RTHM @RTHM_Health
RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to a range of therapies based on the latest research. rthm.com Redwood City, CA Joined November 2021-
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#Dysautonomia is an umbrella term that covers several different conditions that result from a malfunction of the autonomic nervous system (ANS). 🚨🦠Viral infection is a risk factor for a type of dysautonomia called #POTS. Are you a #pwLC living with #POTS? #shareincomments
Many #pwLC & #pwME are also diagnosed with #MCAS! Mast cells can release chemicals that may cause anaphylaxis symptoms such as hives, swelling, low blood pressure, difficulty breathing, and severe diarrhea. Do you suffer from these symptoms?😰
TIME's list of the 100 Most Influential People in the world is out. I'm honored, delighted, and grateful to be a part of this incredible group #TIME100 🙏🏼🙏🏼🙏🏼 @TIME time.com/6964230/akiko-…
Long COVID is a complex and evolving condition. Here at RTHM, we specialize in early Long COVID diagnosis & treatment options that help improve your symptoms. ✨We can help restore the rhythm in your life so that you can return to doing what you love.✨ rthm.com/your-questions…
🚨Many #pwLC & #pwME are also diagnosed with #MCAS! Mast cells can release chemicals that may cause anaphylaxis symptoms such as hives, swelling, low blood pressure, difficulty breathing, and severe diarrhea. Do you suffer from these symptoms?😰 rthm.com/articles/mast-…
Check out the #MillionsMissing #TeachMETreatME and #StillSickStillFighting tees available to purchase. They are set to print on demand so once your purchase it, it prints the next business day and is sent your way. We look forward to the photos! bonfire.com/store/meaction… #pwME
'We need a moonshot for long COVID': What we know (and don't know) about the illness. Thank you for having me on your show this morning @wnpr and @wherewelive! Featuring @LisaAMcCorkell @patientled, with Prof. Daniel HoSang and Catherine Shen. ctpublic.org/show/where-we-…
Dr. Stuart Malcolm, RTHM Medical Director, talks about the crucial function of mitochondria in preserving our overall health and well-being. He examines research that sheds light on a possible connection between #LongCOVID & mitochondrial dysfunction.🎥🔽 youtube.com/watch?v=W2u0C0…
The PolyBio is Symposium is one month away! Register now to hear updates on our #LongCovid, #ME/CFS and related chronic illness projects & clinical trials: us02web.zoom.us/webinar/regist…
What are #microclots and what role do they play in #LongCOVID & #MECFS? RTHM Co-Founder and Chief Medical Officer, Dr. Jennifer Curtin explores how certain treatments, such as triple therapy, can impact symptoms for #pwLC and #pwME.📽️🔽 youtu.be/DT0z8s3wiQo
Mitochondrial dysfunction might play a role in #MECFS and #LongCOVID, leading to issues with energy production that could explain the profound fatigue experienced by #pwME and #pwLC. Learn more about the connection between these two conditions.👇🏾 rthm.com/your-questions…
For #MECFS folks: How does nostalgia feel?
The @GOPHELP, led by Chairman Sanders, addresses #LongCOVID as a public health emergency. A draft proposal allocates $1B annually for 10 years to the @NIH which will establish research structures & prioritize clinical trials. Input is invited by 4/23. sanders.senate.gov/wp-content/upl…
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Daniel Brittain Dugge.. @dbdugger
15K Followers 6K Following HIV+ #LongCovid Advocate. Software Development. CJR Reform. SAND Scan.
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
Prof Doug Kell CBE #F.. @dbkell
14K Followers 10K Following Liv Uni. ENTJ. CBE. Against brexit and Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice @[email protected]
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
Covid Solidarity @CovidSolidarit1
13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”
Mark @longcovidman
3K Followers 5K Following On pause: management consultant, tech founder & powerlifter. Follow for smart answers to long cov*d as I find them
Amy Proal, PhD @microbeminded2
29K Followers 5K Following Microbiologist at PolyBio Research Foundation: helping research teams collaborate on infection-associated chronic disease #me #longcovid #lyme #eds @polybioRF
Jen M RN @jennifer_minhas
326 Followers 342 Following Pediatric RN, Always learning. Marquette U, 🎾, 🏀, #LongCovid/PASC since March 2, 2020, she/ her
Rachel @rmcdougall65
48 Followers 1K Following
MyVaccident @MyVaccident
38 Followers 179 Following #VaxInjured #VaccineInjuries Dx: Post Vaccination Syndrome #PVS #Pfizer Lot #EW0169 &7 #ER8736. Disabled American ♿️ #Dysautonomia #Polyneuropathy
Andrew Newcomb @jnwcmb2
78 Followers 560 Following
Meg @PargsP
432 Followers 1K Following Idealist ● Chicago native ● 💙💛🌻 #BLM 🏳️🌈Ally/Pflag ● It is our choices that show who we truly are, far more than our abilities.
Eden @Eden71003
183 Followers 1K Following Long Covid advocate #Iwill ambassador Social action Taekwondo❤️ Feel free to connect with me via [email protected]
Wendy Cabrera @lehmancabrera
1K Followers 1K Following An educated society is necessary to sustain democracy. Choose £ov€. Kindness makes life worth living. Go Art! Go Science! #Resist Views are my own.
M B @battlebornlove
1 Followers 436 Following
Dave Ghoul @daveghoul
687 Followers 697 Following Artist, designer, DJ, occasional streamer. Not an actual ghoul or grohl. Dercum's Disease, Long Covid, ME/CFS, PoTS. He/him.
Pathogen Hunter @lymehater
836 Followers 5K Following Lyme disease advocate, tennis player, biomedical researcher, skier, reader, gourmet cook, antique hunter, world traveler, geek with varied interests.
Barbara McDonald @BarbaraMcD27160
14 Followers 322 Following
John Clutter @TheClutterer
2K Followers 5K Following Economist. Theologian. ME-patient. SCDS-patient. Introverted Idealist. @theclutterer.bsky.social
Dave Satterlee @dsatt5
73 Followers 273 Following
neurodiversweetie @neurosqueak
1K Followers 1K Following Petit écureuil neurodivergent #actuallyautistic
Long COVID is a mass .. @lhaztknup
5K Followers 6K Following One of Millions Missing, had severe LC. Now its getting better. I want to help reaching attention f this TERRIBLE illness. No medical advice.
Niah Munzell @munzell413
44 Followers 5K Following
Rania Olivarria @OlivarriaR2125
89 Followers 5K Following
Tegan Strotman @strotm_teg
11 Followers 3K Following
Concerned Citizen @bearonwings
842 Followers 2K Following
Tanika Ueckert @uecker_tan
56 Followers 5K Following
Gardenway 🦋🌻�.. @Raeslyn
126 Followers 486 Following RN dealing with Long COVID since 2020 - opinions are my own
Eva Hyldgaard @EvaHyldgaard
8 Followers 74 Following
Julia @JuliaFreytag_
206 Followers 1K Following Law & Politics 🏛⚖(partic. Human Rights & Crim Law); Former President @Cambridge_Uni Graduate Law Society; Opera Singer, Visiting Professional @IntlCrimCourt
Robert Olney @boretrol
2K Followers 2K Following Interested in thiamine deficiency and COVID, keto diet, renewable energy, building energy efficiency, regenerative agriculture, permaculture, computing, scottis
Brutus Berserk @BrutusBerserk
313 Followers 3K Following
Dan D @DanDraitser
132 Followers 456 Following
NB citizen Covid Upda.. @nb_covid_info
8K Followers 9K Following Citizen science initiative; highlighting covid info from P. Engs, industrial hygienists, HCW, citizens. I block pro-COVID accounts.
Harlow Lobstein @HarlowL25408
107 Followers 5K Following
Melanie Burden @tellmelb
1K Followers 3K Following Catastrophic Injury Solicitor, Head of Employer’s Liability at Bond Turner , Views are my own. Mother, MCFC Fan, Gym lover. Raising safety awareness
Pennie "No One" Reese.. @pennie_reese
3K Followers 5K Following 💙🌊#BLM #Resist #FightSupremacy #NeverAgain #FaceTheClimateEmergency #WearAMask “You're in this world, you know.” ~ Mrs Edith Beale
CMR @chriyakar
1 Followers 160 Following
Shari Boxer Baker @ShariBoxerBaker
301 Followers 555 Following Mom|Stepmom|MomInLaw|Bubbe|Dogmom|Wife|Publicist #MyalgicEncephalomyelitis “I’m intoxicated by animals.” — David Attenborough
Jaycee @JayCee_888
305 Followers 1K Following In my Rebellious Queen Era - living life in PJs. Emotional Wellness Coach. Former NHS MH practitioner with a horizontal life #longcovid
Anna Galo @AnnaGalo278409
53 Followers 5K Following
Shingo @shingo__ss
0 Followers 513 Following
Hoshi @ljigen369
21 Followers 362 Following
coco @coco_ohoh
0 Followers 252 Following
Elizabeth Londoño C @elizabethcano02
64 Followers 2K Following
Hazel Newlevant @HNewlevant
6K Followers 3K Following Cartoonist working on QUEER & HOW WE GOT HERE. Previously: CHAINMAIL BIKINI, NO IVY LEAGUE, @comicsforchoice. Tweets for @awaveblueworld, opinions my own. ⚧
Richie Rich @RichieRich0815
58 Followers 292 Following Inquisitive mind, loves nature and doing sports. Life on pause due to #LongCovid with #PEM
Susan De Frees @SusanDefrees
25 Followers 133 Following
bm @malkocb
1 Followers 746 Following
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Shaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Dr. Alice 💕 @calirunnerdoc
26K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs for med advice,SARS-CoV-2=persistent vascular bomb💣.Views expressed are my own,not my employers.
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Dr Elisa Perego @elisaperego78
33K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
GeoCK @GeoEduOne
6K Followers 953 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Daniel Brittain Dugge.. @dbdugger
15K Followers 6K Following HIV+ #LongCovid Advocate. Software Development. CJR Reform. SAND Scan.
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Patient-Led Research .. @patientled
27K Followers 613 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
Infinity AI (YC W24) @toinfinityai
3K Followers 34 Following A script-to-movie foundation model. Our first product allows people to generate talking-head videos. Try it here: https://t.co/vxiFOR9wpN
Martin Picard @MitoPsychoBio
10K Followers 751 Following Mitochondrial Psychobiology. Our team studies energy, mind-body communication, mitochondrial diseases, aging, and the science of health.
Dr. Angela Rasmussen @angie_rasmussen
453K Followers 8K Following Virologist. PI @VIDOInterVac. Adj Prof @USask BMI. P2 @covarr_net. Jeopardy! loser. Famed for my obnoxious turns of phrase. 🇺🇸in🇨🇦. she/her
MaskTogetherAmerica @TogetherWeMask
5K Followers 2K Following We advocate for people threatened by COVID-19 by promoting the multi-layered approach in mitigation measures. Let’s stay COVID-SMART.
Bill Gates @BillGates
64.6M Followers 586 Following Sharing things I'm learning through my foundation work and other interests.
Sonal Sathe @pajarita_shilpa
489 Followers 1K Following it rhymes with tonal| PhD student at @Virginia_Tech| RT not necessarily endorsement | views mine | Blue-sky: https://t.co/GDT9EClEyt
🪐🐳🧜♀️.. @CalZoniGalT
3K Followers 5K Following Fibro ME/CFS MCAS Vote Blue!! Science and nature are AMAZING! Please foster/rescue/adopt.Mental Health is Health. Never Trumper from day 1. 🚫 lists/dm
Melissa | SpoonieCult @SpoonieCult
5K Followers 2K Following Leading ourselves through the illness & ND experience. Hi I’m Melissa. Comedian to some. Total drag to others. 🧟♀ Uniquely human & neurodivergent. 😘
Tatiana Prowell, MD @tmprowell
63K Followers 8K Following Oncologist serving people w/ #cancer in #MedEd/#bcsm clinic/#regulatory. #ASCO20 Ed Chair. Co-founder @HCWvsHunger. #LongCovid. Team hope/good trouble/go high.
Kelly @broadwaybabyto
12K Followers 2K Following Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 #SpacesHost
Mary-Jane Kohler MT(A.. @TruthAbout_ME2
3K Followers 5K Following Formerly athletic homebound Medical Technologist w/33 years post-viral Myalgic Encephalomyelitis #pwME #LC ally 🌈ally 🌊 cats🐈 random symptom generator
Teresab @TeresabDB62
3K Followers 2K Following This is not really a picture of me, but everyone tells me I look very similar (but much better looking😊).
Kathleen Yatsko @KCYatsko
2K Followers 3K Following Trying to love Jesus and my neighbor. Wife & mom, our GR’s lady-in-wait’g. Human/civil rights, racial/social-justice. LGBTQ ally.🚫lists, 🚫DMs
Kristina Simmons @ksimm
8K Followers 1K Following Never a boring day. Founder and Managing Partner @overwatervc 👩💻 Previously @khoslaventures, @a16z @lululemon.
J Kennedy 🇸🇩 �.. @socrates2sox
2K Followers 3K Following Passionate about all wildlife - however tiny or ugly! Despise all forms of cruelty. Born at 321.59 ppm. Animals are here with us, not for us.
Mainly Joan (with a b.. @1903wrightflyer
742 Followers 267 Following
Shivani Chaudhry @shivani_chdhry
2K Followers 323 Following Human rights; all forms of justice; poetry and prose; music, silence, and the spaces between... | On pause due to #LongCovid | 😷=❤ | 🇵🇸 🕊
crr @crr7310
585 Followers 1K Following
Vanessa Sica Kasabach @VSicaKasabach
735 Followers 2K Following Human-centered Designer, Strategist & Educator | Alum of @CarnegieMellon School of Design & @SmartDesign | Parent of twins learning in-person as safely as poss.
Oevie @Oevie
231 Followers 84 Following ooit: fanatiek 🥾,🚵🏻♂️,⛵️,📷 ,🌃,📖 nu: energetisch ♿️ fan van: strand & zee 🌊, soul & jazz 🎧, 🍝🍷
Wren Cage @_eleven13_
3K Followers 525 Following Living with Benzodiazepine Induced Neurological Dysfunction #BIND + #LongCovid MCFC ⚽🩵 + 🐈⬛
Gervais Vignola @myownfood
265 Followers 1K Following if you can put it in a nutshell, don’t. He/him/they
Dees @caseofdees
11K Followers 4K Following Moeder van I en zo ongeveer mijn moeder van J. Getrouwd. Patient advocate (erfelijke aanleg) borstkanker (en eierstokkanker). Later wil ik @IrisBApfel worden.
LLLR @LLRLies
50 Followers 181 Following My name is Lies. From the Netherlands. Tweeting about my struggles with Long Covid (May 2021).
Darren Parkinson 🌍.. @DarrenBar88
1K Followers 950 Following Shipley Green Party Town Cllr & campaigner. Tweeting about #climate, #environment, #activetravel, #Shipley, #Saltaire. Living with #LongCovid. Views own.
Daisydoo @Jill4life3
904 Followers 2K Following Enviro overthinker. Trauma. Humanist. Political. Views my own. #covidisairbourne
Lil Mamoos @lilmamoos
372 Followers 2K Following Working mum, loves science, anti-Covid, anti-idiot.
AIREyVIDA aquí no co.. @AIREyVIDA2021
2K Followers 1K Following 🌎 cada viernes 🇲🇽1pm/🇵🇷3pm/🇨🇱3pm/🇦🇷4pm/🇪🇸9pm, aprendiendo y enseñando #las7capas & #longcovid ⚕️ en vivo y en directo... 😉 ¡y en español!
Jen Cooke @JennHelen
116 Followers 331 Following Full-time ME/CFS? Former analyst and investor relations specialist.
🇺🇦 Just_Natting.. @Natalie_Ross22
2K Followers 4K Following Loath the current Tory gov & RW govs WW ME/CFS suffer. #FBPE #FBPR Born 325ppm. We had a chance then!
Millions Missing Podc.. @millionspod
1K Followers 414 Following Share your story / Amplifying the chronically ill / #MyalgicEncephalomyelitis / #LongCovid et al / #MillionsMissing / Contact: [email protected]
eIisa @mildTin
1K Followers 1K Following Previously lurking, now on here for #LongCovid #MECFS updates. "The world is awful. The world is much better. The world can be much better."
Bee 🐝🌼✨ @elbecp
1K Followers 4K Following Public Health student 🇦🇺 🇫🇮 Plant person. AuDHD. Chronically curious. Alphabet soup connoisseur. ♐⬆️ | ♃ in ♉ @elbecp.bsky.social
Hippymum @Baybabe75
837 Followers 1K Following ME sufferer since 1983, too many co-morbidities to list. I miss the old me. I love old VWs and animals and detest what our country has become due to the greedy
emily fraser 🌿🐌.. @emilyesfraser
5K Followers 4K Following Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Hanna O. @nerdyblue
1K Followers 5K Following Politics, Social Justice, & Environment. MA in Counseling, Psychology. Righteous anger my own. BLM ✊🏽 LongCovid POTS/dysautonomia/MeCfs
Seakay 💙 @Sea1kay
886 Followers 665 Following for someone who's quite knackered I do get angry about things (and Simon Wessely) Fibromyalgia/M.E.
Lisa @Lisathefirst20
1K Followers 402 Following Betroffene von #mecfs nach Impfung | 22 Jahre alt | Bell 20, hausgebunden
Peter @petier3000
109 Followers 43 Following
Mike @LongHaulerBear
1K Followers 280 Following 50, Covid Long Hauler since 2020. I mostly post about Covid, Long Covid, ME/CFS, gut microbiome, scientific research.
Yuling Chow @yulingchow
432 Followers 3K Following Eats shoots and leaves, not necessarily in that order || Filmmaker/DP/Videographer from Hong Kong || Appalled by our response to Covid-19 & climate change
linda wood @lindawo69814659
131 Followers 300 Following
Dr. Daniel Swain @Weather_West
103K Followers 3K Following Climate scientist-communicator focused on extreme events like floods, droughts, & wildfires on a warming planet.
Efthymios Kalafatis @lifeanalytics
5K Followers 3K Following Data Scientist, Patent owner of Artificial Intelligence-assisted methodology for Medical Discovery. Tweets are mine/not medical advice or endorsements.People with ME/CFS and Long COVID: Were there time gaps between the onset of one symptom group and another? e.g. did you get ME/CFS in year 0 and get POTS in year 3?
Anyone else? My eyelids are super swollen and red, everyday. I also have really dry eyes, itchiness, drooping and other things. I've been to the opthalmologist numerous times. #mecfs #pwme #longcovid
Health Rising: “Connecting the Dots: Ruhoy and Kaufman Take on Connective Tissues in ME/CFS, Fibromyalgia and Long COVID” healthrising.org/blog/2024/04/2…
@DaniGrainga Likely mcas, common aspect of long covid. Lots of ppl report this in FB group Beat Long Covid with a Smartwatch (focussed on HR pacing). I have to swap wrists onight plus wash wrists every 48 hrs. Also some develop allergy to the metal recharging bit, need to cover it with tape
"Blood Biomarkers Reveal the Hidden World of Long COVID" '“This study, which includes detailed clinical data on symptoms & a raft of inflammatory blood plasma markers, is an important step forward and provides crucial insights into what causes long COVID" scitechdaily.com/blood-biomarke…
TIME's list of the 100 Most Influential People in the world is out. I'm honored, delighted, and grateful to be a part of this incredible group #TIME100 🙏🏼🙏🏼🙏🏼 @TIME time.com/6964230/akiko-…
I'll be giving a talk on Severe ME and malnutrition at the Royal Free Hospital Edinburgh as part of our #TeachMETreatME initiative at #MEAction. This is an incredibly underserved patient population, and it's worth learning more. Info here: events.rcpe.ac.uk/rcpe-mecfs-and…
BMJ Rapid Response: Steps doctors and other medical professionals can take today to improve medical care for people with Myalgic Encephalomyelitis #MyalgicEncephalomyelitis bmj.com/content/383/bm…
Check out the #MillionsMissing #TeachMETreatME and #StillSickStillFighting tees available to purchase. They are set to print on demand so once your purchase it, it prints the next business day and is sent your way. We look forward to the photos! bonfire.com/store/meaction… #pwME
The most deserving, @VirusesImmunity is this year's @TIME most influential people due to her incredible work around solving the difficult puzzle of Long Covid. Seeking Boston parlaying that into the Top 50 #longcovid accounts you should be following on X (twitter) 🧵1/
Bacteria stimulate mast cells. Reducing whole body pathogen load is important for MCAS. #MECFS #LongCovid "MASTer cell: chief immune modulator and inductor of antimicrobial immune response" (2024) frontiersin.org/journals/immun…
It is always wonderful to hear from Omar Wasow! He wrote our community a message today & we are sharing a video clip from @owasow speaking at #MillionsMissing 2022 because we think it ties into this message. Thank you, Omar! Full message in description: youtu.be/8xwEFa_wujw
@RTHM_Health what do y’all recommend Kaneka ubiquinol specifically? Economics? Or another reason?
Before you throw "fear tactics" at me. This is my reality. @AcrossTheMersey shared @KFF article showing a steady 7% of adults have #LongCovid which can lead to; Vasculitis, neuropathy, mitochondria/endothelial damage, lung/brain/heart issues, blood clots & in my case cancer
'We need a moonshot for long COVID': What we know (and don't know) about the illness. Thank you for having me on your show this morning @wnpr and @wherewelive! Featuring @LisaAMcCorkell @patientled, with Prof. Daniel HoSang and Catherine Shen. ctpublic.org/show/where-we-…
About to start the MITO Protocol f/ @RTHM_Health. It’s one of their free community kits. Some basic cellular support foundations, but tell you how to dose & the timeline of what to add & when; small details but may matter very greatly in how we react. Question for @RTHM_Health👇
@EvitorialPage @RTHM_Health Sure! Sign up here and check out their kits with instructions us.fullscript.com/welcome/drc/st…
@BoyanSlat @paulg Make sure to walk down on Market street and the Civic center. Then you will be truly ready for Europe.
Reduced glycolysis in #MECFS is an important metabolic dysfunction that might helps explain (in part) why we have less energy (and mitochondrial dysfunction). It also might help explain why we are so low in amino acids - any why supplementing AAs is crucial (i.e. AAs end up as…
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