Todd Davenport @sunsopeningband
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Storyteller involving data. “That brand of person.” Full prof. DPT PhD MPH OCS. goo.gl/Z9Ftmc Occupied Plains Mi-Wuk lands Joined August 2014-
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Berkeley's May crowdfunding for Trial By Error has begun...virology.ws/2024/05/01/tri…
I don’t know what a Huberman is but he’s apparently caused a disturbance in the PT Twitter force today, so… 🤷🏻♂️ Everyone went on as usual with their days and we’re going to forget about whatever happened in a couple of weeks or so when we realize that life kept moving forward.
We are excited about this upcoming #TeachMETreatME event! Thanks so much to @remissionbiome! Clinicians can earn 1 CME credit & you will not want to miss the roundtable with Dr. Todd Davenport @sunsopeningband. us06web.zoom.us/webinar/regist… #MedEd #MedTwitter #MillionsMissing
We are excited about this upcoming #TeachMETreatME event! Thanks so much to @remissionbiome! Clinicians can earn 1 CME credit & you will not want to miss the roundtable with Dr. Todd Davenport @sunsopeningband. us06web.zoom.us/webinar/regist… #MedEd #MedTwitter #MillionsMissing
@IsabelRamirezRD @IsabelRamirezRD @sunsopeningband This topic really hits home with me after what I experienced at our Long Covid Clinic. It's insane how medical professionals and institutions expect those of us with #longCOVID #ME #POTS #Dysautonomia and other #chronicillnesses (which…
PACING WITH A HEART RATE MONITOR TO MINIMIZE POST-EXERTIONAL MALAISE. Learn how to use resting heart to lessen symptoms of #PEM in #MECFS and #LongCOVID. workwellfoundation.org/pacing-with-a-… #HRM #MillionsMissing #StopRestPace #StopGET @cazzachr @sunsopeningband @4WorkwellHealth @4Workwell
✨️ Friday May-3-2024 at 1:00pm ET - @RenegadeRes and @MEActNet are partnering to bring you this Clinican's roundtable with Dr. Todd Davenport @sunsopeningband Dr. Todd Davenport: Eating the Elephant One Bite at a Time: Post-Exertional Neuroimmune Exhaustion as a Bionergetic…
I don’t know how you shoot that as balanced as he looked off the wrong foot fading to your weak side. Gonna need to see if I can pull that one off in the driveway.
Oof. You can’t let Murray have another chance at that.
The NBA has lost the thread on how they define a foul.
Reminder: This Friday, 5/3 at 1:00pm ET - @RenegadeRes & @MEActNet bring you this Clinican's roundtable with @sunsopeningband - Clinican's can earn 1 CME credit. Register at: us06web.zoom.us/webinar/regist… #MedTwitter #MECFS #longcovid #IACI
this . . . song is dedicated to @PutrinoLab & @sunsopeningband
this . . . song is dedicated to @PutrinoLab & @sunsopeningband
@MelJStride & #DWP need look at studies like this when threatening #DisabledPeople and those of us with health conditions with deeper financial stress on #PIP Financial stress linked to worse biological health | UCL News - UCL – University College London ucl.ac.uk/news/2024/jan/…
"If people with PEM could just exercise a little more..." Sure. *If* they *could.* 🧐
⭐️#EditorsChoice A herculean effort to conduct a systematic review and meta-analysis of 1⃣0⃣6⃣ articles found that the majority of patients with #COVID19 have reduced physical function over 3 months after infection. academic.oup.com/ptj/advance-ar…
This is what I mean by research dogma. They are convinced by the impossibility of exercise being harmful for patients with PEM and will waste research funds, instead of using it to understand why.
This is what I mean by research dogma. They are convinced by the impossibility of exercise being harmful for patients with PEM and will waste research funds, instead of using it to understand why.
Because of your generosity we’ve completed 85% of the total number of sales from 2023 of Cruz’s Cars in 2 weeks.. Very grateful for all that have shared and purchased. Means a lot. Feel free to purchase, rate, and review. There’s more good news otw 🥳 | barnesandnoble.com/w/cruzs-cars-m…
Nick Hoopes @NickHoopes_
6K Followers 2K Following Product of a small town. Doctor of Physical Therapy & former Athletic Training Extraordinaire. Warrior, Polar Bear, Penguin. *My opinions are my own*
ɹǝʇlnoԀ pıʌɐ�.. @Retlouping
24K Followers 965 Following All my opinions are my own. Dislikes evidence based ostriches ( An evidence based ostrich ignores evidence against, whilst waiting for evidence to support)
Jerry Durham @Jerry_DurhamPT
16K Followers 11K Following Physio... Beastie Boys, Biz, Baseball, Books, Bourbon .... #bizPT #ptexp #CLexCo #PatientSuccess #FrontDeskSuccess #BusinessSuccess #SFGiants #FTTB #Warriors
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Seth Peterson @DrSethPT
5K Followers 1K Following #Physicaltherapist on a journey to think clearer, care more, and stay curious | private practice owner | writer
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
ME/CFS News @MECFSNews
15K Followers 713 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Anil van der Zee © @AnilvanderZee
9K Followers 825 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
🟡 PT Pintcast™ @PTPintcast
11K Followers 4K Following The radio show for the physical therapy profession. Hosted by former rock radio DJ turned Doctor of Physical Therapy - Jimmy McKay, PT, DPT
Ryan Shelton, PT, DPT @ryansheltonPT
3K Followers 1K Following Small Business Owner. Physical therapist. Passionate about improving healthcare accessibility, music, and philanthropy. #PhilanthroPT He/Him
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
GeoCK @GeoEduOne
6K Followers 954 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Rich Severin PT, DPT,.. @ptreviewer
6K Followers 3K Following Physiotherapist, Physiologist @UICAHS @EXERTLab| Thoughts & tweets are my own| I study and teach Breathing, Obesity, and Sleep #Physiology| #VitalsAreVITAL
PauliTh @Pauls_Tho
33 Followers 364 Following
Schabra Ckentapir @schabrackentpr
14 Followers 362 Following
Kelly Carden @KellyCarden14
1K Followers 2K Following libertarian, dad, restaurant professional. Showing the world that elected Libertarians are a real thing. If you like what you see repost!
Margit Maurer @MargitMaurer
14 Followers 289 Following
Bryan @Bryan0212073086
35 Followers 329 Following
Sarah Wilkinson @sarahwilko372
12 Followers 164 Following Honors student Psychological Science@SCU on the Gold Coast
AJMC @AJMC_Journal
7K Followers 864 Following The American Journal of #ManagedCare is a peer-reviewed, indexed publication. https://t.co/I2WRhmhOVC offers news in health policy, disease states, and managed care.
Schwester @Schwest41127386
3 Followers 47 Following
Yulia @Yulia7557
2 Followers 146 Following
Violetta D.🧋 @vecanqa
1K Followers 5K Following Communication and Media scientist. | GER & ENG | 'All my opinions are yours.' | Like, RT ≠ Zustimmung | Here for that #ZeroCovid lifestyle. #NoAFD 🇮🇱
Mirabilis @Mirabilis_n_Co
37 Followers 182 Following Covid-19 in 11/21 führte zu Long Covid,ME/CFS,POTS und damit zu 1 of the #millionsmissing.22-23h/Tag ans Bett gebunden.Therapien: 0.Anerkennung bei IV:0. 38J./w
Hausprojekt Living fo.. @Baugruppe_LFF
160 Followers 848 Following Das selbstverwaltete Hausprojekt Living for Future baut als Teil des @dashabitat klimagerechten leistbaren Wohnraum in Wien Baumgarten (14. Bezirk)
Ralf Wittenbrink @RWittenbrink
21K Followers 1K Following Es gibt immer noch eine große Lücke zwischen dem, was die Öffentlichkeit über COVID-19 weiß, und dem, was sie wissen sollte. Deshalb hier Infos über COVID-19.
Alina @PfeifferAlina
20 Followers 101 Following (she/her) https://t.co/4OeD2Tg6c8. Global Studies - Social Worker - Dancer
Bastian @Lammhueter
41 Followers 353 Following
Fipps @TitanFipps
2 Followers 786 Following
Gillian Ouellette @onyxsapphire17
5 Followers 90 Following
BalancedPT @PtBalanced7748
6 Followers 33 Following Physical Therapist in private practice. CF-L1, CF-L2, RSB Coach, BB BJJ, BB TKD, collegiate and current rower.
David Boyd @DoctorDav0
7 Followers 144 Following Head Athletic Trainer, @JCCAthletics | @NATA_ICSM 2024 Junior College Head Athletic Trainer of the Year | #ProtectTheNest
Trolly McTroll Pants @trollietrolly
141 Followers 386 Following I trust you all are adults and can ferret out real posts from sarcasm. If I post a link I have evidence otherwise it’s my opinion.
Kate Kontou @SK_Physio
795 Followers 2K Following Physio - Passionate about tackling health inequalities. Current LHIIP PhD Fellow. Alumni Population Health & Future Leaders Fellow. Views my own.
Annette @AnnetteKatrin
61 Followers 1K Following #Hamburg #Buch+#Movie Fan #Fotos #Zitate #postcrossing #Blogger #Rheinländerin #BulletJournal #Plüschiefan #stationeryaddicted
Sonja Hartl @SonjaHartl7
376 Followers 996 Following Through the world with open eyes! Outdoor. Travel. AlpenAdria. Amateur Chef de vegetarian & vegan cuisine. Cleanair. CustomerCentricity. Leadership.
Frau_Zebra @frau_zebra
418 Followers 739 Following Lehrer - der beste Job der Welt 😍 #LongCovid #MECFS @[email protected] Mein Platz im Lehrerzimmer ist seit Januar 2022 leer😢 #wirsindmehr
weedcat @weedcat4206969
22 Followers 81 Following
Andy Seaton @ASeatonSpatial
766 Followers 536 Following Spatio-temporal stats applied to ecology 🐾 Postdoc at University of Glasgow 🧐
roundballnz @Roundballnz
495 Followers 1K Following Just out there trying live in this consumerist & materialist world: books simplicity, banter, walking, urban living @Roundballnz.bsky.social
Gianna ˈdʒanna Brac.. @tentaclequing
2K Followers 2K Following SEO @ DeepL by day ★ 🐙Quing by night ★ THE BUG MAGNET OF DEATH™️ #techseo #qa #language #enby #taijijian #neurospicy ★ pronouns: they/kaos ★ ʎ|y ★ formal: Xire
Deborah Daines @BoogieG1rl
433 Followers 384 Following 🚂Wannabe artist / photographer / poet / pwME💨
Dr. Robert @Robert83563198
11K Followers 304 Following Ärztliche Kunst beginnt dort, wo evidenzbasierte Medizin endet.
Ibn Solo @ibnsolo
28 Followers 260 Following
Sarah Margerison @smarge_pt
80 Followers 170 Following Physical therapist | neuroimaging of pain | Seminowicz/Da Silva lab
Murderbots Apprentice.. @71Voyager
216 Followers 2K Following Ex cameraman/filmmaker/counsellor. Unrestricted capitalism gives unfair advantage to sociopaths, corrupting economic and political institutions and society.
steve.dipaola @SteveDiPaolaPT
57 Followers 123 Following Husband & Father first /Physical Therapist/CEO Empower PT, / Always a student.
apr @pearlthemonster
0 Followers 2 Following
3byte @treybyte
3 Followers 66 Following physicist turned software engineer. welp, i guess i'm here for the long haul. #longcovid since Dec. 2021
Papillyon @papillyon
237 Followers 563 Following Moderate #MECFS. One of the #MillionsMissing since 2018.
La Macharenga @macharenga
138 Followers 723 Following 7 años para un diagnóstico? 10 años para el #ReconocimientoJudicialmete de la IPA #ME #EM G-93.3
Xondaria @Xondariambya
444 Followers 82 Following Ich war einmal Bäuerin #Klimagerechtigkeit #Ernährungssouveränität #GutesLebenfürAlle #DemarcaçãoJá Jetzt habe ich #severeME und kämpfe für #PwME #MECFS
Wallythewatch @GustavsenWalter
47 Followers 132 Following
Sarahwp 💙🏳️�.. @Sarahwp101
2K Followers 925 Following socialist, psychologist, Trekkie,#fibromyalgia #chronicpain #GTTO #savetheNHS All opinions my own No DMs please.
Long COVID is a mass .. @lhaztknup
5K Followers 7K Following One of Millions Missing, had severe LC. Now its getting better. I want to help reaching attention f this TERRIBLE illness. No medical advice.
Nick Hoopes @NickHoopes_
6K Followers 2K Following Product of a small town. Doctor of Physical Therapy & former Athletic Training Extraordinaire. Warrior, Polar Bear, Penguin. *My opinions are my own*
ɹǝʇlnoԀ pıʌɐ�.. @Retlouping
24K Followers 965 Following All my opinions are my own. Dislikes evidence based ostriches ( An evidence based ostrich ignores evidence against, whilst waiting for evidence to support)
Jerry Durham @Jerry_DurhamPT
16K Followers 11K Following Physio... Beastie Boys, Biz, Baseball, Books, Bourbon .... #bizPT #ptexp #CLexCo #PatientSuccess #FrontDeskSuccess #BusinessSuccess #SFGiants #FTTB #Warriors
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Seth Peterson @DrSethPT
5K Followers 1K Following #Physicaltherapist on a journey to think clearer, care more, and stay curious | private practice owner | writer
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
ME/CFS News @MECFSNews
15K Followers 713 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Anil van der Zee © @AnilvanderZee
9K Followers 825 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
🟡 PT Pintcast™ @PTPintcast
11K Followers 4K Following The radio show for the physical therapy profession. Hosted by former rock radio DJ turned Doctor of Physical Therapy - Jimmy McKay, PT, DPT
Ryan Shelton, PT, DPT @ryansheltonPT
3K Followers 1K Following Small Business Owner. Physical therapist. Passionate about improving healthcare accessibility, music, and philanthropy. #PhilanthroPT He/Him
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
GeoCK @GeoEduOne
6K Followers 954 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Gez Medinger @gezmedinger
20K Followers 719 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
TopazStudios.com @TopazStudiosCOM
2K Followers 5K Following ONE chronic #illness to #disabled—follow @RenegadeRes—#longcovid #ckd #IgG #kidney #mecfs #pots #mcas #dysautonomia #pem #mitochondria $ltnc #lockdin #health
H2oBio @_h2oBio
210 Followers 246 Following Passionate swimmer housebound due to #LongCovid Interested in biology, biochemistry, exercise science, #MECFS remission reports. current focus is taurine
Elizabeth Weaver II �.. @NeuroWeaverATL
2K Followers 647 Following B L U E S K Y same handle as above / GSU Brains & Behavior AD / NeuWriteATL / Disability Advocate /•MECFS•/40👇40/ Researcher:“The Long Haul” / *my views*🏳️🌈
Sarah Rebecca Kessler @moveablejaw
4K Followers 680 Following Leo sun, Aquarius rising, Taurus moon, personal account #FreePalestine
Madeleine ThriftVIP® @ThriftVIP
531 Followers 1K Following Evolving ThriftVIP #Dissabled #MEFibro ☆Unique.Eclectic.☆ #Unique style online 🌎&👩🏽🦽👩🏾🦯👬🧍🏿#MyalgicE BEFORE PROFIT opinions my own #TryingToThrive
Doc Arbor, PsyD - @Dr.. @BlueGhost163
552 Followers 3K Following Retired Clinical Health Psychologist, Disabled #PwME Myalgic Encephalomyelitis for 30+ years & Syringomyelia. @DrArbor.bsky.social
Tim Bierman @10CTim
6K Followers 547 Following GM Pearl Jam Ten Club. Look young for my age. Dad/Husband. Liverpool Football Club forever! Cards, Mariners, Seahawks, Kraken.
Sonja Kohl @eskabadu
2K Followers 1K Following 🇩🇪 One of #millionsmissing | Team #GOfundMECFS & #SIGNforMECFS | Suffering from #MECFS after a viral infection in 2012 | https://t.co/FSdIVPb7iI
Susan Fairlie Hall @FairlieHall
1K Followers 2K Following Wanting there to be more recognition for the impact ME/CFS has on peoples lives, hoping that better support will be provided.
Chef Reactions @ChefReactions
329K Followers 583 Following Extra Salty | Side of Sarcasm *BS allergy* that annoying, monotone chef from TikTok
Julia Scheve @julestraining
82 Followers 31 Following Personal Trainer.Les Mills National https://t.co/AJB2ah6OEu https://t.co/mx3JqX7pLd Consultant.Happy Spirit.Happy Wife. Adidas sponsored Athlete
JE Barnard @J_E_Barnard
3K Followers 3K Following Incisive Editing Services #GoodTwitter MECFS amateur sleuth in The Falls Mysteries Seeking Steampunk? @JayneBarnard1 Linktree https://t.co/gayCHoxLmF
Dani Faucher RMT @DaniRmt
177 Followers 1K Following https://t.co/VNvAvyuFfW Registered Massage Therapist (she/her). Foodie, veggie grower. Learning #LongCovid #MECFS .
Population and Public.. @uscpphs
2K Followers 724 Following Through discovery, training and action, we are solving public health and health equity challenges, from local to global, for today and tomorrow.
Nick Melia @arta_semita
1K Followers 1K Following Systems biochemist, researcher @RenegadeRes Studying the etiology and pathogenesis of Long COVID and Myalgic Encephalomyelitis (ME)
Dr. Jill Cameron (she.. @Caregiving_UofT
872 Followers 496 Following Professor Occupational Science and Occupational Therapy, RSI, U of Toronto; Undertakes research to optimize the family caregiving experience.
Dr Ian Cookson @IanCookson72
939 Followers 2K Following Sport and exercise psychologist in training. Doctorate in social psychology. Opinions my own. He/Him
Nisa Malli @nisamalli
3K Followers 5K Following Delivery Policy Lead @CDS_GC | Research @patientled | She/her 🌈 | header by @irpp
HopeStarMasacre @MscreStarHope
2K Followers 3K Following its alright… im just dying is all…// writer and performer of the theatric kind // disabled as fuck with #LC #ME #POTS #MCAS & more // antizionist ✡️ 🇲🇽🏳️⚧️
Katrin Boniface @KatBoniface
2K Followers 3K Following Historian. Equestrian. Cheese-lover. PhD Student, UC Riverside. Also sometimes at: @Equine_History @SHOT_ECIG @HNet_Sport @Wheats2018 @RsideLatinoPH
Claus Ernst 🌻→ @.. @ClausErnst
2K Followers 1K Following Animated explainer videos, Moderate ME from initial 'mild' SARS-CoV-2 infection 2021. 39 months + counting. Mastodon → https://t.co/aA7or0WZ8r
Joan Crawford @joan_crawford1
283 Followers 1K Following
Ciaran Farrell @CiaranJ_Farrell
188 Followers 71 Following
Beate S @herke93
355 Followers 146 Following #Samfunnsøkonom fra #UiO, #NMBU og #SGGW_Warszawa. Ønsker en bærekraftig fremtid. Siden 2016 syk av en svindlende kombinasjon biopsykososiale faktorer.
Paula Tanksley @TanksleyPa25
2 Followers 3 Following
Vagina Rehab Doctor @vaginarehab_dr
121 Followers 17 Following Pelvic Physical Therapist and founder of V Rehab Services LLC. I teach women how to trade in painful sex & bladder leaks for a life of pleasure and confidence.
💎 diamond 💎 @di.. @diamond_qc
1K Followers 3K Following She/her・Optimistic Leftie・Meat Free Diet・GenX 80s Goth・Indie Music Tragic・Tech Geek・AAF・ADHD・cPTSD・MECFS・OCD・CSA survivor・too many letters!・ 💉💉💉💉
Myrl @mjbjs
388 Followers 561 Following Retired teacher, college entrance consultant, mom, pet mom, cook, lover of books and movies
Micah Wong @MicahWong_DPT
407 Followers 528 Following DPT pushing for primary care PT and asking why we do what we do. HI ✈ OR. Obsessed with self efficacy, internal locus of control, and evidence. studying RMSK
Matt Barrows @mattbarrows
100K Followers 694 Following Matt (that's me) covers the 49ers for The Athletic. Alum of The Sacramento Bee and Hilton Head Island Packet
MEinSEATTLE @emmydugas
976 Followers 2K Following
Elaine.D 🌻☘️�.. @elainemdc
602 Followers 581 Following Doggie mom, love(d) the outdoors. Long Covid, Long Hauler #CovidIsntOver #BringBackMasks #NotRecovered #CureLongCovid#CountLongCovid #pwLC
Sareeta @SareetaOT
228 Followers 680 Following Lecturer/Researcher🔸Consultant Occupational Therapist 🔸All views are my own
Susan Dougill @SusanD1408
458 Followers 658 Following I am a married mother of one teenage son. I have a wonderful husband who cares for me. I have ME/CFS Fibromyalgia, POTS, peripheral neuropathy & other things
Tara Foti, PhD MPH @TaraFotiPhD
814 Followers 772 Following Perinatal health researcher, Adjunct @usfcoph | Former @kpdor Postdoc, @usfcoph PhD, @URMC MPH | Now #disabled #LongCovid #PostVax #MECFS @RemissionBiome #R50
LongLonghauler @sketchingwitht
121 Followers 201 Following
Dom @domsalisbury
1K Followers 1K Following Ex-atmosphere/ocean scientist. Very ill with M.E #pwME. Patient advocate (when able). Interested in how we live. Open-minded, but always sceptical.
S E Andrews @iowalibrarian
321 Followers 688 Following Academic health sciences librarian, sometimes hospital chaplain. Opinions my own. 🦓🥄 long covid
Nicola Jeffery @NicolaCJeffery
5K Followers 5K Following 'Behind that loud-mouthed journalist @MrTopple is an even louder-mouthed woman!' Mum, Activist, #ChronicIllness warrior! #BLM! Standing up to #Classism!
Dave @gggiants
11K Followers 403 Following I write about the #SFGiants for @sfgate. That's about it. [email protected]
Hanna O. @nerdyblue
1K Followers 5K Following Politics, Social Justice, & Environment. MA in Counseling, Psychology. Righteous anger my own. BLM ✊🏽 LongCovid POTS/dysautonomia/MeCfs
Pardon My Pain 𓅻 @PardonMyPain
2K Followers 2K Following I could do a better bio ... But not right now. She/her, science, critters, MacGyver extraordinaire, also very tired. Now at: https://t.co/aJmLB5WPkX
Maria Pastor @Drewhywhywhy
212 Followers 738 Following Dr Psychology, mother of 3, #Dysautonomia, #MCAS, #hEDS #neuroimmuneinflammation #ME/CFS. Proud participant R=50 @remissionbiome
Elke Asen @ElkeAsen
2K Followers 3K Following MSc in Economics Student @LSEEcon | former tax policy analyst @taxfoundation | Life on Pause since Dec ‘21 due to #LongCovid
Nina E. Steinkopf @Nina_Steinkopf
2K Followers 2K Following Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and blogger. 🇳🇴🏳️🌈🇵🇸🇺🇳😷
Nneka Ogwumike @nnekaogwumike
57K Followers 880 Following @seattlestorm #3 • @thewnbpa President • naija no dey carry last • @wasserman | @adidashoops | @wnba [email protected]
Sue Bird @S10Bird
195K Followers 546 Following Official Twitter account of Sue Bird. IG: sbird10 Email: [email protected] (she/her)@sunsopeningband @IsabelRamirezRD Many thanks for sharing @sunsopeningband @IsabelRamirezRD
@sunsopeningband Was curious about that ... now one of your subscribers.
For people with #MECFS & #LongCovid, what for you defines a 'crash'? It's a term we use too at Visible (and I use myself) But given it's a term that's 'emerged', would be great to understand how people think about it 🙏
@PutrinoLab / @sunsopeningband this is a topic that may interest you!
@sunsopeningband @MeganEDoherty @lifeanalytics @MECFSNanoneedle There are aspects that overlap, such as Warburg Effect (aerobic glycolysis), mitochondrial fission, & specific chemotherapies that reactivate ME/MECFS/CFS-associated pathogens, which risk provoking signs, symptoms & disease progression in the direction of ME, MECFS, or CFS.
I’m fucking tired of #MECFS PEM being described in a way that makes it sound like a temporary payback. Oh well, maybe it’s worth it then. NO! PEM can be PERMANENT! Exertion can make you PERMANENTLY MORE DISABLED! This does not happen in ANY other disease! I will die on this hill.
Columbia's web page discussing its regret for calling in police to arrest students in 1968 is displaying a warning about limited access due to NYPD on campus arresting students. May Columbia never live this down.
Maybe the takeaway shouldn't be that PEM isn’t unique, but rather that these conditions might be comorbid with fully-fledged ME/CFS, or even are exactly the same.
Please note: Apart from #MECFS and #LongCOVID, Post-exertional malaise can be found in cancer-related fatigue, gulf war illness syndrome, Post-treatment Lyme disease syndrome and possibly other syndromes. We need to further investigate this key symptom and common mechanisms.
Clearly I’m a negative nelly. But having ME for decades will make you pragmatic. I prefer to hope for the best but prepare for the worst. I hope medicine will find a solution, will get better, will fix access issues & start to help us. But I don’t count on it because I can’t.
@doyouseem_e_now I’m an actual scientist and I’m afraid it’s all a lot harder and slower than you’re aware and than people are hoping. This is an area I really want to be proven wrong on, but I don’t think I will be. Don’t count on medicine coming to the rescue. You’ll only be disappointed.
Berkeley's May crowdfunding for Trial By Error has begun...virology.ws/2024/05/01/tri…
Can A Cup Of Tea Protect You Against Covid? Yes, Of Course, As Long As You Are Using It To Wash Your Hands. credit: @TeemuTagg
Would you rather… Get to do more 20% more activity but have 2x as much PEM OR Have to do 20% less but get 1/2 as much PEM? (Assume for both scenarios that your baseline stays the same no matter what)
Anyway tomorrow I'm attending a conference on food insecurity and will be speaking up about the experience of being disabled and how hard it actually is to get charity help without transport etc
Sadly it will not necessarily be so quick for those #AHP who have #LongCovid @LongCOVIDPhysio @cathythomsonPT @thecsp @LongCovidAHP @OT_Skiff @sunsopeningband #NotWorkingWithLongCovid #CostOfLivingCrisis #CovidIsNotOver
Are you a physiotherapist who has come off the Register today? Here's how to get back on quickly if you didn't complete your renewal in time: hcpc-uk.org/short-readmiss…
@sunsopeningband @MeganEDoherty @lifeanalytics @MECFSNanoneedle I thought the same, but getting this through to people will definitely require a shift from the "ME as diagnosis of exclusion" model that so many physicians still adhere to. Which is, granted, long overdue anyway.
@Velma25803515 Yes, but there’s often also a delayed aspect. There was a good graphic shared on this recently by @sunsopeningband we may get immediate effects of over exertion, but the next day there can be delayed effects that differ from the immediate ones. So it’s like there’s stages.
@louise_today @sunsopeningband @MeganEDoherty @lifeanalytics I imagine the timing has something to do with it being such a large feature of #LongCovid due to the 1/2 #MECFS and what better way to disappear it then to attach it to multiple conditions without having shown it to be so by objective measurement.
@sunsopeningband @MeganEDoherty @lifeanalytics @MECFSNanoneedle Delayed onset? Prolonged recovery from PEM, days/weeks/many months/never? Worsening of symptoms .... long term if prolonged/months/years recovery from exertion outside of energy envelope? How come PEM is only just now being claimed by multiple other conditions/diseases?
It’s Time To Clamp Down On Kind People Who Care About Others And Try To Stop Them Getting Sicker And Sicker.
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