Patient-Led Research Collaborative @patientled
Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions! linktr.ee/patientled Joined November 2020-
Tweets2K
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Followers27K
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Following612
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Likes3K
We've had a really positive reaction & sign up so far to the @visible_health reinfection study with @patientled - thank you so much to all who will be contributing their data 🙏🦠 #LongCovid #MECFS #pwLC #pwME
The % of US adults currently experiencing #LongCovid jumped from 6.7% in Feb-March to 6.9% in March-April, according to @uscensusbureau cdc.gov/nchs/covid19/p…
NEW: The public health emergency may have ended on paper, but we are still in a pandemic. #COVID isn't going anywhere until we prioritize robust indoor air quality standards (#IAQ) with proper ventilation and filtration. bit.ly/IAQ2024
Today, we’re launching a new in-app research study into reinfections with @patientled🚀 It’s been widely reported by people with #LongCovid & #MECFS that infections can have a significant impact on long-term symptoms With your help, we can better understand this phenomenon 🧵
New @visible_health study on reinfections with @patientled just dropped 🔥 If you participate, I look forward to shepherding your data safely into their hands. #LongCovid #MECFS
New @visible_health study on reinfections with @patientled just dropped 🔥 If you participate, I look forward to shepherding your data safely into their hands. #LongCovid #MECFS
“The narrative that #LongCovid is decreasing is just objectively wrong.” — @ahandvanish on @scifri with @iraflatow
'We need a moonshot for long COVID': What we know (and don't know) about the illness. Thank you for having me on your show this morning @wnpr and @wherewelive! Featuring @LisaAMcCorkell @patientled, with Prof. Daniel HoSang and Catherine Shen. ctpublic.org/show/where-we-…
"The @NIH needs to get its act together & do more for #LongCovid.. we need to double down on our efforts to expand funding & increase urgency" “Being fatigued for a few months is one thing, but being at home for 5 years is a totally different ballgame." medscape.com/viewarticle/ye…
We are thrilled about @SenSanders' proposed legislation for a #LongCovid moonshot of a mandatory $10b in research funding! Please see our joint press release with @LCMoonshot here: patientresearchcovid19.com/press-releases/
We are thrilled about @SenSanders' proposed legislation for a #LongCovid moonshot of a mandatory $10b in research funding! Please see our joint press release with @LCMoonshot here: patientresearchcovid19.com/press-releases/
“There is pain in this country right now.. you know COVID itself, there are millions of people with #LongCovid.. kids are not going to school the way that [they used to]..” — @BernieSanders with @jonfavs on @PodSaveAmerica
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Shaney Wright @ShaneyWright
15K Followers 494 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Gez Medinger @gezmedinger
20K Followers 720 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Long Covid SOS @LongCovidSOS
27K Followers 941 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected]
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Daniel Brittain Dugge.. @dbdugger
15K Followers 6K Following HIV+ #LongCovid Advocate. Software Development. CJR Reform. SAND Scan.
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Heloise Wood @HeloiseArch
183 Followers 556 Following Architect, artist, photographer, theatre set designer.
Tania Lizarazo @dearlizarazo
1K Followers 3K Following 🇵🇸Colombian(ist)a moving in crip time. 😷🐌 Associate Professor, UMBC. https://t.co/cFfqYhgcGO
daisy @daisyy25
0 Followers 87 Following
Lord Veldomort @LordVeldomort
3 Followers 89 Following PARODY of Marc Veldhoen and the virus eaters.
Curiosity @curiosity_itis
6 Followers 54 Following
ninalotus @lotus9872
0 Followers 36 Following
Constanze Ertl @ErtlConstanze
726 Followers 741 Following nur Teilzeit auf Twitter - Chronikerin ORF Information
Heidi Washburn @HeidiWashburn4
0 Followers 27 Following Humanitarian Fitness & Wellness General News Health Politics Literature Science News
Cathy Settle @CathySettle4
492 Followers 346 Following Naturally gifted and talented coloured pencil pet portrait and animal artist. Original art and prints for sale and will draw commissions from photographs
Julien Biland @SFN_neurophant
8 Followers 27 Following
An Account for Lurkin.. @lurkingacc0unt
15 Followers 2K Following 24, they/them, queer disabled leftist. White gentile, anti-racist. Free Palestine 🇵🇸. I mostly use Twitter to keep up with covid news. I don’t post.
Long Covid Educators .. @LCEducatorsUK
77 Followers 187 Following A group of educators seeking justice for injury/ill-health as a result of catching Covid-19 in schools as a direct failure of Gov.
🐾🐾🐾loubylu @clearlu366
1K Followers 5K Following Tweeting approx 6 weeks.RegisteredTwitter2014 ,💕🐾https://t.co/LcaQeN84cn…💕Kindness
Tracy Ring Beane @tracy_beane
23 Followers 142 Following Wife/mother of two/retired middle school teacher/nature enthusiast
MariaClare @9qPbV1to853Fq11
16 Followers 287 Following
Anita Collins @AnitaSCollins
229 Followers 789 Following In a parallel universe I have healed the pain of existence, in reality I tread as lightly as I can unless I see injustice in the world 🌎 #notjustfatigue
Ragnhildvhlien @ragnhildvhlien
218 Followers 673 Following Wife, mother of 3, trying to stay informed.
Wendy Bellisima @wendy_bellisima
12 Followers 40 Following Ask not for whom the bell tolls; it tolls for thee.
Sharon Harwin @SharonHarr76757
250 Followers 388 Following starting over AGAIN!!!#JesusisLord,#MAGA,#onlyTrumpcanfixthismess,want our country back, #followourConstitution🇺🇸,#prayfortheUSA🙏🇺🇸🙏🇺🇸
Angela @b1polarpr1ncess
1K Followers 3K Following #CoOwner of @soulglowscents #Fierce #Witchy & #Welsh #MentalHealthAdvocacy #Fitness #LGBTQ #WomenInBusiness 💍@stevieegarrett
Jason I @jason_isaia
831 Followers 1K Following Moderate,Severe Housebound/Bedbound ME/CFS since 2022 💙AFL & EPL
12345 @4711_4711
12 Followers 2K Following
Trish @TrishBarasa
4K Followers 2K Following Mom | Wife | Daughter | Sister | Public Policy | Economics | Agriculture | Food Systems | Climate Change |
ro ♿️🌟🌱 @meticheoakes
912 Followers 3K Following 26 | the revolution will be accessible | your local harm reduction advocate | they/elle | 1312
Judge Knot 💙 @Judge_Knot1
1K Followers 1K Following There are 2 types of people in the world, good and #NOT good! 👁️
Vito LaBella Fighting.. @VitoLaBella4NY
1K Followers 4K Following NYS Candidate for Senate 26, Former Candidate NYC Council, NYS Senate 17, D20 CEC, Co-Founder PLACE NYC, Actor (AEA, SAG/AFTRA) Lieutenant NYPD (Retired)
Pam Belluck @PamBelluck
11K Followers 1K Following New York Times writer covering health & science. Author of "Island Practice," a book about a quirky island doctor. Jazz flutist. Lapsed Ultimate Frisbee player.
Janet Parkhurst @parkhurs19
5 Followers 597 Following
Mojoroxy 💛🦋#lon.. @roxy_mojo
13K Followers 14K Following Blessed Be 🌕#longcovid since 3/2020 #MECFS #4yearsurvivors
allison @allisonaallen1
27 Followers 641 Following
dawn loudenback @DawnLouden91491
5 Followers 50 Following
Jireh @Jireh2262382127
0 Followers 547 Following
April Maglothin @AprilMaglothin
20 Followers 129 Following Mom, designer & wife. Padres fan ⚾️ Former southerner
Lindsey Knowles, PhD @LMajorK
140 Followers 287 Following Assistant Professor in the Department of Rehabilitation Medicine, University of Washington. Views & opinions are my own.
Mar's Views from Her .. @SportsMarlene
1 Followers 17 Following
Melissa Hicks - 710.9 @710dot9
2K Followers 3K Following #Autoimmune #patient, #MedX ePatient Scholar, SASI & ACCME faculty, PCORI & BMJ peer reviewer, etc. Into patient experience & pts in #CME & #research. she/her
Yazid @TheLetterAleph
13 Followers 61 Following I’ve made this account to boost a collective of concepts on neuroscience that promise to reveal the pathways of Fibromyalgia/Lyme disease.
kara @karakarawrites
185 Followers 511 Following reba mcentire stole my man. amateur american ethnomusicologist, master of astrophysics, and writer for hire: [email protected] (she/her/hers)
Sonal Sathe @pajarita_shilpa
488 Followers 1K Following it rhymes with tonal| PhD student at @Virginia_Tech| RT not necessarily endorsement | views mine | Blue-sky: https://t.co/GDT9EClEyt
Pathogen Hunter @lymehater
837 Followers 5K Following Lyme disease advocate, tennis player, biomedical researcher, skier, reader, gourmet cook, antique hunter, world traveler, geek with varied interests.
lovidia @lovidia_net
0 Followers 7 Following
Heather (she/her) @hrasunflower
496 Followers 3K Following wife, aunt, DNP APRN, ally, rural med, pro-science, pro-vaccine. Tweets/RTs do not represent any agency and are not medical advice.🏩🩺💊💉🧬♥️#medtwitter
░M░O░O░D░S�.. @cba_life
292 Followers 2K Following Breast Cancer at 39 - stage 3, having treatment; have a disability; pro Palestine, pro Ukraine, anti anti-vax, anti Brexit, anti Tory; Covid is not a cold/flu😷
Yann (ME/LC Research .. @yann_mecfs
100 Followers 63 Following Very severe ME/CFS (Long Covid). Not always able to use phone. Bedridden/unable to speak. #LongCovidMoonshot
Heather Bowman @Heather18455439
16 Followers 798 Following
C @angeliquia_
0 Followers 7 Following
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Gez Medinger @gezmedinger
20K Followers 720 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Long Covid SOS @LongCovidSOS
27K Followers 941 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected]
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Morgan Stephens @morganstephensa
14K Followers 2K Following around the White House @business, poet TILT (Aldrich Press 2024), previously @cnn, #LongCovid
Prof Doug Kell CBE #F.. @dbkell
14K Followers 10K Following Liv Uni. ENTJ. CBE. Against brexit and Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice @[email protected]
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Dr. Kim @kfrhoads
2K Followers 2K Following Radical humanist, Drummer, Mom. Former #CRS. Assoc Director, @UCSFCancer. Community Engagement @UCSFCANCER_OCE @Umojahealth @cancergrand @HEAN_RCC #HealthEquity
Trish @TrishBarasa
4K Followers 2K Following Mom | Wife | Daughter | Sister | Public Policy | Economics | Agriculture | Food Systems | Climate Change |
Dr. Abby Koppes @ANKoppes
2K Followers 3K Following Assoc Prof @NU_ChemE, NeuroEngr, Gut Stuff, Dog Lover, She/Her. Serving @bmesdiversity #MaskUp #LongCovid #POTS #BLM. Views My Own @[email protected]
UMass Chan Medical Sc.. @UMassChan
14K Followers 4K Following Official X home of UMass Chan Medical School: pioneering education, research and health care delivery. See how we are advancing medicine together.
HiFiBiO Therapeutics @hifibio
317 Followers 85 Following HiFiBiO Therapeutics is an emerging multinational biotherapeutics company mobilizing the human immune system to combat disease.
UniteToFight2024 @U2Fight_World
3K Followers 121 Following 100% crowdfunded LC & ME/CFS conference project. community-driven. independent. global.
Elke Asen @ElkeAsen
2K Followers 3K Following MSc in Economics Student @LSEEcon | former tax policy analyst @taxfoundation | Life on Pause since Dec ‘21 due to #LongCovid
Scripps Research Tran.. @ScrippsRTI
4K Followers 437 Following The Scripps Research Translational Institute's mission is to change medicine, making it more individualized and democratized.
Anne Romatowski @anneromatowski
462 Followers 2K Following https://t.co/RksrGRXZHL Day jobs: FinTech, Racial Wealth Equity, Cities. Other stuff: #MECFS caregiving, #NEISvoid, #hEDS, #POTS
Long Covid Moonshot @LCMoonshot
3K Followers 317 Following 18 million Americans suffering with Long Covid, and ZERO treatments. We need a moonshot for Long Covid research funding! Press: [email protected]
Julia Carneiro @juliadcarneiro
3K Followers 2K Following Freelance Journalist in Rio, reporting for BBC outlets, DW Brasil and others. Master in Latin American Studies at @LACOxford & Weidenfeld-Hoffmann scholar
Lygia Navarro (she/el.. @LygiaNavarro
990 Followers 2K Following independent journalist / periodista independiente | edit @palabranahj | sharing opps @narrativegigs | proudly disabled ♿️ #LongCovid 🎓@ucbsoj same@all socials
Prof Gemma Carey, PhD.. @gemcarey
26K Followers 2K Following Public admin, social policy, public health. Lots of NDIS @UNSW. PROVAX, vax injured - in severe ME recovery. (And non aca-author). Views are my own
Sarah-Jane (SJ) Murra.. @SJ_Murray
62K Followers 8K Following Ph.D (@Princeton), EMMY-nominated, award-winning filmmaker. Translated the Ovide moralisé. Founded The Greats Story Lab. Professor @baylor, speaker @tedx
Metrodora Foundation @MetrodoraFdtn
367 Followers 414 Following Catalyzing scientific collaboration and discovery to find cures for chronic, multisystem disorders.
Amanda Hu @amandalhu
29K Followers 2K Following An artist who likes talking about clean air. Not a doctor/engineer/scientist. She/her. Profile pic: @stwatson2 Banner: @calgaryhester
Galen Panger ☕️ @gpanger
2K Followers 2K Following UX researcher. Social media behavior PhD @BerkeleyISchool ‘17. @Stanford ‘07. He/him/gay. I work @YouTube—all views mine.
Andy @yowhatsupimandy
83 Followers 126 Following
Nicole Newnham ☮️ @NicoleNewnham
3K Followers 756 Following Oscar-nominated,Emmy-winning director. "Crip Camp" (with Jim LeBrecht) and "The Disappearance of Shere Hite" - Sundance 2023!
James LeBrecht @JimLeBrecht
6K Followers 3K Following Filmmaker and Disabled Civil Rights activist. Co-Directed the Oscar nominated documentary Crip Camp with @NicoleNewnham. https://t.co/QloPiS9nTe co-founder.
Vanessa G. Sánchez @vanesanchez_g
570 Followers 2K Following California reporter for @KFFHealthNews. prev: @SearchlightNM, @washingtonpost, @HowardCenterUMD 🐢| Se habla español |
Dr. Émile P. Torres @xriskology
22K Followers 3K Following New book: "Human Extinction: A History of the Science and Ethics of Annihilation." Philosopher and historian; also a musician. :-) they/them
Senator John Hickenlo.. @SenatorHick
39K Followers 401 Following Proudly serving the people of Colorado in the U.S. Senate.
Sen. Lisa Murkowski @lisamurkowski
325K Followers 600 Following Official Twitter account for U.S. Senator Lisa Murkowski. Follow me for news and updates on what's happening in the Senate and across Alaska.
Tina Smith @TinaSmithMN
84K Followers 4K Following Converse-wearing, donut-eating U.S. Senator from Minnesota. Longtime fierce advocate for families and grandma. she/her
Senator Tina Smith @SenTinaSmith
99K Followers 3K Following Mom, wife, daughter, and loving but distracted friend. U.S. Senator for Minnesota. Prefers window seats, donuts and MN beer (all together when possible)
Senator Mike Braun @SenatorBraun
49K Followers 349 Following Main Street businessman & Hoosier U.S. Senator for Indiana Newsletter signup: https://t.co/itGCdTNjna
U.S. Senator Bill Cas.. @SenBillCassidy
61K Followers 2K Following Treated uninsured patients as a doctor in Louisiana’s charity hospital system, now serving the people of my state in the US Senate. Proud LSU grad! #GeauxTigers
Senator Patty Murray @PattyMurray
487K Followers 2K Following U.S. Senator, Washington state | President pro tempore of the Senate | @SenateApprops Chair | Working every day for WA families | she/her/hers
Cyrus (@cyrus on farc.. @cyrusclarke
3K Followers 2K Following 🌱 Creating with nature | Web3, WebTree and NFPs | Founder @_GYOC and @NFPgarden
The Sick Times @thesicktimes
3K Followers 281 Following Non-profit news site chronicling the #LongCovid crisis. Founded by @betsyladyzhets and @mileswgriffis. Donate: https://t.co/YBFRSWzcJx
Mehdi Hasan @mehdirhasan
1.5M Followers 4K Following British-American journalist. Editor-in-chief and CEO of new media company @zeteo_news. Subscribe here: https://t.co/sEC1ETyGtn
Johan Van Weyenbergh @johanvawe
4K Followers 4K Following Researcher in #HTLV #HIV #NTDs respiratory viruses and vaccine response. 'Nothing in #human #immunology makes sense outside the light of #clinical #evolution'
Clean Air For All @CleanAirForAll
1K Followers 3K Following Every person has the right to a healthy environment & that means clean air to breathe. We are working towards upholding the right to clean air.
Chadwick R. Johr, MD @DrChadJohr
2K Followers 201 Following Sharing my perspectives on #Sjögren's. Director, Penn Sjögren's Center. Former board of directors @SjogrensOrg. #Rheum. Opinions my own. Not medical advice.
Sjögren's Foundation @SjogrensOrg
10K Followers 3K Following Creating a community where patients, healthcare professionals & researchers come together to conquer the complexities of Sjögren's. #ThisIsSjögrens
Neuro Sjogrens @NeuroSjogrens
2K Followers 706 Following Neuro damage is prominent in Sjogrens. NeuroSjogrens/Sjogrens/chronic illness info posted. Advocacy, not med advice. RT's appreciated, helps spread the word!
Sarah Schafer MD MPH @SarahSchaferMD
3K Followers 2K Following Medical educator, Sjogren’s & spondylitis patient. I combat Sjogren's myths to improve diagnosis and care for this serious, systemic disease. No medical advice.
Dr Rebecca Richardson @mavisclare
4K Followers 4K Following Advanced Lecturer (@PWRStanford). Material Ambitions: Self-Help and Victorian Literature (@JHUPress). 19th-c lit, ecocrit, history of econ., medical humanities
Jamila @JamilaRowser
8K Followers 1K Following LA Times Book Prize & Ignatz winner •Eisner nom'ed •Writer, Editor, Publisher @blackjoseipress • ✊🏾🇵🇷🇩🇴🏳️🌈🥄 •She/her• Icon @bysamwade• Header @robrosmo
Hayley Brown @hayleycbbrown
2K Followers 5K Following Passionate about labor, disability, inequality, geography, and data. Research Associate @ceprdc and member @NonprofitUnion and @CEPRoletariat. Clean the air!
chantzy @chantz_y
14K Followers 1K Following Mom, communicator and science writer. Croissant maker & eater. Métis. Health equity. Accidental activist 🦠
Victoria Kirby York (.. @VKirbyYork
3K Followers 5K Following ✝️✊🏾🏳️🌈🤱🏾🇺🇸🇬🇧🙏🏾Director of Public Policy & Programs @NBJContheMove all views are my own RT/comments are not endorsements 🐑🗝️🚢🐝stan IH/Fibro 🪖
Christopher C. Cuomo @ChrisCuomo
2.0M Followers 270 Following @newsnation 8p and 11p east M-F Instagram: chrisccuomo. TRY MY PODCAST. FREE. CHRIS CUOMO PROJECT. link:
Ravi Veriah Jacques @RaviHVJ
6K Followers 995 Following On a long twitter break | 2021 Schwarzman Scholar | @Stanfordhistory alum | Covid longhauler | Long Covid & ME/CFS Advocate 🇲🇾🌲✨🎻
Mia Mingus @miamingus
30K Followers 1K Following “In a time of destruction, create something” - Maxine Hong Kingston | Sporadic tweeter | venmo: miamingus | https://t.co/yppSouTHZj
Simmaron Research @RedefiningMECFS
4K Followers 397 Following Official Twitter account for Simmaron Research, a non-profit scientifically redefining ME/CFS. Visit our site to learn more.
Stephanie Grach MD MS @GrachStephanie
947 Followers 811 Following @MayoClinicGIM Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers
The Long Covid Sessio.. @SessionsTlc
7K Followers 1K Following Longest running Podcast on #LongCovid. In depth interviews with the world’s leading doctors and scientists trying to work on the pandemic’s long tail.We've had a really positive reaction & sign up so far to the @visible_health reinfection study with @patientled - thank you so much to all who will be contributing their data 🙏🦠 #LongCovid #MECFS #pwLC #pwME
The % of US adults currently experiencing #LongCovid jumped from 6.7% in Feb-March to 6.9% in March-April, according to @uscensusbureau cdc.gov/nchs/covid19/p…
NEW: The public health emergency may have ended on paper, but we are still in a pandemic. #COVID isn't going anywhere until we prioritize robust indoor air quality standards (#IAQ) with proper ventilation and filtration. bit.ly/IAQ2024
Today, we’re launching a new in-app research study into reinfections with @patientled🚀 It’s been widely reported by people with #LongCovid & #MECFS that infections can have a significant impact on long-term symptoms With your help, we can better understand this phenomenon 🧵
New @visible_health study on reinfections with @patientled just dropped 🔥 If you participate, I look forward to shepherding your data safely into their hands. #LongCovid #MECFS
Today, we’re launching a new in-app research study into reinfections with @patientled🚀 It’s been widely reported by people with #LongCovid & #MECFS that infections can have a significant impact on long-term symptoms With your help, we can better understand this phenomenon 🧵
“The narrative that #LongCovid is decreasing is just objectively wrong.” — @ahandvanish on @scifri with @iraflatow
'We need a moonshot for long COVID': What we know (and don't know) about the illness. Thank you for having me on your show this morning @wnpr and @wherewelive! Featuring @LisaAMcCorkell @patientled, with Prof. Daniel HoSang and Catherine Shen. ctpublic.org/show/where-we-…
"The @NIH needs to get its act together & do more for #LongCovid.. we need to double down on our efforts to expand funding & increase urgency" “Being fatigued for a few months is one thing, but being at home for 5 years is a totally different ballgame." medscape.com/viewarticle/ye…
Very interested in this 👀
📣 🐶 What a THRILL to speak to biologist / co-founder of @DogAgingProject, Dr. @mkaeberlein abt the incredible promise of Rapamycin, which turned my 15.5 y/o 🐶 back into a puppy a year ago! ‼️Could be important for #LONGCOVID! ‼️ In animal studies it: ✅ increased lifespan…
“There is pain in this country right now.. you know COVID itself, there are millions of people with #LongCovid.. kids are not going to school the way that [they used to]..” — @BernieSanders with @jonfavs on @PodSaveAmerica
Tomorrow at the #LongCovidHour, we’re going to catch up with patient/scientist/artist/activist/all-around amazing human being @ahandvanish for her 4th #LongCovid anniversary. This will be more informal than our usual guest speakers, so come ready to chat! x.com/i/spaces/1zkkz…
"We must do everything that we can to find potential treatments & cures for #LongCovid. In my view, there has been a lack of urgency in Congress, the fed gov, & the medical establishment to research & develop new treatments that might cure or lessen the impact of this condition"
We cannot ignore the public health crisis that is Long COVID. On Long COVID Awareness Day, let us commit to doing everything we can to address this horrible condition. The U.S. government must do more to increase awareness and provide additional resources to develop treatments.
NEW: Sen. Bernie Sanders has introduced a resolution to formally recognize #LongCovidAwarenessDay, in collaboration with @C19LH_Advocacy. thesicktimes.org/2024/03/15/sen…
Join Us in Making a Difference this Long COVID Awareness Day! As part of our commitment to advancing Long COVID research, we've launched an initiative to gather data on Long COVID cases through #CUREID. 🧵 cure.ncats.io/explore/overvi…
just did my calls for the @LCMoonshot campaign and got three live humans for the first time ever
On @NPR All Things Considered @julialmv and I talk to @WStoneReports about where we stand on #LongCovid We made progress; but people suffering from Long Covid need treatment We need larger & faster trials to identify effective treatment for Long Covid npr.org/2024/03/14/119…
Join us Wed March 13 at 8 PT/11 ET for an online press conference We will urge @CDCDirector Cohen to revisit the abrupt elimination of isolation guidelines and open CDC guidance to a public comment period and make CDC processes accountable to the public, not corporate interests
PS here's a thread from when we first created the study website: x.com/julialmv/statu…
We are creating a study to see whether wearable devices can improve #LongCOVID symptom management. longcovid.scripps.edu The study was sparked by discussions in the @itsbodypolitic group & is being brought to life by @ScrippsDTC & @patientled. 1/5
Thank you to so many – especially the people with Long COVID who gave early feedback, colleagues at @ScrippsRTI, @careevolution, @patientled, @Garmin, & an anonymous philanthropist. Press release here: scripps.edu/news-and-event… Enroll here: longcovid.scripps.edu 6/6
We’re also collecting data and experiences from those who already own wearable devices – and will conduct exploratory analyses across device types. So if you already own a wearable - we welcome your participation too! 5/6
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