Search results for #raredisease
Thank you, Eddie, for supporting Kaleidoscope #RareDisease Stories! Have you gotten your copy? Send a pic to [email protected]. Not yet? Now's the time! Kaleidoscope #RareDisease Stories is available on Amazon. ~🦋 a.co/d/1qhe4Je #KaleidoscopeRare #ZebraStrong🦓
14 miles in total, walking and running, today including parkrun 👊🏻 🙌🏻 Just over 28,000 steps! I’m definitely not moving for the rest of this afternoon/evening. #happysaturday #positivity #raredisease #justkeepgoing #NHS1000miles
It is not uncommon for families of children with medical complexity to experience a shift in their circle of friends. #MedicalComplexity #RareDisease #Caregivers #SupportCircle
ASHEVILLE: We hope to see you TODAY for our social meetup! Do you know anyone in the area? Reach out to us to help get them connected and we will see you there! buff.ly/4a62xAr 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease
The Faces of Congenital Diaphragmatic Hernia cdhi.org #CDH #CDHAwareness #NotJustAHole #CongenitalDiaphragmaticHernia #CDHAwarenessMonth #April19 #CDHCharity #PediatricSurgery #GlobalSurgery #RareDisease #PatientAdvocacy #Donate
Because it can take years for the cholestanol buildup to cause problems, symptoms may vary and show up at different times in a person’s life. #CTX #CTXAlliance #ULF #CerebrotendinousXanthomatosis #Leukodystrophy #RareDisease
Thank you to these 5 biotech and pharmaceutical leaders for joining our Industry Advisory Board! As we work to advance promising treatments to clinical trials, their collective expertise is invaluable. 🤝 Meet all our advisors: kabukisyndromefoundation.org/about-ksf/whos… #kabukisyndrome #raredisease
ഇന്ത്യയില് ആദ്യമായാണ് ഒരു സംസ്ഥാനത്ത് അപൂര്വ രോഗത്തിനുള്ള മരുന്നുകള് സര്ക്കാര് തലത്തില് സൗജന്യമായി നല്കാനാരംഭിച്ചത്...#RareDisease #FreeMedicine #SpinalMascularAtrophy manoramaonline.com/health/health-…
We are based in #Wales with a #Global following #FindYourPower #Ataxia awareness project powered by ataxia-and-me.org Check our #QR code and #SocialMedia channels to find out more. #StrongerTogether #RareDisease #Neurology #Health
3 weeks to go 😊 @SclerodermaRF Family Day Saturday 18th May 2024, The Atrium, @RoyalFreeNHS FREE to attend accessible to all #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging
@Jane_L_Edwards You are in the best hands. The team at Addenbrookes have saved my sight and my life over the past 3 years. #vasculitis #GPA #raredisease
HAE S.A wishes all South Africans a happy Freedom Day 🇿🇦 💜💚💙 #haesouthafrica #hae #hereditaryangioedema #hereditaryangioedemaawareness #togetherwecan #rarediseasessa #raredisease #careforrare #haesa
Early detection improves lives – get tested now! alpha1europe.org/about-the-dise… #unitedforalpha1 #EuropeanAlpha1AwarenessDay #alpha1awareness #AATD #alpha1antritrypsindeficiency #raredisease #alpha1testing #earlydetection #alpha1diagnosis
One drop of blood is all it takes – get tested now! alpha1europe.org/about-the-dise… #unitedforalpha1 #EuropeanAlpha1AwarenessDay #alpha1awareness #AATD #alpha1antritrypsindeficiency #raredisease #alpha1testing #earlydetection #alpha1diagnosis
Pleased to be a new member of @CMTUnitedKdom Providing support and raising awareness for the debilitating inherited neurological #CharcotMarieTooth disease - The most common #RareDisease you've never heard of? Factsheet: cmt.org.uk/wp-content/upl…
2 of my friends shaved their heads in support of my cancer journey. #malignantphyllodestumor #phyllodestumor #rarecancer #raredisease #metastatic #stage4