We are telling kids they have an invisible disease.
Will we tell them to stop faking it and get a real job as well?
This is the legacy that our generation is leaving behind.
#LongCovidKidsgoodmorningamerica.com/wellness/video…
Bevor ich über ME/CFS "gestolpert" bin (in Aus- und Fortbildung wird es ja ebenso ausgeblendet wie in der Versorgung) hätte ich das auch nie gedacht.
Auch nicht, wie schnell man unter Kollegen zum Feindbild wird, wenn man sich mit ME/CFS beschäftigt.
“ME/CFS patients feel effectively the same every day as an AIDS patient feels two months before death; the only difference is that the symptoms can go on for never-ending decades.”
Prof. Mark Loveless, Head of the AIDS and ME/CFS Clinic at Oregon Health Sciences #MECFS…
Her 2.5 min piano time gave her a PEM that last throughout the whole night contributing to her misery. But, she knew it was going to happen and willingly preferred to spend that little time with her piano. This is where we stand with #effortpreferences@NatureComms@NIHDirector
Her 2.5 min piano time gave her a PEM that last throughout the whole night contributing to her misery. But, she knew it was going to happen and willingly preferred to spend that little time with her piano. This is where we stand with #effortpreferences@NatureComms@NIHDirector
Never say:
❌ "This illness found you because you're so strong."
❌ "So you were needed to be a voice."
✔️ "You don't have to be 'It' to be the voice of those in trouble. I became the voice of patients when no one near me had Alzheimer's. #MECFS
Never say:
❌ "This illness found you because you're so strong."
❌ "So you were needed to be a voice."
✔️ "You don't have to be 'It' to be the voice of those in trouble. I became the voice of patients when no one near me had Alzheimer's. #MECFS
A riddle for #medstudents:
I wander the air, not rabies but I pry affecting the nerves, under the sky.
I weaken your shield, yet I’m not HIV. Clotting’s a mess, but Ebola’s not me.
Easily spread, but I’m not the common flu,
A global shake-up, changing all we knew.
What am I?
You will need more neurologists soon. Unfortunately, some of them have had to quit practicing despite decades of experience in the field because they have to take care of their kids with Long COVID! #LongCovidAwarenesDay#LongCovidKids#CureLongCovid
You will need more neurologists soon. Unfortunately, some of them have had to quit practicing despite decades of experience in the field because they have to take care of their kids with Long COVID! #LongCovidAwarenesDay#LongCovidKids#CureLongCovid
Today is #LongCovidAwareness Day. As a mom of a 15-year-old with severe ME/CFS type Long COVID, and as both physician parents, we’ve diligently pursued every possible treatment option in this overlooked and uncharted territory, where no approved medication is available.…
I noticed this even early in the pandemic with the sudden exacerbation of my dementia patients' symptoms and the surge in new patient applications to my office, based on my statistics, just before I stopped practicing due to our little girl's post-COVID ME/CFS :( #LongCovidKids
I noticed this even early in the pandemic with the sudden exacerbation of my dementia patients' symptoms and the surge in new patient applications to my office, based on my statistics, just before I stopped practicing due to our little girl's post-COVID ME/CFS :( #LongCovidKids
This should ring a bell for all dementia neurologists and advocates of Alzheimer's disease. Landscape is rapidly changing and you are falling behind!
P.S. Except you @NeurologistMom , we fell right into the core :(
This should ring a bell for all dementia neurologists and advocates of Alzheimer's disease. Landscape is rapidly changing and you are falling behind!
P.S. Except you @NeurologistMom , we fell right into the core :(
By the way, the temporoparietal junction (TPJ) has been one of my areas of interest for years as a neurologist. Finding the defect related to the TPJ’s role in the NIH Intramural study didn’t even require someone who specializes in TPJ functions.
By the way, the temporoparietal junction (TPJ) has been one of my areas of interest for years as a neurologist. Finding the defect related to the TPJ’s role in the NIH Intramural study didn’t even require someone who specializes in TPJ functions.
Is there a term for when financial gains and political interests, instead of scientific evidence and medical principles or the "art of medicine" drive healthcare policies and treatment guidelines?
It’s my institution, but the approach has been profoundly disappointing. An active neuroinflammatory disease process affecting multiple systems, warrants a multidisciplinary approach. We are dealing with an active inflammatory process, not merely the aftermath of an infection.
It’s my institution, but the approach has been profoundly disappointing. An active neuroinflammatory disease process affecting multiple systems, warrants a multidisciplinary approach. We are dealing with an active inflammatory process, not merely the aftermath of an infection.
10K Followers 3K FollowingVascular Interventional Specialist @SLU_VIR | Surgery but #WithoutAScalpel, a BestKeptSecret in Medicine | Dad to 👸👸🫅|Tweets my own
4K Followers 357 FollowingThe University of Washington Department of Radiology's official Twitter account. Please visit our website to learn more about us.
102K Followers 4K FollowingBeyin Cerrahı, Bilim İnsanı, Dünya ve Avrupa Bilim-Sanat Akademileri Üyesi; BEYİN ve HİPOFİZ TÜMÖRLERİ, GAMMA KNIFE; NEUROSURGERY
53K Followers 39K FollowingradRounds is for sharing cases, finding latest career opportunities, connecting in #radiology. DM to submit cases, find, post career opportunities. #medtwitter
7K Followers 4K FollowingThe BackTable podcast is for all things Vascular and Interventional; covering tools, techniques, and expert guidance. It's the meeting after the meeting.
9K Followers 3K FollowingVascular & Interventional Radiologist at Rush University Medical Center. Passionate about Limb Preservation/CLI. Tweets are my own.
14K Followers 2K FollowingThe Angela and Richard T. Clark Distinguished Professor of Neurosurgery Division Chief #Cerebrovascular at @TJUHospital Philadelphia USA. Level IV Sommelier
8K Followers 5K FollowingInterventional Radiologist at Univ of Chicago. #IRad nerd, sports nut, daddy to 4 angels. Chief Medical Officer of Flow Medical 🫁🫀
262 Followers 495 FollowingI am a Christian, conservative Southern Lady and married. I Love nature.
Any tweets are of my opinion and are not intended as medical advice.
7K Followers 937 FollowingPostdoctoral Fellow at MUSC | Driving Research Progress in the Ehlers-Danlos Syndromes | Passionate about Science Communication and Education
3K Followers 6K Followingit’s becoming very obvious that we 🇺🇸s are under attack! I’m here to help stop that one comment at time🤓 #humor #LongCovid #politics #VoteBlue 🌊🇺🇸
938 Followers 4K Following“Uma advogada polida levando uma vida lascada”~ARuiz DireitosHumanos para a população de rua| Advogada orientadora no @dj_xideagosto da Faculdade de Direito USP
3K Followers 2K FollowingMaking a noise about the injustices & lack of support for #pwME #LongCovid 💙
@[email protected] 🐘
@KirstieSivap 🐳
@kirstiesivapalan 🧵
223 Followers 560 FollowingDealing with Longhaul Covid/MECFS since the first wave. 4 year anniversary 3/24/2024
'I Create The Space For Good Things To Happen'
1K Followers 855 FollowingMD
...how a surgeon gets interested in virology...
日本語の投稿に間違いがある場合は、ご容赦ください🙏。DeepLによって翻訳されています。no medical advice! collection of papers for scientific exchange.
3K Followers 1K FollowingCFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Also on Insta as JustJoHere and BlueSky as JustJo
169 Followers 479 FollowingVitebegjærlig og er veldig glad i ting jeg ikke kan. Kan tenkes at jeg har plukket opp ett og annet på veien :) Familieterapeut. ME
1K Followers 2K FollowingPsychologin, bis 2016 spez. in Therapien bei #ASS, seither arbeitsunfähig aufgrund ME, seit Covid schwer erkrankt #MECFS #LongCovid
295 Followers 542 Following#PoTS #MFS #SFN Patient advocate.
Disclaimer: This is my personal profile & opinion
#makenoiseforturquoise #potsawareness #marfansyndrome
#smallfibreneuropathy
2K Followers 4K FollowingA moment of kindness can last a lifetime to the person you were kind to. I work with those who live with dementia/Alzheimer’s. Wife/Mom/Author/Lyricist/Artist
1K Followers 1K FollowingAuthor. Podcaster. Craniosacral Therapist. Check out my new podcast "the baby in the bathwater" and my book "Invisible Work: An Ex-Lawyer's Guide to Self-Care.
6K Followers 5K FollowingSevere #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
52K Followers 165 FollowingNeuroradiologist @HRInstitute_AZ. @BarrowNeuro. Striving to make learning neuroimaging and anatomy fun. If I can make you laugh, I can make you learn.
10K Followers 3K FollowingVascular Interventional Specialist @SLU_VIR | Surgery but #WithoutAScalpel, a BestKeptSecret in Medicine | Dad to 👸👸🫅|Tweets my own
4K Followers 357 FollowingThe University of Washington Department of Radiology's official Twitter account. Please visit our website to learn more about us.
102K Followers 4K FollowingBeyin Cerrahı, Bilim İnsanı, Dünya ve Avrupa Bilim-Sanat Akademileri Üyesi; BEYİN ve HİPOFİZ TÜMÖRLERİ, GAMMA KNIFE; NEUROSURGERY
53K Followers 39K FollowingradRounds is for sharing cases, finding latest career opportunities, connecting in #radiology. DM to submit cases, find, post career opportunities. #medtwitter
7K Followers 4K FollowingThe BackTable podcast is for all things Vascular and Interventional; covering tools, techniques, and expert guidance. It's the meeting after the meeting.
9K Followers 3K FollowingVascular & Interventional Radiologist at Rush University Medical Center. Passionate about Limb Preservation/CLI. Tweets are my own.
1K Followers 3K FollowingLet's tear down silo walls in the data center. Spent a decade each in servers and storage, then networking. Consultant to Daedaelus Corp. Retired from HPE.
3K Followers 2K FollowingMedical educator, Sjogren’s & spondylitis patient. I combat Sjogren's myths to improve diagnosis and care for this serious, systemic disease. No medical advice.
2K Followers 2K FollowingMyalgicEncephalomyelitis—2 many lives lost—ruined—stolen. Outrageous neglect & medical MIStreatment—by our govts. 🆘 SHAME on them 🧐 Fight back ‼️ 🆘 pwME
904 Followers 2K FollowingDislike exploitation of precarity and its enabler, incrementalism. Here mostly to read. Wearing N95s or better; using Smart Air Blast, Levoit, & Coway. #pwME
983 Followers 864 FollowingHead, Interventional Radiology, Vancouver General Hospital. Dad. Pianist. Music writer producer. Sailor. Gearhead. Destroyer of vascular malformations.
3K Followers 3K FollowingMam to daughter battling severe Long Covid. Grasping at answers blowing in the wind. Journo who left media frypan to jump into the law world fire.
1K Followers 680 FollowingUCSF ‘03, UCI Med ‘99. The Brain, Biochemistry & Cell Biology. LongCovid/LongCovidVaccinationSyndrome/PACVS. Tweets are my own & not medical advice. She/her
2K Followers 875 Followingspeaking up for everyone affected by severe/very severe #ME. My daughter, my only child, died from ME Oct 2021. Inquest opened. Full hearings expected July 2024
1.0M Followers 916 FollowingCo-Founder of Coursera; Stanford CS adjunct faculty. Former head of Baidu AI Group/Google Brain. #ai #machinelearning, #deeplearning #MOOCs
1K Followers 402 FollowingAssistant Professor, Neuroradiology - Director, CU CSF Leak Program - University of Colorado Anschutz Medical Campus - Alumni: UCSF - #CSFLeak #NeuroRad
16K Followers 407 Following🇹🇷 T.C. Kültür ve Turizm Bakan Yardımcısı. Deputy Minister of Culture and Tourism / Dr. KamuYönetimi SiyasetBilimi PublicAdministration PoliticalScience
1K Followers 790 FollowingThe Yonker Lab at Mass. General Hospital studies neutrophilic airway inflammation, as seen in pediatric COVID-19, cystic fibrosis, and childhood pneumonia.
10K Followers 622 FollowingLearn with me about imaging above the clavicles, especially from dura to pleura. #HNRad #NeuroRad #RadEd Curated by @francisdeng
703 Followers 267 FollowingCardiothoracic Radiologist, Coronary plaque analysis advocate. UW Medicine 3D Printing Center Director. Currently @UWRadiology formerly @DukeRadiology
195K Followers 4K FollowingEmergency care | mom | research | @MSNBC Health Columnist | bylines in WaPo, TIME, USA Today | https://t.co/AUOfI40bXS | https://t.co/XfI9YOcIbm
94 Followers 197 FollowingPhD candidate, Dept. Experimental Immunology, Amsterdam UMC, Location AMC, University of Amsterdam. Research on pathology of TB and COVID-19, PASC (long COVID).