EPIPOLE of Phoenix @EpipoleofPHX
WRITER, DISABLED, PRO-CHOICE, PRO-WOMAN, FEMINIST, ANTI-EPIDURAL,ANTI-ESI,NOZEMPIC(CSF leak, HT, migraines,EBV, spine tumor, IBS, BPD)LET’S GET WOMEN TALKING! patreon.com/EPIPOLEofPHOEN… Phoenix, AZ Joined February 2023-
Tweets2K
-
Followers1K
-
Following3K
-
Likes2K
“Are #CSF Leaks & #EBV causing CFS(Chronic Fatigue Syndrome)/ME?” medium.com/@epipoleofphoe… 04/27/24 @SurvivingCFS @lilnick000 @fionangreg @JessicaHAbdo @JennyCochrane @KSchniekelfritz @TheChronicCollab @cfs_jo @MrsProctor2010 @kirstler31 @Talmandaniel @KirstieSivaP
the map of the world is inaccurate #TikTok tiktok.com/t/ZPRwB73dP/
If u have a CSF leak,it’s hard to find doctors to help you. Most doctors don’t know enough about #CSF leaks. If u know more than them, they resent it& say ur being difficult.Doctors, we are sick, u all are being difficult. Learn more. Take care of us.tiktok.com/t/ZPRwBrEH7/
Jennifer Sullivan @JenniferSu37718
61 Followers 3K Following
Tiotough @tiotough21804
1 Followers 196 Following
ElizabethLocke @3FZ1FgpxVnKys72
0 Followers 117 Following
Sheautough @Sheautough6530
10 Followers 116 Following Some people can't be lovers,but they also can not be getted by others
TrudaTrollpoe @3W0PTCQY9BV9s
5 Followers 306 Following
McRirrke @McRirrke6N_si
0 Followers 77 Following
LesleyMacAdam @teDlnIO34tltNOY
1 Followers 103 Following
Aggie_VC @VcAggie92921
32 Followers 2K Following
penny #ME🕊️🕊�.. @TheOldLostRoad
2K Followers 3K Following 31yrs #MECFS. Lone mother of daughters. Left/Green. I have been a hermit and an outcast. And now carer. Not waving.
Fiona Wood ♿️💙.. @fionangreg
401 Followers 784 Following Wife, mum, Christian pwSME/CFS, FND, ME & FND Advocate. Observe small things, don't rush, love & forgive ❤️ #chronicillnesswarrior #loveyourself #loveothers
WEEX Global, Sign Up .. @gvbm8urw1wo
3 Followers 541 Following Click to learn more:https://t.co/uml6TACSHw Official TG：https://t.co/SsEy7VGc2E Official Twitter：https://t.co/N8ZctohyE7
Parsetoth @parsetoth32405
1 Followers 214 Following
Yvonne @heinyvonne72
263 Followers 3K Following
daydreamsoul123 @daydreamsoul123
442 Followers 731 Following She/Her/Hers. I am not Snoopy, pretending to be Joe Cool, a college student. #VoteBlue #Biden2024
SylviaNixon @N71bq7bWa92kv
2 Followers 165 Following
Roysey @Roysey218488
1 Followers 165 Following
Monica 🇺🇸🇺�.. @Silentnomore58
14K Followers 15K Following Grandmother of 3 beautiful girls. Retired get to follow my heart. Passionate about saving our democracy & gardening. It is time to respect not hate! 🌊🌊💐
Elon Musk @EMusk6332
131 Followers 1K Following
Mary @Maryee
1K Followers 2K Following “we aren’t wrong, we are just early” Here for the info on Covid and to help support H & M from the racist trolls. #voteblue #CovidIsAirborne
Tara Munson @TaraMunson
672 Followers 2K Following Disabled Writer, Medical Researcher (EBV,CSFleak, HT,Spine Disabilities) Feminist,AntiEpidural,Nozempic #OPTOUT of epidural&spinal anesthesia during childbirth
Florence @childers_floren
157 Followers 3K Following
SaraA✌🏼❤️�.. @SaraAnn2210
2K Followers 3K Following Tired of the BS. Vote Blue! Solo parent to a child with Autism. Worked in the Court System. Overeducated. Quit the “real world”. Artist & Hippie
Sarah Gebhart 💙�.. @SarahGebhart1
12K Followers 9K Following Confectioner and cake decorator 🏳️🌈 🍰🎂🍩🍪🍮🥧🐷🤡
Poppy 💫🇦🇺☮.. @Trevor_Allan_1
36K Followers 37K Following #BlueCrew #VoteBlue2024 #CancerSurvivor Retired Growing Vegies on Wiradjuri Land Maga on my timeline & LNP will be blocked Crypto Hustlers will be blocked
political snark @KenDavis1480979
7K Followers 7K Following love sports talk, politics, comedy. no DM’s
Shane O'Mahony @SHANEOMahony18
10K Followers 8K Following Husband to Caroline & Dad to Freya ❤️. Life is good, apart from corrupt Tories. #COYS. You and I are gonna live forever! #Music #Oasis #Spurs #ToriesOut No DMs
13_Eleanor @13Eleanor198040
35 Followers 2K Following
Adrian Kenraf @AdrianKenraf
2K Followers 1K Following Author of Soul of the Desert. Husband, father, and software engineer. No DM.
Author J.A. Smith @JulieBeagley1
4K Followers 5K Following Award-winning Best Fantasy Author Where WONDERS OF MYSTERIES UNFOLD
Kaylen Short @KaylenShor17985
117 Followers 3K Following
COVIDBRAIN @COVIDBRAINpubs
62 Followers 244 Following First-wave long-hauler since 2020, with weird neurological symptoms, that in my case may be best to share anonymously. Sharing long COVID brain publications.
KC Martin-Stone @KCMartinStone
2K Followers 5K Following Archaeologist. Comedian. Occasionally competent MF. Leaky bag of brain juice. GoFundMe for medical / survival. She/her
Kaady_05 @NbKLynn
121 Followers 132 Following
Lisa @kikukawahi21743
1 Followers 89 Following
Jase Chen @JaseChen567150
93 Followers 3K Following
Deborah @DeborahLouPeace
377 Followers 657 Following Peace, Be Still 🧬🏂🏽🌨️🎸🎤 🏈Mother, daughter, sister, friend, @BuffaloBills music, painting, snowtubing, social worker. Life is too short, live!!!
String Knife Paper @SKPguy
44K Followers 14K Following Writer about 30 years of #travelling #travel #travelforwork #work.#Africa, #Asia, #Caribbean #Pacific and #SmallIslands. #Speaker too!
Fewtrella @Fewtrella1
2K Followers 5K Following views my own #LongCovid #POTS #Dysautonomia #Cogcom @GivingVoiceUK winner Advocating for Cognitive Communication Disorder Post Covid
Phil Prydderch 🏴�.. @PJPrydderch
1K Followers 2K Following Dad of two | EVs | Born at 332 ppm CO2 | ME, FMS, POTS | @wrexham_AFC ex part-owner⚽️ | M.CIWEM | Flood Defence & Hydrometry
Lets Laugh @2MLTDeirdrek
494 Followers 1K Following Cancer survivor; transplant survivor; Covid survivor; surviving #LongCovid
Meg @PargsP
434 Followers 1K Following Idealist ● Chicago native ● 💙💛🌻 #BLM 🏳️🌈Ally/Pflag ● It is our choices that show who we truly are, far more than our abilities.
TheRealDeal 🌊🌊 @LadyBadass104
2K Followers 3K Following Poet-Jewelry Designer-Artist. 🇺🇸 #VoteBIDEN2024 #NoDemUnder1k #Roe 📚 🇺🇦#BLM🌈 REMEMBER ALL THE TRUMP CHAOS? 🚫Trump 🚫GOP 🚫DM ThnxToAllMyNewFollowers
Manifesting as ME @manifestingasME
135 Followers 283 Following Teacher. Mom. Athlete. Paused. Pacing? Long Covid since 2021. #LongCovid #POTS #ME
Deb - Saints ⚜️�.. @saintsfan60
11K Followers 11K Following Resist! Proud Democrat! Wife, Mom, G-ma. Psychotherapist #BLM✊🏾 #Ally 🏳️🌈🚫DM Followed by @glennkirschner2, @logically_JC, @Joncoopertweets, @donwinslow.
Feretheaul @feretheaul11855
25 Followers 2K Following
Joanne Smith - Jo @_Joannesmith
789 Followers 969 Following ME since 1991.Owned by Shih Tzu called Teddy 🐾 Interested in ME advocacy & research.Dogs.Wildlife. Books. Bit of Politics. #pwme @joannesmith.bsky.social
Brian Bies @BBManuscripts
2K Followers 5K Following I help launch Modern Authors | Published 2,000+ Books | Hoya Alum | Speaker | Author | Write with us @manuscripts_ed
Kimpossible @gazpachopolice0
12K Followers 12K Following 💙Left-leaning Independent. 💜Ravens 🧡O’s ❌Magats ❌GQP ❌DM
TrudaTrollpoe @3W0PTCQY9BV9s
5 Followers 306 Following
LesleyMacAdam @teDlnIO34tltNOY
1 Followers 103 Following
Aggie_VC @VcAggie92921
32 Followers 2K Following
SylviaNixon @N71bq7bWa92kv
2 Followers 165 Following
crr @crr7310
670 Followers 1K Following
@TheChronicCollaborat.. @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Crafty Miss @CraftyMissB
5K Followers 3K Following I'm Beth, embroidery & craft are my buzz. #socialist #pwme #disabled insta: thecraftymissb https://t.co/H4UqOa9igd
Candace D. @DiaryofaSickGrl
12K Followers 1K Following Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
Covid Solidarity @CovidSolidarit1
13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”
Renuka Dhinakaran @renudhinakaran
6K Followers 602 Following International Labour Lawyer Patient Advocate for #hEDS #POTS #LongCovid #rheumatoidarthritis #Dysautonomia Focusing on marriage, parenting & chronic illness
Daniel Moore @Talmandaniel
5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Prof Doug Kell CBE #F.. @dbkell
14K Followers 10K Following Liv Uni. ENTJ. CBE. Against brexit and Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice @[email protected]
Sibylle Dahrendorf �.. @sibylle_berlin
6K Followers 3K Following Once a filmmaker now stuck in horizontal hell | #SmallFiber #BigPain #POTS #MCAS #CCI #Lyme #FQToxicity #ME I Stop denial of #ComplexChronicIllnesses I
Agy Lena 🏳️�.. @agy_lena
9K Followers 290 Following Ex athlete, biker, climber, 1st class biomedicine grad. Entire life lost 2017 post viral ME/CFS. C💉injured 2021 thus turned from pro to anti vax
All of them snollygos.. @OnlyEnnui
3K Followers 2K Following @onlyennui.bsky.social Ex philosopher. #MEcfs activist #hEDS. spinal injury, prescribed benzo withdrawal = hell Expect swearing & sarcasm
Mark @longcovidman
3K Followers 5K Following On pause: management consultant, tech founder & powerlifter. Follow for smart answers to long cov*d as I find them
Kirsty Schnickelfritz @KSchnickelfritz
3K Followers 1K Following Licensed to rest. Untapped resource, just mucking around.
Fiona Wood ♿️💙.. @fionangreg
401 Followers 784 Following Wife, mum, Christian pwSME/CFS, FND, ME & FND Advocate. Observe small things, don't rush, love & forgive ❤️ #chronicillnesswarrior #loveyourself #loveothers
Roysey @Roysey218488
1 Followers 165 Following
Tomi Lahren @TomiLahren
2.5M Followers 1K Following Host of “Tomi Lahren is Fearless” @tlisfearless on @Outkick and @foxnews @foxnewsradio commentator
Pippa Crerar @PippaCrerar
460K Followers 4K Following Political Editor, The Guardian || Political Journalist of the Year [email protected]
Brigitte Gabriel @ACTBrigitte
1.1M Followers 2K Following Survivor of Terrorism. @ACTforAmerica Founder & Chairman. NYT Best-Selling Author. National Security Expert. RTs/Likes are NOT Endorsements. OFFICIAL ACCOUNT.
Lamorne Morris @LamorneMorris
328K Followers 13K Following A very serious and dramatic actor as you may have noticed.
Sen. Marsha Blackburn @MarshaBlackburn
1.2M Followers 2K Following I am honored to serve the people of Tennessee.
Emily Rodman 🌻 @EmilyRodman45
3K Followers 3K Following An illustrator with a diverse art style. character design, cover art/sci-fi/fantasy/comic/fan art. Gamer 🎮
Sandy 🌻🇺🇦�.. @srosnato
9K Followers 9K Following Nurse, Animal and Nature Lover, Politics, Independent, Never Trumper, Resister 🌊, #BlueStormComin1, #GVerse, #FBaRmy, Vaxed and boosted, Science, 🚫DMs please
Kayleigh McEnany @kayleighmcenany
3.5M Followers 3K Following Co-host @OutnumberedFNC. Fmr. White House Press Secretary. Author of "Serenity in the Storm.” Harvard Law. Georgetown SFS.
Mary @Maryee
1K Followers 2K Following “we aren’t wrong, we are just early” Here for the info on Covid and to help support H & M from the racist trolls. #voteblue #CovidIsAirborne
daydreamsoul123 @daydreamsoul123
442 Followers 731 Following She/Her/Hers. I am not Snoopy, pretending to be Joe Cool, a college student. #VoteBlue #Biden2024
Tara Munson @TaraMunson
672 Followers 2K Following Disabled Writer, Medical Researcher (EBV,CSFleak, HT,Spine Disabilities) Feminist,AntiEpidural,Nozempic #OPTOUT of epidural&spinal anesthesia during childbirth
Lauren Boebert @laurenboebert
3.4M Followers 1K Following Lauren Boebert for Congress: Congresswoman & candidate for CO-04. Professional RINO Hunter. Raising my boys to be MEN before liberals teach them to be women!
Adam Carolla @adamcarolla
803K Followers 412 Following Host of the @AdamCarollaShow on @PodcastOne. Three time @NYTimes best selling author.
Katie Pavlich @KatiePavlich
1.1M Followers 2K Following Proud & Grateful American 🇺🇸 “Are you not entertained? Is this not why you are here?” ⚔️ Enjoying a wild ride in a front row seat to history. 🎥📰 📺
David Spade @DavidSpade
2.8M Followers 60 Following This is the real, official David Spade. Any other accounts are fake.
Ben Shapiro @benshapiro
6.7M Followers 378 Following Daily Wire co-founder, host of @benshapiroshow, #1 NYT bestselling author, America’s #1 ex-rapper
Jenna Ellis @JennaEllisEsq
1.0M Followers 2K Following A servant of Jesus Christ. Radio at @AFRnet. TV at @watchsalemnews. Pod at link in bio. Nominated by RNC Co-Chair Lara Trump for LIVING LEGEND STATUS.
Randy Quaid @RandyRRQuaid
926K Followers 1K Following Texan, Actor. Randy Quaid Films @FilmsQuaid Wife- Evi @evgeniaquaid Have a great furry son Doji! THE LAST DETAIL, KINGPIN.🎳 Between pictures.
EastValley.com @EVTNow
28K Followers 4K Following A digital aggregator of community news in the East Valley. You can also follow us at @ChandlerNews1, @GilbertSunNews, @TempeTribune and @VarsityXtra.
Kari Lake @KariLake
1.9M Followers 1K Following Follower of Christ. Wife to Jeff. Mother to Ruby & Leo. A Nightmare for the Fake News. Trump-Endorsed Nominee for U.S. Senate in Arizona. #AmericaFirst
Dominique Lanuto @DominiqueLanuto
304 Followers 78 Following
Trish @Trish15770305
240 Followers 60 Following
Debra Namara @debra_namara
477 Followers 16 Following
Josh @JoshAlexCairo
16K Followers 3K Following photo/videographer, cam operator, audio/video editor // en/es, he/him, bi & poly // @LiamD_H 💜
Marie Lincourt @Marie5592831788
193 Followers 53 Following
Professor Lynley Wall.. @LynleyWallis
2K Followers 1K Following Australian archaeologist sometimes writing about fieldwork adventures in Australia. Proud feminist. Views expressed are my own.
@leurah_ Hi- im not good at mail but i thought Id share some info. and theories to see if it could help. LONG COVID = Coronavirus+ CSF leak medium.com/@epipoleofphoe… ME/CFS= EBV/Mono+ CSF leak medium.com/@epipoleofphoe…
@jk_rowling The same chemical exposure (epidural&spinal anesthesia)during pregnancy that gave them #Autism also made them #trans,#nonbinary& asexual.Why would u think it’s ok 2 ridicule people w/circumstances they didn’t choose. Someday someone u love will be trans.Harriet Potter sounds fun!
@jk_rowling You’re a fool, #JkRowling.Just as god made you a woman, god made a life path for those u despise. Do u know most people on #ASD are also #trans, nonbinary or asexual? Do you know why? Did you do any research at all?When u walk w hate, u walk the wrong way.
@fionangreg Oh, ok, I understand. If u do have a leak, then a beta blocker, staying hydrated, flat bedrest, a muscle relaxer & caffeine will help your body feel better. Hoping you can get some imaging soon! ( :
@EpipoleofPHX Well I have fibromyalgia. The health system here isn’t that easy to get a certain tests. We’re lucky now we’ve got health insurance but even then you have to be referred by your NHS GP 🤷♀️🤦♀️
@SarahOC_MECFS I do medical research... I think #LC=Covid-19+CSF leak I think #MECFS=EBV/mono +CSF leak Doctors probably havent searched for one, but thats what I would ask them to look for. If they can seal it, a patient could improve greatly, maybe even heal. medium.com/@epipoleofphoe…
@EpipoleofPHX I’m always in pain everywhere particularly neck & shoulder but told I’ve got nerve impingement from C5&6 🤷♀️
@EpipoleofPHX Thank you but I doubt the NHS will do that without specific reasons. Once you’ve got a label/diagnosis it’s a case of job done. My GP is very good & addresses other issues. I’ll google symptoms but I’ve got a lot going on right now as trying to sort out source of stomach pain
@EpipoleofPHX @SurvivingCFS @lilnick000 @JessicaHAbdo @JennyCochrane @cfs_jo @MrsProctor2010 @kirstler31 @Talmandaniel @KirstieSivaP Can you provide a link to article. The only thing I can comment on is that EBV is a virus & most pwME inc myself are triggered by not recovering from a virus. In my case I had an infection, laryngitis, the flu & glandular fever (EBV) all in a 3 month period 🤷♀️
“Are #CSF Leaks & #EBV causing CFS(Chronic Fatigue Syndrome)/ME?” medium.com/@epipoleofphoe… 04/27/24 @SurvivingCFS @lilnick000 @fionangreg @JessicaHAbdo @JennyCochrane @KSchniekelfritz @TheChronicCollab @cfs_jo @MrsProctor2010 @kirstler31 @Talmandaniel @KirstieSivaP
@COVIDBRAINpubs @EpipoleofPHX @SawyerBlatz CSF leaks are not widely understood by doctors, and are vastly under diagnosed. Some research shows 94% of cases are misdiagnosed and 100% missed in ED. It’s highly likely that many patients with chronic neurological conditions have undiagnosed CSF leak.
@COVIDBRAINpubs @EpipoleofPHX @SawyerBlatz Leaks can also be caused by trauma, even otherwise ‘minor’ trauma. If someone has previously had an epidural or lumbar puncture, they can be predisposed to CSF leak. A recent paper found one from a LP 15 years prior.
@NeurologistMom Has she been checked for a CSF leak? I have a theory that CSF leaks are responsible for many mystery illnesses… LC, ME/CFS, secondary POTS (proven).
the map of the world is inaccurate #TikTok tiktok.com/t/ZPRwB73dP/
What US states use cloud seeding? In the Western U.S., state and agency-supported efforts occur across California, Nevada, Colorado, New Mexico, Wyoming, Kansas, Oklahoma, Texas, North Dakota, Utah, and Idaho.Mar 15, 2023 dri.edu › making-it-sn... ADD ARIZONA
I think this is Cloud seeding with Silver iodide (AgI) is an inorganic compound that can act like a magnet for water droplets. #TikTok tiktok.com/t/ZPRwBVta4/
@DHD @Nesthesia If ur curious if what Im saying is accurate, please research it. Ask me questions if anything I write relates 2 ur own health situation.On my patreon,I have articles on my theories & provide proof. Im going to work on making those FREE 4 everyone 2 read.Thanks 4 ur support,y’all!
Trends for United States
You might like
