WFH @wfhemophilia
The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world. wfh.org Joined November 2009-
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Thanks to donated treatment via the WFH Humanitarian Aid program, people with #BleedingDisorders in #Cambodia can now pursue jobs and live their lives free from the fear of bleeds and urgent medical care. Learn more: bit.ly/3UnJCMa 💼🌟
What a remarkable gathering! #WFHCongress2024 brought together over 3,000 delegates from 135 countries. 🌍Their participation is proof of our community’s commitment to the WFH vision of #TreatmentForAll. Read more: bit.ly/4b8zWL9
Damos por finalizado el #WFHCongress2024 @wfhemophilia ¡ Gracias ! Thanks you !
That’s a wrap on #WFHCongress2024! We extend our gratitude to all our delegates, speakers, sponsors, volunteers and partners for contributing to the success of this year’s Congress. Looking forward to seeing you in #Dubai in 2025 and #KualaLumpur in 2026!
Congratulations to Geneviève McCluskey and Rodrigo Núñez-Cortés for winning the Christine Lee Young Researcher Award best oral and best poster respectively! #WFHCongress2024
💜 Speaker Lauren Philips shares her personal perspective on navigating intimacy as a woman with a #BleedingDisorder. #WFHCongress2024
Brian Ramsay, @CathyAH1980, @NiamhLarkinANP, and Lisa Littner evaluated the evidence supporting care provision for individuals with #BleedingDisorders, who are living longer due to improved diagnosis and treatment access. #WFHCongress2024
Víctor Jiménez-Yuste, MD, discussed joint health assessments set against the new treatment landscape. #WFHCongress2024
Speaker Minackshi Dhurmoo-Luchmun, dived into the psychosocial perspective on fostering shared decision making with new treatments available. Learn more about the shared-decision making tool: bit.ly/3Vs0xOK #WFHCongress2024
🎉 What a wonderful celebration! Big thank you to all who joined us in supporting #WorldHemophiliaDay at the WFH booth—snapping photos, grabbing treats, and connecting with each other. Your presence made it truly special. 🙌 #WFHCongress2024 #WHD2024
Speakers @james_paulad, Frank Leebeek, and @DavidLillicrap respond to audience questions following their presentations on the diagnosis and treatment of #VWD. #WFHCongress2024
Speaker @TulasiGeevar, MD, explores the rationale behind and optimal timing for utilizing chromogenic assays for Factor VIII, alongside a cost-effective perspective. #WFHCongress2024
The emergence of novel non-factor therapies for #hemophilia A and B is reshaping treatment approaches. Speaker Shannon Meeks, MD, discussed the role of inhibitors in this evolving landscape. #WFHCongress2024 @BloodDoc2
Intermittent access to treatment often impacts adherence challenges. Juan Andres Pereira de Souza, speaker and president of @Hemofilia_UY, reflects on his journey with treatment adherence. #WFHCongress2024
📄 WFH's Donna Coffin presented on the new Living Guidelines Model that the WFH will be implementing. Stay tuned for more information! #WFHCongress2024
Factor levels alone don't reveal the whole picture. Ever wondered why one person with moderate #hemophilia bleeds more or less than another? @LenValentino1, MD, sheds light on the distinction between factor levels and phenotype. #WFHCongress2024
Final day of #WFHCongress2024! Explore the program schedule and make sure you're in the right place at the right time: bit.ly/3w7tC7K Remember to wear red and join us at the WFH Resource Center at 12:30 for the #WHD2024 celebration!
Day 2 of #WFHCongress2024 has concluded! Stay updated on all the impactful sessions and activities you might have missed: bit.ly/3xLZKhH Looking forward to seeing you tomorrow for the last day of Congress!
🎉 Congratulations to the 2024 Susan Skinner Memorial Fund Scholarship recipients! The scholarship promotes the engagement of women and girls in the global #BleedingDisorders community by providing opportunities for education, training, and networking.
The WFH Gene Therapy Registry aims to collect comprehensive data on individuals worldwide who undergo #GeneTherapy for #hemophilia. At #WFHCongress2024, speakers shared their perspectives and addressed questions about this groundbreaking initiative. 🌍
Michael Makris @ProfMakris
14K Followers 1K Following Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.Brian O Mahony @Brianhemophilia
3K Followers 517 Following CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.Shematologist, MD @acweyand
84K Followers 6K Following Peds hematologist oncologist,mother, dreamer, pacifist, justice seeker.Clueless Mother https://t.co/HblMm3s8OM Cream Influencer #CakeForBreakfast https://t.co/4SLDqCFsMqflora peyvandi @flora_peyvandi
2K Followers 411 Following Professor of Internal Medicine- Hemostasis and Thrombosis Unit, University of Milan-Italy.ISTH @isth
15K Followers 2K Following The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.EHC_Haemophilia @EHC_Haemophilia
3K Followers 406 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.Haemophilia Journal @haemophilia_jnl
1K Followers 312 Following The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeveNational Bleeding Dis.. @nbd_foundation
7K Followers 1K Following Dedicated to finding better treatments/cures for inheritable blood/bleeding disorders & preventing complications via education, advocacy, research. #WeAreNBDFCathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee vice chair. Mum, wife, daughter, sister, baker, gardener, artist, forever learning. Opinions are my own.FEDHEMO - Hemofilia @fedhemo
4K Followers 1K Following Federación Española de Hemofilia 🩸 🤝ONG dedicada a mejorar la calidad de vida de personas con hemofilia y otras coagulopatías congénitas💉Víctor Jiménez Yust.. @vjimenezyuste
3K Followers 3K Following Hematólogo. Jefe de Servicio. Hospital Universitario La Paz. EGB, BUP, COU, UVA, MD, HULP, PhD, HA/B, EVW, AMHH, SEHH, EAHAD Cuenta personal #LaPazHospital4UHaemophilia Society @HaemoSocUK
5K Followers 729 Following We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.Paul McLaughlin @physio_paul
564 Followers 796 Following Post Doctoral Clinical Academic Specialist Physio-Haemophilia @royalfreenhs || #Pain #Haemophilia || All views my own! 🇮🇪🏳️🌈🏳️⚧️JTH @JTHjournal
9K Followers 7K Following The official journal of the @ISTH. Twitter content edited by @DianvanderwalDr @thebenignclotDr Kate Khair PhD @katekhair
1K Followers 858 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘EAHAD @EAHADnews
3K Followers 482 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.RPTH @RPTHjournal
11K Followers 6K Following Research and Practice in Thrombosis and Haemostasis (#RPTH). #OpenAccess journal of @ISTH. EiC @ProfMakris. Impact Factor 4.6Lauren Arena @DrLaurenArena
0 Followers 16 FollowingSharon @sharonleeann26
3 Followers 33 FollowingAnna Wilson @annacg00
209 Followers 857 FollowingWATSON @Watson_Horizon
680 Followers 3K Following Horizon Europe project aiming to identify and prevent the spread of fraudulent practices in food systemsBlessed Ubasinachi @Ubasinachi1991
8 Followers 186 FollowingChristine Lynn @heresmewhat
28 Followers 128 FollowingSharmila Manian @ManianSharmila
143 Followers 264 Following a mother. and a transfusion medicine enthusiasisist.khamari mariem @KhamariMariem
6 Followers 58 FollowingBenito @mosongoben4
61 Followers 78 Followingjulio franco sosa @Klavera
172 Followers 683 FollowingBusisiwe👑 @BusisiweM_
198 Followers 122 Followingwisteria, MD 🥀 @ApparentTaste
805 Followers 4K Following Pediatrician; a pursuer of the healing arts. Sometimes a writer, always a reader, wants to try harder.Sreya Punjadath Baby @Sreya_Baby
72 Followers 178 Following Laboratory hematology Fellow@CMC,VelloreLuis Ma Gonzalez @LuisMa1982
184 Followers 657 FollowingDr Akriti Khare @drakriti2
36 Followers 95 Following Assistant Professor AIIMS Nagpur, DM Hematopathology AIIMS, New DelhiSahitya Rao @SahityaRao2
64 Followers 341 Following Forever a student of Internal Medicine. Senior Resident Medical Oncology | Tata Memorial CentreFabiola Gudiño @fabiolagudio7
14 Followers 31 FollowingKaren Sinclair @kasasincs
7 Followers 200 FollowingAnsu Abu Alex @ansu2812
47 Followers 134 Following Scientist @ Rajagiri Hospital, PhD in Biological Sciences @ Christian Medical College, Vellore # Hematology # flow cytometry # Immunology.Bonnie George @BonnieG54827001
10 Followers 88 FollowingBukola Orolu @OroluBukola
81 Followers 165 FollowingArun Amalraj @ArunAmalra72423
15 Followers 128 FollowingCancerArtProject @CancerArtProje3
635 Followers 1K Following I teach photography to cancer kids and cancer survivors helping them battle cancer through creativity and better mental health @rajennairKalaivani Babu @AjuVaniBabu
42 Followers 337 Following SRMC 22| Incoming IM PGY-1 at Allegheny General HospitalNidhi Bhatnagar @nidsmb70
8 Followers 70 Followingzac maluwa @zacmaluwa
4 Followers 44 FollowingDurga Dhungana @durga2008
1K Followers 1K Following Physician (Assistant Professor) at Manipal College of Medical SciencesAdeMD @Elneda77
9 Followers 216 FollowingJimmy @JamesMartinCLE
1K Followers 4K Following Oncologist @UHhospitals Seidman Cancer Center/ @CWRUSOM. APD for Heme/Onc fellowship. Interests include: #BreastCancer #MedEd, #LGBTHealth 🏳️🌈 (he/him)Letty Benítez @LettyMBR
19 Followers 83 FollowingMark Caleb Dorey @calebdorey
2K Followers 4K Following Husband, father, sports fan, adopted Yorkshireman. Assistant Director of Comms @universityleeds Formerly @leedsalumni @DWPDigital @sheffielduni & @leedsbeckettmajoranjan @majoranjan1
42 Followers 453 Followingbhawna sirohi @SirohiBhawna
5K Followers 2K Following Medical oncologist | Breast/GI cancers | Proud to have been with NHS for 2 decades | equity & equality for women & cancer pts | Global oncology | indian @ ❤️Patricia Menendez @Melendina
484 Followers 1K Following Licenciada en farmacia!Masterizada en reproduccion asistida..!y boticaria en potencia.Centre d'Informació .. @CIMSFHUVH
3K Followers 615 Following Professionals del Centre d’Informació de Medicaments.Servei de Farmàcia Hospital Universitari Vall d’Hebron. ICS Departament de Salut. Generalitat de Catalunya.varun bafna @drvarunbafna6
10 Followers 84 FollowingEduarda Grinsztejn @EGrinsztejn
30 Followers 100 Following Hematology fellow University Hospitals/Case Western Reserve University @UHhospitals @cwruNongsira @Nongnuch_Sir
9 Followers 36 FollowingERNEST Vincent @p4cman13
18 Followers 50 Following Assistant en hémostase clinique ; Exploration maladies hémorragiques et thrombotiques (CEHT) Pathologies plaquettaires (CRPP) CHU la Tchimonecoffein11 @coffein11
2 Followers 105 Followingtomassveinsson @tomassveinsson1
28 Followers 87 FollowingMichael Makris @ProfMakris
14K Followers 1K Following Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.Brian O Mahony @Brianhemophilia
3K Followers 517 Following CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.flora peyvandi @flora_peyvandi
2K Followers 411 Following Professor of Internal Medicine- Hemostasis and Thrombosis Unit, University of Milan-Italy.ISTH @isth
15K Followers 2K Following The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.EHC_Haemophilia @EHC_Haemophilia
3K Followers 406 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.Haemophilia Journal @haemophilia_jnl
1K Followers 312 Following The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeveNational Bleeding Dis.. @nbd_foundation
7K Followers 1K Following Dedicated to finding better treatments/cures for inheritable blood/bleeding disorders & preventing complications via education, advocacy, research. #WeAreNBDFCathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee vice chair. Mum, wife, daughter, sister, baker, gardener, artist, forever learning. Opinions are my own.ASH @ASH_hematology
69K Followers 2K Following The American Society of Hematology (ASH) is the world's largest professional society concerned with the causes and treatments of blood disorders.FEDHEMO - Hemofilia @fedhemo
4K Followers 1K Following Federación Española de Hemofilia 🩸 🤝ONG dedicada a mejorar la calidad de vida de personas con hemofilia y otras coagulopatías congénitas💉Haemophilia Society @HaemoSocUK
5K Followers 729 Following We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.JTH @JTHjournal
9K Followers 7K Following The official journal of the @ISTH. Twitter content edited by @DianvanderwalDr @thebenignclotDr Kate Khair PhD @katekhair
1K Followers 858 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘EAHAD @EAHADnews
3K Followers 482 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.RPTH @RPTHjournal
11K Followers 6K Following Research and Practice in Thrombosis and Haemostasis (#RPTH). #OpenAccess journal of @ISTH. EiC @ProfMakris. Impact Factor 4.6Blood Journal @BloodJournal
51K Followers 161 Following Blood, the flagship journal of @ASH_Hematology, is the most cited peer-reviewed publication in the field of hematology, available weekly in print and online.Clive Smith @Clive_Smith_
1K Followers 1K Following Chair of The Haemophilia Society•World Federation of Hemophilia youth chair•Criminal barrister•Lecturer•Triathlete•🇬🇧 AG Duathlete•Ironman x 4IrishHaemophiliaSoc @HaemophiliaIRL
1K Followers 298 Following The Irish Haemophilia Society is a charity representing people living with haemophilia, von Willebrands and other inherited bleeding disordersTIF @thalassaemiaTIF
7K Followers 6K Following A non-profit organization based in Cyprus advocating for the prevention & treatment of thalassaemia & other haemoglobin disorders & patients' rights worldwide.BloodStream Media @BloodStrmMedia
1K Followers 457 Following Bringing education and inspiration to those living with rare and chronic diseases. 🩸Rana Saifi @RanaSaifi16
196 Followers 220 Following Regional Manager Middle East at @Wfhemophilia Passionate about International Development. Views are my own. RTs are not endorsements.Hazri Aris @HazriAris
122 Followers 584 Following I’m just a simple man, trying to make my way in the universe.Megan Adediran @meganhfn
669 Followers 736 Following Mother of 2 sons with severe #haemophilia A. Founder and Executive Director, Haemophilia Foundation of Nigeria.Dawn Rotellini @DRotellini
137 Followers 367 Following Mom of two amazing kids that I adore. COO at National Bleeding Disorders Foundation, LOVE to travel! Board member of World Federation of Hemophilia.Chris Bombardier, MS .. @AdventureHemo
874 Followers 615 Following Bleeder, adventure seeker, mountain addict. Save One Life Executive DirectorEU Medicines Agency @EMA_News
118K Followers 354 Following Latest news from the European Medicines Agency, the European Union agency responsible for the evaluation and supervision of medicines. RTs ≠ endorsement.Bayer España @BayerEspana
16K Followers 2K Following Cuenta oficial de Bayer en España, compañía de ciencias de la vida relacionadas con #salud y #agricultura. Coordina: equipo de Comunicación. #UnaVidaMejorThe Lancet Haematolog.. @TheLancetHaem
20K Followers 2K Following The Lancet Haematology is a world-leading #haematology journal publishing peer-reviewed research and reviews, opinion, and news. #hematologyNepal Hemophilia Soci.. @HemophiliaNepal
59 Followers 65 Following Nepal hemophilia society is a society for person with hemophilia and blood disorder diseaseHemofilia Indonesia @Hemofilia_ID
1K Followers 1K Following Himpunan Masyarakat Hemofilia Indonesia / Indonesian Hemophilia Society adalah organisasi non profit yang mewakili semua penyandang hemofilia di Indonesia.Hemophilia Society of.. @HemophiliaMsia
258 Followers 56 Following A National Member Organisation under World Federation of HemophiliaHemophilia Federation.. @HemoIndia
698 Followers 370 Following Hemophilia Federation (India) is the only national umbrella organization in India established in 1983 for the comprehensive care of People with Hemophilia.Haemophilia Foundatio.. @haemophilia_ng
1K Followers 848 Following • NGO♥️ • Official account • Bringing better care to persons living with bleeding disorders in Nigeria 🇳🇬• [email protected] • +2348033206779Ghana Haemophilia Soc.. @HemophiliaGH
44 Followers 47 Following Our Vision is to reach every Haemophilia patient in Ghana with treatment and careHemophiliaofGA @HemophiliaofGA
1K Followers 266 Following A nonprofit organization providing services and support for Georgians who have hemophilia, von Willebrand Disease, and other inherited bleeding disorders.Danmarks Bløderforen.. @Bloderforening
54 Followers 113 Following Danmarks Bløderforening arbejder for at forbedre forholdene for mennesker, der lever med blødersygdomme i Danmark.APH | Associação Po.. @AssociacaoAph
47 Followers 10 Following IPSS na área da Saúde destinada a pessoas com hemofilia e com outras Coagulopatias CongénitasBishesh Poudyal @Poudyalbishesh
3K Followers 432 Following Prof & Head, BMT physician @ https://t.co/bVWOTaTQdB I Pioneered BMT service in Nepal l Hemophilia treater l Hates health disparity l #GlobalBMTAlfonso Iorio @AlfonsoIorio
556 Followers 160 Following Italian, @McMaster, interest in bleeding disorders, precision medicine, guidelines for rare diseases; online disseminator of high value evidence....Glenn Pierce @gfp55
287 Followers 214 FollowingThomas Sannié @thomas_sannie
513 Followers 761 Following Hémophilie. Pdt FAS IDF. Membre CEU à HAS. Resp. Afath actions AFH/FMH en Afrique. Partenariat patient. Travaille au Pôle ETP IDF. Membre EELV. Mes tweetsTiffany (Lin) Lucas @DrTiffanyL
1K Followers 630 Following Peds hem/onc enthusiast with interest in med ed (former PD @ UCSF), QI & safety, hemostasis/thrombosis. Former Saipan pediatrician. Tweets are my ownKedrion Biopharma @KedrionCares
172 Followers 0 FollowingPfizer Inc. @pfizer
490K Followers 2K Following Breakthroughs that change patients' lives. Visit https://t.co/zipcKiG1jD to learn more. https://t.co/FPP9fmzZh6Spark Therapeutics @spark_tx
6K Followers 468 Following Our mission is to unlock the power of gene therapy to accelerate healthcare transformation. Page monitored business hours M-F; https://t.co/ER7NJcXED0uniQure @uniQure_NV
3K Followers 133 Following uniQure is delivering on the promise of gene therapy - single treatments with potentially curative result for patients with severe genetic diseases.Novo Nordisk @novonordisk
49K Followers 2K Following Daily news about serious chronic diseases. We're global, but here in person for your questions and comments 💬 Community guide 👇European Patients' Fo.. @eupatientsforum
14K Followers 1K Following We are the leading voice of patient organisations in Europe. #EuropeForPatientsHaemophiliaMacedonia @HEMOLOGM
225 Followers 359 Following Hemolog improves and sustains care for people with inherited bleeding disorders in Macedonia. #Hemophilia #vonWillebrand #hemologmSophie Werkö @SWerkoe
628 Followers 520 Following Manager International Relations & Patient Engagement at SBU, the Swedish Council on Health Technology Assessment. Affiliated with Karolinska Institute.Parimal Debnath @debnathpc
2K Followers 2K Following A simple easy going deshi boy. A #bleeder and a #solo #traveler with #disability. Vice President at #Hemophilia Society of #Bangladesh. Always love to smile!Cedric Hermans, MD, F.. @HermansCedric
874 Followers 184 Following Full Professor Haematology St-Luc Univ. Hospital - UCLouvain / Editor in Chief Haemophilia Journal WILEY - Director of the Board World Federation of HaemophiliaMark Skinner @MSkinnerDC
545 Followers 160 FollowingHemofilia XXI México @HemofiliaXXI
1K Followers 463 Following Hemofilia XXI A.C. es una organización sin fines de lucro, que trabaja en beneficio de las personas con hemofilia y otras coagulopatías afines en México.Asociación de Hemofi.. @Hemofilia_UY
519 Followers 133 Following La Asociación de Hemofilia del Uruguay es una ONG dedicada promover el bienestar de todas las personas con hemoflia del Uruguay.Fundación Apoyo al H.. @HemofiliaRD
729 Followers 324 Following Desde 1996 ofreciendo apoyo integral a las personas con hemofilia y otras coagulopatías en Rep. Dom.Alex Dowsett @alexdowsett
101K Followers 559 Following Charity founder, occasional YouTuber & professional cyclist.Sam Mbunya, BMS, MBA @sambunyamisiani
706 Followers 2K Following Advocacy Relations Consultant @indiana_HTC KE programs ,Member @sicklecellfedKE, Prog. Coord AMPATH SCD @ProjectECHO.Sickle Cell Disease and Hemophilia AdvocateRDI @rarediseasesint
5K Followers 699 Following Rare Diseases International - the global alliance of rare disease patients & familiesEURORDIS-Rare Disease.. @eurordis
32K Followers 2K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.ngorarediseases @ngorarediseases
2K Followers 742 Following Mobilising the global community and the UN in recognition of rare diseases as a public health priority / A CoNGO Committee, founded by @eurordis and ÅgrenskaRadoslaw Kaczmarek @RKaczmarekDr
2K Followers 5K Following Researcher | #immunology | #gene therapy | #hemophilia | #glycobiology | IU School of Medicine/Hirszfeld InstituteLovely to meet friends Dr. Mai and Ms. Tran from Vietnam #WFHCongress2024 with my colleague Debbie Greene @HaemophiliaIRL We had a wonderful 9 year collaboration with Vietnam. Delighted they are now using some Emicizumab and soon FIX Gene Therapy clinical trial @wfhemophilia
Hvala, ker ste nas spremljali v vseh teh dneh in upam, da smo solidno povzeli dogajanja ter vsebine #WFHcongress2024 na naši posebni spletni strani: haemophamicus.eu/wfh-kongresi/k… #hemofilija #motnjestrjevanjakrvi @ukclj @UKCMaribor @wfhemophilia @EHC_Haemophilia @NIJZ_pr @ZDLjubljana
Thrilled to have met Dr. Lim at the #WFHCongress Meeting! 🤝 It’s always inspiring to connect with physicians who share the same passions and interests in Hematology . #Networking @wfhemophilia @heme_fan
Tremendous experience at @wfhemophilia’s 2024 World Congress. There’s really no other gathering quite like it, and while I didn’t take many pictures, I did take home a full head and heart. Special shout out to #JohnnyMahlangu, @DRotellini, #SaraGarcíaBarcenilla, #AnaPastor,…
Gran aprendizaje nuestra presencia en el #WFHCongress2024, organizado por @wfhemophilia (#FMH), con la colaboración de @fedhemo. Cogemos energía para seguir trabajando en aumentar la visibilidad de #EnfermedadesRaras y #hemofilia y mejorar el #acceso👨🔬
Un breve recorrido a través de nuestro stand, nuestros patrones/as y doctores/as durante el #WFH2024 🩸 Agradecer a @wfhemophilia y @fedhemo por la organización y el trabajo 👏🏼❤️ #TreatmentForAll #Hemofilia #Coagulopatías #Enfermedadesraras #FMH24
Well done Genevieve. Great job!
Congratulations to Geneviève McCluskey and Rodrigo Núñez-Cortés for winning the Christine Lee Young Researcher Award best oral and best poster respectively! #WFHCongress2024
Excellent presentation by @NiamhLarkinANP at #WFHCongress2024 on Access to care and the benefits of nurse led Teleheath clinics @stjamesdublin #NCC @SJHDoN @oconnn04 @sortoutbleeding
A huge congrats to Dr Genevieve McCluskey for her work on Fitusiran in FX deficiency 👏👏 #wfhCongress2024 @InsermU1176
Clausura del #WFHCongress2024 🩸🌍 Gracias a todos/as.
Join Roseline d’Orion, Samantha Gouw and Víctor Jímenez-Yuste for the next #WFHCongress2024 session “Outcomes & outcome measurements” to delve into incorporating female-specific outcomes for WGBD, QOL measures and joint health assessment revisited in the era of new treatments.
At #WFHCongress2024 🌏🩸, Nihal Bakeer shared insights about early #ultrasound detection & treatment of pediatric #synovitis. Make sure to also read her #StateOfTheArt paper on hemophilic #arthropathy, co-authored by W Saied, A Gavrilovski, & C Bailey 👉buff.ly/4b7x01s
🥁 It was very hard to open that lottery ball... but we made it, and we drew the winner of our NMOs Lottery at #WFHCongress2024! 🥳 Congratulations Kyrgyz Hemophilia Society, see you at our next #EHC Conference in Sofia!
Team Chile 🇨🇱. Congreso Mundial de Hemofilia @wfhemophilia #WFHCongress2024
#Day3 ya casi terminando el #WFHCongress2024 .. En las últimas sesiones vemos cómo hay un vambio de juego en salud: nuevos tratamientos, deporte y vida cotidiana en #hemofilia con la participación de Manuel Rodríguez López, hematologo en el Hospital Álvaro Cunqueiro en Vigo
@joy_mammen @OffCMCVellore @wfhemophilia @HemoIndia Proud of you Sukesh! Congratulations.
@hamza_nasma técnico de migración en #ashecova, conociendo a Cesar Garrido @cesargarridod presidente de la FMH @wfhemophilia
Damos por finalizado el #WFHCongress2024 @wfhemophilia ¡ Gracias ! Thanks you !
Próximo #CongresoMundialDeHemofilia #WorldHemophiliaCongress de @wfhemophilia Será en Kuala Lumpur, Malaysia 🇲🇾 2026.
Y terminamos, pasamos el relevo de #WFHCongress2024 a la asociación de Malasia para #WFHCongress2026 Good Luck!! Buena Suerte!!