JellyBabyKid @JBKid7
Reader. Writer. Endless tea drinker. Whovian till I die. Trekkie. Activist. PwME. PTSD. Rock fan. OU grad (She/they) Attic of Books Joined June 2012-
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“Shut the fuck up” in circular gallifreyan
@KathyCollett7 @angryhacademic Yep! That’s the aim of this years #MillionsMissing is to raise awareness of how poorly taught it is and push for medical education. They’re holding training events at medical schools and campaigns to get MD’s to learn about it 🤞🏻
Short of time? Consult the concise review for clinicians on M.E. published by Grach et al in 2023 in Mayo Clinic Proceedings (providing continued medical education credits) #TeachMETreatME Make sure you’re able to help the #MillionsMissing ⬇️ mayoclinicproceedings.org/article/S0025-…
At least 50% of people with long COVID meet the criteria for ME, The need for #medicalschool education on ME is now more urgent than ever. Got 1 hour? Take this free CPD accredited 1-hour module on ME developed with experts ⬇️ #TeachMETreatME studyprn.com/p/chronic-fati…
ME has no licensed treatments but there are things that you can do to improve patient care today. Please read the CME articles outlines in this BMJ rapid response or take the 1hr CPD training course to start. #TeachMETreatME #MillionsMissing #Medical bmj.com/content/383/bm…
Thank you for speaking about this condition. Right now there are young women who are suffering horrendously with very severe M.E., it’s 18 years since I was first admitted with it and it’s awful that the treatment has not changed in this time. #SaveCarlasLife #BringMillieHome
Thank you for speaking about this condition. Right now there are young women who are suffering horrendously with very severe M.E., it’s 18 years since I was first admitted with it and it’s awful that the treatment has not changed in this time. #SaveCarlasLife #BringMillieHome
Summary of Westminster Debate on M.E #pwme Takeaways: less than 28% of NHS trusts are following new guidelines. Not 250k patients, 1.3M patients with M.E. more than MS & Parkinsons. We need a way to enforce Guidelines & hold accountability. meresearch.org.uk/westminster-ha…
@healingfromlc It is so irritating, especially when you see so many smart & athletic people suffering from it. Why would we give up everything we love to instead blow money on doctors and tests while getting gaslit by them, friends, and family? Makes no sense. 😡
@healingfromlc It never stops happening, friends, family, how often does this happen to someone with HIV. Like, wtf 🤬
I hate when people try to partially psychologize #LongCovid. It is actually 0% psychosomatic. Not even a little bit. If I hadn’t caught COVID, I would still be healthy.
@SpiderWalshie The self-advocating patient might just be the most powerful force in healthcare
@AngelaMSWinCA @AngelaMSWinCA stresses that patients have been living with infection-associated chronic conditions for generations and are doing their own research. "We are experts from a lived experience and because some of us are doing the research ourselves."
When does electioneering become a threat to public health? Depression and anxiety make an easy target for Stride because he is playing off existing prejudices that sufferers face. It is damaging. My piece for @guardianopinion on #PiP and mental health. tinyurl.com/754s93ht
Soon I am taking a period of #AdvocacyRestpite from calling out #DWPHarmsHealth We urgently need professional bodies ie for healthcare professionals & individuals in practice & research to fight our corner & call out these harms, to look beyond their privileged positions.
@RishiSunak @PreetKGillMP @wesstreeting Given the economic costs of Long Covid to the UK and huge predicted impact to the UK workforce, can we please have some allocated funding for LC drug therapy trials here in UK please? We have a whole list of repurposed meds to trial. Thx
@RishiSunak @PreetKGillMP @wesstreeting Given the economic costs of Long Covid to the UK and huge predicted impact to the UK workforce, can we please have some allocated funding for LC drug therapy trials here in UK please? We have a whole list of repurposed meds to trial. Thx
CW: Suicidal @RishiSunak @MelJStride @mimsdavies @VictoriaAtkins @ProfLAppleby It's vital for people to have accessible help lines BUT government policies #DWP = some people cannot afford to top up their electric to charge 📱device, replace it if it breaks. #SuicidalPrevention
CW: Suicidal @RishiSunak @MelJStride @mimsdavies @VictoriaAtkins @ProfLAppleby It's vital for people to have accessible help lines BUT government policies #DWP = some people cannot afford to top up their electric to charge 📱device, replace it if it breaks. #SuicidalPrevention
@1goodtern I’m seeing lots of young people with high cholesterol with no usual risk factors after Covid. Early twenties etc when would rarely have seen that before. Lots of fatty liver too. On most abdominal ultrasounds I’ve seen in past few years. Probably developing metabolic syndrome.
#PIP is there “because disability demonstrably increases living costs…It has nothing to do with sicknotes or unemployment benefits, but the Tories…(are)…discussing all 3 together…a tactic that plays to base fears of undeserving “skivers” draining us of essential resources”
#PIP is there “because disability demonstrably increases living costs…It has nothing to do with sicknotes or unemployment benefits, but the Tories…(are)…discussing all 3 together…a tactic that plays to base fears of undeserving “skivers” draining us of essential resources”
Scientists have found what they call 'the master regulator' of the immune system in the human brain. If it holds up it's a stunning discovery that could transform treatments for autoimmune disease and post-viral illnesses. What did they find, and how?🧵
A question for the Long Covid community - has anyone been having sudden new problems with high cholesterol?
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
ME Association @MEAssociation
20K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RTs do not necessarily mean endorsement.
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
Phoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.
It's M.E. Linda 💙 .. @HappyHoundHouse
2K Followers 3K Following 2001 PVFS 'Recovered' to 90% by 2006. Sepsis 2013 resulted in M.E. Brain/fitness 'not what it used be'. Beloved Lisnakill Myles-Happy Hound himself🌈 💔
Physios For ME @PhysiosForME
7K Followers 603 Following A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Catherine Hale @octoberpoppy
3K Followers 3K Following Disability research, coproduction and inclusion consultant. Founder, Chronic Illness Inclusion. Thought leader on energy limiting conditions. ME/CFS since 1988.
Ruth Lampard @ruth_lampard
3K Followers 3K Following Looking out for blessings & wrestling them. Chaplain with AfME Healthcare: views my own. Living w ME & LongCovid. Virtual Pilgrim. Love city wildlife
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Jo Hunt (activism, al.. @HealthHubris
1K Followers 1K Following Disabled psy therapist, researcher & activist. #MECFS #Chiari #CCI #EDS #longCovid. she/her. Animal lover. Here for intersectional social justice
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
#MEAction Network @MEActNet
21K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Dr Jenny Ceolta-Smith.. @JCeoltaSmith
3K Followers 3K Following Not always X active & #NotWorkingWithLongCovid #OT PhD activist & advocate on health, well-being, welfare and work #LongCovid #FBLC #DWP +at:@WorkingWithLC
Sir, Dame, EleanorF #.. @EleanorSews
2K Followers 4K Following Retired lecturer/therapist.(Klein, Winnicott,Orbach) culture, thoughtfulness, piano-player, linguist, textiles, activism @eleanorsews.bsky.social
tern @1goodtern
70K Followers 9K Following It's better to be cautious and kind than foolhardy and mean.
NickyProctor @NickyProctor
1K Followers 4K Following Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
🇺🇦 Just_Natting.. @Natalie_Ross22
2K Followers 4K Following Loath the Tory gov! ME/CFS. #FBPE #FBPR Born 325ppm. "I feel maybe it’s wrong that we aren’t talking enough about the goat." Ron Filipkowski
Cambridge ME group @CBMEgroup
1K Followers 2K Following CBME is a support group based in #Cambridge UK for people with #MECFS, #MyalgicE , #CFS, #PostViralFatigue, #Fibromyalgia, including #pwME caused by #LongCovid
Proinsias Ó Martain @FMM0179
91 Followers 265 Following
Louise Fairbrother @Loufairb
370 Followers 1K Following A proud resident of Suffolk, its diverse voluntary sector & a first wave long covid warrior!
Suzan Jackson @livewithmecfs
4K Followers 4K Following Writer with ME/CFS & Lyme & son w/#MECFS & #Lyme; love to travel, read & spend time outdoors w/family & friends; write 2 blogs & author of chronic illness book.
Krystal Gault @Kitschmonkey
3K Followers 3K Following Former Film & Video Director/Producer, Dir. Cinematopia Film Events. One of the #MillionsMissing Artist & dreamer ME/CFS | Medical Science | Politics | Art
Christine Sweeney @Christi94047906
47 Followers 157 Following
Sue Worrall @susiewo80
161 Followers 267 Following Owner of a body broken by ME. Campaigning for change. Love cakes I shouldn't eat! Longs to garden and to walk a coast path again https://t.co/OAKP8jeiWW
WorkingAndNotWorkingW.. @WorkingWithLC
332 Followers 518 Following All about #LongCovid paid work/not being in paid work #Benefits including energy limiting conditions: Dr Clare Rayner, Dr Jenny Ceolta-Smith and Pen Scribbler
Key Workers Petition .. @KeyWorkerPetUK
673 Followers 630 Following We are a new advocacy and campaign group for Key Workers with Long Covid. You can email us at [email protected]
Bessie @bessie41hedges
160 Followers 3K Following
Emma Portch @e_portch
457 Followers 919 Following Senior Lecturer @Bournemouthuni.Cognitive and forensic face recognition research. #pwME (mild/moderate) #MECFS #chronicallyill
Kirstie Sivapalan @KirstieSivaP
3K Followers 2K Following Making a noise about the injustices & lack of support for #pwME #LongCovid 💙 @[email protected] 🐘 @KirstieSivap 🐳 @kirstiesivapalan 🧵
Faithless @FaithOxenbridge
2K Followers 3K Following Tired of defending my reality. Vax induced ME (still pro Vax) Bedbound. Not tired; sick. Used to write & teach. Here for the research and outrage.
the meme oagre @oagrrl
2K Followers 4K Following Man of slender memes. Not prolific but pithy. Wants to massacre the bourgeoisie, sack Park Lane and disembowel the hereditary aristocracy.
Nick Wellings @Nick_Wellings
3K Followers 5K Following used to love opera + ballet, some books. now disabled by ME
Linster II @TheLinster926
94 Followers 387 Following thelinster at threads. com Twitter blocked @thelinster. I've only had that account since 2007 🙄. This is the sequel: Linster II: After the Hack.
Patrick Gallagher @patrickG731
2K Followers 3K Following Post-Doc Researcher SETU. HECAT 2020. Political Economy of Finance, Financialisation, Soc of Development, IPE, CPE, Labour Markets. #LongCovid
Cal @tweetercal
2K Followers 5K Following Flickin' the bird to my Post Epstein-Barr ME, RA, HD, 5 Stent,Post Lymes & Fibro. Professional Flaneur of 30yrs. Symptoms of 40yrs won #Retired #TwitchAffiliate
Lesley Kelly, Health .. @lkauthor
5K Followers 5K Following Author of 'The Health of Strangers' #Edinburgh crime series set against the background of a #pandemic. Longlisted McIlvanney Award 2016. Pub by @sandstonepress
gwennypenpen 😺📚.. @FenellaFollicle
2K Followers 5K Following Sensitive Biscuit; she/her, they/them; CR 📚 - Rainbow Milk by Paul Mendez; Cat Person; Tserial Tsundokist;
Elana Keppel Levy @RevSoMuchBible
1K Followers 3K Following Presbyterian pastor, biblical languages nerd, chronic pain haver, delighting in geeky things. Use any pronouns for me. I will use only the ones you want for you
Luminous Tribe @luminoustribe
354 Followers 1K Following
Jo Hunt (also bloggin.. @JoElizaHunt
316 Followers 294 Following Disabled researcher, she/her. Therapist interrupted. Interests: crit psych, disability & gender studies, ethics, animal welfare. #disability #politics #therapy
Benjamin Langley @B_J_Langley
3K Followers 4K Following A writer of quiet horror with a creeping dread. (he/him) Guy Fawkes: Demon Hunter - an alternative history supernatural demonic extravaganza available now!
Suzie Bird @musicsuzie
186 Followers 744 Following ME/CFS warrior: Proud mama; musicals geek; quirky bird; living life the best I can
ME Awareness Australi.. @MEAllianceAu
913 Followers 3K Following Why didn’t MECFS Vic/Emerge update 2002 Australian CFS guidelines recommending GET & CBT when they agreed to in 2014?
Karen Boyett @krboyett
492 Followers 1K Following Former Anthropology Professor and Non-profit Professional struggling to live due to 17+ years of #MyalgicEncephalomyelitis #MEcfs #pwME #severeME #LongME
Fewtrella @Fewtrella1
2K Followers 5K Following views my own #LongCovid #POTS #Dysautonomia #Cogcom @GivingVoiceUK winner Advocating for Cognitive Communication Disorder Post Covid
Natalie Trosh 🧠 @natalie_trosh
1K Followers 5K Following Women in #Data | Currently managing #LongCovid | Big on #HealthcareImprovement | Experience of Neurology & Psychiatry | #DisabledbyCovid #FBLC | My views.
WarpFactorTrek.com @WarpFactorTrek
2K Followers 2K Following Articles about #AllThingsStarTrek, some from the episode creators themselves. Exclusive art, news, reviews and interviews to boldly dive in deep. ENGAGE!
Ethan Smidt @EthanSmidt32
1K Followers 1K Following Agronomic Consultant and CCA in SE IA. Just trying to live my best life (when possible) Long haul covid sucks...
Waylay #NoLongerLabou.. @bluesunquake
2K Followers 5K Following Benefits scrounger: Chronic pain, MH. Socialist, 🐰🐇 feminist, anti-austerity, bi, poly, goth. Obsessed w/ cats, earthquakes, epidemics, real ale, maple syrup
jon adams FRSA @soundcube
11K Followers 11K Following AuDHDy - trained palaeontologist - Autistic MH & trauma Researcher with lived experiences - Artist
Caroline Collier @CarolineJC5
314 Followers 638 Following CEO @InclusionBarnet Interests: disability, social justice, charities, current affairs and occasional attempts at humour. RT not endorsements, views own.
Jo D 💙 @JoD66
2K Followers 4K Following Trustee of @long_covid, Walk Wandsworth Walk Leader (on hold due to LC), Mason Bee Guardian, Vintage VDub van fan and owner, #FBLC #LongCovid #TreatLongCovid
Sez200🎃 @Sez2003
284 Followers 2K Following
Jack Monroe @BootstrapCook
533K Followers 14K Following Anti-poverty campaigner, budget cookery author, bylines everywhere, occasionally on your tellybox, sober #ODAAT. #YNWA.
Harriet Carroll: Long.. @angryhacademic
8K Followers 4K Following #LongCovid Scientific Consultant Hon Research Fellow, Lund Uni PhD Nutrition & Metabolism Tweets: nutrition▪health▪all-things-science▪activism▪#TeamClots
ME Association @MEAssociation
20K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RTs do not necessarily mean endorsement.
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
Visible @visible_health
5K Followers 134 Following The activity tracking platform for illness, not fitness. #MECFS #LongCovid #invisibleillness
George Monbiot @GeorgeMonbiot
583K Followers 3K Following The corpse at every wedding, the bride at every funeral.
Sten Helmfrid 🇺�.. @StenHelmfrid
7K Followers 207 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Phoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.
It's M.E. Linda 💙 .. @HappyHoundHouse
2K Followers 3K Following 2001 PVFS 'Recovered' to 90% by 2006. Sepsis 2013 resulted in M.E. Brain/fitness 'not what it used be'. Beloved Lisnakill Myles-Happy Hound himself🌈 💔
KatyManning Official .. @ManningOfficial
48K Followers 1K Following Katy Manning Official Twitter Instagram website https://t.co/JKd0p7oXDb all inquiries go to Sharry [email protected] @Kensington_Gore #nurturenature
Physios For ME @PhysiosForME
7K Followers 603 Following A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Action for M.E. @actionforme
14K Followers 2K Following We take action to end the ignorance, injustice & neglect faced by the 250,000 #pwME in the UK. Online: Mon-Fri 10-4. Helpline: 0117 927 9551 Mon-Fri 10.30-3pm
Catherine Hale @octoberpoppy
3K Followers 3K Following Disability research, coproduction and inclusion consultant. Founder, Chronic Illness Inclusion. Thought leader on energy limiting conditions. ME/CFS since 1988.
Ruth Lampard @ruth_lampard
3K Followers 3K Following Looking out for blessings & wrestling them. Chaplain with AfME Healthcare: views my own. Living w ME & LongCovid. Virtual Pilgrim. Love city wildlife
Sylvester McCoy @4SylvesterMcCoy
76K Followers 128 Following Sylvester’s page is run by his manager @execcer but also with personal input & photos from him. NB: Personal replies not possible. Manager: https://t.co/wkUod9mXqX
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Jo Hunt (activism, al.. @HealthHubris
1K Followers 1K Following Disabled psy therapist, researcher & activist. #MECFS #Chiari #CCI #EDS #longCovid. she/her. Animal lover. Here for intersectional social justice
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
#MEAction Network @MEActNet
21K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Frances Ryan @DrFrancesRyan
54K Followers 696 Following Guardian columnist and journalist. Author of Who Wants Normal? (2025) and Crippled (out now) E: [email protected]
Dr Jay Watts @Shrink_at_Large
38K Followers 9K Following Consultant clinical psychologist/ activist/ neuroqueer bluestocking. Former Lived Experience Worker. Future failed poet. Will question ideology for cake ❤️ 🥄🎭
NickyProctor @NickyProctor
1K Followers 4K Following Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Rachel Charlton-Daile.. @RachelCDailey
22K Followers 3K Following Who’s afraid of little old me? You should be. Author, columnist, activist, chaosist. #TheWeekInAbleistBullshit @thecanaryuk Book rep: @portyliterary. She/they.
Carolyn Leary @CarolynLeary
61 Followers 353 Following
itsnotaboutwork @itsnotaboutwork
24K Followers 1K Following incessant tweeter of hand made drawings....
Parker Settecase @trendsettercase
2K Followers 1K Following I think therefore אֶהְיֶה. Host of the Parker's Pensées Podcast. Support the pod here: https://t.co/gOcLdL6EXf
ME Research UK @MEResearchUK
5K Followers 10 Following ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
ME Support (IOM) @MESupportIOM
140 Followers 109 Following We help people living with ME / CFS on the Isle of Man, along with their families and carers.
@TheChronicCollaborat.. @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Christine Sweeney @Christi94047906
47 Followers 157 Following
Katie Johnstone @SockFoam
762 Followers 719 Following She/her. Chronically ill with ME. Founder of the ME/CFS Medical Education Campaign, blogger on Substack.
Trialblazers_MECFS @Trialblazers_
36 Followers 40 Following Aiming to set the spec for a trial of drugs (currently used for other conditions) to see if they work for ME/CFS & LongCovid
National Autistic Soc.. @Autism
210K Followers 260 Following We are here to transform lives, change attitudes and create a society that works for autistic people.
Emma Portch @e_portch
457 Followers 919 Following Senior Lecturer @Bournemouthuni.Cognitive and forensic face recognition research. #pwME (mild/moderate) #MECFS #chronicallyill
Dialogues ME/CFS @DialoguesMECFS
2K Followers 1K Following Website with videos created by Natalie Boulton & Josh Biggs. Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of ME/CFS.
Darren Brown @darrenabrown
10K Followers 6K Following Physiotherapist | @thecsp Fellow | @HIVandRehab Elisse Zack Award | @WorldPhysio1951 International Practice Award | @LongCOVIDPhysio past Chair | 🇬🇧🇮🇪🏳️🌈
Jessica McCabe @HowtoADHD
148K Followers 3K Following Building a toolbox of techniques for tackling ADHD. Learn to work with your brain, not against it 🙃 she/her
Kirstie Sivapalan @KirstieSivaP
3K Followers 2K Following Making a noise about the injustices & lack of support for #pwME #LongCovid 💙 @[email protected] 🐘 @KirstieSivap 🐳 @kirstiesivapalan 🧵
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Faithless @FaithOxenbridge
2K Followers 3K Following Tired of defending my reality. Vax induced ME (still pro Vax) Bedbound. Not tired; sick. Used to write & teach. Here for the research and outrage.
BODY POLITIC @itsbodypolitic
24K Followers 393 Following Grassroots health justice org at the forefront of the patient-led #LongCovid movement. Home of Body Politic COVID-19 Support Group. [email protected]
ADHD UK @ADHDUKcharity
12K Followers 26 Following We are the charity ADHD UK. Helping everyone with ADHD thrive. Find us at: https://t.co/PRVLhv1H6j. Charity Commission registration number 1188365.
Post-Viral Trials New.. @postviraltrials
4K Followers 158 Following News and updates about treatment trials for Long Covid, ME/CFS, POTS, and other post-viral and related illnesses. DM if participating in a trial or interested.
Sonya Chowdhury @SonyaChowdhury
3K Followers 520 Following Chief Executive, @actionforme and Board Director, @curo_group. All tweets and views expressed are personal & don'tt reflect the views of Action for M.E./Curo
Kornelia Paulsen @KorneliaPaulsen
1K Followers 236 Following On Twitter to share my illustrations to raise awareness about M.E. | 💟 and 🔁 to support #pwME | IG: illustrating_ME | Please be aware of copyright 🫶🏼🇳🇴
The Rest Is Politics @RestIsPolitics
192K Followers 165 Following An insider’s view on politics at home and abroad, while bringing back the lost art of disagreeing agreeably with @RoryStewartUK & @CampbellClaret 👇
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
🧊 Lee Winter - @le.. @LeeWinterOz
6K Followers 877 Following Wrote The Villains Series. Lambda finalist for mysteries The Red Files + Requiem for Immortals. #wlw author; ex-journo ⚢ Links: https://t.co/1VIWX3eqTN
Linster II @TheLinster926
94 Followers 387 Following thelinster at threads. com Twitter blocked @thelinster. I've only had that account since 2007 🙄. This is the sequel: Linster II: After the Hack.
blufruity | Commissio.. @blufruity
3K Followers 557 Following blufruity | i draw cartoons! | please enjoy your stay but if you don’t that’s ok too | (he/him)
Larry the Cat @Number10cat
832K Followers 149 Following Chief Mouser to the Cabinet Office. 16 year old tabby. Living with my fifth Prime Minister. Unofficial.
Beyond Paradise @BeyondPOfficial
11K Followers 12 Following Join Humphrey & Martha as they navigate a new life together in the idyll of rural Britain. Series 2 is on BBC iPlayer now! #BeyondParadise
Patient-Led Research .. @patientled
27K Followers 616 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
Gez Medinger @gezmedinger
20K Followers 722 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Dr Claire Taylor @drclairetaylor
66K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my own
Matt Ragland @mattragland
17K Followers 3K Following Co-Founder and Content Director for @heycreatorhey. I help creators send newsletters and build courses that make a lot of money. Free email course at link 🔗
C. E. Aubin @ceaubin
18K Followers 2K Following Historian of (literal) Nazis in America • Teaching & thinking @UCDavis • Dolly Parton zealot • Opinions mine, duh 🤠 Rep: @rebeccalitagent
SuperSantaFemslash @S1SecretSanta
29 Followers 9 Following Home of the Supergirl Season 1 Secret Santa exchange! Also featuring smaller ships and ships from the later seasons.
Legacy Benefits Info @LegacyBenefits
2K Followers 873 Following reporting Court Case.. involving 2.4 million #LegacyBenefits claimants also #Carers not receiving £1,560 Covid uplift .. that 5.9m UC did.
Resia Pretorius @resiapretorius
27K Followers 217 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Pink Rabbit @PinkRabbitPro
599 Followers 106 Following Artist, writer, webmaster, & occasional lunatic.🙄So the BACME conference which is bringing in #LongCvd researchers is platforming 'Adventure Therapy' 🙄In blatant contradiction to NICE guidelines but calls it 'Moving NICEly' 🙄This isn't playing nicely, it's anger & stubbornness at not wanting to admit fault
“Shut the fuck up” in circular gallifreyan
🌱✨ While the journey ahead beckons, don't forget the power of NOW. Every step you take, every breath, every moment... it all counts. Before you get 'there', wherever that might be, cherish 'here'. This moment is shaping the path to your destination. Embrace it. 💫
Long thread, but worth your time.
(THREAD) This is a brief thread from a NYT-bestselling Trump biographer on what everyone—literally everyone—is missing about the 34 felonies Donald Trump committed to win the 2016 presidential election. This will change how you understand the 2016 election cycle. Please RETWEET.
It’s about time legally people are held to account for playing with peoples lives. What an awful situation- send your kid to school where they may get Covid that could make the mum very sick, or have your own child taken away from you. It’s like Sophie’s choice.
1/ I’ve been covering Donald Trump more or less full-time since the day he announced his presidential candidacy in 2015, so there are things I remember as part of my job that many who follow politics more casually don’t and wouldn’t. One is that Trump believed he’d lose in 2016.
@KathyCollett7 @angryhacademic Yep! That’s the aim of this years #MillionsMissing is to raise awareness of how poorly taught it is and push for medical education. They’re holding training events at medical schools and campaigns to get MD’s to learn about it 🤞🏻
@Naomi_D_Harvey @angryhacademic Educating clinicians? Now that's a thought! Patients have struggled to be diagnosed and in some med schools it is not taught. I have often wondered why ME isn't widely acknowledged as millions have it. It is not rare. Outbreaks have been known of for a very long time. #pwME
Short of time? Consult the concise review for clinicians on M.E. published by Grach et al in 2023 in Mayo Clinic Proceedings (providing continued medical education credits) #TeachMETreatME Make sure you’re able to help the #MillionsMissing ⬇️ mayoclinicproceedings.org/article/S0025-…
At least 50% of people with long COVID meet the criteria for ME, The need for #medicalschool education on ME is now more urgent than ever. Got 1 hour? Take this free CPD accredited 1-hour module on ME developed with experts ⬇️ #TeachMETreatME studyprn.com/p/chronic-fati…
ME has no licensed treatments but there are things that you can do to improve patient care today. Please read the CME articles outlines in this BMJ rapid response or take the 1hr CPD training course to start. #TeachMETreatME #MillionsMissing #Medical bmj.com/content/383/bm…
@CarinthiaHart I'd love there to be a radio drama that was just things like that. Jazzer learning about the Romans was great fun.
Doctor 🤝 companion. #GBBO
Thank you for speaking about this condition. Right now there are young women who are suffering horrendously with very severe M.E., it’s 18 years since I was first admitted with it and it’s awful that the treatment has not changed in this time. #SaveCarlasLife #BringMillieHome
M.E. takes away so much from those we love. Was pleased to lead a Westminster Hall debate @UKParliament yesterday in support of this community and very much welcomed the fresh commitments from Government. @actionforme
First 2 mins in the sea: This is where I belong. I am a creature of the surf, a modern day selkie. I will remain here & filter krill through my moustache. The instant my foot touches something other than sand: The ocean is filled with untold horrors. Humanity has no place here.
The Daily Telegraph, 6th May 2008 - sixteen years ago today. #myalgicencephalomyelitis #mecfs #cfsme #cfs. The term “yuppie flu” was still being used.
Cover art revealed for #DoctorWho In Wonderland by @paulmagrs
Summary of Westminster Debate on M.E #pwme Takeaways: less than 28% of NHS trusts are following new guidelines. Not 250k patients, 1.3M patients with M.E. more than MS & Parkinsons. We need a way to enforce Guidelines & hold accountability. meresearch.org.uk/westminster-ha…
Here's what's gone wrong for the Conservative party. They didn't adopt austerity in 2010 because the economy needed it. They adopted it because it allowed them to do an ideological shrinkage of the state, while blaming Labour. Austerity wasn't economics, it was pure politics.
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