Seren Sketches @SerenSketches
Disabled Artist living with Myalgic Encephalomyelitis. Only posting art on IG & FB (both @serensketches). Art is available to buy on Redbubble & Etsy. (she/her) linktr.ee/serensketches Birmingham, England Joined March 2015-
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Thank you [email protected] for calling today's Westminster Hall debate & speaking so passionately for #pwME & to all the MPs who spoke. Very disappointed @Andrew4Pendle committed no new money for research or firm date to publish Delivery plan before election.
Thank you so much for leading this and for all the members who spoke up raising the issues that people with ME highlight non stop. Hearing people in power highlight over and over how we have been failed and deserve more was extremely validating.
Thank you so much for leading this and for all the members who spoke up raising the issues that people with ME highlight non stop. Hearing people in power highlight over and over how we have been failed and deserve more was extremely validating.
Carla, Millie and Karen have all been mentioned in the #MEDebate at Westminster Hall 🙏🏻 #BringMillieHome #SaveCarlasLife
Debate starting in 30mins 👇🏻
Transcript of the video on the reply below it
Transcript of the video on the reply below it
I was sat in my GPs and he went to print off a prescription and said “oh it seems you are dead!” Never found out why the computer system suddenly killed me off. It’s not like I have a name that could be confused with someone else.
STOP TRYING TO FORCE EVERYONE TO MONETIZE THEIR HOBBIES AND TURN THEM INTO BUSINESSES! ENCOURAGE PEOPLE TO HAVE HOBBIES THAT DON'T REQUIRE THEM TO PRODUCE FOR OTHERS. STOP TRYING TO CREATE JOBS OUT OF JOY. LET JOY EXIST AS IS.
The fact that hardly any disabled activists have been asked to speak about the dwp stuff on tv and radio this past fortnight speaks volumes
My heart breaks for Carla, Pierre & Caroline. Despite the hospital agreeing to carry out an MRI, CT, EEG & lumbar puncture none of them have been carried out as planned. All procedures have been cancelled. Why? This is just plain cruel. #SaveCarlasLife
My heart breaks for Carla, Pierre & Caroline. Despite the hospital agreeing to carry out an MRI, CT, EEG & lumbar puncture none of them have been carried out as planned. All procedures have been cancelled. Why? This is just plain cruel. #SaveCarlasLife
Is… is that it? Are we done?
UPDATE: #SaveCarlasLife - it seems the hospital are finally doing something positive - but still not quite enough - plus #BringMillieHome FYI transcript of the video in reply below:
Here's an example of some of the costs: New cane: £51 Cane tips: Anything from £4.25 to £17 depending on the type. JAWS screen reader: £735 Two further updates to JAWS: £240 Cost of food shop delivery (can't drive and closest shop won't assist): Anything from £3 to £7
Here's an example of some of the costs: New cane: £51 Cane tips: Anything from £4.25 to £17 depending on the type. JAWS screen reader: £735 Two further updates to JAWS: £240 Cost of food shop delivery (can't drive and closest shop won't assist): Anything from £3 to £7
1426 people have signed this 💚💚💚 would be nice to get to 1,500 before midday tomorrow #SaveCarlasLife #BringMillieHome
1426 people have signed this 💚💚💚 would be nice to get to 1,500 before midday tomorrow #SaveCarlasLife #BringMillieHome
friendly reminder that they don’t just hand out PIP to anyone that fancies it!!! i am multiply disabled and have been too scared to ever apply for it because every single person i know that receives PIP has been subject to a lengthy and traumatic assessment process
GP said today his preferred reference source is CKS (Clinical Knowledge Summaries). CKS covers 370 topics with a 'focus on the most common & significant presentations in primary care'. There's no CKS for ME - not important or prevalent enough to be listed in an index used by GPs?
PLEASE SHARE The DWP consultation on PIP is out. The gov is trying to take away a vital benefit for so many disabled people Closes 22nd July gov.uk/government/con…
Looks like we’re at it again aren’t we? Let’s clarify: I am in work, as a disabled person and I am claiming PIP to enable me to be in work! I have a job and I claim PIP to help with extra costs of being disabled. Can news outlets get this right? #Yorkshire
The government is continuing its reckless assault on disabled people. This consultation is not about what's right or fair. It's hard to believe that it's about anything other than cutting costs, no matter the impact.
The government is continuing its reckless assault on disabled people. This consultation is not about what's right or fair. It's hard to believe that it's about anything other than cutting costs, no matter the impact.
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Phoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Crafty Miss @CraftyMissB
5K Followers 3K Following I'm Beth, embroidery & craft are my buzz. #socialist #pwme #disabled insta: thecraftymissb https://t.co/H4UqOa9igd
Winston Blick @winstoncb
3K Followers 901 Following #MECFS post-viral #longhauler | ally of #LongCOVID | quoter of @mecfsquotes | previously, 🚵🏼♂️ 🏂 🏃🏻🏕️ 📖
Clare Daly @clarejdaly
6K Followers 1K Following Usually a #WomanInTech - Year 4 of #LongCovid (2020) | #MECFS (1993)
ME Association @MEAssociation
20K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RTs do not necessarily mean endorsement.
KT King @KTKINGbooks
2K Followers 3K Following Author of Little Eden novels📚💎awakener🗝 🌏inspirational 😇🤗enlightenment 🌈💎higherconsciousness👽😇compassion 🌈🦄ME/CFS/Fibro🙁🙏💖 RTs 👍 millionsmissing
Sarah O'Connell @SarahOC_MECFS
4K Followers 4K Following ME #pwME patient 10 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
MoleyMECaroline🦔 @tweetingmole
2K Followers 3K Following feel like a mole living in a dark ME/CFS hole sharing thoughts ,trying to make a small difference. Lancs U.K. - #bekind also @MoleyME.bsky.social
Ben H @benh_mecfs
6K Followers 3K Following ME/CFS patient advocate, @OpenMedF science correspondent. Bedbound. Former: biochemist in training, Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
Candace D. @DiaryofaSickGrl
12K Followers 1K Following Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
Sonic Death Monkey @Parkesy1701
1K Followers 3K Following Myalgic Encephalomyelitis (ME) sufferer. Ill since Nov-19. On long term sick trying to keep it together for my family. Just about managing. #ME #POTS #MCAS
Matthew Dalby @MatthewJDalby
7K Followers 5K Following
Easy Surf #Accessibil.. @easysurf_ca
989 Followers 805 Following Fight the familiar. Build without barriers. Include people with disabilities in the creation of your website, app, or game. | Auditing | Testing | Consulting
Nick Wellings @Nick_Wellings
3K Followers 5K Following used to love opera + ballet, some books. now disabled by ME
Milo Anthony Ventimig.. @Milo_anthony665
4 Followers 285 Following Art owner #Meilivodka &#Meilivodka Authorized private account On X...Aloha
Script Haven @scripthavenltd
2K Followers 4K Following Thriving independent bookshop, coffee shop, event venue, and safe community haven in Worcester. Find us at 'Script Haven LTD' on all social media platforms!
JJ @M02181653M
2K Followers 5K Following #TreatLongCovid #LongCovid #Notrecovered #MECFS #MillionsMissing #PwME #BC007
Jon Evan Glaser @ImagesByJonEvan
89K Followers 84K Following I was a dentist until #MS affected my hands&mobility. Now I create #photographs! Capturing the imagery of nature’s power and serenity in stunning prints.
J Peace 3 @JPeaceJPeace
32 Followers 95 Following
Max Wassermann @MaxWassermann2
1K Followers 1K Following 20+ || life paused due to #MECFS since 2013 || likes video games and cats || team member of StartaMEvolution
Dr Anna Markham @markham_dr
303 Followers 613 Following Forensic psychologist specialising in children and adolescents with high risk behaviours
Andy P, aka Case @AndyP4161617089
298 Followers 1K Following UK Artist. #drawing #painting #sketching #comic art. A passion for Sci fi & fantasy. #Spraypaint art . Interested #UAP, #UFO & Paranormal. No NFTs.
Philippa 🐟 @eunoia80
2K Followers 5K Following ME Warrior, hydrocephalus, Spoonie, Loves arts and crafts. Often in too much pain, fatigued, brain fogged to do much: but I am a Survivor! 🐟
Anna Wood @Annakwood
3K Followers 2K Following STEM Ed researcher @UniEdinburgh (part-time). Physicist, digital education, bird photographer, #mecfs Author of 25 Birds: https://t.co/DcN0WiZVAy
Pauline boyd @princesspenny62
418 Followers 4K Following Busy trying to save my life from a Fatal disease from Toxic mold in my Rental home. Owner fatally poisondd me and Retailiaton horroibly for the last 5 years
Luna @YggeH13655
14 Followers 791 Following
Krystal Gault @Kitschmonkey
3K Followers 3K Following Former Film & Video Director/Producer, Dir. Cinematopia Film Events. One of the #MillionsMissing Artist & dreamer ME/CFS | Medical Science | Politics | Art
Kirstie Stage @StageKirstie
1K Followers 3K Following Researching histories of Deaf and disabled people 1970-2010. All views my own. @UKDisHistHub. Taking a break on here. Photo credit: Lloyd Mann.
dSavannah = #disabled.. @dSavannahCreate
3K Followers 4K Following #spoonie FT sick since 12/2014 #ChronicFatigue #ChronicPain When brain & body behave: #blogger & #advocate #DogCatTurtleWrangler #wife #feminist #ally she / her
#NatureInBed @natureinbed
96 Followers 76 Following #NatureInBed, a place for chronically ill & disabled people to enjoy wildlife when unable to access it offline. Run by @helen_melon__
Bef 🏴�.. @befbadbelly
3K Followers 1K Following capitalists posing as compassionates be offending me. | 29 | welsh | she/her | ostomate | feminist | free 🇵🇸 | 🏳️🌈🏳️⚧️safe | no DMs | 18+
Ri Leedham @RiRi48209
8 Followers 33 Following
Telouleas @telouleas83760
4 Followers 986 Following The membrance of the past is the teacher of the future.
Stephen Beaumond @BeaumondSt29018
150 Followers 1K Following Go Wild in Winter. From the first Brambling to the first Brimstone - promoting biodiversity & colour in the winter garden. #wildinwinter #wintergardening
David Matthews @David_M_Writing
349 Followers 674 Following No, I don't have a band. Retired architect and habitually grumpy aspiring author. Advocate for a daughter with #EDS #MCAS and #POTS
Andrea Barrett @andreabarrett__
2K Followers 4K Following Artist-Activist 🎨🛡 Patient Rep for NHSBT🫀🫁💙 Co-Ordinator @HeartOfThe_Arts 🎗💕 Also:🐈🌲 #HeartTransplantRecipient #EBV #CancerSurvivor #LongCovid #AuDHD
Who's that girl? 💛.. @theonlyJLD
276 Followers 1K Following 🦓 •🥄• 🎶 • 📚 • 🎬 • 📺 • 🥱 😴 • 🇪🇺 • ♀️ she/her
Lionhart 🔜 WASD @LionHart__
3K Followers 1K Following He/Him | Lifelong gamer | @Twitch Partner | | eSports Caster | Narrator / Aspiring VA | Enquiries to [email protected] | All opinions my own
Andy @Drew2248834S
4K Followers 5K Following im Andy im 36 im a gamer and streamer and a Dr and a dentist i o not give giftcards to anyone i dont give money i dont use singal telegram whats app or snapc
Surendar Madaan @surenda54667453
37 Followers 275 Following Disabilities Activist work in @GNYPWD @Poet @human right activist
🎀 Dr Poppy 🎀 @poppygibsonuk
83K Followers 90K Following Author & speaker on Wellbeing in education 🧠 Educator for 18 years 🧑🏫 SFHEA Senior lecturer @angliaruskin 🏫 sepsis survivor❤️🩹 podcaster 🎙️ horror fan📕
The Meep Life (by Ash.. @the_meeplife
107 Followers 446 Following #pwME since 2004, when I was 22. Homebound, mostly bed bound. #postviral #MECFS / probably #POTS #MCAS #neurospicy / maybe #fibro
Saima Razzaq (She/Her.. @McSaima
5K Followers 4K Following Director of Change and Communications @BirminghamPride | Board @ArtsInTheYard, @B_Impact_FC
bethereificould @bethereificould
605 Followers 1K Following A mirrorbox and map taking messages from people with ME/CFS or long COVID to places they love but can no longer get to #ACEsupported #socialart #missingmillions
fight.ableism @FightAbleism
1K Followers 1K Following follow my tweets at #FightAbleism | eds & co| disability awareness & advocacy| malpractice survivor| intractable pain| https://t.co/jA2iUJ2Caz
OperationDizzy🌀 @OperationDizzy
250 Followers 379 Following | TwitchAffiliate | Lgbtqia+ #Pride | Go Live Tweets | Retired Cross Country Runner. Balance. Moderation. Resilience. So much love, no room for hate - OD 🏳️🌈
Lozza 👾 (they/them.. @LozzaGilbert
1K Followers 2K Following award-winning queer, disabled content creator, streamer & activist 🌿 Views my own and all that 📧: [email protected]
Hrefna @hrefnask
1K Followers 869 Following #Mecfs & #Pots since 2012. Currently moderate/severe and mostly housebound. 🏳️🌈 She/her From the river to the sea, Palestine will be free 🇪🇭
Auntie K. (she/her) @CrayzyAuntie
217 Followers 1K Following Science nerd, show me the data. she/her 🏳️🌈-ally, 🏳️⚧️-ally, BLM, pro-choice, ME/CFS & Endometriosis suck. https://t.co/oEKJnmwCDp. what I say ≠ advice
Laila 🌻 @lailamourthe
215 Followers 2K Following Architect / 🏢🔬 . A decade through ME/CFS. #homebound 99% and #bedbound 80%.
Cats @FLAsun22
672 Followers 3K Following Life is so precious! We should support each other for maximal health. No gods, no masters. #science #transhumanism #communism
Maria Oliver 🧘�.. @boxmooryoga
665 Followers 665 Following I teach yoga in Hemel Hempstead. I write yoga adventures and relaxations for kids. she/her https://t.co/3nm4FDyfA7
Bas Koelewijn @BasKoelewijn
2K Followers 5K Following Disability research, advocacy & inclusive education. Overly invested in sports and the dog 🐶. Chronically ill but definitely not lesser than. He/Him.
N🤗VA ME-CFS/POTS/L.. @CFSnova
541 Followers 1K Following For pw/caring4 long haulers: ME/CFS/FMS; Orthostatic Intolerance, POTS; Long Covid; Chronic Lyme. VDR immunopathy. MTHFR+. MCAS. By @NovaSupport Elly Brosius.
Flor 🥀 @lugaresxcomunes
1K Followers 1K Following we need funding for research and treatments for Myalgic Encephalomyelitis and Long Covid NOW | #pwME
Leonora (Leo) Gunn @LeonoraGunn
445 Followers 2K Following Philosophy of disability PhD candidate @WRoCAH @CDSLeeds @LeedsPRHS. Working with @chronicinclude. Book hoarder. She/her
healthconscious @healthyappy
25 Followers 2K Following
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Tom Kindlon @TomKindlon
14K Followers 579 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Anil van der Zee © @AnilvanderZee
9K Followers 825 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Kirsty Schnickelfritz @KSchnickelfritz
3K Followers 1K Following Licensed to rest. Untapped resource, just mucking around.
Richard Vallée @richardvallee
3K Followers 5K Following I play language. Mostly irreverent. Debugger. AI, global warming, integrity, healthcare & science. Chronically ill. #MillionsMissing #pwME #MEcfs
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Crafty Miss @CraftyMissB
5K Followers 3K Following I'm Beth, embroidery & craft are my buzz. #socialist #pwme #disabled insta: thecraftymissb https://t.co/H4UqOa9igd
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Winston Blick @winstoncb
3K Followers 901 Following #MECFS post-viral #longhauler | ally of #LongCOVID | quoter of @mecfsquotes | previously, 🚵🏼♂️ 🏂 🏃🏻🏕️ 📖
Clare Daly @clarejdaly
6K Followers 1K Following Usually a #WomanInTech - Year 4 of #LongCovid (2020) | #MECFS (1993)
Laura Elliott @TinyWriterLaura
14K Followers 2K Following Writer, maker, chronic illness incubator. Disabled journo. Words in @guardian, @MetroUK, @theipaper, @BylineTimes etc. Rep’d by @PortyLiterary
ME Association @MEAssociation
20K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RTs do not necessarily mean endorsement.
Dr Keith Geraghty @keithgeraghty
9K Followers 500 Following Research Fellow | Primary Care, Medical & Health Psychology | People-focused, evidence-based | @FBMH_UoM, @PrimaryCareMcr
#MEAction Network @MEActNet
20K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Josie George @porridgebrain
42K Followers 2K Following Writer | Artist | Author of A STILL LIFE: A Memoir | Just living quietly | Photos/artwork: https://t.co/rHqsaOEH49
Easy Surf #Accessibil.. @easysurf_ca
989 Followers 805 Following Fight the familiar. Build without barriers. Include people with disabilities in the creation of your website, app, or game. | Auditing | Testing | Consulting
Stryx @StryxArts
3K Followers 726 Following Stryx is an artist led studio and exhibition space in Digbeth formed by Fine Art graduates from Birmingham Institute of Art & Design.
Steve Topple @MrTopple
33K Followers 5K Following Journalist @TheCanaryUK | Journalist @BywireNews | Vibes @Reggaeville @PauzeRadio | Contrib @RadArtReview | Project lead @ #CanaryAmplify | Views my own etc.
derek guy @dieworkwear
850K Followers 963 Following Menswear writer. Editor at @putthison. Creator of @RLGoesHard. Bylines at The New York Times, The Washington Post, The Financial Times, Esquire, and Mr. Porter
Jon Evan Glaser @ImagesByJonEvan
89K Followers 84K Following I was a dentist until #MS affected my hands&mobility. Now I create #photographs! Capturing the imagery of nature’s power and serenity in stunning prints.
Max Wassermann @MaxWassermann2
1K Followers 1K Following 20+ || life paused due to #MECFS since 2013 || likes video games and cats || team member of StartaMEvolution
Anna Wood @Annakwood
3K Followers 2K Following STEM Ed researcher @UniEdinburgh (part-time). Physicist, digital education, bird photographer, #mecfs Author of 25 Birds: https://t.co/DcN0WiZVAy
Kirstie Sivapalan @KirstieSivaP
3K Followers 2K Following Making a noise about the injustices & lack of support for #pwME #LongCovid 💙 @[email protected] 🐘 @KirstieSivap 🐳 @kirstiesivapalan 🧵
Derya Unutmaz, MD @DeryaTR_
290K Followers 4K Following Professor, medical scientist, immunologist @jacksonlab research in aging & cancer immunotherapy. Interests: #longevity #robotics #AI #Scifi #tech #space🇺🇸🇹🇷
Cat Fraser @catsocialintel
3K Followers 5K Following Energy Impaired, Global Health +Business. Ecosystem Builder @laboflivedexp. @TheWHN Untreated #pwME #pwLC #POTs #LongCovid #green #futures #ai #analyst #writer
Mouth Painter Jen @7eniferpov
10K Followers 2K Following 18+ !!!!!!! Your favorite mouth painter • commissions open • I draw nudes
Hollie-Anne Brooks �.. @HollieAnneB
9K Followers 5K Following Award winning freelance journalist & broadcaster. Disability/politics/travel. Living a beautiful slow life with ME/fibro ✨ Tortured Poet 🤍 LPool N2 💜 SAFC ⚽️
Bef 🏴�.. @befbadbelly
3K Followers 1K Following capitalists posing as compassionates be offending me. | 29 | welsh | she/her | ostomate | feminist | free 🇵🇸 | 🏳️🌈🏳️⚧️safe | no DMs | 18+
Joan McParland MBE-My.. @JoanMcparland
414 Followers 433 Following 1999 Sudden-onset virally induced, WHO classified Myalgic Encephalomyelitis - a multi-system chronic disease NOT tired/fatigued. Breakthrough Leader NICON2018
Craig Smye @CraigSmye
1K Followers 2K Following Human artist, gamedev, designer. Bad at Twitter, but working on it. https://t.co/hZaeB5aBLC
nico (perpetually lif.. @unicornthorn
5K Followers 3K Following dude+. landlord hate account. sick at every size. 30+. (he/they, yes I am a ~person w/ pronouns~)
Community Notes @CommunityNotes
935K Followers 0 Following Empowering users to create a better-informed world. We're open source and data is publicly available: https://t.co/Te3IjR10Ix Q? Reply/DM
mallory (she/her)💬 @this_is_mallory
30K Followers 1K Following hi, I’m mallory 🙋🏻♀️ let’s talk about misinformation, the ✨Wellness✨ industry, influencers, and MLMs | views are my own
CureME - UK ME/CFS Bi.. @mecfsbiobank
4K Followers 214 Following Driving clinical and biomedical research for recognition, diagnosis and treatment of ME/CFS at @LSHTM. Home of the UK ME/CFS Biobank. Advocating for #pwME.
Lisa Wellwood Artist @studio22artz
20K Followers 3K Following Somerset Artist. Living with chronic pain is no joke. https://t.co/zMrcBR2QE1 https://t.co/LYR0tcgjaF
Dr Shani Dhanda @ShaniDhanda
6K Followers 3K Following Accessibility Consultant, Author, Broadcaster. Most Influential Disabled Person in the UK. Enquiries: [email protected] Enjoying a life less ordinary ✨
Almara Abgarian @almaraabgarian
18K Followers 859 Following Journalist I Deputy editor @jampressltd I Sex columnist @MetroUK I Regular guest @BBCRadioLondon I Specialise in sex & dating but I write about other stuff too
Lionhart 🔜 WASD @LionHart__
3K Followers 1K Following He/Him | Lifelong gamer | @Twitch Partner | | eSports Caster | Narrator / Aspiring VA | Enquiries to [email protected] | All opinions my own
Birmingham Independen.. @thinkBIGart
120 Followers 105 Following BIG are a list of local independent galleries based in Birmingham. Each gallery has a passion for supporting local artists, and is locally owned.
Matthew Dalby @MatthewJDalby
7K Followers 5K Following
bethereificould @bethereificould
605 Followers 1K Following A mirrorbox and map taking messages from people with ME/CFS or long COVID to places they love but can no longer get to #ACEsupported #socialart #missingmillions
Aja Barber @AjaSaysHello
36K Followers 2K Following She/her/they. Author of Consumed. Contributing editor at @ElleUK. Fashion is best when it is slow, ethical and inclusive! https://t.co/AOWSwVPjX1
Jacqui @JacquiAnimator
757 Followers 1K Following Animator who has made lots of characters run about in games over the years. Lecturer. Mum. knackered. (opinions are my own and do not represent my employer)
Birmingham Restaurant.. @BRestaurantFest
1K Followers 187 Following A month of great value menus & exciting dining experiences at restaurants across the city || 1 - 31 August 2024 || Find us on Instagram!
GhostArya @GhostArya_
785 Followers 605 Following Czech in UK | @PlayGwent eSports casters | Streamer | Gamer | DBT therapist | Chaotic energy | [email protected]
Chris van Tulleken �.. @DoctorChrisVT
98K Followers 2K Following Infection Dr @HTropDis Assoc Prof @UCL TV: @MiradorMgmt Books: @RCWZW Author - Ultra-Processed People https://t.co/0aSCeC2yYk
Holly Brockwell @holly
121K Followers 59K Following I run Holly's Merry Moggies, a no-kill shelter for disabled, elderly & unloved kitties. In Nottingham but rehoming across the UK. [email protected]
The Cube @thecubebham
11K Followers 6K Following A world-class destination in the heart of #Birmingham. Home to a vibrant mix of indulgent #restaurants and #bars, a luxury #hotel and a #bowlingalley.
Rebecca Fitzjohn @TateFitzjohn
118 Followers 330 Following Digital Communications Officer @ProBonoEcon Disabled and chronically ill/Cat Wrangler/ Infographic Inspector. Previously in Investor Comms She/Her/They
Saima Razzaq (She/Her.. @McSaima
5K Followers 4K Following Director of Change and Communications @BirminghamPride | Board @ArtsInTheYard, @B_Impact_FC
Jay Hulme @JayHulmePoet
56K Followers 2K Following Poet. General Nuisance. Lots of tweets about churches. Occasionally queer theology. Unapologetically trans (he/him)
Alice Ella @alice_ella_
2K Followers 694 Following #Singer #Songwriter #spoonie ✨ https://t.co/cIkAi3qjCi ✨ Instagram: https://t.co/JK09n6cdAZ ✨ YouTube: https://t.co/NjLGmK0zpJ ✨
Sally Doherty writes .. @Sally_writes
12K Followers 4K Following MG author: TOBY & THE SILVER BLOOD WITCHES. Winner @bbnya_official, SL Selfies & Rubery 2022. Coming Sep '24 @collinsprimary. Nature. Dogs. Books. ME/CFS♿
Little Kitty, Big Cit.. @LittleKittyGame
33K Followers 160 Following A curious little kitty, adventuring to find their way home coming May 9th on PC, Switch and Game Pass 🟢Wishlist: https://t.co/vF178oxYTM 🔗https://t.co/wLeUcR47KW
0121 LEGACY @0121LEGACY
122 Followers 47 Following The History and LEGACY of the Birmingham rap and grime scene… 📚 and 🎬 2023. #Legacy0121
The Trevor Project @TrevorProject
346K Followers 6K Following The leading suicide prevention organization for LGBTQ youth. Text START to 678678, call 1-866-488-7386, or visit https://t.co/ZANQNrK6gY
Gendered Intelligence @Genderintell
50K Followers 4K Following The national trans-led charity, improving the lives of trans including non-binary people in the UK
Alice Fricker💘 @FrickerAlice
764 Followers 292 Following 19, Bedridden for 8yrs with #VerySevereME #hEDS #SFPN #MCAS #PoTS Chronic Insomnia & Chronic Bladder condition. Mother helps run account.Thank you [email protected] for calling today's Westminster Hall debate & speaking so passionately for #pwME & to all the MPs who spoke. Very disappointed @Andrew4Pendle committed no new money for research or firm date to publish Delivery plan before election.
Correction, we do NOT have safe access to care, and actively avoid contact.
Just publish the Plan! #MEdebate Yes it’s important to get it right, but it’s a crisis. We need change NOW. We currently do have any safe access to medical services and care.
Relief, for now! #SaveCarlasLife #ExposeMENow
"We win this time" - UPDATE on #SaveCarlasLife it's amazing what happens when you have a prominent barrister on speed dial... #ExposeMENow
Looking forward to leading this important debate on M.E. today. Such an important issue which impacts so many families across the country. Much more needs to be done.
🚨 Reminder 🚨 Tomorrow, May 1, Sir @sajidjavid MP will be leading a Westminster Hall debate in the Houses of Parliament, 16.30-17.30 You can watch the debate live on Parliament TV: ow.ly/wxan50RsgYs
Carla, Millie and Karen have all been mentioned in the #MEDebate at Westminster Hall 🙏🏻 #BringMillieHome #SaveCarlasLife
@Naomi_D_Harvey @SerenSketches most people for most health issues get a good care bc doctors have seen it before & know how to treat getting a dx for my rare disease (endogenous cushings) was really hard but then I received good care bc it was understood ME isn't rare but isn't understood so we're on our own🫠
Debate starting in 30mins 👇🏻
🚨 Reminder 🚨 Tomorrow, May 1, Sir @sajidjavid MP will be leading a Westminster Hall debate in the Houses of Parliament, 16.30-17.30 You can watch the debate live on Parliament TV: ow.ly/wxan50RsgYs
Transcript of the video on the reply below it
URGENT UPDATE #SaveCarlasLife Psychiatrists are some of the most narcissistic, toxic people going. It's all suddenly kicked off today #ExposeMENow WATCH:
I've been rejected by women SEVERAL times and not once did I come close to wanting to get violent or anything towards them. I went home and listened to sad R&B songs like a real man
This is the Britain I love
Scarborough woman wants answers after being told she is dead bbc.in/3wlqDsk
STOP TRYING TO FORCE EVERYONE TO MONETIZE THEIR HOBBIES AND TURN THEM INTO BUSINESSES! ENCOURAGE PEOPLE TO HAVE HOBBIES THAT DON'T REQUIRE THEM TO PRODUCE FOR OTHERS. STOP TRYING TO CREATE JOBS OUT OF JOY. LET JOY EXIST AS IS.
I may or may not be involved (of course I am)
TONIGHT 8PM: We're pleased to say we're launching our website during #MEAwarenessHour TONIGHT at 8pm. This is a project that everyone can be involved in - so we hope you'll be online later today for the launch #MEcfs #EDSAwarenessMonth #SaveCarlasLife thechroniccollaboration.com
The fact that hardly any disabled activists have been asked to speak about the dwp stuff on tv and radio this past fortnight speaks volumes
Off for a nap, so I’m ready for HoC debate on ME. Anyone new to this might be angry at the lack of attendees but small numbers are standard unless they’re debating payrises or war🙄 I will be calmer than when I watched in 2019 - that wiped me out and put me back in bed #MEDebate
My heart breaks for Carla, Pierre & Caroline. Despite the hospital agreeing to carry out an MRI, CT, EEG & lumbar puncture none of them have been carried out as planned. All procedures have been cancelled. Why? This is just plain cruel. #SaveCarlasLife
@TheChronicColab Until this minute they didn’t do any of the promises procedures, every single day they promise us tomorrow will make her the procedures,and I have to cancel my appointments,and the next day come, then I find out everything have been cancelled, every time they give me same excuse
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