Hippymum @Baybabe75
ME sufferer since 1983, too many co-morbidities to list. I miss the old me. I love old VWs and animals and detest what our country has become due to the greedy Pembrokeshire, Wales, UK Joined August 2009-
Tweets17K
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Followers823
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Following1K
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Likes45K
I've just added my name to @We_OwnIt's open letter to all of Wales' party leaders demanding they commit to fighting for proper NHS funding and opposing NHS privatisation. Take 1 minute to add your name. #NHSPledge weownit.org.uk/act-now/welsh-…
While lying on my couch, disabled by ME/CFS, I sometimes fantasize how my life would have been different if Simon Wessely had been a plumber.
This ......
We’re with you on this @scope. #PersonalIndependencePayments help disabled people with extra living costs &, in this social & economic climate, they need it @RishiSunak. We say no to any cuts or means testing for those payments. RT if you’re with us. 👇itv.com/news/2023-08-2…
One never acknowledged aspect of benefits is that this is money going back into the economy - spent on daily necessities. Not squirreled away off shore. People on benefits ARE economically active and paying £££ in indirect taxes. #gtto #GeneralElectionNow #BBCBreakfast
I am right in thinking everyone wants to Rejoin the EU aren't I? Like if you do RT if you really do
Great news for us potsies.
Air hunger - one of the many scary symptoms of very severe ME. When you exceed your anaerobic threshold just by eating, drinking, moving your arms or having someone in your room. It’s completely crazy but an everyday occurrence that no NHS GP would have a clue about.
Sick of Tories saying disabled benefits need cutting. Time for MPs to become better value for public purse. Let's taper down their wage if they have additional income, cap their expenses, stop subsidised food/drink, second homes etc RT if you agree. #MelStride #Tories
The mistreatment of M.E. patients in hospital makes a mockery of talk about patients' rights and Martha's Rule. #r4today #MECFS #MyalgicEncephalomyelitis
Please share as much as you can. Let's make this little hero's dream come true x
Please share as much as you can. Let's make this little hero's dream come true x
Dear 7 million disabled people in the UK. Please register to vote and remember today. Rishi Sunak has just stood there at a podium and declared all out war on you if you vote him in again. 🙂 #RishiSunak #disabled
I'm so stressed out by this. I know they'll find any way possible to avoid giving out vouchers for medication, meal replacements, supplements and incontinence supplies. If I have an appointment I have to fuel the car and then there's the wear and tear caused by my powerchair.
I'm so stressed out by this. I know they'll find any way possible to avoid giving out vouchers for medication, meal replacements, supplements and incontinence supplies. If I have an appointment I have to fuel the car and then there's the wear and tear caused by my powerchair.
The "PIP bill" is insignificant compared to the money wasted by government incompetence and corruption. #r4today
Telegraph article about announcement of vouchers instead of PIP payments. No paywall. archive.ph/5jE5v
Oh so true 😭
Those who have chronic illness will have fatigue, pain, tachycardia, dizziness and so much more. Yet some days they will still act completely normal and pretend everything is normal and say they are“fine”. Meanwhile everything is not fine. So please be kind.
Urge the Egyptian Government to Address Animal Cruelty at the Pyramids - Sign the Petition! chng.it/K2R4qLZqBD via @UKChange
40 years in and still learning.
Is anyone out there still wondering why super rich Sunak entered politics?
Is anyone out there still wondering why super rich Sunak entered politics?
BladeoftheSun @BladeoftheS
163K Followers 155K Following Author, book https://t.co/NOgy1XvNJX? Preview here https://t.co/Te7LOXdD8k I #followback #TaxTheRich
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Ragged Trousered Phil.. @RaggedTP
106K Followers 47K Following Left wing news, satire and comment. Based on the socialist principles of Robert Tressell's Ragged Trousered Philanthropists. 🏴🇵🇸🇮🇪
Dr Julia Grace Patter.. @JujuliaGrace
275K Followers 62K Following Founder+Chief Exec @EveryDoctorUK. Campaigner, author, doctor (but not working clinically). All views my own. My newsletter:https://t.co/yE1tw35Up4
dave lawrence 🐟�.. @dave43law
49K Followers 37K Following A UK without poverty, for the NHS, for a sustainable future and a life without Tories #GTTO #FBPE #SunakOut #GTTO
Jo @JoJoWildBlonde
11K Followers 8K Following 'Not fragile like a flower, fragile like a bomb' - Frida Kahlo Right wing flag shagging Brexit gammon sizzles not welcome
Marie @Marie28002475
8K Followers 7K Following Determined not to be brow beaten by the Tory lies, corruption & gaslighting. Anti Tory, anti Brexit & allergic to BS. Never forgive or forget.
Illustrator Interrupt.. @FranceyME
3K Followers 2K Following Illustration career interrupted by #ChronicIllness advocating for #MyalgicEncephalomyelitis #LongCovid #GWI #POTS #EDS @franceyme.bsky.social
Hannah Banana 🌹☮.. @hannahgib81
25K Followers 14K Following Woke lefty | Sweary | Pro EU | Anti Racist | LGBTQ+ Ally | Despise the Tories and everything they stand for | SE London
Paula Knight @Paula_JKnight
6K Followers 4K Following Graphic memoir THE FACTS OF LIFE (2017) Kidlit books x3 author. Disabled. Bedbound 5.5yr v severe #pwME Submerging writer. Total Bedass. Print Disabled she/her
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Tracey Roberts @TraceyR64968698
26K Followers 10K Following I hate this government & I have become a bit too obsessed with politics. #StillBrendon’sMum
Phoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.
Neil Franklin @NeilFra97674870
14K Followers 14K Following Love isn’t all you need - justice too! | Ex-research manager | Ex-Mental Health First Aid Instructor | Rescue dog indulger | FPTP = short-termism
Clare willow @mollymalone45
6K Followers 6K Following Bread and Roses, anti-fascist anti-racist and a socialist with no political home. #FreePalestine #FightforthepeopleofGaza
Tracey Burgess @TraceyABurgess
2K Followers 3K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Julie (30% Fullscript.. @julie_stod4545
86 Followers 682 Following Nurse Practitioner. Follows, Likes, RT not endorsements Fullscript Supplements Lifetime 30% Off - Limited Time https://t.co/rAyc8Jsk6f
S.Jones @seastarsal
1K Followers 2K Following Teacher, librarian, ME/CFS cartoonist. ME/CFS for 32 years.
Darcie Slaboda @DarcSlabo
14 Followers 3K Following
BringingTheTruth @jaacq1
19K Followers 17K Following Free Palestine Anti Establishment ChangeTheWorld Retweets not always endorsements. https://t.co/1UnFx53Eyp
I Barwell GENERAL ELE.. @IanBarwell1
16K Followers 16K Following 🇬🇧🇪🇺 TORY CABINET IS CORRUPT. ERG = UKIP GENERAL ELECTION NOW Retired after a career in IT. Proud father and grandad. Pro UK. Pro EU. No DM's.
Louise Badman @badmanlouise1
1K Followers 3K Following A victim of child rape from the age of 11 years old. The perpetrator is my biological father. Campaigning against South Wales Police brutality & misconduct.
Trudy Perricone @PerriconeT74086
71 Followers 5K Following
Hollie-Anne Brooks �.. @HollieAnneB
9K Followers 5K Following Award winning freelance journalist & broadcaster. Disability/politics/travel. Living a beautiful slow life with ME/fibro ✨ Tortured Poet 🤍 LPool N2 💜 SAFC ⚽️
bob @Bobking97
660 Followers 4K Following I love music and fitness I love outdoors I love beautiful view and would love to travel around the world.and be nice to people.
Lucinda @sugatasaek11412
1 Followers 306 Following
weskchukes @weskchukes
404 Followers 3K Following My aspiration are to incite in each individual the motivation and desire to share your story
Jade Savoca @JadieIsTired
677 Followers 621 Following 39F / AZ🌵➡️MN🌲 / Rescue 🐕🦺🦮 mom / Investments 💵 / Music 🎵 / #LongCovid community #FBLC / Politics #NeverTrump
Isidra Bachmann @bachma_isid
60 Followers 5K Following
Carbonara - #ME/CFS #.. @BettinafightsME
2K Followers 3K Following 18ys+slowly dying from #verysevereMECFS #pots #MCAS #heds #migraine #ClimateChange #ClimateCrisis #StopAnimalcruelty #EndSpeciism #GoVegan #FuckRacism #FuckAfD
Liam's Wildlife Pics @lmcwildlife
2K Followers 2K Following 🦅🦊 Hobbyist Wildlife Photographer 📷 OMD OM-1 ii + 100-400mm + 2x ⚽ Coach 🚀 Entrepreneur & Leader @liammcdx @HelloBirdSpot @SHOTclubhouse @XPgroupltd
Andrea Fighting for #.. @MECFSNanoneedle
926 Followers 3K Following Severe #MECFS Patient Bedridden. No energy to speak. #MECFSBiomarkers #FckTheNIH she/her I am #MECFS Diagnostic Biomarkers biggest fan!
Aliyah Maenner @AMaenne
17 Followers 3K Following
sharon askew @88888888881
83 Followers 1K Following
xxx ROSE xxx @TanteRos
2K Followers 2K Following Not much energy/too many migraines. Nature keeps me going #Photography on https://t.co/yKh1ibi9aD… #MillionsMissing
Helge Sverre Risan @HelgeRisan
157 Followers 468 Following Vitebegjærlig og er veldig glad i ting jeg ikke kan. Kan tenkes at jeg har plukket opp ett og annet på veien :) Familieterapeut. ME
shanrobert @shanrobert17
334 Followers 2K Following With spinal epidurals being the go to in pain management you have a high chance of getting a CSF leak. More should be concerned… but most turn a blind eye
Mariam Villetas @m_villet
79 Followers 5K Following
John @Voodoolounge12
3K Followers 5K Following All political parties have failed us. They are corrupt,local,national and international.The revolution will come in waves! Stop the world the Stones are on tour
Ciprian Mihai Marin @Ciprian20Marin
159 Followers 3K Following
Jason I @jason_isaia
831 Followers 1K Following Moderate,Severe Housebound/Bedbound ME/CFS since 2022 💙AFL & EPL
MKMan Graham #AutismT.. @MKMan19
1K Followers 5K Following Passionate to help other carers and their autistic loved ones. If you do not know what law says, how do you know if you are getting what you should?
Meg Samuelson @coastalthinking
330 Followers 904 Following i used to read think write teach (literatures of the South/Africa/Indian Ocean & environment littorals oceans women’s stories). #LongCovid #MECFS
sam @paintingsbysam
999 Followers 2K Following ME/Myalgic Encephalomyelitis/living death, POTS, MCAS, ETC x14yrs LCx4yrs “Like a bird in the tree, the prisoners must be free, yeah”-Bob Marley FreePalestine🍉
Laura Boné @2laurabone
285 Followers 889 Following Electric Vehicle Industry /Fighting ME/CFS & Long Covid
Lacey-mae Greist @LaceyG11034
77 Followers 5K Following
Stephanie Benevento @StephanieB80170
90 Followers 5K Following
Sherell Valadao @SherellV84148
94 Followers 5K Following
M @maryhum82842507
84 Followers 1K Following
ADHDerBiologist @ADHDerBiologist
91 Followers 471 Following Biologist who's also an ADHDer. Tweeting about doing my job with life set on anything but easy mode! She/her. (Also following some long covid + ME/CFS accounts)
Gary Woodburn @Gary_D_Woodburn
1K Followers 221 Following Full time carer, a little bit of local patch birding and photography to keep things sane(ish).
Iola Good @IolaGood15480
33 Followers 5K Following
eggy @cappucinocloud
60 Followers 411 Following #ActuallyAutistic #pwME hooman bean. cat & dog parent. amateur bird watcher. invisible.
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
Nicolle Koeck @koeck_koe
37 Followers 5K Following
Erin Godwin @ErinAPN1
3K Followers 3K Following Mam to daughter battling severe Long Covid. Grasping at answers blowing in the wind. Journo who left media frypan to jump into the law world fire.
maude 🍉 @sheisartmoney
40K Followers 25K Following abstract painter • collage artist Be-bop • Dada • Pyramids • 🌱plant stuff 🦚 love and mercy #LongCovidRuins
Serendipity Journey�.. @SerendipityVan
98 Followers 281 Following Indy. Labour Party member. Homeless van dweller. Artist. #GetTheToriesOut 🌹🏴🏳️🌈🏳️⚧️🇪🇺
Marina Purkiss @MarinaPurkiss
493K Followers 3K Following I’m not always having a go at this Govt…sometimes I’m sleeping | Political Commentator & Podcaster | @jeremyvineon5 | @skynews | @lbc | @thetrawlpodcast
GET TORIES DONE - GEN.. @snb19692
232K Followers 8K Following SODEM. Fighting for our future. #ProportionRepresentation #ToriesOut. To help keep us going: https://t.co/E0IohD1SaN…
BladeoftheSun @BladeoftheS
163K Followers 155K Following Author, book https://t.co/NOgy1XvNJX? Preview here https://t.co/Te7LOXdD8k I #followback #TaxTheRich
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Ragged Trousered Phil.. @RaggedTP
106K Followers 47K Following Left wing news, satire and comment. Based on the socialist principles of Robert Tressell's Ragged Trousered Philanthropists. 🏴🇵🇸🇮🇪
Dr Julia Grace Patter.. @JujuliaGrace
275K Followers 62K Following Founder+Chief Exec @EveryDoctorUK. Campaigner, author, doctor (but not working clinically). All views my own. My newsletter:https://t.co/yE1tw35Up4
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Carol Vorderman @carolvorders
970K Followers 3K Following TV/Best-selling author. @LBC Sunday 4-7pm Free school meals kid at Cambridge, now Educational Philanthropist. Politically independent https://t.co/g9jDJSwPww
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Deborah Meaden 🇺�.. @DeborahMeaden
718K Followers 3K Following Star of Dragon’s Den,Co -Host of the big Green Money Show,Bestselling Childrens Author- instagram and threads @deborahmeaden.
Parody Rishi Sunak @Parody_PM
276K Followers 980 Following Just like the real Prime Minister, only honest and with £730million less in the bank. I survive on coffee – feel free to buy me one here ⬇️
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
dave lawrence 🐟�.. @dave43law
49K Followers 37K Following A UK without poverty, for the NHS, for a sustainable future and a life without Tories #GTTO #FBPE #SunakOut #GTTO
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Jo @JoJoWildBlonde
11K Followers 8K Following 'Not fragile like a flower, fragile like a bomb' - Frida Kahlo Right wing flag shagging Brexit gammon sizzles not welcome
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Marie @Marie28002475
8K Followers 7K Following Determined not to be brow beaten by the Tory lies, corruption & gaslighting. Anti Tory, anti Brexit & allergic to BS. Never forgive or forget.
Martin Hippe @pausedME
7K Followers 474 Following East Westphalia by Nature ⎮Lawyer by Profession | #Musikrecht | #MECFS | @Mirame_Arts | No medical advice!
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Ror Preston @RorPreston
2K Followers 555 Following Lead Data Scientist @visible_health 💙 | Organiser @wecrunchme 🗺️ | #MECFS since 2018 | Own Opinions
Hollie-Anne Brooks �.. @HollieAnneB
9K Followers 5K Following Award winning freelance journalist & broadcaster. Disability/politics/travel. Living a beautiful slow life with ME/fibro ✨ Tortured Poet 🤍 LPool N2 💜 SAFC ⚽️
Turn2us - Tackling Fi.. @turn2us_org
22K Followers 4K Following Turn2us is a national charity tackling financial insecurity together. Use our Benefits Calculator and Grants Search. Monitored Monday to Friday, 9am to 5pm.
Dr. Sabine Hermisson @SabineHermisson
5K Followers 2K Following PD Dr. (empirical education research, religion) mother of Mila who suffers from very severe ME/CFS (Bell 0) M: @[email protected]
Andrea Fighting for #.. @MECFSNanoneedle
926 Followers 3K Following Severe #MECFS Patient Bedridden. No energy to speak. #MECFSBiomarkers #FckTheNIH she/her I am #MECFS Diagnostic Biomarkers biggest fan!
MKMan Graham #AutismT.. @MKMan19
1K Followers 5K Following Passionate to help other carers and their autistic loved ones. If you do not know what law says, how do you know if you are getting what you should?
Jason I @jason_isaia
831 Followers 1K Following Moderate,Severe Housebound/Bedbound ME/CFS since 2022 💙AFL & EPL
Autism care and share @autcareandshare
53K Followers 10K Following I'm Adam | Proud Father of 3 | Full Time Carer |My Eldest Son Ryan is autistic. [email protected]
ChronicIllnessHumor @HumorChronic
989 Followers 3K Following Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for a while. #chronicillness #autoimmune #funny
Pete Wright @PeteWri71368222
3K Followers 4K Following Socialist. Retired engineer and staying retired. Unite, but no levy. Dad, granddad, great granddad Most of the typos are my own. No DMs please. I will not reply
Patient-Led Research .. @patientled
27K Followers 615 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
BaziaZeb @BaziaZeb
657 Followers 2K Following Live Authentically. Cmplicted by chrnic dis-ease. 23 yrs w #MyalgicEncephalomyelitis, Covid Competent
Jack Cornish @cornish_jack
5K Followers 2K Following Head of Paths @RamblersGB // The Lost Paths out now - events & order in linktree below // Walking every street in London // Views my own etc.
Ellie Fry @iEllieFry
3K Followers 1K Following Deputy Online Features Editor @DailyMirror | Previously @Independent | Contact: [email protected]
Etta Loveday @EttaLovedayME
355 Followers 172 Following She/Her, Rising awareness for people living with severe/very severe ME! #ME #SevereME
Sonic Death Monkey @Parkesy1701
1K Followers 3K Following Myalgic Encephalomyelitis (ME) sufferer. Ill since Nov-19. On long term sick trying to keep it together for my family. Just about managing. #ME #POTS #MCAS
Dr Nicola Clague-Bake.. @ClagueNjc36
4K Followers 2K Following Physio @LivUni co-founder @physiosforme | PhD | neuro rehab/ex physiology/fatigue/healthy lifestyles/mental health/ME/Longcovid/EDI/all views my own she/her
chj#SaveTheNHS @cjstalbansfox
1K Followers 3K Following
fhronesis @fhronesis
338 Followers 2K Following #MECFS #EM😶🌫️ Sujet manquant EM = Encéphalomyélite Myalgique PEM/MPE= Malaise Post-effort
Hugo @mx__worldwide
592 Followers 1K Following They/them | 28 | ME/CFS since 2016, (very?) severe since 2022 after covid infection | Severe hyperacusis | Pro disability justice & pro Palestine 🇵🇸
Andrew Green @AndrewG76201347
1K Followers 715 Following ME/CFS, POTS, MCAS. Female (ignore name). I post anonymously because I share medical details of my child too young to consent to public sharing.
Lena @Lena____16
343 Followers 686 Following Daughter with very severe ME | ME myself | Two of the #millionsmissing | ME - Myalgic Encephalomyelitis
Maddy @maddyoby
572 Followers 887 Following Spoonie with ME/CFS. Mostly tweet about disability and women’s sport (especially netball & cricket 😍). Aspiring artist who couldn’t draw.
Margaret Laverick @margaretlav
755 Followers 819 Following Retired and supporting Invest in ME Research. Caring for my daughter diagnosed with ME 1998, now severe and bed bound. Biomedical research needed NOW.
Tricia @Tricia16695450
225 Followers 280 Following Wishing I actually had a life so I could put something here for my "profile". Have had #MyalgicEncephalomyelitis for over 29 years. Waiting for a cure. #MECFS
Honour Luckins 💙 {.. @hons65
387 Followers 593 Following Slightly bonkers, and young at heart.....#MECFS....she/her
sam @paintingsbysam
999 Followers 2K Following ME/Myalgic Encephalomyelitis/living death, POTS, MCAS, ETC x14yrs LCx4yrs “Like a bird in the tree, the prisoners must be free, yeah”-Bob Marley FreePalestine🍉
Dr Matt Prescott @mattprescott
27K Followers 19K Following Oxford DPhil in Zoology, Environmental Rating Agency (2017, English Water Company / Sewage Report), Ban The Bulb, @BanCoalOrg @RICOactUK #TrumpBrexitRussia
Jenny Meagher @JennMeagher
1K Followers 1K Following Life stolen by Myalgic Encephalomyelitis. Waiting to be rescued by science. Science waiting to be funded by governments. #MECFS
Carbonara - #ME/CFS #.. @BettinafightsME
2K Followers 3K Following 18ys+slowly dying from #verysevereMECFS #pots #MCAS #heds #migraine #ClimateChange #ClimateCrisis #StopAnimalcruelty #EndSpeciism #GoVegan #FuckRacism #FuckAfD
Liz Burlingame @LizMEActGA
812 Followers 990 Following Striving to live deliberately from my bed @MEActionGA #MillionsMissing #pwME #CFS
Amy McLaughlin @PeonyLeaves905
1K Followers 3K Following Painter. Lover of art and nature. PwME since 1987.
Aliinthewoods @aliinthewoods
514 Followers 598 Following Trapped in post-viral severe-moderate M.E. life since 2013. NEW Trifecta ~ POTS, MCAS + hEDS. Newer Diagnosis: Hashimotos. T3 is the bomb!
Katie @KatieAc23
747 Followers 2K Following #MECFS 💔 Rights for women & girls 💫 Safeguard our children ❤️ Stop illegal immigration! Look after own citizens first 🇬🇧 Views are my own
Leonie Potgieter @Despicable_M_E
883 Followers 2K Following Living with M.E. as best I can. Love nature, humans not so much.
Kajsa🐈💙💛 @catskajsa
2K Followers 2K Following #pwme #MyalgicE Dream of being alive again, before I die. Brain’s out of order. My 🐈🐈⬛ forever in my heart. 🇺🇦#StandWithUkraine #NAFOCatsDivision #TeamYuri
Treacle Goblins @TreacleGoblins
662 Followers 528 Following Living with M.E. is like goblins broke into your house and threw you in a big pot of treacle. Viral onset in 2013. Late 30s. #pwME #MECFS
Rosalynde Lemarchand @frenchros
2K Followers 2K Following An M.E. sufferer for 20 years. Wanting to help others with this illness, raise awareness and promote understanding through my poetry and my blogs
Tania Melnyczuk @ekverstania
13K Followers 8K Following Disability rights activist, artist & lifelong learner. Mostly at https://t.co/jlCNiy321g My handle is @alphabetania on Bluesky and Post. 😷
Jo Hunt (activism, al.. @HealthHubris
1K Followers 1K Following Disabled psy therapist, researcher & activist. #MECFS #Chiari #CCI #EDS #longCovid. she/her. Animal lover. Here for intersectional social justice
M. and S. Shaw @twoShaws
2K Followers 3K Following Person w/ severe #MyalgicEncephalomyelitis #MyalgicE (ME/cfs) & her M.E. advocate spouse/caregiver. Before: Architect, software interaction designer.
Susan - M.E/Fibromyal.. @mefibromyalgia1
2K Followers 5K Following ME/FM patient since 2006, I hope some info helpful to those unaware of them you can also gain an insight. Advocate & sufferer invisible illnesses/chronic pain
Alisontomyradio @arisonsned
3K Followers 5K Following ME MCAS Lyme.Still with humour.Satire Music.Dream of life without illness. Wanna ride my bike. Cat & Dog Botherer.YP Counsellor retired. Retweet not endorsement
Kerry Newnham @Squashedhedgi
1K Followers 942 Following Tube-fed, bedbound, a very severe M.E. veteran, wounded on the battlefield. Unlikely to come out of this intact or alive. UK has allowed ME neglect. LW-green
Kirstie Sivapalan @KirstieSivaP
3K Followers 2K Following Making a noise about the injustices & lack of support for #pwME #LongCovid 💙 @[email protected] 🐘 @KirstieSivap 🐳 @kirstiesivapalan 🧵
Esther @ELHopkins
12K Followers 11K Following Composer. Interested in #CleanAir #Wildlife #ClimateChange
Stop Starm and Sunak @stopcamnmili
860 Followers 896 Following The UK electorate haven't voted for a majority government since before the war, but most of the time we get one. It's time to try to stop another one.
Ed Markey @SenMarkey
258K Followers 2K Following Senator for Massachusetts. Chair of Clean Air, Climate & Nuclear Safety and Primary Health & Retirement Security subcommittees. Fighting for a Green New Deal.
Science News @ScienceNews
5.1M Followers 555 Following Covering the latest news in all fields of science. Publisher @society4science. See also @SN_Explores.
Just heard that my inspiration, my old brass tutor, has been taken into a dementia unit. My heart is breaking. Such a wonderful, vibrant man. #MusicMatters
Good morning lovely people. Have a terrific Tuesday 🥰🥰🥰 Kind words can be short and easy to speak, but their echoes are truly endless – Mother Teresa
Am home and back to work. Sore legs but so happy and grateful to have met so many amazing people in Belgrade 🇷🇸 To reach £50k whilst I was out there was a dream 🙌 Race report coming soon. Then 4 weeks off running and back to training for Tirana, Albania in October 🇦🇱
#SaveCarlasLife #BringMillieHome
#MEcfs Westminster Hall debate: We have sent your open letter to @sajidjavid and cc'd @actionforme @SonyaChowdhury in. The below is what we said - we hope it's OK #SaveCarlasLife #BringMillieHome: Good afternoon, Firstly, we would like to thank Sajid for convening the…
Ok. I'm exhausted. I've stayed up until 10pm. I've had less than 2hrs sleep that was totally my own doing. I think I might die if I don't go to bed soon.
So to continue my litany of disasters today, I was dyeing some trousers black and I forgot to put my rubber gloves back on when I wrung them out to rinse. That was so staggeringly dumb I should really sit in a corner looking at the wall for the rest of the day. 😞
Rishi Sunak's says he will scrap National Insurance. In 2022/2023 National Insurance brought in £176bn in tax. More than the cost of the NHS. Rishi Sunak can't scrap National Insurance, unless he scraps the NHS. He would love an excuse to do that.
sorry but i still can't get over the fact that i now own shelves that look like ones i spent years saving to my pinterest boards????
What do you think of our Prime Minister @RishiSunak as a result of him blocking swift bricks ? Comment below. Don’t hold back - swifts’ existence is at stake. Perhaps he hasn’t quite understood…..
1 year ago TODAY my swift brick petition closed with 110k signatures leading to a proposal supported by experts. WHY no action? 'Apparently @RishiSunak doesn’t like the idea&has blocked it.' - @ZacGoldsmith Our PM doesn't want to save our icons of summer from extinction.
Came across this wonderful stag asleep under a tree on my walk in Richmond Park this afternoon.
Morning people in my phone. It’s grey and overcast a bit like my mood tbh Anyone else feeling like this ? I can’t wait for Friday because even if it’s raining it will be a happy day due to the election results !! #LocalElections2024 #ToriesOut663 #BringItOn
Good to see @vaughangething sticking to the @WelshLabour playbook - deny, deflect, delay - “nobody is interested in donations” he says 😡 Reminds us of the time @MarkDrakeford said “the world has moved on” when denying us a #WalesCovidInquiry 😡 bbc.co.uk/news/uk-wales-…
If you know what this is you’re old and a bit of a geek. Do you know?
i finished my duck drawing :3
drawing lil ducklings instead of going to the psych ward 🦆
I often feel misunderstood by the 'pain chart' at the doctor's office...😤 With #Fibromyalgia #ChronicPain, our '7' isn't like everyone else's❗️ I'm thinking of printing & bringing my own chart to help doctors truly understand. Might be worth a try!🤷♀️ Feel free to print it too!🧚♀️
I am so exhausted of feeling so bad every day. I don’t think I have the mental strength to fight and survive this illness if the fundings and researches don’t go faster. We are in so much suffering, this should be a national emergency. How they are allowing this to happen to us?
After getting #longcovid I look back and see a history of MCAS. Big bites like goose eggs. Leaving a rodeo bc the dust made me sneeze and eye water ridiculously bad. Allergic to grass all my life etc… anyone else?
@i_iratus I was once told grief was like walking while being hit with waves. At first, those that knock you off your feet, wash over you, drain you. In time the waves get less strong, softer, less frequent, but they come along always, often unexpectedly, but always there. Sending 💕
Grief. That old, unwelcome, yet ultimately unavoidable friend, has many faces - some we recognise at a glance, others sneak up on us when we least expect it. It’s a shape-shifter, adapting to the contours of our souls, filling spaces we didn’t even know were empty until they…
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