Kathryn Hoffmann @kahryn_hoffmann
Long/PostCovid, ME/CFS & postakute Infektionssyndrome. Prävention & Primärversorgung. - Univ.-Prof. und Ärztin - !Alles hier: my own opinion! Joined February 2016-
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Immunology is for everyone! Excited to share "Exploring new perspectives in immunology" with @RMedzhitov in @CellCellPress. sciencedirect.com/science/articl…
So the #H5N1 outbreak can be worse than we thought. Imagine if we could prepare and plan ahead before something like that happens? Oh wait, actually, scientists have been doing this, but the dinosaur once-scientist bureaucrats in power don't read scientific papers.
So the #H5N1 outbreak can be worse than we thought. Imagine if we could prepare and plan ahead before something like that happens? Oh wait, actually, scientists have been doing this, but the dinosaur once-scientist bureaucrats in power don't read scientific papers. https://t.co/dNyVSmPWRp
I’d forgotten the caveat mentioned by @trishgreenhalgh - because few now do LFD to confirm #COVID19 breakthroughs, many GPs are reticent about using #LongCovid diagnosis or codes..so we under-estimate
I’d forgotten the caveat mentioned by @trishgreenhalgh - because few now do LFD to confirm #COVID19 breakthroughs, many GPs are reticent about using #LongCovid diagnosis or codes..so we under-estimate
Noted your point about @ONS showing 65000 children with #LongCovid. Possibly one of the greatest areas of policy neglect/denial
Noted your point about @ONS showing 65000 children with #LongCovid. Possibly one of the greatest areas of policy neglect/denial
Fast noch erschreckender als d Veranstaltung selbst: Expert*innen trauen sich nicht dazu öff Stellung zu nehmen, weil sie nicht ins Visier radikaler Impfgegner*innen geraten wollen. Desinformationsverbreiter freuen sich aber über öff. Fördergelder um öff. Gesundheit zu gefährden.
Fast noch erschreckender als d Veranstaltung selbst: Expert*innen trauen sich nicht dazu öff Stellung zu nehmen, weil sie nicht ins Visier radikaler Impfgegner*innen geraten wollen. Desinformationsverbreiter freuen sich aber über öff. Fördergelder um öff. Gesundheit zu gefährden.
tl;dr -- my response: pem is a lot of things but it is definitely energy loss
tl;dr -- my response: pem is a lot of things but it is definitely energy loss
2 million people living in private households in England and Scotland were experiencing self-reported long COVID Symptoms continuing for more than four weeks after a confirmed or suspected #COVID19 infection that were not explained by something else. ➡️ ons.gov.uk/peoplepopulati…
Wer sich mit #MECFS-Betroffenen austauscht, erkennt, dass sie weder Trainingsanleitungen noch Motivation brauchen. Jeder, der unterschiedliche Schweregrade erlebt hat, weiß: Sobald der Körper es zulässt, sind Betroffene aktiv, ohne es zu hinterfragen, denn der Antrieb bleibt…
Wer sich mit #MECFS-Betroffenen austauscht, erkennt, dass sie weder Trainingsanleitungen noch Motivation brauchen. Jeder, der unterschiedliche Schweregrade erlebt hat, weiß: Sobald der Körper es zulässt, sind Betroffene aktiv, ohne es zu hinterfragen, denn der Antrieb bleibt…
Once you realize that PEM is a disease of energy limitation that comes with a limited capacity to respond to overloading, that leads to understanding the body also doesn't respond to well-meaning overload using exercise to stimulate physiological adaptation that may not happen.
@eskabadu Thanks for this interesting question and set of observations. I appreciate you sharing them, as I also appreciate the chance to share. In the first part of the thread, you asked whether I think CPET measures PEM or the energy deficit associated with it. I think it is the latter.
Work being plagiarized by senior scholars during the peer review process is happening everywhere. Last year, I wrote a commentary (one single-page document) that went on review and took 3 months to be rejected since the content "overlaps with content already commissioned". I…
Work being plagiarized by senior scholars during the peer review process is happening everywhere. Last year, I wrote a commentary (one single-page document) that went on review and took 3 months to be rejected since the content "overlaps with content already commissioned". I… https://t.co/1NIJmR8hUy
#MECFS Symposium 21.6.2024 Satellite Event im Rahmen des FENS FORUM 2024 Wien „Wissenschaftliche Grundlagen & Konsequenzen für das Gesundheitssystem“ Danke @MedUni_Wien @oeg_mecfs @weandmecfs @neurostingl @kahryn_hoffmann @MBVanElzakker @rudi_anschober mecfs.at/symposium-2024…
Sehr guter Artikel zu LC (bzw. ME/CFS) vom @BarfussMagazin mit Interview der Long-Covid-Expertin @kahryn_hoffmann, die auch zu Prävention & #SaubererLuft spricht: „Die wichtigste Maßnahme, um kein Long-Covid zu bekommen, ist, sich nicht zu infizieren bzw. reinfizieren". Sie…
"#LongCovid: Ein Leben im Stromsparmodus" - einfühlsame große Reportage des Südtiroler @BarfussMagazin über eine seit über zwei Jahren am #PostCovid-Syndrom leidende junge Frau, mit informativen fachlichen Einordnungen von Expertin Prof. @kahryn_hoffmann: barfuss.it/leben/dein-dam…
Wichtige Erhebung, die ich gerne unterstütze! Wer in Frage kommt, teilnehmen, sonst bitte teilen:
Wichtige Erhebung, die ich gerne unterstütze! Wer in Frage kommt, teilnehmen, sonst bitte teilen:
Eine spannende Veranstaltung zu ME/CFS im Rahmen des @FENSorg Forum 2024 in Wien! Organisiert von @oeg_mecfs und unterstützt von @weandmecfs.
Eine spannende Veranstaltung zu ME/CFS im Rahmen des @FENSorg Forum 2024 in Wien! Organisiert von @oeg_mecfs und unterstützt von @weandmecfs.
ME/CFS SYMPOSIUM | 21.06.2024 Das akkreditierte “ME/CFS SYMPOSIUM - Wissenschaftliche Grundlagen und Konsequenzen für das Gesundheitssystem” findet als @FENSorg Satellite Event am 21. Juni 2024 von 17:00 – 19:00 an der @MedUni_Wien statt. 👉 mecfs.at/symposium-2024/ 1/4
Konferenzempfehlung: unitetofight2024.world/news/pressemit…
Diese Studie ist das heutige Titelbild von @Brain1878. Über 355.00 Menschen wurden analysiert. Wie werden wir all diese Menschen mit Demenz behandeln? ⬇️
Diese Studie ist das heutige Titelbild von @Brain1878. Über 355.00 Menschen wurden analysiert. Wie werden wir all diese Menschen mit Demenz behandeln? ⬇️
The % of US adults currently experiencing #LongCovid jumped from 6.7% in Feb-March to 6.9% in March-April, according to @uscensusbureau cdc.gov/nchs/covid19/p…
Angela Fes @Mutmassungen
399 Followers 2K Following In love with books, editor, team science, feminisms, #prochoice #ProtectTheKids #covidisairborneKarin Roehlke @KRoehlke
2 Followers 12 FollowingBirgit Gustke @BeeGee26168032
2K Followers 812 Following Aktiv für mehr #MECFS #Information, Forschung, Fortbildung, Menschen mit ME/CFS #LongCovid #PostVAC #MCAS #POTS #FatigatioeV Hessen bgustke@[email protected]ProfessorHenry 🍿�.. @ProfessorHenry
474 Followers 668 Following Linksgrünversifft #TeamWissenschaft #FCKNZS #Klimaschutz Schreibt auch über seine Erkrankung ( #Myelom ) und #Schalke Kann Spuren von Ironie enthaltenJMo @JMo69577320
10 Followers 125 Following Jede Tonne CO2 zählt. Jeder Tag zählt. Jede #ClimateAction zählt.Mady Hornig, MA, MD @mhornig
3K Followers 3K Following Translational MD-scientist, mom, 🎶 | microbes + the 🧠 | gut-immune-brain axis | #autism #ADHD #PANS #TRD #LongCOVID #MECFS | views mineAmy @alexandrite113
6K Followers 845 Following Long Covid to very severe ME/CFS to mod/severe ME/CFS. Tweeting into the void. DX'd autistic ✨Johanna @19Alejandra91
1K Followers 5K Following @BarbaraHershey8 fan 24/7❣️ My honest fan love: https://t.co/E0JpWfpZYC #MECFS #PEM since 1997 https://t.co/ith2ALtcI5Lyssinum @CLomeier
996 Followers 1K Following #ClimateRevolution41World #MECFS seit 20J #CannabisMedizin #IchBinArmutsbetroffen Left to rot is what it is.Tilman Andris @TilmanAndris
3K Followers 5K Following Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfsLukas @lhbrownie
1 Followers 17 FollowingNilufar Mossaheb @n_mossaheb
53 Followers 162 Following Head of Division of Social Psychiatry @MedUni_Wien I #earlypsychosis #psychosis #socialpsychiatry #prevention #mentalhealth | feminist | views own I #oegpp24🤦♂️ @Hame7
2 Followers 153 FollowingBrigitte Entner @EntnerBrigitte
114 Followers 824 Following Trotz allem - Historikerin / Zgodovinarka - še vedno. Aktuell durch Long Covid ausgebremstCristian Serious @CristianSerious
296 Followers 2K Following Sharing my personal journey of navigating life with Chronic Fatigue Syndrome, CCI/AAI, and TC. #cci #mcas #mecfs #mespineAnna Hill @annahhbella
438 Followers 832 Following 53 Jahre, MEcfs seit 2002, Diagnose 2022 #MEcfs #WirLiegenDasLeben #MillionsMissing #MEAwarenessHour #MEkills #PEM #POTS #saubereLuft #DavosStandard #CleanAirFiona Lichtblau @FionaLichtblau
2K Followers 4K Following offen, nicht grenzenlos, gegen wissenskonsum für leidenschaftliches bilden, psychoanalyse als kulturMETAmodell, scharfzüngigIdoia Mujika Altuna @MujikaAltuna
206 Followers 3K FollowingMissMion @MionMiss
5 Followers 51 Following Kleines Verkaufsprojekt einer schwer #MECFS Betroffenen in Theorie u VK Fotos. K A wie Rest umsetzbar, wohl utopisch. Bitte informiert euch über die Krankheit🙏Gisela Höhener @GiselaHoehener
6 Followers 720 FollowingEso @[email protected].. @EsoInfo1
1K Followers 2K Following 💥 be proactive 💥 Waiting usually only makes big challenges bigger. 💥@esoinfo1.bsky.social💥WHN 💥 Math 💥 momLoba Esteparia @Lobahiperborea
1 Followers 157 FollowingInfectious Disease Tr.. @HmpxvT
30K Followers 10K Following Sharing reports on disease outbreaks, from bird flu to Ebola. Follow this account if you want to be the first to know when a dangerous outbreak is brewing.#MillionsMissing Deut.. @MMissingGermany
2K Followers 786 Following #MillionsMissing – Eine politische Initiative | Myalgische Enzephalomyelitis (ME)/Chronisches Fatigue-Syndrom (CFS) oder #MECFSElle @EleanorDavin
287 Followers 977 Following Human barely being. A decade of life lost to Severe ME. Formerly: NY creative director. Loved and miss friends, music, mountains, running and my road bike.Elena Petelos 🧡 @Petelos1
728 Followers 2K Following Chair RWE&AI @HTAiOrg VP HTA @EUPHActs Lecturer @UOC_gr @MaastrichtU HCPWP @EMA_News #HTA #AI #UHC #publichealth #globalhealth #regulatoryscience #SDG3 #SDG5Katharina 🍀 @katha.. @katha1970
881 Followers 2K Following Here for research + info on #ChronicMigraines #MECFS #LongCovid #MCS #MCAS #ChronicPain #Neuroscience #Psychology #MedicalGaslighting, posts German & English 🎶Dossier @dossier_
15K Followers 886 Following DOSSIER ist eine unabhängige, gemeinnützige Redaktion für investigativen und Datenjournalismus. Unterstützen: https://t.co/zaQxrqBbQ9Dominique Rose @NaehDom
81 Followers 431 FollowingKerstin 🐶🐾🌈�.. @FeinesMaedchen
866 Followers 3K Following Mensch, Mutter, Hunde ♥️ Leben mit MS & vielem mehr, 🎼Singen hilft 🎶 Musik berührt & heilt🎵, ernst aber nicht hoffnungslos 👉@feinesmaedchen.bsky.socialLena Oettel @LenaOettel
0 Followers 20 FollowingJJ @M02181653M
2K Followers 5K Following #TreatLongCovid #LongCovid #Notrecovered #MECFS #MillionsMissing #PwME #BC007Paul Schuberth @PaulSchuberth
131 Followers 76 FollowingNina @ninamarlenee
68 Followers 184 Following 29. interior architecture, marketing, photography. life paused bc of long covid; me/cfs.Christopher Abel @abelinho87_
124 Followers 822 Following Vorarlberger in Wien | 🏔 | ❄️ | Editor @Sportradar Never growing upJulie @_Junimond
773 Followers 925 Following Remember, your words can plant gardens or burn whole forests downPsychRich @PsychRichy
14 Followers 117 Following • Für Evidenz und Menschlichkeit • niedergelassener Psychotherapeut • Elternteil • meist nur lesend •davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.Monika @MonikaPsych
5 Followers 31 Following MD interested in science 🧬 A children and adolescents psychiatrist to be 👩🏻⚕️Katie❣️ @Redhotmoon77
1K Followers 2K Following Mensch*. I sleep a lot. Part-time Shakira Stan Account for life. La Vida Es una Perra.Mirabilis @Mirabilis_n_Co
36 Followers 179 Following Covid-19 in 11/21 führte zu Long Covid,ME/CFS,POTS und damit zu 1 of the #millionsmissing.22-23h/Tag ans Bett gebunden.Therapien: 0.Anerkennung bei IV:0. 38J./wSonja Kohl @eskabadu
2K Followers 1K Following 🇩🇪 One of #millionsmissing | Team #GOfundMECFS & #SIGNforMECFS | Suffering from #MECFS after a viral infection in 2012 | https://t.co/FSdIVPb7iIInitiative #ProtectTh.. @_ProtectTheKids
2K Followers 267 Following Die Initiative #ProtectTheKids setzt sich ein für Gesundheit und #saubereLuft in allen Schulen & Kitas - jetzt auch im blauen Himmel: https://t.co/bc7lYJNHUlJo Schweighardt @JoSchweighardt
173 Followers 149 Following Physiotherapist, BSc | Med Student | ME/CFS since 2019Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |Mady Hornig, MA, MD @mhornig
3K Followers 3K Following Translational MD-scientist, mom, 🎶 | microbes + the 🧠 | gut-immune-brain axis | #autism #ADHD #PANS #TRD #LongCOVID #MECFS | views mineMark Faghy @DrMark_Faghy
5K Followers 845 Following Prof Clin Ex Sci @Derbyuni Research in #longCOVID. Vice chair @LongCOVIDPhysio, advisor for @LongCovidKids and @long_covid. Accredited @ClinExPhysUK & @BASESuk.Nilufar Mossaheb @n_mossaheb
53 Followers 162 Following Head of Division of Social Psychiatry @MedUni_Wien I #earlypsychosis #psychosis #socialpsychiatry #prevention #mentalhealth | feminist | views own I #oegpp24Whitney Dafoe @DafoeWhitney
10K Followers 38 Following Severe ME/CFS patient and advocate. Photographer, filmmaker, artist, creative. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊Martynas Bendorius @smtalkk
95 Followers 338 Following Master in cybersecurity. Co-owner of Olm Clinic 🧬 and DirectAdmin, owner of MC2 Insight. NDPH and post-Lyme patient 🦠Jördis Frommhold @FrommholdJordis
753 Followers 0 FollowingEja Kapeller @eja_kapeller
1K Followers 544 Following Redakteurin bei @dossier_. Davor @derStandardat, @WIENERIN_online, @JourFHWien.Elena Petelos 🧡 @Petelos1
728 Followers 2K Following Chair RWE&AI @HTAiOrg VP HTA @EUPHActs Lecturer @UOC_gr @MaastrichtU HCPWP @EMA_News #HTA #AI #UHC #publichealth #globalhealth #regulatoryscience #SDG3 #SDG5WesElyMD @WesElyMD
63K Followers 361 Following Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, PICS, Dementia, Delirium. Tweets my own. Still learning.Prof. Bernhard Schief.. @ProfSchieffer
6K Followers 151 Following interventional cardiologist, director dept. of cardiology, angiology and intensiv care medicine. University Hospital Marburg UKGM, #precision MedicineUniteToFight2024 @U2Fight_World
3K Followers 115 Following 100% crowdfunded LC & ME/CFS conference project. community-driven. independent. global.Leonard Jason @CenterRes
2K Followers 33 Following Leonard Jason is a Professor of Clinical and Community Psychology at DePaul University. He is also Director of the Center for Community ResearchHarry Spoelstra @HarrySpoelstra
13K Followers 2K Following CardioVascular Surgeon, international clinical research, spin-offs, peer-Reviewer, globetrotter, #covididiots/insults =instant block, KIWICrunchME @wecrunchme
762 Followers 34 Following Mapping the scientific, tech & advocacy ecosystem around #MECFS, #LongCovid, and other infection-associated chronic illnesses 🗺️ | Organised by @rorprestonFranziska Dzugan @franziskadz
160 Followers 110 Following Journalistin beim Nachrichtenmagazin profilchantalbritt.bsky.soc.. @ChantalBritt
4K Followers 4K Following @bfh_hesb @LongCovidCH @LongCovidKinder @EnovatNet #PPI #ScienceCom #ProVaxx #Globukalypse ex @Swiss3RCC @SCAHTorg @ESCMID @SAKK_ch @swissinfo @BloombergJeannette Burmeister @JKBurmeister
2K Followers 726 Following Attorney (California, formerly licensed in Berlin, Germany), successfully sued NIH + HHS for ME-related FOIA violation (incl. all of $140k attorneys' fees)M. and S. Shaw @twoShaws
2K Followers 3K Following Person w/ severe #MyalgicEncephalomyelitis #MyalgicE (ME/cfs) & her M.E. advocate spouse/caregiver. Before: Architect, software interaction designer.Katalin Kariko @kkariko
70K Followers 262 Following I am a scientist, working on the therapeutic use of in vitro transcribed mRNA.PwME 4 bioMEdical res.. @ValeBodi
4K Followers 2K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled PacerONG PEM @AsociacionPEM
1K Followers 964 Following Asociación de Personas con Encefalomielitis Miálgica (PEM) Spain #EncefalomielitisMiálgica #MyalgicEncephalomyelitis #TestimoniosPEM #pwME [email protected]Ilkka Rauvola @jukka235
10K Followers 2K Following Covid-19. Same tag in blue + stack. FB: https://t.co/dupw084403 Key threads under "Highlights"Icahn School of Medic.. @IcahnMountSinai
30K Followers 1K Following An international leader in medical and scientific training, biomedical research, and patient care. It is the medical school for @MountSinaiNYC.Lindsay McAlpine MD @LindsayMcA
896 Followers 131 Following Neurologist Expert in Neurologic Post-COVID Conditions (Long COVID) Yale University School of MedicineSujana Reddy, DO @sujana94
1K Followers 224 Following Resident IM Physician👩🏻⚕️Crisis Counselor👩🏻💻Nerd🤓Music/Movie Enthusiast🎶🎬 Pianist🎹 Birmingham-Southern College'16 {B.S. Bio/Psych}AL🏡 🇺🇸Ruth Brannan @RuthBrannan
36 Followers 454 Following here mostly for the long covid and me/cfs researchBateman Horne Center @BatemanHorne
6K Followers 1K Following Bateman Horne Center is a non-profit medical, research, and education center devoted to eradicating ME/CFS, FM, Long COVID, and related conditions.Prof. Monika Köppl T.. @monikaturyna
9K Followers 2K Following Professor @UniWarszawski & Seeburg | Director @Eco_Austria | Editorial Board The Economists’ Voice | Mother of 2 | Austrian & ex PolishMichelle Monje🎗️ @michelle_monje
18K Followers 1K Following Neuroscientist. Neuro-oncologist. Mom. @Stanford @HHMInews @CancerNeurosciDan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poetTilman Grande @GrandeTilman
652 Followers 125 Following Niedergelassener Psychotherapeut, Psychoanalytiker, Psychosomatik, Psychotherapieforschung, Operationalisierte Psychodynamische Diagnostik OPDMark Vink, MD @Huisarts_Vink
2K Followers 522 Following Huisarts n.p. en verzekeringsarts n.p. (genomineerd voor 2016 John Maddox Science Prijs). Truth about #MEcfs #PACEtrial sounds like Hate to those who Hate truthS Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med adviceMedUni Wien @MedUni_Wien
10K Followers 531 Following Stay tuned about Research, Science and Education by one of the longest-established medical education and research facilities in Europe. #MedUniWienLong COVID Physio @LongCOVIDPhysio
27K Followers 1K Following #LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & alliesTom Molmans, MD @Molbaas
2K Followers 880 Following Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical adviceME Association @MEAssociation
20K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RTs do not necessarily mean endorsement.KarenPhysioCoUk @karenphysiocouk
4K Followers 2K Following Neurological physiotherapist with https://t.co/3BfNtxTDCW working with conditions affecting brain, spinal cord and nervous system / Co-founder @PhysiosForMETanja Stamm @StammTanja
197 Followers 211 Following Professor for Outcomes Research at the Medical University of Vienna & Head of the Ludwig Boltzmann Institute for Arthritis & RehabilitationDanilo.Buonsenso_Surf.. @surf4children
3K Followers 662 Following Pediatrician/pedsID working on #longcovidkids, #TB, #congenitalinfections☀️funder of surf4children no profitDoris Bleyer @DorisBleyer
427 Followers 1K FollowingJoanna Teglund🕊️.. @JoannaTeglund
6K Followers 850 Following Until you make the unconscious conscious, it will direct your life and you will call it fate. ― C.G. Jung Truth, Beauty, Goodness. The 5th: You Shall Not Kill.Julia Partheymüller @schnizzl
2K Followers 4K Following Political Scientist @VieCER_ & @univienna | #AUTNES 🇦🇹 | #ACPP 🦠 | Public Opinon, Public Health, Quantitative Methods | and more 🌎Artur Fedorowski @ArturFedorowski
925 Followers 174 Following Senior Consultant and Professor of Cardiology; MD, PhD, FESC Karolinska University Hospital; StockholmThis guy @MakisMD keeps commenting nonsense on my posts and has 176K followers. He is a "Radiologist, Oncologist, Cancer Researcher". Yet his medical license was revoked in 2017 for unprofessional conduct. Always check who you are getting advice from.
Immunology is for everyone! Excited to share "Exploring new perspectives in immunology" with @RMedzhitov in @CellCellPress. sciencedirect.com/science/articl…
@mopsstimme Die Instrumentalisierung der KiJu ist erschreckend. Für Maßnahmenkritik sind sie gut genug, differenzierte Analysen unerwünscht... PAIS Betroffene KiJu werden negiert/ Psychologisierer / ganze Familiensysteme unter Generalverdacht gestellt.
Österreich hatte eine brutale JN.1-Welle von November bis Jänner, das dürfte verhindern, dass die #flirtvarianten jetzt einen senkrechtstart hinlegen.
👀 We need research into “long long covid”. In a significant proportion of people this condition goes on for YEARS.
🧵The @ONS have published #LongCovid prevelence data from the Winter CIS England+Scotland only ❗️2 million (3.3%) have #LongCovid ❗️1.5 m adversely affected ❗️381k severely impacted ❗️71.1% have had symptoms a year or more ❗️51.3% 2 years + ❗️30.6% 3 years + 600k people 1/3
So the #H5N1 outbreak can be worse than we thought. Imagine if we could prepare and plan ahead before something like that happens? Oh wait, actually, scientists have been doing this, but the dinosaur once-scientist bureaucrats in power don't read scientific papers.
The H5N1 outbreak in dairy cows may be much much more extensive than has been reported. Nearly 40% of pasteurized milk tested from throughout the Midwest (38/150 samples) had evidence of H5N1 RNA. To prevent a pandemic, we have to get this under control.…
I’d forgotten the caveat mentioned by @trishgreenhalgh - because few now do LFD to confirm #COVID19 breakthroughs, many GPs are reticent about using #LongCovid diagnosis or codes..so we under-estimate
I’m neither a politician nor an economist, but finding it hard to see how it could be good to have 3% of the workforce long term unwell to #LongCovid, yet no moves to acknowledge, mitigate, research or treat?
🚨 #POTS is on the cover of a medical journal. This is big considering limited science, funding & awareness of #Dysautonomia. 🧠🫀 Thanks to @JCM_MDPI for selecting our study on sexual dysfunction in POTS for the cover! 🔥 #MedTwitter #NeuroTwitter #LongCovid @Jacobs_Med_UB
@JaMoEberl Der Fall Kellermayr hat auch gezeigt, dass sie völlig zu recht fürchten, ins Visier von Impfgegner:innen zu geraten - und dass sie von der Republik Österreich keinerlei Hilfe zu erwarten haben.
Ich nehme das "fast" zurück. Es ist erschreckender. Und Verantwortungsträger*innen sollten sich fragen, wie es dazu kommen kann, dass sich Expert*innen nicht mehr trauen öffentlich #Wissenschaftskommunikation zu betreiben.
Vascular Alterations following COVID-19 Infection: A Comprehensive Literature Review 🔥Elegant overview article again underscoring that C19 is a VASCULAR DISEASE, why….read 👇and remember EVERY part of your body is blood vessel dependent, to live and survive! ➡️"COVID-19 has a…
Auf Österreich umgelegt sind das 300.000 #LongCovid Fälle. Leider müssen wir nach 4 Jahren Pandemie noch immer ausländische #LongCovid Zahlen auf Ö umlegen, da es hier noch immer keine öffentlichen Daten gibt. Wann wird sich das ändern, @johannes_rauch?
An estimated 3.3% - ~2 million people - in private households across England & Scotland are experiencing self-reported #LongCOVID symptoms. Obtaining data helps better identify the magnitude of the challenge that needs to be tackled - urgently. ons.gov.uk/peoplepopulati…
Danke @KURIERat für den Beitrag über ME/CFS, unsere Stiftung und die Betroffenheit der Familie Ströck. 💙 #MECFS kurier.at/wien-wills-wis…
Noted your point about @ONS showing 65000 children with #LongCovid. Possibly one of the greatest areas of policy neglect/denial
I'll be sharing my analysis of the latest UK Long Covid data early tomorrow - keep an eye out for my s*****k!
Fast noch erschreckender als d Veranstaltung selbst: Expert*innen trauen sich nicht dazu öff Stellung zu nehmen, weil sie nicht ins Visier radikaler Impfgegner*innen geraten wollen. Desinformationsverbreiter freuen sich aber über öff. Fördergelder um öff. Gesundheit zu gefährden.
@winter_jakob @JaMoEberl @Max_Millerx Christine Baumgartner und @veronika_mauler haben O-Töne dazu. @oe1journale oe1.orf.at/player/2024042…
🤷♀️ nature.com/articles/d4158… 24.04.2024 #SaubereLuft #CleanAir
tl;dr -- my response: pem is a lot of things but it is definitely energy loss
.@sunsopeningband Do you, as a specialist, think that a 2-day CPET can actually measure #PEM? Or is it rather the energy loss that is being objectified? It’s a serious question. I ask this because PEM encompasses more than just muscle (and cognitive) fatigue. 1/4 #MECFS
"Das Phänomen der Krankheitsleugnung ist nichts Neues. Cholera, Malaria, Spanische Grippe, Tuberkulose – auch da traten schon Zweifler:innen und Skeptiker:innen auf. Sie verschwanden nur schnell wieder, sobald die Ursachen gefunden wurden. ⤵️ taz.de/Verschwoerungs…
@ClagueNjc36 In my opinion, currently there’s no rationale supporting exercise in the presence of PEM (regardless its whathaveyou grading). I keep it simple: No exercise if PEM positive.