crr @crr7310
Joined May 2023-
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Oh dear God, @Voa1234 I love Victor Adebowale. He mentioned #LongCovid on @bbcquestiontime. No one mentions our disability on television. If you're out there Victor, thank you. This means so much! Long Covid has taken over four years of my life, and there's no plan!
Oh dear God, @Voa1234 I love Victor Adebowale. He mentioned #LongCovid on @bbcquestiontime. No one mentions our disability on television. If you're out there Victor, thank you. This means so much! Long Covid has taken over four years of my life, and there's no plan!
Meerkats have more protection from disease than children. Literally. WTF are we doing?! 🤯 #CovidisAirborne #LongCovid #LongCovidKids #Schools #NHS
Meerkats have more protection from disease than children. Literally. WTF are we doing?! 🤯 #CovidisAirborne #LongCovid #LongCovidKids #Schools #NHS
Tens of thousands of chilren and hundreds of thousands of working age people are chronically ill after contracting #Covid. Instead of scapegoating them for having become ill, shouldn't the #PrimeMinister, his government & @UKHSA be doing everything to cut #CovidIsAirborne spread?
Tens of thousands of chilren and hundreds of thousands of working age people are chronically ill after contracting #Covid. Instead of scapegoating them for having become ill, shouldn't the #PrimeMinister, his government & @UKHSA be doing everything to cut #CovidIsAirborne spread?
🔥Wow! This is a super interesting new study just published. This research demonstrates that CO₂ isn’t just a proxy for how well ventilated a room is… …the CO₂ level also directly influences how LONG the virus remains infectious in the air!
🔥Wow! This is a super interesting new study just published. This research demonstrates that CO₂ isn’t just a proxy for how well ventilated a room is… …the CO₂ level also directly influences how LONG the virus remains infectious in the air!
Following new @ONS data showing that Long Covid is still at high prevalence With @LongCovidSOS and @covidactionuk we call for urgent investment into NHS services and treatment, research, and workplace support for Long Covid longcovid.org/impact/press-r… #WhyIsTheUKsoSick
“2 Million have got long Covid, it’s a recognised illness” Well said Victor Adebowale @Voa1234 When are we going to get honesty from our politicians? It’s a public health emergency. Covid hasn’t gone anywhere, long Covid is increasing. We need action!
Here is our joint press release with @long_covid & @covidactionuk sent out after the most recent @ONS data (for England &Scotland not Wales) “Our government consistently fails to consider Long Covid when discussing the long-term health of the country” longcovidsos.org/post/why-is-th…
Thank you for the many positive tweets I’ve seen about @BBCQT its good to debate with colleagues the issue of the day. We need empathy in our public discourse thank you @NHSConfed team and members
Brilliant answer
“The language that we use… even in the question ‘Do we have a sick note culture?’ It’s cruel” Chair of the NHS Confederation Victor Adebowale says the use of “performative” language needs to stop, and the government should show more "compassion" #bbcqt bbc.in/4b8DVY2
NHS Confederation Chair @Voa1234 on Question Time: Q.Does Britain have a sick note culture? A. No… It’s cruel…2m people have #LongCovid, a recognised illness as a result of #Covid…very rarely met someone who doesn’t want to work… We need to stop using performative language.”
NHS Confederation Chair @Voa1234 on Question Time: Q.Does Britain have a sick note culture? A. No… It’s cruel…2m people have #LongCovid, a recognised illness as a result of #Covid…very rarely met someone who doesn’t want to work… We need to stop using performative language.”
The population is being primed to accept illness in an ongoing pandemic, driven by a SARS virus
The population is being primed to accept illness in an ongoing pandemic, driven by a SARS virus
Slogans seem to be big in #LongCovid Land. My choice would be: #StopReinfectingUs Have seen clinical progress in LC derailed by reinfections many times. Reinfection prevention as part of the “Treatment Plan” is key. Please🛑reinfecting #LongCovid patients in your clinics. 🙏🏻
Work cannot repair our bodies from the damage caused by Long Covid. People with #LongCovid realise that workplaces cause harm to peoples' health eg. no policies on #CleanAir , mitigations for contracting #Covid19 & reinfections. Why is health and safety of workers being ignored?
Work cannot repair our bodies from the damage caused by Long Covid. People with #LongCovid realise that workplaces cause harm to peoples' health eg. no policies on #CleanAir , mitigations for contracting #Covid19 & reinfections. Why is health and safety of workers being ignored?
1/UK #LongCovid community 3 questions for you in thread... We are doing our best to put together our response via @long_covid for the @CommonsWorkPen on Disability Employment. 1. List enablers that have supported you to undertake paid work committees.parliament.uk/work/8271/disa…
UK #LongCovid community - please can we ask that you assist @WorkingWithLC as per the thread below. It would be very much appreciated.
UK #LongCovid community - please can we ask that you assist @WorkingWithLC as per the thread below. It would be very much appreciated.
“The bulk of long Covid research carried out over the past four years has attempted to understand the health issue, not cure it.” Time for change! Let’s get some therapeutic trials going asap 4 years is too long and our lives are ticking away #LongCovid technologynetworks.com/immunology/art…
New real time suicide data have been released by @OHID & show a sharp jump in January 2024. Coming soon after ONS reported higher rates in 2023, this is a concern. On the other hand, it is a single month figure in a developing dataset. How worried should we be? Short 🧵 & TW
TW suicide 👇 vital now for #SuicidePrevention @ProfLAppleby states need: “ to explore actions to protect people who are economically vulnerable” Are you listening #DWP @RishiSunak @MelJStride @theRCOT are you in discussions ? @Dis_PPL_Protest @johnpringdns @CommonsWorkPen
TW suicide 👇 vital now for #SuicidePrevention @ProfLAppleby states need: “ to explore actions to protect people who are economically vulnerable” Are you listening #DWP @RishiSunak @MelJStride @theRCOT are you in discussions ? @Dis_PPL_Protest @johnpringdns @CommonsWorkPen
Wise up employers 👇 Example of return to work on worker’s terms for increasing changes of sustainability I.e listen to and support what an individual worker needs to RTW and SAW #WorkingWithLongCovid @crr7310 @UKVRA @somceo @WorkingWithLC
Wise up employers 👇 Example of return to work on worker’s terms for increasing changes of sustainability I.e listen to and support what an individual worker needs to RTW and SAW #WorkingWithLongCovid @crr7310 @UKVRA @somceo @WorkingWithLC
Podoosm @podoosm84087
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BritAngie1 @BritAngie1
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3K Followers 5K Following Dual Qualified Family Law Paralegal (England& Wales, and Scotland). #longcovid #pwME 👨🦼 Adult human female. All views my own.
Dr Calum Carson @Dr_Calum_Carson
3K Followers 5K Following Senior Research Associate @LancsDHR @Hybrid_Working. Research interests include Decent Work/Future of Work/CSR. Photographer. Forever looking for a dog to pet.
EcoYehudi @Yehudi_hoo
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Victor Adebowale @Voa1234
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Danilo.Buonsenso_Surf.. @surf4children
3K Followers 662 Following Pediatrician/pedsID working on #longcovidkids, #TB, #congenitalinfections☀️funder of surf4children no profit
Sara Anne Willette �.. @amethystarlight
18K Followers 5K Following I have Common Variable Immune Deficiency. @IAGovernor called me “you people” on live TV. I make graphs & ask people to wear a respirator. Hubs: @AurielWillette
Helena Vesty @HelenaVesty
3K Followers 1K Following Health & soc care correspondent @MENnewsdesk 🐝 Chat @bbc5live @TimesRadio @TheNewsAgents 🌌 Young Journo of Year @regpressawards nominee 🖋️ DMs/email me 💌
Medical Journalists' .. @mjauk
4K Followers 2K Following We have more than 450 members in health & medical journalism in UK media. See https://t.co/XPjwb5XGFB for the benefits of joining or partnerships
James Titcombe @JamesTitcombe
23K Followers 9K Following Author of Joshua’s Story. #lovethelakes Views here personal
Simon @SimonWain
206 Followers 727 Following Navigating life's twists and turns like a pro. Dad to a 9-year-old sidekick.
Nick Buckley 4 Mayor @NickBuckleyMBE
27K Followers 813 Following Independent Candidate for Mayor of Greater Manchester in 2024. It's Time For Real Change By A Local Lad. https://t.co/1mkrekKW18
Deb Hazeldine MBE �.. @DebHazeldine
6K Followers 6K Following Former member Stafford Cure The NHS. Giving Mum a voice. Passionate about #PatientSafety after losing my Mum in the #MidStaffs Disaster. My views
Coloursofthewind @Coloursofthewi6
465 Followers 804 Following hi, I'm Ruth, New Zealander in the UK, dog lover, vaccine injured with Immune thrombocytopenia, Whistleblower in NHS
Lawrence Dunhill @LawrenceDunhill
10K Followers 3K Following Health Service Journal, Bureau chief - with special interest in the North West region. Specialist journalist of the year - British Journalism Awards 2020
Dr Anjali Agarwal @Dranjaliphysio2
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Notes to my boy ✉�.. @notestomyboy
4K Followers 2K Following Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️
Tea And Oranges 💙 @lucacoleman999
2K Followers 5K Following My principles are visible in my tweets. Interests: politics, health, education, SEND, equalities, Covid, psychology, nature, football #FBPE #FBLC
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64K Followers 290 Following AI-driven Tomorrow 🚀 | Growth Marketer - I help companies leverage AI tools, optimize their marketing & drive revenue growth | DM for collabs | *180k+ LinkedIn
Stefan Marciniak @Prof_Marciniak
9K Followers 2K Following Professor of Respiratory Science @Cambridge_Uni. Lung doctor @CUH_NHS & @RoyalPapworth. Fellow @Catz_Cambridge. For science & medicine see @MarciniakLab
Neuro Sjo @neuropsychSjo
490 Followers 1K Following Research : ~ up to 55% of CIDP, POTS, SFN, MG, MECFS, NMO, long COVID & other neuro pts have Sjogrens Most clinicians : Sjogrens is just dry eye & dry mouth!
Rob Behrens @RobBehrens1884
3K Followers 1K Following Chair of Governors ARU Peterborough, MCFC (since 1952), Former UK national Ombudsman (PHSO), Former IOI European Vice-President etc.
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5K Followers 3K Following Award-winning journalist ✍ @HSJnews correspondent: patient safety & west mids • #30ToWatch 2023 winner 📨 Tips/info to [email protected] or DM • My views
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Fe. @NoHealthNoFun
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2K Followers 2K Following Choose wisely. Love freely. Travel... safely. Living with Weltschmerz. Holding on and holding out. Maybe Kepler-452 b is having a better time than us. 📞🔴⚪😷
Thread on my routine for personal risk assessment for airborne infections. A surprise at the end, that provides a compelling additional reason to monitor CO2. 1/
Meerkats have more protection from disease than children. Literally. WTF are we doing?! 🤯 #CovidisAirborne #LongCovid #LongCovidKids #Schools #NHS
Zookeeper: “meerkats can catch viruses like cvd & the flu so can everyone pls put on mask to protect them?” Safest, cutest, most fun outing in Melb - outdoors, everyone masked (keeper in P2 earloop) & meerkats 😍 plus lunch outdoors afterwards with my 2 younger daughters 🥰
I understand adults have chosen to play Russian roulette with SARS2 infections and their health. I’m not coming to terms with this being forced on children. We should be protecting children, then at 18+ they can decide if avoidable disability and an early death is also for them.
Worryingly, the data suggests that the number of children with Long Covid is steadily increasing with each passing month… …from 84k in December 2023 to over 111k in March 2024! It’s risen by A THIRD in just 3 months.
Here is our joint press release with @long_covid & @covidactionuk sent out after the most recent @ONS data (for England &Scotland not Wales) “Our government consistently fails to consider Long Covid when discussing the long-term health of the country” longcovidsos.org/post/why-is-th…
Thank you for the many positive tweets I’ve seen about @BBCQT its good to debate with colleagues the issue of the day. We need empathy in our public discourse thank you @NHSConfed team and members
NHS Confederation Chair @Voa1234 on Question Time: Q.Does Britain have a sick note culture? A. No… It’s cruel…2m people have #LongCovid, a recognised illness as a result of #Covid…very rarely met someone who doesn’t want to work… We need to stop using performative language.”
“The language that we use… even in the question ‘Do we have a sick note culture?’ It’s cruel” Chair of the NHS Confederation Victor Adebowale says the use of “performative” language needs to stop, and the government should show more "compassion" #bbcqt bbc.in/4b8DVY2
Students taking GCSEs have not had a lockdown in the 2 years that they have been studying for their GCSEs. Yet lockdowns get blamed. I suspect the virus PROVEN TO LOWER IQ is entirely more likely to be involved. The lack of logic is astounding. #CovidIsNotOver
When you see the clear signs of immunity depletion...
1) COVID-19 associated pulmonary aspergillosis is associated with lymphopenia, T-cell exhaustion, and NK cell impairment thelancet.com/journals/lanmi…
Been reading that @WHO document again and here is a summary of the arguments over time. Its not airborne except for AGPs so you don't need RPE. Now: it is airborne (outwith AGPs) but you are still not getting RPE. who.int/publications/m…
“Stop fear mongering!” “We must not panic!” “We can’t live in fear!” Many have forgotten that there’s something in between “panicking”and “doing nothing”. We need effective public health measures - that’s not unreasonable. #Covid19 #H5N1 #BirdFlu #COVIDisAirborne #CleanAir
The population is being primed to accept illness in an ongoing pandemic, driven by a SARS virus
A record 3.7 million workers in England will have a major illness by 2040, according to research. theguardian.com/society/2024/a…
Slogans seem to be big in #LongCovid Land. My choice would be: #StopReinfectingUs Have seen clinical progress in LC derailed by reinfections many times. Reinfection prevention as part of the “Treatment Plan” is key. Please🛑reinfecting #LongCovid patients in your clinics. 🙏🏻
@JCeoltaSmith There is nothing "compassionate" about calling disability a "lifestyle choice" or calling uncontrolled spread of Covid in workplaces "sick note culture". There is no "social justice" in blaming ill workers for being ill. But what CSJ's is pushing has a name: performative cruelty.
WHOOPING COUGH Data for February has now been released & it’s not good. The total number of confirmed cases in England has risen sharply from 555 at the end of January to 1,468 as of the end of February. At the same time last year, there had been just 18 confirmed cases!
We can only hope 🙏🏼
I predict that well before the 2030s we will be taking the spread of Covid in schools seriously. The UK will have rejoined the EU. I think that by the 2030s we will have stopped blaming "school closures". I'm trying out the JedX FFP3 5141 here. You can teach in this mask.
It’s been nearly 3 years since the lockdown closures. How long is the government going to ignore brain damage from infections and #Longcovid impacting exam results? Will they still be blaming lockdown in 5 years? Children are the least vaccinated and the most exposed.
I have been having some correspondence with the government because I have #LongCovid. My MP Mel Stride passed me on a letter from Mims Davies, Minister for Disabled People, Health and Work. Nowhere in the letter does it mention what to do if you cannot work! 1/
This is one of the many reasons that otherwise well-informed people (including healthcare providers) dropped their guards. And it remains one of the primary reasons people think Covid is behind us. Because they can’t see it. They don’t see half the people carrying virus who show…
My GP is always even tempered, but she became angry when she said that there is no such thing as asymptomatic transmission of #SARSCoV2
Pupils in England ‘facing worst exam results in decades’ after Covid closures. Guess what ? No mention of Covid or Covid brain damage. theguardian.com/education/2024…
I'm so sick of everything being in multiple layers of plastic. I particularly hate plastic netting for fruit. We never asked for this.
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