Search results for #1in17
I support undiagnosed children’s day. #RareAware #UCD2024 #1In17
I support undiagnosed children’s day. #RareAware #UCD2024 #1In17 https://t.co/kUY1Kpxv7Y
SWAN UK (Syndromes Without A Name)📷 Help us reach more families this Undiagnosed Children's Day by sharing this post! #share #rareaware #1in17
SWAN UK (Syndromes Without A Name)📷 Help us reach more families this Undiagnosed Children's Day by sharing this post! #share #rareaware #1in17
Individually rare collectively common #RareDiseases #1in17
Individually rare collectively common #RareDiseases #1in17
What a day. 🤯 Loved contributing to the next national strategy for rare diseases via the patient forum. Met people living with rare diseases, parents (🖐), carers, advocacy groups, & government employees. Eye opening! #RareDiseases #1in17
From #ICIC2024 Belfast to @roinnslainte in Dublin. Still focused on #IntegratedCare in the area of (individually rare collectively common) #RareDiseases #1in17 #BackAtTheRanchStuff
#1in17 people has a #raredisease which means that they are individually rare but collectively common. Helping spread the word are #IAmNumber17 changemakers from across Ireland, each with their unique experience to share. iamnumber17.ie
@DenisNaughten This particular geneticist (one of our finest) has repeatedly said over decades that our Irish genetic service is the 'Cinderella' of them all. I'm sure she would wholeheartedly agree with you. Individually rare collectively common #RareDiseases #1in17
@DenisNaughten This particular geneticist (one of our finest) has repeatedly said over decades that our Irish genetic service is the 'Cinderella' of them all. I'm sure she would wholeheartedly agree with you. Individually rare collectively common #RareDiseases #1in17
#RareDiseases Individually rare collectively common affecting #1in17 people. #GetRareAware @RareDiseasesIE
#RareDiseases Individually rare collectively common affecting #1in17 people. #GetRareAware @RareDiseasesIE
I am Number 17 is a campaign to raise the voices of those living with a rare disease, brought to you by Takeda Products Ireland Ltd, Rare Diseases Ireland and Rare Ireland, and has the support of 16 patient organisations. #RareDiseases #1in17 iamnumber17.ie
#1in17 people has a #RareDisease Individually rare, collectively common
#1in17 people has a #RareDisease Individually rare, collectively common
Individually rare collectively common #RareDiseases #1in17 #GetRareAware
Individually rare collectively common #RareDiseases #1in17 #GetRareAware
A more pertinent fact is that rare diseases collectively are very common with #1in17 of our population affected. RDs number in their thousands, the heel prick tests for a very tiny amount making the #DiagnosticOdyssey very real for those thousands. hse.ie/eng/services/l…
A more pertinent fact is that rare diseases collectively are very common with #1in17 of our population affected. RDs number in their thousands, the heel prick tests for a very tiny amount making the #DiagnosticOdyssey very real for those thousands. hse.ie/eng/services/l…
#1in17 people have a #RareDisease Individually rare, collectively common #GetRareAware
#1in17 people have a #RareDisease Individually rare, collectively common #GetRareAware
Indvidually rare collectively common #RareDiseases #1in17 people have a rare disease #GetRareAware
Indvidually rare collectively common #RareDiseases #1in17 people have a rare disease #GetRareAware
Check out our latest Newsletter!! mailchi.mp/8f138f6b26da/n… #pleaseshare #rareware #1in17
Mayors reception March Wednesday 27th from 12noon to attend please register via email: [email protected] #rareaware #1in17
@NMBI_ie #1in17 people have a rare condition. Individually rare collectively common #RareDiseases are a significant cause of physical intellectual & sensory disabilities. Symptoms are often very common indeed. Absence of NB screening? nurse knowledge is crucial. iamnumber17.ie
GF Awareness @1in17
129 Followers 255 Following 18 million Americans have a gluten sensitivity: that's 1in17! Follow me for GF updates, news, recipes, and more!
NYCHA @NYCHA
37K Followers 1K Following NYCHA is home to 1 in 17 New Yorkers, providing affordable housing to 528,105 authorized residents. Account not monitored 24/7. Contact us at 718-707-7771.