LongHaulSolo @longhaulsolo
Attorney who got clobbered with #LongCovid #MECFS #POTS. Trying to find solutions. Currently trialing LDN. Evanston, IL Joined May 2023-
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We must use every tool available to address the #LongCOVID crisis. Grateful for the work @The_BMC is doing with their Long COVID Clinic & honored to host Dir. Simon of @HHSGov's Office of Long COVID Research & Practice. We'll never stop fighting for our #LongHaulers.
We must use every tool available to address the #LongCOVID crisis. Grateful for the work @The_BMC is doing with their Long COVID Clinic & honored to host Dir. Simon of @HHSGov's Office of Long COVID Research & Practice. We'll never stop fighting for our #LongHaulers.
I just sent email on this. Please consider doing same
I just sent email on this. Please consider doing same
Just submitted my comments to Senator Sanders office on the #longcovid #MOONSHOT legislation. If you have the energy, I highly recommend you take a few minutes and do the same. Thanks.
Have you subscribed to my YouTube channel? Apparently not. Can you give a brother a click/subscribe and a RT? youtube.com/@SeekingBoston
We cannot ignore the public health crisis that is Long COVID. On Long COVID Awareness Day, let us commit to doing everything we can to address this horrible condition. The U.S. government must do more to increase awareness and provide additional resources to develop treatments.
We are suffering. We are asking for research funding. We are asking for speed. This illness is unbearable. I still can’t believe how bad it is. And we don’t have the help we sorely need. Please be a hero to so many @CDCDirector . Fund research.
We are suffering. We are asking for research funding. We are asking for speed. This illness is unbearable. I still can’t believe how bad it is. And we don’t have the help we sorely need. Please be a hero to so many @CDCDirector . Fund research.
I’m a shadow of the person I used to be. #LongCovid is absolute hell. Wasting away waiting for treatments is no way to live.
To those still suffering from #LongCOVID: We see you, your experiences are real, and we won't stop fighting to #TREATLongCOVID and deliver the resources our #LongHaulers deserve. youtube.com/watch?v=rH_K78…
It’s simple compassion. People are suffering. Get the research funded. Spend it wisely.
It’s simple compassion. People are suffering. Get the research funded. Spend it wisely.
#LongCovidAwarenessDay is a sad day for me. It reminds me of how sick I’ve gotten after a mild-ish bout of covid. From an active hiker, camper and biker to an essentially bed ridden ill person. Hope there are treatments soon for all those afflicted.
Millions of Americans suffer from long COVID. Why do treatments remain out of reach? usatoday.com/story/news/hea…
PLEASE do this! One or two sentences. Goal is not to get them to publish the letters, but to have editors hear interest. These stories get read at the highest levels at the NIH, but the Times won’t keep writing them if they don’t get any feedback, because they get little traffic
PLEASE do this! One or two sentences. Goal is not to get them to publish the letters, but to have editors hear interest. These stories get read at the highest levels at the NIH, but the Times won’t keep writing them if they don’t get any feedback, because they get little traffic
M.E.: Lives devastated - and told it's made up channel4.com/news/m-e-lives…
This can happen to anyone. I was an active, happy person. Long covid has destroyed my body after a mild acute covid phase. Please help us, you could be helping your future self! #LongCovid
This can happen to anyone. I was an active, happy person. Long covid has destroyed my body after a mild acute covid phase. Please help us, you could be helping your future self! #LongCovid
After 2+ years of this illness, I still wake up thinking “maybe I’ll be better today”. It never happens. It’s so hard to accept. How can the body turn on itself like this? We need HELP. #LongCovid #MECFS
Please support funding for long covid research. It’s a horrific illness and can happen to anyone.
Please support funding for long covid research. It’s a horrific illness and can happen to anyone.
For all those suffering with #LongCovid we thank you. Hope research funding follows, it’s the only way to treatments and a cure.
For all those suffering with #LongCovid we thank you. Hope research funding follows, it’s the only way to treatments and a cure.
Last week, I led a hearing in the HELP Committee on long COVID. We must listen to the millions of Americans struggling with long COVID and give this issue the urgent attention it demands. If you missed it, tune in below. x.com/i/broadcasts/1…
Thank you Senator. It is time to act!
Thank you Senator. It is time to act!
I hate this illness. 2 and half years. I know people have had ME much longer. I don’t know how they do it. So insane there is not real helpful treatment. It’s torture. #LongCovid
Marietta Goffman @MarieGoffma
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innocent @innocent1915968
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Jessica @mamaoftwinsRN
679 Followers 2K Following feisty lifelong liberal 💙 🚫DM 🚫MAGAts #bluewave2024 🌊#votebluenomatterwho #FBR #bidenharris2024 #WOKEaf #nomorebookbans #proudally 🏳️🌈🌈
Paul #LongCovid #prot.. @TOM88HK
319 Followers 1K Following Inf.over SARS COV2 het is geen GRIEP & andere actuele onderwerpen.#Kinderrechten STOP MEDISCHE DISCRIMINATIE Kan niet tegen onrecht. Komt op voor kinderrechten.
CherryHarte @6U27BEX6V5pUe
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AllyAlly @AllyKeyLime
2K Followers 3K Following FAR UVC 222nm, masks for doctor/dentist/hospitals/public transpo/pharmacies/grocery. Organs matter. CFS. MCS. Protect Animals. Ⓥ XRP🪙
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Chika_Ps ❤️🕊 @YammounaD
724 Followers 2K Following #FreePalestine #GazaIsStarving #CeasefireNow #starlinkforgaza #غزة_الآن Chika kudo-----Kono oto Tomare Sounds of life
jess @jessicaliu35752
12 Followers 125 Following 18 yr old w very severe me/cfs and long covid. been lurking for a while.
JesusIsComing @JesusIs91940818
91 Followers 386 Following Mat 24:7 For nation shall rise against nation, and kingdom against kingdom: and there shall be famines, and pestilences, and earthquakes, in divers places.
EPIPOLE of Phoenix @EpipoleofPHX
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#NotJustFatigue @njfatigue
583 Followers 656 Following We are a 501(c)(3) sounding the alarm on ME/CFS through digestible, creative content. This is #NotJustFatigue
LongCOVIDWARRIOR @Bodalicious1
2K Followers 5K Following Struggling with #longcovid after a ‘mild’ infection during the March 2020 first wave. Sharing news and remedies for holistic recovery. Love little dogs.
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Kyle @klmatter
213 Followers 261 Following Engineer, father, and avid outdoor enthusiast. Current LC patient. Trying to fix that last one.
tdubster @tdubster
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FrustratedMelburnian @belyndar
1K Followers 2K Following 'No one left behind' has some knarly fine print. Climate change, covid mitigation & human rights action are the only things that matter right now.
Baz @allthatbazzz
409 Followers 685 Following #LongCovid since 2021. Hoping this is the year I get my life back ❤️🩹 #LongCovidAdvocacy indie music lover and art fangirl ✨ Gaylor🪻
Nikkie Gallant @nikkie_music
1K Followers 4K Following Singer/Songwriter, potter, & a whole bunch of other things. She/her (or they/them) 🎶📖✍️🎤🎸🍶🏳️🌈🖼️💃🎛️ 🥄 mstdn ca nikkiegallant & inst nikkiegallant
Simone @SimonePands1111
1K Followers 4K Following Alberta Public Health RN, BScN, IBCLC, 🇨🇦who likes reading quality scientific studies and sharing informed Covid-19 global health impacts. Politics too
Kaya Salamacha @KaSalamach
50 Followers 5K Following
anna gordon @sugarmatrixuk
158 Followers 995 Following Wife to Stevie, mama to many. Love my cats ( @cupcakeCat2014)
mem @torqu111
364 Followers 854 Following they/them NSFW 25 Agender Black Fat ADHD & CHRONICALLY ILL Autizzy who is Oppositional!! Free the Oppressed People & Lands of occupations, end their genocides.
#abstractoidZdoTcoM @abstractoidZ
1K Followers 4K Following 💞#Thelema💞 #Music #Producer #Gamer #Gaming #Crypto #StonerFam #Cannabis #Horror #abstractoidZdoTcoM #MBBohemianStoner #Taphophilia #SVOB
Jenna Simpson-Oliver @jenlso
1K Followers 2K Following Health Lawyer, Twin Momma, Wife, Covid Long-Hauler since Jan '21, and reluctant Covid Novice Researcher. #LongCovid. No tweets are legal advice.
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Aaron Rupar @atrupar
900K Followers 3K Following journalist. sign up for my newsletter, Public Notice (link below). Powered by @SnapStream (more info: https://t.co/2oHPuuFBnN).
Phish: From The Road @Phish_FTR
96K Followers 11 Following Official From The Road updates from Phish Tour. setlists, photos, videos and more...
Julie Sullivan @CureLongCovid
192 Followers 718 Following Program Manager of The Covid Recovery Center at Brigham and Women’s Hospital in Boston MA. Opinions are my own. Here to advocate and educate, not argue 💕
Pelagie Eva @PelagieHortense
2K Followers 3K Following Arts, antiques, archeology. Systemic illness since covid. #longcovid
Jalen Brown @itsJalenB
6K Followers 5K Following Congressional Health Care Reporter @InHealthPolicy | Past: @BGOV, @CNN, @Forbes | @NABJ | ❝The people must know before they can act...❞ — Ida B. Wells
Ida Bergstrom, MD @DCDoc33
4K Followers 286 Following Internal medicine MD, MBA; special interests in primary care, preventative health. weight loss medicine, vaccines; perpetual learner
KneesOverToesGuy @kneesovertoesg
146K Followers 105 Following https://t.co/5uyL41rBZ2: Programs w/ form-coaching under 24hrs, 7 days, 49.50/mo, no contract. https://t.co/a3lAx7Qty4 🦵https://t.co/dkMRb8pEQp 👟
Greer @mitd_greer
181 Followers 215 Following wife, mom, lifelong athlete. severe acute covid left me sick and disabled. #longcovid
Juan Alcazar @Jalcazargalan
234 Followers 231 Following
Fatih @fatihnomad
438 Followers 1K Following #LongCovid #Dysautonomia #POTS patient since November 2020 #BC007
Renuka Dhinakaran @renudhinakaran
6K Followers 602 Following International Labour Lawyer Patient Advocate for #hEDS #POTS #LongCovid #rheumatoidarthritis #Dysautonomia Focusing on marriage, parenting & chronic illness
Kyle @klmatter
213 Followers 261 Following Engineer, father, and avid outdoor enthusiast. Current LC patient. Trying to fix that last one.
Baz @allthatbazzz
409 Followers 685 Following #LongCovid since 2021. Hoping this is the year I get my life back ❤️🩹 #LongCovidAdvocacy indie music lover and art fangirl ✨ Gaylor🪻
Nikkie Gallant @nikkie_music
1K Followers 4K Following Singer/Songwriter, potter, & a whole bunch of other things. She/her (or they/them) 🎶📖✍️🎤🎸🍶🏳️🌈🖼️💃🎛️ 🥄 mstdn ca nikkiegallant & inst nikkiegallant
David Fajgenbaum, MD @DavidFajgenbaum
11K Followers 3K Following @Penn physician-scientist-patient who 'cured thyself' | Advancing @CureCastleman + @EveryCure | National Bestseller #ChasingMyCure https://t.co/26OS13etrF
Simone @SimonePands1111
1K Followers 4K Following Alberta Public Health RN, BScN, IBCLC, 🇨🇦who likes reading quality scientific studies and sharing informed Covid-19 global health impacts. Politics too
Cristina kicking Long.. @Fighting_LC
679 Followers 333 Following #LongCovid since Summer 2022. Doctor of Humanities. On Pause. Curious. Arty. Messy. A #Renegade50 with @RemissionBiome! #TreatLongCovid #MECFS
George Monbiot @GeorgeMonbiot
583K Followers 3K Following The corpse at every wedding, the bride at every funeral.
NBACentral @TheDunkCentral
1.6M Followers 413 Following Not affiliated with the National Basketball Association | contact ✉️ [email protected] | Formerly @TheNBACentral
𝕯𝖎𝖑𝖉𝖔 .. @EmmaTolkin
26K Followers 5K Following 𝔪𝔢𝔡𝔦𝔢𝔳𝔞𝔩𝔦𝔰𝔱, 𝚜𝚌𝚛𝚎𝚎𝚗𝚠𝚛𝚒𝚝𝚎𝚛, 𝕢𝕦𝕖𝕖𝕣™ 𝓈𝓁𝑒𝑒𝓅𝓎༄ ᴊᴇᴡ ✡︎ 𝖘𝖍𝖊/𝖍𝖊𝖗 🕺🏻 ✨ https://t.co/O748mPTFk9
mem @torqu111
364 Followers 854 Following they/them NSFW 25 Agender Black Fat ADHD & CHRONICALLY ILL Autizzy who is Oppositional!! Free the Oppressed People & Lands of occupations, end their genocides.
sarah | ISO TS NOLA �.. @sunfl_0wer
475 Followers 765 Following i'm here, i'm queer, i'm a(n aspiring) cybersecurity engineer // @LSUCyber // long covid since 7/2020 // she/her
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Lolo @LolOverruled
161K Followers 1K Following court appointed hype man reach me by email loloverruledbusiness@gmail or IG dm
ThreeBucks 😷 has L.. @The3Buckleys
1K Followers 1K Following Threads and IG: laurawerkes Bluesky: threebucks #LongCOVID March 2020 #MaskUp #dysautonomia #PEM #ADHD von Willebrand’s #BleedingDisorder #Illini I bleed 🧡💙
Joe Simitian @joesimitian
2K Followers 322 Following Candidate for Congressional District 16. Husband | Supervisor | Former Assemblymember | Former State Senator. Contact: [email protected]
Brain Inflammation Co.. @BrainInflCollab
812 Followers 47 Following We are organizing a coordinated research effort to revolutionize the diagnosis and treatment of #neuroinflammation illnesses and #mentalhealth symptoms.
CoRE Mount Sinai @CoRESinai
502 Followers 2 Following The Cohen Center for Recovery from Complex Chronic Illness (CoRE) advances treatment and knowledge of Long COVID, Chronic Lyme, ME/CFS, and hEDS.
Petter Brodin @BrodinPetter
13K Followers 9K Following Professor of Pediatric Immunology • Pediatrician • Human Systems Immunology • Experiments • Computation • @MRC_LMS • @imperialcollege • @karolinskainst
steven 💜 @zencoffeebreak
3K Followers 2K Following friend-shaped 🫶 they have no pronouns in their bio. ex-evangelical • secular humanist • asexual/aromantic • non-binary • #LongCovid
Ingo K. @IngoKlemisch
354 Followers 261 Following Ein meist netter Mensch. Glückspilz im Unglück. Versuchskaninchen. Nach einem Jahr persönlichem Long-Covid-Lockdown ab 07/22 ging es wöchentlich besser.
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34 Followers 150 Following
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4K Followers 1K Following Co-founder/editor @thesicktimes Columnist @highcountrynews [email protected] #LongCovid 🇵🇸
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Amy Rochlin @amyrochlin
855 Followers 2K Following Executive Director, @MetrodoraFdtn - Proudly working to advance progress for patients living with chronic, multisystem disorders. Opinions are my own.
KT King @KTKINGbooks
2K Followers 3K Following Author of Little Eden novels📚💎awakener🗝 🌏inspirational 😇🤗enlightenment 🌈💎higherconsciousness👽😇compassion 🌈🦄ME/CFS/Fibro🙁🙏💖 RTs 👍 millionsmissing
Pinakoolada @pinakooklada
1K Followers 181 Following 20s | Long Covid since 01/2021 | #notrecovered | design student | hobbyartist ༺◦༻
Allium @snacklesbian
2K Followers 3K Following ally to and future member of the soil community. broken tensegrity sculpture. sicko. same name in the sky or on the elephant. backup: @snackbisexual
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286 Followers 279 Following Inspiritol is a patented and patent pending new drug designed to treat acute respiratory distress and post viral illnesses, including Long COVID & ME/CFS.
Justin_Struble @Justin_Struble
396 Followers 2K Following
Ethan @ethan_jansen5
291 Followers 154 Following Graduate student studying emerging viruses @VIDOInterVac @usask he/himWe must use every tool available to address the #LongCOVID crisis. Grateful for the work @The_BMC is doing with their Long COVID Clinic & honored to host Dir. Simon of @HHSGov's Office of Long COVID Research & Practice. We'll never stop fighting for our #LongHaulers.
Proud to host @RepPressley & Dr. Ian Simon, Dir. of the Office of Long COVID Research & Practice at @HHSGov, for a roundtable discussion to learn about BMC’s Long COVID clinic, treatment & research, as well as to hear directly from patients and caregivers. bit.ly/3UfO4va
Sue's sister Jane here. I'm heartbroken to have to tell you all that this amazing human being passed away on Sunday. Sue wanted to say goodbye in her own words.
I am actually starting to become terrified of going to sleep because I am in so much pain right after I wake up.
I thought I should tell you that I haven’t been active on here lately because I’ve just discovered I have breast cancer again and I got pneumonia pretty bad. All at the same time. The cancer is small and should end up fine but I’ll have to go through some kind of surgery TBD
“You and your so called illness” “Why don’t you stand up and fight for your life” “You need to get up and get better” “She is so embarrassing “ All of these things were said to me by people that I love.
Good Morning Everyone- I've been back and forth about posting anything here, but there's something therapeutic about screaming into the void. On Monday, my dear wife Karalee died unexpectedly. I've been a mess ever since. The girls came up, family poured into...
So I did it…Thinking of all you #pwME totally helped get me over the finish line. Thrilled to have more than doubled my fundraising target for @MEResearchUK and raised lots of awareness too. Thank you for all your support which has meant so much to me.
I have no goals and dreams for the future anymore. I don't know what I would like to do for a job, what would make me happy. All I want is to be healthy again. #longcovid
This could be an important study for #MECFS, too. Theoretically, the rehaler device can normalize cerebral blood flow by increasing pCO2. This in turn could alleviate symptoms. We should watch this avenue! yalemedicine.org/clinical-trial… The product: rehaler.io
i was feeling well enough to take a shower today!! if i recover im never taking it for granted again
What is the likelihood of me making it to a music festival again? Or getting on a plane to travel abroad? It’s up to science iguess…
I had a day last week where I felt 40% myself. I told myself that day “this is definitely reversible”. If we can have a decent day one day why can’t we have them everyday?
My first IVIG infusion is this Friday. Thank you to my wonderful PCP for going to bat for me, and getting the med approved. Please oh frigging please, give me at least some of my life back. #LongCovid
Ok y’all, showering has long been the hardest part of the week for me but after my Feb reinfection I kinda can’t manage it at all anymore. And then the payback 😩 My arms are still paralyzed 8 hours later & I’m fighting wicked insomnia from the PEM.
This lunatic put up $120 million dollars of his own money to make a movie that sounds totally insane and he might actually be pulling it off, we're reaching a never before seen level of we're so fucking back
FRANCIS FORD COPPOLA'S MEGALOPOLIS screened for 300 guests in L.A. The film received a standing ovation, with a visibly moved Coppola trying to hold back tears. A person in attendance tells me, "It’s startling, not like any movie that’s out there" tinyurl.com/ycy6kvya
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