Vanessa Smith @normal_ness
We’re all normal to ourselves. I write. Hates hustle, loves shiny objects. Can’t even influence an ant. Anthropology & sociology graduate. Author of books. normalness.com Brisbane, QLD, Australia Joined February 2012-
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@urbanmel This is the “101” page I usually give people daru.org.au/daru-publicati… The link on the page “how do the four models compare in practice” is a good one for a tired brain.
Thate it when disability orgs ask you to agree to the social model of disability. I think of that as a bit backwards, I prefer a human rights/holistic type model. I know it's what the government uses and therefore underpins funding,
@ArtistAffame @MercJestr I’ve had a non hot water shower in Adelaide winter and I definitely do not recommend it
@MercJestr @ArtistAffame That sounds incredibly possible and realistic
but just because I know the reason, doesn't mean I have to like it.
The palatability problem normalness.com/2025/10/16/the…
@Kerry2theLeft @criprights Of course, the magical stuff they think exists but somehow never have to confirm exists. In related news - maybe a unicorn could be a support worker for me… more chance of that than me ever getting the supports I need.
Update: The email of the editor of the Alan Levinovitz Long Covid WIRED article whom letters and concerns can be directed to is available publicly here: jasonkehe.com 💌 [email protected]
Martin and his team were doing amazing work and I wish the world got to see it. I wish I got to see it, too.
(6/6) The real problem with the article is not that it asks for more research. That is fine. The problem is that it presents a false dichotomy: either you accept mind-body therapies as a brave possibility, or you are part of a dogmatic community blocking science. No. The real scientific position is much simpler: Long COVID is a real, biological, heterogeneous disease. The absence of a single test does not invalidate the illness. CBT can be support, not a causal cure. Exercise can help some patients, but harm others, especially those with PEM. Pacing is not fear: it is prevention of worsening. Dysautonomia can look like anxiety, but have a physiological basis. Stress can worsen symptoms without being the primary cause. Neuroplasticity must not be used as a commercial wildcard. Recovery testimonials do not replace well-designed trials. And no treatment should be globally recommended without stratifying subgroups. Medicine has already made this mistake before. Patients with multiple sclerosis, lupus, autoimmune diseases, ulcers caused by Helicobacter pylori, endometriosis, or ME/CFS were treated for years as exaggerated, hysterical, anxious, or somatizing until technology and research caught up with what patients had been saying all along. Let us not repeat the same mistake with Long COVID. The future is not in denying the nervous system. It is in understanding it properly. But understanding the nervous system does not mean selling “mind-body” as a cure. It means studying immunology, dysautonomia, autoantibodies, persistent viruses, endothelium, metabolism, muscle, the HPA axis, mast cells, microbiota, and neuroinflammation. And then, if a psychological tool helps a patient live better with an organic disease, it is welcome. But let us call it by its name: support. Not cure. Not a total explanation. Not a substitute for biomedical research. Not an excuse to prescribe exercise to someone with PEM. Not another elegant way of saying “it is all in your head.” Because it is not all in the head. It is in the immune system. It is in the vascular system. It is in the autonomic nervous system. It is in metabolism. It is in muscle. It is in the tissues. It is in a biology we are still learning how to measure. And precisely for that reason, we need more science, not more gurus.
This is becoming a disaster for @WIRED
Turns out I was featured in this very dumb article about long covid. And the guy lives in my small town and didn’t even reach out to ask for my perspective! Just sent him this email.
It also leads to low standards in research and excessive enthusiasm for research findings that aren't reliable or meaningful. There has been a shift towards more skepticism and attention to quality and reliability of #MECFS research, which I find very encouraging.
Emerge Australia supports a sustainable NDIS, but reforms must not exclude or underfund people with ME/CFS and long COVID. Assessment must be fair, safe and clinically appropriate. A sustainable scheme must also be a just one. Read our submission: zurl.co/dgccr
I still don't think a society like this can accept the idea of ME, maybe the commonality of post-viral illness altogether. It's much easier and more digestible to convince everyone we're "crazy" and therefore beyond the realm of science.
The paternalism of poor people is rife and yet nothing is done to improve our lot. We're the first to feel the impact of climate change and we are punished for daring to want to survive. Tell me again that this country is fair with a straight face, and I'll cave it the fuck in.
I'm on a payment plan currently and they say they will continue to monitor usage to be "helpful". When we talk about stress involved with low income situations this plays into it. Constantly being monitored over moderate usage. Thanks Daddy AGL I will try to be a good child.
Sadly, it's true. Amazon has elected not to move forward with the new Stargate series. There's not much I can add beyond confirming what's happened. But I will say this... Creator Martin Gero developed a new Stargate series over two years, ultimately crafting a show that offered a fresh jumping-on point for new viewers while deeply respecting existing canon. It was a series that avoided the pitfalls of several modern remakes and reboots by fully embracing the core of its predecessors: action, adventure, exploration, wonder, heart, humor, and found family. And based on that creative vision, the new Stargate series was greenlit in November of 2025. As of today, officially, that original vision is no more. We'll never get the opportunity to introduce you to that world and those characters - or reintroduce you to, and check in with, some familiar faces from the past. My heart breaks. For the incredibly talented writers who worked tirelessly to bring this show to life. For Martin who maintained an unwavering positive outlook throughout despite the challenges, and who always strove to make a show that would honor the fans while welcoming a new audiences. And for the long-suffering Stargate fandom who waited so long and came so close to getting a show they truly would have loved.
@BaronDestructo Damn it. I was really looking forward to seeing Martin create something amazing. Thanks to him and you and everyone who tried.
The truth of mutual obligation. The cruelty is the point. live.thepoint.com.au
melissa @ArtistAffame
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💜Moonla (Ashish Bl... @momoonla
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Support single momma ... @nanaissmee
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173 Followers 2K Following Human kind cannot bear very much reality.🐈🌱🌎🌈😷🇵🇸🌻
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AlexB @MrAlexKidd
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33 Followers 601 Following Caring for orphans, serving God ❤️ Matthew 25:40. Support our mission! 🙌
sternbitchblues @K1R1Sullivan
481 Followers 7K Following Eternal student working on a masters of social policy. She/her. Vote Greens 💚
Dr. Ashley | The Pani... @PanickedFoodie
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Matthew Donnelly 602 ... @Donnelly602
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Prof Gemma Carey, PhD... @gemcarey
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melissa @ArtistAffame
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The Chaser @chaser
258K Followers 26 Following By reading these tweets you agree to grant us power of attorney. Way more content over at https://t.co/nXpHYViFXp
Queensland Police @QldPolice
247K Followers 333 Following Official X account of the Queensland Police Service, Australia. Do not report crime here. Emergency: Triple Zero (000). Non-urgent: Policelink online.
ChronicLivingTherapy @ChronicLiving1
283 Followers 623 Following Directory of counsellors and therapists who understand the biomedical nature of ME/CFS, Long Covid, Fibromyalgia and other similar chronic illnesses.
Jacqz🇦🇺🇬🇧... @MEwarrior_au
2K Followers 2K Following ME advocate longing for a cure, or some form of treatment. Mum of 3, grandmum of 3. Lived with the horrendous & disabling disease ME (not CFS) for 30 years.
Ben H @benh_mecfs
6K Followers 2K Following ME/CFS patient advocate, @OpenMedF science correspondent. Bedbound. Former biochemist in training, physiology, powerlifter, PT/gym manager. Musician. F1/Boxing.
Henry Anderson @macanders
2K Followers 2K Following #pwme Mild-mannered author of several novels. New FREE writing course - https://t.co/OYCUuBQ6Nv
Book Fair Australia @BookfairAus
171 Followers 32 Following Book Fair Australia is an event for book lovers, by book lovers.
Lucibee 🌻 @_Lucibee
2K Followers 2K Following Science defender (MSc) and eco-worrier. Might be locked occasionally (for reasons). (she/her)
Rachel Charlton-Daile... @RachelCDailey_
2K Followers 157 Following Disability rights & sausage pics. Chief DWP botherer @thecanaryuk. Author of Ramping Up Rights. Inventor of Wrong Coat Season. (She/they)
UpScrolled @realUpScrolled
69K Followers 1 Following UpScrolled is an independent social media platform that does things differently. We believe social media should be social.
Beth is still team n9... @BethWalloch
190 Followers 259 Following personal account/no endorsements - you know the drill. I'll be over here ⬅️ and here ⬇️.
Michael Powell @GumbyAu
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Dr Elisa Perego @elisaperego78
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ME/CFS Science @mecfsskeptic
6K Followers 486 Following In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
The Weather Ferret @2017Ferret
3K Followers 4K Following Welcome to my world of weather facts and figures. The Ferret loves his music too. The old site BOM https://t.co/eqTaa7MUna
Mark Wright @markeology
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+ BERLIN BUYERS CLUB ... @BerlinBuyers
6K Followers 84 Following covid destroyed us, we are young, we want our lives back / DMs not checked here. Please contact via our website.
Anita White. 😷 @RealAnitaWhite
6K Followers 7K Following Retired GP. Left behind without #NovavaxForAustralia #KeepN95InHealthcare #CleanAir for schools #ME #POTS RT/Like not endorse Personal opinion only
🇵🇸 Nemisis {FRE... @Nemisis1509
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615 Followers 387 Following I'm like a high quality tequila: I go down easy, I'll fuck you up, & you'll regret me in the morning. | he/it | Zain | demisexual | mute/agoraphobe | ally
rin is resting(trying... @3eyedlambs
472 Followers 421 Following Maybe in my next life. 25yo kiwi sick since 2013 #LongCovid #MEcfs #POTS #MCAS and like everything since 2023. f*ck this.
Jo @cfs_jo
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2K Followers 3K Following My opinions are from my own experiences. PayID: 0415063763 PayPal: JoeyKingin2025
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Aviation Week @AviationWeek
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757 Followers 394 Following Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland
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Bob Allen @CaptBob_Nomadic
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