Syd @fcknsyd
24 year old who’s life is currently on pause because of #LongCovid since April 2022 #POTS #Dysautonomia #MECFS #hEDS @CadAgainstLC London, Ontario Joined July 2018-
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Canadian friends, has anyone been able to get the MosaicDX MycoTox profile in Canada? I want to test my blood and urine for mold poisoning but want to make sure it's a thorough and accurate test If anyone knows of any resources or tests I would appreciate it!!!!
Had a lovely experience seeing a neuro-opthalmologist today. She looked at me in my wheelchair and asked me why I was in one and when I explained about POTS and long covid she said I don't need a wheelchair and that all of my issues are being caused by my emotions. And this was…
I miss baking. Before I got sick I would bake almost one new thing every week.
I ate a whole 12oz NY Striploin Steak last night and felt...better after? Had more energy? My brain felt more alive????
I'm that client in therapy that when my therapist tells me I need to feel and sit with my emotions I'm like how? Is there like a 3 step process that I can follow to feel them?
I wish I could have normal 24 year old struggles like omg what are my friends and I gonna do this week, or being tired from work or stressing out how I'm gonna fit in going to the gym while working. Not needing my mom to bathe me and wondering if I should go to the ER bc half…
have a low grade fever. time to play the game of am i infected, is it because of the colonic, is it PEM, or is it bc im getting my period in a few days
When you find out that your mom threw away 5 boxes of unopened floflex Covid tests because they were 2 weeks expired 😭😭😭😭😭😭
thinking of trying these if i can somehow find them: -KPV peptide (inject subq) - NAD+ peptide (inject subq) - maybe glutathione (inject subq) if any US friends would be willing to help me or if anyone knows safe and reliable Canadian sources pls let me know!
why is it so impossible to find NAD+ injectable peptide online in Canada
Today is one of those days where I reallllyyy miss waking up and not feeling like I have the worst hangover of my life (I haven't drank in 2 years!!) coupled with the flu 🥲🥲🥲 I can't believe I used to wake up clear headed and go on 5km runs before work 😭
What has been the most ignorant thing someone has said to you since becoming chronically ill? Mine would have to be that i create my own reality and can manifest better health with my thoughts 💀 I don't think my thoughts can stop my vertebrae from compressing my brain stem lol
Chris @Milne_62
252 Followers 713 Following Philosophy MA Student, Wannabe Poet, Sometime Adventurer.
PETEY PIE ✨😻✨ @AlaskanNative49
5K Followers 5K Following PROUD DEMOCRAT 💙🐝kind! tfg 👎#UNION #NativeRights #CRPS #CPP #ClimateCrisis She/Her #SeasOceans #Animals! 🐋🐬🦀🦭🐧🐝🐻🦦🐻❄️🦅🦫🐺🦢🌲🫐🌊. 🚫DM
Misty @crescendomisty
142 Followers 1K Following Caregiver & Organizer. Following COVID, Long COVID, MCAS, ME/CFS, POTS, and other disabilities.
kekek/kèkèk (She/He.. @kekekapriana
2K Followers 870 Following Feminism, Peace and Security, HIV AIDS, Reproductive Health, GEDSI, Counseling, Coffee, Human Rights😊 = END CHILD MARRIAGE=
Anna just Anna @atheniangal1
2K Followers 4K Following Expectypos. https://t.co/mdAwTqRyg7 https://t.co/iMV1l6Kswi https://t.co/hlILA5JEIC
Pamela Corrent @PamCorrent1
17 Followers 395 Following
Bookworm @Bookwormsavant
111 Followers 1K Following Dogs, Books, Trump, Freedom and Rational Thought. They’re not overrated. Vaccine-injured since May 4, 2021
JHobbs @JHobbsSaunders
425 Followers 3K Following Open-minded #SN #ASD #EDS #POTS mother/writer/wife/animal lover/hiker who homeschooled before it was cool. #HobbyElectronics #SciFi #AnimalWelfareConservation
Angela Payne @DownBad4TTPD26
92 Followers 466 Following 40; Married to my soulmate; Swiftie since ‘06; Die-hard Eagles fan (Go Birds!); Chronic illness warrior
Jason M @TheTrueJasonM
3K Followers 3K Following jasonm. bsky. social Still N95 masking. Not fooled by the minimizing propaganda constantly spewed at us by the government ,"health" officials, and the media.
Dr. Laura Marie Grime.. @DrLauraGrimes
5K Followers 7K Following Historical & Systematic Theologian. Trauma Informed & Intersectional Spiritual Coach. Singer & Songwriter. Two Young Adults, Two Angels, One Mischievous Feline.
lynjprendergast- REFU.. @lynjprendergast
3K Followers 3K Following Feminist. Socialist. Huguenot. Knitter & Cook. I feed foxes and crows. I buy food for foodbanks & homeless. Give locally to your community what you can spare
thehkd is a humanist .. @cancelproof
1K Followers 5K Following vax x4💸buddhist/settler✌🏻PWD CHEERLEADER💋"LOW RENT BUZZFEED FOR #PWD" 💕 LOTS'O'RETWEETS🫠born in late 1900s😎 SUPPORTS HUMAN RIGHTS FOR ALL, NOT JUST SOME🙃
Vida Ziebarth @ZiebarV
46 Followers 5K Following
Angie Adamson @serehfas
3K Followers 4K Following Resisted to the last...well, almost. THIS IS NOT A DATING SITE Ps, if you come at me with feelpinions, I will science all over you ;)
🌙biomimic🐾🍉 @iseeuliars
8K Followers 7K Following Disabled & ND. Writer, teacher, disability justice & advocacy. 💀to capitalism/imperialism. It’s the end of an era, build well-relations up from ashes.
steven green @SGreen91983
19 Followers 41 Following
Anne Marie @annesmithmcc
2K Followers 3K Following Mum of two boys. Interested in education 🎓 and various other things. #FBLC
JR🤫 @lawgirlontherun
72 Followers 762 Following Transplant in Cincinnati. Avid home cook, runner and cyclist. Interested in learning damn near anything. Cleve sports make me smile. #udflyer #ytownismytown
Cdk @BadSector8
17 Followers 63 Following
Joan Crawford @joan_crawford1
283 Followers 1K Following
🌪Dr.Clare MDFRCP(C.. @QuizzicalGirl
5K Followers 5K Following wife/mom/lola 1st & foremost, mindful feminist, ally, progressive, undoubtedly flawd.#TwistedResisters #GeeksResist #BLM #CovidWarriors 🌎♻️🏳️⚧️🏳️🌈🇺🇦
Luann Tam @LuannTam
468 Followers 486 Following Enjoying retirement from an amazing health care career(cnm/np/rnfa). Cochlear implant user. Wanderlust. It’s an amazing world out there. Vote blue.
Xencindy @Xencindy2
671 Followers 2K Following Reader, thinker,lifelong fibromyalgia person and political junkie. Quit the GOP when they sidelined the Liberal Senators
Larry Weis @LarryWeis7
409 Followers 1K Following #ME/CFS,#SFN,#Dysautonomia Owner-Commercial Insurance Agency
Misty M. ⛰🌻🌳�.. @Suzanne43554675
2K Followers 2K Following Woodland gardener, Permaculture & Sustainable Living, Bookworm. Wear A Damn 😷 , open windows & ventilate 💨. [email protected] @mistym.bsky.social
Jed Shlackman, MS Ed @jedishaman
1K Followers 1K Following Healer, Counselor, Coach, Hypnotherapist, Author, Metaphysical Explorer, Love Music, Reiki, Sound Healing, Natural Health, Holistic Living, & Spirituality.
lorikeet @lorikee93100713
956 Followers 3K Following 40 year RN, 20 years living on the Navajo reservation. Artist, live in the Driftless region.
April🤘🌊🐱🐶.. @Aprilba84522710
3K Followers 4K Following retired nurse, animial lover, Democrat, disabled vet. mom of adult triplets.Please, NO DM's!!!! NO trying to sell me stuff or crypto,and no porn! 💙🌊💙🌊💙
Tricia 🏝️ @heartisinparis
481 Followers 3K Following ❤️ Be the reason someone believes in the goodness of people ❤️ Don’t let the quest for more distract you from the beauty of enough ❤️ #migraine #LongCovid
Liza Brings @LizaBrings
5K Followers 5K Following Retired data cruncher, grandma, Parkinson’s warrior. Democrat 💯%, 💙🌈🇮🇱🇺🇦🐴🐾 DMs without asking = instant block, Bl** sky @Lizabelle .Bsky.net
Caleb🍉 @MtnOuttaMolehil
206 Followers 3K Following always down to hacky sack (except rn, LC mild-med me/cfs)
Lucy of The Tortured .. @lucyshea
1K Followers 5K Following writer w/EDS ✭ cinephile in black & white ✧ fangirl ✶ swiftie ✭ sussex squad ✧ LMU SFTV ✶ adam’s gal 𐂅 confessing my truth in swooping, sloping cursive letters
holly @hwm42
51 Followers 3K Following
AMA @amadams121
204 Followers 1K Following Facts 1st. Be kind. Civil discourse=learning opp. sci-fi fan. Opinions expressed are my own. #sjogrens #lupus. [email protected]
Jade Savoca @JadieIsTired
677 Followers 621 Following 39F / AZ🌵➡️MN🌲 / Rescue 🐕🦺🦮 mom / Investments 💵 / Music 🎵 / #LongCovid community #FBLC / Politics #NeverTrump
ToothBag @BagTooth
2K Followers 1K Following A stranger said I should be called TRUTHBAG. Pop culture, #LongCovid, #MECFS I have a bag of teeth in my drawer but they're my teeth so it's not weird, right?
XXX @artxqueer
102 Followers 1K Following NFSW Art. 26 qpoc. 🔞Astro nerd. art n smut lover. Covid migitation
Apricot Tree Cafe @ApricotTreeCaf1
7K Followers 1K Following A place where Great Air Quality meets Great Food. Live AQ levels posted at the entrance. Masked Server can be requested.
Alan @AlanRosenwald
1K Followers 5K Following PwME+fm. 3/3 Pfizer'd #Books, let me read them all. #Geology rocks! The Moon is falling and missing us. #Space and #Astronomy.
Holly H-K, PhD @HollyHK_UTA
715 Followers 884 Following Associate Professor-Literacy. Cajun-Texan. Mom to 2 boys. Former world traveler. Opinions my own. Hopeful for #LongCOVID answers soon. #FBLC
Scott @Scott_the_Dott
231 Followers 3K Following
Akane @Akanegg3
102 Followers 606 Following
Kemi Marie (they/them.. @kemimarie
379K Followers 123 Following i can’t be a singular expression of myself | 𓃵⋆｡°✩ omo oya
Naked Numerology ® @OneLuckyGirl_28
179K Followers 280 Following ELITE NUMEROLOGIST ASTROLOGER | Order a session Ultimate 2024 Cosmic Roadmap Reading includes a 1 year FREE Premium𝕏 VIP Newsletter https://t.co/tn6wPWlh78
ari💋(Black Tarot R.. @lilbitchquotess
38K Followers 4K Following Readings are open. + $10 urgent reads. DO NOT RUSH (NO REFUNDS ) sent within 1-6 days💌. I don’t READ ON WEEKENDS. ONLY PAGE ONLY SOCIAL MEDIA 👑
Anna Pepe ☽☾ @iamannapepe
159K Followers 6K Following divine channel. master manifestor. healer. I’m here to help you manifest your dream life | text “manifest” to 272-777-0373 for tips 👇 get my freebies
the moon’s bitch �.. @martianlune
33K Followers 891 Following professional tropical astrologer and tarot reader | student of sidereal astrology | she/they | daughter of venus | lover of the moon | astro moodboards
Dayna Lynn Nuckolls @PeoplesOracle
47K Followers 457 Following REVOLUTION BEGINS IN THE BODY | Creator: Divination For Liberation Sidereal Astrology • Artist + Musician • [email protected] | Now accepting clients!
Chris @Milne_62
252 Followers 713 Following Philosophy MA Student, Wannabe Poet, Sometime Adventurer.
julz🍓 @venusiansoleil
34K Followers 10 Following she/her • tarot reader • astrologer • somewhere admiring the sun, moon, and stars💫
Miles W. Griffis @mileswgriffis
4K Followers 1K Following Co-founder/editor @thesicktimes Columnist @highcountrynews [email protected] #LongCovid 🇵🇸
Angela Payne @DownBad4TTPD26
92 Followers 466 Following 40; Married to my soulmate; Swiftie since ‘06; Die-hard Eagles fan (Go Birds!); Chronic illness warrior
Oh TWIST! @H2OhTwist
9K Followers 4K Following Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely dxed. PDX.
Michael @ Socratica @mlh496
17 Followers 109 Following Co-Founder of Socratica Caltech grad (math) Ex-Googler Former Quant
gracie ☆ @graciesbakes
13K Followers 839 Following food poll and food poster ! (i bake a lot) @mothrambling
Apricot Tree Cafe @ApricotTreeCaf1
7K Followers 1K Following A place where Great Air Quality meets Great Food. Live AQ levels posted at the entrance. Masked Server can be requested.
Heather ヘザー MSW.. @philaheather
6K Followers 2K Following Philly sports, disability justice, grant writing & nonprofit funding. Temple U alum. she/they #BlackLivesMatter //views my own 🍉
MyVaccident @MyVaccident
57 Followers 234 Following #LongVax #LongCovid Dx: Post Vaccination Syndrome via #Yale neurologist 2021. #Pfizer Lot #EW0169 &7 #ER8736. Disabled American ♿️ #Dysautonomia #Polyneuropathy
Holly H-K, PhD @HollyHK_UTA
715 Followers 884 Following Associate Professor-Literacy. Cajun-Texan. Mom to 2 boys. Former world traveler. Opinions my own. Hopeful for #LongCOVID answers soon. #FBLC
Adam Wong @Engineer_Wong
3K Followers 51 Following Engineer of hydromechanics. Love to invent all kinds of air purifier. Founder of the brand "AirFanta". My email adress: [email protected]
🐀 @Guiness_Pig
7K Followers 3K Following Comedian & writer who brings you #MaskholeClapbacks because #CovidIsNotOver #CovidIsntOver *Satire/humor/entertainment*
Scott Libbert @ConnectDots4u
385 Followers 465 Following Indiana Univ. - B.S. Communication / Ivy Tech - A.S. Computer Info. Svc. | Long-Covid Advocacy | Former Small-Town Councilman | A voice for the people.
Amy Rochlin @amyrochlin
854 Followers 2K Following Executive Director, @MetrodoraFdtn - Proudly working to advance progress for patients living with chronic, multisystem disorders. Opinions are my own.
☆Keely Valentine @keelyvalentine
3K Followers 3K Following ☆SingerSongwriter/Streamer/K-pop DJ/Cosplayer❤️ Twitch Pokémon TCG streamer check my shop https://t.co/wZ0E10P8Kz❤️spotify/apple❤️❤️ ME/CFS and EDS suck :(
Finn, PhD @Finn000000000
653 Followers 246 Following PhD ❤️ Regeneration, immunology 👨🏻🔬 Ex 🚴♂️ 🧗🏻♂️ 🏃🏻♂️ Vax-injured/ME 🧪 🧫 🧬 pronouns: not/retarded
Tiff-Annie @Tiff__Annie_
739 Followers 998 Following Prof. Faculté de médecine | Médecine sociale & préventive +Sports betting/analytics
Dani Faucher RMT @DaniRmt
177 Followers 1K Following https://t.co/VNvAvyuFfW Registered Massage Therapist (she/her). Foodie, veggie grower. Learning #LongCovid #MECFS .
Shanon @co2detective5
855 Followers 1K Following unemployed former healthcare worker. willing to work for plants.
mae @_maecol
224K Followers 177 Following
Connor Franta @connorfranta
8.4M Followers 4K Following
Eight Sleep @eightsleep
50K Followers 550 Following Ultimate sleep fitness machine. Cool, heat, track, & sleep better with the Pod. Available in 🇺🇸 🇨🇦 🇬🇧 🇦🇺 🇩🇪 🇫🇷 🇮🇹 🇪🇸 🇳🇱 🇧🇪 🇩🇰 🇸🇪 🇫🇮
Long COVID Web @LongCOVIDWebCA
626 Followers 39 Following A network supporting and conducting research into the Post-COVID Condition/ Un réseau qui soutient et mène des recherches sur la condition post-COVID (PCC)
troy @hthaze
53K Followers 987 Following husband, musician & anime enthusiast 🤘🏼 streaming on TWITCH 2-3 times a week 💜
Sam Nolen @SamRNolen
1K Followers 3K Following Machine learning, chess, languages, fiction, philosophy, history, cats, socialism. In recovery from ME/CFS, CCI, mold toxicity
elly brosius @NovaSupport
940 Followers 5K Following Physics, mindfulness, metaphors, medicinal gratitude, synchronicity, and coping w disabling ME/CFS, OI, Long Covid. RB Renegade50. I'm also @CFSnova.
N🤗VA ME-CFS/POTS/L.. @CFSnova
541 Followers 1K Following For pw/caring4 long haulers: ME/CFS/FMS; Orthostatic Intolerance, POTS; Long Covid; Chronic Lyme. VDR immunopathy. MTHFR+. MCAS. By @NovaSupport Elly Brosius.
Kristin 🇺🇦🇮�.. @Kristin67377787
1K Followers 4K Following Classical Ehlers Danlos Syndrome CCI, OTC,Spinalfusion ME/CFS,CVID, mito,HyperPOTs,GP, SFN,MCAS. #ActuallyAutistic,Disability,animal rights, #EndTTI #NAFO🇺🇦
Byron Hyde MD @ByronHyde6
402 Followers 17 Following
marissa🇵🇸🇵�.. @marissabruner
337 Followers 567 Following 26, socialist, 👩🏼🔬 molecular biologist 🧬, hEDS cursee, CCI/AAI fusee, recovering very well from OTC surgery!!
Nadine 🇨🇦 Long .. @NS_Beachbum
797 Followers 1K Following Long Covid/ME, POTS and MCAS since 2020 Nova Scotian, collects beach glass, cat mama (2), retired Comments are MO @[email protected] - Mastodon
A.I.M - Autistic Incl.. @AIMautistic
7K Followers 914 Following Autistic Inclusive Meets organisation, we promote acceptance & fight abuse. For boxing, Taekwondo, football, sensory & social: https://t.co/O0QGBoknRt
Jo @cfs_jo
3K Followers 1K Following CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Also on Insta as JustJoHere and BlueSky as JustJo
Jennifer Howell @genxjenh
1K Followers 2K Following My guiding philosophy is basically: What would Mr. Rogers do? Creator, main host, and editor of @EveryRomComPod https://t.co/tP2asH3bWl
Lisa Oshima @lisawhelan
4K Followers 5K Following Consultant helping tech cos grow via strategy & partnerships. Tweet on emerging tech & viral growth. Pro tech & science. Clean indoor air. Make schools safe.
Prof. Dr. Sanjeev Bag.. @BagaiDr
35K Followers 562 Following Chairman Nephron Clinic Sr. Consultant Paediatrician, Nephrologist MBBS, MD, DCH, DNBE, MNAMS, FSCH, MIPA, FIMSA, PhD.hs. Padma Shri Awardee Dr B C Roy Awardee
haley @feederofcats
61K Followers 308 Following girl who likes cats and sometimes says things - advocating for the janky ones
out of context dogs @contextdogs
1.7M Followers 787 Following follow us for daily dog Content 🐶| Dm for credit and removals | art by @sillynubcat
Lauren @covidslilbitch
220 Followers 372 Following Welp, excuse me, my brain is mush. Mainly here for this lovely community 💙🫡🌈 I’m here to learn, support, and get PEM from crying! #hEDS #SevereME
Algerian Hiss @fairy_garcia_
978 Followers 1K Following squawking like a pink monkey bird | possibly the most profane man on earth | clean air | cats | KingGizzLW | often go to a second location with a hippie
Sabrina Dominguez @sabristles
405 Followers 2K Following Trying to use my powers for good | PM @7shifts | Ex @code4ca Fellow
who’s afraid of lit.. @luckyonesoph
932 Followers 1K Following science and edibles | unfortunately, a leafs fan | a flashback in a film reel on the one screen in your town 💫
Rhonda Scaiano @R_Scaiano
264 Followers 598 Following Bible Reader, Introvert, Sandwiched caregiver. I made friends with a robin once.
@drseanmullen A research study confirmed today that it’s still living in my gut from 2.5 years ago. I have severe neuro #LongCovid so it’s likely in my brain as well.
The similarities between HIV and SARS2 are impossible to ignore but everyone's over it and still using language like "back during COVID." I'm like bro, you're still in it. In fact, its in you. Its still living and replicating in you.
how is this STILL UP
the state of disability orgs is so dire
@katimcf NOT THE NAME BISH I CANT STAND UP THATS WHAT MAKES ME FAINT STANDING UP TOO FAST
Managing a severe chronic illness: dozens of medications and supplements, doctor's appointments, researching treatments, managing side effects, paperwork, blood draws, etc.. sometimes feels like a job you don't like but can't quit. #longcovid #mecfs
I have noticed the houseflies here in rural NM are slow, weird and dying very rapidly compared to normal. So I googled. Wish I hadn't. We are all dead. ncbi.nlm.nih.gov/pmc/articles/P….
The past week I decided to double dosage (400/60 to 800/120) And I've had significantly less inflammation/pain the whole week Thus, suspect Sofosbuvir requires higher dosage to be effective against SARS-CoV-2
A couple of weeks in with Daclatasvir (+ sofosbuvir) and TLDR; - It probably helps - I suspect it's likely not strong enough
That SARS-CoV-2 is now confirmed to infect megakaryocytes long-term (studied in Long Covid patients) should definitely alarm the public health authorities everywhere. Intent is not to doom tweet here. But we should tackle this like we did for HIV. You can replace HIV with…
The parallels of #SarsCov2 and #HIV are too sinister to ignore. Sound the alarm.
That SARS-CoV-2 is now confirmed to infect megakaryocytes long-term (studied in Long Covid patients) should definitely alarm the public health authorities everywhere. Intent is not to doom tweet here. But we should tackle this like we did for HIV. You can replace HIV with…
This is what I mean when I say girls night
I will probably always be a lace/ruffles kind of person.
My 5yo has suddenly started doing this really sweet thing lately when I’m feeling extra sick. He will comb down my hair, pat my head, rub my back, and then hold my hand quietly. Overnight we went from him not really getting it to him doing all the things I do when he’s sick.
@Ramyisback Dear Ramy, with over two decades of experience with dementia patients, I’ve learned not to talk about prognosis based solely on the textbook. I’ve seen patients who made me think their prognosis would be poor according to the textbook, but they did well and surprised me. So…
Taking all my medications and supplements, drinking enough fluids and electrolytes, resting an adequate amount, and feeding my microbiome are a fucking full-time job. 😵💫
I’m gonna be the Debbie downer here, but I don’t think an H5N1 pandemic would have the results you’re expecting. Here’s what I think I would actually go down:
I honestly don’t care anymore. Teachers should know better. They won’t protect kids, fuck em.
I met a teacher in their 30s who has arranged with their school to have a lesson off before lunch every day so they can have a sleep. They teach sitting down. And they have had Covid at least four times. They have had no vaccinations.
@fcknsyd Yea they have looked several times and so far it’s stable thankfully
Approaching three weeks post-PICL. I’m doing somewhat better although it’s too early to evaluate results. But I can feel the new ligament tissue in my neck. It’s a bit stiff so I keep trying to gently stretch it out. Strange feeling.
Is there any way to recommend a weird treatment and not sound like a snake oil salesman? Like, I tried a weird treatment for LC last year (out of spite, tbh), and it worked for me. After 2 further infections, it worked again. But I am likely a hyper-responder and most aren't.
@vee_etc you have fear of standing! only way to treat it is exposure therapy. have you tried standing so you can stand while you stand? just have to stand ✨
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