Sarah O'Connell @SarahOC_MECFS
ME #pwME patient 10 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover East, Rep of Ireland Joined August 2021-
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Likes25K
Latest UK data for self-reported #LongCovid for England and Scotland A rise in cases, despite the removal of access to testing and vaccination. Long COVID is damaging public health!! We need urgent investment to continue our response to a pandemic that is not over!!!
Latest UK data for self-reported #LongCovid for England and Scotland A rise in cases, despite the removal of access to testing and vaccination. Long COVID is damaging public health!! We need urgent investment to continue our response to a pandemic that is not over!!!
#Longcovid is mentioned!
#Longcovid is mentioned!
How do the media portray #LongCovidKids. Charity Founder @SammieFMc collaborated with @Dr2NisreenAlwan and @ChloeConnor7 to find out.
How do the media portray #LongCovidKids. Charity Founder @SammieFMc collaborated with @Dr2NisreenAlwan and @ChloeConnor7 to find out.
We're thrilled to announce our #WorldMEDay event Bridging Borders – Global Voices from the World ME Alliance on May 10th! We will showcase the committed work of non-profit organisations from across the globe, all building a #GlobalVoiceForME! Register: buff.ly/4b30ugO
@natashaloder Thank you for this brilliant article. There are so many biological causes of mental illness symptoms that are just never considered. I hope the change will come soon. "Biology is coming, whether psychiatry is ready or not" 👏❤️ #Pans #Pandas #Lyme #Bartonella #MCAS
This is appalling @BernardGloster Our health and our lives utterly destroyed and you suggest 4 years pay makes up for that? As an aside, I was told that #LongCovid wouldn’t qualify for CIP. And TRR is only a fraction of our pay. @forsa_union_ie @INMO_IRL @SIPTU @LCAIreland
This is appalling @BernardGloster Our health and our lives utterly destroyed and you suggest 4 years pay makes up for that? As an aside, I was told that #LongCovid wouldn’t qualify for CIP. And TRR is only a fraction of our pay. @forsa_union_ie @INMO_IRL @SIPTU @LCAIreland
Hospital stays for #LongCovid or #MECFS patients... A potentially disastrous but often necessary event..
Hospital stays for #LongCovid or #MECFS patients... A potentially disastrous but often necessary event..
“Very Little Evidence That Ship Was Damaged By Iceberg” Says Titanic Captain.
This is deeply disturbing. How much longer is West Middlesex Hospital going to mistreat Carla? Is there anyone who can stop this abuse? @LesleyWattsCEO @metpoliceuk @VictoriaAtkins @Channel4News @itvnews @BBCLondonNews @BBCNews #SaveCarlasLife #MECFS #SevereME #MedTwitter
This is deeply disturbing. How much longer is West Middlesex Hospital going to mistreat Carla? Is there anyone who can stop this abuse? @LesleyWattsCEO @metpoliceuk @VictoriaAtkins @Channel4News @itvnews @BBCLondonNews @BBCNews #SaveCarlasLife #MECFS #SevereME #MedTwitter
In The Face Of Threats Like Avian Flu And New Covid Variants, Now Is The Time To Redouble Our Complacency.
Been advocating for 2 severally ill #pwME. Those outside ME/LC world can't fathom whats happening to very severe patients due to medical ignorance. This could be any of us, if right circumstances come along & push ME from mild/moderate to severe. Ignorance kills #pwME & #pwLC!
I truly believe we need an ME Legal Defence Fund, to be ready to go when extremely severe ME patients are trapped & pushed torturously towards death in NHS hospitals at the hands of psychiatrists🛡️ We need the power to fight with every tool available to us @actionforme…
SARS-CoV-2 Mitochondrial Metabolic & Epigenomic Reprogramming in #COVID19 Free sciencedirect.com/science/articl… "To determine the effects of #SARSCoV2 infection on cellular metabolism,we conducted an exhaustive survey of the cellular metabolic pathways modulated by SARS-CoV-2 infection"
I've needed our wonderful #NHS recently, unexpectedly but routine at first, then today as an emergency; I'll be staying 4 a bit. EVERYONE has been amazing, care exemplary, despite it clearly being on a shoestring & skeleton staff. Pay these people properly. Support them. Please.
An inspiring presentation from @drclairetaylor at this month's I4PC meeting. #Hope Learning points & evidence that supports action! & of course - discussion on the urgent need for #paediatric #research Thx to @surf4children for organising. #LongCovidKids #LongCovid #ChildHealth
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
GeoCK @GeoEduOne
6K Followers 953 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
elle W @elleW902
4K Followers 5K Following Nature lover🌊⛰wx watcher🌪️❄️ Ally🌈 ♍️creative🖌#LongCovid Sept 2021 #Dysautonomia #LCPOTS #LCHashimotos KINDNESS is the #1 attribute in a human❤
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
Covid Solidarity @CovidSolidarit1
13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”
Bridget O'Shea @Bridget_OShea
2K Followers 2K Following Certified medical #writer, enthusiastic #journalist, cat mom, @UChicagoProEd, ME/CFS patient. Freelance journalist. Available for medical writing and editing.
Natalia @NataliaHodgins
7K Followers 1K Following Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Clare Daly @clarejdaly
6K Followers 1K Following Usually a #WomanInTech - Year 4 of #LongCovid (2020) | #MECFS (1993)
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
DrAqm @draqam
312 Followers 264 Following #CBT //I am a clinical psychologist My approach is CBT Yes, a psychologist without borders...
Dan Pettersson 🇸�.. @PettDanFTW
1K Followers 4K Following Engineer, management phd student, mtg player, covid long-hauler.
Ffithe @ffithe7817
2 Followers 124 Following
Douglas Sweetman @Stockzorg
323 Followers 570 Following Cyber Security professional including vulnerability and threat management and security incident response team leadership.
yj @JohnYelsung
268 Followers 2K Following
Chris Young @Chrisyoungusa4
52 Followers 966 Following
Ayman Fanka @fanka308
60 Followers 518 Following Join us in helping Ayman and his family escape the turmoil of Gaza before the Israeli incursion on Rafah. Ayman, a devoted father, is tirelessly seeking assista
El Veganizador @El_Veganizador
43 Followers 397 Following I have infinite compassion but limited patience. My righteous smacks have the power to turn cruelty and selfishness into kindness for animals.
Equal Vision @EV_Merseyside
1K Followers 6K Following Our work is community-driven. We're Liverpool's independent youth research & policy body. Peer-led support for multiple morbidities is our other priority
Fevalda Milas @FevaldaM
2K Followers 4K Following Fan of sports ⚽️ [email protected]//snap 👻:milasfevalda// IG: milasfevalda🏴Manchester United ♥️Glory’s United
Maria reyes @Mariareyes90238
8 Followers 148 Following
Danielle Beckman @DaniBeckman
24K Followers 6K Following Neuroscientist 🇧🇷 at the @CNPRCresearch working with primates. I like taking pictures of weird things happening in the brain 🧠🔬. #NeuroCovid is real.
Rachel Schraer @rachelschraer
12K Followers 3K Following Senior reporter for @BBCNews covering health, misinformation & internet culture. Making radio for @BBCTrending. ✍[email protected]. uk
BUCHANAN: Dublin Time.. @RobLooseCannon
16K Followers 15K Following Drinker with a writing problem. #Irish #news #poetry #history #politics #Dublin Married to @alanlambodublin https://t.co/v0q7LvJBQ8
Greater Manchester Lo.. @GMLongCovid
37 Followers 234 Following We are a registered charity set up to help people in Greater Manchester and surrounding areas affected by Long Covid. (Charity No 1205165).
Lara Crowther @fillthewhole
5K Followers 5K Following BSc, MRes Neuroscience, BMedSci, PhD Med Ed (& life) on hold due to covid caused #longcovid #pots #mcas #adenomyosis #hypothyroid Ex PT & yoga teacher 😷
Janie O'Donnell @awesomesheltie
69 Followers 783 Following
Ilona Rukh Khan @ilona_pilgram
1K Followers 3K Following SRKian 🕺👑 Jawan 02.06.23 JimCarreyFan 🦸♂️ JohnnyDeppFan 🤵🏻 💚❤️ *️⃣ 365 ❤️🔥 💉 😷
Fire stick Tv @firestick_81
342 Followers 5K Following Anyone who wants best premium IPTV service for all devices Fire stick .ibo player .smart tv . android tv . massage me on WhatsApp.https://t.co/btHNO18yXW
El Clamp @el_clamp
119 Followers 642 Following Of Lazarus Clamp, but actually sometimes tweeting. Also now @[email protected]
Don Ford - The People.. @DonEford
13K Followers 2K Following You shouldn't follow me unless you want a front row seat to the end of the world as we try to stop it. Tips accepted but not required https://t.co/oqE6f6pI8H
Pádraigín @BecquartPatric1
144 Followers 183 Following Advocate & Long Covid member #apresj20& #longcovidirl since March 20.Animatrice gr de parole 🇨🇵.Insta:mylongcovidjourneybypatricia
Rebecca Davis @RebeccaD84
588 Followers 3K Following Interested in people, places and ideas | Policy | Interdependence | Imagine better | @WIPLive alum | Explorer | Mum | #CleanIndoorAir
Fergal Bowers @FergalBowers
145K Followers 19K Following Health Correspondent, RTÉ News, Ireland. NUJ member 44 years. Author. Member AEJ. Views here my own, not of RTE. Follow, or retweets, not an endorsement.
Arthur Seat @zeeofgee
267 Followers 3K Following Interested in art, politics, music, food, drink, tv, books, travel. ( Likes are not an endorsement - mainly a bookmark for me )
Joe Finnegan Show @JoeFinneganShow
3K Followers 1K Following 'The Joe Finnegan show' is the flagship show on Shannonside Northern Sound, on air weekdays 9-11am. Contact the show 24/7 on 0818 22 7 100 Listen Live at link
Eoghan Murphy @eoghanymurphy
6K Followers 5K Following Managing editor, Shannonside Northern Sound news. Email: [email protected] Anonymousy via Threema: PUMKT6XV
Terrie @Terrie394364523
0 Followers 36 Following
Niamh Lyons @greenfairy79
8 Followers 91 Following
Fiona O Brien (Kerrig.. @FionaOB35063891
12 Followers 134 Following Community RGN/Schools immunisations, HSE South . All views are my own.
Fonch @Fonchh13
3 Followers 11 Following
Fionn Ó C @fionn_o_c
649 Followers 664 Following
Cathryn @Cathryn78938293
1 Followers 36 Following
Gillian Mathewson @gmathewson1
940 Followers 1K Following Rep for Scotland PANS/PANDAS UK. Former Principal Teacher of Maths. Former Engineer. Mum. Wife. Carer. Personal account- all opinions my own.
OQ @Nnwwzz124
1K Followers 4K Following
le petit mec @jasperkard
167 Followers 326 Following jasper || 26 || he/him || donegal || probably thinking about a Picture, or beating dairy intolerance
Christoph Abelard @ChristophA68231
22 Followers 385 Following
Fiona McGuire @princessfio
738 Followers 2K Following GP, public health Eskimo and grammar aficionado. She/her
Christine Sweeney @Christi94047906
45 Followers 156 Following
Samuel Rosenblatt @Rosenblades
231 Followers 697 Following Cheesephobic, former magician and jump roper, juggling gefilte fish and Freud, more than just my Macs tennis record #GoMacs ✡️
Force Five Podcast™ @forcefivepod
4K Followers 3K Following MOVIE TOP 5 LIST podcast w/ a different guest and topic each show. Voted Best Podcast of 2024 (by my mom). Inquiries: forcefivepodcast(at)gmail(dot)com
Mj Panchal @MjPanchalJr
5K Followers 3K Following Graphic & Web designer-developer https://t.co/8EnirUMuIL Engineer, Science Enthus., FamilyMan, Art & Design, Old-school, IMDb-top-list & Books.
Henry Jin @jinnyboiii
1K Followers 4K Following Building @withLeoAI | AI Toolkit for Teachers https://t.co/4SSkxVltTn @Harvard and @UCBerkeley alum
Amalie Herman @amalie_herman
36 Followers 489 Following
Erliza Louzada @LouzadaErliza
13 Followers 76 Following “There is a light at the end of the tunnel, but the only way out is through.” ~ David Allen
Chronically Illumise .. @ChronIllumise
21 Followers 238 Following Lily. #pwME, pwPOTS, Pokémon fan (she/her).
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Shaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
GeoCK @GeoEduOne
6K Followers 953 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 723 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
Amanda Morris @AmandaMoz
94 Followers 221 Following NHS, Public Health Worker, Long covid since Nov 2020 #longcovid #StopRestPace #teamclots
Rachel Schraer @rachelschraer
12K Followers 3K Following Senior reporter for @BBCNews covering health, misinformation & internet culture. Making radio for @BBCTrending. ✍[email protected]. uk
Lara Crowther @fillthewhole
5K Followers 5K Following BSc, MRes Neuroscience, BMedSci, PhD Med Ed (& life) on hold due to covid caused #longcovid #pots #mcas #adenomyosis #hypothyroid Ex PT & yoga teacher 😷
Ilona Rukh Khan @ilona_pilgram
1K Followers 3K Following SRKian 🕺👑 Jawan 02.06.23 JimCarreyFan 🦸♂️ JohnnyDeppFan 🤵🏻 💚❤️ *️⃣ 365 ❤️🔥 💉 😷
Janie O'Donnell @awesomesheltie
69 Followers 783 Following
Sally Bourliakas 💙 @SallyBourliakas
2K Followers 1K Following Covid is Airborne wear FFP2/3 masks! Air filtration needed in schools & workplaces now! I’ve had long covid for 4 years. Mum, scientist, Sci-Fi reader ☮️ 🐈 🪄
Rebecca Davis @RebeccaD84
588 Followers 3K Following Interested in people, places and ideas | Policy | Interdependence | Imagine better | @WIPLive alum | Explorer | Mum | #CleanIndoorAir
Wreckedfromlongcovid @WreckedfromLC
24 Followers 95 Following
Eoghan Murphy @eoghanymurphy
6K Followers 5K Following Managing editor, Shannonside Northern Sound news. Email: [email protected] Anonymousy via Threema: PUMKT6XV
OQ @Nnwwzz124
1K Followers 4K Following
Gillian Mathewson @gmathewson1
940 Followers 1K Following Rep for Scotland PANS/PANDAS UK. Former Principal Teacher of Maths. Former Engineer. Mum. Wife. Carer. Personal account- all opinions my own.
Christine Sweeney @Christi94047906
45 Followers 156 Following
Fiona McGuire @princessfio
738 Followers 2K Following GP, public health Eskimo and grammar aficionado. She/her
Force Five Podcast™ @forcefivepod
4K Followers 3K Following MOVIE TOP 5 LIST podcast w/ a different guest and topic each show. Voted Best Podcast of 2024 (by my mom). Inquiries: forcefivepodcast(at)gmail(dot)com
simon graingerboy @Graingerboyo
3K Followers 791 Following Musician SEN & Autism Music Ed Specialist Living with ME/CFS and Otosclerosis Once-A Man Called Adam(Live Keyboards) Electrique Boutique(MinistryOfSound)
What the ADHD? | Sydn.. @WhatTheADHD
57K Followers 881 Following introverted extrovert • weird mom • 30, nerdy, & crying • recovering academic • always anxious • hEDS zebra • gamer • she/her 🇲🇽🇺🇸🏳️🌈
Safe Inside - Clean T.. @SafeInside2024
677 Followers 1K Following Building a database of places with clean air protocols https://t.co/FXLlVEfc4I please read, like and repost pinned tweet to help spread the word.
JeanneWrites @JeanneMcArdle
878 Followers 1K Following Studying Narrative Medicine @ Columbia. Cornell MPS Communication. Chronic dynamic illness/Disability: cEDS, Graves’, hyperPOTS. #Writer.
Leah McElrath @leahmcelrath
136K Followers 3K Following Psychology, geopolitics, marginalia • Making sense of a world that doesn’t • @smithcollege BA, MSW • @LSEalumni • #ActuallyAutistic #MECFS #MCAS #POTS
this xirl @this1wierdgirl
3K Followers 1K Following Hon. ChillCitizenOfEarth, coaxing celebrities to encourage blood donation, fangirling over science: fictional & not.
Francis Watts 🏳️.. @kilowattsup
244 Followers 911 Following Francis. Baby Physicist, full time sleeper, crafter and enjoying the little things! Opinions are my own He/they https://t.co/3XOU8qOhst
Kira Brook @KiraBrook
292 Followers 975 Following
Deb (parody) #LeagueO.. @deborahbrian
4K Followers 4K Following Professional research wrangler, working to make better academic futures, especially for #WomenInScience and #ECRs. Opinions my own; fools not suffered. she/her
Abraham @AbrahamAubry
2K Followers 4K Following Civil Engineer-Architect. Urban Planner. Passionate about design, architecture, art and science.
Simone @phoenixme.bsk.. @PhoenixMe_
2K Followers 2K Following Bed-bound activist with severe ME/CFS. One of the #MillionsMissing. If I had any spoons, I'd be dangerous. Views expressed are my own. [email protected]
Greater Manchester Lo.. @GMLongCovid
37 Followers 234 Following We are a registered charity set up to help people in Greater Manchester and surrounding areas affected by Long Covid. (Charity No 1205165).
LC/DC (Awareness Day .. @LCDCmarch15
2K Followers 209 Following https://t.co/McGz8ndGEH We're going to DC for LC 3/15/25 Long Covid Awareness Day Demand action for Long Covid and Covid prevention!
Martin Grimshaw has L.. @ThrivingPlanet
2K Followers 5K Following There's Better Ways Of Working. Green Boy About Town. Organisational Wellbeing. Solution Economy. #Facilitation #OpenSpaceTech #Sociocracy #SocEnt @CaterflyOST
Long Covid is Real @brailemom
840 Followers 787 Following Freelance copyeditor with Long Covid. Also Mom of teen with Long Covid. She/her. Covid deniers & anti-maskers get blocked :-) brailemom in the Blue sky.
POV: Long COVID @pov_lc
85 Followers 107 Following depictions of life with long covid and related conditions, from the patients’ perspective. dm with submissions.
Dr Tim Robinson @LongCovidDoctor
80 Followers 68 Following Long Covid specialist Doctor Physician. Education for patients - to help understand, validate and recover from Long Covid. @LongCovidDoctor on #YouTube #Podcast
Long Covid Support Ao.. @lcsaotearoa
194 Followers 183 Following We aim to bring forward the lived experience of patients to help others and the wider community connect with information that is relatable and useful.
Bunk the Biologist @BiologistBunk
3K Followers 370 Following PhD in Immunology, Cell Biologist. Two-time covid long hauler. Co-investigator on a Long Covid trial. FB group: Long Covid - Improve via Fasting /Autophagy
Liz Allen with Long C.. @PommieLiz
485 Followers 1K Following ICU CNS & ACCCN QLD committee member. Interests include safety and quality, medication safety, end of life & post ICU care, food and photography. Views my own.
LongCovid.FM @LongCovidFM
5 Followers 12 Following The podcast about Long Covid - Facts, Treatments, Interviews and more!
Bee @LongCovidBee
149 Followers 63 Following Person living with #LongCovid, #MECFS and #POTS. Here to connect with others.
Long Covid Patient Co.. @LongCovidPC
301 Followers 254 Following Advocating for Long Covid awareness, support, and change. Join our community as we raise our voices for a healthier future. Together, we save us. #FBLC
Beaker has Long COVID @LongCOVIDBeaker
208 Followers 91 Following Mad Scientist with #LongCovid since Dec ‘21. People injured in any way by this pandemic deserve more. Our policy leaders are more Muppety than the real Muppets.
Sharon Rose 🌹but w.. @SharonRoseCos
570 Followers 551 Following Cosplayer, Geek Girl, Artist, Designer, Illustrator, Coffee Enthusiast, Cat Lover, Star Wars Nut, Comic Book Fangirl
Julie Sullivan @CureLongCovid
189 Followers 717 Following Program Manager of The Covid Recovery Center at Brigham and Women’s Hospital in Boston MA. Opinions are my own. Here to advocate and educate, not argue 💕
Dr. Sally Riggs | Lon.. @sallyeriggs
517 Followers 357 Following Fellow covid long-hauler sharing polyvagal & autonomic nervous system strategies for relief 🧠 🫁 🧠 Work with me at the link below👇
randomsalt is living .. @randomsalt
982 Followers 650 Following Peanut-gallery commentator. Beware #COVID19 and #LongCovid. #CovidIsNotOver and #COVIDIsAirborne, so #WearAMask. #MasksWork #COVIDCautiousLatest UK data for self-reported #LongCovid for England and Scotland A rise in cases, despite the removal of access to testing and vaccination. Long COVID is damaging public health!! We need urgent investment to continue our response to a pandemic that is not over!!!
2 million people living in private households in England and Scotland were experiencing self-reported long COVID Symptoms continuing for more than four weeks after a confirmed or suspected #COVID19 infection that were not explained by something else. ➡️ ons.gov.uk/peoplepopulati…
#Longcovid is mentioned!
“The language that we use… even in the question ‘Do we have a sick note culture?’ It’s cruel” Chair of the NHS Confederation Victor Adebowale says the use of “performative” language needs to stop, and the government should show more "compassion" #bbcqt bbc.in/4b8DVY2
How do the media portray #LongCovidKids. Charity Founder @SammieFMc collaborated with @Dr2NisreenAlwan and @ChloeConnor7 to find out.
1/Pls have a look at our preprint first authored by our brilliant master student @ChloeConnor7 in collab with @SammieFMc. Instead of the media reporting on our research we analysed their reporting of #LongCovid kids. The results are fascinating medrxiv.org/content/10.110…
@SarahOC_MECFS @kirrabrean @VickiMahony @vicmidnightsun @grainnekellyirl @CiaraGlenville @CiaraHendIRL @JacintaFay @epgough @HelenMMGoss @LongCovidKids @CounsellingSam @SammieFMc @BinitaKane @ELHopkins @IrishMECFS @Jmiku4 @TraceyABurgess @melanieryberg @LiamQuaide @Health_HIV2030 @Occ4LifeLtd I believe she comes if you leave a glass of butterbeer and a couple of chocolate frogs on the mantelpiece before you go to bed ⚡
@baldypidge @SarahOC_MECFS @kirrabrean @VickiMahony @vicmidnightsun @grainnekellyirl @CiaraGlenville @CiaraHendIRL @JacintaFay @epgough @HelenMMGoss @LongCovidKids @CounsellingSam @BinitaKane @ELHopkins @IrishMECFS @Jmiku4 @TraceyABurgess @melanieryberg @LiamQuaide @Health_HIV2030 @Occ4LifeLtd And a handful of Bettie Botts jelly beans 🫘 Ideally not snot or vomit.
@SarahOC_MECFS @VickiMahony @vicmidnightsun @grainnekellyirl @CiaraGlenville @CiaraHendIRL @JacintaFay @epgough @baldypidge @HelenMMGoss @LongCovidKids @CounsellingSam @SammieFMc @BinitaKane @ELHopkins @IrishMECFS @Jmiku4 @TraceyABurgess @melanieryberg @LiamQuaide @Health_HIV2030 @Occ4LifeLtd 😂😂😂 worth a shot Sarah!! Sounds like a great workshop. I’m hugely indebted to @Occ4LifeLtd for her generosity in knowledge sharing
@CounsellingSam @1goodtern @SGriffin_Lab @MichaelRosenYes @LongCovidKids @SammieFMc @HelenMMGoss @SarahOC_MECFS @Eden71003 True. Probably about another 6,000 in Ireland too @SarahOC_MECFS based on roughly similar population in Ireland and Wales.
@CounsellingSam @1goodtern @SGriffin_Lab @MichaelRosenYes @LongCovidKids @SammieFMc @HelenMMGoss @SarahOC_MECFS @Eden71003 And we should not forget that over the last 4 years a proportion of those #LongCovidkids have become adults and so drop out of those numbers but stay in the overall totals. Because, as we know only too well, there is #NoCure for #LongCovid
@SarahOC_MECFS @LongCovidKids Wow! That looks fantastic!
@chronicsheepe @SarahOC_MECFS Thanks again for this, I’m going to buy some stronger NC headphones.
@chronicsheepe @SarahOC_MECFS For comparison, I have Sony WH-XB900N. Their noise canceling isn’t powerful enough when my sound sensitivity is at its worst. Loop ear plugs, Sony headphones over top, white noise, and I can still hear the dog barking next door.
@SarahOC_MECFS I use Sony-wh1000mx4 and they’ve saved me from sensory meltdowns pre-ME, and now help a lot now that I am severe. Dont require music to cancel noise; they use active noise cancelling. Ear muffs/construction ime won’t get complete silence and can be quite tight on the head
@exist_bread @SarahOC_MECFS Think the 3m x4a peltor are more comfortable
@SarahOC_MECFS Not sure if this helps, but ear defenders i.e. PPE for workers are great at blocking noise. And they're a lot cheaper.
@chronicsheepe @SarahOC_MECFS Thanks, I hadn’t looked into those details. That’s a big difference in noise cancelation! I bought my headphones pre-LC, fairly cheaply. I’m glad to know there are stronger NC options.
@SarahOC_MECFS When I need absolute silence I use these + loop sleep earplugs. For comparison, had a pneumatic drill going 15' outside my window & could barely hear it & even slept. The earmuffs do exert pressure on your head so may be harder to wear for v long periods. amazon.co.uk/Peltor-Optime-…
@SarahOC_MECFS .@Sony @Bose Many of us would like an option to be able to block all incl. speech frequencies on your noise-cancelling headphones. Something to think about in future models??
In case any of the #MECFS community needs help finding options for noise canceling headphones 👇
Help! #SevereME friend in hospital needs noise CANCELLING headphones. She wants quiet (eg, she needs them to not have to be used for music or white noise). Willing to spend a bit more. Any recommendations, please? I #pwLC #pwME #LongCovid #MyalgicEncephalomyelitis,#MECFS #Autism
Helpful replies for noise cancelling headphones. ☺️
Help! #SevereME friend in hospital needs noise CANCELLING headphones. She wants quiet (eg, she needs them to not have to be used for music or white noise). Willing to spend a bit more. Any recommendations, please? I #pwLC #pwME #LongCovid #MyalgicEncephalomyelitis,#MECFS #Autism
@SarahOC_MECFS Ear defenders would likely be your best bet. The kind they use on building sites. They obviously don't require sound coming though them. I hope she gets well soon ❤️
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