Bleeding Love Film @bleedinglovedoc
We are parents and soon to be documentary makers. Our son has haemophilia, so we are making a film to bring awareness to his condition and we need your support! bleedinglove.org Brisbane, Queensland Joined May 2017-
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Bleeding Disorders Community, WE NEED YOU! We are creating a sequence for our documentary and would love for you to get involved. Check out all the details on our Facebook - facebook.com/bleedinglovefi… #hemophilia #haemophilia #bleedingdisorders #hemophiliaawareness #bleedinglove
For those of you who know me this is my son Jack. Jack has a severe bleeding disorder known as #Haemophilia. Jack requires this treatment every 72 hours to clot his blood as without it, the smallest of knocks or bangs could become life threatening. Please RT to raise awareness.
That’s it from us for Women’s Health week! Please share our full infographic, with all our facts from the week, with your friends and family to help them understand how bleeding disorders affect women. For more information head to: haemophilia.org.au/women #whw2018 #myhealthfirst
We've missed you! Here's an update on how things have been going. #haemophilia #hemophilia #documentary #update #bleedinglove facebook.com/bleedinglovefi… for more info.
Congratulations to Dietter Stever for raising $6,500 for HFACT! abc.net.au/news/2018-04-2…
Lachie's story is an amazing one - while you wait for the ABC ep to make it online, read the blog on this courageous young boy: shorthand.uq.edu.au/small-change/f… x.com/bleedinglovedo…
Lachie's story is an amazing one - while you wait for the ABC ep to make it online, read the blog on this courageous young boy: shorthand.uq.edu.au/small-change/f… x.com/bleedinglovedo…
Our episode of @abcconvos is airing this morning at 11am!! Listen in on your local ABC station, online or the ABC Listen app. For all those overseas it will be up on the Conversations website later on. #haemophilia #hemophilia #bleedingdisorders #awareness #abc #conversations
What a fantastic experience. Huge thanks to Sarah Kanowski for making me feel so comfortable and… instagram.com/p/BiEEY_tBG73/
Just about to head into @abcbrisbane studios to record @abcconvos. Can't wait to chat about Bleeding Love and raise some awareness for bleeding disorders. #haemophilia #hemophilia #bleedingdisorders #awareness #radio
Today is World Haemophilia Day! In honour of this year's theme we are sharing the story of an incredibly tough young man and his mother's experiences with haemophilia and inhibitors. Check it out here: youtu.be/UdvGAZ1qP_E #WHD2018 #hemophilia #haemophilia #bleedingdisorder
We have some news! World Haemophilia Day next week and we'll have a short video to share about our recent trip to Sydney. Also super excited to be heading in to record @abcconvos next week. More here: bit.ly/2EHIx7M #hemophilia #haemophilia #bleedingdisorder #awareness
It’s Rare Diseases day! This years theme is ‘With research, possibilities are limitless’ haemophilia.org.au/publications/n…
February 28 is Rare Disease Day! Hemophilia is a bleeding disorder that affects approximately 1 in 10,000 people. We encourage our community to get involved and #ShowYourRare. youtube.com/watch?time_con…
The amazing folks at @UQ_News recently published an incredibly cool article on our project. It's full of pictures and little videos. For those of you yet to see the trailer, it's included there as well. Check it out on a computer if you can, here: ow.ly/y5AL30iqTnb
Huge thanks to @wfhemophilia for sharing our trailer. We really appreciate the support! x.com/wfhemophilia/s…
Huge thanks to @wfhemophilia for sharing our trailer. We really appreciate the support! x.com/wfhemophilia/s…
What a great first week for the trailer. We've been blown away by everyone's kind words, amazing sharing and help in getting it seen by people. Let's keep it growing. The trailer link is here: youtu.be/n_w8iWKdvVw #hemophilia #haemophilia #bleedingdisorders #documentary
Wow!! Thanks to all of you brilliant people for sharing our trailer. We have had just over 500 views in the first four days. What an absolutely phenomenal result! Please keep sharing and let's keep the momentum going! #hemophilia #haemophilia #bleedinglove #awareness
Hi @AlexBorstein my wife and I are making a documentary to raise awareness of bleeding disorders and have just released our first trailer. Would love it if you could help us spread the word. Thanks so much. x.com/bleedinglovedo…
Hi @AlexBorstein my wife and I are making a documentary to raise awareness of bleeding disorders and have just released our first trailer. Would love it if you could help us spread the word. Thanks so much. x.com/bleedinglovedo…
We are home! What an absolutely amazing experience the last three weeks have been. We h... gofundme.com/bleedinglovefi…
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83K Followers 570 Following If every chick sat down when using a public toilet then we could all sit down. Hovering only leads to your piss on the seat. Stop it.“Dawn is a proven leader and advocate for people with bleeding disorders in the US,” Val D. Bias on the election of Dawn Rotellini to @wfhemophilia board of directors.
Congratulations to Dietter Stever for raising $6,500 for HFACT! abc.net.au/news/2018-04-2…
Lachie's story is an amazing one - while you wait for the ABC ep to make it online, read the blog on this courageous young boy: shorthand.uq.edu.au/small-change/f… x.com/bleedinglovedo…
Our episode of @abcconvos is airing this morning at 11am!! Listen in on your local ABC station, online or the ABC Listen app. For all those overseas it will be up on the Conversations website later on. #haemophilia #hemophilia #bleedingdisorders #awareness #abc #conversations
“In all 5 of these [patient death] cases, the deaths were assessed as being unrelated to the use of emicizumab and do not change the benefit-risk profile of emicizumab.” #hemophilia #hemlibra x.com/nhf_hemophilia…
MASAC Safety Information Update on Emicizumab (HEMLIBRA) ow.ly/YSyV30jFOGU
This World Hemophilia Day, learn how the WFH World Bleeding Disorders Registry (WBDR) is helping advance the understanding and care of people with #hemophilia worldwide. Sharing knowledge makes us stronger. #WHD2018 wfh.org/en/wbdr
"You never expect to have to do that to your kid...I want to make sure I can provide for my family, and that was a new thing I had to provide" - Learning to access veins on your child with #haemophilia is a huge emotional challenge, but Tom @HaemoHeroes tackled it head on!
We recently had the opportunity to sit down with @clotthickens at the @HaemoSocUK newly diagnosed weekend. We have a chat about Jack's diagnosis, the mental effects, how we started our brand and other things. Please give it a watch youtu.be/NFO9lPdikcw
#rarediseaseDay is here! What will you being today to #ShowYourRare? I'm trekking through the #LondonSnow today to attend the @rarediseaseuk parliamentary reception! #1in17 #raredisease You can check out the full video of my "artwork" here: youtu.be/Eq1IoFKB5xg
One in 10 Americans lives with one of over 7,000 #RareDiseases. Today, on #RareDiseaseDay 2018, use these hashtags to reach out and say hi to one of us! Also, tip of the cap to the last day of #BlackHistoryMonth.
“We want to show the world what people with bleeding disorders have to deal with every day.” -Charles Eddy & Shannon Gracey on their upcoming documentary @bleedinglovedoc youtube.com/watch?v=n_w8iW…
We are proud as Sobi/Bioverativ to take the lead with donations in this programme, with the commitment to donate 1bn IUs over 10years, enabling predictable humanitarian supply of factor treatment in partnership with #WFH x.com/profmakris/sta…
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@Mountainfilm @AdventureHemo This officially kicks off bringing #hemophilia, hope, & global health disparity to the big screen. TY @boardo87 @cohemo @SaveOneLifeInc @LaurieKelley2 @HTCColorado @NHF_Hemophilia and @NIH! And of course TY #Octapharma and Wolfgang Marguerre 4 ur faith in @AdventureHemo and me!
@AdventureHemo After a 10-day lifetime of editing, it’s finally time to head home. Easily the most intense, concentrated period I’ve ever spent on a project. The work continues on the go as we race toward a Feb 5th rough cut submission. Quite the journey #BombardierBlood has been. #comingsoon
Put your eyeballs on this👇🏻 x.com/bleedinglovedo…
We are so excited to be able to share the first trailer for Bleeding Love with everyone. Head over to youtu.be/n_w8iWKdvVw to check it out! #hemophilia #haemophilia #documentary #awareness #MakeADifference #bleedingdisorder #NowPlaying
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