Susannah Fox @SusannahFox
Author, "Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care" (@MITPress 2024) She/her SusannahRFox on🧵 susannahfox.com/rebel-health/ Nacotchtank territory Joined December 2008-
Tweets42K
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Imagine being a little kid and facing not only serious illness, but also blood draws, IV placements, & scans. @hopeforhenry to the rescue! The #RebelHealth spirit is strong in @lauriestrongin :) susannahfox.com/2024/04/26/wow…
ICYMI: Watch our EmPOWER M.E. roundtable event, “How to Build and Work with Your Care Team," featuring keynote speaker @SusannahFox & panelists Dale Bolger, @AshantiRN, @amymooney145, Sanna Stella, & Emily Taylor. ow.ly/ZnkU50Rotkh
"Empathy doesn't mean that you agree with everything someone says or believes, but as human beings, we need to be able to recognize when others are in pain." - @Surgeon_General the.ink/p/vivek-murthy…
Millions of American men are lost, caught between an old and discredited model of masculinity they were raised on and an emerging one they are struggling to learn and adopt. @Surgeon_General Vivek Murthy believes it’s a public health crisis. the.ink/p/vivek-murthy…
Why do some health movements - like #wearenotwaiting - take off and others don’t? @claudiawilliams and I discussed it and I’d love to get more input: susannahfox.com/2024/04/22/the…
Check out The Other 80 latest episode with @SusannahFox, author of Rebel Health. The book is a deep dive into the expert network of #patients, survivors and #caregivers who are charting a new path of innovation and research in #healthcare. Listen: podcasts.apple.com/us/podcast/the…
Just got my copy of @SusannahFox’s Rebel Health! Thanks for the recommendation @joannakempner !
It's Advocacy Week 2024 Social Media Action Day! Follow the link to use our Social Media & Remote Action Kits and educate Congress w/ emails, phone calls & social posts. #StopTheLongHaul. Please share posts btwn 12-1 pm PT for #MEAwarenessHour visibility! ow.ly/I3Se50RinH6
I think you'll enjoy this convo w/ @SusannahFox as much as I did Her book "Rebel Health" is a deep dive into the expert network of patients & caregivers who are charting a new path of innovation & research Listen here: theother80.com/the-patientled…
First live event for MicroSkills: Small Action, Big Impact is at main branch New York Public Library @nypl; April 17th! Moderated by Jill Schlesinger CFP, Emmy & Gracie Award Winning @CBSNews Business Analyst. @ResaELewiss @jillonmoney @nyplEvents eventbrite.com/e/author-talk-…
Looking forward to Friday's @PlzSolveCFS virtual event. Here's to the #MECFS #RebelHealth alliance! solvecfs.org/susannah-fox-w…
Advocacy Week 2024 kicks off on Monday, April 15, with actions for every energy level--from social media posts to virtual meetings with congressional leaders. Use our Remote Action & Social Media Tool Kits for emails, social posts, & phone calls. ow.ly/XTKF50Rft45
Finally got the chance to publicly thank @adrane for letting me use her brilliant phrase REBEL HEALTH as my book title. Listen now to the conversation that @halletecco & I had on @hoh_pod about health care's hidden growth engine: patients heartofhealthcarepodcast.com/episodes/susan…
Christina Farr @chrissyfarr
92K Followers 3K Following Author/owner of “Second Opinion," a health-tech newsletter read by 19,000 industry professionals. Investor. Advisor. Mama.
Rasu Shrestha MD MBA @RasuShrestha
41K Followers 889 Following Bridge builder & strategist. EVP, Chief Innovation & Commercialization Officer. In pursuit of person-centered value-based health & care. Tweets are my own.
Nick Adkins @nickisnpdx
32K Followers 670 Following kilt wearing pink furry bike riding healthcare MBA. 🌍💖😊 the world is full of good! when u believe it, u see it. keep doing that! ✨ #pinksocks
Liz Salmi @TheLizArmy
9K Followers 1K Following Be one, do one, teach one. Co-Investigator for @myopennotes at @BIDMChealth. Bringing punk rock to health care. @thelizarmy on all platforms.
Lisa Suennen @VentureValkyrie
16K Followers 645 Following Coloring outside the lines at the nexus of health, tech, innovation, venture capital & actual human reality; Venture Valkyrie; Go (Berkeley) Bears!
John Lynn @techguy
26K Followers 11K Following Community Organizer, Entrepreneur, Writer, Conference Organizer, Keynote Speaker. See also @healthcarescene @EXPOdotHealth #HITsm #HITMC #hcldr etc etc etc.
Enlightening Results .. @GraceCordovano
9K Followers 7K Following #Cancer #PatientAdvocate | Healthcare Navigating Solutionist | De-Frictionizer | ⬇️ Patient Administrative Burden | #Techquity | co-founder @UnblockHealth
Matthew Holt @boltyboy
28K Followers 2K Following Health Care Curmudgeon Was Health 2.0; Now @THCBStaff blog & #THCBGang Podcast AND @smackhealth health tech advisory Topics: health, tech, politics, soccer
Daniel Kraft, MD @daniel_kraft
54K Followers 8K Following Stanford & Harvard trained MD-Scientist. Founder, https://t.co/1eE8zLPDs1 & https://t.co/YGpenFx8zW, Chair @XPRIZE Health Alliance, @AspenInstitute Fellow, Partner @Continuum_VC
Farzad Mostashari @Farzad_MD
57K Followers 2K Following Founder, Aledade/ Former National Coordinator for Health IT/ NYC Health Dept/ CDC EIS Officer
Grace Vinton @HITeaWithGrace
6K Followers 2K Following Healthcare Pulse + Thought Leadership Thirsty + Serial Connector + Big Data Geek + Patient Advocate + ENFJ + Extreme New Englander + Green M&M + Own Opinions 👌
Stacy Hurt (she/her)�.. @stacy_hurt
10K Followers 2K Following Chief Patient Officer @Parexel 🫶 Cancer survivor, Rare disease mom/caregiver, Advocate for the unseen/unheard in healthcare 📣 Opinions are my own
GIL BASHE @Gil_Bashe
13K Followers 10K Following Voice for health innovation and patient care with @finnpartners | @medikalife | @healthtechworld | @HCNowRadio. Championing #biopharma #digitalhealth #ecohealth
Sherry Pagoto @DrSherryPagoto
32K Followers 8K Following UConn prof. Psychologist. Public health, social media, feminism. Director @UCONNmHealth Past-prez @BehavioralMed #scicomm #digitalhealth
Erin Brodwin @erinbrodwin
17K Followers 8K Following health tech ✍️ @axios | find me on Threads https://t.co/Q69xPeLgoh or LinkedIn https://t.co/7FzBR4ezB2
Andrea @BraveBosom
5K Followers 5K Following Security Researcher, BRCA1 Advocate, Founder of The Light Collective @BeLikeLight | https://t.co/j6EGKi1Lla
Ruby Gadelrab @DivaBiotech
10K Followers 8K Following CEO and Founder of @M_Disrupt, Healthcare Executive #Genomics #DigitalHealth expert, ex VP Commercial Marketing @23andme, advisor, mentor.
Dave deBronkart @ePatientDave
38K Followers 3K Following Participatory Med. OpenNotes adv bd, HL7 #PatientsOnFHIR co-chair, Mayo visiting prof. #HeForShe, #AntiRacist
Mighty #HeathenSlut C.. @MightyCasey
7K Followers 3K Following Snarky #HealthData journo/wonk/activist. This gets loud. Avatar story: https://t.co/nSPOzpzu0C #MetsParty #BeLikeLight #bcsm https://t.co/B9S0LRBC2b
Lucia Savage @SavageLucia
4K Followers 349 Following @ the intersection of Health IT, law, privacy and public policy. My tweets are my personal views.
World ME Alliance @WorldMEAlliance
2K Followers 246 Following An alliance of ME organisations across the world, we want to see a coordinated public health response to ME from the WHO and together founded #WorldMEDay.
JennyThorndike @FjJ8hSGQHyq6I5
54 Followers 824 Following
Naomi Mittet @NaomiMittet
254 Followers 1K Following Board member of the Circadian Sleep Disorders Network. https://t.co/Obny1M5xHu newsletter editor + secretary. I'm a #DSPD mom with a #SightedNon24 child.
Sighted Non-24 and Au.. @Sighted_N24_ND
440 Followers 3K Following #Non24 child, #DSPD parent. Sharing our experiences with #CircadianRhythm #SleepDisorders https://t.co/M83Y6fxyfW board member.
Dr. Heather Mefford @hcmefford
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DirectTrust @DirectTrustorg
2K Followers 2K Following Instilling Trust in Exchange - An alliance dedicated to supporting #Interoperability and #TrustInIdentity. We're a #TrustFramework and #StandardsDevelopment org
Inclusive @InclusiveGrid
1K Followers 825 Following Inclusive (powered by Research Grid) is a complete solution for community engagement.
Kimberly Anderson @Kandersonexo
0 Followers 346 Following
Isabel Ramirez-Burnet.. @IsabelRamirezRD
3K Followers 1K Following NBC-HWC CEO @renegaderes & Todologa @remissionbiome patient-led, decentralized, human-centered research. #MECFS #longcovid #postinfectious #chronicillness
Erik Johnson @erikmoldwarrior
1K Followers 524 Following Original prototype for Chronic Fatigue Syndrome The syndrome NO ONE ever looked into. Not a single CFS doctor asked how it started.
CranioCervicalInstabi.. @CranioUnstable
628 Followers 3K Following My entire adult life has been a daily struggle with #cervicalspine instabi(ity symptoms, and now totally disabling and untreated #CCI and #MECFS. Please help!
Vineet 4B2B @V4b2b
573 Followers 4K Following A Student of Collaborative Consumption Patterns in #Healthcare. Passionately inviting #Partnerships For Health ! ~40 years as student of Preventive healthcare!
sous-bois @sousbois10
196 Followers 2K Following
Hollie @Zegmeister
872 Followers 2K Following #LongCovid. #MECFS. #M4A. Health Justice. Leftist. Xennial. #ZeroCovid FFS…. If this site goes to hell, find me on Mastodon: https://t.co/5uf7yGEJAB
Heart of Healthcare P.. @hoh_pod
23K Followers 94 Following A podcast that gets to the heart of our mission in digital health — to massively improve healthcare for all.
Dave Guarino (allafar.. @allafarce
10K Followers 4K Following Building software leverage on the social safety net. Built https://t.co/6YGx9KRpHZ @codeforamerica for 5 years "Are you the fax machine guy in Recoding America?"
Kevin Chase @kevmchase
802 Followers 5K Following
Catherine D. Tan @Catherineoscopy
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Joanna Kempner @joannakempner
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Jasmine @jasminenolan98
137 Followers 658 Following Junior Campaigns Marketing Manager at Oxford Global
scott berrier @berrier_sc73986
22 Followers 280 Following The secret of a happy life is finding the right person who love you and make you feel better.❤️😁😍
Dr Shalu Turan @shalu743
90 Followers 304 Following From medic to tech guide: Simplifying AI and digital tech for healthcare professionals. Let's navigate the future of medicine together. #HealthInnovation
City Lights Books @CityLightsBooks
132K Followers 3K Following A landmark independent bookstore & publisher that specializes in world literature, the arts, & progressive politics. | RIP LF: 1919-2021
- @Waruapp
72 Followers 4K Following
_cummings_ @_Cummings_
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Franck Germain @FranckGermain2O
41 Followers 614 Following Vice President Marketing Group @Linxens #smartcard #banking #telecom #biometrics #securedID #transportation #accesscontrol #loT #running #RFID
Rannsolve INC @rannsolve
500 Followers 2K Following Rannsolve provides exceptional services and solutions across #DocumentManagement, #SoftwareDevelopment, #HealthcareRCM #Ecommerce and #IntelligentAutomation
Gabriela Noles Cotito @GabrielaNoles
773 Followers 1K Following Cumbiera intelectual. “Descubierta”, entre huarangos y algodonales. Médica | Mag. Salud Pública | PhD candidate. Ni diarrea ni constipación.
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Lock'dInKim @lockdinkim
180 Followers 955 Following Best tasting 💯% #natural #Hydrogen-Rich #Water 💦 Kick #chronicillness to the curb! @TopazStudiosCom • Not financial advice $ltnc • Save 10% code: TOPAZ-LC2024
William B. Grant, PhD @wbgrant2
5K Followers 5K Following Health research, emphasis on vitamin D. Currently studying COVID-19. https://t.co/LzPpCtWGuv. https://t.co/Jl5a55EB5h
Katrin Boniface @KatBoniface
2K Followers 3K Following Historian. Equestrian. Cheese-lover. PhD Student, UC Riverside. Also sometimes at: @Equine_History @SHOT_ECIG @HNet_Sport @Wheats2018 @RsideLatinoPH
TopazStudios.com @TopazStudiosCOM
2K Followers 5K Following ONE chronic #illness to #disabled—follow @RenegadeRes—#longcovid #ckd #IgG #kidney #mecfs #pots #mcas #dysautonomia #pem #mitochondria $ltnc #lockdin #health
Sit At The Table™ (.. @SitAtTheTable
26K Followers 29K Following Time for more #women #diversity #inclusion on corporate #boards & #csuite—#Men need to be part of the change • 2012 @WOIGlobal Canadian Diversity Champions #WHM
Troy Roach @Canal1point5
1K Followers 609 Following I teach English for Health Sciences at San Rafael in Madrid. Born in California, worked in five countries. #LongCovid 03/20. Brain fog induced views my own
Moost Happi @joabbess
2K Followers 5K Following Author of a book on #RenewableGas (2015) https://t.co/AKVpWZ8WHX. Drafting second #RenewableGas book. Img: https://t.co/qpzb8X38Mv…
Meg Samuelson @coastalthinking
324 Followers 899 Following i used to read think write teach (literatures of the South/Africa/Indian Ocean & environment littorals oceans women’s stories). #LongCovid #MECFS
Miles W. Griffis @mileswgriffis
4K Followers 1K Following Co-founder/editor @thesicktimes Columnist @highcountrynews [email protected] #LongCovid 🇵🇸
fhronesis @fhronesis
337 Followers 2K Following #MECFS #EM😶🌫️ Sujet manquant EM = Encéphalomyélite Myalgique PEM/MPE= Malaise Post-effort
Red Carpet Medical @RedCarpetSolut1
255 Followers 1K Following Specializing in helping people improve + gain healthier lifestyles through the use of patented wearable wellness products AND improving their #IAQ, I am #EBV+
Aimee Weiss @aimeeweiss
1K Followers 944 Following
Lunar Veil @LunarMcVeil
74 Followers 761 Following
Alison Armstrong 🇺.. @momma_alison
359 Followers 2K Following Mom, Dog Rescuer, Lawyer, Nature Lover, Fellow with @patientrev advocating for kind and careful healthcare. Admin of @breakthefake1 #FACTSMATTER
betsy ladyzhets 📊 @betsyladyzhets
5K Followers 1K Following editor/co-founder @thesicktimes & freelance science/health journalist | she/her/🏳️🌈 | @[email protected] & [email protected]
Vicky van der Togt @Vickyvdtogt
7K Followers 1K Following Director of development at @ResearchAidNet 🌐 | Facilitator @PandemicAid_Net | Long Covid research | Spread hope, it's infectious
Ⓥicky Gilpin @VickyGilpin5
306 Followers 1K Following vegan combatant against chronic illness/1st wave LC #pwLC #fibro Ⓥ #fortheanimals Here: chronic illness, long-Covid #veganism @VickyGilpin is academia/personal
Christina Farr @chrissyfarr
92K Followers 3K Following Author/owner of “Second Opinion," a health-tech newsletter read by 19,000 industry professionals. Investor. Advisor. Mama.
Rasu Shrestha MD MBA @RasuShrestha
41K Followers 889 Following Bridge builder & strategist. EVP, Chief Innovation & Commercialization Officer. In pursuit of person-centered value-based health & care. Tweets are my own.
Nick Adkins @nickisnpdx
32K Followers 670 Following kilt wearing pink furry bike riding healthcare MBA. 🌍💖😊 the world is full of good! when u believe it, u see it. keep doing that! ✨ #pinksocks
Liz Salmi @TheLizArmy
9K Followers 1K Following Be one, do one, teach one. Co-Investigator for @myopennotes at @BIDMChealth. Bringing punk rock to health care. @thelizarmy on all platforms.
Lisa Suennen @VentureValkyrie
16K Followers 645 Following Coloring outside the lines at the nexus of health, tech, innovation, venture capital & actual human reality; Venture Valkyrie; Go (Berkeley) Bears!
John Lynn @techguy
26K Followers 11K Following Community Organizer, Entrepreneur, Writer, Conference Organizer, Keynote Speaker. See also @healthcarescene @EXPOdotHealth #HITsm #HITMC #hcldr etc etc etc.
Enlightening Results .. @GraceCordovano
9K Followers 7K Following #Cancer #PatientAdvocate | Healthcare Navigating Solutionist | De-Frictionizer | ⬇️ Patient Administrative Burden | #Techquity | co-founder @UnblockHealth
Matthew Holt @boltyboy
28K Followers 2K Following Health Care Curmudgeon Was Health 2.0; Now @THCBStaff blog & #THCBGang Podcast AND @smackhealth health tech advisory Topics: health, tech, politics, soccer
Farzad Mostashari @Farzad_MD
57K Followers 2K Following Founder, Aledade/ Former National Coordinator for Health IT/ NYC Health Dept/ CDC EIS Officer
Grace Vinton @HITeaWithGrace
6K Followers 2K Following Healthcare Pulse + Thought Leadership Thirsty + Serial Connector + Big Data Geek + Patient Advocate + ENFJ + Extreme New Englander + Green M&M + Own Opinions 👌
Sherry Pagoto @DrSherryPagoto
32K Followers 8K Following UConn prof. Psychologist. Public health, social media, feminism. Director @UCONNmHealth Past-prez @BehavioralMed #scicomm #digitalhealth
Andrea @BraveBosom
5K Followers 5K Following Security Researcher, BRCA1 Advocate, Founder of The Light Collective @BeLikeLight | https://t.co/j6EGKi1Lla
Dave deBronkart @ePatientDave
38K Followers 3K Following Participatory Med. OpenNotes adv bd, HL7 #PatientsOnFHIR co-chair, Mayo visiting prof. #HeForShe, #AntiRacist
Lucia Savage @SavageLucia
4K Followers 349 Following @ the intersection of Health IT, law, privacy and public policy. My tweets are my personal views.
Chris Hogg @cwhogg
9K Followers 555 Following Co-founder/CEO of Marley Medical. Formerly of Propeller Health. Was founder of 100Plus. Trying to improve healthcare one data point at a time. Husband and dad
Dana M. Lewis | #Open.. @danamlewis
14K Followers 3K Following Created #OpenAPS (https://t.co/ef23rZjOLr), “PERT Pilot”. Moderated #hcsm. Wrote #APSBook (https://t.co/8NwKVKdZGU) + others. Researcher, developer, author
Harlan Krumholz @hmkyale
26K Followers 2K Following Working to improve the future for those who follow us...
Berci Meskó, MD, PhD @Berci
85K Followers 92 Following Director of The Medical Futurist Institute, science fiction fanatic, health tracker with a mission to bring future technologies to healthcare. #digitalhealth
Atul Butte @atulbutte
31K Followers 4K Following Chief Data Scientist @UofCAHealth・Director, Bakar Computational Health Sci Institute @UCSF_BCHSI・Distinguished Prof @UCSF・Entrepreneur・He/him・Opinions ⇨ my own
Dr. Heather Mefford @hcmefford
3K Followers 948 Following Physician, scientist, mom, wife #genetics #epilepsy #pediatrics #raredisease @StJude @StJudeResearch formerly @UWMedicine
Solve ME/CFS Initiati.. @PlzSolveCFS
12K Followers 4K Following Making ME/CFS, Long Covid & post-infection diseases widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/84TBR9Fgzj
Roel Uleners @roeluleners
186 Followers 175 Following design partner • towards a brighter future, by design. https://t.co/Q6r80BThDV: @roeluleners
Heart of Healthcare P.. @hoh_pod
23K Followers 94 Following A podcast that gets to the heart of our mission in digital health — to massively improve healthcare for all.
Catherine D. Tan @Catherineoscopy
8K Followers 1K Following Sociologist. Assistant Professor @Vassar. Med Soc, SKAT, Social Movements, Qualitative Methods. Out now: “Spaces on the Spectrum” (CUP20)
Joanna Kempner @joannakempner
2K Followers 1K Following Sociologist. Science, medicine & inequality. Books: Psychedelic Outlaws (June 2024) and Not Tonight: Migraine & the Politics of Gender & Health.
María Richardson @_diatoma
2K Followers 5K Following ES-EN. I write, I teach, I draw plants. Chronically ill en la Ciudad de México. #Renegade50 with #RemissionBiome. Ella/she/her.
Audiobooks.com @audiobooks_com
10K Followers 2K Following Instantly stream and download over 450,000 incredible audiobooks to your smartphone, tablet, or computer. Get your first book on us: https://t.co/nB0NNLLbG8
Michael Goldstrom @goldstrom
874 Followers 837 Following Founder: https://t.co/1VyHaARiIZ A peer-driven, ai supported behavior change platform. Gen X-cellent. @JuilliardSchool @Columbia
Ximena Benavides @XSBenavides
2K Followers 5K Following Health Law, Biotech & Innovation |Postdoc & Lecturer in Ethics, Polit. & Econ @ISPSYale |Fellow @yaleisp |@YaleLawSch JSD,LLM |Teach Healthcare Biz Ethics @Yale
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Isabel Ramirez-Burnet.. @IsabelRamirezRD
3K Followers 1K Following NBC-HWC CEO @renegaderes & Todologa @remissionbiome patient-led, decentralized, human-centered research. #MECFS #longcovid #postinfectious #chronicillness
RemissionBiome MECFS/.. @remissionbiome
10K Followers 434 Following Community science, patient-led project of the non-profit, decentralized research org, @renegaderes. Serendipity meets preparation. https://t.co/IkTfALVBWC
Renegade Research @RenegadeRes
1K Followers 73 Following Community science, patient-led, philanthropically funded, decentralized research org. Open source, power to and from the patients. Runs @remissionbiome
Miles W. Griffis @mileswgriffis
4K Followers 1K Following Co-founder/editor @thesicktimes Columnist @highcountrynews [email protected] #LongCovid 🇵🇸
betsy ladyzhets 📊 @betsyladyzhets
5K Followers 1K Following editor/co-founder @thesicktimes & freelance science/health journalist | she/her/🏳️🌈 | @[email protected] & [email protected]
🏳️🌈 Kathy .. @kegill
8K Followers 3K Following Writer/speaker/journalist/professor UX Elections geek MSF instructor Book lover Fights disinfo #breastCancer #uga #StarTrek she/her
Living with Lobular B.. @lobbccanada
646 Followers 1K Following C. McKay, MSW, lobular breast cancer advocate and researcher, dx. 2013, lobular bc skin recurrences x4. Interested in policy, politics and practice.
Double Whammy @double_whammied
9K Followers 8K Following Everything was going great until this whole breast cancer thing.
Ben Dralle, MD @ben_dralle
1K Followers 1K Following PGY-1/CET Track at @MayoPsych ⬅️ @OhioStateMed ⬅️ @IowaStateU. Interests: mood disorders, post-traumatic stress, psychotherapy, @GORUCK, Jesus. Views my own.
rareparenting @rareparenting
274 Followers 763 Following Online magazine for parents of children with #disabilities, #rarediseases and #specialneeds
Helen De Cruz @Helenreflects
37K Followers 10K Following Philosopher writing on science, religion, SFF, @SFWA, Codex, lute videos, Wonderstruck forthc. w @PrincetonUP https://t.co/D09RfzT6dl Any pronouns
Allen Goldberg @allengoldberg
431 Followers 677 Following Husband & Dad, Washingtonian, Patient Advocate, Communications Professional. Views my own unless I borrowed them from someone.
Andrea Austin MD @RevitalizingDoc
1K Followers 2K Following Host of The Revitalizing Doctor Pod. I am a medical educator, writer, and researcher dedicated to inspiring more changemakers in healthcare.
David Craig @DavewithGRYT
3K Followers 3K Following Passionate about helping people find their voice after a diagnosis. #cancer #survivor CEO @GrytHealth
Stuart Selby @StupertInTO
98 Followers 261 Following In my 40s, married to a wonderful husband, living with incurable brain cancer. Publisher of IRL "Tearable Puns" in east Toronto. Pharma, Pun and Food geek.
David Jameson @DavidJamesonH
179 Followers 1K Following 🇨🇳 Washed up Chinese celebrity 🇨🇳 Practice Manager for a Clinic focused on Complex Conditions Ex-McKinsey consultant, lifelong country musician
Alex Fair @alexbfair
6K Followers 5K Following Founder of @MedStartr Healthcare Innovation community and funds. https://t.co/b3mH2NaumI and Dad. #HCLDR #TheWalkingGallery #PinkSocks
Ernst Hafen @ehafen
2K Followers 629 Following I believe in people controlling their personal data (sand grains) & its impact on healthcare and the democratization of the personal data economy (sandy beach)
Synapticure @synapticure
4K Followers 505 Following Personalized virtual clinical care is finally here for neurodegenerative diseases like Alzheimer's and related Dementias, Parkinson's, ALS, and Huntington's
Geeta Nayyar, MD MBA @drgnayyar
24K Followers 6K Following Chief medical officer, technologist, @WSJ bestselling author, “Dead Wrong" Helping healthcare humanize innovation. @RadiantGraph. @Salesforce, @ATT alum.
David Van Sickle @dvansickle
3K Followers 2K Following Healthtech builder + producer. Invest Committee @LifeArcVentures. Prev: co-founder/CEO Propeller Health (acq ResMed)
Mary Gallagher @mgallagherUSA
1K Followers 177 Following Marketing Consultant. Former CMO, NuvoAir and Careforth. Deep experience in all things Marketing + Advertising. Jeremiah 29:11 Views are my own.
Danielle Marchell @ddmarchell
491 Followers 754 Following PR Director for @joinequip. Baylor alumna, ex-Californian. Pop culture junkie & sports fan. Opinions are my own.
Isa Cueto @isabellacueto
3K Followers 3K Following Journalist covering chronic disease for @statnews.
Taylor Coffman ♐️ @TaylorACoffman
687 Followers 504 Following actor/writer/author of Rare Disease Girl /aHUS CM-TMA survivor and advocate/audio producer
giulio quaggiotto @gquaggiotto
13K Followers 1K Following Innovation in development, one person at a time.
The Sick Times @thesicktimes
3K Followers 281 Following Non-profit news site chronicling the #LongCovid crisis. Founded by @betsyladyzhets and @mileswgriffis. Donate: https://t.co/YBFRSWzcJx
Harvard Public Health.. @PublicHealthMag
1K Followers 580 Following Exploring what works, what doesn't, and why.
Andrea Pauls Backman .. @AndreaBackman05
2K Followers 1K Following ALS strategist, former CEO @lesturnerals, board member various ALS orgs. lost mom to ALS in 2010. passionate about people w ALS/MND & fighting for cures.
Alice Wong 王美華 @SFdirewolf
80K Followers 4K Following Disabled oracle. Founder, @DisVisibility. Editor, DISABILITY INTIMACY pre-order https://t.co/HUW0gq4JTd Available April 30, 2024
Robert Harrington @HeartBobH
21K Followers 3K Following Dean of @WeillCornell and provost for medical affairs of @Cornell cardiologist and clinical researcher. Past President @American_Heart We’re #ChangingMedicine
Avanlee Christine @AvanleeC
135 Followers 80 Following Female founder in healthcare technology. Less curious about people and more curious about ideas. 📱
Angela M. Vázquez is.. @AngelaMSWinCA
4K Followers 2K Following Public Policy acct | #MentalHealth @kidspartnership | Comm @wedrawthelines ✊🏽✊🏾✊🏿 Chicanx #LongCOVID #MECFS disabled 🐦🙋🏽♀️she/he | #ActuallyAutistic
Joy Rios @askjoyrios
5K Followers 4K Following @HITLikeaGirlpod Podcast & Community Founder & Host. She/Her
Tara Bannow @TaraBannow
5K Followers 3K Following Reporter covering hospitals and health insurance for @statnews | New mama!💪🏻| Tips ➡️ [email protected]
Fountain House @fountainhouse
7K Followers 3K Following Fighting to improve health, increase opportunity, and end social and economic isolation for people most impacted by mental illness.
The Life Raft Group @Liferaftgroup
2K Followers 1K Following Enhancing survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
Ohh, this has me teary! Thank you for reading my book, @SusannahFox. This means the world to me, as I look up to you as a role model and mentor. Thank you for all you do to support and elevate patient voices!
I saved the final chapter of WIDE AWAKE AND DREAMING for this morning, Boston Marathon Day, and was in tears reading how @RemRunner overcame all obstacles, including narcolepsy, to finish.
Spent the afternoon in lovely DC advocating for @NIH @NIHFunding on the Hill with @GeneticsSociety. Great experience, esp shared w/ past (Brendan Lee), current (Bruce Gelb) and future (@SarahTishkoff) ASHG presidents!
We're thrilled to announce that @SusannahFox, health and technology strategist, former HHS Chief Technology Officer, and author of "Rebel Health," will join National Health IT Coordinator @mickytripathi1 as a #DirectTrust2024 keynote speaker! Read more: directtrust.org/blog/news/dire…
Excellent discussion with @KellyIsWorking + @Tidepool_org team, informing #ArgonautProject on CGM-to-EHR writes. youtu.be/jMXY3vNOA3k covers: - Reimbursement for remote monitoring - Population dashboards - Periodic & on-demand writes - Provisioning devices/accounts @HL7 #FHIR
Thank you, @SusannahFox, for your fabulous contributions to EmPOWER M.E. yesterday. Your keynote presentation was a highlight of #SolveAdvocacyWeek2024! #StopTheLongHaul
"Thank you for recognizing and verbalizing professionally how invisible and insignificant some of us feel and what many of our experiences/situations are." - a @PlzSolveCFS patient advocate, writing what is now my favorite quote about #RebelHealth
@SusannahFox @PlzSolveCFS It was so nice to meet you yesterday on the presentation. I hope our paths cross again as we advocate for individuals with ME/CFS and Long COVID.
#RebelHealth “We can and must do better” 💯 Hear, hear!
I wrote #RebelHealth to help people step into their power as patients, survivors, and caregivers. And to help the rest of the world see the suffering of people who are currently outside mainstream systems. We can and must do better.
@SusannahFox @PlzSolveCFS Thanks for speaking yesterday on Solve ME panel!
Just got my copy of @SusannahFox’s Rebel Health! Thanks for the recommendation @joannakempner !
The Amazon pavilion definitely one of the highlights — if it was on Prime I’d have it shipped 😭#MilanDesignWeek
Check out The Other 80 latest episode with @SusannahFox, author of Rebel Health. The book is a deep dive into the expert network of #patients, survivors and #caregivers who are charting a new path of innovation and research in #healthcare. Listen: podcasts.apple.com/us/podcast/the…
Congratulations, @VirusesImmunity! Thank you for your dedication to the cause and the millions who suffer. #StopTheLongHaul #LongCovid #MECFS #IACCIs
TIME's list of the 100 Most Influential People in the world is out. I'm honored, delighted, and grateful to be a part of this incredible group #TIME100 🙏🏼🙏🏼🙏🏼 @TIME time.com/6964230/akiko-…
@SusannahFox @dpatil @cwclub I missed the event, but thanks for sharing the video info! Looking forward to catching up on the insights.
If you are a perimenopausal/menopausal person with sleep problems, we need your input - please share your opinions to help guide the design of a research study to treat insomnia in menopause - bit.ly/3U0fNQu - and feel free to share and retweet!
As we are half way through #ParkinsonsAwarenessMonth, I wanted to share the blog post by Dr. Liz Ferluga, one of the amazing movement disorder specialists at @synapticure. As Liz says in her post "you are not alone." synapticure.com/blog/10-things…
Can you join us? eventbrite.com/e/author-talk-… @AdairaLandryMD and my MicroSkils: Small Actions, Big Impact @nypl @nyplEvents author talk is this Wednesday @ 6:00pm @jillonmoney HT @TheCompoundNews moderates!
Philosopher, Helen De Cruz, explores the transformative role of wonder and awe in an uncertain world, and why we practice magic. hubs.ly/Q02sN-2x0 #philosophy #philosopher #magic #hope @Helenreflects
.@Liz_ORiordan is a role model to us all. No matter what happens, she is a leader. She’s a surgeon, she leads. She’s living w/ #breastcancer, she leads. Her mom gets #sarcoma, she leads. She struggles with #mentalhealth, she leads. So proud of you, friend. So proud. #MedTwitter
As new research reveals women with mental health struggles are twice as likely to die of the disease... I survived breast cancer but was floored by depression and just six sessions of CBT saved my life @MailOnline dailymail.co.uk/health/article…
@SusannahFox @Cluster_buster I’m glad it was useful! Have you seen @Catherineoscopy’s new book? It really helped me think through how patients find their way into alternative health movements.
@SusannahFox Happy to have found your new book! Helps me understand my own research better, including the patient-led group @Cluster_buster who are forced to develop innovative ways to dx/tx/fund/research cluster headache, including (but not only) psychedelic protocols.
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