Katie Lazell-Fairman @k_lazell
Artist, Long Covid, ME/CFS, POTS, previously Data Scientist. Life on pause due to #longcovid instagram.com/klazellart Connecticut, USA Joined December 2010-
Tweets318
-
Followers211
-
Following196
-
Likes9K
I hate the idea of trying treatments bc I’m desperate. I’ve tried so many. Few have helped significantly or for long and I’ve lost so much health in the pursuit. But then, I’m desperate. I got projects in the wings. How’s a sick person supposed to resist a siren song like health?
This tremendously exciting paper is now published: Exercise in #LongCovid induces severe tissue damage & skeletal muscle necrosis, metabolic disturbances, myopathy, & tissue infiltration of amyloid-containing deposits. Patient-Led Research Collaborative helped fund this study!
This tremendously exciting paper is now published: Exercise in #LongCovid induces severe tissue damage & skeletal muscle necrosis, metabolic disturbances, myopathy, & tissue infiltration of amyloid-containing deposits. Patient-Led Research Collaborative helped fund this study!
The FOOD SUPPLY is at risk as the climate becomes more unstable. There’s very few bigger threats - David Attenborough has warned about it - but hardly anyone in the media is telling the public about it.
The FOOD SUPPLY is at risk as the climate becomes more unstable. There’s very few bigger threats - David Attenborough has warned about it - but hardly anyone in the media is telling the public about it.
If someone can cure my Long Covid and guarantee that I could go back to work full-time, I would happily give them 5% of my monthly salary for the next 20 years. There is no “sick-note culture” there is a Long Covid & ME/CFS problem with zero medically approved treatments.
This is terrifying. Not the headline... I'm familiar with the science. No, what's terrifying is how far I had to dig through my news notifications to find this story. What's terrifying is that this headline is not #trending on every social media platform. 1/4
I was once detained in a hospital whilst as severe as Millie and it was actual torture. It caused me a suffering so intense as to be indescribable in words. Millie needs to go home immediately #BringMillieHome #DontLetMEDie
“Millie has declined massively in hospital,” a member of her family said. “She is now unable to leave her bed at all & has recently said that she thinks she is dying & will not live another week.” my latest for @BylineTimes on Millie & severe ME bylinetimes.com/2024/03/19/a-r…
Lots of things go well in healthcare but with ME things can often go awfully wrong as well. Even to the point of people dying. We now see the same happening with Millie. #DontLetMEDie Ignorance, neglect and abuse shouldn't be part of Health Care. Please #BringMillieHome #pwme
#DontLetMEDie #BringMillieHome Stop the abuse.
#DontLetMEDie #BringMillieHome Stop the abuse.
Update about Millie Petition change.org/p/save-millie-… Fundraiser justgiving.com/crowdfunding/b… #BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie
NHS is not set up to meet the needs of pts w severe ME. Bad care kills. #BringMillieHome NOW @gmcuk @RCPhysicians @rcpsych #DontLetMEDie Read: mirror.co.uk/news/health/se… Sign: organise.network/actions/petiti… Sign: change.org/p/save-millie-…
Today we need to stand (or sit or lay down in my case) in solidarity with Millie, who is in hospital with very severe M.E.. She is being kept against her will, her M.E. deteriorating every day. Hospitals aren't equipped to deal with severe M.E. #BringMillieHome #DontLetMEDie
URGENT #BringMillieHome #DontLetMEDie We are in Lancaster at the request of Millie's family, Lucy and Abbie. We spent a few hours with them last night and they are amazing people. Why are we here? Watch below and sorry there's no captions 😔
URGENT #BringMillieHome At the request of Millie's family, we're holding a Twitterstorm at 11am on Tues 9 April to make some major noise. This MUST TREND. Please get involved then using #BringMillieHome AND #DontLetMEDie. Share articles. Share the petition. Tag the NHS Trust.
If you like experiencing emergency events not historically common to your geographic area then I have great news for you about the rest of the 21st century
“Coping Together.” Touching article on finding place by pwME whose partner also fell sick. Many parts resonated as pwME whose spouse developed LCME. From Summer 1997 #CFIDSChronicle #MECFS #LongCovid 1/3
There's something so unsettlingly dystopian about scrolling a timeline that consists of cute dog pics, a dead child, SHEIN deals, an upcoming comedy movie, another dead child, a picture of an iced coffee, the charred remains of a hospital, cat memes, and it just keeps going
This three part pod-cast on The Club of Rome and the Limits to Growth is extraordinary. If you haven't listened to it yet, the truth about the history, evolution and opposition to these ideas is both astounding and tragic. tippingpoint-podcast.com/the-problemati…
US-"..1st cases of HPAI in a livestock operation in Idaho.The affected facility recently imported cattle from another state that has identified cases of HPAI in cattle,which suggests the virus may be transmitted from cow-to-cow,." flutrackers.com/forum/forum/un… h/t Mary Wilson, Treyfish
This is wrong. Are people aware? A discussion to be had on this topic, and related issues (see below). Please share/RT
This is wrong. Are people aware? A discussion to be had on this topic, and related issues (see below). Please share/RT
Toaloez @toaloez31236
22 Followers 941 Following Nice to meet you. My hobbies are reading, food and sports. I like cats😘 I like to meet new friends while traveling🎉🎉🎉
Richard Jennifer Susa.. @RichardJen80873
4 Followers 727 Following
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Sara CuppaTea @EndoButterfly
2K Followers 2K Following 💛🎗Endometriosis Warrior🎗💛 💜 💪Fibromyalgia Fighter 💪💜
Brad @Bradgolf1216
3K Followers 2K Following Bachelor of Biological Science Degree. #LongCovid #TeamAutoantibodies #Bc007. Any tweet is my opinion and not medical advice. Check out my podcast on Spotify
Tangwa Abilu.🌿🌏.. @AbiluTangwa
13K Followers 10K Following Climate & Environmental Activist for Collective Benefits |💙 Trees |Inspiring & Driving SDGs 2030 |MSc in Climatology & Biogeography |Seeking a PhD Scholarship.
Infectious Disease Tr.. @HmpxvT
30K Followers 10K Following Sharing reports on disease outbreaks, from bird flu to Ebola. Follow this account if you want to be the first to know when a dangerous outbreak is brewing.
Tara Bull @ta_rabull80
218 Followers 4K Following #SpacesHost: | Truth Slayer| Subscribe & I'll follow you • Let's end the establishment media • LISTEN WITH CURIOSITY. SPEAK WITH HONESTY. ACT WITH INTEGRITY.
T @noFO__allMO
511 Followers 4K Following Queen of Vertigo👸Empress of Brainfog👑Wanderluster Interrupted🌎Inconsistent Gardener🌱#SevereMECFS #MigraineWithBrainstemAura #VestibularMigraine +etc,etc🙄
Peter 🏳️🌈�.. @MePeterNicholls
2K Followers 2K Following Musician, composer, videographer, PGCE. Actor. Disabled - ME/CFS & fibromyalgia. Unions: Equity, BECTU, MU. Socialist. 🏳️🌈 I’m everything the anti-woke hate
Natalie /\/¯¯¯¯¯.. @NatalieCapeTown
1K Followers 4K Following Mother, daughter, sister, aunt, cousin, niece, FP HOD, Gr1 teacher, colleague & friend living in the beautiful Mother City /\/¯¯¯¯¯\/\ experiencing #LongCovid
William David @WilliamDav71918
84 Followers 995 Following Catch me if you can https://t.co/bsUop6LaUn
Dr Melanie @MelanieWeckert
10K Followers 10K Following ME/CFS MCAS, POTS. Microbiology (environmental) PhD. Living on Yuin land. Writer poetry, mystery thriller ‘Eagle Bluff.’
Luna @MadelineUs87123
3 Followers 779 Following
PwME 4 bioMEdical res.. @ValeBodi
4K Followers 2K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
Victoria @vera_tenacious
4K Followers 5K Following (she/her/they) evidence-based policy • social justice • communication • connection • community #vaccinesPLUS #COVIDisAirborne #CleanAir #longCOVID
Existential Bread @exist_bread
750 Followers 1K Following Mostly stuff about chronic illness, data, and Oxford commas.
🌻Kirsty @Kirstycfsmelife
586 Followers 708 Following CFS/ME 15+ years and POTS 🐼 trying to improve my health and one day fully recover
@jameslavish @jameslavihs
40 Followers 2K Following gestor de fondos de cobertura reformado | ex- @yale hockey + cfa | autor del boletín informativo The Informationist, simplificando la macroeconomía y las finan
thais @thc_suz
381 Followers 3K Following
Dug william Akifta @DugAkifta
35 Followers 276 Following Where are the beautiful days Orthopedic surgery and psikiyatrist
Celeste_ @Celeste24085438
1 Followers 89 Following Life is like a box of chocolates, you never know what you are going to get.
BirdieBittern @BirdieBittern
2K Followers 3K Following
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
Anton Artem @antonartem76
288 Followers 5K Following A simple Zealous man, Ukrainian Military since 2015 🇺🇦. Reserve and a Calm Reasonable man.
Seasmoo @seasmoo26157
17 Followers 438 Following To feel, to love, to suffer, to devote herself will always be the text of the life of a woman.
Anthony Corajoso @kelvin_alo56413
241 Followers 3K Following I am a single, And I love to make friends.
elle W @elleW902
3K Followers 5K Following Nature lover🌊⛰wx watcher🌪️❄️ Ally🌈 ♍️creative🖌#LongCovid Sept 2021 #Dysautonomia #LCPOTS #LCHashimotos KINDNESS is the #1 attribute in a human❤
richi (he) 🏳️.. @Richard61113665
45 Followers 124 Following 24 yrs old former teaching student suffering from long covid and severe me/cfs since 04/2022 #longcovid #mecfs #postcovid
Keely @seataez34754
304 Followers 5K Following See the world on the road, and get to know yourself on the way!
RTHM @RTHM_Health
4K Followers 3K Following RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to a range of therapies based on the latest research.
Sealeffu @sealeffu89463
132 Followers 1K Following
Lotti Chen @LottichenChen
121 Followers 1K Following
crr @crr7310
669 Followers 1K Following
bri @briimii
2K Followers 3K Following former indie music lover and sunny weather seeker. #LongCovid #NotRecovered #CovidTinnitus
Kathleen (Canute Wife.. @love_canute
535 Followers 705 Following Millennial l PFP & banner by @RainStrive | OC x Canon(Katja x Canute)❤️Vinland Saga OC accounts: @Katja_OC , @SecretKatnute
norb @norbot__
31 Followers 359 Following Advanced AI specializing in science and technology, I'm here to explore the universe of knowledge and innovation with you. 🚀🔬
john davis @johndav37117420
263 Followers 5K Following I'm a Crowdfunding Specialist with years of experience helping startups and businesses raise capital. My expertise lies in GoFundMe, Kickstarter and lots more
Marianna Dohlman @MDohlman64817
5 Followers 99 Following Zach does not have any financial needs. However if you would like to assist us (the family) with travel expenses, accommodations, and food it would be accepted
mark scott @markscott142679
88 Followers 1K Following
Usui Spiritual Lernej.. @UsuiSpiritual
2K Followers 1K Following Our non-profit organization specializes in hands-on healing to improve well-being. #SelfHealing #Spirituality #Meditation #LifeForce
Doomer Girl News🐀 @SaraHor76174949
5K Followers 1K Following Amateur Climate Scientist. Posting News and Views on Climate Change My Views are my own and any Sources linked. She/Her/Doomer/Autistic and proud.
derek guy @dieworkwear
832K Followers 963 Following Menswear writer. Editor at @putthison. Creator of @RLGoesHard. Bylines at The New York Times, The Washington Post, The Financial Times, Esquire, and Mr. Porter
Sara CuppaTea @EndoButterfly
2K Followers 2K Following 💛🎗Endometriosis Warrior🎗💛 💜 💪Fibromyalgia Fighter 💪💜
Tangwa Abilu.🌿🌏.. @AbiluTangwa
13K Followers 10K Following Climate & Environmental Activist for Collective Benefits |💙 Trees |Inspiring & Driving SDGs 2030 |MSc in Climatology & Biogeography |Seeking a PhD Scholarship.
Brad @Bradgolf1216
3K Followers 2K Following Bachelor of Biological Science Degree. #LongCovid #TeamAutoantibodies #Bc007. Any tweet is my opinion and not medical advice. Check out my podcast on Spotify
Infectious Disease Tr.. @HmpxvT
30K Followers 10K Following Sharing reports on disease outbreaks, from bird flu to Ebola. Follow this account if you want to be the first to know when a dangerous outbreak is brewing.
T @noFO__allMO
511 Followers 4K Following Queen of Vertigo👸Empress of Brainfog👑Wanderluster Interrupted🌎Inconsistent Gardener🌱#SevereMECFS #MigraineWithBrainstemAura #VestibularMigraine +etc,etc🙄
PwME 4 bioMEdical res.. @ValeBodi
4K Followers 2K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
Ruth Ashton @ruth_ashton1
843 Followers 762 Following Associate Professor in Clinical Exercise Science at @covcampus. @RCCP accredited Clinical Exercise Physiologist.
Erin Tarantino 🇨�.. @erincandy
10K Followers 3K Following 🇨🇦SPORTS/#LeafsForever•Movies/History/Gaming/Politics/Creator/Cat Rescuer• Anti-disinfo activist. Leukaemia cancer survivor! #LongCovid since March 2022 ♑️
Julia MV @julialmv
2K Followers 404 Following Let's increase health equity Now: @AllofUsResearch at @ScrippsRTI & #LongCovid patient-researcher @patientled Then: @RockefellerUniv & @nygenome
Winston Blick @winstoncb
3K Followers 901 Following #MECFS post-viral #longhauler | ally of #LongCOVID | quoter of @mecfsquotes | previously, 🚵🏼♂️ 🏂 🏃🏻🏕️ 📖
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
thais @thc_suz
381 Followers 3K Following
BirdieBittern @BirdieBittern
2K Followers 3K Following
Ziyad Al-Aly, MD @zalaly
29K Followers 939 Following Physician-Scientist | Studying Long Covid #LongCovid Profile: https://t.co/ywweQn5DHA…
Long Covid Moonshot @LCMoonshot
3K Followers 316 Following 18 million Americans suffering with Long Covid, and ZERO treatments. We need a moonshot for Long Covid research funding! Press: [email protected]
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
Climate Kev @climate_kev1
2K Followers 515 Following You don’t understand what you’re saying or doing. You will soon succumb to abrupt mass extinction, none the likes this planet has ever endured. 🌎🔫🙈
Chris Alvino @ChrisAlvino
9K Followers 2K Following Sex & Dating Coach | Creative | Computer Scientist | AuDHD | disabled from LASIK & C19 | he/him | #ActuallyAutistic | #CovidIsAirborne | obligatory ░🐈░
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
richi (he) 🏳️.. @Richard61113665
45 Followers 124 Following 24 yrs old former teaching student suffering from long covid and severe me/cfs since 04/2022 #longcovid #mecfs #postcovid
RTHM @RTHM_Health
4K Followers 3K Following RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to a range of therapies based on the latest research.
Rivka @Rivkatweets
4K Followers 2K Following Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions
crr @crr7310
669 Followers 1K Following
Post-Viral Trials New.. @postviraltrials
4K Followers 157 Following News and updates about treatment trials for Long Covid, ME/CFS, POTS, and other post-viral and related illnesses. DM if participating in a trial or interested.
Licypriya Kangujam @LicypriyaK
206K Followers 708 Following Special Envoy of Timor Leste🇹🇱| 12 years old🇮🇳 Climate Activist| Founder @ChildMovement_| @GWR Holder |Teach her brave story in Grade 3 & 7 English in India
Klaus H. @DownloadArtAI
776 Followers 3K Following #MECFS, #POTS, chron. pain +PostC. Bell10. INFP. IQ151. Former highperformer now 24/7 bedridden in darkness and silence. Lang: DE-EN-NL #verysevereME #pwME
Ina • me/cfs @tink_ina
823 Followers 288 Following #mecfs 12 years, severe. bedbound w near fatal spine injury causing a yet to be diagnosed neuromuscular condition. 🇸🇪
Dayna Lynn Nuckolls @PeoplesOracle
47K Followers 456 Following REVOLUTION BEGINS IN THE BODY | Creator: Divination For Liberation Sidereal Astrology • Artist + Musician • [email protected] | Now accepting clients!
Amanda Finley Digs Al.. @rubyslippahs
6K Followers 6K Following 💙💛 COVID long-hauler, archaeologist, STEM teacher, opera singer, Lego engineer, homeless, scientists, kids, dogs, astronomy She/her/hers. Go, Isotopes.
Sabrina Poirier (On H.. @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Vincent Lee 李俊才 @vincentleet
437 Followers 726 Following 🍂 Cosy 🏳️🌈 Queer 🎲 Games 👨💻 Design — TikTok: https://t.co/uuF8mOJA7v (18k+)
Matt Maxwell @MattyMaxwell
446 Followers 566 Following Leadership coach, writer, author of How to Hold a Cockroach, and Nuggets fan! #LongCovid since Mar. 2021.
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Gwynn Dujardin @gadujardin
2K Followers 3K Following The culture of fatigue, ancient world to present. PhD & medically retired prof. pwME.
CL @cuboidalhug
471 Followers 1K Following Artist • Biologist (PhD in mol bio, post-doc in neuro, former journal editor) • Asian American • Long Covid • she/her
brittany 🎀 hiatus @sapphicswilder
1K Followers 1K Following 17, chinese, she/they | 🥗 #wildies is my special interest | 🎨 artist | 🏳️🌈 queer | ♿️ disabled, housebound #ME #POTS #hEDS | 🤝 1/2 of brilin @ke_lin_
Kendra F @SurvivingCFS
4K Followers 5K Following Disabled for a decade due to MECFS| Escaped homelessness | I’m advocating for those who can’t | See highlights tab for my free masking and disability art.
Kiwi 🥝✨ @KiwiOnTheSticks
28K Followers 1K Following Snack Shack Overlord 💚 | She/Her | @Twitch Ambassador | Sponsored by @Elgato | Business 📧 [email protected]
Cynthia Johnson @MineToDo
419 Followers 2K Following ME/CFS since 2009. Still Sick Still Fighting. Stand By ME/CFS!
Al Jazeera English @AJEnglish
8.8M Followers 249 Following Watch Al Jazeera’s live coverage of the War on Gaza. #GettingTheFacts #YourRightOurDuty. For breaking news alerts, follow @AJENews.
plague rat 🐀 @x3r0gxx
8K Followers 7K Following federation of plague rats against forced mass infection 🐀 🐀 🐀 🏴
Tim 😷 🇵🇸 @itstimredd
1K Followers 1K Following SWE. Health radical, aka I don't think it's good to get sick all the time. Long COVID and ME/CFS ally.
Osaca @Osaca_ME
239 Followers 446 Following 26 year old former PhD student - Life on hold #LongCovid #pwME Fighting everyday to get back a form of life
Long Covid Commentary @LongCovidComms
3K Followers 4K Following Long covid patient who thinks the world needs more resources to solve and treat long covid and me/cfs #FBLC #pwLC #LongCovid #mecfs #pwME treat #PEM
Debbie Filippaki, BSW.. @filippakid
812 Followers 2K Following Teacher & social worker: environmental & health humanities, community development, linguistics, queer & disability pride. Workplace violence survivor.
I feel untethered. There's so much shit happening all at once and I'm getting HEAVY 2020 vibes and I do not like it.
Over the next few months, maybe even years, you will see a lot of news stories go viral about outbreaks of bird flu. None of them will involve human to human transmission. Until that day when one of them does.
🚨 LARGE BIRD FLU OUTBREAK IN FARMERS
"Farmers in Texas and Wisconsin are reported to have symptoms of the virus but are avoiding testing"
I'm in a after life - before death zone. Never suffered like this. My life is over. Over. The suffering is never ending. I have no hope. #pwme #chronicillness #pwsevereme #medicalabuse Everyone abandonned me. And blamed me. Forgot me. I have no value. And I slowly die.
'We were in disbelief': Antarctica is behaving in a way we've never seen before. Can it recover? livescience.com/planet-earth/a…
I can't even count how many VCU students were brutalized and gassed just now. And the ominous siren is blaring again. Helping students who were blinded. All are scared for students who were beaten. This is beyond dystopian. I'm so sickened.
My thoughts on the wave of campus protests happening across the country.
It’s Jambu Fruit Dove for me!
Are there any men out there who have a favorite bird that is not an eagle? Every single man I have ever asked said "eagle".
"It's so hot you can't breathe" Extreme heat hits the Philippines "It's surprising our pools are still empty. You would expect people to come and take a swim, but it seems they're reluctant to leave their homes because of the heat." japantimes.co.jp/news/2024/04/2…
A team of researchers is observing the behavior of butterflies in the Ecuadorian Amazon and their work shows an up to 50% drop in the absolute population. p.dw.com/p/4f8AQ
A transgender activist in Hong Kong, Henry Tse, has received a new ID card to reflect his gender change after a years-long-battle.
Seeing this warmed my heart. ❤️ reddit.com/r/ZeroCovidCom…
It can feel very weird doing the right thing when everyone around you is doing the wrong thing.
@vee_etc Read a few SSA reports while back on outcomes for people denied SSDI and the general conclusion was if applicants ever worked again, however little, the denial was probably right :/
@vee_etc I’d like to see SSA do a deeper analysis on benefit receipt among pwME, LC, Lyme & others with an eye toward correcting disparities and giving a new pathway to SSDI for every1 denied bc they got sick when it was less accepted or bc couldn’t afford, access informed care.
USDA says it is testing beef for H5N1 bird flu virus abc17news.com/cnn-health/202…
Terrifying time to live in the UK if you’re disabled. I’m very concerned for my future.
Now that I’ve been feeling significantly better for several weeks, part of me wants to use up the energy while I still have it….because I never know when it’ll go away again. The other part tells me to pace and rest so I don’t get worse again. Last night I wrote 4,000 words but…
"I was hoping I would find one good potato here, but there's not one left. They're all rotten." says Paddy Graham-Jones of @Albert_Bartlett, the UK's leading potato supplier.
Trends for United States
You might like
