Phi @phi_psd
Australian/Greek/Cypriot nerdy visual designer, living in Berlin. 🇨🇾🇬🇷🇩🇪 end #prescribedharm #longcovid & #mecfs @berlinbuyers instagram.com/sophsoph.psd Berlin, Germany Joined February 2022-
Tweets10K
-
Followers5K
-
Following933
-
Likes36K
Part of the problem of Long Covid is that people think that deep suffering must look dramatic, and have a dramatic cause, whereas the deepest suffering of which I know looks like patients lying in bed, and is caused by nothing more than a stranger's breath
It’s incredibly cheesy, but every single time I feel like I’m on the edge of quitting this Long Covid battle, I watch this clip on YT: youtu.be/3i-lNrFEIVM?si…
Long Covid Day 466: I will not apologise for being angry anymore. If my anger & swearing bothers you, unfollow/mute/block me. It’s so easy to just not engage with people you don’t vibe with rather than intentionally being a fucking cunt. 🥰
Also, for the fuckwits who feel the need to ask, “Why aRE yoU SpEnDiNG SO mucH tiMe hERe if YoU’Re so SiCk??” That’s precisely why you fucking ignorant-by-choice muppet. If I were healthier, I wouldn’t spend so much time on this god-forsaken app.
Man, I’m so sick of people telling me to “get well soon” when I tell them I have Long Covid. Instead of “Get well soon”, try saying, “holy fuck, this is horrible; how can I help with advocacy efforts??”
Fun fact: one of the most sensitive methods for low-latency relative Covid incidences is Google Trends. We tried dozens of possible search terms and "covid positiv" and "corona positiv" had by far the best predictive value for German-speaking countries: trends.google.de/trends/explore…
I, as a disabled therapist, am reminding you that you don't have a mental illness for taking COVID precautions. There's no such thing as "COVID anxiety." This is a BSL 3 pathogen that spreads through the air. It can cause severe damage to your body. It's normal to not want this.
Many of us still taking COVID seriously are grieving the loss of ease. So much more planning and calculation is needed just to leave the house. Forget about a spontaneous get together or excursion. The mental energy spent protecting ourselves and our communities is draining.
Oh hell yes, love this for The Sick Times 💜💜💜💜🐤
Oh hell yes, love this for The Sick Times 💜💜💜💜🐤
🚨 Great news—CME accreditation! Up to 17 CME Points! 😲 We are pleased to announce that #UniteToFight2024 conference has received CME accreditation in Germany, worth up to 17 points (CME points per Session blocks more details very soon). This accreditation is valid for…
Fellow Europeans with Long Covid and/or ME/CFS: do you think Sunday Natural is a decent supplement brand? Their prices are decent & I’ve been buying their stuff for years… but what do you think in terms of quality?
Kindly #deprescribe -.. @Altostrata
5K Followers 5K Following Founded https://t.co/LZKzf0qLE0 2011. 6,000 case histories of #psychiatric drug #tapering & #withdrawal. Inventor of #Withdrawalology in #deprescribing.
Fiona French, freedom.. @benzosarebad
6K Followers 662 Following 50 years damage due to psychiatry ( benzos & antidepressants) Scottish petition. https://t.co/W0PqvWH4Z0
James Moore @jf_moore
6K Followers 767 Following Husband, father, #podcast host and producer @Mad_in_America.
jc @atomicaceso
3K Followers 482 Following Disabled by Benzodiazepine Induced Neurological Dysfunction @bzinfocoalition Medical harm awareness! Nothing about us without us.🩵 #PrescribedHarm
Writer - Tracey Higgi.. @TraceyHiggins92
4K Followers 738 Following Author of "The Girl on the Bridge: A Memoir." https://t.co/sNyMJF1KZi For educational purposes only.
Angie Peacock, MSW, C.. @angpeacock1111
3K Followers 3K Following Psych Drug Withdrawal Consultant, Patient Advocate, Coach, Combat Veteran, Vanlifer, in the movie @medicatingnorm1 #deprescribing
Justin Garson @justin_garson
13K Followers 3K Following THE MADNESS PILL (@StMartinsPress, forthcoming) | MADNESS (Oxford, 2022) | Philosopher, CUNY | Contributor @PsychToday @aeonmag | rep @Vogelrachelm
James Barnes @psychgeist52
12K Followers 2K Following Psychotherapist⎮Writer⎮Lecturer Mental health, relational psychotherapy & philosophy. Lived experience. He/him. Views my own. https://t.co/UIzGDTvBsE
JD @jill_d35
4K Followers 3K Following Capt Blackadder: Just one tiny flaw in the plan. Lt George: Oh, what was that? Capt Blackadder: It was bollocks. Being British. Now there isn't even a plan....
Susan @BlackshepSusan
3K Followers 3K Following I will not be quiet. No more 🤐 Campaigner to raise awareness that psychiatric drugs are not as safe and effective as advertised. There are better ways.
Harriet Vogt @shvogt
3K Followers 4K Following Psychologist qualitative researcher. Holistic health. Individual’s personal experiences not prescriptive theories. #patientsafety first. Views mine.
Lou Lou🥄 @Louthewarrior
1K Followers 694 Following Living with psychotropic iatrogenic harm and advocating for truth instead of denial
Mad In America @Mad_In_America
35K Followers 29K Following Rethinking Psychiatry Advocacy, Blogs, News, Podcasts https://t.co/ZYsL5pC6uG and Resources
Indigo Daya @IndigoDaya
9K Followers 4K Following she/her | cis | Mad artist & activist | Emancipatory peer support | Survivor of child sexual abuse & carceral psychiatry | PhD candidate: #SliceSilence project
Antipsychiatry @AntipsychiatryU
2K Followers 4K Following Antipsychiatry can mean to be against psychiatric coercion & nonconsensual psychiatry. Voluntary psychiatry should remain legal ♡ https://t.co/BNEj7Ci3c1
Dr John Read @ReadReadj
12K Followers 2K Following Professor, Clinical Psychology, University of East London. Chair, International Institute for Psychiatric Drug Withdrawal https://t.co/LRU5M9fsPz. Opinions my own
Sarah Nadav שרה נ.. @sarahnadav
9K Followers 3K Following Behavioral Economist, WEF expert network, frmr Google, Wix, Vayyar, now I'm just full time sick with long COVID. Proud Zionist 🇮🇱💕✨
Dee @Deedoherty2
4K Followers 4K Following Patient Safety. Info, not advice. Ask your MD if they have access to the data for a medical product. Know the signs of akathisia: a side effect of 100s of meds
Timothie Lustpith @lustpith
677 Followers 627 Following Unaffiliated. Focused on iatrogenic harm in health care, especially mental health care. Ask your doctor about medication risks, then verify. Your story matters.
Benzodiazepine Inform.. @BZInfoCoalition
3K Followers 484 Following Nonprofit educating about the potential adverse effects of benzodiazepines taken as prescribed.
Passi @Passi36867965
12 Followers 153 Following
nah @grittymcchicken
136 Followers 2K Following hopefully parallel universe me has her shit together better than I do
David Godfrey @davidgodfrey29
667 Followers 6K Following
Christina Connerton @christinaelenac
422 Followers 2K Following Writer, actor, bag of ills, cat enthusiast. she/her. Wrote a short film about a time I accidentally worked for a cult.
Commiekid @commiekid1917
53 Followers 59 Following “If these were the last beats of my heart, I would dance to them”
Dfrizz @Dfrizz007
302 Followers 215 Following 42y/o dealing with #longcovid #MECFS since May 9th 2021. Fucking A
@RickFive @RickFiveFive
740 Followers 5K Following was healthy! Body & Brain went haywire after a flu late Jan2020 - supporting more research into Covid-19,LC MECFS #LongCovidAwareness #LongCovid #CovidIsNotOver
postinitiative @postinitiative
24 Followers 304 Following
mj 🏳️🌈🖤.. @MissCrude
1K Followers 3K Following BLACK LIVES MATTER !!!! ♉️ ♍️ ♍️ Non-binary • Witch • Multimedia Artist I make ashtrays & think I’m funny✨Follow “professional” me: @resin_by_mary
Sophie Harrison @sophiehh14
1K Followers 1K Following Part time @UBC law student, full time spoonie. Youth climate movement alum. She/her. ~mostly offline~
Goaraner - Rave on �.. @Hottekoeln
147 Followers 197 Following
Jason Hofmann @jhofmann
654 Followers 2K Following
jess @jessicaliu35752
12 Followers 125 Following 18 yr old w very severe me/cfs and long covid. been lurking for a while.
Kamaiyah @Kamaiyah123
4 Followers 3K Following
J Peace 3 @JPeaceJPeace
31 Followers 92 Following
Andréa Andersson @som_andrea_
75 Followers 531 Following Kommunikatören som pga neurologisk sjukdom fick kliva in genom fönstret och försvinna. Hoppas på forskningen och mina (förhoppningsvis) vilande energidepåer.
A. Mannan Baig (Ph.D... @AMannanBaig
13K Followers 8K Following Consultant COVID-19 and Long-COVID. Employer Free status. Book for your session for Long-COVID and injuries related to S-protein in LC.
Rob McLeod 💙🌎�.. @PassivhausPlus
3K Followers 5K Following Professor of Building Physics & Sustainable Design. CEng. FIMechE. Xs about built environ & humanitarian issues. Co-author #PassivhausDesignersManual #Ventilate
Brigitte Dönges 🇺.. @brigitte_d
3K Followers 5K Following Mom and Lawyer. Sarcastic. Baffled. PUBLIC health is not a PRIVATE problem. #AnspruchAufOnlineschule #NieWiederIstJetzt Inspired in law & life by @Dr_S_Kirchner
Beth Carpenter /// Sy.. @bethshanna
3K Followers 5K Following Writer & marketer, currently writing a novel set in 1970s communes. #WIP newsletter below👇🏻#MizzouJ grad, pronouns: she/her. Sylvia is my 💀 alter ego
HP @jedin00b
83 Followers 145 Following The lesser-known HP. My personal views unless it’s an oopsie or I got hacked. (he/him)
It's Jack now (he/the.. @elia_phant
286 Followers 671 Following Nichtbinäre Elternschaft, unsichtbare Behinderung, generell transness Trans, enby, genderfluid. weiß. queer. Chronisch krank. Keine Pronomen oder Er/Ihm
Alex Rice @alexrice6975
16 Followers 102 Following
Erlend Bleken @vitemer
434 Followers 1K Following Pro-vax, but life on hold after 1st Pfizer vaccine. Crafting software & other inventions 🇺🇦 😷
Dr Finlay's Private P.. @DrFinlaysGP
108 Followers 150 Following 🏆 Award Winning Private GP 🏡 Home Visits 💻 Online Consultations 💡 Specialist Long Covid Clinic
Thesmees @Thesmees117678
0 Followers 233 Following
robinbird_22 @robinbird_22
28 Followers 719 Following
Adrian Farrell 💫�.. @AdrianFarrellAT
4K Followers 5K Following Alexander Technique teacher, poise/posture expert, guitar nut, daddy, #pwME & author of https://t.co/xPGegPW6wD “Our true nationality is mankind.” H.G
Bella @Chocnutties
19 Followers 137 Following Long Covid survivor. CFS, Dysautonomia + Heart Arrhythmia. Won't stop fighting back. Leisk Protocol the answer? Legit only 15 followers. Now 20😊.
Kurt Engfehr @trukker
164 Followers 726 Following I'm a carbon-based lifeform consisting mostly of water and random thoughts about documentaries, Farscape, baseball, juicing, bikes and parrots!
Galli @G__a__l__l__i
62 Followers 575 Following
KTheMan @MaskedHottiee
15K Followers 2K Following Catfish. Long Covid sucks. Wear a mask. BREATHE CLEAN AIR. Free Palestine.
Whirli @whirli
156 Followers 1K Following “But I don’t want to go among mad people,” Alice remarked. “Oh, you can’t help that,” said the Cat: “we’re all mad here.”
Peter Smith @NatalPrime
58 Followers 582 Following Workaround since @wergshy was deemed INCORRECT in April '24
Keith Swan @kgSwan
147 Followers 4K Following
⛺️tent ron🍉 @yachtdestroyer
655 Followers 2K Following I am new to this website and just looking for my 3k friends
themself @lovelyallen
740 Followers 4K Following sculptor, androgyne, technology. prefers bright clothing. warning: potentially obversive.
Joan Crawford @joan_crawford1
283 Followers 1K Following
P @There4Power
249 Followers 2K Following
Konstantina Kakavouli @abraxas145
0 Followers 694 Following
∆ @_salticids
7 Followers 91 Following
Dr James Davies (PhD).. @JDaviesPhD
36K Followers 220 Following Father - Husband - Writer - Assoc Professor of Medical Anthropology & Psychology (Ph.D @UniofOxford). Practicing Psychotherapist (UKCP). Previous NHS. @appgpdd
Kindly #deprescribe -.. @Altostrata
5K Followers 5K Following Founded https://t.co/LZKzf0qLE0 2011. 6,000 case histories of #psychiatric drug #tapering & #withdrawal. Inventor of #Withdrawalology in #deprescribing.
Fiona French, freedom.. @benzosarebad
6K Followers 662 Following 50 years damage due to psychiatry ( benzos & antidepressants) Scottish petition. https://t.co/W0PqvWH4Z0
James Moore @jf_moore
6K Followers 767 Following Husband, father, #podcast host and producer @Mad_in_America.
jc @atomicaceso
3K Followers 482 Following Disabled by Benzodiazepine Induced Neurological Dysfunction @bzinfocoalition Medical harm awareness! Nothing about us without us.🩵 #PrescribedHarm
Writer - Tracey Higgi.. @TraceyHiggins92
4K Followers 738 Following Author of "The Girl on the Bridge: A Memoir." https://t.co/sNyMJF1KZi For educational purposes only.
Angie Peacock, MSW, C.. @angpeacock1111
3K Followers 3K Following Psych Drug Withdrawal Consultant, Patient Advocate, Coach, Combat Veteran, Vanlifer, in the movie @medicatingnorm1 #deprescribing
Justin Garson @justin_garson
13K Followers 3K Following THE MADNESS PILL (@StMartinsPress, forthcoming) | MADNESS (Oxford, 2022) | Philosopher, CUNY | Contributor @PsychToday @aeonmag | rep @Vogelrachelm
James Barnes @psychgeist52
12K Followers 2K Following Psychotherapist⎮Writer⎮Lecturer Mental health, relational psychotherapy & philosophy. Lived experience. He/him. Views my own. https://t.co/UIzGDTvBsE
recovery&renewal @recover2renew
4K Followers 270 Following supporting recovery from dependence on mind-altering prescription medications.
Mark Horowitz @markhoro
11K Followers 352 Following Trainee psychiatrist/Researcher @NELFT @UCLPsychiatry (honorary) . Maudsley Deprescribing Guidelines: https://t.co/MdD00q9Yd1 (US) https://t.co/9eUVpPj52p (UK)
Mad In America @Mad_In_America
35K Followers 29K Following Rethinking Psychiatry Advocacy, Blogs, News, Podcasts https://t.co/ZYsL5pC6uG and Resources
Indigo Daya @IndigoDaya
9K Followers 4K Following she/her | cis | Mad artist & activist | Emancipatory peer support | Survivor of child sexual abuse & carceral psychiatry | PhD candidate: #SliceSilence project
BOB FIDDAMAN💜🇵�.. @Fiddaman
6K Followers 429 Following Researching Drug Company and Regulator malfeasance for 17+ years. New novel, 'No Other Man' out now! Villa fan. AC/DC Nut.
Michael P. Hengartner.. @HengartnerMP
8K Followers 1K Following Senior lecturer and researcher in clinical psychology, psychopathology, evidence-based medicine, psychiatric epidemiology, and social psychiatry.
Antipsychiatry @AntipsychiatryU
2K Followers 4K Following Antipsychiatry can mean to be against psychiatric coercion & nonconsensual psychiatry. Voluntary psychiatry should remain legal ♡ https://t.co/BNEj7Ci3c1
Dr John Read @ReadReadj
12K Followers 2K Following Professor, Clinical Psychology, University of East London. Chair, International Institute for Psychiatric Drug Withdrawal https://t.co/LRU5M9fsPz. Opinions my own
Dr Joanna Moncrieff @joannamoncrieff
25K Followers 90 Following Critical psychiatrist, author and researcher
Sarah Nadav שרה נ.. @sarahnadav
9K Followers 3K Following Behavioral Economist, WEF expert network, frmr Google, Wix, Vayyar, now I'm just full time sick with long COVID. Proud Zionist 🇮🇱💕✨
DR. Ashley the Charla.. @BecauseIMatter
9K Followers 2K Following Ashley Perkins PharmD she/her Co-founder @WeMatterTooInc TEDx speaker https://t.co/ruMZeyKhnr award winning MH advocate - tweets aren’t med advice
Briana Mills, LMFT �.. @theBrianaMills
8K Followers 749 Following Licensed Marriage and Family Therapist #134337. Not your therapist. Physically disabled. Bi. Specializing in disability, medical trauma, EMDR, and LGBT. She/Her
Dr. Gustavo Aguirre-C.. @Aguirre1Gustavo
9K Followers 10 Following Treatment of LongCOVID,Post-Vax,ME/CFS,FM Creator of Test for: Viral Persistence,Microclots https://t.co/6Y0z9pQN13 https://t.co/TXxbrQw8QW
Michael H. Bachmann @mhbachmann
604 Followers 2K Following Assoc Prof @michiganstateu, cancer biologist (book under way), virologist🦠, public health advocate. Views my own.(he/him/his). https://t.co/Jqc6jazGH0
Meg Pillow @megpillow
15K Followers 6K Following Writer | Dr. | Project Manager for @rgay | Co-editor The Audacity | 🌈🌱| Rep’d @AlyssaJennette
🎨Artsy M*rxist �.. @ArtsyMarx1st
9K Followers 994 Following The peoples painter-prints/originals https://t.co/TgylLrXdRQ | ☭ | they/them | 🇨🇳🇲🇽🏳️🌈🏳️⚧️|founder @r3volution_art | live art on twitch @/artsy_marxist
A. Mannan Baig (Ph.D... @AMannanBaig
13K Followers 8K Following Consultant COVID-19 and Long-COVID. Employer Free status. Book for your session for Long-COVID and injuries related to S-protein in LC.
Jessica Cale @DrtySexyHistory
6K Followers 3K Following Host of the Dirty Sexy History podcast. Sex, drugs, contraception, & more. I’m on Netflix’s Lost Pirate Kingdom. Rep: Helm Literary. IG @dirtysexyhistory
Cleo Gray 😷✨🍉 @Cleo_Gray
3K Followers 3K Following made in Korea. aged in Jersey. she/they POTS, H-EDS, Long Covid ‘22 Venmo: @Cleo-Gray
Shaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
emily fraser 🌿🐌.. @emilyesfraser
5K Followers 4K Following Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
InvisibleGLove @GoreLloyd
449 Followers 728 Following DELTA-qualified EAL teacher; previously in EFL, ESOL and EAP (and subtitling). Caregiver to partner with v severe ME from Long Covid She / her
Victor Adebowale @Voa1234
20K Followers 3K Following
The RSA @theRSAorg
89K Followers 7K Following We are the RSA. The royal society for arts, manufactures and commerce. We are committed to regenerate our world through collective action. 📽️ 👉https://t.co/qVRc7hAM9r
Claudia Efstathiou @ClaudEfstathiou
338 Followers 276 Following Postdoc researcher investigating the mechanisms of Long Covid @imperialcollege
Adrian @boerscht
1K Followers 177 Following 28y | Ingenieur | Bergsteiger & Fotograf #MECFS seit 01/2023 |
Sofia Newton @newtsofia
3 Followers 41 Following Medical student and researcher interrupted by disability #mecfs
Rick Bright @RickABright
48K Followers 3K Following Practical, Innovative, Hyper-focused on saving lives. Immunologist, Virologist, Pandemic Nemesis. Posts are mine.
Mark Wright @markeology
12K Followers 3K Following Professor, archaeologist, PhD, and recreational micropoet. #SCBWI. Budding YouTuber. Impatient #MECFS patient.
Mike's EU Maras for M.. @MikesEUmaras
2K Followers 2K Following Ran a marathon race in all 27 EU nations for @invest_in_me & ME/CFS research £49k. 30 Euro countries so far. https://t.co/O7zyuApvJW
Fidji Simo @fidjissimo
30K Followers 553 Following CEO and Chair @Instacart. Cofounder of @Metrodorainst, focused on finding cures for neuroimmune conditions.
Read Let This Radical.. @JoshuaPHilll
320K Followers 2K Following Earthseed | Abolition | Anti-capitalism | (he/him) Join my newsletter at the link in bio 🙏🏻
AirSpot Health @airspothealth
674 Followers 2K Following Our smallest fresh air monitor! Combines with the AirSpot App to help optimise your AirHealth.
Jessica Ellis @baddestmamajama
69K Followers 3K Following Makes Movies. Writes with @ndsinnott. Will never pay for twitter.
Nicholas Boyd-Gibbins.. @NBoydGibbins
2K Followers 529 Following UCL | Kyoto Univ. | CSO | cell engineering, cell therapy, autoimmune, long Covid, iPSCs, regenerative and predictive medicine, cancer, genetics and neuroscience
@TheChronicCollaborat.. @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Rehabilitation Scienc.. @UofTCOVIDRehab
2K Followers 287 Following Leading an international collaborative with the aim to enable innovation and excellence in COVID-19 rehabilitation research. #COVIDRehab
Suzanne T @Suzanne__T
642 Followers 906 Following Former postdoc in human centered AI; career break due to #LongCovid since May '22; tweets with brainfog so excuse the spelling
Nukit @NukitToBeSure
7K Followers 283 Following Nukit at https://t.co/62nBfO0NBA Distributing The Future More Evenly.
Spela Salamon, MD, Ph.. @SalamonSMD
3K Followers 2K Following Diagnostician, Pathophysiologist. #CovidIsAirborne #Maskup #MasksInHealthcare #DoNoHarm #MandateMasks #WearAMask #VaccinesPlus #CO2 #HEPA #NotMild
Ylan Roy @YlanRoy
280 Followers 428 Following Small but mighty 💪🏽 #earlyeducator, visual artist, health enthusiast advocating for #LongCovid awareness. No longer #essentialworkers, speak truth to power!
Aftab Khan, MD @aftab_usa
14K Followers 5K Following Board Certified Internal-Medicine Physician #LongCOVID deserves Awareness, not Ignorance
George Tsakraklides @99blackbaloons
26K Followers 2K Following Plant biologist, food scientist, ex-marketer. Author of IN THE GRIP, THE UNHAPPINESS MACHINE, A NEW EARTH. Necronomics, cognitive devolution, algorithmocracy
Kashif Pirzada, MD @KashPrime
45K Followers 4K Following Emergency Physician, fighter of misfortune and disease; and better indoor air quality w/ @theRavenApp. Can code (badly). Into history/politics/tech/AI. #fella
Sebastian Dullien @SDullien
19K Followers 2K Following Director at @imkflash. Professor for International Economics at HTW Berlin - University of Applied Sciences. Father of two. @[email protected]
拍帮主（争当钉.. @paibangzhu
3K Followers 416 Following 公众号、微博同名；知识星球：https://t.co/zc1rcjH2Z1 ；墙外备份区：https://t.co/ND1MnHJetd…
Zhou Liang's mask @zhouliang_mask
1K Followers 70 Following Dedicating one lifetime to crafting one type of mask.
Kyle @kylofone
500 Followers 932 Following used to spend a lot of time listening to loud guitars. now i mostly drink cinnamon tea. carer for my partner with very severe ME / Long Covid
Terri *stares in pand.. @terribadgerdgaf
369 Followers 211 Following Terri: plain and simple and dimsum. 🌟Sad Girl Stylish Loser aesthetic🌟 BLACK IS THE BEAUTIFUL BLUEPRINT CA: $terribadger
angel @angelique_chung
281 Followers 439 Following Living life to the fullest. 🦠C0vid-cautious! Artist 🎨, techie👩💻 and Scientist🔬 in the making.🍉🍉🍉❤️🖤💚🤍
🍉Jerome is Team #C.. @jacksojj88
3K Followers 5K Following Educator, historian, fierce advocate for children #Blacklivesmatter #StopAsianHate #DAYS, #Sprina,#themeparks, #SARSCoV2isAirborne 🍉🏳️🌈(they/them/he/him)
C🇨🇩🇵🇸🇸.. @FullLaneFemme
10K Followers 694 Following Chicago bike dyke visionary who loves cats, alliteration, and universal basic income. Co-founder: @chistreets Thoughts are my own. They/Them
Rafael @RafaelRoden
659 Followers 77 Following
@ImaniBarbarin@disabl.. @Imani_Barbarin
221K Followers 1K Following she/her Black girl magic+disabled pride |MA Global Comms | my thoughts | #DisTheOscars + #AbledsAreWeird #ThingsDisabledPeopleKnow | ✉️ imani.barbarin gmail
Big Booty Jawn 🏳�.. @BellamyJ_
2K Followers 1K Following Geography PhD student | YouTuber/Streamer (sometimes lmfao) | Solarpunk writer | Black 日本人 👘 | I don't argue I block | they/them
🌙biomimic🐾🍉 @iseeuliars
8K Followers 7K Following Disabled & ND. Writer, teacher, disability justice & advocacy. 💀to capitalism/imperialism. It’s the end of an era, build well-relations up from ashes.@Toms24601 @phi_psd Not necessarily so. I relied heavily on it as I battled to recover and as recovery progressed the need for it gradually diminished.
@phi_psd I’m SO sorry. 😥🫂💔 💙
@phi_psd Aspirin in small dose. I was recommended 100 mg per day. It’s enough for blood thinning.
@phi_psd 1g of ALCAR has helped me with brain fog & mental alertness. Coq10 + Shilajit are great for mitochondria. I tried oxaloacetate for a month, didn’t feel a difference & was too expensive to keep taking it. I read it’s similar to malic acid which is affordable so I got that instead
@acanopyofstars @phi_psd I gaslight myself on this. I start to think, "Well, if I can tweet 3-4 times on a good day, why can't I hold down a full time job?" Oh, right. Because they're nothing alike - unless someone wants to give me a full time job writing a few low-effort tweets per day.
@phi_psd Just say "thank you." Seriously, it'll make your life easier and conserve your energy. I've had chronic illnesses for 34 years-- as of today actually. Protect your peace.
@phi_psd when my dad died, my boss said, "thoughts and prayers," and i nearly had to stab a motherf*cker that day.
@phi_psd suggestion: NAD (taken with sublingual melt tablets, IV, or patches,) has been a game changer for me personally. It helps patch up the energy production cycle where pwME and LC need it the most. Maybe worth a shot?
@phi_psd @1goodtern This was my answer as well (with the all caps included 😆)
For anyone wondering, THIS 👇 is the right thing to say when a friend tells you they have Long Covid
Man, I’m so sick of people telling me to “get well soon” when I tell them I have Long Covid. Instead of “Get well soon”, try saying, “holy fuck, this is horrible; how can I help with advocacy efforts??”
I will probably always be a lace/ruffles kind of person.
@phi_psd Yep. The terrible misunderstanding is that the "get well soon" and "here are some 💩 alternative therapies" people believe they are bering nice and helpfull.
This. All day, every day.
Man, I’m so sick of people telling me to “get well soon” when I tell them I have Long Covid. Instead of “Get well soon”, try saying, “holy fuck, this is horrible; how can I help with advocacy efforts??”
"Get well soon" just sounds like "I don't believe your disability is permanent" when you're dealing with a permanent disability.
Man, I’m so sick of people telling me to “get well soon” when I tell them I have Long Covid. Instead of “Get well soon”, try saying, “holy fuck, this is horrible; how can I help with advocacy efforts??”
@phi_psd I tried them and they only helped a tiny bit and the effects wore off even when I went with a higher dose. Yes, zero sustained benefits and not worth the money.
@phi_psd Yep! The actual course of treatment made symptoms worse for 3-5 days (which is expected) and then improvement came on like days 8-10
Taking all my medications and supplements, drinking enough fluids and electrolytes, resting an adequate amount, and feeding my microbiome are a fucking full-time job. 😵💫
Trends for United States
You might like
