Raising awareness of Sarcoidosis @BevgornallBev
Raising awareness of Sarcoidosis Chester, England Joined January 2017-
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It's disgusting how much paperwork they want people to do in order to get a small amount of financial help. The stress that they put you through have huge detrimental effects on people's health. I was denied PIP while bedbound on chemotherapy had to go to court. #EnoughIsEnough
It's disgusting how much paperwork they want people to do in order to get a small amount of financial help. The stress that they put you through have huge detrimental effects on people's health. I was denied PIP while bedbound on chemotherapy had to go to court. #EnoughIsEnough
#MECFS #ME #CFS #MEAwareness #MissingMillions #LongCovid #LongCovidAwareness #ChronicIllnessCommunity
#MECFS #ME #CFS #MEAwareness #MissingMillions #LongCovid #LongCovidAwareness #ChronicIllnessCommunity
'#PIP tier system would be cruel - we're being pitted against each other' In this article I explain what it would mean for my disabled daughter But the upside is that the #Tories will be demolished at the soon, so can't demonise the vulnerable #GeneralElectionNow…
#MECFS #ME #CFS #LongCovid #LongCovidAwareness #LongCovidKids #Sarcoidosis #ChronicIllnessCommunity #ClinicallyVulnerableFamilies #ClinicallyVulnerableChildren #MissingMillions
Children are being failed daily by those in authority. They blame the situation on lack of money/resources yet the Government continues to waste billions on rubbish. Our children & society deserves better. #EnoughIsEnough #DisabilityDiscrimination #ChildrenFirstAlways
Children are being failed daily by those in authority. They blame the situation on lack of money/resources yet the Government continues to waste billions on rubbish. Our children & society deserves better. #EnoughIsEnough #DisabilityDiscrimination #ChildrenFirstAlways
Are people going to start caring if the king dies of covid. No facemasks in sight covid is not over. The fact people are acting like it is just because authorities have told you it's over. You have to be stupid to believe those in authority who often have no commonsense ! #Enough
Are people going to start caring if the king dies of covid. No facemasks in sight covid is not over. The fact people are acting like it is just because authorities have told you it's over. You have to be stupid to believe those in authority who often have no commonsense ! #Enough
Covid is not over there are also lots of other airborne illnesses. Clinically vulnerable people need protecting and the fact that they can't have the simple human dececency and wear a face mask or use hepa filters/Open a window this us happening too much ! #EnoughIsEnough
Covid is not over there are also lots of other airborne illnesses. Clinically vulnerable people need protecting and the fact that they can't have the simple human dececency and wear a face mask or use hepa filters/Open a window this us happening too much ! #EnoughIsEnough
The Government has wasted billions while their friends made millions. Sunak bought shares in Pfizer just before covid so he did very well throughout the pandemic while 1.2 million clinically vulnerable people are still shielding. They are refusing help for the most vulnerable !!
The Government has wasted billions while their friends made millions. Sunak bought shares in Pfizer just before covid so he did very well throughout the pandemic while 1.2 million clinically vulnerable people are still shielding. They are refusing help for the most vulnerable !!
It shocks me how easy people think it is to claim benefits. I was refused pip when I was bedbound on chemotherapy. At that time my mother had to care for my son. I still had to wait 2 years and go to court for what I am legally entitled to the stress made my Sarcoidosis worse !!
It shocks me how easy people think it is to claim benefits. I was refused pip when I was bedbound on chemotherapy. At that time my mother had to care for my son. I still had to wait 2 years and go to court for what I am legally entitled to the stress made my Sarcoidosis worse !!
Esther @ELHopkins
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Clinically Vulnerable.. @cv_cev
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Clinically Vulnerable.. @cv_cev
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postersandme @postersandme
2K Followers 288 Following Advocacy, Art, Inspiration, reflection #MyalgicEncephalomyelitis #pwmeCheeky fucker I didn’t vote for any of the fuckers let’s get that one straight and also wales are under labour which I didn’t vote for either - got to love shitty trolls
@redpepper1011 Bet you voted Tory or some other party that doesn't want to spend money though and instead gives it to the rich. You got what you voted for enjoy it, feel bad for your son he doesn't deserve it though but you do.
Not sure why doctors are telling patients on here they have a “poor prognosis.” Long Covid/ME/CFS is being studied right now more then ever. Those doctors are basically telling you to give up hope in a time that’s most hopeful for ME.
Where’s the public outrage at this .. where are you all 🥲bbc.com/news/articles/… Charles Esler spent more than 50 years living behind locked doors in hospital despite not being acutely unwell. Charles, who has a mild learning disability and epilepsy, was first taken into…
The King and Queen at a cancer hospital. You can argue about whether we’re still in a pandemic if you want, @mvankerkhove of the @WHO says we are. What you can’t argue about is that Covid is still prevalent and can still kill & disable, so where’s the respirators?
Medical doctors like to think they're all objective, scientific thinkers, but most are just 200 years of biases in a white coat.
Anyone else get angry at the sheer amount of admin you have to do as a disabled/chronically ill person. Also, the amount of that admin which is just proving to different people that you really are ill and really do need the support you’re asking for.
#MEcfs Westminster Hall debate: We have sent your open letter to @sajidjavid and cc'd @actionforme @SonyaChowdhury in. The below is what we said - we hope it's OK #SaveCarlasLife #BringMillieHome: Good afternoon, Firstly, we would like to thank Sajid for convening the…
This month is M.E awareness month. Pls, pls help support the #pwME community by sharing content & increasing awareness I've had #MyalgicEncephalomyelitis for over a decade. #MECFS
'#PIP tier system would be cruel - we're being pitted against each other' In this article I explain what it would mean for my disabled daughter But the upside is that the #Tories will be demolished at the soon, so can't demonise the vulnerable #GeneralElectionNow…
Please note: Apart from #MECFS and #LongCOVID, Post-exertional malaise can be found in cancer-related fatigue, gulf war illness syndrome, Post-treatment Lyme disease syndrome and possibly other syndromes. We need to further investigate this key symptom and common mechanisms.
I’m fucking tired of #MECFS PEM being described in a way that makes it sound like a temporary payback. Oh well, maybe it’s worth it then. NO! PEM can be PERMANENT! Exertion can make you PERMANENTLY MORE DISABLED! This does not happen in ANY other disease! I will die on this hill.
The similarities between HIV and SARS2 are impossible to ignore but everyone's over it and still using language like "back during COVID." I'm like bro, you're still in it. In fact, its in you. Its still living and replicating in you.
@BevgornallBev All the benefit programs few years ago were made to set it up like this imo
@BevgornallBev I think majority who think that just enjoy kicking ppl they see as beneath them tbh a bit of jealousy too
@BevgornallBev It’s that class easy to say things not happening he can’t stick the kids screaming and hitting and he will respond back he’s tiny would no way hurt anyone I bloody knew something wasn’t right he’s being told off 😡
I just learned that a HR going to 130 in three minutes of standing is considered Severe POTS. Mine shoots to 140 in under fifteen seconds. Does this mean that I win POTS? And, if so... what have I won?
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