Paula Knight @Paula_JKnight
Graphic memoir THE FACTS OF LIFE (2017) Kidlit books x3 author. Disabled. Bedbound 5.5yr v severe #pwME Submerging writer. Total Bedass. Print Disabled she/her linktr.ee/paulajknight Northeasterner in Bristol Joined December 2009-
Tweets27K
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@catsocialintel I keep reading this bit and feeling quite emotional because they’re finally saying out loud that it’s an acquired mitochondrial disorder, which many of us have inferred and known for years but which goes unrecognised 😭
My ward had an 86% turnout as well. Highest in Bristol, and Greens won here.
My ward had an 86% turnout as well. Highest in Bristol, and Greens won here.
I think it's a fair question to ask minister for disabled people @mimsdavies why she shared a post that described her own government's #disability benefit reforms as “dangerous” and accused ministers of “demonising” disabled people. disabilitynewsservice.com/minister-share…
I’ve signed this: Reinstate Sangita Myska to her Position at LBC - Sign the Petition! chng.it/8ZWhSXwx2p via @UKChange
Surprise development! I hope they are onto something good.
Surprise development! I hope they are onto something good.
How many times have we, as #Disabled people, wished that just for once our voices would be heard in the media, instead of other people "telling" our story. Not anymore!!! We are now running an "Amplify" free media training program for you. Yes, you!!! 👇 thechroniccollaboration.com/amplify-free-m…
The idea “every aspect of the support for disabled people” must “help people get into work” is deeply grim from Labour. Benefits and the NHS don’t exist to turn disabled people into economic productively units. They are to help us live well. inews.co.uk/news/politics/…
The Times reporting on yesterday’s #ME Debate in Westminster Hall. Sajid Javid: patients with ME are being ‘dismissed’ by doctors thetimes.co.uk/article/0edf02…
For us the most important thing with #TheChronicCollaboration is we're giving 50% of all subscription money away - 1/2 to a legal fund & 1/2 to a treatment one That is - you give us a fiver each month, & £2.50 will go to people needing it #MEAwarenessHour thechroniccollaboration.com/the-chronic-co…
I know some people in UK buy sulodexide from Spain online, but can you bring it over the border travelling? Could you ask a friend going on holiday to buy OTC and bring back? Or is that not allowed? #pwME #LongCovid #MEcfs #TeamClots
OUR WEBSITE IS LIVE #MEAwarenessHour #TheChronicCollaboration We hope this moment will be the start of a sea change for #ChronicIllness communities. We're determined it will be. Please have a look at the website, support it if you can, & do share. thechroniccollaboration.com
If you missed the #MEdebate then you can watch it here around 16.30 parliamentlive.tv/Event/Index/0c…
"Quadram Institute and @Invest_in_ME remain committed to advancing research into ME, offering hope for the future of individuals and families affected by this debilitating disease" quadram.ac.uk/quadram-instit… #mecfs #research #LunaNova
And lots of us are avoiding healthcare at all as a result
Almost 6 years now #MEDebate @sajidjavid
We need treatment not management before we can even think of moving on with our lives #MEDebate
£8 million research spend over 10 years with [sic] 1.3 million people affected. £800,000 per year 61.5p per person per year. Ish. Eesh!! #MEDebate #pwme #ME #MyalgicEncephalomyelitis
#MEdebate @johnmcdonnellMP it is shocking that the NICE guidelines have not yet been adopted, however there is a lack of expertise/true specialists with the NHS and those that *feel* they are expert (in BPS model) have not been dealt with, including BACME who seem stuck in past.
Carla Millie and Karen have been let down time and time again. End the stigma and taboo - @PutneyFleur #MEdebate
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Wading through treacl.. @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Christoph Ströck @cstroeckw
7K Followers 457 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Martin Hippe @pausedME
7K Followers 475 Following East Westphalia by Nature ⎮Lawyer by Profession | #Musikrecht | #MECFS | @Mirame_Arts | No medical advice!
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Jo @cfs_jo
3K Followers 1K Following CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Also on Insta as JustJoHere and BlueSky as JustJo
Sibylle Dahrendorf �.. @sibylle_berlin
6K Followers 3K Following Once a filmmaker now stuck in horizontal hell | #SmallFiber #BigPain #POTS #MCAS #CCI #Lyme #FQToxicity #ME I Stop denial of #ComplexChronicIllnesses I
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
Daniel Moore @Talmandaniel
5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Natalia @NataliaHodgins
7K Followers 1K Following Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle
willy awa @healingspharma
0 Followers 75 Following
Shash Trevett @ShashTrevett
1K Followers 1K Following Poet & Tr | ‘The Naming of Names’ @PoetryBusiness| ‘Out of SriLanka’ @BloodaxeBooks| @MPTmagazine Trustee| @LedburyCritics| @KinaraPoets| ViewsMyOwn
AQEM @AQEM_SFC
554 Followers 1K Following L’AQEM est un organisme à but non lucratif dédié à la reconnaissance de l'encéphalomyélite myalgique depuis plus de 30 ans.
leurah @leurah_
733 Followers 101 Following What the world needs now, is love sweet love💜 March 2020...in USA LC'er IG: covid_longhaulers_supportgroup
raybak92 @raybak92
138 Followers 590 Following He/Him ☭⚪ | Caretaker of my disabled partner | Disability justice comes first | I block everyone
Karen Radenkova @laradenkova
684 Followers 701 Following artist, partner, keen archaeologist,mother and baker of cakes! Carer of daughter with M.E. for almost 12years.
Lisa Geiszler @MElovewarrior
220 Followers 846 Following Disabled poet living with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), chronic pain. 20+ years. Still sick. Still fighting. Still here.
Nicole #KeepMasksInHe.. @chronicoley_me
161 Followers 1K Following PhD in biomedical physics. Disabled, chronically ill: endometriosis, severe ME/CFS, probably more. Mixed race, acespec, avid knitter, former dancer.
Jana Petersen @janaxpetersen
2K Followers 1K Following In love 🥰 journalist @tazgezwitscher @zeitonline @queer_anthro – on pause w/ #LongCovid und #MECFS since 05/22 @janaxpetersen.bsky.social ☿
Susannah H @firebug70
2K Followers 4K Following Mum. Carer for my son. Former English teacher. Researching #Lyme #ME #LongCovid #Pandas #Pans #believethepatient #believetheparent
Safe Inside - Clean T.. @SafeInside2024
868 Followers 1K Following Building a database of places with clean air protocols https://t.co/FXLlVEfc4I please read, like and repost pinned tweet to help spread the word.
Edward Williams @EdwardWill66357
470 Followers 3K Following #Twitter Philanthropist# old account got hacked. Free to DM Me your cash app, PayPal, Venmo or Zelle. God bless!!!
Marina Bettaglio @Insonniamarina
163 Followers 553 Following Associate Prof of Hispanic and Italian Cultural Studies at UVic, mother of two, blogger, and food enthusiast. Do I have time for more?
Linda Palmer @LindaPalme17121
440 Followers 778 Following
DF @SWorkAllianceRM
921 Followers 5K Following ♡ CDA, degrowth, social ecology, race, ecology & masculinities, disability; medical & environmental humanities #chronicpainpatient #bunnymom
Sir, Dame, EleanorF #.. @EleanorSews
2K Followers 4K Following Retired lecturer/therapist.(Klein, Winnicott,Orbach) culture, thoughtfulness, piano-player, linguist, textiles, activism @eleanorsews.bsky.social
nobody, nobody, nobod.. @oolong_covid
15 Followers 77 Following
G R A C E 🌸 @withgrace___
90 Followers 292 Following 🥀 severe ME/CFS mama to baby son ❤️ heart full, body broken 🌻 INFJ
Katie Gallagher @KatiGallagher
3 Followers 4K Following
Giselle - Adult Socia.. @Giselle_ASCWs
1K Followers 3K Following 💜👊 Admin Adult Social Care Warriors Facebook Group Campaigner, Agitator & Warrior for free social care & disability rights. Social Care Reform & Carers Rights
Equal Vision @EV_Merseyside
1K Followers 6K Following Our work is community-driven. We're Liverpool's independent youth research & policy body. Peer-led support for multiple morbidities is our other priority
Mady Hornig, MA, MD @mhornig
3K Followers 3K Following Translational MD-scientist, mom, 🎶 | microbes + the 🧠 | gut-immune-brain axis | #autism #ADHD #PANS #TRD #LongCOVID #MECFS | views mine
Somnambulist System @SomnambulistSys
1K Followers 1K Following Struggling academic somewhere on the DID/OSDD🧩 spectrum 🎓 Atypical depressive 🎭 #ADHD🌪 43yrs⏳ She/They I/We 👥 Artist 🎨 @MadMediaPod host🎙 Soma 💭 tweets
Darla Gregory @darla_gregory
3K Followers 7K Following Love all reality shows Especially BB love It. Blue wave 🌊🌊🌊💙💙💙👍
John Dutton @JohnDutton67754
39 Followers 363 Following
Alex Mac 🏁 @AlexHelenMac
493 Followers 798 Following if you like crap F1 jokes and weird neuropathies, I'm your girl #CIDP #SmallFibreNeuropathy #ivig
pilot @pilot1696993
69 Followers 459 Following
Maddox @Zelti_moon
118 Followers 700 Following WEAR A MASK 😷| #LongCovid Since 2022 | #ME #POTS #MC #ABDL #Hirschsprungs | Autistic, Anxiety Ridden, Somehow Managing🌻 | they/them 🏳️🌈
Fiona Culbert @burnleacroft
518 Followers 2K Following Doing what I do. Now, how I do it... Unpaid carer, SDS Advocate - autism, lyme and M.E.
Pet lover @MbabaziJoy5433
1 Followers 113 Following
:::P U F F Y::: I N::.. @JustineGSwaab
1K Followers 6K Following Brodude trapped in a Feminist Killjoy💜♀️/ Journo stuck in a humanitarian world or vice versa?/My Tweets do not reflect the views of my mirror/1st🌊 Long COVID
Steph 💜💜💜 @mummahbear11
170 Followers 382 Following 💜💜 Lost my wonderful dad to 1x AZ💉April 2021. Proudly awake through sleepy times 💜kill shot batch number: 💜AB0003💜
Michael Brooks (𝙏�.. @brooksmeatswift
2K Followers 4K Following It’s me, Hi! I’m the problem, it’s me! . ME patient & advocate - Decode ME Ambassador - 1 day at a time… My girls, my team, my music
Annie McCasland-Pexto.. @anniesorganics
1K Followers 1K Following Author. Podcaster. Craniosacral Therapist. Check out my new podcast "the baby in the bathwater" and my book "Invisible Work: An Ex-Lawyer's Guide to Self-Care.
Milo Anthony Ventimig.. @Milo_anthony665
4 Followers 285 Following Art owner #Meilivodka &#Meilivodka Authorized private account On X...Aloha
hamdanrrbon @hamdanrrbo3518
861 Followers 6K Following
Sean G @InflammaSean
688 Followers 1K Following #MECFS, #PASC, chronic illness & science. For better or worse, will at times post none of that, but instead silly stuff or nature photos or whatever-whatevers
Hannah Sharland @h_sharland
528 Followers 2K Following Staff writer for the Canary. Covering climate and ecological crisis. Climate activist. Here to learn about climate justice. She/her. #ME #CFS
OneJataTime @one_Jatatime
170 Followers 663 Following Long Covid, ♿ walking stick user #PDA #AutismAcceptance
Naomi Taylor @NaomiTaylor7700
1K Followers 218 Following #Christian #ProLife #LoveOurVets.God over everything.
John Urquhart 🎄 #A.. @TheDryhtscipe
10K Followers 10K Following Founder & general secretary, @HarmonyPartyUK - Opinions mine. Process architect. Disabled/LD. Polypandemi. They/them. Let's say: very Left wing. 39.
@healthfirstak MBBS, .. @HealthFirstAK
2K Followers 3K Following Serving the people is a true privilege - Humanity matters 🙏🏼
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Wading through treacl.. @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Christoph Ströck @cstroeckw
7K Followers 457 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Anil van der Zee © @AnilvanderZee
9K Followers 824 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Tom Kindlon @TomKindlon
14K Followers 581 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Martin Hippe @pausedME
7K Followers 475 Following East Westphalia by Nature ⎮Lawyer by Profession | #Musikrecht | #MECFS | @Mirame_Arts | No medical advice!
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 725 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Whitney Dafoe @DafoeWhitney
10K Followers 38 Following Severe ME/CFS patient and advocate. Photographer, filmmaker, artist, creative. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Sten Helmfrid 🇺�.. @StenHelmfrid
7K Followers 206 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Ed Plowden @EdPlowden
1K Followers 793 Following Green Party Councillor for Windmill Hill in Bristol. MSc, CMILT, MCIHT. Born at 321ppm, now 421. I also work for https://t.co/1or00YrFcM. All views here are my own
Mark Bowsher - pls su.. @MarkBowsherFilm
3K Followers 2K Following Makes films/writes things. Author, The Boy Who Stole Time. @pokingbooks host. Runs @RabbitIslandPro. #dyspraxic. Support Myrthali 1&2 on Kickstarter. He/him.
Rashmi Sirdeshpande @RashmiWriting
10K Followers 7K Following Neurodivergent (AuDHD). Learner. Dreamer. Award-winning children’s author. @BookTrust Writer in Residence. Agent: @LydiaRSilver Events: @AuthorsAloudUK. She/Her
DF @SWorkAllianceRM
921 Followers 5K Following ♡ CDA, degrowth, social ecology, race, ecology & masculinities, disability; medical & environmental humanities #chronicpainpatient #bunnymom
Nicole #KeepMasksInHe.. @chronicoley_me
161 Followers 1K Following PhD in biomedical physics. Disabled, chronically ill: endometriosis, severe ME/CFS, probably more. Mixed race, acespec, avid knitter, former dancer.
Lisa Geiszler @MElovewarrior
220 Followers 846 Following Disabled poet living with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), chronic pain. 20+ years. Still sick. Still fighting. Still here.
Clare Pollard @poetclare
9K Followers 5K Following Novelist. Poet. Editor. Reader.🏺OVID’S HEROINES 🍼 INCARNATION 🐇FIERCE BAD RABBITS 🏛️DELPHI. 🏰 THE UNTAMEABLES 🧚♀️ THE MODERN FAIRIES (coming soon) etc.
Mitodicure @mitodicure
517 Followers 57 Following Start-up with the mission to cure Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia. Follow us on LinkedIn: https://t.co/KrQ7qyxX0f
Shash Trevett @ShashTrevett
1K Followers 1K Following Poet & Tr | ‘The Naming of Names’ @PoetryBusiness| ‘Out of SriLanka’ @BloodaxeBooks| @MPTmagazine Trustee| @LedburyCritics| @KinaraPoets| ViewsMyOwn
Andrew Gwynne MP @GwynneMP
53K Followers 862 Following 🌹 Labour MP for Denton & Reddish | Candidate for Gorton & Denton | Shadow Social Care Minister | Husband, Dad, Grandad, owned by a Chihuahua | VIC20 user🕹👾
Safe Inside - Clean T.. @SafeInside2024
868 Followers 1K Following Building a database of places with clean air protocols https://t.co/FXLlVEfc4I please read, like and repost pinned tweet to help spread the word.
Karen Radenkova @laradenkova
684 Followers 701 Following artist, partner, keen archaeologist,mother and baker of cakes! Carer of daughter with M.E. for almost 12years.
John McDonnell MP @johnmcdonnellMP
338K Followers 8K Following Labour MP for Hayes and Harlington and former Shadow Chancellor. Join the Labour Party here: https://t.co/vbWxb5FqMM
Anna Frame @annaframe
7K Followers 3K Following Communications Director, @canongatebooks. NS Nuseibeh, Len Pennie, Miranda July, Dean Atta, John Niven, Rebecca Achieng Ajulu-Bushell & many other talented folk
Alex Andreou @sturdyAlex
139K Followers 2K Following I write, act, sing, broadcast and cook. Occasionally, even for money. #OGWN & #Bunker team. Bluesky: @ sturdyalex Threads/Insta: @ themagicbayleaf
Mad In America @Mad_In_America
35K Followers 29K Following Rethinking Psychiatry Advocacy, Blogs, News, Podcasts https://t.co/ZYsL5pC6uG and Resources
Disabled Gardener @ContorSien1527
430 Followers 1K Following Gardening, human rights and \m/. Addicted to the smell of green soap and wearing black. She/her.
Liz Carlson @usabilityliz
1K Followers 1K Following Sharing CFS and Long Covid recovery stories on my blog & YouTube @ Heal With Liz. Mother of lions. Mirror dancer.
Fadumo Farah @fadumofarah2023
272 Followers 149 Following I'm an open book of honesty, yet a vault of secrets, navigating the complexity of being transparent while cherishing the mysteries that make us who we are.
AirSpot Health @airspothealth
696 Followers 2K Following Our smallest fresh air monitor! Combines with the AirSpot App to help optimise your AirHealth.
Lyme Disease UK @UKLyme
5K Followers 3K Following UK charity raising awareness of Lyme disease, tick bite prevention & supporting those living with the illness. Please contact us for free awareness talks! 🕷️
Louise @WillowLymeInfo
808 Followers 721 Following Ex-biology teacher, Lyme advocate and mum, singer, walker. On Facebook and Blue Sky.
Long Covid SOS @LongCovidSOS
27K Followers 942 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected]
Giselle - Adult Socia.. @Giselle_ASCWs
1K Followers 3K Following 💜👊 Admin Adult Social Care Warriors Facebook Group Campaigner, Agitator & Warrior for free social care & disability rights. Social Care Reform & Carers Rights
Dana Parish @danaparish
37K Followers 4K Following Bestselling Author: “CHRONIC" / SONY songwriter/ Podcaster/ NYC/ @BayAreaLyme board/ N95s/ TREAT EARLY/ END GoF / anti-virus/ think 4 yourself/ @BiosafetyNow
Michael Brooks (𝙏�.. @brooksmeatswift
2K Followers 4K Following It’s me, Hi! I’m the problem, it’s me! . ME patient & advocate - Decode ME Ambassador - 1 day at a time… My girls, my team, my music
Helen Cliff @MammaCliff
762 Followers 990 Following @UKLabour 🌹 Cllr Sysonby Ward @MeltonBC Onesie-wearer & wannabe poet. Disciple of Hope, Faith & Love. Getting by with spoons #pwme #spoonie #refugeeswelcome
Alex Mac 🏁 @AlexHelenMac
493 Followers 798 Following if you like crap F1 jokes and weird neuropathies, I'm your girl #CIDP #SmallFibreNeuropathy #ivig
Sense about Science @senseaboutsci
46K Followers 355 Following Campaigning charity challenging misrepresentation of science and evidence in public life. Home to #EvidenceWeek #MaddoxPrize #AskforEvidence #AllTrials #VoYS
Doctors In Distress @DoctorsDistress
6K Followers 690 Following 💙 Charity protecting the mental health of UK healthcare workers 💙 Donate: https://t.co/zqMMqREbxJ
NHS Practitioner Heal.. @NHSPracHealth
6K Followers 444 Following Tel: 0300 0303 300 For 24/7 crisis support, text NHSPH to 85258.
Ruth Liptrot @Ruth5News
4K Followers 2K Following Reporter for @5_news. Journalist. Mum. Wiganer, Londoner. The three most important things to be are kind, kind and kind. #longcovid
Jet @janejet07
253 Followers 204 Following
Paul Quibell-smith @QuibellPaul
120K Followers 95K Following Books/Art/Culture #Book #books #love #reading #Art #authors #news #Poetry #life #read #CrimeFiction #bookrecommendation @mia_qs @vintagebooks @SquarePegBooks
Arianne @ravensspirit68
14K Followers 9K Following Old soul, creating, hoping, learning. ME/cfs C-spine injury Chronic pain Adenomyosis survivor Married Underestimate me, that'll be fun.🌸💞🌸
Herpes Virus Reactiva.. @thegodofpleasur
617 Followers 602 Following Devoted husband to Deb - who (like Ariadne) I rescued from a Greek island. Who was Dionysos & why is Naxos is special to me? https://t.co/sw9wsiylND
Al Jazeera English @AJEnglish
8.9M Followers 249 Following Watch Al Jazeera’s live coverage of the War on Gaza. #GettingTheFacts #YourRightOurDuty. For breaking news alerts, follow @AJENews.
Liz Willow 🇺🇦�.. @NeuroMEwarrrior
458 Followers 281 Following
Holly Stortholme @hollystortholme
3K Followers 243 Following COVID IS AIRBORNE, BSL 3 virus. Always masked indoors/outdoors. Breathe clean air. Covid is a vascular disease and maims immune system!!!
Dr. Heather Sandison @DrSandisonND
226 Followers 138 Following naturopathic doctor, runner, reader, surfer and eater enjoying life in North County San Diego
Rebecca Swift Foundat.. @FoundationSwift
2K Followers 999 Following The Rebecca Swift Foundation is a UK-based charity established in support of women in poetry | Home of the #WomenPoetsPrize & #WomenPoetsNetwork
Hannah Sharland @h_sharland
528 Followers 2K Following Staff writer for the Canary. Covering climate and ecological crisis. Climate activist. Here to learn about climate justice. She/her. #ME #CFS
Fiona Wood ♿️💙.. @fionangreg
416 Followers 807 Following Wife, mum, Christian pwSME/CFS, FND, ME & FND Advocate. Observe small things, don't rush, love & forgive ❤️ #chronicillnesswarrior #loveyourself #loveothers
Abi Mills @childminderabi1
207 Followers 214 Following she/her. here to expose #medicalabuse of those with ME
🇪🇺 🇮🇪 #pw.. @chaostocosmos
1K Followers 432 Following Woke leftie snowflake, disabled, ME/CFS, C-PTSD, likes cats, genealogy, model trains. Speaks English, Spanish and Rubbish. Writes in last of those.
John Urquhart 🎄 #A.. @TheDryhtscipe
10K Followers 10K Following Founder & general secretary, @HarmonyPartyUK - Opinions mine. Process architect. Disabled/LD. Polypandemi. They/them. Let's say: very Left wing. 39.
Dr Rebecca Healey @beccyjanehealey
2K Followers 2K Following NHS Doctor on pause #LongCovid | Registered Nutritionist (Public Health) | #CovidIsAirborne | We need #cleanair yesterday.
Keah Buy The Secret S.. @Keah_Maria
30K Followers 2K Following Author. The Secret Summer Promise out now! lit rep: @abuckslater film/tv: @RachMiller she/her 🏳️🌈 created #disabledandcute
Open Book @openbookreading
3K Followers 2K Following Bringing books and people together through shared reading & creative writing for diverse community & public groups, including funded visits to literary events.This is why Action for ME need to do a proper, detailed statement, very clear on their website as to why they supported the PACETRIAL, and why they wouldn’t now. Otherwise…
Scientists have found what they call 'the master regulator' of the immune system in the human brain. If it holds up it's a stunning discovery that could transform treatments for autoimmune disease and post-viral illnesses. What did they find, and how?🧵
@catsocialintel I keep reading this bit and feeling quite emotional because they’re finally saying out loud that it’s an acquired mitochondrial disorder, which many of us have inferred and known for years but which goes unrecognised 😭
I feel so intensly alone and alien when the non ill folks complain about the most luxury trivial "problems that aren't problems". Like that it rained during their expensive vacay. And I am expected to empathise with that? I just feel so alone and stuck these days. #MECFS
I wasn't having the best of days and then I received this box of gorgeous goodies, all handmade by the lovely @therealmecfs. Thank you so much Jo, you're the best!
🥹
Ending the week on a high! We have not one but TWO books that have won the People's Book Prize. A Girl Beyond Closed Doors by @jayletay won Best Achievement and Baller Boys vs The Bulldozers by @VenessaTwrites illustrated by Kenneth Ghann won Best Children's Book 🥳 Thank you!
🚨🟢 Greens have 27 seats compared with Labour’s 15 in Bristol Six wards still to declare - hard to call whether or not the party will get 36 for overall majority As pointed out by @beardedjourno all seats in Bristol Central constituency are green - worrying for Labour
🚨Green Party is the largest on Bristol City Council but narrowly avoids overall majority 🟢 Green 34 (2 short of 36 needed) 🔴 Labour 21 🟠 Lib Dems 8 🔵 Con 7 Labour admits its ‘disappointing’
THE GREENS WIN BRISTOL They fall just short of a majority but Greens say it’s a historic victory. Labour admits the results are disappointing. The final results: Greens - 34 Labour - 21 Lib Dems - 8 Cons - 7 @itvwestcountry #LE2024
Out on the doorstep today making sure we turn Filwood Green 💚💚💚💚 labour is throwing everything at this but there’s still far more green posters up.
Here’s the wording of the resolution if you’re interested.
This is the resolution that didn't pass. Unbelievable. #CeasefireNOW
Perfectly slow and gentle birthday so far. Cupcakes & Prosecco for breakfast, trip to a huge charity shop then onto @Hobbycraft, sandwich & chips pub lunch, more charity shops & a mooch round Woodbridge. I’m very lucky (& tired!) Thank you for the birthday wishes 💋
@MarkBowsherFilm And calling people antisemitic or extremists or Hamas supporters just for calling out genocide. It’s unbelievable. I am so angry right now, Mark.
Kind of glad I couldn't go to the @Soc_of_Authors EGM yesterday and proxy voted (as that was my time slot to do the other voting of the day) because what I've read about what was said about the very reasonable statements proposed is so deeply disturbing. #IWokeUpAndItWasPolitical
@MarkBowsherFilm And calling people antisemitic or extremists or Hamas supporters just for calling out genocide. It’s unbelievable. I am so angry right now, Mark.
bloody hell! my local ward had an 86.4% turnout! Well done @EdPlowden and Lisa Stone who have been excellent @TheGreenParty councillors! finger crossed we get the whole Bristol council!
As part of my campaign & policy work @DisRightsUK I will be running a 90 min disability food poverty r/table online next Friday. We are looking for 3 people of lived experience to join & debate. Your time will be compensated. For details, email: [email protected]
I think it's a fair question to ask minister for disabled people @mimsdavies why she shared a post that described her own government's #disability benefit reforms as “dangerous” and accused ministers of “demonising” disabled people. disabilitynewsservice.com/minister-share…
Better Off Dead? will air on BBC One and iPlayer on Tuesday 14 May at 9pm
Activists ‘terrified’ as MPs debate legalising assisted suicide while government proposes PIP cuts disabilitynewsservice.com/activists-terr… via @johnpringdns
Activists ‘terrified’ as MPs debate legalising assisted suicide while government proposes PIP cuts disabilitynewsservice.com/activists-terr… via @johnpringdns
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