WorkingAndNotWorkingWithLongCovid @WorkingWithLC

Dr Ranj explains the four symptoms required for a diagnosis of ME/CFS: debilitating fatigue, post-exertional malaise (PEM), sleep disturbance and cognitive difficulties. If you’ve had these symptoms for over three months, speak to your GP. Clip from BBC Morning Live.

Adam @ABrokenBattery

6 days ago

“Chronic fatigue is not the only symptom. It is one symptom amongst so many others.” Dr Ranj explains what ME/CFS is, why the term Chronic Fatigue Syndrome does not reflect the reality of the illness, and why many patients prefer the term ME.

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There's been a lot of really sad stuff going on the last couple of weeks, so this lovely thread kind of slipped past me defences and made me go a little misty-eyed. Well done Clinically Vulnerable Families for fighting on this front ❤️❤️

Clinically Vulnerable Families 💙💜💗 @cv_cev

23 hours ago

🚨NEW: Our 2026 Voting Accessibility Audit looked at whether the Electoral Commission's new guidance for Clinically Vulnerable voters was actually being implemented at polling stations. The headline finding? It helped people vote more safely! ⬇️ 1/

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Understaffing, overworking doctors to #burnout point and exposing them to repeated brain-damaging #Covid infections is a risk to doctors and to patients news.sky.com/story/gloves-l… Gloves left inside patients and accidental organ removal among 403 'never' mistakes in #NHS last year

💫 UPDATE: We had a lovely friend of LCA hand deliver the Open Letter to @subodhdave1 President-elect of The Royal College of Psychiatrists Signed by 58 orgs & 1200+ people! 💙 His secretary will ensure it is handed (all 16 pages of signatures) to him tomorrow. #RCPsychIC More about the letter👇

"The civil justice system [is] overly complex, beset by delays, expensive, and afflicted by with too many people litigating without advice." There comes a time when more reviews won't fix the problem: we need decisive action to improve #AccessToJustice. share.google/f1wrHReDPGCrNk…

Petition for @WIRED retraction: change.org/p/wired-magazi…

– Help! – But have you tried just ignoring the water? #longcovid #postcovid #ableism #satire

Spot on and highly important thread. To slightly deviate from the reason behind this thread, doctors have a professional requirement to keep up to date on knowledge relevant to their field of medicine. 1/3

Dr Elisa Perego @elisaperego78

5 days ago

We must be crystal clear about a few points. Long Covid is not a "poorly understood neuroimmune disorder" with no biomarkers. It is a widely studied biological medical condition. Pathology spanning basically all body systems is well documented, with damage in situ across organs

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A high-profile report by former Labour minister Alan Milburn suggests he will recommend more young disabled people must engage with employment support and face sanctions if they fail to do so, but ignores the safeguarding risks of such a strategy. disabilitynewsservice.com/milburns-parti…

A thread worth reading by any medics who still think Long Covid or ME are psychological.

Stephanie deGiorgio @DrSdeG

4 days ago

I beg medics to read this article by Fred Rossi. I have just cried reading it. It is everything I have wanted to say about developing long covid and ME in my daughters case as a consequence, when you know medicine and psychological stuff and people tell you (and your 10yr old

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There are plenty of world-class L0ngC0vid experts far smarter than I am. But I bring something they don’t: I’m a CV surgeon and endovascular specialist. I’ve had hearts, lungs, arteries, and other organs literally in my hands. I’ve seen their insides, healthy and ravaged, with my own eyes. That gives me one brutal, irreplaceable edge: I can take the science and translate it straight into the living, bleeding reality of human anatomy. And what I see coming is ugly. You, personally and as a society, are in for one hell of a shock. Read this 🧵👇 If you keep minimising SARSCoV2, refuse to protect yourselves, and keep swallowing the lies of pseudo-experts chasing money or psychiatrists salivating over a fresh FND goldmine… you’re walking straight into disaster. Tell every last one of them to f.ck off! Then follow the hard, unfolding science.👇 Your organs don’t care about opinions. They only care about damage. And the damage is already stacking up, be it momentarily maybe still clinically "silent"! #AvoidSars2 #AvoidReinfections

IntegralAnswers @IntegralAnswers

a month ago

1/ Long COVID is one of the most complex post-infectious syndromes ever studied. A new review in Nature Communications Medicine attempts to unify the biology. Here’s what’s established, what’s emerging, and what’s still speculative. 🧵

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How can employers and insurance help longhaulers? Dr David Kelly OECD shares his opinion following the Long COVID report. #longcovid #longhauler #longcovidtheanswers #oecd

People living with disabling chronic illnesses are already some of the grittiest and most resilient people I know just to do basic things in life. I can’t imagine a reality in which the curative intervention would be to try to promulgate more of what they already have in spades.

Campaigners have expressed “deep concern” over a ruling by the Supreme Court that could “fundamentally” alter the lives of hundreds of thousands of disabled people who rely on the health and social care systems. disabilitynewsservice.com/supreme-court-…

#ActivistBurnout Disabled activists have come together to share ideas for how they can overcome the growing problem of “burnout” experienced by members of the disabled people’s movement who have spent years fighting oppression and hostility. disabilitynewsservice.com/disabled-activ…

Best to stop reading after "Post Pandemic" @EricTopol My ever growing cohort of Long Cövid patients couldn't earn a dime without WFH. Many acquired their new found disabilities in the workplace... They aren't rushing back

Eric Topol @EricTopol

5 days ago

Home alone. Remote work can adversely influence mental health. A new study @ScienceMagazine science.org/doi/10.1126/sc… science.org/doi/10.1126/sc…

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@hinchliffe1569 They are unbelievably bad! I went through their training programme once with a whistleblower and it was worse than the mental health first aid training! Ditto awful for chronic conditions esp long Covid, EDS, endo, fibromyalgia etc. a sympathetic 7 year old would do better x

Minister is asked why he expects disabled people to fund their own PIP review engagement events #PIP #TimmsReview disabilitynewsservice.com/minister-is-as…

They are not even waiting for the outcome of the #Timms review before handing #PIP assessments for tens of thousands of people over to non-clinical assessors. disabilitynewsservice.com/dwp-secretly-e… DWP secretly exposes 150,000 PIP claimants to new assessment system that is ‘recipe for disaster’

The DWP is trialling an even worse assessment system on 150,000 PIP claimants. Af the moment, DWP employed healthcare professionals make the decisions on scoring - already a disaster rating conditions they often don’t understand. In this trial, it won’t even be professionals! 😱

Disability News Service @johnpringdns

5 days ago

DWP secretly exposes 150,000 PIP claimants to new assessment system that is ‘recipe for disaster’ #DWP #PIP disabilitynewsservice.com/dwp-secretly-e…

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