Pam Bishop, PhD @pamelarbishop
Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can. United States Joined June 2014-
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With host @hayliepomroy, MEAct’s @exceedhergrasp1 discusses how infections can lead to long-term health problems. Watch the full podcast: brnw.ch/21wJlFp #infectionawareness
I am extremely honored to be part of this patient-led initiative for a worldwide congress on Long COVID, #UniteToFight2024/@U2Fight_World. Registration is free. My presentation on post-exertional malaise will be aimed at patients, clinicians, and scientists. @VU_FGB @VUamsterdam
I am extremely honored to be part of this patient-led initiative for a worldwide congress on Long COVID, #UniteToFight2024/@U2Fight_World. Registration is free. My presentation on post-exertional malaise will be aimed at patients, clinicians, and scientists. @VU_FGB @VUamsterdam
Finally... our paper on #LongCovid is out! It's based on my tweet here. Thanks to my amazing coauthor @MVGutierrezMD and the amazing @zalaly for your input and encouragement! #MedTwitter #Neurotwitter @Jacobs_Med_UB @AANmember journals.lww.com/ajpmr/citation…
The persistence of #SARSCoV2 in tissues and its association with #longCOVID symptoms: a cross-sectional cohort study in China thelancet.com/journals/lanin…
@Dr2NisreenAlwan An enterprising interviewer should ask him if he's ever had a headache and then ask him to prove it.
This talk about ‘objective’ vs ‘unverifiable’ in reference to the experience of illness in general & mental health in particular hurts my brain. Let’s say it again: symptoms BY DEFINITION are self-reported. How can we make symptoms ‘verifiable’? By believing the patient!
This talk about ‘objective’ vs ‘unverifiable’ in reference to the experience of illness in general & mental health in particular hurts my brain. Let’s say it again: symptoms BY DEFINITION are self-reported. How can we make symptoms ‘verifiable’? By believing the patient!
Good read on the longterm findings of a tick-borne, often fatal virus, where metabolic rewiring caused long term fatigue. “The ability to generate energy was crucial: patients whose cells had to turn to alternative energy sources to fight the virus were sicker.” #longcovid
Good read on the longterm findings of a tick-borne, often fatal virus, where metabolic rewiring caused long term fatigue. “The ability to generate energy was crucial: patients whose cells had to turn to alternative energy sources to fight the virus were sicker.” #longcovid
Wow ! Up to 17 CME points for #UniteToFight2024
Wow ! Up to 17 CME points for #UniteToFight2024
Big fan of Dr Jarred Younger's informative YouTube channel. Short videos, simple explanations. #LongCovid #MECFS #fibromyalgia
Big fan of Dr Jarred Younger's informative YouTube channel. Short videos, simple explanations. #LongCovid #MECFS #fibromyalgia
"Here we present recent findings in ME/CFS research focussing on proposed disease pathologies shared with long COVID." #MECFS #LongCovid cell.com/trends/molecul…
Really helpful rundown of where we are with H5N1 from @thesicktimes
Really helpful rundown of where we are with H5N1 from @thesicktimes
Question for U.S. #MCAS patients taking oral ketotifen--what is the best option for obtaining? My PCP will write the script, but doesn't know where to send it (not available in regular pharmacy). I know some compounding pharmacies may have it, also some online (??) #LongCovid
#LongCovid has given me cerebral small vessel disease, reactive gliosis, endothelial damage, reduced cerebral vasomotor reactivity, & reduced cerebrovascular reserves (lack of blood flow in the brain). This is likely what the vessels in my brain look like. This does not end well.
#LongCovid has given me cerebral small vessel disease, reactive gliosis, endothelial damage, reduced cerebral vasomotor reactivity, & reduced cerebrovascular reserves (lack of blood flow in the brain). This is likely what the vessels in my brain look like. This does not end well.
𝙆𝙚𝙮 𝙨𝙩𝙪𝙙𝙮 "𝗟𝗼𝗻𝗴 𝗖𝗢𝗩𝗜𝗗: 𝗽𝗹𝗮𝘀𝗺𝗮 𝗹𝗲𝘃𝗲𝗹𝘀 𝗼𝗳 𝗻𝗲𝘂𝗿𝗼𝗳𝗶𝗹𝗮𝗺𝗲𝗻𝘁 𝗹𝗶𝗴𝗵𝘁 𝗰𝗵𝗮𝗶𝗻 𝗶𝗻 𝗺𝗶𝗹𝗱 𝗖𝗢𝗩𝗜𝗗-19 𝗽𝗮𝘁𝗶𝗲𝗻𝘁𝘀 𝘄𝗶𝘁𝗵 𝗻𝗲𝘂𝗿𝗼𝗰𝗼𝗴𝗻𝗶𝘁𝗶𝘃𝗲 𝘀𝘆𝗺𝗽𝘁𝗼𝗺𝘀" nature.com/articles/s4138…
@EIFY Yes, we showed a bit about blood vessel disruption in this paper from Oct 2022. But I have a lot more new data I will be showing at the unitetofight2024.world meeting online next month if you are interested :) ncbi.nlm.nih.gov/pmc/articles/P…
#Migraine doesn't have biomarkers: MRI of the brain is typically entirely normal in people with migraine. We make the diagnosis based on clinical history, and we believe the patient that they are indeed IN PAIN and are not making it up for secondary gain! We don't call it "pain…
#Migraine doesn't have biomarkers: MRI of the brain is typically entirely normal in people with migraine. We make the diagnosis based on clinical history, and we believe the patient that they are indeed IN PAIN and are not making it up for secondary gain! We don't call it "pain…
Another 🔥 Tweet from @PutrinoLab
@ssaraviaandre The Bateman Horne Center has produced a video series aimed at clinicians which summarizes the state of scientific knowledge on PEM. youtube.com/playlist?list=…
The Guardian: “We must learn the lessons of Covid before another deadly disease strikes” ‘With new Office for National Statistics datashowing 2 million people reporting long Covid, we need to wake up…’ theguardian.com/theobserver/co…
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQsHannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checkedDr. Alice 💕 @calirunnerdoc
26K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs for med advice,SARS-CoV-2=persistent vascular bomb💣.Views expressed are my own,not my employers.Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.GeoCK @GeoEduOne
6K Followers 954 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #ClimateChris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKEDNaomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med adviceBinita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |Daniel Brittain Dugge.. @dbdugger
15K Followers 6K Following HIV+ #LongCovid Advocate. Software Development. CJR Reform. SAND Scan.It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID AllyCovid Solidarity @CovidSolidarit1
13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪Prof Doug Kell CBE #F.. @dbkell
14K Followers 10K Following Liv Uni. ENTJ. CBE. Against brexit and Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice @[email protected]T@Sunset @TeiaSunset
6K Followers 6K Following #LongCovid 2003/2020 / Cancer survivor. 🎵🎶Humming music, writing under trees watching sunsets.🏝️😻Irish ME/CFS Associat.. @IrishMECFSAssoc
2K Followers 2K Following Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Assoc. NB: Posts should not be considered advice. RCN 20100254 CHY 22039. Some #LongCovid items also.Manuel Ruiz @manruipa
4K Followers 135 Following 🔬Diving deep into #MECFS & #LongCOVID research. 🦠Dual role: Researcher and EBV ME/CFS patient. 🌍 Seeking answers.MaskTogetherAmerica @TogetherWeMask
5K Followers 2K Following We advocate for people threatened by COVID-19 by promoting the multi-layered approach in mitigation measures. Let’s stay COVID-SMART.Elyse @LysTrack42
142 Followers 958 Following Wanderer🌊🌎Sunshine☀️🌻🐝Activism✊🏻 Here for medTwitter ❤Alex Rice @alexrice6975
16 Followers 103 Following65for65 @65for65
22 Followers 55 Following Raising awareness and money for Long Covid through the 65for65 challenge ✨Z0mb13 nati0n @Z0mb13nation
678 Followers 5K Following Accepted the gift of salvation. Stand with Israel. Deace Show fan. Bible is my manual. Fighting for our kids future...so they actually have one.Laila 🌻 @lailamourthe
215 Followers 2K Following Architect / 🏢🔬 . A decade through ME/CFS. #homebound 99% and #bedbound 80%.290/67-NurseJennifer @NurseJennifer4
255 Followers 1K Following Nurse, Mother, Wife, and Biden/Harris Voter!!Margita Kleye @KleyeMargita
206 Followers 2K FollowingEmmanuel @ejustin46
13K Followers 525 Following Never be afraid to raise your voice for honesty and truth and compassion against injustice and lying and greed. William FaulknerJessie Lee @jessieleelee99
145 Followers 300 FollowingCarma Fiera @CarmaFiera
36 Followers 340 Following zeitgeist surfing. #LongCovid #FuckCancer Tired and retired. Libraries, cats, peace. Kndness first always.Astrid S @Djinn79
48 Followers 543 Followingtdubster @tdubster
27 Followers 2K Followingsingkepe @singkepe
2K Followers 3K Following 𓁹 Reminding you of your power • Awakening your mind and body to your healing potential and purpose • Certified Quantum Healing Hypnosis Tulum #QHHT #Hypnosissong_bird_ @songbirdserene
823 Followers 3K FollowingCuriosity @curiosity_itis
7 Followers 54 FollowingLong Covid Educators .. @LCEducatorsUK
80 Followers 187 Following A group of educators seeking justice for injury/ill-health as a result of catching Covid-19 in schools as a direct failure of Gov.Eric Fraser @thehypnoworks
2K Followers 6K Following Hypno/Psychotherapy in Glasgow. Libertarian, humanist, and generally nice chap.... Medical Autonomy - Free Speech - Limited Government. PLEASE FOLLOW BACK 😍..Eric @Eroof5
55 Followers 216 Following Long Covid, Pots, # Suffering from bio-weapon. May God bless usLaurel @Nana4031659
2K Followers 4K Following I’m a Nana who believes all people are equal! 🪶DESTROYING the 🌍for $ is BS!HAD ENOUGH OF LYING,SMITH/UCP/TBA yet, AB? Join us #ABResistance REMOVE UCP/TBA!Susan Gantt @atlspg
1 Followers 22 Followingdawn loudenback @DawnLouden91491
6 Followers 52 FollowingBigBlueWaveUSA® 🇺.. @BigBlueWaveUSA
155K Followers 146K Following #SaveDemocracy #BidenHarris #BlueCrew #FBR #BlueVoices #DemVoices 💙 #VoteBlue2024 #ConnectBlue #IFB - 2024 is Democracy vs Fascism #TEAMSTALLIONStine Mari Lyngseth @Stinelyngseth
61 Followers 249 Following On the hunt for causes and cures for Myalgic Encephalomyelitis and Long CovidDiana @LaraJamar7832
1K Followers 2K Following My name is Diana, and I have extensive experience and resources in investment finance. I like golf, swimming, traveling, and reading.🇺🇲🇺🇲🇺🇲AmalieButterfly @AmalieButterfly
20 Followers 526 FollowingPaylz @paylzdig
117 Followers 3K FollowingDiana Taylor @dianataylorabz
59 Followers 409 FollowingBattle Weary Wombat @3wombats
8K Followers 4K Following Glad you're seated it's a long story. Too long. Arts and Music from Opera to Immigrant U,Dandy Warhols. Living on Wurundjeri land . [email protected] and 🦋Elizabeth William @Elizabethw30931
31 Followers 708 Following Elon musk manager x .. We the entire body of Tesla and Space X really appreciate your love and support…Greg J. Marchand MD @MarchandSurgery
204K Followers 97K Following Dual board certified #MIGS & #OBGYN - against #genitalmutilation & #sterilization of kids under 18 for #GenderAffirming Surgery https://t.co/HRJLpqSuxGherrywood @herrywood01
9 Followers 219 Following Love is not just a feeling; it’s my favorite adventure.❤️❤️❤️❤️❤️❤️🌹🌹🌹🌹🥰🥰🥰🥰Glitter Resist 🏴�.. @Glitterresist
36 Followers 150 Following Improving healthcare for autistic people & others #autistic #actuallyautistic [email protected]⚕️🩺Nurse 𝐸�.. @_LADubz
966 Followers 5K Following ER Nurse.HockeyPlayer.DogMom x2. HSP.ISFJ.Enneagram✌🏻w☝🏻.Introvert. #LeafsNation #NurseTwitter .Chronic Illness Multitasker.🚫med. advice.opinions my ownAJ Yalch @ajdontquit
88 Followers 194 Following Mental health warrior, Long covid survivor, Libertarian Anarchist, MMA fan, BJJ blue belt, Animal lover, Tattoo collector, Truthseeker 🇮🇪🇺🇲@KillZoNeTTV🏊🏾♀️🏊.. @Septmbr26
114 Followers 792 FollowingMike G ☠️ @nolahoubear
370 Followers 964 Following Old lawyer/math/computer nerd. First computer experience was with IBM 1620. Still tinker, but mostly observe and stir up trouble between naps and gamesLongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQsHannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checkedDr. Alice 💕 @calirunnerdoc
26K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs for med advice,SARS-CoV-2=persistent vascular bomb💣.Views expressed are my own,not my employers.Dr Elisa Perego @elisaperego78
34K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views ownShaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLCPutrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammationGeoCK @GeoEduOne
6K Followers 954 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #ClimateChris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKEDNaomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med adviceGez Medinger @gezmedinger
20K Followers 719 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agencyBinita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |Daniel Brittain Dugge.. @dbdugger
15K Followers 6K Following HIV+ #LongCovid Advocate. Software Development. CJR Reform. SAND Scan.It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 724 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founderIrish ME/CFS Associat.. @IrishMECFSAssoc
2K Followers 2K Following Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Assoc. NB: Posts should not be considered advice. RCN 20100254 CHY 22039. Some #LongCovid items also.The Osler Medical Res.. @OslerResidency
5K Followers 556 Following The Osler Medical Residency at the Johns Hopkins Hospital #OslerPrideManuel Ruiz @manruipa
4K Followers 135 Following 🔬Diving deep into #MECFS & #LongCOVID research. 🦠Dual role: Researcher and EBV ME/CFS patient. 🌍 Seeking answers.Saloni & Vera's Dad �.. @TristanVeness
2K Followers 3K Following Proud dad. Woke Care Bear. Fairness/equality. Sarcasm coping mechanism. LC since March 22. Free Palestine. Hates seeing Israel murder 1000s of kids 😭😭😭💔💔💔MaskTogetherAmerica @TogetherWeMask
5K Followers 2K Following We advocate for people threatened by COVID-19 by promoting the multi-layered approach in mitigation measures. Let’s stay COVID-SMART.Annie5757 @herman_amalie
228 Followers 2K Following Surviving Sjogren’s (Neuro) patient w Dysautonomia, SFN, POTS, MCAS, Chronic Daily Migraines.Jenna @Jenna_Lou13
27 Followers 128 Following Dream as if you'll live forever, live every day as if its your lastnpi @Illusionist999
308 Followers 302 FollowingSunsetWarrior @Namasteprecious
2K Followers 2K Following 💛Sunsets, light through trees.The moon,stars⭐Sea.Bird song💫Yoga/Nidra. LongCovid #Warrior 💙NHS Nurse 20 years🤝Residental Project Worker💙IWish for PEACE🤝🙏Stacy Case @StacyCase_
12K Followers 3K Following What a Ride❣️ So Grateful: Wife-Mom-Journalist-Believer-Runner-Skier-Gardener-Thankful 🏆 Emmy & Murrow awarded News Anchor-Reporter MS➡️IL➡️IN➡️OH➡️NC➡️NY➡️TNLesley Walker @Lesley_Wa
1K Followers 2K Following Professional Learning @EducationScot Mum, Fifer, living with #LongCovid.🌻 Views mine; retweets not endorsements. #EdScotAMLEmmanuel @ejustin46
13K Followers 525 Following Never be afraid to raise your voice for honesty and truth and compassion against injustice and lying and greed. William FaulknerKatie Johnstone @SockFoam
740 Followers 718 Following She/her. Chronically ill with ME. Founder of the ME/CFS Medical Education Campaign, blogger on Substack.Sophia⁷ @clintinoslucky7
2K Followers 1K Following Let yourself fall, someone might catch you. disabled/#MECFS she/her // @[email protected] . @clintinoslucky7.bsky.socialleurah @leurah_
726 Followers 98 Following What the world need now, is love sweet love💜 March 2020...in USA LC'er IG: covid_longhaulers_supportgroupSajid Javid @sajidjavid
304K Followers 1K Following Rt Hon Sir Sajid Javid MP | Member of Parliament for Bromsgrove | Former Chancellor of the ExchequerUBuffalo Long COVID R.. @ubuffalocov
240 Followers 21 Following The University at Buffalo helps advance #LongCovid care in #WNY. Get answers, contribute to medical & scientific efforts + sign up for a long COVID registryJulia MV @julialmv
2K Followers 404 Following Let's increase health equity Now: @AllofUsResearch at @ScrippsRTI & #LongCovid patient-researcher @patientled Then: @RockefellerUniv & @nygenomeJason M @TheTrueJasonM
3K Followers 3K Following jasonm. bsky. social Still N95 masking. Not fooled by the minimizing propaganda constantly spewed at us by the government ,"health" officials, and the media.Jessie Lee @jessieleelee99
145 Followers 300 Followingjellyfish 🍉🏳️.. @JellyfishEnby
114 Followers 571 Following chronically ill art appreciator and comics lover :)Battle Weary Wombat @3wombats
8K Followers 4K Following Glad you're seated it's a long story. Too long. Arts and Music from Opera to Immigrant U,Dandy Warhols. Living on Wurundjeri land . [email protected] and 🦋Diana Taylor @dianataylorabz
59 Followers 409 FollowingLaura ⁷ 𐚁 @xawwwkidx
408 Followers 1K Following she/her , tweets in ger/eng , ND, disabled by covid, feminist @awwwkid.bsky.social will tweet about covid/LC, music, pop culture and cute animals 🏳️🌈Rachel Hall-Clifford,.. @rahallclifford
1K Followers 866 Following Medical anthropology. Global health. @ Emory University. Parent. Enjoys sightings of the absurd and compassion.Siham Karajoli @SisiKara94
41 Followers 112 Following 29, I used to be fun, but now I got Long CovidXY-mecfs @XY21282343
251 Followers 633 Following My life is a parody. MECFS destroys lives, including mine. Former executive & MBA lecturer🇦🇺. Collingwood AFL. 🇺🇦🇮🇱 🇹🇼. Block idiots, fact deniers.Rita Colistra @ritacolistra
932 Followers 1K Following assoc prof @wvumediacollege | Ph.D. @UNChussman | @BrandJRNY director | PR & IMC consultant | researcher & explorer | earth momma | appalachian𝗦𝗵𝗼𝘄 𝗠.. @txsalth2o
86K Followers 1K Following Looks like only 6 of us paid attention in stats101. Part of the #altmiddleMatt, Pre-School Dipl.. @statomattic
11K Followers 1K Following Telephones make strangers out of lovers. Zoom Happy Hour is an oxymoron. Views not my own. Probably funded by dark money. I leave 4-star reviews on Yelp.@TheChronicCollaborat.. @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.CoronaHeadsUp @CoronaHeadsUp
12K Followers 740 Following The most important pandemic stories from around the globe. Proudly suppressed and deamplified by Twitter since 2020.Sarah Goode @sarahgoode_news
248 Followers 137 Following Digital Host @WAVY_news | Formerly @DatelineNBC | DM with your stories.Hillary Johnson: jour.. @oslersweb
4K Followers 952 Following The Why "Delicious" "Devastating" "Indispensable" Reimagining Ruth "..has a raw power" Osler's Web "A relentless, meticulous, highly persuasive expose."katiana mekka ❤️�.. @katiamek
1K Followers 574 Following 26. Former Architecture student dealing with severe LongCovid and ME/CFS , since 2021. . inst: k_aoticElizabeth Ansell @elizansell
687 Followers 2K Following Founder @njfatigue. Previously at Showtime and ABC News, among other places. Quit career due to #MECFS. This is #NotJustFatigue.Adam Rowland MSc @oneadds
26K Followers 3K Following Physio/S & C Trainer- 16yrs Pro sport; Ballet ,Rugby, Military, PGA tour, severely injured due to AZ 💉 vaccineNicole #KeepMasksInHe.. @chronicoley_me
154 Followers 1K Following PhD in biomedical physics. Disabled, chronically ill: endometriosis, severe ME/CFS, probably more. Mixed race, acespec, avid knitter, former dancer.Workwell Foundation @4Workwell
3K Followers 2K Following #Nonprofit #research laboratory providing #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses.Debster, Resister @debstehn
3K Followers 3K Following Let’s just take care of each other, no religion, no borders, just love, art and science. More radical the older I get!#Resist And I’m OLD! Her/SheTim @TimofejM77894
134 Followers 239 Following Severe myalgic encephalomyelitis triggered by mild COVIDWereOnOurOwn @letsblamerussia
3K Followers 2K Following https://t.co/ZfeStDneja #BoycottIsrael #CeaseFireNow #AaronBushnellHeroᵉⁿᵗᵉʳᵒᵛ�.. @AtypicalPolioME
726 Followers 1K Following RHOMBENCEPHALITIS+LIMBIC ENCEPHALITIS | EPIDEMIC MYALGIC ENCEPHALOMYELITIS (Enteroviral Encephalomyelitis) (Ramsay M.E.™) | NEUROMUSCULAR DISEASE | DYSAUTONOMIANick #AirborneCovidEx.. @NickAnderegg
2K Followers 867 Following DevRel, Coder, Writer, Raconteur. Masked #LongCovid ally/loudmouth. 🇺🇸in🇨🇦, he, cis, bi/queer. Tweets: public health, cognition, linguistics, ADHD, techRehabilitation Scienc.. @UofTCOVIDRehab
2K Followers 287 Following Leading an international collaborative with the aim to enable innovation and excellence in COVID-19 rehabilitation research. #COVIDRehabMillionsMissingNL @MMissingHolland
2K Followers 1K Following #Actiegroep #MillionsMissing Holland wil betere #zorg & sociale #gelijkheid voor #ME-#patienten.With host @hayliepomroy, MEAct’s @exceedhergrasp1 discusses how infections can lead to long-term health problems. Watch the full podcast: brnw.ch/21wJlFp #infectionawareness
I am extremely honored to be part of this patient-led initiative for a worldwide congress on Long COVID, #UniteToFight2024/@U2Fight_World. Registration is free. My presentation on post-exertional malaise will be aimed at patients, clinicians, and scientists. @VU_FGB @VUamsterdam
Speaker recap 📣 Here is Dr. Rob Wüst ! @RobWust At #UniteToFight2024, Rob will speak about the skeletal muscle function and post-exertional malaise (#PEM) in patients with #LongCovid. That sounds pretty interesting !
Finally... our paper on #LongCovid is out! It's based on my tweet here. Thanks to my amazing coauthor @MVGutierrezMD and the amazing @zalaly for your input and encouragement! #MedTwitter #Neurotwitter @Jacobs_Med_UB @AANmember journals.lww.com/ajpmr/citation…
@DaniBeckman When you start to recognize your own vulnerability and awareness of your mortality it can crack your brain.
@foardeetou @Leah_Starz Ruin my agenda? I keep posting it here all the time.
The persistence of #SARSCoV2 in tissues and its association with #longCOVID symptoms: a cross-sectional cohort study in China thelancet.com/journals/lanin…
@Dr2NisreenAlwan An enterprising interviewer should ask him if he's ever had a headache and then ask him to prove it.
This talk about ‘objective’ vs ‘unverifiable’ in reference to the experience of illness in general & mental health in particular hurts my brain. Let’s say it again: symptoms BY DEFINITION are self-reported. How can we make symptoms ‘verifiable’? By believing the patient!
'I want to move towards something that is more rigorous, more objective and potentially has more medical evidence when people are making those claims' @RishiSunak wouldn't be drawn on whether those suffering with anxiety will lose PIP payments | @Peston itv.com/news/2024-04-2…
📣 💐📚Happy book day to me! DISABILITY INTIMACY has been a labor of love that I worked on for the last 2 years. I hope you enjoy it. bookshop.org/p/books/disabi…
Health Rising: “Energy Drain: Could an African Virus Tell Us Much about ME/CFS, Long COVID and other Postviral Illnesses?” ‘The big question is what happens during the infection to whack the energy-producing elements of the cell leaving it exhausted..’ healthrising.org/blog/2024/04/3…
Good read on the longterm findings of a tick-borne, often fatal virus, where metabolic rewiring caused long term fatigue. “The ability to generate energy was crucial: patients whose cells had to turn to alternative energy sources to fight the virus were sicker.” #longcovid
Health Rising: “Energy Drain: Could an African Virus Tell Us Much about ME/CFS, Long COVID and other Postviral Illnesses?” ‘The big question is what happens during the infection to whack the energy-producing elements of the cell leaving it exhausted..’ healthrising.org/blog/2024/04/3…
Ten years ago. My fourth @bostonmarathon. Never though they would end. youtu.be/HcXPnd34wws?si…
Listening to @MVGutierrezMD speak about #LongCovid in event associated with @patientled. Every time I hear Dr. Verduzco-Gutierrez talk on LC (and it's been many times now), I learn something new. She is an amazing champion for pwLC and a wealth of knowledge. We need more of her!
The NHS has removed the Your COVID Recovery website! Is that because millions of us haven't recovered?!!! yourcovidrecovery.nhs.uk
I'm reading up on accounts of severe depression, but I can't find any that map to: "If I take a shower while standing, I'll be fine for the rest of day, but then suffer burning headaches, severe insomnia, nausea, and heightened exhaustion + cognitive dysfunction" for one month."
Wow ! Up to 17 CME points for #UniteToFight2024
🚨 Great news—CME accreditation! Up to 17 CME Points! 😲 We are pleased to announce that #UniteToFight2024 conference has received CME accreditation in Germany, worth up to 17 points (CME points per Session blocks more details very soon). This accreditation is valid for…
Yes, @ChrisCuomo 👍 Let’s have a conversation about why we are hosting the largest conference on #LongCovid ever next month, titled #UniteToFight2024, featuring leading 🇺🇸 scientists.
Let's have the conversation!
I used to work 10 hour days including the commute. Sometimes I’d even hit the gym afterwards. Now I wake up feeling like I need to be in hospice care, but there’s never anywhere to go. #MECFS is truly a death in life.😢
Didnt think low energy could get any lower but third rd of chemo has really tapped my energy. Slept til ten and gone back to bed. Tired. #LongCovid and #cancer. Gonna watch a movie.
New 12-minute video: "I believe microglia are the primary culprit behind #fibromyalgia, #MECFS, #GulfWarIllness, #LongCOVID, and other #chronicpain & fatigue disorders. Here is a quick video on what I am trying to do to fix the problem. - Jarred Younger" youtube.com/watch?v=XggO__…