Search results for #pwME
@DrZedZha having ME/CFS I've unlocked a new hellscape level that is *unfuckingbelievable* Doctors psychologising every symptom, denying this is a biological disease, disbelieving how truly debilitated it leaves you *every* #pwME has experienced this 🤬 #MedicalGaslighting #MedicalMisogyny
The spot is available due to a cancellation. My own son has an appointment booked during this visit as consultant in question has over 35yrs of experience of paediatric ME. My son has #LongCovid & I suspect also meets criteria for ME. #pwME #MECFS #Dublin
This month is M.E awareness month. Pls, pls help support the #pwME community by sharing content & increasing awareness I've had #MyalgicEncephalomyelitis for over a decade. #MECFS
This month is M.E awareness month. Pls, pls help support the #pwME community by sharing content & increasing awareness I've had #MyalgicEncephalomyelitis for over a decade. #MECFS
Any idea about these results? They were referred as normal but what about the red highlighted ones? #pwme #mecfs #longcovid
What has shown most difference for severe me/cfs? #mecfs #pwme #longcovid
I've started low Ativan doses and they give me some minutes to talk and be able to use the restroom. I'm really afraid of what's going to happen when it stops working or I get addicted to it. Being drugged to be able to do the slightest is scary! #pwme #longcovid #mecfs
#pwME An excellent article showing @CDCgov actually doing its job properly in the case of a 1956 #MyalgicE outbreak in Florida, versus doing the opposite of its job in 1985 with the Nevada outbreak. #MyalgicEncephalomyelitis
If anyone had any opinion on my gi map I had done last summer and still had nobody be able to read it. #pwme #mecfs #longcovid #gimap
ongoing cellulitis saga continues with me not being heard by my primary care provider re we need to do much longer than normal courses of antibiotics to stamp it out. The reply being "I'll learn for next time if that does happen" vs listen to my 44yrs of over 100 infections #pwme
ongoing cellulitis saga continues with me not being heard by my primary care provider re we need to do much longer than normal courses of antibiotics to stamp it out. The reply being "I'll learn for next time if that does happen" vs listen to my 44yrs of over 100 infections #pwme
🤫… Can you keep a secret? <Whispers> My mixed media #Sophiespostcard artwork is finally finished! 😅 It’ll be in the post shortly, as I have PEM kicking in RN… 😎🙉😴 #pwME #ArtistOnTwitter #ArtistOnX
🤫… Can you keep a secret? <Whispers> My mixed media #Sophiespostcard artwork is finally finished! 😅 It’ll be in the post shortly, as I have PEM kicking in RN… 😎🙉😴 #pwME #ArtistOnTwitter #ArtistOnX
#pwme #pwinsomnia Can I eat like an hour after taking my pills to sleep ? Could it make me sick ? Like stopping digestion ? Or things like this
Anyone got a place to stay? Anyone in #Melbourne, #Australia. Please. Can pay #rent & additional expenses in exchange for help. Will negotiate. Please get in contact. Happy to answer questions. #ChronicIllness #Housing #HousingCrisis #pwME #DisabilityTwitter #NEISVoid #LongCovid
Thank you @sajidjavid (UK’s ex-Health Minister) for leading debate on #MECFS at Westminster today May 1. Australia can learn from your Delivery Plan for #MyalgicEncephalomyelitis & concern for #pwME who have suffered decades of neglect. @Mark_Butler_MP @healthgovau @gedkearney
Thank you @sajidjavid (UK’s ex-Health Minister) for leading debate on #MECFS at Westminster today May 1. Australia can learn from your Delivery Plan for #MyalgicEncephalomyelitis & concern for #pwME who have suffered decades of neglect. @Mark_Butler_MP @healthgovau @gedkearney
If you are debating attending one of our upcoming five Dr Speight events in Ireland, check out this interview: irishmecfs.org/blog/dr-speigh… #MEcfs #PwME
If you are debating attending one of our upcoming five Dr Speight events in Ireland, check out this interview: irishmecfs.org/blog/dr-speigh… #MEcfs #PwME
What would you do if you got covid again as a very severe me/cfs and long covid patient (despite sit back and cry)?I'm trying to note down a sort of "plan". Paxlovid didn't help me at all last time. #pwme #mecfs #longcovid