Claire145
849 Followers 620 Following BCUHB Consultant Physiotherapist. Long Covid Physio Disability & Safe Rehab Committee Member. DProf Student at Uni of Chester. Views are my own.
Ryan Prior @r_prior
6K Followers 878 Following Author of “The Long Haul” book on #LongCovid (@mitpress) Psychology Today “Patient Revolution” Columnist. Fmr: @CNN @tcfdotorg
CrazyClimber @CrazyClimber65
3 Followers 16 Following
Ella Pickover @ellapickover
6K Followers 2K Following When is your deadline? ASAP. Health Correspondent for @PA
Rachel Hall @rachela_hall
7K Followers 3K Following Reporter @guardian | email tips or ideas for stories to [email protected]
Disability Rights UK @DisRightsUK
72K Followers 2K Following We are the UK’s leading organisation run by and for Disabled people, working for justice and equality for all.
Journal of Neurology,.. @JNNP_BMJ
15K Followers 3K Following The latest research in neurological science from JNNP and its gold open access companion BMJ Neurology Open. Access also to @PracticalNeurol & @JNIS_BMJ
Helen Goss @HelenMMGoss
2K Followers 951 Following 🏴 @longcovidkids ❤️🔥 Parent/carer #LongCovidKids 🤘🏼 Advocate #LongCovid 🐾 Cat spam 🪐 Space nerd 🌪️ Chronically persistent force of nature
Ror Preston @RorPreston
2K Followers 553 Following Lead Data Scientist @visible_health 💙 | Organiser @wecrunchme 🗺️ | #MECFS since 2018 | Own Opinions
Tony Britton @WestonMale
133 Followers 471 Following Oddfellow as in @OddfellowsUK. Likes books, beer and local news. Ex-journo and news editor. Now working once again for the fabulous @MEAssociation.
Ben Krishna @BenjaminKrishn3
466 Followers 464 Following Wellcome ECA Fellow trying to understand metabolism and virology with @JamesNathanLab in @MedCambridge, University of Cambridge (he/him)
The Sunday Post @Sunday_Post
23K Followers 1K Following News worth waiting for. Sunday Newspaper of the Year.
Krishnan Guru-Murthy @krishgm
711K Followers 7K Following Main Anchor, Channel 4 News. Unreported World. Ways to Change the World, Strictly Class of 2023, Trustee RBG Kew. Chairman Duchenne UK [email protected]
PolyBio @polybioRF
10K Followers 2K Following 501(c)3 transforming how #LongCovid, #ME/CFS & LongLyme are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
NIH @NIH
1.7M Followers 323 Following Official account of the National Institutes of Health. NIH...Turning Discovery Into Health®. Privacy Policy: https://t.co/wOGwZ3huRk Engagement ≠ endorsement
Samantha Black @anaesthetistSB
683 Followers 711 Following Paeds & Periop Anaesthetist, Patient Info Lead @RCoANews, periop group @APAGBI, Anaes Lead @thames_south, #Shareddecisionmaking #Hypnosis, Mumx2/wife/mountains
Laura Foster (She/Her.. @misslfoster
6K Followers 4K Following BBC News reporter | Trainee Radio 4 newsreader & presenter | Taking a break from health & science stories to cover the east of England 📧 [email protected]
Georgia Roberts @GeorgiaZemoreyR
3K Followers 1K Following Westminster Correspondent @BBCScotlandNews @BBCScotNine 📧 [email protected]
Dr Katharine Seton @Katharine_seton
2K Followers 182 Following ME researcher. Chair of the Young European ME Research Group (@YoungEmerg). Diagnosed with ME in 2009. All views are my own.
Maria-louise Williams @Mariararoo
1K Followers 3K Following Severe M.E warrior (One of the missing millions). Crohn's disease in remission.
Katie @katie_andME
1K Followers 553 Following 19 year old bedridden for over 3 years with severe M.E. ill since 2017 #ME #MECFS #severeME #verysevereME
a_ryback @aryback4
80 Followers 151 Following Current Clare Francis postdoctoral fellow at IGC Uni Edinburgh (Ponting Lab). Obtained PhD from Uni Edinburgh on Wellcome Trust HPGH programme.
Ben Miles @iamdrbenmiles
833 Followers 455 Following Supporting Venture Creation in #deeptech.Rethinking Knowledge. @spinup_science @SAS_investment @protolyst
Lauren Clark @laurenelclark
2K Followers 1K Following Freelance writer + editor | Health, wellness + more | Words in @UKWomensHealth @ElleUK @CosmopolitanUK @TheTimes + others Sign up to my newsletter below...
Laura Elliott @TinyWriterLaura
14K Followers 2K Following Writer, maker, chronic illness incubator. Disabled journo. Words in @guardian, @MetroUK, @theipaper, @BylineTimes etc. Rep’d by @PortyLiterary
𝑫𝒓 𝑵𝒊𝒈.. @DrNighatArif
31K Followers 975 Following NHS/Private GPwSI Women’s Health.📺Doctor on @bbcbreakfast @thismorning 📘Author 𝘔𝘦𝘥𝘪𝘢 𝘦𝘯𝘲𝘶𝘪𝘳𝘦𝘴:𝘫𝘢𝘯@𝘥𝘮𝘭-𝘶𝘬.𝘤𝘰m
ME Group Australia (R.. @MEGroupAust
467 Followers 628 Following ME Group Australia is a registered Australian charity to advance health for Myalgic Encephalomyelitis (ME). Opinion is my own. “Like & RT” are not endorsement.
Dementia UK @DementiaUK
117K Followers 2K Following Dementia UK provides specialist dementia support for families through our Admiral Nurse service. We respond to messages 9-5 Monday to Friday on Twitter.
MND Association @mndassoc
48K Followers 13K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Herefordshire and Wor.. @HWHCT_NHS
7K Followers 1K Following 💙Proud to deliver NHS services in Herefordshire and Worcestershire including mental health, learning disability and community care. Account not monitored 24/7.
Claire Gilbert @clglbrt
429 Followers 526 Following Public Health Registrar in Yorks and Humber, Future Leaders Alumni, former GP. Mum, Wife and Daughter. Views are my own.
Alexis @alexis___me
197 Followers 175 Following Consultant in Health Protection (Public Health) | Severe ME, Long Covid and POTS patient | Advocate | Father | Husband to @clglbrt
Ellie Colton @elliecolton_
4K Followers 995 Following Breakfast Presenter @BBCSheffield Mon-Fri 6-10am ⭐️ Got a story? [email protected] 📧 TikTok ‘elliecolts’ 🧡 Said Heckaroo once and it stuck x
Covid Action Scotland @ZeroCovidScot
3K Followers 3K Following We do not live with Cholera, Polio, Tuberculosis or Typhoid. Do not tell us to 'live with Covid'. #VaccinesPlus Find us on Mastodon: https://t.co/bReKjkOUMH
Patient-Led Research .. @patientled
27K Followers 612 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
Rob Wüst @RobWust
6K Followers 769 Following Assistant-Professor Muscle Metabolism at Vrije University Amsterdam, Netherlands. Interested in skeletal muscle function in health and disease
Times Radio @TimesRadio
72K Followers 163 Following Quality radio from @TheTimes 📻 Follow us for the latest news, in-depth analysis and intelligent discussion of stories that matter. WhatsApp us 👉0333 00 323 53
Sense @sensecharity
33K Followers 4K Following We believe no one with complex disabilities, and those who are deafblind, should be isolated, left out or unable to fulfil their potential.
Jeremy Jeffs @magnetoJJ
1K Followers 2K Following Director at Magneto FIlms, making films for not for profits. Currently shooting photos of #PwME. Living with #ME since 1987
#CharityHour @CharityHourUK
17K Followers 17K Following #CharityHour ran for 10 years on Wednesday 8-9PM from Feb 2014 to Feb 2024. Host @TaheraMayat from https://t.co/lTbDhBzBhi - stay in touch with me on LinkedIn
Emma Slack (she/her) @Emma_Slack1
283 Followers 795 Following Science writer and researcher focusing on chronic illness (particularly ME/CFS) and parental and child health. All views my own.
Karen 🏴�.. @kpearny
1K Followers 412 Following Manchester United❤️Plym RNLI 🧡 has fibro/ Me/cfs 🌳Love nature and the coast🌊 📚 .. (views my own unless retweeted)
𝙳𝚛 𝙿𝚞𝚗.. @DrPunamKrishan
18K Followers 1K Following NHS GP 🏴| Mama | Author @nosycrow | GP @bbcmorninglive @bbcradioscot | Pod @themedicmumpodcast | Columnist @theipaper
Margaret Laverick @margaretlav
754 Followers 817 Following Retired and supporting Invest in ME Research. Caring for my daughter diagnosed with ME 1998, now severe and bed bound. Biomedical research needed NOW.
Walk for M.E @Walk_4_ME
190 Followers 189 Following Official Walk for ME Twitter account. Email: [email protected] FB: https://t.co/USNrTIhlkf Instagram: @walk_for_me_
500 Miles For M.E - R.. @500Miles4ME
89 Followers 55 Following Rob is taking on a 500 mile challenge to raise much-needed funds for 3 charities, fighting to help M.E. sufferers and their carers.Thanks for supporting @MEAssociation so far Please now nominate us again but this time to receive £5,000. Nominations close on Friday (26th April) Nominate here: health.movementforgood.com/index.php?cn=8… Key in our charity number 801279. Then pick 'Health' charity in the drop-down menu.
@MEAssociation @bmj_latest Thank you for sharing this 🙏🏻
A strong statement from the ME Association that I’m very happy to see: “The NHS needs to step up and stop harming patients whose very lives depend on the treatment that should be given to them”
ME Association Statement and Parliamentary Question: People with ME/CFS at risk of starvation Please read the ME Association statement about the lack of understanding and inadequate management of people with severe ME/CFS when admitted to hospital below:…
Excellent BMJ Rapid Response. Thank you Naomi! #ME …
BMJ Rapid Response: Steps doctors and other medical professionals can take today to improve medical care for people with Myalgic Encephalomyelitis #MyalgicEncephalomyelitis bmj.com/content/383/bm…
Thank you @SeemaMalhotra1, Carla's family and @TheChronicColab This visible and vocal support means a lot to so many fearful people with #MECFS too scared to go to hospital and risk this kind of treatment.
#SaveCarlasLife Late on Saturday we met with @SeemaMalhotra1 Carla's MP at West Middlesex hospital. She visited Carla, spoke at length with us, Pierre & Caroline about the situation & has written to the hospital CEO expressing her concern. Please thank Seema for her support 💚
Gulp. After several drafts, I'm finally wading into the query trenches this week. If anyone knows of any agents who are specifically looking for funny chapter books (especially ones with a three-legged dog 🐕), please let me know. Thank you 💙
#voteforMEA takes a minute only! Click on the link below, enter our charity number 801279 and tick Health charity in the drop-down menu. meassociation.org.uk/2024/04/now-we… #mecfs #MyalgicEncephalomyelitis #MovementforGood Thank you!
Now, we're invited to enter this £5,000 draw by those friendly 'Movement for Good' please. Please nominate us! Nominations close on Friday, 26th April. meassociation.org.uk/2024/04/now-we… #mecfs #MyalgicEncephalomyelitis #MovementforGood #voteMEA Thank you!
Now a £5,000 draw from those friendly #MovementforGood people. Time-limited! Nominations close this Friday, 26th April. Go here 👇 health.movementforgood.com/index.php?cn=8…... Type in our charity number 801279. Tick the 'Health charity' box. Then please cross fingers for us!
.@MEAssociation Now a £5,000 draw from those friendly #MovementforGood people. Time-limited! Nominations close this Friday, 26th April. Go here 👇 health.movementforgood.com/index.php?cn=8…... Type in our charity number 801279. Tick the 'Health charity' box. Then please cross fingers for us!
.@JrRawnsley .@MEAssociation From The Times, 17/4/24 - includes substantial quote from Dr Nigel Speight, hon paediatric adviser to The ME Association #mecfs #LongCovid #MyalgicEncephalomyelitis If necessary, click on the image to read the full story.
.@MEAssociation All best to our runners Chris Farrow & Ysabel Ward in the #TCSLondonMarathon today - and to John Morsley running the VirtualLM. You're amazing! Would you like to run for the MEA in 2025? The ballot is open! Closes Friday 26 April tcslondonmarathon.com/enter/how-to-e…
We have raised over £600 so far! The big charity event is on Sunday the 27th of April where I will be shaving my head at the end of stream! There will be party games, donation goals and more all for a fantastic cause @MEAssociation I would love for @TwitchUKI to get involved🎉
.@scottishgeekttv .@Twitch It might be wild out there, but Katy definitely is one of the good guys! | ME Association blog | 20 April 2024: meassociation.org.uk/2024/04/it-mig… #mecfs #LongCovid #MyalgicEncephalomyelitis
.@scottishgeekttv .@MEAssociation .@Twitch It might be wild out there, but Katy definitely is one of the good guys! | ME Association blog | 20 April 2024: meassociation.org.uk/2024/04/it-mig… #mecfs #LongCovid #MyalgicEncephalomyelitis
1/3🌟FREE Autonomic Dysfunction training event🌟 PoTS UK invite Nurses & Healthcare Professionals to this training event being held in Warwick, with option to attend in person or online. Register: share.medall.org/events/autonom… Agenda: potsuk.org/wp-content/upl… #MedTwitter #PoTS
@Claire145 @LWNurses @WeNurses @WeCommNurses @WeStudentNurse @RCNStudents @NurseStandard @RCNNRN @WeSchoolNurses @DrAmirKhanGP @rcgp Hello Claire :) The recordings will be available on our YouTube channel shortly after the event: youtube.com/@potsuk2155?si…
Dr Barnden and his team at Griffith University and the University of Queensland have recently published new findings showing increased neurochemical levels in the brains of people with ME/CFS and long COVID Find out more: bit.ly/3Q2EA51
Exciting news ! Funding for the new PhD study came through from a foundation today. Contacts and paper work to sort out, but we should be good to go in October 2024. Thanks for everyone's support.
Please sign: Urgent Call for the Creation of an NHS Protocol for Severe Myalgic Encephalomyelitis (M.E.): "there is a glaring absence of specific protocols within the NHS to cater to the complex needs of individuals with severe M.E." #MECFS #chronicillness #SevereME
OPEN LETTER: Urgent Call for the Creation of an NHS Protocol for Severe Myalgic Encephalomyelitis (M.E.) If you'd like to read and sign this open letter, you can do so here: organise.network/actions/petiti… #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #SevereME #NICEguideline
Please sign this petition by @MEFoggyDog #pwME #MECFS
OPEN LETTER: Urgent Call for the Creation of an NHS Protocol for Severe Myalgic Encephalomyelitis (M.E.) If you'd like to read and sign this open letter, you can do so here: organise.network/actions/petiti… #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #SevereME #NICEguideline
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