EHC_Haemophilia @EHC_Haemophilia
The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe. linktr.ee/ehc_haemophilia Brussels, Belgium Joined April 2017-
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⌛️Last days to register for #WFHCongress2024 in Madrid: if you represent a #EHC NMO, you’ll get the chance to participate in all our special activities! More info here: tinyurl.com/mrxzd337 Join us in the finest worldwide gathering of the #BleedingDisorders community!
Last days to register for #WFHCongress2024 in Madrid: join us in experiencing worldclass #BleedingDisorders research and advocacy! If you represent a #EHC NMO, at our booth you’ll get the chance to register for our special lottery! More info here: tinyurl.com/mrxzd337
Patient #Education has always been at the heart of the #EHC work. To make it more inclusive & user-friendly, we have created the #EHCAcademy, a comprehensive educational platform for our members. Join us as we take a decisive step forward, together: academy.ehc.eu
🩸Today we mark World Haemophilia Day! In 2024, we focus on #Education: scaling up the knowledge to empower the rare #BleedingDisorders community worldwide. Join us to discover our new educational initiative: #EHCacademy goes live today! #WHD2024 @CratoMiguel
One day to go to World Hemophilia Day! In 2024, we focus on education: Scaling up the knowledge to empower the bleeding disorders community! Stay tuned for tomorrow's campaign! #EnlightenToEmpower #EHCacademy #WHD2024 #bleedingdisorders #VWD #haemophilia #extremelyrare
1 week left in our #thisway challenge! From meditation to intense gym sessions, our community is showing incredible dedication to their physical & mental health. We're so proud of the effort everyone has put in! You're inspiring us all with your commitment and determination.💪
Calling all NMOs! 📣Don't miss out on our *special* Leadership Conference & EGA from 6-9 June! Get ready for an exciting programme featuring EHC updates, community debates, panel discussions, workshops, poster presentations, and networking opportunities👉ehc.eu/events/ehc-lea…
🗓️Join us at our #WFHCongress2024 booth in Madrid from 21 to 24 April! If you represent a #EHC National Member Organisation (#NMO), you’ll get the chance to: 📌 Register for our special NMO Lottery 📌Attend our special EHC session More info here: tinyurl.com/mrxzd337
Interested in advocating for #inclusivity and #empowerment within the #bleedingdisorders community? Here's your opportunity to make a meaningful impact! We are seeking 3 volunteers to join the WBD Committee for the current term. Call for applications 👉ehc.eu/ehc-is-looking…
Our #thisway challenge is in full swing, and we're thrilled to see our participants diving headfirst into their #health journey. Keep up the fantastic work, everyone - your commitment and determination are lighting the way for a healthier, happier #bleedingdisorder community!
That’s a wrap for our #EHCYouthLeadership Workshop 2024! 🫂We thank all our participants for joining us on this exceptional weekend full of learning and sharing. Our wish is for them to bring the knowledge back to their NMOs, and keep in touch. #YLW2024
🤝Our #EHCYouthLeadership Workshop 2024 kicked off: it’s so inspiring to meet face-to-face so many young volunteers in Brussels this weekend! This 10th edition gathers representatives from more than 12 #EHC National Member Organisations. #YLW2024 #Haemophilia
🗓️From 21 to 24 April you will find us at the #WFHCongress2024 in Madrid: join us in the most comprehensive international event on #BleedingDisorders to connect face-to-face and gain insights on the #EHC work! 📌 More info & registration: tinyurl.com/mrxzd337
Join us tonight for this insightful discussion! #VWDunited #beVWDaware #VWDtogethere
Join us tonight for this insightful discussion! #VWDunited #beVWDaware #VWDtogethere
Happening tomorrow! Register for this webinar! VWD symptoms vs VWD Types - we will discuss this with a duo of speakers Prof Riitta Lassila, a clinician, and Hannah Yarnal, a patient! #VWDunited #VWDtogethere #beVWDaware @ERNEuroBloodNet Register here: eurobloodnet.eu/education-2/pa…
📢Registration for the #EHC2024 Conference is now open! 🤝Don’t miss our high-level event dedicated to growing community & exchanging knowledge to improve the lives of people with bleeding disorders across Europe! More info here: tinyurl.com/EHC2024
Just one week to go to our next discussion. This time, we will discuss #vonWillebrandDisease types, phenotypes, tools, and many more! To know more and register: ehc.eu/european-von-w… #VWDunited #VWDtogethere #beVWDaware
Just one week to go to our next discussion. This time, we will discuss #vonWillebrandDisease types, phenotypes, tools, and many more! To know more and register: ehc.eu/european-von-w… #VWDunited #VWDtogethere #beVWDaware
Michael Makris @ProfMakris
14K Followers 1K Following Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
Brian O Mahony @Brianhemophilia
3K Followers 516 Following CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.
WFH @wfhemophilia
7K Followers 163 Following The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
flora peyvandi @flora_peyvandi
2K Followers 411 Following Professor of Internal Medicine- Hemostasis and Thrombosis Unit, University of Milan-Italy.
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee vice chair. Mum, wife, daughter, sister, baker, gardener, artist, forever learning. Opinions are my own.
Shematologist, MD @acweyand
84K Followers 6K Following Peds hematologist oncologist,mother, dreamer, pacifist, justice seeker.Clueless Mother https://t.co/HblMm3s8OM Cream Influencer #CakeForBreakfast https://t.co/4SLDqCFsMq
ISTH @isth
15K Followers 2K Following The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.
Haemophilia Society @HaemoSocUK
5K Followers 729 Following We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
Haemophilia Journal @haemophilia_jnl
1K Followers 311 Following The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeve
Dr Kate Khair PhD @katekhair
1K Followers 856 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
EAHAD @EAHADnews
3K Followers 482 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
Paul McLaughlin @physio_paul
560 Followers 797 Following Post Doctoral Clinical Academic Specialist Physio-Haemophilia @royalfreenhs || #Pain #Haemophilia || All views my own! 🇮🇪🏳️🌈🏳️⚧️
IrishHaemophiliaSoc @HaemophiliaIRL
1K Followers 298 Following The Irish Haemophilia Society is a charity representing people living with haemophilia, von Willebrands and other inherited bleeding disorders
Clive Smith @Clive_Smith_
1K Followers 1K Following Chair of The Haemophilia Society•World Federation of Hemophilia youth chair•Criminal barrister•Lecturer•Triathlete•🇬🇧 AG Duathlete•Ironman x 4
RPTH @RPTHjournal
11K Followers 6K Following Research and Practice in Thrombosis and Haemostasis (#RPTH). #OpenAccess journal of @ISTH. EiC @ProfMakris. Impact Factor 4.6
National Bleeding Dis.. @nbd_foundation
7K Followers 1K Following Dedicated to finding better treatments/cures for inheritable blood/bleeding disorders & preventing complications via education, advocacy, research. #WeAreNBDF
Laurence Woollard @TheWoollard
1K Followers 644 Following Director @PulseInSync | Stalwart advocate for informed patient choice | MSc candidate in Health Policy @imperialcollege | 📧[email protected]
Zapatos Ocre @OcreBCN
39 Followers 152 Following Últimas tendencias multimarca en zapatos de mujer de calidad, cómodos y urbanos. OcreBCN, Fashion Shoes
ARYAN® @gladeolie
2K Followers 3K Following Dynamic fusion of Science and Philosophy. #geek #technosavvy #geopolitics #nature #health #astrophyscics #blogger #ONCOLOGY Retweet is not an endorsement.®©
Pedro Carrascal @pcarrascal
2K Followers 2K Following Patient advocacy / Director de la Plataforma de Organizaciones de Pacientes (POP)
Maria Russo @MariaRu4999652
0 Followers 19 Following
GAVRILOV YURIY @Urus_niko
34 Followers 294 Following
Tekin Güney @TekinGuney52
6 Followers 41 Following Prof.Dr., #SağlıkBilimleriÜniversitesi, #AnkaraBilkentŞehirHastanesi Hematoloji, #Ordu Ahmet Tuna, Mehmet Mert 🦁 Kanama 🩸 Tromboz, #Hemofili #hemophilia
BOJJA REDDIKUMAR @reddikumardevar
0 Followers 19 Following
Maritza @Maritza97661701
1 Followers 22 Following
Arabella_ @Arabella298376
1 Followers 698 Following
Actualidad @DunaAbril
1 Followers 417 Following
JARDIN_Joint-Action @jardin_EU_JA
84 Followers 122 Following JARDIN is created to improve the accessibility of the ERNs for people living with rare diseases or complex conditions in EU member states.
HF Healthcare @hfhealthcare
906 Followers 372 Following HF Healthcare is a national home care and specialty pharmacy that specializes in Hemophilia and other bleeding disorder treatment.
Bj_N5231 @BN523195338
14 Followers 836 Following
Mike Elhardt @EndlssQuest
585 Followers 2K Following Blood Disorders Health Advocate #Hemophilia, #HIV #AIDS & #HepC #Isles #GIJoe #NYJets #Yankees #WWE #StarWars #Marvel #Comics #ActionFigures #photography
مەردان پەرھ.. @MPalihati
190 Followers 2K Following Research Scholar @ClevelandClinic | MD @FudanUni | Vascular, Thrombosis and Hemostasis Research 🧫 | Uyghur Culture Enthusiast | Views Are My Own
Camilla Lombardi @alleemac_
173 Followers 1K Following Postgraduate in Mass Media and Politics | Communication & Project Officer at @ehc_haemophilia | Hopeless wanderer | She/her
Neel Patel @Neel_Patel1
21 Followers 201 Following MBBS, DNB Medicine, DrNB Clinical Hematology (Hemato-oncologist and Bone marrow transplant Physician)
Siddhant Jani @Siddhant_Jani_
9 Followers 407 Following
Paula Adams @p77adams
115 Followers 323 Following
Simon Walsh @SimonWalsh31486
29 Followers 42 Following
art.made.for.children @art_made_4_kids
11 Followers 25 Following The art.made.for.children project was born of the desire to share the love of art in order to help vulnerable children around the world.
Bhavani P @p_bhavani3936
8 Followers 131 Following Student of Blood science#❤️Hematology, MD Medicine#Clinician on board!
Charlotte Roffiaen @EU4Ublog
884 Followers 951 Following EU expert, patient advocate and Founding Partner of EU4U. I tweet on a range of issues of interest to European NGOs and citizens, whith a major focus on health.
Angela Styhler @AngelaStyhler
4 Followers 47 Following Angela offers medical and science writing services: taking the words of science and putting science into words.
pritpal singh @pritpal1979
3 Followers 82 Following
Nour Abdallah-Khodja @nour_ak36
4 Followers 111 Following
CHS-SCH @CHShemophilia
477 Followers 81 Following A world free from the pain and suffering of #BleedingDisorders. / Éradiquer la souffrance et la douleur causées par les #TroublesdeCoagulation.
Ruby @Ruby1173661
0 Followers 22 Following
EDiHTA EU Horizon Eur.. @EDiHTA_EU
53 Followers 62 Following The first European #DigitalHealth Technology Assessment framework co-created by all stakeholders along the value chain (GA: 101136424) #HTA
Sharon @sharonleeann26
3 Followers 31 Following
Claudia Isabel Cuervo.. @Claudia28145513
3 Followers 63 Following
Anum J. @AnumJ1258532
5 Followers 29 Following
Stephanie. Lasister @KC8890302
0 Followers 15 Following
Sammaiah Pinnapurala @SammaiahPi38703
0 Followers 9 Following
Aisling Busher @aislingbusher
530 Followers 2K Following Haematology Registrar interested in paediatric haematology🩸🔬Yellow belly with a soft spot for the pale | Avid runner and cyclist🏃♀️
Gaurav Lalwani @egoru_261
92 Followers 363 Following MBBS (TNMC, Mumbai) MD Medicine (GMC, Nagpur) DrNB resident in Clinical Hematology @BLK MAX
Teacher @Teacherchem19
3 Followers 34 Following I am a Hemophilia, struggling with bleeding disorder.
Michael Makris @ProfMakris
14K Followers 1K Following Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
Brian O Mahony @Brianhemophilia
3K Followers 516 Following CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.
WFH @wfhemophilia
7K Followers 163 Following The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
flora peyvandi @flora_peyvandi
2K Followers 411 Following Professor of Internal Medicine- Hemostasis and Thrombosis Unit, University of Milan-Italy.
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee vice chair. Mum, wife, daughter, sister, baker, gardener, artist, forever learning. Opinions are my own.
Shematologist, MD @acweyand
84K Followers 6K Following Peds hematologist oncologist,mother, dreamer, pacifist, justice seeker.Clueless Mother https://t.co/HblMm3s8OM Cream Influencer #CakeForBreakfast https://t.co/4SLDqCFsMq
ISTH @isth
15K Followers 2K Following The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.
Haemophilia Society @HaemoSocUK
5K Followers 729 Following We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
Haemophilia Journal @haemophilia_jnl
1K Followers 311 Following The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeve
Dr Kate Khair PhD @katekhair
1K Followers 856 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
EAHAD @EAHADnews
3K Followers 482 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
Paul McLaughlin @physio_paul
560 Followers 797 Following Post Doctoral Clinical Academic Specialist Physio-Haemophilia @royalfreenhs || #Pain #Haemophilia || All views my own! 🇮🇪🏳️🌈🏳️⚧️
IrishHaemophiliaSoc @HaemophiliaIRL
1K Followers 298 Following The Irish Haemophilia Society is a charity representing people living with haemophilia, von Willebrands and other inherited bleeding disorders
Clive Smith @Clive_Smith_
1K Followers 1K Following Chair of The Haemophilia Society•World Federation of Hemophilia youth chair•Criminal barrister•Lecturer•Triathlete•🇬🇧 AG Duathlete•Ironman x 4
RPTH @RPTHjournal
11K Followers 6K Following Research and Practice in Thrombosis and Haemostasis (#RPTH). #OpenAccess journal of @ISTH. EiC @ProfMakris. Impact Factor 4.6
National Bleeding Dis.. @nbd_foundation
7K Followers 1K Following Dedicated to finding better treatments/cures for inheritable blood/bleeding disorders & preventing complications via education, advocacy, research. #WeAreNBDF
Laurence Woollard @TheWoollard
1K Followers 644 Following Director @PulseInSync | Stalwart advocate for informed patient choice | MSc candidate in Health Policy @imperialcollege | 📧[email protected]
Enrico Ferri Grazzi @Enrico_FG
66 Followers 107 Following Health economist, haemophilia patient advocate & cooking enthusiast - in no particular order.
CCBD_VH Research Grou.. @CCBD_VHResearch
118 Followers 213 Following Our research group is focused on finding new therapeutic targets and biomarkers for paediatric tumours, leukemias and hematological disorders.
Maria Rodríguez Sán.. @Maria_RodriSan
40 Followers 92 Following Project manager at @ERNEuroBloodNet, the European Reference Network in Rare Hematological Diseases 🩸
Mar Mañú Pereira @mmanupe
339 Followers 731 Following Rare anaemia disorders Research Lab Vall d'Hebron Research Institute @vhir ERN-EuroBloodNet Scientific Director @ERNEuroBloodNet @vallhebron
Mariangela Pellegrini @MariangelaPell4
265 Followers 393 Following Educational & Patients Program manager for the @ERNEuroBloodNet, the European Reference Network on Rare Hematological Diseases
riitta lassila @riitta_lassila
44 Followers 104 Following
EU Council Press @EUCouncilPress
452K Followers 2K Following Latest news from the European Council & the Council of the EU: 27 EU governments working together. Audiovisual material: @EUCouncilTVNews. #EUCO
HaDEA @EU_HaDEA
9K Followers 2K Following @EU_Commission's Executive Agency implementing the EU funding programmes for health, food safety, digital, industry and space. RT ≠ endorsement.
EESC PRESS @EESC_PRESS
7K Followers 4K Following 📰 News and stories from @EU_EESC - the EU body representing organised #EUcivilsociety 📧 [email protected]
FDI World Dental Fede.. @fdiworlddental
22K Followers 374 Following FDI World Dental Federation serves as the principal representative body for more than one million dentists worldwide.
Oral Health Platform @EUOralHealth
2K Followers 750 Following The mission of the Platform is to improve oral health and enhance cost-effective prevention of oral diseases in Europe.
EASL Education @EASLedu
13K Followers 757 Following @EASLedu brings you the latest on #liver research & education. Visit #EASLCampus ----------------- EASL does not express any political opinion. RT ≠ endorsement
Ana Boban @anaboban_
48 Followers 41 Following
Shinoh Lee @shinoh_lee
13 Followers 5 Following
Made WITH Patients @PFMDwithPatient
3K Followers 2K Following We partner WITH patients to develop new solutions and co-create methods for them to achieve their health goals. #MadeWithPatients #PatientEngagement
DataSavesLives @DataSaves_Lives
3K Followers 485 Following A Europe where trustworthy data sharing supports health & scientific research to meet the needs of patients. We support the #datasaveslives movement! Find us ⤵️
Ferring Pharmaceutica.. @ferring
3K Followers 863 Following Building families and helping people live better lives. • Guidelines: https://t.co/5aDAoDVBwA
Deirdre Clune @DeirdreCluneMEP
8K Followers 1K Following Member of the European Parliament for Ireland South 🇮🇪🇪🇺 | @FineGael & @EPPGroup | Public representative, engineer, mother and wife |
EASL Advocacy @EASLEUAffairs
1K Followers 514 Following All things liver, advocacy and EU public health related. Retweets not an endorsement
World Liver Day @WorldLiverDay
554 Followers 1K Following World Liver Day is a joint awareness campaign of global associations for the study of the liver. RT ≠ endorsement. We express no political views.
Hemostasis and Thromb.. @HTRStoday
1K Followers 196 Following Supporting research, mentoring, workforce development, and education for those interested in advancing care for people with hemostatic and thrombotic disorders.
British Society for H.. @BritSocHaemThro
1K Followers 412 Following The BSHT is the main Academic Thrombosis & Haemostasis Society in the United Kingdom with over 300 members.
EU Research Results @CORDIS_EU
50K Followers 6K Following 🇪🇺 News & information on #EUFunded #EUResearch projects @EU_Commission 👩🔬🔬👨🔬 | 🎧 Listen to our podcast #CORDIScovery 👉 https://t.co/U1KsbwEQQZ
SANT Committee Press @EP_PublicHealth
2K Followers 959 Following European Parliament Subcommittee on Public Health. Managed by Dana Popp. RTs ≠ endorsements.
Ben Samelson-Jones, M.. @DrSamelsonJones
1K Followers 2K Following Pediatric Hematologist @childrensphila | Gene Therapist | Husband | 👩👦👧👶 🐕 Dad | #WilliamsSyndrome advocate | Views my own
European Union in the.. @EUintheUS
60K Followers 2K Following We represent the European Union in the United States. 🇪🇺🇺🇸 For more, follow @EUAmbUS, @MichaelCurtisEU, and @EUinSF.
Global Hemophilia Rep.. @GlobalHemReport
120 Followers 111 Following PODCAST // A monthly audio journey thru the science and discoveries driving hemophilia research. Sr. Advisor: Dr. Donna DiMichele.
Ben Meer @SystemSunday
364K Followers 146 Following The Systems Guy • Follow me for systems on health, wealth, & free time ⚡ Cornell MBA • 2M+ audience
Jelena Malinina @jemalinina
289 Followers 496 Following Data Director @Eurordis. All views are my own.
Anca Toma @Anca4health
632 Followers 534 Following ED at @eupatientsforum. Mother, #publichealth geek caring about equity, solidarity, prevention, science. Tweets own views, retweets food for thought.
Omid Seidizadeh @OmidSeidi
407 Followers 507 Following PhD Candidate at University of Milan, Researcher in thrombosis and hemostasis, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, genetics, VWF, VWD
Joshua Muia @joshuamuia
1K Followers 1K Following Assistant Professor @OSUMedicine; Research Interests in Metalloproteases, Thrombosis and Hemostasis, Optimized #ADAMTS13 assays, #TTP
Prof Neil Morgan 💙 @neilvmorgan
1K Followers 923 Following Professor of Cardiovascular Genetics @unibirmingham | Platelet Genetics & Bleeding disorders | @FrontCVMedicine Speciality Chief Editor | Proud Dance Dad
PPTAEurope @PPTAEurope
475 Followers 201 Following The European division of @plasmaproteins, where we engage with policymakers & patients in 🇪🇺, to advocate for patient access to #plasma-derived therapies.
European Health Union.. @EHUInitiative
1K Followers 193 Following By adopting a people-centred, all of policy, all of society approach the EHU Initiative seeks to push for more EU in health – and more health in the EU.
COR2ED @COR2EDMedEd
675 Followers 276 Following COR2ED develops and implements high quality Independent Medical Education programmes to help improve the health of patients globally. #COR2ED #MedEd #IME
EuroHealth @EIWH
906 Followers 366 Following European Institute of Women’s Health (EIWH)—setting the agenda in women's health since 1996. Reg: 234045010359-36 Charitable No.: 12184
FionaRobinsonPhD @FRobinsonPhD
153 Followers 267 Following Consultant, medical writing and editing. Passionate about empowerment through knowledge.
Blood Advances @BloodAdvances
32K Followers 138 Following Blood Advances, a digital open-access journal from the American Society of Hematology, @ASH_hematology
Dr Mozah AlMarshoodi @MozahDr
289 Followers 274 Following Internal Medicine Consultant . Consultative Hematology UofT . UAE 🇦🇪❤️ Life Long learner .
Aizat @Aizat_tutor
4 Followers 25 Following Hemophilia mama, bleeding disorder awareness in Kyrgyz land, volunteer, interpreter, tutor, coffee community member.
MHEMO @FiliereMHEMO
446 Followers 61 Following Créée en 2014 et pilotée par le Ministère des Solidarités et de la Santé, la filière de santé MHEMO est dédiée aux maladies hémorragiques constitutionnelles
David @DStephensen68
293 Followers 206 Following Professor Applied Clinical Research, Physiotherapist, NIHR Clinical Lecturer. All opinions my own
caterina casari @caterinacasari
1K Followers 1K Following Researcher at @InsermU1176 ❤️science, sharing #VWF & #VWD Previously @UniFerrara @UNC Supporting #ISTHEarlyCareer
Maria Van Kerkhove @mvankerkhove
119K Followers 597 Following Infectious Disease Epidemiologist; COVID-19 Technical Lead, Director ai Epidemic & Pandemic Preparedness & Prevention, WHO, WHE, Mom of 2. Opinions my own
Estamos a 10 días del #WFHCongress2024 o #CongresoFMH2024 ¿Has visto las charlas que os espera? Os dejamos de un vistazo el horario de todo el Congreso @wfhemophilia No pierdas la oportunidad de unirte a esta experiencia acortar.link/EnK1HZ
Looking forward to seeing you! ¡ Estamos deseando veros !
🗓️Join us at our #WFHCongress2024 booth in Madrid from 21 to 24 April! If you represent a #EHC National Member Organisation (#NMO), you’ll get the chance to: 📌 Register for our special NMO Lottery 📌Attend our special EHC session More info here: tinyurl.com/mrxzd337
@EHC_Haemophilia Have an amazing time. Miss these so much.
@EHC_Haemophilia @fedhemo @wfhemophilia I look forward to seeing you in Madrid
📢3rd session of the @ERNEuroBloodNet #TopicOnFocus on #VWD organized with @EHC_Haemophilia for patients' organizations and health professionals will be held next week! Opened registry: eurobloodnet.eu/education-2/pa… #ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure #haematology
Excited to announce the 3rd session of @ERNEuroBloodNet's #TopicOnFocus on #VWD, in #collaboration with @EHC_Haemophilia, connecting #patients' organizations and #health professionals! Don't #miss out next #week! #Registry now open here: eurobloodnet.eu/education-2/pa… #ERNeu #ERNs
📢3rd session of the @ERNEuroBloodNet #TopicOnFocus on #VWD organized with @EHC_Haemophilia for patients' organizations and health professionals will be held next week! Opened registry: eurobloodnet.eu/education-2/pa… #ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure #haematology
#WorldOralHealthDay atgādinām par labu mutes veselību - arī hemofilija.lv ir sadaļa par mutes higiēnu un video par pareizu zobu tīrīšanu 🦷
🪥On #WorldOralHealthDay, we remind our community that good oral hygiene can help to avoid the risk of invasive dental procedures, too often leading to serious bleeding complications in the mouth. Check our resources out: tinyurl.com/pve8wsyp #WOHD24 #BleedingDisorders
Rendez-vous ce soir à 17h pour la session "Genetics of VWD " du programme @ERNEuroBloodNet Focus on Von Willebrand Disease for patient organizations and healthcare professionals par le Pr. Frank Leebeek et Jo Traunter ! Inscription gratuite sur urlz.fr/pqI3
📢2ª sesión de la @ERNEuroBloodNet #TopicOnFocus sobre #VWD organizada con @EHC_Haemophilia para organizaciones de pacientes y profesionales de la salud ¡tendrá lugar la próxima semana! Inscripción: eurobloodnet.eu/education-2/pa... #ERNeu #ERNs #HealthUnion #EU4Health #haematology
📢2nd session of the @ERNEuroBloodNet #TopicOnFocus on #VWD organized with @EHC_Haemophilia for patients' organizations and health professionals will be held next week! Opened registry: eurobloodnet.eu/education-2/pa… #ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure #haematology
🌍✨ #RareDiseaseDay momentum continues! It's not too late to drive change. Watch our Chief Executive, @yann_eurordis, as he inspires our community to spring into action. Your support can make a world of difference! Learn more at rarediseaseday.org
Today is Rare Disease Day! Join us in raising awareness about Haemophilia, Von Willebrand Disorder, and all related bleeding disorders. Let's come together to spread knowledge and support. #RareDiseaseDay #BleedingDisordersAwareness
A specialist nurse for over 20 years reflects on her experience of finding ways to deliver effective care for a young girl with a very rare clotting disorder. Read the full article in the Journal of Haemophilia Practice. #RareDiseaseDay2024 sciendo.com/article/10.247…
. @EAHADnews President Dr Robert Klamroth with @EHC_Haemophilia steering committee member Olivia Romero Lux representing @CratoMiguel after signing the new EAHAD-EHC MoU. Together we're stronger.
Thank you to our allied health professionals for making #EAHAD2024's #AHPDay a great success! Your dedication and scientific breakthroughs are shaping the landscape of #haemophilia and allied disorders, inspiring progress in the field.
Segundo día @fedhemo en #EAHAD2024 recibiendo mucha información,recogiendo interés y expectativas para #WFHCongress2024 @wfhemophilia os esperamos a todxs en #Madrid
Great attendance at the first multidisciplinary session on the Wednesday morning at #eahad2024. This is always one of the most popular sessions at the eahad meetings and reflects the reality that delivery of haemophilia care is multidisciplinary. #hemophilia
#DidYouKnow: von Willebrand disease is reported in 5-24% of women with heavy menstrual bleeding? Learn more about women and girls with #BleedingDisorders at our #InternationalWomensDay webinar! Register now: bit.ly/3w3VsS7
It is our job to provide the knowledge & potential risks and benefits for patients to make their most informed decision. However, people are still entitled to their own decisions and may take one you do not agree with. How would you navigate that scenario? #EAHAD2024 #haemophilia
Interesting approach to reduce anxiety relating to iv injections. I will be looking forward to the results especially if expanded to a larger RCT. #eahad2024
Wonderful start to the #EAHAD2024 Congress yesterday at the Allied Health Professionals Day 👏 Fantastic interdisciplinary joint session and physiotherapy presentations @HCPA11!
Hello from @HCPA11 members attending #EAHAD2024 👋🏼👋🏼
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