Search results for #RareDiseaseDay
Check out the latest @ncats_nih_gov newsletter, featuring stories shared at #RareDiseaseDay @NIH, #RareDisease research news, and more! ✉️ mailchi.mp/ncats/ncats-e-…
Henrico boy, born with CHD, to headline Richmond Heart Ball #RareDisorders #RareDiseaseCure #RareDiseaseDay [Video] Finn Blumenthal was born without chambers in his heart. Nine years and eighteen medical procedures later, Finn uses his story to encourage… dlvr.it/T63MCN
🔽 🥰 Race for Rare ⏰ 07 Mar - 30 Apr 2024 👟 2K/5K/10K 💌 Charity/Virtual Run/Walk 🌤 Bebas / Anywhere 💚 🥝 LariKu.info/Rare24 ⏪ 🔺 🔺 •••• #RaceforRare #GSILab #99VirtualRace #LariKuinfo #CharityEvent #VirtualRun #KalenderLari #RareDiseaseDay #GenomeHope
A 21-year-old US woman’s painful story of persistent genital arousal disorder has ignited a social media debate. Read story: theasianmirror.com/top-stories/50… #PGAD #USWoman #raredisease #rarediseaseDay
Denise DAscenzo foundations walk for rare diseases raising money for local charities, including ALS United CT #RareDisorders #RareDiseaseCure #RareDiseaseDay #RareDiseaseFight [Video] This Saturday, hundreds will gather on the campus of Quinnipiac… dlvr.it/T5zChL
25 Disturbingly Bizarre Things Found Inside People #RareDisorders #RareDiseaseCure #RareDiseaseDay #RareDiseaseFight #RareDiseaseFoundation [Video] On rare occasions, people end up with things in their body that shouldn't be possible. Here are 25… dlvr.it/T5tL8q
US implements new color-coded system to warn Americans about heat danger #RareDisorders #RareDiseaseCure #RareDiseaseDay #RareDiseaseFight #RareDiseaseFoundation [Video] A new color-coded heat warning system was introduced by the National Weather Service… dlvr.it/T5vYkr
I love being on a team that elevates the rare disease communities! Find out what Worldwide did for #RareDiseaseDay 2024 in our recent blog: bit.ly/4ayNgbV bit.ly/44f03Of
Celine Dion, 56, stuns in energetic shoot after Stiff Person diagnosis #RareDisorders #RareDiseaseCure #RareDiseaseDay [Video] Celine Dion, 56, looked stunning in a new energetic shoot as she spoke about 'learning to live' with cruel Stiff Person ... dlvr.it/T5sqKr
"There is a very Irish attitude to people with disabilities that are not visible, if you don't have a missing limb or are not using a wheelchair or crutches: 'Sure you’re grand aren’t ye?" mdi.ie/all-news-artic… #MDIRareConditionAwareness #RareDiseaseDay
Two Hunters Died of Rare Prion Disease. Doctors Suspect a First-of-Its Kind Deer Transmission #RareDisorders #RareDiseaseCure #RareDiseaseDay [Video] Two recent cases of prion disease in the U.S. may have been caused by contaminated deer meat, though the… dlvr.it/T5mjZv
I love being on a team that elevates the rare disease communities! Find out what Worldwide did for #RareDiseaseDay 2024 in our recent blog: bit.ly/4ayNgbV bit.ly/3W8fdCN
It’s so wonderful seeing what an impact our Rare Moments page had on the rare disease communities this year! Check out our blog to hear some key highlights from #RareDiseaseDay 2024! bit.ly/4ayNgbV bit.ly/3W1WKIa
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Rare Disease Day mans.. @rarediseaseday_
16 Followers 2 Following Raising awareness for rare diseases. #LightUpForRare
يوم الأمراض.. @RAREDISEASEDAY1
11 Followers 2 Following حملة مُختصة لنشر الوعي عن الأمراض النادرة #IAU
Rare Disease Day US @RareDayUS
8K Followers 1K Following 2/28/19. #ShowYourStripes & join the movement in the US & around the world for #RareDiseaseDay. (Hosted in the US by @RareDiseases.)
NORD @RareDiseases
41K Followers 3K Following National Organization for Rare Disorders (#NORD) is the voice of the #RareDisease community. Official US sponsor of #RareDiseaseDay.
RareDiseaseDay Japan @RDD2011
48 Followers 0 Following Rare Disease Dayは世界希少・難治性疾患の日。毎年2月28日開催です。小さなことからで結構です。皆様ぜひご参加ください。