Andréa Andersson @som_andrea_
Kommunikatören som pga neurologisk sjukdom fick kliva in genom fönstret och försvinna. Hoppas på forskningen och mina (förhoppningsvis) vilande energidepåer. Joined June 2015-
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This is common for because doctors either don’t believe in ME or that it can be so severe. Dr. Nigel Speight an expert on ME has dealt with lots of similar cases. This is a clip about a psychiatrist changed the diagnosis of a girl with ME #SaveCarlasLife #ExposeMENow
The equivalence of psychodynamic therapy and cognitive behavioral therapy for depressive disorders in adults: A meta‐analytic review - Smith - 2024 - Journal of Clinical Psychology - Wiley Online Library onlinelibrary.wiley.com/doi/full/10.10…
The folks out there pushing Graded Exercise Therapy (GET) and Cognitive Behavioral Therapy (CBT) for infection-associated disease states like #LongCOVID, #MECFS and chronic #Lyme produce bad science and peddle harmful/dangerous rhetoric are truly deplorable, but what's more, 1/
Jag spanar att alltmer ökade evidens kring detta, med närliggande områden, kommer att påverka hur vi i framtiden både ser på och behandlar mycket inom det psykiatriska fältet. På tiden. #psykiskohälsa #npf #hjärnan #neuropsykologi #nutrition #medicin #mage liu.se/nyhet/autism-o…
Liten men spännande pilotstudie rörande kost och bipolaritet. #keto #kost #psykisksjukdom #psykiskohälsa #psykiatri #psykishälsa
Liten men spännande pilotstudie rörande kost och bipolaritet. #keto #kost #psykisksjukdom #psykiskohälsa #psykiatri #psykishälsa
I wrote an in-depth analysis of the history of the NIH intramural ME study and how the outcome--a psych label for ME--was predetermined by NIH's putting extremist ME denier Walitt in charge. thoughtsaboutme.com/2024/03/20/305…
It’s the greatest medical scandal of the 21st Century. Intransigent doctors and gullible journalists have made the lives of ME/CFS patients a living hell. A massive and shocking story in this week’s column. theguardian.com/commentisfree/…
Årets tweet kommer med vårens fågelkvitter. Fågel-X.
I have devoted my entire life and career to advocating on behalf of Alzheimer's patients, their families, and their caregivers. I've managed treatment plans for thousands of patients and conducted hundreds of social initiatives. Now I am the mother of a 14-year-old with…
Årets tweet tillägnar jag kidsen och hoppet om morgondagen. Förlåt att vår generation i stort är dum i hela huvudet och lämnar efter-fest-städningen till er. True Deep Reality.
How I became a human plague – and stumbled into one of the most astonishing scientific stories I’ve ever encountered. My column. Plus thread. theguardian.com/commentisfree/…
Årets tweet tillägnar jag njutningen av Trumps förlust.
För alla som väntat och längtat, här kommer den, årets tweet.
Hurra! Stolt att få jobba med fantastiska Sara Svanfeldt m.fl. x.com/engstrmhillevi…
Hurra! Stolt att få jobba med fantastiska Sara Svanfeldt m.fl. x.com/engstrmhillevi…
Vissa människor - jag vill både krama och banka dem till någon sorts inre trygghet så vi alla kan hjälpas åt nu!
De säger att jag inte twittrar så ofta. Så med detta inlägg trappar jag nu upp och räknar att peaka inom 24 h.
“Attention is the rarest and purest form of generosity.” Simone Weil on attention and grace buff.ly/1Jtp4ah
FionaPWME (fiona.me@b.. @FionaPWME
2K Followers 3K Following Was a journo/writer/editor. #MECFS has crushed my life for 13+ years. (Profile pic: excerpt of cartoon by @KorneliaPaulson.)
singkepe @singkepe
2K Followers 3K Following 𓁹 Reminding you of your power • Awakening your mind and body to your healing potential and purpose • Certified Quantum Healing Hypnosis Tulum #QHHT #Hypnosis
BetsyLouis @5GLkM3acRGNGc
0 Followers 52 Following
Susan Newson @SusanNewson3
2K Followers 3K Following
Smesi @Smesi258315
0 Followers 68 Following
Lisa @lisa62smith
187 Followers 3K Following
Kaitlyn Townsend @KaitlynTow20120
98 Followers 3K Following
Penny Smith @PennySmetth
1K Followers 2K Following
M H Anderberg ♿6 x�.. @Anderbergskan
326 Followers 932 Following Born at 320. Learning anew. b-sky too. Adekvat smittskydd nu!
David Hemler @DavidHemler
2K Followers 5K Following American immigrant in Sweden working as a statistician at the National Board of Health and Welfare (alias Hans Schwarz). This is my Swedish language account.
Elizabeth Ansell @elizansell
685 Followers 2K Following Founder @njfatigue. Previously at Showtime and ABC News, among other places. Quit career due to #MECFS. This is #NotJustFatigue.
miamariapia @mia_maria_pia
117 Followers 163 Following Stolt valberedare i @covidforeningen och lärare som sedan mars -20 kämpar mot #longcovid #långtidscovid
stjepanhausercello @stjepanhau60751
239 Followers 5K Following I'm stjepan hauser I am into Super music I love playing cello music 🔥🎻🇭🇷 I am on (YouTube)
Alison Whitehead @AlisonThesedays
1K Followers 2K Following
Anna Bäsén @AnnaBasen
6K Followers 6K Following Grävande medicinjournalist på Läkemedelsvärlden och författare. Åsikterna här är mina egna, förstås, inte Läkemedelsvärldens.
Rachel De Basso @RachelDeBasso
895 Followers 2K Following Ordf Sjukvårdsdelegationen SKR, regionstyrelsens ordförande (S) i Region Jönköpings län, PhD, medicine doktor, universitetslektor.
#NotJustFatigue @njfatigue
584 Followers 656 Following We are a 501(c)(3) sounding the alarm on ME/CFS through digestible, creative content. This is #NotJustFatigue
Komachi @zoomlotso35253
31 Followers 149 Following
Anna @halcionandon
2K Followers 5K Following Inquiring mind derailed by #SevereME #LongCovid #Hypothyroidism #Migraine #POTS #ChronicPain & more #FBLC. Health in hell mode-NEED SAFE HOME, ADVOCATE, GP
Sanna S @allmanlakaren
700 Followers 1K Following Kvinna. läkare. mamma. tror på medmänsklighet, snällhet och att stå för sina beslut. kanske växlar bana mot att arbeta mot barn istället för vc. 👧 🧒
Brenda @brendalaudat97
165 Followers 3K Following
Joyce Fink @fink_joyce97626
118 Followers 3K Following
Lori @chang_lori82
171 Followers 3K Following
Andrea Joliat @AndreaJoliat
1K Followers 2K Following Advocate for research and support for all who suffer from the neglected illness MEcfs. Including my son.
Livet i Kristus, på .. @GudsFolk
656 Followers 4K Following Din stilla oas på Twitter! Daglig inspiration från kyrkornas andliga skatter i Kristi efterföljelse.
Sofia Breland, MD �.. @sofbreland
3K Followers 1K Following Curious and knowledge driven MD. Medicine, ⚽️ & all in between. #PASC #Longcovid #airborne 🇸🇪 😷💉💉💉 @[email protected]
Mikke Ejrevi @ejrevi
1K Followers 847 Following Pappa. VD/museichef. Tidigare lärare, rektor, kultur- & bibliotekschef. Årets Barnrättskämpe 2023. Idrott för Alla. Årets idé 2023. Läsligan.
Lisa Norén @noren_elisabeth
3K Followers 2K Following Läkare med fäbless för sportreferenser och ohejdad optimism. Tidigare sportfåne, nu hämmad av #longcovid. Spetspatient och författare.
Painter Goblin @paintergoblin
664 Followers 3K Following Hates outdoors. Loves art. Likes to tell you about the art on #wikidata (Twitter Cyborg: Part bot; part @beet_keeper) #digitalart #creativecommons #OpenGLAM
Digitalistorna VKF @digitalistorna
135 Followers 510 Following Digitalista från Väsby kommunala förskolor och brinner för att diskutera pedagogiska frågor. https://t.co/TIwXLiFgWY…
Fredrik Assarsson @vonassarsson
3 Followers 32 Following
Upplands Väsby @upplandsvasby
1K Followers 203 Following Officiell Twittersida för Upplands Väsby kommun. Kommunen finns även på: http://t.co/oWNX977B. För lediga jobb: https://t.co/WGyaOBbhHx.
Maria Strandberg @miaformica
672 Followers 2K Following Marketing & Communication enthusiast 🙌🏻 ... and dedicated golfer 🏌🏻♀️
Naturhist.riksmuseet @naturhistoriska
4K Followers 2K Following Naturhistoriska riksmuseet Kontot på denna plattform är inaktivt. Följ oss i andra kanaler. Kontakta oss via vår webbplats https://t.co/qR3RblVKbB.
RethinkHR.se @HRrethink
509 Followers 1K Following This year's Rethink HR conference is about you managing data for better and more effective decision making & to win competitive advantage. Join and learn! #ReHR
Karin Hedén @karinheden
902 Followers 1K Following Ledarskap, möteseffektivitet, pedagogik och mötesutveckling. Driver Resultatbolaget, kappseglar 606:a och är nyfiken på ledarskap som gör skillnad.
Krux @KruxSweden
687 Followers 2K Following Krux utvecklar levande varumärken som är lätta att begripa och självklara att älska.
Urban Gyllström @Urban_Gyllstrom
1K Followers 3K Following Planner/strategist | Founder and CEO @ Gyllstrom Communication Agency | Most of my tweets are in english, some in swedish, some in jabberwocky.
Liberalerna Väsby @libvasby
209 Followers 850 Following Här twittrar Liberalerna i Upplands Väsby. Följ oss också på Facebook och på https://t.co/5VhIXRlquI
Nana Kwame @nkwantabisa1
28 Followers 107 Following
Modul Sthlm @modulsthlm
6K Followers 3K Following Modul Sthlm bemannar, rekryterar och förmedlar frilansare. Här finns de mest spännande jobben inom marknadsföring, kommunikation och media. https://t.co/MSgHPBxPs6
amar mesawee. @amarmesawee
65 Followers 348 Following
Lena Remeus @lyssnarlite
31 Followers 109 Following
Pär Brubäcken @brubacken
106 Followers 321 Following Secondary school teacher. Politican in the Center-liberal party and board member of Swedish lgbt organisation RFSL. Gay an proud! Nie pedał! 🇸🇪🏳️🌈🇵🇱 🍀
Paul Lewis @paullewismoney
162K Followers 2K Following Financial journalist, broadcaster, and speaker. Seek the truth, find the truth, tell the truth. Unequivocally for free speech & press. Wilkie Collins expert too
Phi @phi_psd
5K Followers 933 Following Australian/Greek/Cypriot nerdy visual designer, living in Berlin. 🇨🇾🇬🇷🇩🇪 end #prescribedharm #longcovid & #mecfs @berlinbuyers
Long COVID Europe (LC.. @LongCOVIDEurope
4K Followers 86 Following Long COVID Europe (LCE) is the European network of Long COVID patient organisations. LCE focuses on recognition, research, and rehabilitation of #LongCovid.
ME Research UK @MEResearchUK
5K Followers 10 Following ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
M.E. Chronic Fatigue .. @ME_CFS
9K Followers 9K Following #MyalgicEncephalomyelitis #MECFS @ME_CFS Many think caused by chemical poisoning/chlorine #ChronicFatigueSyndrome is severe muscle/nerve pain Like #LongCovid
UniteToFight2024 @U2Fight_World
3K Followers 121 Following 100% crowdfunded LC & ME/CFS conference project. community-driven. independent. global.
ME/CFS Research Found.. @MECFSResearch
1K Followers 226 Following Für mehr biomedizinische ME/CFS Forschung. Foundation for biomedical research on #MECFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome).
Herbert Renz-Polster @kinderverstehen
3K Followers 49 Following Ich bin mit zwei "Missionen" auf Twitter unterwegs: @Renzpolster dreht sich um Wissenschaft(v.a. #MECFS), und diese hier um: das gute Aufwachsen der Kinder!
Long COVID Deutschlan.. @LongDeutschland
6K Followers 378 Following Bundesweite Initiative für die Belange von #LongCovid-Betroffenen. Aktiv für Aufklärung, Versorgung, Forschung. Long COVID Germany. Member of @LongCOVIDEurope.
Dr. Bettina Hohberger @Dr_B_Hohberger
8K Followers 48 Following PD Dr. med. Dr. rer. biol. hum. Bettina Hohberger
Fatigatio e.V. - Bund.. @FatigatioeV
3K Followers 460 Following Myalgische Enzephalomyelitis, Patientenorganisation Wissenschaft, Forschung, intern. Netzwerk Selbsthilfe, Info, Unterstützung #MECFS #LongCOVID #Longcovidkids
Carmen Scheibenbogen @C_Scheibenbogen
12K Followers 62 Following Immunologist and ME/CFS researcher MD @ChariteBerlin
Frederik J. Stratmann @FJStratmann
134 Followers 58 Following M. Sc. Industrial Engineer | Software Developer | Science & Nature Enthusiast 🏄🏼 | ME/CFS 🧬
Jennie Jacques @JennieJacques1
19K Followers 412 Following avid reader 📚 lover of science 🧪 🧬 actress 🎭 & writer ✍️ #disabilityswareness 🌻 #mecfs 💙 @bake4mecfs
Daniel Moore @Talmandaniel
5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Agy Lena 🏳️�.. @agy_lena
9K Followers 290 Following Ex athlete, biker, climber, 1st class biomedicine grad. Entire life lost 2017 post viral ME/CFS. C💉injured 2021 thus turned from pro to anti vax
Simon Wessely @WesselyS
20K Followers 697 Following Regius Professor of Psychiatry, King's College London; Dir King’s Centre Military Health Research; FRS; Past President RCPsych & RSM. Chelsea season ticket
Tom Kindlon @TomKindlon
14K Followers 579 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
FionaPWME (fiona.me@b.. @FionaPWME
2K Followers 3K Following Was a journo/writer/editor. #MECFS has crushed my life for 13+ years. (Profile pic: excerpt of cartoon by @KorneliaPaulson.)
Nele @NeleHelena
3K Followers 971 Following I tweet about the things I don't like: severe chronic illness / ableism / toxic positivity / medical gaslighting / dysautonomia / MEcfs / autoimmunity
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Becca @Bexypie
463 Followers 397 Following Bird mum. Vegan. Animal & nature lover. Tea addict. Español lover. 🇪🇸🌼🌸🌺🌞🌱❤️ ME, POTS & Stage 4 Endo Fighter. Supporter of Biomedical Research into ME.
Amy Rochlin @amyrochlin
855 Followers 2K Following Executive Director, @MetrodoraFdtn - Proudly working to advance progress for patients living with chronic, multisystem disorders. Opinions are my own.
Emma Knight 💙 @eknight8
109 Followers 239 Following I’ve two autistic, hypermobile sons (one with PDA), one sadly has ME/CFS, PoTS. Scientific background and interested in research in these areas. Avoiding covid.
Sajid Javid @sajidjavid
304K Followers 1K Following Rt Hon Sir Sajid Javid MP | Member of Parliament for Bromsgrove | Former Chancellor of the Exchequer
Todd Davenport @sunsopeningband
11K Followers 5K Following Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Storyteller involving data. “That brand of person.” Full prof. DPT PhD MPH OCS.
Martin Kulldorff @MartinKulldorff
393K Followers 3K Following Epidemiologist, Biostatistician, Infectious Disease Outbreaks, Vaccine Safety, Shared Parenting. @gbdeclaration @AcadSciFreedom @NatlParentsOrg
Louise Bringselius @Bringselius
5K Followers 2K Following Associate Professor in Management Studies. Speaker, Author, Columnist. Research Fellow at Stockholm School of Economics. Specialty: Public management.
Patrick Krainer @PatrickKrainer
554 Followers 248 Following Jobbar som nyhetschef på Västerbottens-Kuriren. Men Twitter är ju ett rent nöje, inget jobb.
Crémieux @cremieuxrecueil
88K Followers 907 Following I write about genetics, 'metrics, and demographics. Read my long-form writing at https://t.co/8hgA4nNS2A.
Lotta Borg Skoglund @BorgSkoglund
348 Followers 200 Following Associate Professor Senior Consultant Psychiatry. Author. Key Note Speaker. Clinic and research on ADHD, Hormones, Gender, Comorbidity and Addiction.
Marcus Larsson @Skolinkvisition
29K Followers 11K Following En av två i @tsbalans. Bidrar aktivt till att vässa Balans erbjudande inom samhällsomstörtande systemkritik.
Hanna Brus @HannaBrus
7K Followers 1K Following Vurmar för vetenskapsteori, diagnostik, smärtvård. Mellanchef på akutsjukhus. Leg. kiropraktor. Skrivit en hel del krönikor - främst i Dagens Medicin.
anne carlsson @annecarlsson2
2K Followers 2K Following Forskning och sjukvårdsfrågor, Jämlik vård, patientsäkerhet, hur vi fördelar och använder sjukvårdens resurser, eHälsa
Sara Banegas @SaraBanegas17
39 Followers 42 Following Chefsläkare Praktikertjänst Ab. Spec i allmänmedicin.
Vanessa Erica @kreativtant
233 Followers 357 Following Har ett sjujäkla humör och är emellanåt rätt rar ändå.
tourette awareness @touretteworld
1K Followers 448 Following Tourette Syndrome: Awareness, Research, Support. Fields of interest: neurology, psychiatry, brain research. Greetings from Germany ++ Ticce und lebe bunt !!!!
Tourette’s Podcast @TourettesPod
2K Followers 864 Following SEASON 8. Tourette stories w/ people who know it best. Host is @benbrownphotog1. Sponsored by @TouretteAssn. Part of @geeksrising network.
Norman Fixel Institut.. @FixelInstitute
1K Followers 152 Following An institute of world-renowned experts delivering breakthroughs in neurological and neurodegenerative disorders @ufhealth
DBS Think Tank @DBSThinkTank
3K Followers 2K Following The DBS Think Tank addresses cutting edge research, technologies, and neuroethical issues in the field of neuromodulation.
Prof. Ayşegül Günd.. @brainmappinglab
3K Followers 2K Following Educator. Engineer. Neuroscientist. Clinical researcher. Triathlete. Over-educated cat lady. Immigrant. Diversity champion. Gator. Reads Banned Books. Says Gay.
ESSTS @ESSTS_Tourette
379 Followers 351 Following European Society for the Study of Tourette Syndrome. Working alongside with world's leading experts for the global awareness, research & treatment of TS.
TouretteAssn @TouretteAssn
6K Followers 652 Following The Tourette Association of America is dedicated to making life better for all people affected by Tourette, Tic Disorders, and associated conditions.
NINDS @NIH_NINDS
13K Followers 111 Following Official account of the National Institute of Neurological Disorders and Stroke (NINDS), part of the @NIH Privacy Policy: https://t.co/IHhFTL1pRp
Scientific Reports @SciReports
128K Followers 3K Following Online & #openaccess. A primary research publication from @NaturePortfolio covering all areas across the natural sciences, medicine, psychology and engineering.
nature @Nature
2.6M Followers 4K Following Research, News, and Commentary from Nature, the international journal of science. For daily science news, get Nature Briefing: https://t.co/wGmQlQ8a4D
Michael Okun @MichaelOkun
34K Followers 860 Following National Medical Advisor @parkinsondotorg Author 14 books https://t.co/EJCwDpEIw8 blog Professor @UF @fixelinstitute Associate Editor @JAMANeuro @DBSThinkTank
FNDConnect @ConnectFnd
2K Followers 1K Following Sharing news & views of the #FND community. Carer for FND, (Fibro, CP, POTS, CRPS) sufferer, wanting to help share info & experience. Non medical professional.
@one_mrs_k Isn't it just? Then you're left, trampled over, to pick up the pieces and start the acceptance process all over again, trying to make the best of very little while hoping you've been believed. Then the stress of waiting for the outcome.
@maryeilmicdom I always have a good cry after my reviews. It's horrible to have to tell someone else how small and sad your life is.
@maryeilmicdom It is the same as revisiting the site of a trauma over and over again. Sad for you that you had to do that.
This is so true. Had my review today. Very much faced with the reality of your situation. It's extremely painful when you're discussing things that are devastating but have come to see as everyday.
@paullewismoney @Sanders4Health Heart wrenching and disgusting! Disabled ppl have already been classed as second class citizens, or D listed… now they dare to remove their freedom by introducing vouchers - is this b/c gvt are that pathetic at regulating company’s?
Man, I’m so sick of people telling me to “get well soon” when I tell them I have Long Covid. Instead of “Get well soon”, try saying, “holy fuck, this is horrible; how can I help with advocacy efforts??”
@som_andrea_ Not live. But we are recording it and will be putting a recording on our YouTube channel youtube.com/channel/UCWTpn…
@mrzphd I'm really sorry Michelle. You've been through an ordeal. One I relate to more than I can say. I've followed your story w interest as your symptoms & signs so similar to my own. There is no excuse for the failure to detect it. And no excuse not to correct their response now.
@mrzphd Quite remarkable given all the extensive testing you’ve had that this has been missed for so long. Disgusting that you will have to wait even longer for rehab. How many others have been missed?
@mrzphd The Health Professionals are so tired they have become Indifferent.
@komonews 18/ I am unwilling to go through this much suffering without contributing to science & knowledge. I care about the quality and safety of products, and the startlingly lack of transparency for people administered products and game of keep away with lot numbers (designed to track)
"A paucity of Americans have received J&J's vaccine compared with the numbers who got one of the mRNA" Which means, never should the number of adverse reactions from J&J be compared with the total number of administered vaccines. The ratio of severe 1/ msn.com/en-ie/health/o…
@komonews 17/ There must be logical explanations that are rooted in science. I will not stop until every component has evidence and a scientific explanation for what happened to me. Verifying the failed CVST in my 2021 MRI is a big piece. I still haven’t been able to rule out contamination
2/ I brought the information to me care teams, nothing has been updated in my records in the past 3 weeks, and the only action taken was placed referral for stroke rehabilitation, which I was just told may take another year to be seen (which will put me at year 4 since the event)
3/ I’m still finding it difficult to comprehend that people are made to “prove it” & when they find experts to review records that are plainly obvious, there is no action to correct the records that have impacted the entire course of my care and insurance denials for over 3 years
4/ There were known treatments, medical interventions and crucial, time-sensitive treatments that could have mediated and prevented the disabilities I have today because of inaction, even while pleading for help. Something is very very wrong. It should no longer be a concern for
"Here we present recent findings in ME/CFS research focussing on proposed disease pathologies shared with long COVID." #MECFS #LongCovid cell.com/trends/molecul…
I was just thinking how f*cked all those with #Longcovid would be if #MECFS did not exist. Read this ridiculous title. Who is paying for this misinformation? We need to follow the money. This needs to be exposed. Imagine a world where the covid pandemic lead to a severe…
Anyone else get angry at the sheer amount of admin you have to do as a disabled/chronically ill person. Also, the amount of that admin which is just proving to different people that you really are ill and really do need the support you’re asking for.
When you treat patients with schizoaffective disorder for over 10 years and see them suffer relentlessly, lose jobs and relationships due to their illness, and lose hope... and then they try the ketogenic diet and regain their lives... it feels like a miracle. Maybe it is.
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