Cat @Catinmyfamily
Long Covid since 6/22 | Treatment Seeker | #FBLC | A new account for privacy United States Joined April 2023-
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Have you filed for SSDI because of your Long Covid?
Which do you think is safer – six week all outdoor summer camp with goats and chickens (H5N1 risk) or school summer camp which is mostly indoors (Covid risk)?
Saw an allergist today in preparationfor potential iliac vein stenting. He was very helpful and knowledgeable about mcas and h1, h2 meds. Perhaps I should’ve expected that, but I did not.
Why are hospitals and their parking lots the most cognitively confusing places ever?
May get some PEM in my arms, but had a good time with my son this morning.
A family member was diagnosed with long Covid (never vaxxed for the anti vax tribe). We have been texting. He appears to have ME. His doctors have been telling him he just needs to exercise more. He used to bike ride 85 miles/week and now struggles to walk. I hate this virus.
#LongCovid patients have: 1. Functional impairment worse than stroke; comparable to Parkinson's 2. Worse quality of life than metastatic cancers 3. Worse fatigue than stroke, bowel disease, & end stage renal disease We need clinical trials urgently! bmjopen.bmj.com/content/13/6/e…
#SaveCarlasLife @BBCNews @DHSCgovuk @NHSuk @NHSEngland This can’t be acceptable. This hospital is killing its patient. Please, do something.
#SaveCarlasLife @BBCNews @DHSCgovuk @NHSuk @NHSEngland This can’t be acceptable. This hospital is killing its patient. Please, do something.
Crashed or sick? I think crashed. Head is pounding. Nauseated. Dizzy. Bed day.
“Mommy, why is one hand red and one hand white?” Good question, little one.
CW: distressing We want you to meet Carla #SaveCarlasLife #ExposeMENow With family's permission we're sharing some videos of her experience in West Middlesex hospital. This first video is what happens when she is exposed to bright light. Staff won't cover the door window.
I know some people got covid, got better, then got long covid. I am someone that got Covid, and did not got better. I have always believed in viral persistence because many of my symptoms feel like acute covid.
I know some people got covid, got better, then got long covid. I am someone that got Covid, and did not got better. I have always believed in viral persistence because many of my symptoms feel like acute covid.
I am covid positive again. It’s impossible to stay well in an unmitigated pandemic when you have kids, are too sick to homeschool and try to hold on to your remote job, and are (thanks to covid) immune compromised.
Soanerez @soanerez44280
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balaganista @balaganista
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Richard Benoni @RichardBenoni
714 Followers 3K Following To err is human to forgive is divine proud democrats #for the love of the nation God #own
Morag Courts @CourtsCou
87 Followers 5K Following
Yes, Vasser is my fir.. @Vasserbee
971 Followers 1K Following [email protected] Will volunteer for #LongCOVID trials. #HELPHEALUS
Lia @LiaLoves34
529 Followers 3K Following she/they mother artist #audhd with severe #longcovid since early 2020, now bedbound ~ demi bi queer 💖💜💙
Natalie /\/¯¯¯¯¯.. @NatalieCapeTown
1K Followers 4K Following Mother, daughter, sister, aunt, cousin, niece, FP HOD, Gr1 teacher, colleague & friend living in the beautiful Mother City /\/¯¯¯¯¯\/\ experiencing #LongCovid
Prof Julia Lawton @Prof_J_Lawton
1K Followers 1K Following I am not here to self promote; I just want to connect with like-minded people who take (long) covid seriously and to keep up to date with the evidence base
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Sir Von Sir @twitVonwill
94 Followers 333 Following Nole Grad, Football Lover, Like Bio Tech and Health Research, Appreciate Humor and Kindness. My Sources say they are unreliable… but how can I trust that?
Andy Flintstone @FlintStoneMan1
2K Followers 5K Following "...decreed it a crime for any citizen to shrink from controversy. Mankind will be what he was born to be, Free and Independent." -John F. Kennedy
nausicaa @redribbon226
129 Followers 706 Following Exhausted #LC spoonie since March 2020 💚 UK wildflowers, trees and wildlife 💚🦔🦊🐝🐦⬛🦉
Melissa Rose @MelRoBuilds
163 Followers 555 Following Unidentified critical illness (lyme+, EBV, dysautonomia, unstable spine, extreme fatigue) Severe ME/CFS (?) CCI (?) Connective tissue disorder(?)
innocent @innocent1915968
817 Followers 2K Following Nothing interesting about me just living life 🤛
Kathleen @komibuchiy66466
5 Followers 247 Following
Laura Boné @2laurabone
288 Followers 890 Following Electric Vehicle Industry /Fighting ME/CFS & Long Covid
CDN_Karma @cdn_karma
230 Followers 523 Following Canadian I collect vinyl records. I believe in Aliens. I'm Gay but not part of the mafia. Covid/ vaccine almost killed me. MAID is Murder.
Annie 🫦 @Annie4480
3 Followers 494 Following In sеarch оf рassiоnate enсоunters, a womаn's aрpеtite knоws nо bounds
Tierra Ledford @LedfordTie13920
85 Followers 5K Following
Lajuana Caraway @lajuana92805
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AirSpot Health @airspothealth
674 Followers 2K Following Our smallest fresh air monitor! Combines with the AirSpot App to help optimise your AirHealth.
covidmecfshelpus @covidmecfshelp1
297 Followers 185 Following Scientist suddenly disabled by covid-triggered ME/CFS March 2020. Still mostly bedbound, desperate for treatments and advocating for help when well enough!
Elon Musk @EMusk84439
23 Followers 1K Following
Ry @ry60003333
494 Followers 2K Following 🍎 engineer (opinions are my own). Former game dev student @RITtigers and startup co-founder at Venture Creations. Frozen fan 💙 Pfp credits to @frostharmonic!
Cora Dulemba @CoraDulemb73021
58 Followers 5K Following
CARMEN SAN DIEGO RESI.. @Realwaterba
2K Followers 5K Following LONG COVID SLOWLY DESTROYED MY BODY & BRAIN (3/2020) FED CIVIL SERVICE. DISABLED VETERAN. HERMITLIFE PERILOUS TIMES. MISANTHROPE. WEAR A DAMN MASK 🏳️🌈
Pearl Sansoucie @PSansou
26 Followers 5K Following
FOR Nature @JacquelynHedden
300 Followers 1K Following I've got questions about this thing we call life. Neurobohemian.
Dr Rebecca Healey @beccyjanehealey
2K Followers 1K Following NHS Doctor on pause #LongCovid | Registered Nutritionist (Public Health) | #CovidIsAirborne | We need #cleanair yesterday.
Jade @lilacskies24
107 Followers 343 Following
Pureology @Welnesschick
2K Followers 4K Following Wellnesschick was taken. Science Nerd. 🧪Facts Matter. Spread love, not Rona. 🖤 If I wanted the government in my uterus, I’d bang a senator.
Facts are good @FactsAreGood
820 Followers 640 Following Card-carrying member of the reality-based community. #virusinjured
Fab Beauroy @pandabearmom
462 Followers 3K Following dog lover..lover of books movies and music ..mom..hard worker..covid careful
יוסי פרס @Yosiperes
181 Followers 2K Following
Ava Pascale @ava_pascale
275 Followers 638 Following #OuiAuMasque #LeMasqueEstPragmatique #Onnarienappris #CovidIsNotOver #AutodéfenseSanitaire #FFP2 #Pandéni #StopauxPesticides #DéfenseAnimale #Potichat
Steve the Book Guy - .. @StashColTV
4K Followers 2K Following Neurodivergent Book Nerd. Protecting his disabled wife from a largely ignored existential crisis with a sword, a bit of wit, and a smile that makes you wonder.
@covid_aulas @aire_aulas
667 Followers 1K Following ¡Purificadores de aire con filtros HEPA y medidores de CO2 en las aulas ya! Y protocolos con sentido: uso de mascarillas y aislamiento de positivos...
Benonie Paculaba Jr @jr_paculaba
23 Followers 43 Following
Law Translator @tlmulroy
6K Followers 6K Following Former law clerk to Judge Sullivan.Watched Flynn plead guilty. Followed by Ted Lieu, Glenn Kirschner, Tristan Snell 💙☮️
Rete Long Covid Press @ReteLongCovid
149 Followers 1K Following Benvenuti nella Rete Long Covid Italia 💙 https://t.co/T6NThQfoQL
Gina 😷 SARS2 is Ai.. @Saffiya_Khan1
18K Followers 11K Following Against the repeated mass infection of the population with SARS2. Wear a respirator. Campaign for clean air. #GreensAgainstCovid @GrnsAgnstCvd
Max Occupancy 🇺�.. @MaxxxOccupancy
164 Followers 651 Following
Bonnie @ModernDarkAge
3K Followers 3K Following {🌎Sʏsᴛᴇᴍ⚠️} {😷Pᴀʀᴇɴᴛ} {🧠ND} {🖥️Sᴄɪᴇɴᴛɪsᴛ} {🎮Esᴄᴀᴘɪsᴛ📚} {BʟᴜᴇSᴋʏ} https://t.co/gOIfpSFrtb {Mᴀsᴛᴏᴅᴏɴ} https://t.co/3RROxe2h6n
Nick Melia @arta_semita
1K Followers 1K Following Systems biochemist, researcher @RenegadeRes Studying the etiology and pathogenesis of Long COVID and Myalgic Encephalomyelitis (ME)
Tyler 🚩🏴🍞 SA.. @Earth___Crisis
1K Followers 644 Following No Compromise in the Defense of Mother Earth.
Patients with Power @PtsWithPower
2K Followers 989 Following Rogue neuroscientist fighting for healthcare based on science; not bias. Health scams & dodgy science 🧐 Patient rights & power dynamics⚡️I like solving puzzles
Natalie /\/¯¯¯¯¯.. @NatalieCapeTown
1K Followers 4K Following Mother, daughter, sister, aunt, cousin, niece, FP HOD, Gr1 teacher, colleague & friend living in the beautiful Mother City /\/¯¯¯¯¯\/\ experiencing #LongCovid
Prof Julia Lawton @Prof_J_Lawton
1K Followers 1K Following I am not here to self promote; I just want to connect with like-minded people who take (long) covid seriously and to keep up to date with the evidence base
Dotti B. @DottiB
130 Followers 605 Following OSU journalism alum, OK Democrat 🦄, pro choice, #LongCovid + #POTS, doc film watcher, cat mom, pool lover, moon gazer. Mexican food is my love language.
Sir Von Sir @twitVonwill
94 Followers 333 Following Nole Grad, Football Lover, Like Bio Tech and Health Research, Appreciate Humor and Kindness. My Sources say they are unreliable… but how can I trust that?
Melissa Rose @MelRoBuilds
163 Followers 555 Following Unidentified critical illness (lyme+, EBV, dysautonomia, unstable spine, extreme fatigue) Severe ME/CFS (?) CCI (?) Connective tissue disorder(?)
James F. Smith @DJ_Znuh
570 Followers 436 Following
Ngozi Chione @ChioneNgozi
3K Followers 868 Following I’m not a big fan of labels. Love my little Twitter family. You’ll get my vibe from what I tweet. 🇳🇿 🇬🇧 🇳🇬 🇧🇯 🇹🇬
Rick Bright @RickABright
48K Followers 3K Following Practical, Innovative, Hyper-focused on saving lives. Immunologist, Virologist, Pandemic Nemesis. Posts are mine.
Amy Rochlin @amyrochlin
855 Followers 2K Following Executive Director, @MetrodoraFdtn - Proudly working to advance progress for patients living with chronic, multisystem disorders. Opinions are my own.
Kirsty Schnickelfritz @KSchnickelfritz
3K Followers 1K Following Licensed to rest. Untapped resource, just mucking around.
@TheChronicCollaborat.. @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Save Liz Nevra @SaveLizNevra
493 Followers 794 Following A place to receive updates and support Nevra Liz on her journey with Ehlers-Danlos Syndrome, PMDD and ME/CFS to get the health care she needs. #ME #EDS #PMDD
Laura Boné @2laurabone
288 Followers 890 Following Electric Vehicle Industry /Fighting ME/CFS & Long Covid
covidmecfshelpus @covidmecfshelp1
297 Followers 185 Following Scientist suddenly disabled by covid-triggered ME/CFS March 2020. Still mostly bedbound, desperate for treatments and advocating for help when well enough!
Spela Salamon, MD, Ph.. @SalamonSMD
3K Followers 2K Following Diagnostician, Pathophysiologist. #CovidIsAirborne #Maskup #MasksInHealthcare #DoNoHarm #MandateMasks #WearAMask #VaccinesPlus #CO2 #HEPA #NotMild
CARMEN SAN DIEGO RESI.. @Realwaterba
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The Northumberland Me.. @ThePEIMermaid
785 Followers 2K Following #IslanderByChoice #LoverofDogs #SupportLocal #Feminist Born at 319.08 she/her
Your Fave's Fave 🇵.. @_ItsMarisWorld_
9K Followers 360 Following Read What I Wrote. Not What You Think I Said. MyTableForOne everywhere. MyTable4One on Tumblr. https://t.co/4Bw7GxnprF
Mine @MehneMuh
2K Followers 905 Following #LongCovid and #MECFS Awareness & Memes Empathie ist sexy.
Facts are good @FactsAreGood
820 Followers 640 Following Card-carrying member of the reality-based community. #virusinjured
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2K Followers 1K Following NHS Doctor on pause #LongCovid | Registered Nutritionist (Public Health) | #CovidIsAirborne | We need #cleanair yesterday.
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107 Followers 343 Following
FOR Nature @JacquelynHedden
300 Followers 1K Following I've got questions about this thing we call life. Neurobohemian.
Jyri @ArtOfFiktio
175 Followers 263 Following I used to be: Hobbyist photographer, video editor, simple gamer. Giant fan of The Elders Scrolls Online - game. Now I have complicated life with #LongCovid
Gina 😷 SARS2 is Ai.. @Saffiya_Khan1
18K Followers 11K Following Against the repeated mass infection of the population with SARS2. Wear a respirator. Campaign for clean air. #GreensAgainstCovid @GrnsAgnstCvd
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432 Followers 2K Following Please wear a n95 respirator (mask) 😷 to protect the vulnerable AKA everyone. #covidisNOTover #SARS2isAirborne
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109 Followers 405 Following Scientist, love Disco, Elvis and Wales. Wearer of sequins and Masks. New account not a bot . Views my own
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Ant Lila II🍂😷�.. @dissonanttwink
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Jason M @TheTrueJasonM
3K Followers 3K Following jasonm. bsky. social Still N95 masking. Not fooled by the minimizing propaganda constantly spewed at us by the government ,"health" officials, and the media.
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Long Covid Doc @longcoviddoc
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Clemens Marliani @ClemensMarliani
334 Followers 281 Following Nicht vergessen, 6. April 14:00 Uhr Zürich Helvetiaplatz #LiegendDemo@alexandrite113 Whatever you win, it's probably covered in salt.
Taking all my medications and supplements, drinking enough fluids and electrolytes, resting an adequate amount, and feeding my microbiome are a fucking full-time job. 😵💫
@erincandy @Catinmyfamily Yeah if they are up to date, they are one of the best avenues if you suspect MCAS. I had a crappy allergist who said MCAS was "alternative medicine" and then had a really fantastic allergist who was well informed.
well done @MikesEUmaras !!! 50K in biomedical research for #MECFS
Thanks to @MikesEUmaras for this amazing achievement Enabling biomedical research @CofEforME in @NorwichResearch and raising awareness around #Europe Our great thanks to Mike and his family justgiving.com/fundraising/mi… #mecfs @TheQuadram #research #philanthropy
🚨 Great news—CME accreditation! Up to 17 CME Points! 😲 We are pleased to announce that #UniteToFight2024 conference has received CME accreditation in Germany, worth up to 17 points (CME points per Session blocks more details very soon). This accreditation is valid for…
@Catinmyfamily On it. 500 twice a day. Nothing solid to report.
@1goodtern The utter fatigue and the brain fog. They seem to come together.
@1goodtern whatever depletes the energy to 2%.
@CamRegier @Catinmyfamily Yeah mine was well informed luckily. And was impressed that I knew a lot about it and didn’t make me feel crazy!
MY RHEUM DOC CAME THROUGH. My antibiotics are called in and I'm going to get them. Not all heroes wear capes. He's definitely mine right now. It's absolutely nightmarish to have anything wrong with you in the US. Our system is destroyed. Not crumbling, but destroyed.
@Catinmyfamily An allergist is who diagnosed my MCAS
@outbreakupdates If they have H5N1 & aren’t dying or getting sick enough to be hospitalized or go to a doc, isn’t that good news? If so they need mandatory testing to find out how the variant has not become lethal & get quick treatment/vaccines to prevent lethality from evolving.
@outbreakupdates Would make sense as to why influenza A is spiking in wastewater in some Texas watersheds specifically - but I'd bet money it's not just Texas.
The Sick Times is excited to announce we have received an award of $250,000 from the biotech giving fund Kanro. This grant will fund our general operations over the next 18 months, enabling our expansion to a larger newsroom. Read more: thesicktimes.org/2024/04/30/pre…
hi folks, i deactivated of my own free will and may do so again. i am taking some time off of twitter for a myriad of differing reasons, but i appreciate what everyone has done for me in this community over the past year. thank you🌸
@phi_psd I've been doing it for about 9 months It's overall weak compared to everything else I've tried. I added daclatasvir a few weeks ago And then this week I doubled dose and have had big reduction in pain/inflammation
In 2018 I spent hours daily reading +listening to recovery stories. I avoided anything negative like the plague or made excuses why some never got better but I will get better. Fact is: recovery from real #mecfs is exceedingly unlikely. We URGENTLY NEED a medical breakthrough!!!
The osmotic laxatives took full effect in the night as I woke up at 11:30 & had a good empty! The signs of impaction stopped after that as the doctor said they should. Cannot tell you how relieved I am 😮💨 incredibly grateful it worked & I avoided hospital admission.
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