Search results for #hemophilia
Beqvez is indicated for those on preventive treatment with a factor IX replacement therapy or have had life-threatening bleeding episodes. bit.ly/3JzlKiz #hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife
Pfizer has reached a critical milestone by obtaining FDA approval for its gene treatment, Beqvez (fidanacogene elaparvovec-dzkt), which is intended for people with hemophilia B. Read More:bargainmama.com/pfizer-receive… #pfizer #hemophilia #perdose #bargainmama
Breaking Boundaries: Pfizer's Beqvez Gene Therapy Revolutionizes Hemophilia B Treatment 🌟💉 @DEXWireNews #GeneTherapy #Hemophilia #Innovation #PersonalizedMedicine ⭐️Learn More About $PFE 🚨 Sign Up For FREE 📱SMS Updates: dexwirenews.com/SMS
Catch up on the #HemophiliaNewsToday Column of the Week here: bit.ly/3xMgSnF #Hemophilia #HemophiliaAwareness #HemophiliaCommunity #LivingWithHemophilia
@RNAiAnalyst @JohnIII39374266 - #hemA is exclusively in the hands of $PFE (yesterday's approval of Fidanacogene Elaparvovec for #HemB demonstrates Pfizer commitment to #genetherapy and #Hemophilia)! $SGMO is in negotiations to sell/partner #Fabry - but for a fair price not as a free giveaway ...
#FDA has approved Pfizer's #BEQVEZ, a one-time #genetherapy for adults with moderate to severe #hemophilia B. This treatment enables patients to produce their own #clottingfactor IX, potentially reducing bleeding episodes. #geneticdisorder healthandpharma.net/fda-gene-thera…
#WFH2024 was a great backdrop for this #WorldHemophiliaDay-themed episode of @GlobalHemReport. Thought you all might enjoy it. Working on it gave me new appreciation for @wfhemophilia’s tremendous history and growth. #hemophilia #haemophilia podcasts.apple.com/us/podcast/glo…
In case you missed it, we break down how hemophilia is diagnosed in this dedicated resource on the topic: bit.ly/4d8ihoP #Hemophilia #HemophiliaAwareness #HemophiliaCommunity #LivingWithHemophilia
ICYMI: “This is a significant game changer. Gene therapy has been looked at for decades in hemophilia.” #hemophilia #genetherapy #hemophiliaA @BioMarin Watch now: cgtlive.com/view/soni-trea…
Pfizer's one-time gene therapy #Beqvez gains FDA approval for hemophilia B, matching #Hemgenix's $3.5M price. Offers warranty program. Shifts focus to gene therapies including hemophilia A and Duchenne muscular dystrophy. #GeneTherapy #Hemophilia #DMD $PFE
Columnist Joe MacDonald reflects on pivotal moments of his son's hemophilia journey as the son prepares to graduate from high school. bit.ly/3U7pigA #hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife
The U.S. Food and Drug Administration (FDA) has approved Pfizer’s BEQVEZ (fidanacogene elaparvovec-dzkt) for the treatment of adults with moderate to severe hemophilia B. ➡️ hubs.li/Q02vcCzD0 #hemophilia #pharma #FDA
Congratulations to IGT CAC member @pfizer and our friends in the #hemophilia community for today's @US_FDA approval of a new #genetherapy for adults with #hemophiliaB: pfizer.com/news/press-rel…
FDA approves Pfizer gene therapy Beqvez for treatment of hemophilia B buff.ly/3WjWzbc $PFE #FDA #hemophilia
The FDA has #approved fidanacogene elaparvovec-dzkt (Beqvez) for the #treatment of moderate to severe #hemophilia B in adult patients. drugtopics.com/view/fda-appro…
Valerie's story is one of delayed diagnosis and trying to find answers. Watch the full video on YouTube youtube.com/watch?v=u1DQLD… #Hemophilia #BleedingDisorders #vonwillebranddisease #YouAreNotAlone
Here is My Newly updated DNA results on short video since the new samples are released now. (In video: First listed is my immediate ancestor, & last listed is my most distant ancestor.) #dnatesting #ancestrydna #myheritage #mytrueancestry #hemophilia #romanov #rurik #Hessen
Next #hemophilia A by $PFE in partnership with $SGMO Congrats @AlbertBourla @pfizer cc @ProfMakris
Next #hemophilia A by $PFE in partnership with $SGMO Congrats @AlbertBourla @pfizer cc @ProfMakris
pastor, Tsadiku @hemophilia
58 Followers 0 Following
Hemophilia Maryland @HFMonline
790 Followers 55 Following Hemophilia Foundation of Maryland is a non-profit organization dedicated to improving the lives of persons with bleeding disorders residing in the state of MD.
Hemophilia Alliance o.. @mainehemophilia
727 Followers 8 Following In 2023, the Hemophilia Alliance of Maine officially joined forces with the New England Hemophilia Association (NEHA). Please follow @NewEnglandHemo.
Oklahoma Hemophilia @okhemophilia
968 Followers 123 Following The mission of the Oklahoma Hemophilia Foundation is to be dedicated to service, education, and advocacy for Oklahomans with Bleeding Disorders.
Hope for Hemophilia @HFHemophilia
2K Followers 507 Following Hope for Hemophilia is a non-profit started to help hemophilia patients grow strong in their belief that they can do anyhing!
HFMD Hemophilia Found.. @HFMD
811 Followers 105 Following The HFMD is a non-profit organization dedicated to providing programs and services for those living with hemophilia and related genetic bleeding disorders #hfmd
Hemophilia Community @FF_Hemophilia
976 Followers 781 Following We are an online hemophilia community where you can meet new friends, discuss issues and share your hemophilia stories. Join us at http://t.co/2uXT0FRLkU
Hemophilia Assoc. of .. @HemophiliaSD
648 Followers 31 Following A nonprofit organization providing educational, social & referral services to those with Hemophilia, von Willebrand Disease & other inherited bleeding disorders
Hemophilia Foundation.. @HemoFoundation
873 Followers 451 Following Hemophilia Foundation of Northern California - nonprofit organization serving needs of people with hemophilia, VWD, and all other bleeding disorders
HemophiliaMB @HemophiliaMB
1K Followers 615 Following Improve the quality of life for those affected by hemophilia and other inherited bleeding disorders through support, service, research, education and advocacy.
CentralCa Hemophilia @cchf_sac
977 Followers 428 Following Central CA Hemophilia Foundation is dedicated to improving the lives of those with bleeding disorders in Central CA. Retweets & follows are not endorsements.
MyHemophiliaTeam @HemophiliaTeam
1K Followers 613 Following We are the private social network for those living with #hemophilia and other #bleedingdisorders. Join our community of 3000 members!
New England Hemophili.. @NewEnglandHemo
875 Followers 80 Following Serving the New England bleeding disorders community since 1957.
Hemophilia Federation.. @hemophiliafed
6K Followers 1K Following Assisting and advocating for people living with a #bleedingdisorder and their families.🩸#hemophiliafed
Arabic Hemophilia @Arabhemophilia
11K Followers 1K Following Non-Profit organization - Arabic Association for Hemophilia patients
Hemophilia of NC @HemophiliaNC
314 Followers 32 Following
Bleeding Disorders Fo.. @HemophiliaFL
2K Followers 538 Following The mission of the Bleeding Disorders Foundation of Florida is to improve the quality of life for people with bleeding disorders.
Qatar Friends Hemophi.. @QFHG2022
3 Followers 14 Following
Hemophilia Alliance @HemoAlliance
471 Followers 0 Following Expertise, resources & advocacy for hemophilia treatment centers.
VA Hemophilia Fnd @VAHemophilia
1K Followers 507 Following Dedicated to serving the needs of the bleeding disorder community through education, advocacy and the support of research to find a cure
Florida Hemophilia As.. @FLHemoAssoc
793 Followers 246 Following FHA is dedicated to providing educational programs, support, and advocacy to individuals and families in Florida affected by bleeding disorders.
Hemophilia Federation.. @HemoIndia
698 Followers 370 Following Hemophilia Federation (India) is the only national umbrella organization in India established in 1983 for the comprehensive care of People with Hemophilia.
Hemophilia Today @Hemophilia_2Day
366 Followers 33 Following Hemophilia is a Severe Bleeding disorder that effects about 17,000 people in the United States.
karnataka Hemophilia .. @KHS_Davangere
126 Followers 15 Following KHS is non profit organisation working for the welfare of people with Hemophilia since 32 years.
Hemophilia Ontario @HemoOntario
1K Followers 588 Following Hemophilia Ontario is committed to improving the health and quality of life for all people with a bleeding disorder, and to find a cure![Hemophilia Patients Welfare Society [Peshawar Chapter] is a group of voluntary workers who either have hemophilia themselves or are parents of such children.](https://pbs.twimg.com/profile_images/1695071627556315140/muQRWHnW.jpg)
Hemophilia Patients W.. @HPWSpeshawar
188 Followers 41 Following Hemophilia Patients Welfare Society [Peshawar Chapter] is a group of voluntary workers who either have hemophilia themselves or are parents of such children.
Kilimanjaro Project @HemophiliaClimb
441 Followers 0 Following It's simple. Two brothers with hemophilia making a feature length documentary about climbing Mt. Kilimanjaro. The largest hemophilia awareness campaign. ever.
Pacific Northwest Ble.. @HemophiliaOR
376 Followers 20 Following Pacific Northwest Bleeding Disorders enhances the quality of life for people with bleeding disorders and their families through advocacy, outreach and education
NYCHemophiliaChapter @NYCHemophilia
1K Followers 483 Following NYCHC fosters a sense of community among people affected by bleeding disorders in the greater NYC area through shared experiences and mutual support.
ISTH Gene Therapy in .. @isth_gene
159 Followers 46 Following
Hemophilia @Hemophilia_RM
199 Followers 129 Following Page no longer active. Follow @RaremarkHealth for #hemophilia Our vision is to shape a world where all rare conditions are understood and treated. #RareDisease
Tex Cen Hemophilia @TexCenHemo
412 Followers 84 Following The mission of the Texas Central Hemophilia Association (TexCen), a non-profit corporation, is to promote advocacy among people and families with bleeding and
Indore Hemophilia @indohemophilia
97 Followers 25 Following Hemophilia Society Indore is an NGO who's working for Hemophilia In Indore.
Hemophilia Scholar @HemoScholarship
235 Followers 34 Following Your one-stop shop for all scholarships relating to the hemophilia community. Stop by our website for the latest and greatest scholarships.
GreatLakesHemophilia @WIBloodDisorder
1K Followers 718 Following Improving the quality of life for the Wisconsin bleeding disorders community
Hemophilia Society of.. @HemophiliaMsia
258 Followers 56 Following A National Member Organisation under World Federation of Hemophilia
HPWS HEMOPHILIA @HPWS_SOCIETY
101 Followers 7 Following
NE Hemophilia Assoc @NEhemophilia
135 Followers 18 Following Dedicated to improving the quality of life for persons with bleeding disorders and their families through education, support, and advocacy.
Hemophilia News Today @hemophilia_news
77 Followers 8 Following We are dedicated to sharing the latest news, research, and Hemophilia patient perspectives.
Louisiana Hemophilia @louisianahemo
200 Followers 56 Following Our mission is to improve the quality of life of persons affected by bleeding disorders.
Goa.Hemophilia @GoaHemophilia
187 Followers 126 Following We are Hemophilia Society Panaji Chapter. We take the responsibility to create awareness and support for Hemophilia patients in Goa.
HemophiliaCouncilCA @HemoCouncilofCA
644 Followers 461 Following We promote access to care and advance the quality of life for people with bleeding disorders through advocacy, education, and outreach.
Hemophilia @david_oez
116 Followers 1 Following
Hemophilia Walk IL @HemoWalkIL
234 Followers 82 Following 3rd Annual Hemophilia Walk September 15th 2012 Diversey Harbor, Chicago IL Join us on the outstanding day of fun and fundraising for the IL BD Community!
Hemophilia of Iowa @iahemophilia
92 Followers 18 Following Serving the bleeding disorder community in Iowa
I Am Hemophilia @IamHemophilia
231 Followers 112 Following I have a bleeding disorder called #Hemophilia. I bruise easier than others. I take medicine by IV to stop bleeding. Have questions? Just ask. I AM HEMOPHILIA!
Nils Shamaya @hemophilia_Mrss
38 Followers 23 Following businessman working Lowell #digitalartist #abstractart #artoftheday
HEMOPHILIA SOC_HPWS @HPWS_HEMOPHILIA
162 Followers 46 Following
AlabamaHemophilia @HemophiliaALA
220 Followers 100 Following Hemophilia and Bleeding Disorders of Alabama is a volunteer charity dedicated to promoting education, advocacy and support for affected Alabama residents.
Hemophilia Jabalpur c.. @ChapterJabalpur
23 Followers 2 Following NGO, Jabalpur World Hemophilia Day 17 April
Hemophilia @Hemophilia21921
35 Followers 8 Following
Hemophilia of Iowa @hemophiliaofia
46 Followers 2 Following Hemophilia of Iowa provides education and support for people with bleeding disorders and their families and friends.
Hemophilia And Him @HemophiliaNHim
160 Followers 56 Following Anthony has severe hemophilia B. This is our story.
Hemophilia Hyderabad @HemoHyderabad
35 Followers 6 Following
Vadodara Hemophilia @VHemophilia
43 Followers 5 Following
Hemophilia Sask @HemophiliaSask
80 Followers 24 Following HSK is committed to improving medical treatment, education, and support for persons living in Saskatchewan with hemophilia and inherited bleeding disorders.
Louisiana Hemophilia @lahemophilia
214 Followers 146 Following To improve the quality of life & assist persons affected by bleeding disorders by providing education, advocacy, support services & research
Hemophilia Mother @UnaMina61
119 Followers 0 Following Health Educator,Hemophilia Advocate, love to cook,and to be creative find me on FB page Hemophilia Mother
Hemophilia Walk 2009 @Hemowalkies
151 Followers 65 Following Team Hemowalkies is a participant in the '09 AZ Hemophilia Walk in Scottsdale on Oct. 18. Our Team Goal is to raise $3000 for hemophilia research & education.
Hemophilia News @hemophilianews
201 Followers 0 Following
Hemophilia Walk @CbusHemoWalk
122 Followers 79 Following Join us 10/7 at Westerville Sports Complex for our 4th Annual Hemophilia Walk. Help raise funds while enjoying a 5K, entertainment, food, and prizes!
Oklahoma Hemophilia F.. @OKBleeders
16 Followers 1 Following Serving Oklahomans with Bleeding Disorders including Hemophilia and von Willebrands disease
Global Hemophilia Rep.. @GlobalHemReport
122 Followers 111 Following PODCAST // A monthly audio journey thru the science and discoveries driving hemophilia research. Sr. Advisor: Dr. Donna DiMichele.
Nepal Hemophilia Soci.. @HemophiliaNepal
59 Followers 65 Following Nepal hemophilia society is a society for person with hemophilia and blood disorder disease
Queen's Hemophilia @QHSociety
17 Followers 3 Following
Row for Hemophilia @row4hemophilia
322 Followers 748 Following 2 UGA Rowers (Chris Lee & Jacob Pope) looking to conquer the Pacific Ocean, raising awareness for hemophilia.
Both an dead and a.. .. @Hemophilia5988
62 Followers 36 Following I genuinely don’t know anymore lmao
Pune.Hemophilia @PuneHemophilia
37 Followers 14 Following Hemophilia Soc of Maharashtra,Pune Chapter is dedicated to awareness and providing valuable information related to Hemophilia to all its members
BIC Conference @BIC_hemophilia
307 Followers 224 Following BIC is a time-honoured conference that is about advances in the hemophilias, rare inherited coagulation disorders, von Willebrand factor/diseases and TMAs.
h @HemophiliaGA
15 Followers 9 Following
Hemophilia Project @esfd12hemofilia
120 Followers 69 Following HI EVERYONE! We are a group of friends who are working on a project called Hemophilia - A Genetic Enigma. BTW, we are portuguese Hope you enjoy! :D
Hemophilia Awareness @HemophiliaAware
24 Followers 4 Following Hemophilia is a genetic condition, more common in males then females
Hemophilia Associatio.. @hemophilia_nj
86 Followers 66 Following Founded in August 1971, the Hemophilia Association of New Jersey offers assistance to persons with hemophilia and their families.
Midwest Hemophilia As.. @MidwestHemophi1
64 Followers 114 Following A non-profit group with a mission to educate, advocate, & inform the world about bleeding disorders!
Hemophilia_TN @TN_Hemophilia
164 Followers 90 Following Tennessee Hemophilia & Bleeding Disorders Foundation
SandsRx Hemophilia @SandsrxH
10 Followers 1 Following SandsRx is a specialty pharmacy that takes pride in the care and support we show to each and every patient.
みんなで考える.. @hemophilia_jimu
101 Followers 0 Following 血友病診療に関する最新情報や支援情報などを不定期に発信します。ご意見・ご要望はサイトフォームからお願いいたします。
Hemophilia Coach @CoachHemophilia
6 Followers 1 Following
Hemophilia Drug Devel.. @HDDSummit
75 Followers 169 Following Advance the Next Generation of Safe & More Effective Therapies for Bleeding Disorders
Hemophilia Treatment .. @HemophiliaHTC
15 Followers 17 Following
Hemophilia Society Jo.. @HemoJodhpur
153 Followers 275 Following Official Account of Hemophilia Society Jodhpur. Organization working for care and awareness of Person with Hemophilia in Rajasthan.
Hemophilia Free India @HemophiliaX
158 Followers 316 Following a dream.. that is.. life without pain
HemophiliaTV @HemophiliaTV
201 Followers 171 Following Stay Calm & Clot On -Greg J. Price. LOOKOUT COOKOUT here we go!
NHF Idaho @IdahoHemophilia
85 Followers 134 Following Idaho Chapter of the National Hemophilia Foundation
Hemophilia Society Of.. @HemophiliaTz
71 Followers 130 Following Established 2009, Recognized by WFH, It's officially Tanzanianan patient organization representing all right of hemophiliac "NO MORE BLEEDING🩸"
Ralph Smith @4hemophilia
36 Followers 27 Following I am a social worker who spreads awareness for hemophilia, causes, treatment and care for patients
Hearts 4 Hemophilia @h4hemophilia
123 Followers 156 Following Run by Zoe and "Iron Max" Levy, hoping to raise awareness for hemophilia in the hopes of finding a cure. Max was in Iron Man. We make calendars, too.
Hemophilia Society Ji.. @JindSociety
69 Followers 58 Following We are working for welfare of Hemophiliacs patients and are spreading awareness of Hemophilia since 2014 and Our jind chapter is affiliated with HFI.
Hemophilia Specialty .. @HemophiliaMed
10 Followers 4 Following A Free Tool to Help Hemophilia patients find Hemophilia Specialty Pharmacy near them. https://t.co/8t3JORNRLz
Cuddalore Hemophilia .. @hemophiliarmmch
5 Followers 1 Following Chidambaram Hemophilia Treatment Center, Cuddalore District
Hemophilia Wisconsin @HemophiliaWI
18 Followers 17 Following https://t.co/D4xMIKObTd A Free Tool for Hemophilia Patients!
Ghana Haemophilia Soc.. @HemophiliaGH
44 Followers 47 Following Our Vision is to reach every Haemophilia patient in Ghana with treatment and care
Rare Patient Voice @HemophiliaVoice
155 Followers 378 Following Conducting market research with industry partners and changing healthcare one Rare Patient Voice at a time.
Hemophilia Society Ka.. @KarnalSociety
59 Followers 64 Following We are working for those who suffers from bleeding disorder.