Haemophilia Society @HaemoSocUK
We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome. haemophilia.org.uk United Kingdom Joined March 2010-
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Race day is fast approaching! Meet the 2nd half of the #TeamTHS superstars running to raise crucial funds! We can't wait to cheer them on on Sunday! haemophilia.org.uk/marathon-team-…
Thank you for all your pictures - it's fantastic to see so much going on on #WorldHaemophiliaDay. We're so grateful to all of you raising funds, we could never thank you enough. We were delighted to have some of our wonderful trustees join us in our office to mark the occasion.
Happy #WorldHemophiliaDay Don't forget we are raising funds for @HaemoSocUK with profits from our shirt sales going direct to the charity
Today is #WorldHaemophiliaDay and we want to celebrate all of our members, supporters and volunteers. Without you, we can't do what we do. If you're fundraising today, please tag us in any pictures - we'd love to share your incredible efforts. #WorldHemophiliaDay #WHD2024
It's London Marathon week and we wanted to give you the chance to get to know our runners better. Find out what's motivated them to take on this challenge and why they chose the Haemophilia Society to run for. Part two to follow in a couple of days. haemophilia.org.uk/marathon-team-…
Our Corporate Partner and Major Donor Fundraiser, Scott, has been featured as part of Sobi's Liberate Life campaign. Here he discusses how he hasn't let his haemophilia prevent him pursuing his love for tattoos. liberatelife.co.uk/haemophilia-ha…
We're excited to have representatives from the Haemophilia Society (including two of our members we're sponsoring to attend) in Madrid next week. We look forward to connecting with colleagues from around the world and learning from them to enhance our services for our members.
We're excited to have representatives from the Haemophilia Society (including two of our members we're sponsoring to attend) in Madrid next week. We look forward to connecting with colleagues from around the world and learning from them to enhance our services for our members.
With less than two weeks to go until race day, we're proud to introduce the final members of #TeamTHS for London Marathon 2024. We're so happy to have Eduard, Wayne and Wilson as part of our team. Their efforts will make a huge difference to the people we support.
It's been a year since the Infected Blood Inquiry recommended a compensation scheme be set up immediately. In the 12 months since, there has been no progress. With every month that passes, the number of people who will never see justice serviced increases. Pay compensation now.
Our VWD Ambassador, Hannah Yarnall, will be part of a fascinating @ERNEuroBloodNet webinar tomorrow "Type doesn't define VWD symptoms". There's still time to register for free here. eurobloodnet.eu/education-2/pa…
As we continue our London Marathon team introductions, please meet Paula, Jamie, Hannah and Ross. 🔈👟 Each of these incredible individuals are running for us for their own special reasons. The funds they raise will make a huge difference to the work we do.
Wishing you all a very happy Easter from all of us at the Haemophilia Society
We're so thrilled to have a team of inspirational runners for this year's London Marathon. Over the next couple of weeks, we're going to take some time to introduce them all to you. So... first up we have Oliver, Katy, Andy and Ross!
The Great North Swim is the UK's largest open water swimming event, held at the world-famous Lake Windermere. Take on the challenge as part of #TeamTHS and raise crucial funds for the Haemophilia Society. Find out more and sign up here haemophilia.org.uk/events/events-…
There's still time to take part in our dental survey and share your experiences of accessing dental care. We're running this survey in partnership with Nordic Pharma, who are donating £2 to the Haemophilia Society for every submission. Take part here haemophilia.org.uk/dental-care-wh…
Applications for the 2024 youth camp are closing very soon. There's still time to be involved in what will be an incredible weekend. Find out more and apply now haemophilia.org.uk/events/events-…
Dental care is a key topic for those with a bleeding disorder. In partnership with Nordic Pharma, we're running a survey to hear your thoughts. Nordic Pharma have committed to donating £2 to the Haemophilia Society for every submission. haemophilia.org.uk/dental-care-wh…
Michael Makris @ProfMakris
14K Followers 1K Following Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
WFH @wfhemophilia
7K Followers 163 Following The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
Brian O Mahony @Brianhemophilia
3K Followers 515 Following CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee vice chair. Mum, wife, daughter, sister, baker, gardener, artist, forever learning. Opinions are my own.
flora peyvandi @flora_peyvandi
2K Followers 411 Following Professor of Internal Medicine- Hemostasis and Thrombosis Unit, University of Milan-Italy.
Haemophilia Journal @haemophilia_jnl
1K Followers 311 Following The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeve
Clive Smith @Clive_Smith_
1K Followers 1K Following Chair of The Haemophilia Society•World Federation of Hemophilia youth chair•Criminal barrister•Lecturer•Triathlete•🇬🇧 AG Duathlete•Ironman x 4
EHC_Haemophilia @EHC_Haemophilia
3K Followers 406 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
Dr Kate Khair PhD @katekhair
1K Followers 856 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
EAHAD @EAHADnews
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Paul McLaughlin @physio_paul
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ISTH @isth
15K Followers 2K Following The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.
The Haemophilia Socie.. @HaemoSocUK_PI
2K Followers 475 Following Tweeting about and from the Infected Blood Inquiry into contaminated blood and blood products. The Haemophilia Society: [email protected]
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IrishHaemophiliaSoc @HaemophiliaIRL
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Michael Makris @ProfMakris
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WFH @wfhemophilia
7K Followers 163 Following The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
Brian O Mahony @Brianhemophilia
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Cathy Harrison 💙 @CathyAH1980
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Haemophilia Journal @haemophilia_jnl
1K Followers 311 Following The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeve
Clive Smith @Clive_Smith_
1K Followers 1K Following Chair of The Haemophilia Society•World Federation of Hemophilia youth chair•Criminal barrister•Lecturer•Triathlete•🇬🇧 AG Duathlete•Ironman x 4
EHC_Haemophilia @EHC_Haemophilia
3K Followers 406 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
Dr Kate Khair PhD @katekhair
1K Followers 856 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
EAHAD @EAHADnews
3K Followers 482 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
Paul McLaughlin @physio_paul
560 Followers 797 Following Post Doctoral Clinical Academic Specialist Physio-Haemophilia @royalfreenhs || #Pain #Haemophilia || All views my own! 🇮🇪🏳️🌈🏳️⚧️
ISTH @isth
15K Followers 2K Following The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.
The Haemophilia Socie.. @HaemoSocUK_PI
2K Followers 475 Following Tweeting about and from the Infected Blood Inquiry into contaminated blood and blood products. The Haemophilia Society: [email protected]
Diana Johnson DBE MP .. @DianaJohnsonMP
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Mark Antony Ward @Haemosexual
2K Followers 5K Following Haemosexual is a community based online support & information resource. Advocating for anyone LGBTQ+ with a bleeding disorder/impacted by contaminated blood 🩸
ASH @ASH_hematology
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haemnet @haemnet
1K Followers 362 Following Undertaking in-depth mixed methods research into the lived experience of people affected by bleeding disorders
Haemophilia NI @HaemophiliaNI
357 Followers 238 Following Haemophilia NI is a charity (NI charity number: NIC107635) based in Northern Ireland aiming to support local people and families affected by bleeding disorders
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George Parker @GeorgeWParker
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308 Followers 522 Following Mrs Mapsman to @mapsman, proud mum and Sister/Specialist Nurse in Bleeding Disorders Care. RCN NI Nurse of the Year ‘Team Manager’ 2023 Own opinions here.
MyHemophiliaTeam @HemophiliaTeam
1K Followers 613 Following We are the private social network for those living with #hemophilia and other #bleedingdisorders. Join our community of 3000 members!
Zara Head RN Queens N.. @zar_head
2K Followers 2K Following Queen's Nurse and Infection Prevention and Control Specialist Nurse, Passionate about Primary Care Nursing, IP&C, travel and languages Opinions my own
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WAPPS-Hemo @WAPPS_Hemo
322 Followers 197 Following Empowering hemophilia treatment through facilitating simplified PK assessment and enhancing knowledge about the value of popPK methodology in hemophilia care.
Journal of Haemophili.. @haemjournal
707 Followers 209 Following An open-access journal for sharing experience in the care of people with bleeding disorders. Enquiries: [email protected]
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Infected Blood Austra.. @InfectedBloodAu
1K Followers 606 Following Seeking justice for Australian victims of the Infected Blood Scandal
Hemophilia Centre Alu.. @HTCDH_Aluva
7 Followers 27 Following Comprehensive Govt Hemophilia Treatment centre
michael @michael56032051
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Lorna Latimer @lorna_latimer
285 Followers 165 Following Exercise Physiologist, University of Leicester
April Jones 💙 @AprilHaem
363 Followers 192 Following Nurse Specialist for Haemophilia and other non malignant Haematology. Newcastle Upon Tyne, UK. Making a difference in Haematology ... I hope!
MyPurplePatch 💙 @Patch1Purple
401 Followers 485 Following
DOLPHIN Haemophilia E.. @DolphinStudy
90 Followers 32 Following Using #physiotherapy and #exercise to improve #PhysicalActivity and health outcomes for young people with #haemophilia. Funded by @NIHRresearch. @HCPA11
Nick Warren @EchoNickWarren
467 Followers 195 Following Print production editor at the Exeter Express & Echo. Previously covered Exeter Chiefs and ran a lot before family life took over
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4K Followers 2K Following Disability lifestyle brand & social enterprise. Home to #ParallelWindsor, the UK's national celebration of disability inclusion & the #PurpleSockDay campaign
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783 Followers 140 Following The official Twitter account for The Orchard Primary School - Watford.
Anne Penn @anne_penn
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Unclottable @UnclottableUK
236 Followers 179 Following Unclottable! Ambassador for The Haemophilia Society. Trying to provide a voice for all bleeders!
Dan Farthing @dan_farthing
315 Followers 592 Following Former @HaemophiliaScot CEO. Hat tip to @edinsketcher for my background illustration. He/Him
Leeds Hospitals Chari.. @LDShospcharity
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Leeds Children's Hosp.. @Leeds_Childrens
6K Followers 904 Following Leading the way in healthcare for children, young people and their families. Proud to be part of @LeedsHospitals. Supported by @LdsHospCharity
Asociación de Hemofi.. @DeHemofilicos
21 Followers 41 Following La ASOHEMO promueve políticas públicas dirigidas al tratamiento de la Hemofilia en Py. Entidad sin fines de lucro comprometido con la calidad de vida.
Nina Cecconi @PhysioAnin
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Layers Studio @LayersStudio
587 Followers 807 Following Digital studio Design valuable experiences From discovery to development Helping businesses worldwide Branding | Websites| E-commerce| Apps| Software
HaemophAmicus @HaemophAmicus
1K Followers 5K Following Haemophilia and Allied Disorders Slovenia/Europe 🇸🇮➡️🇪🇺➡️🌎
Martin Threadgold @FredgoldMartin
7K Followers 5K Following Retired Barber Yorkshire CCC member and Leeds United Season Ticket Holder. I have a fantastic wife a fantastic life 🐻❄️
Bleeding Yorkshire @BleedYorkshire
85 Followers 99 Following The Yorkshire chapter of The Haemophilia Society. Supporting all those with bleeding disorders in the Yorkshrie region.
Little Bleeders @littlebleeders
697 Followers 173 Following Feel free to contact us for advice with regard to growing up or living with Haemophilia. LB was founded by professional cyclist @alexdowsettHappy #WorldHaemophiliaDay Marked on 17th April, which was the birthday of Frank Schnabel, founder of the @wfhemophilia Off into London for a board meeting of @HaemoSocUK Much to discuss! #Haemophilia #Hemophilia #BleedingDisorders
EHC announces a leadership change: Olivia Romero Lux to become the new EHC CEO. With gratitude for his contributions, Luis Teixeira will step down as CEO on May 14. Read more: ehc.eu/ehc-announces-…
The third & final installment of a 3 part series of professional development videos from the @EAHADnews @isth @wfhemophilia #nurses committees is now available 'how to deliver a successful oral presentation. #WFHCongress2024 #ISTH2024 academy.isth.org/isth/2022/nurs…
#DidYouKnow: Women and girls with #hemophilia can experience bleeding symptoms, challenging previous beliefs that only men were affected. Join us on #WHD2024 as we advocate for equitable access to care. Explore more about #BleedingDisorders here: bit.ly/3v07r2V 🚺🩸
Congratulations @katekhair, well deserved for your tireless support of the bleeding disorders community globally & for the progression of haemophilia nursing & the MDT. I was sorry to miss your presentation #EAHAD2024
Congratulations to Dr Kate Khair for her #EAHAD2024 lifetime achievement award. Well deserved.
First, the government asked Sir Robert Francis KC to undertake a compensation study. Second, Sir Brian Langstaff TOLD the government to get the body up and running by end of 2023. NOW the government has asked an expert panel for help… How many more times will they delay?
'It is not clear whether the government's expert panel on compensation will help move forward the long-overdue compensation process or be another obstacle to achieving it.' A statement from the Haemophilia Society on today's appointment of Professor Sir Jonathan Montgomery.
EHC VWD Committee members about European VWD Awareness Day! Join us to raise global awareness! #VWDunited #beVWDaware #VWDtogethere
Today is the perfect day to talk about why and how #VWD differs from #haemophilia! We are starting in a couple of hours! Join us TODAY at 5:30 pm CET for the launch of the EHC & @ERNEuroBloodNet educational programme on VWD. Register here: eurobloodnet.eu/education-2/pa…
European Von Willebrand Disease Awareness Day! Today, on the birthday of Erik Adolf von Willebrand, we are thrilled to unveil the European VWD identity and our slogan “Making the Invisible Visible”! Join us to raise global awareness about VWD and break its stigmas!
🚨Over 100 Parliamentarians have called for the Government to show the same urgency on infected blood compensation as they now have on the Post Office Horizon scandal. 📢This is a cross-party call for urgent action to right this historic injustice. 👉dianajohnson.co.uk/content/infect….
It’s all kicking off in Greenwich 🙀
@HaemoSocUK Not finished yet! Some more donations coming in the next few days
@MarathonSwims @HaemoSocUK @newyorkac @AquaticsCentre @HurlinghamVenue @fixevents And thats it! 12 events done. It's been an incredible experience. I truly appreciate all the support from friends and family throughout it all, nearly doubling my fundraising target too. Thank you. Looking forward to the Christmas break - next stop @LondonMarathon @HaemoSocUK
“It’s time the government stopped kicking the can down the road and carried out the recommendations of Sir Brian Langstaff’s report.” Read more here ⤵️ southwalesargus.co.uk/news/24001243.… @Factor8Campaign @bloodinquiry @CampaignTB
This is very important in terms of justice for those harmed - I have heard from those harmed by pelvic mesh and sodium valproate and they all deserve redress
There will be so many feeling overwhelming joy and relief this morning. Last night’s vote comes off the back of decades of determined campaigning and an unwillingness to back down and settle for anything less than true justice. bbc.co.uk/news/uk-politi…
The Campaigners are the stars that keep the injustice on the Government's agenda - without them we are lost THANK YOU @CampaignTB @HaemoSocUK and THANKS to all those involved in the @bloodinquiry who elevated our evidence so thoughtfully throughout. @UKHouseofLords @johnpringdns
There will be so many feeling overwhelming joy and relief this morning. Last night’s vote comes off the back of decades of determined campaigning and an unwillingness to back down and settle for anything less than true justice. bbc.co.uk/news/uk-politi…
The government will be forced to create a body to administer billions of pounds in compensation to victims of the contaminated blood scandal after being defeated in the Commons ⬇️ thetimes.co.uk/article/new-bo…
This is very welcome news for the UK haemophilia community. My thoughts and good wishes are with you tonight @HaemoSocUK bbc.com/news/uk-politi…
Despite the Government whipping Tory MPs to vote against my amendment, we won the Commons vote to 246 votes to 242 tonight. #victory
"This is being reported as a defeat for government, but actually this should be seen as a victory for parliamentary democracy." Haemophilia Society Chairman Clive Smith describes the atmosphere in the Commons, as the 'historic' vote for infected blood victims passes. #R4Today
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