charlos @loscharlos
😎🌁🎷 #LongCovid March 2020 😵💫 San Francisco, CA Joined August 2020-
Tweets39K
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Followers23K
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Following1K
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Likes74K
My anthology DISABILITY INTIMACY comes out on 4/30!! Join me that day in conversation with the contributors @thellpsx @Nicole_Lee_Sch & Dr. Ellen Samuels online at @HarvardBooks, 6 pm Eastern ASL & captioner available Register: eventbrite.com/e/virtual-even…
“Dr Simon Williams.. said the findings indicated an absolute public health crisis” “If 5 years ago, we were to imagine a completely new disease can cause.. disabling symptoms in approx 3% of the population.. we would be enormously concerned.” #LongCovid theguardian.com/society/2024/a…
"Long COVID: plasma levels of neurofilament light chain in mild COVID-19 patients with neurocognitive symptoms" nature.com/articles/s4138…
“Critically, the trail was flat and groomed—carefully selected since one participant was a wheelchair user…” That was me. And it was an amazing outing. What else could I do if others made a fraction of the effort Ed did to make this outing accessible? audubon.org/magazine/new-b…
Can we start a Long Covid lobby? I’m pretty broke but I’d contribute €5 a month for one. I’m so sick of our advocacy efforts being torn apart by other players with more money & influence/power.
At the #HELPLongCOVID committee meeting in January, senators asked about our challenges when seeking disability through @SocialSecurity . Here’s an example I can share with @SenSanders @GOPHELP @HELPCmteDems of how stressful and broken the process is 🧵
The Press: “Long Covid: ‘I don’t want to be stuck in this house anymore’” “I’ve worked all my life, I’ve paid taxes, I’ve never asked for help before and I need help now, and we can’t get it.” thepress.co.nz/nz-news/350230…
New study!! Lots in this paper but interesting takeaway - #LongCovid patients with higher blood viral load had lower immunometabolism scores (meaning the interaction between the immune system and metabolism). LC patients also had significantly decreased lymphocyte activation!
New study!! Lots in this paper but interesting takeaway - #LongCovid patients with higher blood viral load had lower immunometabolism scores (meaning the interaction between the immune system and metabolism). LC patients also had significantly decreased lymphocyte activation!
A person’s hand holding a copy of my new anthology! Book cover by Madeline Partner. In the center, Light beige background with a red flower on top, green leaves on both sides, underneath that flower is a purple one and right next to the purple is an orange flower.
A person’s hand holding a copy of my new anthology! Book cover by Madeline Partner. In the center, Light beige background with a red flower on top, green leaves on both sides, underneath that flower is a purple one and right next to the purple is an orange flower.
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Myra Batchelder @myrabatchelder
19K Followers 11K Following Health Policy & Advocacy. @COVIDAdvocacyNY @COVID_Advocacy. #SRHRJ #VaxPlus #KeepMasksInHealthcare. @Harvard @SarahLawrence alum. She/her
Shaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Dr Satoshi Akima FRAC.. @ToshiAkima
34K Followers 3K Following Nephrology & Internal Medicine. Immunothrombosis incl DIC. @ISTH Member. No Conflicts of Interest. Views my own etc
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
laurie allee (retired.. @laurieallee
26K Followers 8K Following ✌😷 Account is archive. See pinned tweet for most useful Covid threads, including duplication website. I do not check messages here. Off all social media.
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 723 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Michael A Osborne @maosbot
33K Followers 1K Following Dad, spouse, Professor of Machine Learning @UniofOxford, Co-Founder Mind Foundry, Director @aims_oxford. Bayes, Long Covid, porridge, AI must be good for humans
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Morgan Stephens @morganstephensa
14K Followers 2K Following chasing around the White House @business, poet debuting TILT (Aldrich Press 2024), previously @cnn, #LongCovid advocate
GeoCK @GeoEduOne
6K Followers 953 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Gez Medinger @gezmedinger
20K Followers 721 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Ann Kaufman Oland @annkaufmanoland
7 Followers 800 Following
Jen RN MSc @jennyrooster09
1K Followers 3K Following Emergency nursing first love 💕 now Quality nurse 😍 Proud mum 🥰 #Tories hands-off our NHS 👊POTS/Dysautonmia LongCovid☹️
Shafted by Gammon @llanciawn
2K Followers 3K Following Identify as Welsh. Composer classical music; poet/writer; idealist. #CTFC #Remain #Homosexual #SecularGovernment #nochilli https://t.co/Do4UeUddcl :)
Alpha Arietis @AlphaArietis66
13 Followers 270 Following
onni rasome @onnirasome
7 Followers 213 Following
Alexandra Eisermann @AlexandraE333
0 Followers 32 Following
lily pond @lilypond513720
12 Followers 245 Following
Daniel @enpleinairsoin
5 Followers 206 Following
Philip Lewis🇵🇸 .. @philewis
13K Followers 13K Following Philip Lewis age 71 retired, My Cat Lenin @philewis_Lenin 🇵🇸 I am a Democrat socialist and trade unionist 🇵🇸No DM Please🇵🇸
Xtz Xtz @XtzXtz687028
130 Followers 427 Following
Vito LaBella Fighting.. @VitoLaBella4NY
1K Followers 4K Following NYS Candidate for Senate 26, Former Candidate NYC Council, NYS Senate 17, D20 CEC, Co-Founder PLACE NYC, Actor (AEA, SAG/AFTRA) Lieutenant NYPD (Retired)
MGAKemp ✝️ 🇺�.. @m_averykemp
2K Followers 1K Following Meteorologist, emergency management, air monitoring. Retired EPA. Henderson State University, University of Arkansas, Texas A&M are my passions. James 4:10
💜 ƙׁׅ֑ꪱׁׅ .. @kimberrosexx
2K Followers 656 Following intergalactic space warrior • happy with ordinary ● responsible □ off grid momma ♡ raising arrows ☆ don't just take, create ° 🌈
Siothash @Siothash15066
1 Followers 72 Following
dawn loudenback @DawnLouden91491
6 Followers 51 Following
Patrick Strother @PatrickStrother
27K Followers 7K Following CEO, Strother Communications Group. We help companies grow. Masters swimmer & guitarist. Independent. Former: Political Consultant, UMN Professor (Visiting),
Kirk Linse @krlinse
96 Followers 694 Following
lamin @lamin1255891
111 Followers 741 Following
Kassia Renee @kassia_ren81583
1 Followers 45 Following
Joan Hendrickson @JoanHen80529735
173 Followers 488 Following
Renewables4U @Renewables_4U
5K Followers 5K Following Connecting U to a world of #RenewableEnergy. The possibilities are endless, and waiting to be harnessed. The clean & green energy experts. Renewables4U
Nancy Ferguson @NancyF7688
2K Followers 4K Following Constitutional Conservative Patriot, America First!! #1A #2A, Proud Texan 🇨🇱, Dog Lover. NO DMs! NO PORN!! IFBAP
Boabart @robert48926
128 Followers 380 Following
Paylz @paylzdig
104 Followers 2K Following
cpg @HorseNutmeg
23 Followers 128 Following 3 1/2 years of the brutal Long Haul Covid, something I didn’t ask for, but some people share their germs, knowing they were exposed. Need a cure ASAP.
SAB @susanbaker588
4K Followers 5K Following aged green labour. love all animals. #Johnsonout #Toriesout #saveourNHS
Aaronka @aaronka1004
6 Followers 21 Following
Frau𝕏ausNRW @FrauXausNRW
2K Followers 1K Following MomOf2 mit #LongCovid #MECFS #POTS #SFN - Werde 2024 (vielleicht) gesund ! #UniteToFight2024
tracie lee @tracileahy
337 Followers 2K Following
Mary Ayala @MaryAyala622490
36 Followers 507 Following Wife to kraig, dog mom to two Brittanys Cooper & Louie, love sports car racing and living a happy, simple life. Proud America 🇺🇸🇺🇸
Deborah 🙏🌊💙�.. @daxplace
3K Followers 5K Following #FBR Freedom, equality, peace, joy, humor, golf, storm chasing, reiki, Cubs, Bears. MBA Northwestern #BlueWave #Resist #Lyme #LongCovid #CancerAwareness
Alexandra Alvida @Aelvidra
35 Followers 136 Following very severe ME CCI EDS mcas, insta: @alekpalek Gofundme: https://t.co/op7gGeiInu ⚠️please help if you can⚠️
sharri bowers @SharriBowers
5 Followers 323 Following
Maria Jones @MariaJones18056
0 Followers 4 Following
christy gardner @brauncow76
3 Followers 38 Following
Daedra Apologist (she.. @niamhrmac
416 Followers 415 Following tired, handsome. former smarty pants, current court jester. marquis de twgor #maskup
Robert McLaughlin @Robert1132013
31 Followers 1K Following
Amanda Klein @salamandaek
15 Followers 122 Following queer neurodivergent *anti-zionist* jew & work in progress. she/her. "Until we are all free, we are none of us free." - Emma Lazarus
Mickster @MikeyMacMick
237 Followers 1K Following
Leona Lee @FleurDeLeeArt
1K Followers 2K Following Please mask up w/ N95! #ADHD #Bipolar #Fibro #Osteoarthritis. Housing @ltbcoalition, Disability Rights @accessliving, #DisabledDebtorsCohort with @strikedebt
Arun Cherian @ArunCherian12
372 Followers 2K Following Interests are sports (NY-Jets, Nets, Devils)and investing, common sense money advice. Fan of wealth track TV, Motley Fool, WSJ, Bloomberg, CNBC, Fox business
Danielle Beckman @DaniBeckman
24K Followers 6K Following Neuroscientist 🇧🇷 at the @CNPRCresearch working with primates. I like taking pictures of weird things happening in the brain 🧠🔬. #NeuroCovid is real.
Nicholas Gruen @NGruen1
34K Followers 6K Following CEO Lateral Economics Promoting EQUALITY of speech through randomly selected citizens’ juries https://t.co/7cz80uoyrU
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Myra Batchelder @myrabatchelder
19K Followers 11K Following Health Policy & Advocacy. @COVIDAdvocacyNY @COVID_Advocacy. #SRHRJ #VaxPlus #KeepMasksInHealthcare. @Harvard @SarahLawrence alum. She/her
Shaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
F░R░E░E░ P░.. @joaquinlife
20K Followers 11K Following Ran for Congress Southeast LA #CA42 🤖 Engineer 🤝 Organizer Now: @theacecoalition @speakupamerica_ @greenzoneactnow @laist Alum: Biden ‘20, CORO, Obama ‘08
Dr Satoshi Akima FRAC.. @ToshiAkima
34K Followers 3K Following Nephrology & Internal Medicine. Immunothrombosis incl DIC. @ISTH Member. No Conflicts of Interest. Views my own etc
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
laurie allee (retired.. @laurieallee
26K Followers 8K Following ✌😷 Account is archive. See pinned tweet for most useful Covid threads, including duplication website. I do not check messages here. Off all social media.
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 723 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Michael A Osborne @maosbot
33K Followers 1K Following Dad, spouse, Professor of Machine Learning @UniofOxford, Co-Founder Mind Foundry, Director @aims_oxford. Bayes, Long Covid, porridge, AI must be good for humans
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Morgan Stephens @morganstephensa
14K Followers 2K Following chasing around the White House @business, poet debuting TILT (Aldrich Press 2024), previously @cnn, #LongCovid advocate
GeoCK @GeoEduOne
6K Followers 953 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Gez Medinger @gezmedinger
20K Followers 721 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Rusty Sutton @RustySutton
2K Followers 2K Following × @theglowmgmt × @generationals / @wyeoak / @wednesday_band_ / @flockofdimes / @thedeadtongues / @MarkJLenderman
Scott Gottlieb, MD @ScottGottliebMD
575K Followers 2K Following Senior Fellow @AEI. Partner @NEA. Contributor @CNBC. 23rd @US_FDA Commissioner. Boards: @Pfizer @Illumina @AetionInc @TempusAI @IncResilience @ComancheBio Xaira
Yann @yann_mecfs
88 Followers 52 Following Very severe ME/CFS (Long Covid) since 1 year. Not always able to use phone. Have not been able to sit since August. #LongCovidMoonshot
Marco Wetzel (is figh.. @Gmwetz
2K Followers 829 Following Founder of @U2Fight_world // #UniteToFight2024 // #LongCovid and #MECFS advocate // #longcovid patient
B. Carfree @BCarfree
2K Followers 3K Following Everything is about climate change. And bicycles, always bicycles. Down with long covid, but slowly climbing back up. https://t.co/QxGxVl0nvp
Susannah Fox @SusannahFox
40K Followers 1K Following Author, "Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care" (@MITPress 2024) She/her SusannahRFox on🧵
i’m dune my best �.. @kirabira
4K Followers 945 Following takes a pet, like, no problem • NO GODS NO MASTERS NO COPS NO BILLIONAIRES • she/her • obvs no TERFs or SWERFS • CFS/ME • relationship coaching at @feelingschat
Dan Schwartz @coDanSchwartz
2K Followers 652 Following Journalist. Athlete. #LongCovid, still, but brain works so watch out, scofflaws. Recently @ProPublica. Email: danschwartz300(at)gmail(dot)com.
M. and S. Shaw @twoShaws
2K Followers 3K Following Person w/ severe #MyalgicEncephalomyelitis #MyalgicE (ME/cfs) & her M.E. advocate spouse/caregiver. Before: Architect, software interaction designer.
Rep. Eric Swalwell @RepSwalwell
1.5M Followers 12K Following Husband | Dad to Nelson, Cricket & Hank | Congressman |@HouseJudiciary @HomelandDems | social media policy:https://t.co/47CTxGuV0o | #EndGunViolence
Science Friday @scifri
742K Followers 16K Following Entertaining & educational conversations about science, tech, + more. Hosted by @iraflatow. From @WNYCStudios. #SciFriBookClub 📚 'The End of Everything'
Ira Flatow @iraflatow
18K Followers 1K Following Host of @scifri Science Friday on Public Radio, awful poker player, slightly better at tennis, great with orchids, sourdough challenged. Too many dad jokes.
RanaAwdishMD @RanaAwdish
41K Followers 6K Following Physician|Patient|Author|Speaker|Painter|Mom #InShockBook married @RandyAwdish Faculty @MSUMD @henryfordhealth https://t.co/Mbrq5EEuCU
MaskTogetherAmerica @TogetherWeMask
5K Followers 2K Following We advocate for people threatened by COVID-19 by promoting the multi-layered approach in mitigation measures. Let’s stay COVID-SMART.
Isabel Ramirez-Burnet.. @IsabelRamirezRD
3K Followers 1K Following NBC-HWC CEO @renegaderes & Todologa @remissionbiome patient-led, decentralized, human-centered research. #MECFS #longcovid #postinfectious #chronicillness
Madeline Ryan Smith @MadelineRyan4GA
8K Followers 3K Following Georgia Disability Caucus Chair. Candidate for GAHD 158. Guide Dog Handler, Social Scientist, Business Owner, Activist. 🇺🇸🇮🇪 Get Mad.
Scott Daniska @scott_scientist
243 Followers 212 Following Scientist & chronic illness advocate raising awareness of environmental research for ME/CFS & more. Let's drive change together! #ChronicIllnessAwareness
dphmustdivest @dphmustdivest
185 Followers 83 Following Getting the SF Department of Public Health & SF General Hospital to divest from Sheriffs & invest in creating communities of care. #DPHMustDivest
Tom Windish @tomwindishagent
4K Followers 434 Following Booking agent for musicians at @WassermanMusic. Founder of The @windishagency & Wilder Records. Mgr of @DaniellePonder1. Music & tech investor. Dad/husband
Dustin Poppendieck @Poppendieck
9K Followers 513 Following Indoor Air Quality Researcher. Views expressed are my own. No financial interests in HVAC, portable air cleaners or indoor air quality monitors.
Richard Corsi, PhD, P.. @CorsIAQ
47K Followers 949 Following Dean of Engineering, University of California, Davis Indoor Environmental Engineer Proud UC Davis Alumnus Faith in younger generations Dog lover
Marwa Zaatari @marwa_zaatari
10K Followers 313 Following Mechanical Engineer, IAQ Consultant, USGBC Board Member, ASHRAE Epidemic Task Force, PHD with focus on IAQ/Energy/filtration. Mom & Lego Master.
Prof. Jose-Luis Jimen.. @jljcolorado
102K Followers 618 Following Dist. Prof. Univ. Colorado. #HighlyCited2023, Fellow AAAR & AGU. https://t.co/bba7YQLccv https://t.co/KutdZGqwmb Aerosols, pollution #EndFossilFuels #COVIDisAirborne
U.S. Access Board @AccessBoard
3K Followers 698 Following Official Twitter account of U.S. Access Board. See privacy page for details: https://t.co/cW0xfcvrWv Linktree: https://t.co/RT7Yx07Zlp
Covid-Safer SF/Bay Ar.. @CovidSaferSF
1K Followers 451 Following Listing local events, businesses & services that take Covid precautions. Also posting calls to action. Please also check out https://t.co/RaeOEgXlsh (no affiliation).
L., MA @leslieleeiii
31K Followers 11K Following Critic | Writer | https://t.co/vb3d69JCXg | threads: theleslieleeiii https://t.co/VCqC1jnAxC #LongCOVID Vnmo: lleeiii | No mutants, no discourse🙏🏿
Danielle Beckman @DaniBeckman
24K Followers 6K Following Neuroscientist 🇧🇷 at the @CNPRCresearch working with primates. I like taking pictures of weird things happening in the brain 🧠🔬. #NeuroCovid is real.
Gregg Beratan @GreggBeratan
23K Followers 21K Following Disabled Activist, Husband, Father, Pained Writer. #Disability rights/justice/studies, #RacialJustice & #Education Co-Founder/Organizer #CripTheVote
Andrew Pulrang @AndrewPulrang
13K Followers 741 Following Disability, politics, popular culture. I'm a Baby Boom / Gen X hybrid. #CripTheVote. https://t.co/XmgXNNkvGF Contributor. He/him.
UniteToFight2024 @U2Fight_World
3K Followers 116 Following 100% crowdfunded LC & ME/CFS conference project. community-driven. independent. global.
Texas Observer @TexasObserver
77K Followers 4K Following A nonprofit progressive investigative outlet covering Texas since 1954. Subscribe: https://t.co/skfZ4iY1Z3 Mastodon: @[email protected]
Matt McGorry @MattMcGorry
372K Followers 1K Following Maker of feels and procurer of LOLs. Activist. Bennett on @OITNB and Asher on @HowToGetAwayABC Instagram: @MattMcGorry
longcovidstudies @lcstudiesdotnet
287 Followers 0 Following Long Covid Studies makes it easy to find Long Covid research studies near you.
Emma Illick-Frank @emma_i_f
74 Followers 88 Following audio producer in the streets, lurker in the tweets
Christian B. Ramers, .. @cramersmd
1K Followers 1K Following International man of Infectious Diseases, COVID-19 warrior, HCV eliminationist, HIV prevention & treatment fanatic, father, husband, drummer, front yard farmer.
Lu @lucyeeve
55K Followers 714 Following You deserve to breathe clean air. Into neurophysiology, curiosity, and doing hard things. Left of whatever you’re imagining.
Mormolykeia @Mormolykeia
2K Followers 2K Following Electric witch, limp in society's ditch. Visually fine, oh yes, but mentally dying. #LongCovid #ME
brittany 🎀 hiatus @sapphicswilder
1K Followers 1K Following 17, chinese, she/they | 🥗 #wildies is my special interest | 🎨 artist | 🏳️🌈 queer | ♿️ disabled, housebound #ME #POTS #hEDS | 🤝 1/2 of brilin @ke_lin_
Bay Area Lyme Foundat.. @BayAreaLyme
3K Followers 954 Following The Bay Area Lyme Foundation is dedicated to making Lyme disease easy to diagnose and simple to cure.
Matt Fitzgerald @mattfitwriter
15K Followers 385 Following Creator of Dream Run Camp: Where dreamers come to run, and runners live the dream.
Every Line in America.. @AmericanMovie_
4K Followers 34 Following It's alright, it's ok, if there's a shot without dialogue I'll post that too
Pinakoolada @pinakooklada
1K Followers 182 Following 20s | Long Covid since 01/2021 | #notrecovered | design student | hobbyartist ༺◦༻
🌊🏄♂️ Tra.. @travismlow
1K Followers 3K Following Long Covid Sufferer. Pre longcovid life I was a Racecar Engineer working with fast drivers, stock options trader, angel investor, and generally awesome
#MEActionMaryland @MEActMaryland
500 Followers 1K Following Maryland Chapter of the #MEAction Network: advocacy, education, & support for people with Myalgic Encephalomyelitis (#MEcfs) & complex chronic illness in MD/DMV
Phil Halperin @PhilHalperin
181 Followers 927 Following Live Music House Photographer in The Bay Area
Vinay Kishore @vinay_kishore
268 Followers 108 Following Hyperactive wanderer: All 198 countries, 7 continents, 2 Poles, 2 Tropics, the Equator & Date Line. Now dipping my toes into the COVID fray.
Hanner @GangstHannah
8K Followers 3K Following Producer @ Good Shepherd Ent. Ex QA Extraordinaire on BG3, DOS2.. Devil incarnate, terror of the 7 seas She/Her https://t.co/rSBaq2etQ6My anthology DISABILITY INTIMACY comes out on 4/30!! Join me that day in conversation with the contributors @thellpsx @Nicole_Lee_Sch & Dr. Ellen Samuels online at @HarvardBooks, 6 pm Eastern ASL & captioner available Register: eventbrite.com/e/virtual-even…
“Dr Simon Williams.. said the findings indicated an absolute public health crisis” “If 5 years ago, we were to imagine a completely new disease can cause.. disabling symptoms in approx 3% of the population.. we would be enormously concerned.” #LongCovid theguardian.com/society/2024/a…
Vagus Nerve Stimulation increases remyelination and decreases brain inflammation: important implications for future clinical trials and the therapy of #MS. @SetPointMed @mssociety @Stanford_Neuro sciencedirect.com/science/articl…
"Long COVID: plasma levels of neurofilament light chain in mild COVID-19 patients with neurocognitive symptoms" nature.com/articles/s4138…
“Critically, the trail was flat and groomed—carefully selected since one participant was a wheelchair user…” That was me. And it was an amazing outing. What else could I do if others made a fraction of the effort Ed did to make this outing accessible? audubon.org/magazine/new-b…
Can we start a Long Covid lobby? I’m pretty broke but I’d contribute €5 a month for one. I’m so sick of our advocacy efforts being torn apart by other players with more money & influence/power.
At the #HELPLongCOVID committee meeting in January, senators asked about our challenges when seeking disability through @SocialSecurity . Here’s an example I can share with @SenSanders @GOPHELP @HELPCmteDems of how stressful and broken the process is 🧵
I’m excited to discuss our latest research on how ambient CO2 affects how long #SARSCoV2 remains infectious in air. We report that even subtle increases in CO2 affects both how long #COVIDisAirborne and transmission risk. Here’s a🧵going over the findings nature.com/articles/s4146…
The Press: “Long Covid: ‘I don’t want to be stuck in this house anymore’” “I’ve worked all my life, I’ve paid taxes, I’ve never asked for help before and I need help now, and we can’t get it.” thepress.co.nz/nz-news/350230…
I love this so much! "The real data set': a case of challenging power dynamics and questioning the boundaries of research production." Looks at power dynamics in knowledge creation wrt community expertise & academia, very relevant for patient-led research too! Amazing @vee_etc!
Yay our article is now available open access ❤️ journals.publishing.umich.edu/mjcsl/article/… “As McKittrick (2019) states, part of the work in seeking liberation and ‘reimagining our world’ is thinking with and across ‘knowledge systems’ with the intention of ‘recalibrating who and what we are..’”
Dear Long Covid community: While I continue to adore and support @LCMoonshot, and be proud of their tremendous accomplishments and my contributions, I unfortunately have not been able to contribute since my reinfection, and officially left in March.
New study!! Lots in this paper but interesting takeaway - #LongCovid patients with higher blood viral load had lower immunometabolism scores (meaning the interaction between the immune system and metabolism). LC patients also had significantly decreased lymphocyte activation!
It's a short paper so details are in the Appendix 🤓 Look below at the very homogeneous controls (green) and the wild variation among #LongCovid patients: some are similar to controls but half are "deficient" in lymphocyte activation and immunometabolism -> higher viral load!
A person’s hand holding a copy of my new anthology! Book cover by Madeline Partner. In the center, Light beige background with a red flower on top, green leaves on both sides, underneath that flower is a purple one and right next to the purple is an orange flower.
@SFdirewolf my boyfriend and I preordered your book and we just picked it up at the post office today! super excited to read it
Researchers provide an important clue to Long Covid, finding viral proteins in the blood of 25% of people > 1 year after infection. Team at UCSF led by @MichaelPelusoMD and supported by Amy Proal @microbeminded2 of @polybioRF #LongCovid #LongCovidkids bit.ly/4aRTG5M
Any ideas how to access the pure form of international meds? (Just the active ingredient). Ibudilast is an OTC med from Japan and it’s promising for #LongCovid It helps Dianna, but she reacts strongly to the excipients (all the inactive ingredients) in the commercially…
Brandon Aikuk texted John Lynch and Kyle Shanahan after the Ricky Pearsall selection: "Fire pick. Can't lie."
Wow there are a lot of Sjögren’s immunotherapy trials. There are these, and then both J&J and Argenx’s FcRn phase 2’s 16issjd.com/wiki/1057185/o…
“Results of early (phase II) clinical trials utilizing immunomodulators were presented and there is reason to be optimistic that we could, in the not too distant future, have our first true treatments in #SjogrensDisease.” -Dr. Brent Goodman, CMO, Metrodora Institute
@dsethlewis @loscharlos Don't over-exert, whatever that means. Lol
Actually the real OGs are the people with MECFS from before 2020
@dsethlewis I'm pretty good at avoiding it these days if I a) sleep as much as possible b) don't leave my house or engage with other people in real life. But if I sleep badly or have in-person interactions with folks, PEM hits 85%+ of the time.
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