Allie Cara Raymond @caraallieray
Writing. Ex-philosopher. Animal enthusiast! 🐕😺🐇🐰 Bunnies, cats, chronic illness, language learning & other journeys. London Joined December 2008-
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‘The story became not #MECFS patients are being very badly served by the current state of medical science - which is obviously the story - instead the story became, these poor scientist are being threatened and abused by ungrateful #MECFS patients’ - @GeorgeMonbiot
‘The story became not #MECFS patients are being very badly served by the current state of medical science - which is obviously the story - instead the story became, these poor scientist are being threatened and abused by ungrateful #MECFS patients’ - @GeorgeMonbiot https://t.co/V3t7jwW8b1
“The narrative that #LongCovid is decreasing is just objectively wrong.” — @ahandvanish on @scifri with @iraflatow
We’ve heard about secondary and even tertiary gains. Can anyone tell me what the fuck the primary gains of Long Covid are, exactly? 🤔
🧵of clips @GeorgeMonbiot talking to @davidtuller1 about his recent article where he describes the psychologisation and treatment of #MECFS as "the greatest medical scandal of the 21st century."
There is a very realistic case that FND overruns #LongCovid before it does ME/CFS. Unless things change radically, it will happen sooner or later. It's a race between this and a breakthrough solid enough to overrule all the sunk cost spent by this point.
FND is the modern recycled term for conversion disorder. Those terms change and morph on a regular basis, there are dozens of them, but FND, or generally "functional something something" is the latest fad terminology. This means the end of a possible treatment or care for LC.
Dostoevsky’s book The Idiot, which was formative for me and which depicts an autistic main character (I’ll die in this hill), had a detail I’d forgotten until a friend recently reminded me: Like many autistic people, Mishkin is hyper-empathic. What ultimately destroys him?
He empathizes with a murderer and it breaks him. Been thinking lately about the deeply wise, deeply general warning embedded within The Idiot: our empathy is a great gift, but we must guard it, because it can be used against us so easily. And that sucks, tbh.
"But sickness was still the main driver of non-attendance." It is a little strange to then want to increase attendance by getting these children back into school while they are sick. The idea of reducing sickness does not seem to occur to anyone. rnz.co.nz/news/national/…
I didn't bring it up before because I didn't see people intensely trying to miss the point but now that I have: no, you can't talk about the death of Kurt Cobain without talking about the mistreatment of chronic pain patients.
A thread of excellent questions, including this one: "Why is it ok for taxpayers money to be spent on the impact of so much covid, but not on reducing levels of covid?" @AlboMP @Mark_Butler_MP @RyanPark_Keira @NSWCHO
A thread of excellent questions, including this one: "Why is it ok for taxpayers money to be spent on the impact of so much covid, but not on reducing levels of covid?" @AlboMP @Mark_Butler_MP @RyanPark_Keira @NSWCHO
Remember in the beginning of the pandemic, jobs began accommodating work from home? Something disabled people have needed for years. Now, it’s still completely possible but they got rid of it because…why not? It hurts knowing they’re choosing not to include disabled people.
"Research into [#MECFS] is lagging decades behind because society doesn't take it seriously enough" Professor Chris Ponting Highlights also include the brief introduction not available in the videos being shared.
"Research into [#MECFS] is lagging decades behind because society doesn't take it seriously enough" Professor Chris Ponting Highlights also include the brief introduction not available in the videos being shared. https://t.co/t9gfKDPLXP
A hugely important piece by @iEllieFry on Millie McAinsh - a teenager with severe ME who is currently in hospital and deteriorating due to medical neglect. I cannot imagine a patient with any other condition being treated this way. mirror.co.uk/news/health/se…
“Some had their disability aids removed by photographers. Other children have been altered with editing software or banned from their class photos entirely.” I expose how the “erased disabled kids” scandal was not a one-off - and what it says about us. theguardian.com/commentisfree/…
World's largest genetic study of ME offers hope to sufferers. Chris Ponting on @Channel4News on how #MEcfs is 20 years behind other diseases because society doesn’t take it seriously. @DecodeMEstudy trying to change this w PwME. youtu.be/3bPNjc4dRRs?si…
We'll never know how many people have simply disengaged from the health (and social welfare) system as a consequence of not being believed or taken seriously.
Ielosubmarine, one of the girls thrown in the wild just gave birth to a new lil girly potato ❤️
Once you've noticed the grit, drive, self-discipline, adaptability and mental toughness of folk suffering from severe chronic illnesses, it's kind of hard to be impressed by sports
This is the best long Covid article I’ve read. If you are interested in being an ally or even just a friend to me and people like me, it’s essential to look this issue squarely in the face. I hope you’ll take time to read it. texasobserver.org/long-covid-tex…
IncognitoDef @IncognitoDef
7K Followers 5K Following Stan's Coffee Stand: Open Fridays I'm Cogs Bun: Sir Stannis & Prince Godric OTRB: Ghost, Renly, LadyOlenna💚🐇🌈 Virgil, Dante 🐹 See @EsqHambone #MeowStrong
frobunnius @frobunnius
5K Followers 231 Following ophelia. haters say she’s a number theorist. bunny mom // obsessed with rabbits. croc cassandra.
Cenobyte🦑🧲⚫�.. @cenobyte3
2K Followers 3K Following Quantum Gravity Theorist, Research [email protected] Bunny parent to a cute black and white Netherlands Dwarf rabbit. He/Him
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Oscar @FelixandOscar1
2K Followers 541 Following Just a rescue piggie searching for truth, justice, and the American hay! My long time companion Felix is 🌈 Support our friend @OfSarahs and check out my merch.
Precious ways Rabbit .. @preciousways12
10K Followers 8K Following Just a little start up bunny rescue. PayPal: [email protected] Amazon. https://t.co/1MbMJa0Lvn
A_Daily_Violet @ADailyViolet1
3K Followers 1K Following Rightful Queen of the House, Protector of the Seven Treats, Mother of Decorating, Khaleesi of the Great Grass Hay, the Unburnt Pancake, Breaker of Cardboard
Satori 🌏✨ @Satori232323
3K Followers 2K Following Mostly on 🦣 as: @[email protected] 🥰 Friends, message me to join! No ads, algorithms, ethical guilt or paying for visibility. Safely moderated. ❤️
Natalia @NataliaHodgins
7K Followers 1K Following Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
carmonilla @carmonisport
2K Followers 2K Following I ❤️ my guinea pigs and my rallies 🐹Rocky 🐹jerry 🐹bianca 🐹darwin 🐹Enzo 🐹🐹karma y kiara
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Laura Miers @LauraMiers
65K Followers 13K Following Pro-Kindness/Compassion/Love. Wealth inequality will destroy us. Ex-Texan, Global citizen. Law, Medicine, Sustainability, Languages. LongCovid since 2020.
emily fraser 🌿🐌.. @emilyesfraser
5K Followers 4K Following Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Holly Brockwell @holly
121K Followers 59K Following I run Holly's Merry Moggies, a no-kill shelter for disabled, elderly & unloved kitties. In Nottingham but rehoming across the UK. [email protected]
Alitis @Alitis__
1K Followers 2K Following
👨🦽♿️ Nah.. @SpinaBifidaScot
565 Followers 2K Following Wheelchair user | Scottish | Highlighting the trials and tribulations of life with a disability and will always call out #ableism | #spinabifida #hydrocephalus
Tracey Burgess @TraceyABurgess
2K Followers 3K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Rabbit Lover @bunnyloverusa
34 Followers 488 Following Hey I am Rubi Sophie is an avid rabbit enthusiast whose passion for these furry creatures knows no bounds. From their twitching noses to their fluffy tails,
Becky Porter @BeckyvaPorter
10 Followers 405 Following Lured the best beauties from all US states 😽 Ready for a 1 on 1 meeting Nudes in profile! Watching this https://t.co/DmLCuU09ct
drmalinowski @drmalinowski
2K Followers 5K Following Rural Family Medicine with fun and flair. Hospital Chief of Staff. Medical director of Hospice and Long-Term care. Passable bass player. #parrothead
🔮✶.🫧diana st�.. @DianaStarshine
2K Followers 1K Following 'fairy pop' out now 🧚♀️ singer songwriter producer pixie ⭐️ @orangemilkrecs🍊🥛🔮✨1/2 @digifaee 🌷🌸 contact: [email protected] 📧
nfl5xhircuah3bhv @qutgi8aysi
21 Followers 304 Following 【coinsrw . com 】User**me:Rom88 , P*****rd:R 66888 Bal:4,289,287,11 U.S.D.T
Sue Foster @suefosterinfo
12K Followers 11K Following Blogger & Creative. #homeed #CleanAir https://t.co/yJMwIUYAwF
Jeannette Burmeister @JKBurmeister
2K Followers 727 Following Attorney (California, formerly licensed in Berlin, Germany), successfully sued NIH + HHS for ME-related FOIA violation (incl. all of $140k attorneys' fees)
Kereigh @kereigh86360
45 Followers 2K Following
Essie @essiejames96
353 Followers 3K Following
Mira Anderson @MiraAnders89
313 Followers 1K Following Freelance artist Comic artist 👩🏾🎨(thumbnails, inking, coloring and lettering digital illustrator
A Tired Owl @aTiredOwl
1K Followers 3K Following 30s, #MaskUp #MyalgicEncephalomyelitis all my adult life. LC ally. Networking with #pwME and other chronic illnesses. 🍞Ⓐ🏴 Ⓥ🌱 🇵🇸
Kelly @broadwaybabyto
12K Followers 2K Following Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 #SpacesHost
Chalis Montgomery @TheChalis
11K Followers 3K Following Still posting from my bunker, still reading the research: https://t.co/IOnQJnxbKr
Jane ☆彡NO ME MANS.. @LaJane__
844 Followers 1K Following Cronnenberg, Carpenter, Lean, Welles, Bergman, Truffaut, Simón, Saura, Lumet, Kasdan, Quaron, Dante, Ramis, Landis, Jordan, Wenders🎬#M💀rtFeixistes♀️||☆|| Ⓐ 🏴
Susan Lanzi @SusanLanzi
3 Followers 2K Following
Junior @nolimitjuni0r
2K Followers 823 Following 22 year old long hauler fighting for his life back. Former CC/T&F athlete. @miamiheat fan. #longcovid #notrecovered.
I Brake 4 Ants @ibrake4ants
3K Followers 3K Following #CovidIsAirborne, & almost 60% of transmission is from the symptomless infected people all around you. That’s why we need masks AT LEAST in healthcare!
M @Omrider
454 Followers 748 Following The space in between is where I reside✨Very fallible✨Healthily skeptical✨Science🧪✨self-preservation🟰🆗✨ a follow is🙅🏻♂️endorsement✨#MECFS #Fibro #CKD 🩵🎭
Ciprian Mihai Marin @Ciprian20Marin
155 Followers 3K Following
Maya Lindemann @MayaLindemannRN
1K Followers 1K Following RWJF ClinicalScholars Alum, School Nurse, scientific diver/ocean lover stranded by #longcovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
Evelyn Parsons @ParsonsEve46189
112 Followers 3K Following
SaliWho 🏳️�.. @SaliWho
9K Followers 3K Following Anti-fascist = anti-ableist. We protect us. 😷🏴 A troll farm is trying to get me suspended so follow my backup too: @BiExist. She/they. @SaliWho@🐘.lol
Bee @LongLiveBee13
3K Followers 5K Following 🎸Paul x7, Natalie P x 4, Kam x3, Natalie L x2💃, 🎶SiriusXM x1🎶, 🎤Brandon NH x2🎤, LONG LIVE AND SO HIGH SCHOOL ARE MINE, check pinned for more
Cat Herding Science N.. @catladyactivist
18K Followers 11K Following Plant-fueled 🌱 religion-free 🕊 healthcare for all ⚕️ leave it better than you found it 🌏 equity in all things ⚖️ #CovidIsAIRBORNE 😷
Alara Seacord @AlarSeac
80 Followers 5K Following
Charles #ImWithNye fo.. @waltz_tales
3K Followers 5K Following 🚨THERE IS A LONG COVID CRISIS IN THE PERFORMING ARTS🚨https://t.co/BojFnh6Ip0 Founder: #ProtectTheHeartOfTheArts 💕@HeartOfThe_Arts
Dena @dena_young31
205 Followers 3K Following
Kristopher Lee @kristopherroe
3K Followers 5K Following Singer / Songwriter / Photographer #COVIDisAirborne #WearAnN95
Nick Wellings @Nick_Wellings
3K Followers 5K Following used to love opera + ballet, some books. now disabled by ME
Existential Bread @exist_bread
756 Followers 1K Following Mostly stuff about chronic illness, data, and Oxford commas.
Karl @karlander_
1K Followers 2K Following Ich twittere zum Thema ME/CFS. I tweet about the topic ME/CFS.
S.Jones @seastarsal
1K Followers 2K Following Teacher, librarian, ME/CFS cartoonist. ME/CFS for 32 years.
Aria Watson @AriaWatsonG
129 Followers 671 Following My name is Aria Watson, and I'm interested in animals. In addition, I am also the happy owner of several guinea pigs. I've always loved animals. GuineaPig lover
ANGELIC AFRICAN CHILD.. @MulondoRahumat
625 Followers 2K Following THOSE WHO ARE GRACIOUS TO THE POOR LENDS TO THE LORD AND THE LORD WILL FULLY REPAY THEM.proverb 10:17🙏🙏🙏
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
IncognitoDef @IncognitoDef
7K Followers 5K Following Stan's Coffee Stand: Open Fridays I'm Cogs Bun: Sir Stannis & Prince Godric OTRB: Ghost, Renly, LadyOlenna💚🐇🌈 Virgil, Dante 🐹 See @EsqHambone #MeowStrong
frobunnius @frobunnius
5K Followers 231 Following ophelia. haters say she’s a number theorist. bunny mom // obsessed with rabbits. croc cassandra.
Cenobyte🦑🧲⚫�.. @cenobyte3
2K Followers 3K Following Quantum Gravity Theorist, Research [email protected] Bunny parent to a cute black and white Netherlands Dwarf rabbit. He/Him
Princess Sephiroth �.. @ZiggyWearsHats
5K Followers 1K Following A bun who likes her mom and also snacs. My floof fam: 🐱 Haricot Vert 🐇Cloud 👩🎤The Calamity From The Skies IG: https://t.co/IXksDC9MUa…
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Dr. Deepti Gurdasani @dgurdasani1
143K Followers 6K Following Clinical epidemiology, machine learning, NLP, global health. Intersectional feminist. she/her. Also on @[email protected] @dgurdasani1.bsky.social
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Prof. Christina Pagel @chrischirp
204K Followers 952 Following Prof Operational Research @UCL_CORU, health care, women in STEM. Member of @independentsage. Tweets personal. chrischirp at bluesky. https://t.co/nNW5zMenx2
Oscar @FelixandOscar1
2K Followers 541 Following Just a rescue piggie searching for truth, justice, and the American hay! My long time companion Felix is 🌈 Support our friend @OfSarahs and check out my merch.
Precious ways Rabbit .. @preciousways12
10K Followers 8K Following Just a little start up bunny rescue. PayPal: [email protected] Amazon. https://t.co/1MbMJa0Lvn
A_Daily_Violet @ADailyViolet1
3K Followers 1K Following Rightful Queen of the House, Protector of the Seven Treats, Mother of Decorating, Khaleesi of the Great Grass Hay, the Unburnt Pancake, Breaker of Cardboard
Laura Elliott @TinyWriterLaura
14K Followers 2K Following Writer, maker, chronic illness incubator. Disabled journo. Words in @guardian, @MetroUK, @theipaper, @BylineTimes etc. Rep’d by @PortyLiterary
Gypsy & Dorian @DorianGypsy
1K Followers 927 Following Kale, cables, cardboard, chewing, pooping, knocking things over, grunting & snoring Page controlled by Gypsy-the most wonderful female rex bun there ever was!
Satori 🌏✨ @Satori232323
3K Followers 2K Following Mostly on 🦣 as: @[email protected] 🥰 Friends, message me to join! No ads, algorithms, ethical guilt or paying for visibility. Safely moderated. ❤️
The Bunarium (Martin) @bunarium
3K Followers 742 Following 2 abandoned rescue bunnies now living in the Bunarium 🐰 Sent by @WonkyElla. Tweets by Holly (the white one) with some help from Human. Got any snacks? 😋
normal wife 🇵🇸 @Category_Fury
17K Followers 2K Following Olivia. PhD candidate @unimelb in pure maths. I like higher categories and operads. I'm normal up to higher homotopy. @category-fury.bsky.social
stable finally, getti.. @bennessb
27K Followers 693 Following currently: haunted / unwell & host of No End In Sight, creator of #NEISVoid, a keeper of @RTsFromTheVoid. find me on 🦣: @[email protected] she/her.
Sara Schonfeld @SaraSchon
13K Followers 1K Following Editor @HarperChildrens and @HarperTeen. Author of BIRTHDAY ON MARS! Rep @marchsoloway. I tweet about bad dates, good books, and my own opinions.
elle carnitine 🍉 @elle_carnitine
4K Followers 965 Following very sick with covid-induced myalgic encephalomyelitis • kept alive by my beloved @predi_cam_ents • she/her
Physios For ME @PhysiosForME
7K Followers 604 Following A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
🔮✶.🫧diana st�.. @DianaStarshine
2K Followers 1K Following 'fairy pop' out now 🧚♀️ singer songwriter producer pixie ⭐️ @orangemilkrecs🍊🥛🔮✨1/2 @digifaee 🌷🌸 contact: [email protected] 📧
Coco Khan @cocobyname
19K Followers 2K Following podcaster @podsavetheuk; freelance writer, mostly @guardian. Books: #TheGoodImmigrant (and more). Repped by: @aitkenalexander (📚) @thesohoagencyuk (🎤🎬)
glass beach plastic d.. @glassbeachband
23K Followers 1K Following https://t.co/Pabslcxy9c / publicity: [email protected] / booking: [email protected] https://t.co/iWtHMIBtEg / tweets by william, usually
Emma Maxwell @emmamaxwell12
1K Followers 3K Following “Things will happen that we don’t expect” @JSchofieldTrust Senior Fellow & Trustee. Channel 4 News Senior Producer. I had a blue tick once before you had to pay
Cat Herding Science N.. @catladyactivist
18K Followers 11K Following Plant-fueled 🌱 religion-free 🕊 healthcare for all ⚕️ leave it better than you found it 🌏 equity in all things ⚖️ #CovidIsAIRBORNE 😷
Jan Kooijman @Jan_Kooijman
130K Followers 386 Following Instagram: jankooijmagram Youtube: https://t.co/c5FHmMTVwG TENNIS ENTHUSIAST
Anil van der Zee © @AnilvanderZee
9K Followers 823 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
folkleric @folkleric
5K Followers 575 Following Hi. I'm your Eras Tour watch party host on Twitch 💚💛💜❤️🩵🖤🩷🩶🤎💙 Swiftie since Debut he/him | call me 'eric' for short
Charlotte Blease, PhD @crblease
2K Followers 685 Following The Healthcare Gadfly Associate Prof, Uppsala University, Sweden & Digital Psychiatry, BIDMC/Harvard Medical School The Nocebo Effect (Mayo) '24
emily @emilykmay
34K Followers 3K Following "mid and delusional" | doubt-filled believer | peak millennial | girl's girl | unfortunately very sincere
Debra Caplan @debra_caplan
7K Followers 2K Following Theater historian, professor @BaruchCollege, and author. The past is a map, if we choose to heed its warnings.
Lauren ✨ @dutchlauren
10K Followers 293 Following 28. Stay-at-home cat parent. Ex-YouTuber and book blogger. #ActuallyAutistic & severe ME. Passed away January 27, 2024 🖤 Media enquiries: [email protected]
𝑫𝒓 𝑵𝒊𝒈.. @DrNighatArif
31K Followers 974 Following NHS/Private GPwSI Women’s Health.📺Doctor on @bbcbreakfast @thismorning 📘Author 𝘔𝘦𝘥𝘪𝘢 𝘦𝘯𝘲𝘶𝘪𝘳𝘦𝘴:𝘫𝘢𝘯@𝘥𝘮𝘭-𝘶𝘬.𝘤𝘰m
Ziyad Al-Aly, MD @zalaly
29K Followers 938 Following Physician-Scientist | Studying Long Covid #LongCovid Profile: https://t.co/ywweQn5DHA…
Guide Dog Ava @GuideDogAva
18K Followers 55 Following Professional Good Girl 🦮 Guiding @BlondeHistorian around London. Loves carrots, busy places & naps. 100% Diva. Please don’t distract me when I’m working 🐾
Laura Weiss/ lauralew.. @lauralew105
3K Followers 3K Following Writer/editor covering social issues, especially health justice, workers' rights, immigration & more. Formerly @newrepublic @nacla. I also have a TV newsletter.
Kelly @broadwaybabyto
12K Followers 2K Following Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 #SpacesHost
Eliza Charley | Actre.. @ElizaCharley
6K Followers 2K Following 🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her
Seets💫 @MamaSitaa__
8K Followers 841 Following Lover of plants, astrology, and being a good human. Long Covid sucks. Hot people wear masks. 🤌✨
Chalis Montgomery @TheChalis
11K Followers 3K Following Still posting from my bunker, still reading the research: https://t.co/IOnQJnxbKr
Maya Lindemann @MayaLindemannRN
1K Followers 1K Following RWJF ClinicalScholars Alum, School Nurse, scientific diver/ocean lover stranded by #longcovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
Daniel Lewis (but wit.. @dsethlewis
2K Followers 379 Following Hosting the Long COVID Hour, a weekly virtual public meeting for the #LongCovid community on Mondays at 7:30pm ET
Kellen @kelslc
1K Followers 469 Following teenager with long covid, Severe ME, funcap 1.35, 🖤🤍💜, 💚🤍🖤, any pronouns, AuDHD, 🤝 1/2 of brilin @sapphicswilder
Julia Marie @julia_doubleday
10K Followers 3K Following International and domestic politics; Deputy Director, Committee LLC; co-host @committeepro; Julie Oliver for Congress 2020, Beto for Senate 2018, Bernie 2016
Tara Moriarty @MoriartyLab
46K Followers 5K Following 🏳️🌈🇨🇦Assoc Prof @UofT. Bloodborne infections, Lyme disease, misinfo. @COVID_19_Canada. Defend journalism. Opinions mine. @[email protected]
Persephone🦋 @citrusdriad
596 Followers 518 Following Covid is Not Over! Looking to connect with like-minded people! feminist. maskie 😷 she/her. #covidisairborne
Sara Anne Willette �.. @amethystarlight
18K Followers 5K Following I have Common Variable Immune Deficiency. @IAGovernor called me “you people” on live TV. I make graphs & ask people to wear a respirator. Hubs: @AurielWillette
Briana Mills, LMFT �.. @theBrianaMills
8K Followers 749 Following Licensed Marriage and Family Therapist #134337. Not your therapist. Physically disabled. Bi. Specializing in disability, medical trauma, EMDR, and LGBT. She/Her
Ilana Estelle Author @TheCPDiary
4K Followers 5K Following Founder @TheCPDiary - Author, Writer and Blogger #IlanaEstelle Rep'd by @CIareChristian https://t.co/y8HZ02VvV6 https://t.co/jxPQ0QqtNZ
Pod Save the UK @podsavetheuk
6K Followers 119 Following Bringing humour and hope to UK Politics since 2023, with hosts @MrNishKumar and @cocobyname. A @crookedmedia and @reducedlisten podcast.
Trish Balusa @BalusaTrish
6K Followers 103 Following Most talked about #BBUK housemate 2023• Enquiries: [email protected]
Julie @jubunnies
4K Followers 732 Following 27. writer, cynic, homebody. loves anything sparkly.😷🌟she/her
Ariane~I NEED A GI DO.. @arianek
4K Followers 2K Following Co-founder @Textillia! ✂️💕• SFU Geog • Public health/urban planning/web nerd • Sick AF #Sjogrens #Dysautonomia #IatrogenicIllness #IVIG / ♿️🌈🇦🇲🦆🐶🖖📚💌🌿
Charles #ImWithNye fo.. @waltz_tales
3K Followers 5K Following 🚨THERE IS A LONG COVID CRISIS IN THE PERFORMING ARTS🚨https://t.co/BojFnh6Ip0 Founder: #ProtectTheHeartOfTheArts 💕@HeartOfThe_Arts
Phi @phi_psd
5K Followers 924 Following Australian/Greek/Cypriot nerdy visual designer, living in Berlin. 🇨🇾🇬🇷🇩🇪 end #prescribedharm #longcovid & #mecfs @berlinbuyers
Sabra Boyd @SabraMBoyd
10K Followers 9K Following screenwriter | journalist | child trafficking survivor | ex hospital admin | born on a Coen brothers movie set✏️@NYTimes @WashingtonPost @Vice @Eater @SaveurMag
𝔻𝕖𝕖𝕣𝕙�.. @deerhoof
25K Followers 515 Following some music played by Satomi Matsuzaki, Ed Rodriquez, John Dieterich and Greg Saunier
Stephanie Land @stepville
47K Followers 2K Following NYT bestselling author of MAID (& inspiration for #MAIDnetflix!). Forthcoming book CLASS: @OneSignalPub Rep’d: @MollieGlick Speaking: @LyceumAgency she/her
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own."COVID is going to be here forever so we need to deal with it." Okay, but why does it need to be by doing nothing? If we're going to live with this virus, shouldn't we do everything we can to protect ourselves and those around us? I refuse to believe in all or nothing thinking.
Another death in the M.E. community. Condolences to family and friends. 🕯️#MyalgicEncephalomyelitis #MECFS
On Monday, another beloved patient, Loes Talma, passed away. Her request for euthanasia was granted and she left this world after a long sick bed. She'll be sorely missed. #MEawarenessHour 🕯️ …centraal-wordpress-com.translate.goog/2024/04/23/loe… 🕯️ youtube.com/watch?v=HtnZS7… (please switch English subtitles on)
A TV advert campaign for and ME foundation 👏🏻 This is what so many of us have been wanting to see in our own countries. Well done @weandmecfs
We are excited to show you the first video of our campaign. This video will air on Austrian television over the next few weeks. Please help us raise awareness by sharing this tweet. More info: weandmecfs.org/awareness Donations help us liberate those affected. 🙏 #MECFS 💙
When a hospital can treat someone this badly, live, in front of everyone, what does that tell us about accountability? #SaveCarlasLife #BringMillieHome #ExposeMENow
Putting another angle on #SaveCarlasLife she has very loving parents who are there fighting for her, the chronic illness community fighting for her and her MP visited her in hospital. By all accounts these things should've made a difference but they haven't and that's terrifying.
BACME is even worse than I thought. Through their outdated and inaccurate guides for clinicians they are responsible for what is being done to Millie. I hope one day they will be held to account.
The two leading UK #MEcfs charities are linked to an organisation fomenting the psychologisation of the illness. As @h_sharland finds, from 'disordered eating' to ignoring NICE guidelines BACME are not acting in patient's interests #SaveCarlasLife. READ: thecanary.co/uk/analysis/20…
Thank you @joan_crawford1 for submitting an urgent safeguarding concern. #SaveCarlasLife #MedicalAbuse
@CraftyMissB I have submitted an urgent adult safeguarding concern with Richmond and Wandsworth adult safeguarding team this morning regarding Carla. I hope that it helps 🙏
🚨ATTENTION: URGENT MUTUAL AID NEEDED🚨 UNHOUSED SEVERE #LongCovid/#pwME IN NY Discharged from hospital & another hospital would not admit despite being 69 lbs on presentation to ED They are in a hotel now but desperately NEED support cashapp $softbbyboy paypal hopestarmasacre
Allegra is currently inpatient at RUMC STATEN ISLAND. They were first infected with COVID May 2022 and have severe ME, MCAS, and potential gastroparesis. They have been in an abusive home environment and are currently 69(!) lbs. Friends are helping facilitate hospital transfer.
@Bexypie @MEAssociation @actionforme @TheChronicColab @WestMidHospital It's tragic and utterly soul destroying. Makes you wonder what is the point of these charities if they can't do anything at all to stop the blatant abuse & mistreatment of incredibly vulnerable young women with Severe ME.
The prevalence of long COVID in England & Scotland hasn't dropped- there are 2 million people symptoms lasting 4 wks or more following COVID-19, with 1.5 million having day to day limitation in activity as a result.
2 million people living in private households in England and Scotland were experiencing self-reported long COVID Symptoms continuing for more than four weeks after a confirmed or suspected #COVID19 infection that were not explained by something else. ➡️ ons.gov.uk/peoplepopulati…
The sampling method has changed so data not directly comparable to previous releases but this suggests numbers are not coming down Most likely to have symptoms: ❗️age 45-64 ❗️North West ❗️Economically inactive 56% report that they have PEM Fatigue and SOB most common 2/3
🧵The @ONS have published #LongCovid prevelence data from the Winter CIS England+Scotland only ❗️2 million (3.3%) have #LongCovid ❗️1.5 m adversely affected ❗️381k severely impacted ❗️71.1% have had symptoms a year or more ❗️51.3% 2 years + ❗️30.6% 3 years + 600k people 1/3
Can more people outside of those directly affected please start talking about this? It's getting a bit ridiculous.
🧵The @ONS have published #LongCovid prevelence data from the Winter CIS England+Scotland only ❗️2 million (3.3%) have #LongCovid ❗️1.5 m adversely affected ❗️381k severely impacted ❗️71.1% have had symptoms a year or more ❗️51.3% 2 years + ❗️30.6% 3 years + 600k people 1/3
Shortly, we will be publishing emails sent to one of our journalists from a prominent medical professional involved in #MEcfs as we believe these emails to be in the public interest. They show threatening behaviour & a damning misunderstanding of ME itself #SaveCarlasLife
This unfortunately doesn't surprise me...but thank to the canary for diving in so deep to see the links with bacme
The two leading UK #MEcfs charities are linked to an organisation fomenting the psychologisation of the illness. As @h_sharland finds, from 'disordered eating' to ignoring NICE guidelines BACME are not acting in patient's interests #SaveCarlasLife. READ: thecanary.co/uk/analysis/20…
It is linked to this article on #MEcfs @actionforme and the @MEAssociation thecanary.co/uk/analysis/20…
BBC upholds complaint about bogus treatment for ME/CFS on Dragons Den: bbc.co.uk/contact/ecu/dr… Sadly ECU & Ofcom rejected complaints about The Life Scientific when it lavished praise on scientist who developed another bogus treatment for ME/CFS (GET) which NICE now proscribes.
Liberals rly know nothing about the left. There are Mask Blocs in every major city distributing masks. There are millions of ppl who routinely wear masks. In organizing spaces, masks are often required for accessibility. I’m not inherently more menacing bc I don’t want covid jfc
I get the surveillance argument. But conveniently ignored is that people who are masked are also inherently more menacing. By design. The argument about covid seems like bullshit. This is mostly outside. Do these folks use PPE masks when they're off the protest clock?
So many! I'm sorry to be the bearer of more sad news this morning. Condolences to friends and family. 🕯️ #MyalgicEncephalomyelitis #MECFS
Medical gaslighting is a very real and severe issue that doesn’t get talked about enough. It can lead to lifelong consequences (and even death) for patients. Women & marginalized individuals are disproportionately impacted. It’s happened to me many times - with dire effects. 🧵/1
My one hood bit of news is, my social worker just contacted me to ask me to speak about M.E. with one of their groups, as my books had provided "invaluable information" as to how we need to understand this disease, particularly with the increase in post viral conditions.
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