shelley-lee waller @shellchat
Former journo/editor, advocate for health equity, mother of two teens (Korean adoptees), p/time worker in health - full time 🕵️♀️ sleuth of ME/POTS/MCAS/SjD Brisbane, Queensland Joined February 2011-
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Can MRI find spinal #CSFleaks that standard imaging misses? A new study used 2-step MRI to identify dural defects in suspected #SIH 🧠 ⬆️leak localization may⬆️targeted treatment 🔗…adachejournal.onlinelibrary.wiley.com/share/5GY7H2NC… @zack4186 @cyrusraji @SherwinAzad @DrJonOh @vellimana #Neurology #Headache
@MarekSJF Throw-away comment like a gut punch to pts & their families, who’ve spent a small fortune; tried every med; trialled every supp/device/test & lost jobs they loved; friends that moved on (+ family); dreams of a future. And spent 100s useless hrs seeking help from ppl like this!
@hannahspierMD This could have been a question, an attempt to understand the experience of pts facing the worst kind of stigma on top of debilitating sx. Instead, the intellectually lazy punch-down. Our son never devotes time to explaining his illness 2 anyone. And yet, 12yrs on, still disabled
@Ramyisback Was your positioning different for both tests? Or both laying down with legs elevated at same height? I have L4/5/S1 damage & had upright radiology saying severe while mri (flat) said moderate with no nerve impingement. I think my hypermobility is factor in diff findings?
The government's Senate inquiry into its planned decimation of the NDIS was open for only 2 weeks, but still received hundreds of submissions which are pretty much uniform in their opposition to the legislation. A typical but remarkable example is the report from the government's own NDIS Reform Advisory Committee, which speaks to the 'genuine shock and incomprehension' about the proposed changes within the disability community. It comes to the same conclusion that I came to about this bill.
1) In this interview with David Tuller, Prof. Chris Ponting gave more info about the SequenceME & Long Covid project that received £4.75 million from the UK government. It will measure the whole genome of ME/CFS patients in high resolution so that rare mutations can be found.
Pls share this. At GP last week, describing how doing too much, means next day “flare up of back pain”. Except, she anticipated me, inserting PEM. I just stared. “No, I don’t have ME/LC. I don’t get PEM.” I can’t believe it’s gone from not believed to ‘answer-to-everything’ !
Post exertional malaise (PEM) is the hallmark symptom of #MECFS It’s not fatigue following activity. It is a dramatic deterioration and worsening of symptoms. Short video explainer - triggers, symptoms, and management. Repost for the last day of #MEAwarenessMonth
@AndrewG76201347 @Yrrepmot Yes, same and same. Montelukast for son and me with inability to sleep without famotidine + ketotifen.
“Passive transfer of IgG from individuals with LC into mice induced fatigue-like behavior, loss of balance/coordination, thermal hyperalgesia, small fiber nerve damage, and increased pain-related neuronal activity, recapitulating patients’ symptoms.”
Open-access link of our study is found here 👇🏼medrxiv.org/content/10.110…
Die Studie enthält auch neue Daten zu GPCR Autoantikörpern. Es fanden sich LC-Untergruppen mit erhöhten Antikörpern gegen den Glutamatrezeptor NMDAR2C sowie gegen β1/β2-adrenerge, AT1- und ETA-Rezeptoren. Das passt zu Befunden bei ME/CFS und spricht auch für autoimmune Untergruppen bei LC.
Ich freue mich sehr über die Kooperation mit Prof Akiko Iwasaki @VirusesImmunity bei dieser wichtigen Studie. Sie ist ein Meilenstein für unser Verständnis der Rolle von Autoantikörpern bei Long COVID. Link zum Artikel und der Thread von Akiko Iwasaki. sciencedirect.com/science/articl…
@dysclinic @NeurologistMom Thank you for being that support for those poor families. Not only NOT getting the life-saving care they needed, but also actively being attacked for seeking appropriate care for a common, debilitating condition.
@useless_priest We surveyed our cohort of parents/carers of young ppl w ME/CFS abt 5years ago & most had, at some point, been suspected of/questioned about Munchausen by proxy - a vanishingly rare condition. Some members had court proceedings initiated (successfully defended). Neuromum spot on!
Now online in @TheAJNR : In patients with suspected #spinalCSFleak but negative myelography, higher spinal compliance was associated with clinical benefit after subsequent empiric blood patching. Not a decision rule, but an interesting physiologic signal in a tough subgroup. ajnr.org/content/early/…
The public thinks preparedness is waste, because success looks like inactivity. The fire truck polished in the station house is called civilization. The missile buried in a Midwestern silo is called deterrence. Yet a WHO lab sitting quiet, a CDC epidemiologist waiting for an outbreak, or stockpiled PPE, suddenly is “bureaucratic excess.” That is the idiocy of modern politics: we praise insurance in war, fire, and finance — but mock it in public health because the catastrophe did not happen this week. Pandemics are not prevented by improvisation. They are prevented by long stretches of expensive boredom interrupted by moments of terror. Cutting basic science and cutting preparedness means we will try to offload our problem on Kenya and volunteers at airports. That isn't a strategy, that is a bandaid for a gunshot wound
@NeleHelena @TraceyABurgess Yeah, seems to sprung from the idea that we don’t know how to ‘do pain properly’. I also often get Physios say, oh but if u keep moving, yr pain will subside. After lifetime of pain, I know what pain can be pushed through vs pain that stops me functioning for days afterwards!!
I’ve got a lot of respect for this puppa, saying I just ain’t going to play this stupid game!
This dog is like fuck you I wont play by your rules
@tessfalor This is so unusual. I used Garmin body battery for nearly 10yrs for POTS management. It only ever showed stress like this when something truly impactful was going on, eg. my first suspected CFS leak which floored me + sent HR through roof.
@sunsopeningband @minadjenkins Thanks Todd. We were v green when son did CPET. We didn’t even have name for what he was experiencing as PEM nor what triggered it. We believe his long recovery from CPET (6wks) was bc he had flu vax that week. Assume yr considering multiple hits or immune challenge in research?
Exactly. What. She. Said. Just had another round of dismissal bc “bloods were normal” while my AxialSpondyloarthritis wreaked havoc on vertebrae, SIJ + joints. They cldnt “see” the bone marrow oedema until after the irreversible damage. And that’s w a prior AxSpa diagnosis! 🤯
LongCovidPharmD @organichemusic
36K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS researcher & clean air advocate. Here to share & learn. Tweets not medical advice. https://t.co/lKQezPwtQs
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF | Stand with Minnesota
Naomi Harvey “PhD W... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Dr. Deepti Gurdasani @dgurdasani1
123K Followers 6K Following Clinical epidemiology, machine learning, NLP, global health. Intersectional feminist. she/her. Also on @[email protected] @dgurdasani1.bsky.social
Lizzy H @hopefullizzy
8K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Tracey Spicer AM GAIC... @TraceySpicer
54K Followers 2K Following Global keynote speaker on AI ethics. 2x Walkley Award winning journo and author. Long-time TV news anchor. Buy Man-Made here: https://t.co/CbAXnPUdt6
Eliza Charley | Actre... @ElizaCharley
6K Followers 2K Following 🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her
Winston Blick @winstoncb
3K Followers 804 Following
Sam Connor @criprights
19K Followers 5K Following human + disability rights activist | bolshy diva | trans rights = human rights | disability consultant | views are my own | sam-i-AM | antifa
Tess Falor, Ph.D. | R... @tessfalor
10K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Alan Baxter ♛ @AlanBixter
54K Followers 25K Following @[email protected] Immunologist. Tweets represent personal opinions. Suggestions do not constitute medical advice. I’m here live, and I’m not a cat.
Todd Davenport @sunsopeningband
13K Followers 4K Following Chief rapscallion & picaroon. Husband. Dad x3. Upstreamist. Pracademic. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. DPT PhD MPH.
Tracey Burgess @TraceyABurgess
4K Followers 4K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Dan Wyke 🦠➡️�... @Dan_Wyke
14K Followers 6K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Sabrina Poirier (On H... @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Sue J @SMpwrgr
6K Followers 3K Following Our challenge: accept reality, then never stop working to change it *more thoughts at https://t.co/fxKpIr6JnQ
Bea is Chronically Pe... @Be_Kinderr
10K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Paula Knight @Paula_JKnight
6K Followers 3K Following Author Illustrator Comics Creator THE FACTS OF LIFE (Myriad) Kidlit books x3 author. Disabled. Bedridden 8yr v severe M.E. IG: @paulajkstudio
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Julie Rehmeyer @julierehmeyer
8K Followers 1K Following Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. NYT; WashPost; Discover; Slate; Stat News… She/her.
Katie Cat @KatieCat1110246
14 Followers 472 Following
Swiftsandswallows @Swiftsswallows
1K Followers 2K Following @swiftsandswallows.bsky.social My daughter had Severe ME/POTS & MCAS and died in 2024 I am also a parent and carer of a younger daughter with ME & POTS
Margita Kleye @margita_kleye
27 Followers 328 Following
Paul Ruijgrok @PaulRuijgrokLC
108 Followers 278 Following Long hauler since Nov 2023. Writing a book on Fasting for Long Covid & Long Vax. Background in CS & Corp Finance. Looking for beta readers (please DM)
Liam's LC/ME Journey @liamsLCjourney
2K Followers 234 Following Open sourcing my Long COVID/ME recovery journey: lab results, doctor's visit summaries, tricks I've found for getting treatments, etc.
Atanas G. Atanasov @_atanas_
127K Followers 108K Following Lead Editor: #CRBIOTECH & #ExplorDHT | Chair of Pharmacology at DPU | Prof of IGAB-PAS | Leader: #DHPSP & #INPST | Author of #HealthHacksThatWork
🍉🍋 😷🩼🇱... @MsJacksonNM
543 Followers 2K Following COVID realist 😷💜 Accomplice 🏳️⚧️🏳️🌈 who loves to retweet #WearAMask #CovidIsAirborne (she/they) abolitionist … header by @CourtneyAhnDesign on IG!
jelloNcarrotsINcognit... @wellsjdan
2K Followers 4K Following Follower of Jesus Christ. Member of the Church of Jesus Christ of Latter-day Saints. @LDS. Mormon. Wife and Mother. Love dogs.
Natalie @nataliezzz3
283 Followers 685 Following Sharing info on the connection between sleep-disordered breathing/upper airway resistance syndrome (UARS) and ME/CFS (& related disorders)
Jan @Jan995783030021
33 Followers 2K Following
Alice Burchfield @ABirch111
38 Followers 561 Following
Lina Stargirl @Onsilinaaa
187 Followers 2K Following Hello, I`m a thief, and I`m here to steal your heart.
Peter Frederick 🐸�... @pjfred60
920 Followers 1K Following Mastodon @[email protected] & Bluesky @pfred60 Get vaccinated, wear a N95 mask 😷. IT Professional. Possums. Tweets are all mine & reflect my views.
Seth MacFarlane @SethMacFar99256
10 Followers 3K Following Go check out my new album "Lush Life: The Lost Sinatra Arrangements" out now!
Wunderlust @Wunderlust_100
365 Followers 2K Following Lately, I ask myself. Where have all our white knights gone? Where are all the heroes? Maybe, I'm just searching for an answer for the world's pains.
Amy Breau @MonAcadie
77 Followers 1K Following
Evelyn @Evelyn459350439
8 Followers 207 Following
Carrie My Several Wor... @globetrotteri
6K Followers 1K Following 9 biologics later 🎨 Author & Artist MySeveralWorlds I write about #Disability #Arthritis #axSpA #Fibromyalgia #MECFS #ChronicPain 🤝 @spondylitis @teamfibro
Elon Musk private cha... @Elonmusk938363
156 Followers 3K Following Elon Musk. Founder CEO and chief engineer of architect and spaceX 🚀🚀
Julian Lennon @Julianlennon625
48 Followers 906 Following
Kevin conster @KevinConst98370
142 Followers 2K Following
OhTWIST.bsky.social n... @H2OhTwist
8K Followers 4K Following Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely diagnosed.
PEM15 @RattusFlattus
1K Followers 4K Following PhD not md. Disabled academic, animal enthusiast #pwme , vax injured and fuck you no I’m not an “anti vaxxer”. fuck the cdc covid isn’t over
SZ @zpisces2
1K Followers 7K Following ✨Stuck in a void temporarily🦋Gardener🌱IG:@botanical_panacea🌈One time interviewer🎤Former Dem 🌿Mom/Wife/Jew ✡️🇮🇱🇺🇦🦀🦅#GoBirds #LongCovid #Zionist🟦
☮️Kinderrechte �... @_Kinderrechte_
19K Followers 20K Following AfD-Verbot jetzt! Kinderrechte. Kinderschutz. Demokratie. Antifaschismus. #NoAfD Meinungen Anderer sind nicht meine. @AVachssZitateDt @ThomasKnorra
Tamara C @tamararivc
863 Followers 242 Following Published a Long Covid/ME/CFS hypothesis about Phosphatidylcholine, Insulin Signaling and Noradrenergic Dysfunction
Sharon Cohen @SharonC97936831
2K Followers 8K Following UW-Madison; Tulane; LSE. ME/CFS (neuroimmune). NIH studies to date - Weill Cornell; Cornell; and 3 Stonybrook. Great niece - Sgt Cohen togetherwefight
Carrie Anna McGinn @Carrie_McGinn
1K Followers 2K Following Infection-associated chronic illness advocate | MSc | #PatientPartner | She/Her | #MECFS #pwME #POTS #LongCovid #CovidLongue #CovidLong #IACI #MaskUp #CleanAir
a tired human @saffronandsky
3K Followers 2K Following disability justice💜. Mod chronic illness for decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️🌈☸️
Jones Morrison @jonesmorrison78
62 Followers 6K Following A man with a heart of gold and a God-fearing individual who works hard for his boys and loves what he does for a living
Dr 'Variant of Concer... @drstip
3K Followers 5K Following Trust me, I'm a doctor. But not THAT type of doctor. I am licensed to zap people legally, huzzah! living on Whadjuk land. She/Her ☢️☠️🧶
Alex @alexandrer81988
999 Followers 2K Following
Prof Tosin @Proftosin9909
9 Followers 248 Following I’m a man of value,integrity and I get paid for being me🔥
KTSJ @KTSJ291498
298 Followers 5K Following ? everything. no filters. vet. not. a fan of. trump. DOS. USPS. college grad. retired. fucc. GOP. and. MAGA.
Bryan Blessey @BryanBlessey
5K Followers 5K Following Aspiring screenwriter/actor, including VoiceOver. Just a guy doing his best to do ( and be) better today than yesterday. #TeamPete
Danny Chad @DannyChad81870
292 Followers 6K Following Believe in yourself Love great photographs and arts
DarlingGirl @kbXf4CwmfCb2D0
9 Followers 1K Following Melb honey sticky lick my bits with your desire
琴音 (ことね) @l80ZrV45253xY0
9 Followers 2K Following 東京のセクシー日本人女性、魅力的でデート一触即発。バー出会い、セクシーダンス、デートプライベート空間へアップグレード。LINE連絡、デート詳細プライベートで。
Amanda Crist @ZebraLoveCo
898 Followers 1K Following Writing about #hEDS 🦓, #muscle, health☕️, genetics, and how I’m trying to walk again🌱 #bedbound #homebound #calfproblems #zoology
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Prof. Akiko Iwasaki @VirusesImmunity
212K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII
Eric Topol @EricTopol
761K Followers 665 Following physician-scientist, author of SUPER AGERS https://t.co/ZEdooyyJpP and Ground Truths: https://t.co/YhatcBT0hA
LongCovidPharmD @organichemusic
36K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS researcher & clean air advocate. Here to share & learn. Tweets not medical advice. https://t.co/lKQezPwtQs
S Blitshteyn MD, FAAN... @dysclinic
23K Followers 2K Following Neurologist/Researcher, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic. Tweets🚫med advice. Opinions my own.
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF | Stand with Minnesota
Naomi Harvey “PhD W... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Putrino Lab @PutrinoLab
36K Followers 406 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Christoph Ströck @cstroeckw
9K Followers 760 Following Soon, people will look back in disbelief at what happened to patients with ME/CFS | Co-founder @weandmecfs | Godspeed 🙇🏼
Bhupesh K Prusty @BhupeshPrusty
16K Followers 65 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Dr. Deepti Gurdasani @dgurdasani1
123K Followers 6K Following Clinical epidemiology, machine learning, NLP, global health. Intersectional feminist. she/her. Also on @[email protected] @dgurdasani1.bsky.social
ME/CFS News @MECFSNews
14K Followers 675 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.
Dr Kerryn Phelps AM @drkerrynphelps
68K Followers 2K Following GP, Adj Professor NICM, author, fmr MP for Wentworth, fmr Sydney Deputy Lord Mayor, health & civil rights advocate,Past President AMA,past pres @AIMA_Au
Janet Dafoe @JanetDafoe
17K Followers 223 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Dr. Alice 💕 @calirunnerdoc
27K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs 4 MED ADVICE! SARS-CoV-2=persistent vascular virus.Views expressed are my own,not my employers.
Raina MacIntyre @Globalbiosec
37K Followers 548 Following Physician. Field Epidemiologist🔎 Expert in prevention, detection and response 2 epidemics and pandemics. Founder of @Epiwatch_BSP 🇦🇺
Prof Brendan Crabb @CrabbBrendan
30K Followers 1K Following Medical researcher & Director & CEO @BurnetInstitute & Chair @ausglobalhealth & @PacificFriends | also @BrendanCrabbAC & https://t.co/5BaDvLZ2Tw
David Joffe MB BS (Ho... @DavidJoffe64
18K Followers 2K Following Respiratory Physician with expertise in NIV Sleep and Respiratory Failure. Visiting Medical Officer. Intelligence Group Respiratory ACI. Advisor to WHN for LC
Dr Elisa Perego @elisaperego78
36K Followers 1K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
Bendy by Birthright @gymrat_bookworm
1K Followers 1K Following A healthcare administrator--but a cool one. Bendy by birthright (hEDS), allergic to bullshit (MCAS), and stunting with a stent (May-Thurner).
William Aird @WilliamAird4
31K Followers 323 Following Professor of Medicine at Harvard Medical School #Hematology #MedEd Founder of @TheBloodProjec1
Alberto Giraldo @alb_giraldo
6K Followers 510 Following MD, Rheumatologist. Sacred art fan, tireless traveler and proudly Peruvian 🇵🇪
Natalie @nataliezzz3
283 Followers 685 Following Sharing info on the connection between sleep-disordered breathing/upper airway resistance syndrome (UARS) and ME/CFS (& related disorders)
NCNED @NCNEDResearch
182 Followers 39 Following Australia’s peak Research Centre for ME/CFS, long COVID, and Gulf War Illness based at Griffith University on the Gold Coast, Queensland.
Dr Nathan Keiser @DocKeiser
2K Followers 164 Following Founder of The Keiser Clinic | Chiropractic Neurologists Specializing In #POTS, #Dysautonomia, #Concussion & Neurological Disorders Get your free POTS Roadmap👇
Jason S Knight @jasonsknight
5K Followers 2K Following rheumatologist 🧩🔍 | researcher of #antiphospholipid syndrome, lupus, COVID-19, diabetes, neutrophils, NETs 🕸️👀 | shoutout to Sparky the beagle 🗣️🐶
Ankylosing Spondyliti... @ASInfoShare
203 Followers 6 Following Information about Ankylosing Spondylitis
Spondylitis.org @spondylitis
8K Followers 1K Following A Nonprofit Organization dedicated to the quest to cure ankylosing spondylitis & related diseases, and empowering all affected to live life to the fullest.
Brad Cohn @BradCohn
15K Followers 1K Following Realizing magnificent visions with unbounded energy. Having fun @trybloo
Kelly Boesch🏳️�... @kellyeld
18K Followers 2K Following Digital and ai artist, enthusiast, creator, designer, music lover and animal lover.
Tamara C @tamararivc
863 Followers 242 Following Published a Long Covid/ME/CFS hypothesis about Phosphatidylcholine, Insulin Signaling and Noradrenergic Dysfunction
Carrie Anna McGinn @Carrie_McGinn
1K Followers 2K Following Infection-associated chronic illness advocate | MSc | #PatientPartner | She/Her | #MECFS #pwME #POTS #LongCovid #CovidLongue #CovidLong #IACI #MaskUp #CleanAir
Jon Douglas @atranscendedman
8K Followers 906 Following Transparent to the transcendent. https://t.co/CWYWYqGwm3
Lalani Carlton Jones @NeuroradLal
2K Followers 1K Following Neuroradiologist | Educationalist | Kings College, Guys & St Thomas’s Hospitals | Love the brain/spine/nerves/CSF(+leaks). Show up. Be of value. Make an impact.
ICanCME Research Netw... @ICanCMEResearch
716 Followers 378 Following The primary resource to initiate, support and sustain innovative and collaborative #MyalgicEncephalomyelitis (ME) research in Canada. #ICanCME #PwME
Mark Mamlouk @MarkMamloukMD
3K Followers 300 Following Neuroradiologist @KPSantaClara | Volunteer faculty @UCSF | Interests: #CSFleak #vascularanomalies #pedsneuro #HNrad
Andrew L Callen MD @AndrewCallenMD
2K Followers 410 Following Associate Professor, Neuroradiology and Neurology - Director, CU CSF Leak Program - University of Colorado Anschutz Medical Campus - Alumni: UCSF - #CSFLeak
CSFLeakMatters @CSFLeakMatters
517 Followers 954 Following There is dignity in a diagnosis. Once a research & clinical OD and nationwide speaker, now a decade completely flattened by spontaneous Spinal Fluid Leaks.
Dan Scoffings @brainscandan
908 Followers 423 Following Consultant neuroradiologist & Clinical lead for neuroradiology @CUH_NHS | Special interest in #SIH and #spinalCSFleak
WouterSchievink @WouterSchievink
2K Followers 92 Following #CSFleak expert #neurosurgeon #spinalCSFleak @CedarsSinai Los Angeles #SIH [email protected]
Tomas Dobrocky @TDobrocky
555 Followers 197 Following Neurointerventional Radiologist. University Hospital Bern, Switzerland @StrokeBern
Spinal CSF Leak Found... @spinalCSFleak
3K Followers 525 Following A US 501(c)3 nonprofit org that helps raise awareness, educate, & support research on intracranial hypotension & spinal cerebrospinal fluid (CSF) leaks.
Monica Verduzco-Gutie... @MVGutierrezMD
26K Followers 7K Following Professor & Chair of Rehabilitation Medicine in SATX | #Physiatry #LongCOVID | mom, runner | my ideas
Long COVID Physio @LC_Physio
2K Followers 385 Following Long COVID Physio is an international peer support, education and advocacy, patient-led association of physiotherapists living with Long Covid.
ME/CFS Science @mecfsskeptic
6K Followers 485 Following In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
Derya Unutmaz, MD @DeryaTR_
338K Followers 8K Following Professor scientist, immunologist, biomedical engineer & Biohacker. ALL IN ON AI ! #Longevity #BioAI #Codex #Robotics #Space #Scifi #Singularity #trekkie 🖖
Dana Herbert @danaherbert
4K Followers 4K Following Dx: #MECFS #Narcolepsy #hEDS #cPTSD #ANA+ #AorticAneurysm #PinealCyst #Dysautonomia #Granulomas How I survived a tough CT dentist. Receipts + full timeline 👇
Tina Katsaros @tinakatsaros
1K Followers 247 Following PhD candidate researching ME/CFS at La Trobe University
Simon Maechling @simonmaechling
65K Followers 4K Following PhD Chemist | Innovation | Science | Explaining complex science without the nonsense. Conversations that inform.
sikandar adwani @SikandarAdwani
6K Followers 478 Following 🧠 Neurologist ( Gold Medalist) | 📺 Host of "Grey Matters" on you tube | Advocate for Brain Health and Awareness 🌟 Inspiring Minds, Empowering Communities
Tobias Hadlich @TobiasHadlich
191 Followers 52 Following General practitioner. Theories didn’t make sense. So I built one—with AI, neurodivergence, and resonance. #HFRT #Mind #Neurodiversity #AI
Complex Disorders All... @CODA_research
715 Followers 194 Following The Complex Disorders Alliance is an innovative, patient-founded, patient-focused, nonprofit dedicated to accelerating research for complex conditions.
Spinal CSF Leak Canad... @SpinalCSFCanada
976 Followers 381 Following 🇨🇦 National health charity with a vision to improve the health and lives of those suffering from Intracranial Hypotension caused by Spinal CSF Leaks.
CSF Leak Association @csfleakuk
1K Followers 936 Following The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks.
Aravind Palraj @Rheumat_Aravind
15K Followers 2K Following SR in Rheumatology | MMC, Chennai | 🛑 Tweets ≠ Medical Advice | https://t.co/GIsNalCL0w
ME/CFS San Diego @MECFSSD
331 Followers 103 Following ME/CFS San Diego are patients and/or caregivers sharing information, support for each other, and education about Myalgic Encephalitis/ Chronic Fatigue Syndrome
Tweets @ChronicMyalgicE
1K Followers 791 Following Dutch | life derailed due to #IBD & #MECFS | sofa bound | on Twitter to raise awareness for post infectious diseases | one of the #MillionsMissing
Jack | amatica health @JackHadfield14
7K Followers 1K Following Aerospace engineer by training, ME/CFS & Long COVID patient researcher, cofounder @amaticahealth. DMs open, rarely check follows - https://t.co/BvmsOvch0p
T @Yrrepmot
1K Followers 3K Following
Dianna Cowern @thephysicsgirl
208K Followers 2K Following Science Video Creator, Tweeting about #LongCOVID as @diannahaze, MIT Physics, Forbes 30u30 https://t.co/BT5fDLf0LO
Autoimmune List @AutoimmuneList
10K Followers 4K Following Information & worldwide medical news updates about #Autoimmune diseases. #AutoimmuneAwareness #ChildhoodAutoimmune #Research https://t.co/P99YxE7PFE
Meiners PT, PhD @KellyMMeiners
2K Followers 890 Following *Physical Therapist, Athletic Trainer, CSCS, dedicated runner and mom. *disabled since 10/2021. Advocate for #LongCOVID, #POTS, #MECFS as able.
Vlad Vexler @VladVexler
23K Followers 1K Following Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Grew up in USSR, Isr, UK. Home is London | Living with ME since 2003. | 🔗 🎥
David Puder M.D. @DavidPuder
18K Followers 389 Following Full time therapist and psychiatrist. Host of Psychiatry & Psychotherapy podcast/youtube.Trends for United States
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