SEDSConnective @SEDSConnective
Sympt.Hypermobility EDS HSD NEURODIVERGENT vol. Charity / health/education/care/work Chair/Founder Jane Green MBE @JGJanegreen Patron Dr Eccles @Bendybrain linktr.ee/SEDSConnective Global Joined January 2019-
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Following the recent paper at bmjpublichealth.bmj.com/content/2/1/e0… Delighted to be hosting Dr Eccles to discuss the findings that over 30% of people with GJH (hypermobility) are at risk of long Covid. Must be key for schools #education health care practitioners funders and policy makers?
Following the recent paper at bmjpublichealth.bmj.com/content/2/1/e0… Delighted to be hosting Dr Eccles to discuss the findings that over 30% of people with GJH (hypermobility) are at risk of long Covid. Must be key for schools #education health care practitioners funders and policy makers?
⭐Connections between #LongCovid & #Hypermobility members only webinar with our Patron @BendyBrain 📅19th May 🕝from 3:30pm 💻online via Zoom 👉Register as a member here: bit.ly/4aUYFTA 👉Book your spot here: bit.ly/3QkqoEF #EDS #HSD #Hypermobilityawareness
April is #AutismAcceptanceMonth. Studies show that people with joint hypermobility, Ehlers-Danlos syndromes (EDS), and hypermobility spectrum disorder (HSD) have a higher likelihood of being autistic than would be expected by chance. Research @BSMSMedSchool, led by Dr. Jessica…
Our Chair was at the House of Lords this week at event hosted by @CharteredColl where she is a Fellow. She was supporting our advocacy on neurodivergence (Autistic ADHD Dyspraxic Tourettes) & (symptomatic hypermobility issues (EDS pgJH) in education #neurodivergent #SEND
Our Chair was at the House of Lords this week at event hosted by @CharteredColl where she is a Fellow. She was supporting our advocacy on neurodivergence (Autistic ADHD Dyspraxic Tourettes) & (symptomatic hypermobility issues (EDS pgJH) in education #neurodivergent #SEND
Children & young people also adults are conditioned to mask physical pain and health issues. They learn to MASK pain. Here are some tips from Autistic/ADHD Educationalist jane Green MBE @JGjanegreen from her article @tes and still are relevant
Children & young people also adults are conditioned to mask physical pain and health issues. They learn to MASK pain. Here are some tips from Autistic/ADHD Educationalist jane Green MBE @JGjanegreen from her article @tes and still are relevant
I'm seeing the world of #LongCovid, #MECFS, #POTS, #Migraine, #Sjogrens & more take center stage so researchers, clinicians, tech, biotech, govt. & business leaders recognize that this MASSIVE unmet medical needs to be addressed NOW. We are just getting started. @MetrodoraFdtn
@SwailesRuth @suzannezeedyk @naomicfisher @Dr_Pam_Jarvis @DanWuori @CindyJurie @thepetitioner @AaronTeamEC @helenjwc @Sue_Cowley For neurodivergent children it is crucial to understand how physical co-occurring health affects executive functioning (brain fog, masking pain, dizziness, palpitations, physical anxiety) #hypermobility . There is a paper on this if interested.
Delighted to be attending the @CharteredColl roundtable discussion /Ethical leadership at the #HouseOfLords #London Leading @SEDSConnective neurodivergence and education is so key
For autistic clinicians and everyone else working in Intensive Care #Autismacceptance #AutismAwareness We know @rosieICM as she kindly wrote a blog for us on her own experiences of being late dx autistic and with a rare type of connective issues sedsconnective.org
For autistic clinicians and everyone else working in Intensive Care #Autismacceptance #AutismAwareness We know @rosieICM as she kindly wrote a blog for us on her own experiences of being late dx autistic and with a rare type of connective issues sedsconnective.org
Trustees met up with our art mental health therapist course leader, the amazing Caroline. We were overrun with requests from members to do more courses and more ideas are being developed #neurodivergence #hypermobility
Education matters the first topical review on neurodivergence #Autism #ADHD #Dyspraxia #Tourettes plus more and symptomatic hypermobility MaskingPain #eduTwitter #EDS pgJH @bethanydonaghy1 Link to paper here tandfonline.com/doi/full/10.10…
We are a connecting charity. Neurodivergence matters #Autism #ADHD #Dyspraxia #Tourettes +, and symptomatic #hypermobility
We are a connecting charity. Neurodivergence matters #Autism #ADHD #Dyspraxia #Tourettes +, and symptomatic #hypermobility
On Friday, the government in England stated that they plan to tackle ‘sicknote culture’. Our response: the government need to tackle waiting times for treatment for people living with the devastating impact of chronic pain. Read more: @bbchealth bbc.co.uk/news/health-68…
It’s still #AutismAcceptanceMonth and awareness for those unaware symptomatic hypermobility is more than double to be an issue for autistic and other neurodivergent people than the general population ? pubmed.ncbi.nlm.nih.gov/35185636/
For those with an interest in Autism, ADHD/ Dyspaxia /TS, long Covid plus more and Hypermobilty /EDS HSD please follow us at sedsconnective.org @SEDSConnective We welcome retweets 🙂🙏
@SEDSConnective @JGjanegreen @DaveMoore_Pain A referral written by GP 4 my son after 5yrs of pain,he has diagnosed hEDS had wrong diagnosis of M.E. 10yrs This was 7 minute consultation,His knee or other joints were not examined at this consult!the highlighting in red says it all!We responded 2this by sending his MRI report!
Jane Green MBE FCCT c.. @JGjanegreen
6K Followers 4K Following Founder/Chair @SEDSconnective / MBE for Neurodivergence Tissue FELLOW MA Ed. exAHT NED Aut/ADHD/ND ParentCarer / Columnist / Disabled often discombobulated 😶
Jeannie Di Bon @jdibon
10K Followers 1K Following Internationally recognised EDS/HSD Movement Therapist. 15 yrs EDS experience. Author, Speaker, Educator. IMM, The Zebra Club & Moovlite. MSc Pain Mgt
Hypermobility MD: Dr .. @BluesteinLinda
8K Followers 662 Following 🩺 Pain & inflammation specialist 🦓 Ehlers-Dani’s, HSD & MCAS 🎙Founder Bendy Bodies Podcast ⚕️@mayoclinic trained 🚫Not medical advice.
Oh TWIST! @H2OhTwist
9K Followers 4K Following Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely dxed. PDX.
You Might Be Autistic @mightbeautistic
38K Followers 12K Following Autistic Psychotherapist Celebrating us One trait doesn’t make anyone Autistic or Allistic We are a community, not a monolith Autigender
Ehlers-Danlos Support.. @ehlersdanlosuk
19K Followers 11K Following EDS UK is committed to changing the futures of people with Ehlers-Danlos syndrome (EDS) and HSD. With awareness and early diagnosis we can change lives.
The Ehlers-Danlos Soc.. @TheEDSociety
24K Followers 6K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Candace D. @DiaryofaSickGrl
12K Followers 1K Following Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
Cortney Gensemer, PhD @CortDoesScience
7K Followers 937 Following Postdoctoral Fellow at MUSC | Driving Research Progress in the Ehlers-Danlos Syndromes | Passionate about Science Communication and Education
Ann Memmott PgC MA �.. @AnnMemmott
32K Followers 6K Following Own views. Not professional advice. Autistic Research Consultant. #AutisticElders Personal page. Like = I read the post. R/T does not imply endorsement.
auntie cistamine @laurenancona
30K Followers 17K Following neurodivergent public servant • learning to help • 338ppm • she • no DMs
Alissa Zingman MD MPH.. @DocZing
5K Followers 1K Following PRISM Spine and Joint, https://t.co/xU10wz4Q5O, Research https://t.co/1kUMpVueSJ, Hypermobility Care, Wife/Mom/CEO/Dancer. Tweets are not medical advice.
Autistic Girls Networ.. @AutisticGirls_
32K Followers 2K Following Fighting to improve awareness, mental health & education for autistic girls & women. Registered charity 1196655
collagen machine brok.. @chronicallybeee
15K Followers 4K Following enbrel slut | she/they | #FreePalestine | https://t.co/hFC0B2O8QQ
Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
The #ActuallyAutistic.. @AutisticCoach_
14K Followers 3K Following I empower my fellow #ActuallyAutistic humans with communities, strategies, advocacy methods & self-care tools for navigating an NT world based on productivism.
EDS Awareness @EDSawareness1
10K Followers 3K Following An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians.
Missing The Mark @_MissingTheMark
16K Followers 5K Following Sunday Times Bestseller. Illustrator + author + education + autism + childhood + learning + activist + art. Represented by @thebksAgency
potatum🥔 @pot8um
27K Followers 9K Following appalachian autistic artist ✺ AuDHD ✺ advocate 🌻 autodidact ✺ anti-capitalist ✺ activist 🌈 she/they
Tamara Besler @TamBesle
39 Followers 5K Following
Robert Ramos @RobertER212
6 Followers 40 Following
Maya Ziegelbauer @MayaZiegel95244
37 Followers 5K Following
Jane #YellowRose 💙 @janestevenson68
8K Followers 8K Following @janestevenson.bsky.social Trying to figure out how to be someone who cares, in a world that is driven by those who do not care. Countryside and photography.
Metrodora Foundation @MetrodoraFdtn
365 Followers 419 Following Catalyzing scientific collaboration and discovery to find cures for chronic, multisystem disorders.
Lorena Steward @lor_stewa
36 Followers 5K Following
Lee Ann McDermott @LeeAnnMcD27
0 Followers 24 Following
Quantum Growth @QmarketingG
0 Followers 27 Following With a focus on scalable strategies and measurable outcomes, we help businesses achieve exponential growth through targeted marketing campaigns.
Freya Mcpherson @FreyaMcphers
92 Followers 5K Following
Ella-may Negroni @ella_negro
26 Followers 2K Following Ella-may / 18 / Crazy Presale of crypto casino👇⚡
Elena Pitini @ellygatta81
2K Followers 1K Following BENKYO! #actuallyautistic #neurodivergent #audhd #adhd #dyspraxia #ocd #catlady 🐾 @[email protected]
RobynClarkOT @RobynClarkOT
59 Followers 264 Following NHS Mental health Occupational Therapist. Lived experience. How can we adapt social + sensory environments to promote neurodiversity + mental health? Own views.
Jenny Cavalot @jennycavalot
296 Followers 1K Following Director - Operating Model Development, Health Education England. Partner, Mum, Stepmum-ish, Neurodivergent, All views my own.
Josephine Cerecedes @JosephineC5354
73 Followers 5K Following
CaptainStrappedIn @captinstraptin
239 Followers 264 Following Late diagnosed Audhd, very possibly dyspraxic. Adult preemie (31 weeker).
Mr LeversPE @levers_mr
73 Followers 78 Following PE Lead @ An Outstanding SEND School ⛹🏻 UClan & Sheffield Hallam Graduate 👨🏻🎓 Sports & Fitness Enthusiast 🏋🏻♀️ Yorkshire based📍
My TrueColors @my_truecolors
75 Followers 65 Following Here I talk to myself (She/Her) Late diagnosed, now discovering my true colors. #ActuallyAutistic #AuDHD #BurntOut #AcademicNomad #hEDS
Choice Support's Publ.. @Support_PEN
393 Followers 1K Following We support people whose voices are not usually heard to engage with @CareQualityComm (CQC) Join us 👉 https://t.co/AQ4Z7zEVBm
MRVN Music - Nurme / .. @CaveJem
139 Followers 2K Following Henlo, is Fenno-Swedish Musician, Poet, Genealogist, and Writer. ❤️ Trans rights are human rights ❤️ https://t.co/QzRLfz2dPT #postpunk #grunge #åland
Carolyn White @CarrieSalford
130 Followers 158 Following A PhD student @Salforduni studying the barriers and facilitators for #neurodivergent employees within the creative industries
Ron Bollard @RonBollard1966
172 Followers 834 Following
Bernadette Louise @BerniLouise
308 Followers 970 Following Artist Mother Writer Fighter #Autism #PDA #Fii #SEND #Health #Research. Creativity to expose injustice!
Laura Murray @LauraJMurral
128 Followers 355 Following Registered Nurse (Children’s)working in Practice Education. Views are my own, RTs not endorsements
YSPawlin @YPawlin
82 Followers 833 Following
Charette Dellagatta, .. @CharetteRN_CCRP
263 Followers 2K Following Help me find you on #Threads!! #HeartFailure RN, dog mom, progressive. Striving for health equity and quality care. #GDMTWorks
Marissa McKean @missmars902
213 Followers 217 Following AuDHD • hEDS • POTS • Lifelong learner • Bibliophile • Anthropology Student #ActuallyAutistic
Phil💙 @phil0073
510 Followers 779 Following Autistic,Married,🚴 , 📷 #PhilOnaBike #PoetOnaBike, #SherlockHolmes #GradedFailure #EndeavourMorse #AJRaffles 😀🇪🇺
DyspraxicSoundEnginee.. @DyspraxicE
492 Followers 773 Following Sound Engineer with Dyspraxia and a Dyspraxia Foundation Youth Champion #Dyspraxia #Dyspraxic. Freelance Boom Operator For Film and TV
Magnolia Jefferds @jefferds9886
68 Followers 5K Following
postdoc plus @Beane60461051
89 Followers 415 Following Strange mixture of this and that mainly medicalness and generalness, sometimes just weirdness #psych ness #meds %naughty
British Association f.. @BritAssoc4ND
7 Followers 21 Following UK Doctors promoting awareness of neurodivergence & associated physical conditions, for holistic patient-centred care.
Coffee Ta @Coffee_Taa
425 Followers 1K Following “Kindness is caring for others, even when they may not care for you.” Avid reader, proud swim mum. She/Her
MindOverMountains @MindOvrMountain
46 Followers 1K Following Peak bagger, dale walker, novice mountain biker and kayaker. Real ale nerd. Read about 5% of the books I’ve bought. Dyspraxic.
Ambrose Andrews @znalo
294 Followers 2K Following random nobody ( @[email protected] || https://t.co/cEK244sCep )
Stephen Wicks 🇵�.. @StephenWicks83
1K Followers 5K Following
Alison Roulstone @AlisonRoulstone
622 Followers 1K Following Researcher, Primary teacher, EYFS, NPQSL, SENCo, KS1 Lead. Interested in ITT, Dyscalculia, SEND and early maths skills @lborocmc @LboroDME @ceml_esrc
Theo Britto @TheoBritto3
919 Followers 5K Following Farmacêutico em busca de promover o acesso ao conhecimento e o crescimento econômico através da regulamentação da Cannabis Medicinal e Industrial no Brasil.
Jan Smith @jansmithla
105 Followers 442 Following Tech Exec | Global Nomad 🌎 | Fashonista 👠 | Greyt 🦮 Mom
Tiffany 🆎🅱️�.. @TiffanyDag
382 Followers 3K Following vEDS🫀NCPT🏥PROUD wife of an OIF Combat Vet🇺🇸7th gen FL farmer’s daughter🍊🐂community hospice volunteer and Dem💙 🙏🏼 for 🕊️
LKG @youdosomething
246 Followers 856 Following Compassion for those most in need in our world. Love mother nature, words, photography & kind people. Adore my boys, family & friends COYS 💙
Iroco⁷⁼¹💜ᴿ�.. @mansdexeo
973 Followers 2K Following Linkin Park❤️🔥BTS~OT7 ARMY SOFT STAN~🐨🐱🐿🐹🐰🐥🐻~Star Wars+MCU~love fanart |🇬🇧🇪🇺🇪🇸she/her~Introverted Audhd Millennial🐯86r || 🚫solos/antis/shippers
Jenna Stone, LMSW (sh.. @jennastone_msw
649 Followers 1K Following Queer AuDHD Therapist specializing in EDs, BFRBs, OCD, & Anxiety at the intersection of neurodivergence
Krystin Wilcox @krysti_wilc
48 Followers 5K Following
Joanne Wisely @poppysweeney
0 Followers 338 Following
Jane Green MBE FCCT c.. @JGjanegreen
6K Followers 4K Following Founder/Chair @SEDSconnective / MBE for Neurodivergence Tissue FELLOW MA Ed. exAHT NED Aut/ADHD/ND ParentCarer / Columnist / Disabled often discombobulated 😶
Jeannie Di Bon @jdibon
10K Followers 1K Following Internationally recognised EDS/HSD Movement Therapist. 15 yrs EDS experience. Author, Speaker, Educator. IMM, The Zebra Club & Moovlite. MSc Pain Mgt
Hypermobility MD: Dr .. @BluesteinLinda
8K Followers 662 Following 🩺 Pain & inflammation specialist 🦓 Ehlers-Dani’s, HSD & MCAS 🎙Founder Bendy Bodies Podcast ⚕️@mayoclinic trained 🚫Not medical advice.
Oh TWIST! @H2OhTwist
9K Followers 4K Following Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely dxed. PDX.
You Might Be Autistic @mightbeautistic
38K Followers 12K Following Autistic Psychotherapist Celebrating us One trait doesn’t make anyone Autistic or Allistic We are a community, not a monolith Autigender
Ehlers-Danlos Support.. @ehlersdanlosuk
19K Followers 11K Following EDS UK is committed to changing the futures of people with Ehlers-Danlos syndrome (EDS) and HSD. With awareness and early diagnosis we can change lives.
The Ehlers-Danlos Soc.. @TheEDSociety
24K Followers 6K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Candace D. @DiaryofaSickGrl
12K Followers 1K Following Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Ann Memmott PgC MA �.. @AnnMemmott
32K Followers 6K Following Own views. Not professional advice. Autistic Research Consultant. #AutisticElders Personal page. Like = I read the post. R/T does not imply endorsement.
auntie cistamine @laurenancona
30K Followers 17K Following neurodivergent public servant • learning to help • 338ppm • she • no DMs
Alissa Zingman MD MPH.. @DocZing
5K Followers 1K Following PRISM Spine and Joint, https://t.co/xU10wz4Q5O, Research https://t.co/1kUMpVueSJ, Hypermobility Care, Wife/Mom/CEO/Dancer. Tweets are not medical advice.
Autistic Girls Networ.. @AutisticGirls_
32K Followers 2K Following Fighting to improve awareness, mental health & education for autistic girls & women. Registered charity 1196655
collagen machine brok.. @chronicallybeee
15K Followers 4K Following enbrel slut | she/they | #FreePalestine | https://t.co/hFC0B2O8QQ
Naomi Fisher @naomicfisher
43K Followers 1K Following Clinical Psychologist. Author of Changing Our Minds and A Different Way to Learn. Website: https://t.co/lNP61HBdr2. Substack: https://t.co/jZKGYJJB3I.
Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
EDS Awareness @EDSawareness1
10K Followers 3K Following An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians.
Missing The Mark @_MissingTheMark
16K Followers 5K Following Sunday Times Bestseller. Illustrator + author + education + autism + childhood + learning + activist + art. Represented by @thebksAgency
potatum🥔 @pot8um
27K Followers 9K Following appalachian autistic artist ✺ AuDHD ✺ advocate 🌻 autodidact ✺ anti-capitalist ✺ activist 🌈 she/they
Prof. Christina Pagel @chrischirp
204K Followers 952 Following Prof Operational Research @UCL_CORU, health care, women in STEM. Member of @independentsage. Tweets personal. chrischirp at bluesky. https://t.co/nNW5zMenx2
LaMichiAutista @AutistaMichi
6K Followers 902 Following Movidas autistas y Divulgación en 1a persona/ Ilustradora de #GuíaAutista @dmillanlopez / https://t.co/iZRQUhLpUq IG:lamichiautista Tiktok 56k She/them
Rosemary May Richings.. @rosiemay_r
4K Followers 5K Following Writer, editor/ speaker with #DCD & #Hypothyroidism. Trustee @DyspraxicMe. I wrote the @JKPBooks 📖Stumbling Through Space + Time: Living Life with #Dyspraxia
JK @JK_Credo
1K Followers 2K Following Mum, AD @fest_black, Awesome Trustee: @AwesomeLPL & @liverpoolSOUP Powerlist: 100 https://t.co/faI8mib95D Award winner: @MWOTY 2022
National Autistic Soc.. @Autism
209K Followers 260 Following We are here to transform lives, change attitudes and create a society that works for autistic people.
Baha Moshiree MD, MSc.. @BMoshiree
2K Followers 628 Following Director of Motility, Clinical Professor of Medicine, Woman in Medicine #164 at Wake Forest, Atrium Health, ANMS, ACG & AGA member, Asst Ed. AJG.
Caroline Tuck PhD, Ad.. @tuck_caroline
1K Followers 472 Following Dietitian | Early Career Researcher | Senior Lecturer @swinburne. Research interests include diet in GI conditions. Views my own.
Travis Chi Wing Lau (.. @travisclau
15K Followers 12K Following (he/him/his) Assistant Professor + Poet @ Kenyon: c18+c19 British Literature/History of Medicine (immunity and vaccination)/Health Humanities/Disability Studies
Ehlers-Danlosův synd.. @ehlersdanlosuv
29 Followers 192 Following Twitter účet pacientského spolku Ehlers-Danlosův syndrom a syndrom hypermobility. Pro více informací navštivte naše webové stránky https://t.co/TP5BoVbD0b.
Emma Mitchell 💙 @silverpebble
92K Followers 3K Following S. Times bestselling author: how nature & craft improve #mentalhealth BBC Springwatch | Creative & mental health w'shops #AuDHD,🏳️🌈 Rep:@julietpickering
DyspraxicSoundEnginee.. @DyspraxicE
492 Followers 773 Following Sound Engineer with Dyspraxia and a Dyspraxia Foundation Youth Champion #Dyspraxia #Dyspraxic. Freelance Boom Operator For Film and TV
poochy stan account @majoras_masques
1K Followers 2K Following phd candidate / premodern disability studies wannabe. mostly posts abt games. the doggy's name is mocha moo.
Alison Roulstone @AlisonRoulstone
622 Followers 1K Following Researcher, Primary teacher, EYFS, NPQSL, SENCo, KS1 Lead. Interested in ITT, Dyscalculia, SEND and early maths skills @lborocmc @LboroDME @ceml_esrc
Patricia 🍉 @loveisbrilliant
6K Followers 6K Following Strong Communities enable and empower. Looking forward to the multipolar world. #AlwaysSettleForTheBest
It’s not just anxie.. @notjustanxiety
30 Followers 88 Following Mum of 4, interested in #EDS symptomatic #hypermobility and #neurodivergence and symptom #disbelief
Victoria Duncan @SNeurotypicals
63K Followers 4K Following Autistic woman writing about autism, neurodiversity, and neuronormative culture. She/her Banner credit to @dorrismccomics
The Telegraph @Telegraph
3.4M Followers 833 Following Think ahead with the latest news, comment, analysis and video. Subscribe here: https://t.co/jRf9lAo5nY
Dr. Antoni Chan @synovialjoints
3K Followers 1K Following MD PhD Consultant Rheumatologist & Lead Physician,Digital Health Champion,NASS Trustee, Best Rheum Care,Visiting Fellow Henley Business School,ExecCoach
Warm Welcome UK @WarmWelcome_UK
1K Followers 170 Following Join us in creating a warm & welcoming community, so no one struggling with loneliness or the cost-of-living crisis has to get through winter alone.
Dr Catriona Stewart O.. @CatrionaSScot
5K Followers 3K Following Research Training Networking #Autism #Girls #Women #ActuallyAutistic Founder @SWANautism; non-exec Board; views my own; bluesky: https://t.co/Oe7RQnIBuL
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Chris Hopson @ChrisHopsonNHS
38K Followers 400 Following Chief Strategy Officer @NHSEngland. On a mission to inform and explain what is going on in the NHS.
Zoe McCormack @zoeenya22
1K Followers 1K Following PhD @rcsi_Irl and @sjogmhealth | Teen and Adult Art facilitator @autisticartclub and @asiamireland | Lived experienced researcher | co-chair @realistphdnet
Karen Henry RM, MA @karenhenry1012
470 Followers 657 Following Florence Nightingale alumna, Midwife, MA in Autism studies, Lecturer in Midwifery, Mother to 5, Grandmother to 3! #actuallyautistic
Neurologist Mom @NeurologistMom
5K Followers 262 Following A neurologist, M.D. a mother of a 15-year-old girl with severe neuroCOVID/ME/CFS who has been managing her daughter's treatment at home since October2022
free 🍉 🏞️ to .. @chronicautistic
1K Followers 2K Following ♿😷🏳️🌈🏳️⚧️🍉 ⚪ settler, No DMs for $!!! Disabled, Autistic Artistic, Chronic ill/pain. Justice-centric, Ecocentric Equity Accomplice no GC/Ters she/they
Cat Herding Science N.. @catladyactivist
18K Followers 11K Following Plant-fueled 🌱 religion-free 🕊 healthcare for all ⚕️ leave it better than you found it 🌏 equity in all things ⚖️ #CovidIsAIRBORNE 😷
Dr Gary Payinda @GaryPayinda
4K Followers 1K Following Emergency doctor. Interested in how poverty & politics affects public healthcare. Opinions are my own.
Gunjan Tomar @GunjanTomar7
547 Followers 671 Following A facilitator who is passionate about learning and help students sail through in their learning journeys #MIEExpert #MCE #Adobe creative educator #MIEEFellow
Mamie Martin Fund @MamieMartinFund
675 Followers 945 Following A Scottish charity, we support the secondary education of girls in North Malawi. Moira and Heidi post to this account. Also on @[email protected]
SpecialEdHead FCCT @anson_kari
4K Followers 4K Following Advocate for pupils with additional needs. Promotes ethical leadership. Care experienced. FED Council Member. Serving HT. Tweeting in a personal capacity.
able2uk.com @able2uk
27K Followers 2K Following ABLE2UK brings you daily news on disabled stories, reviews of gigs & showbiz parties, competitions, sporting news for our disabled & non disabled readers
Erin Beeston @Erin_bee
2K Followers 4K Following She/Her/Dr - accepts Ms at a push Neurospicy mama Professional historian, amateur comedian @BSHSNews & @BrightClubMcr @mcrhistfest Own views 📢
Teachers Need Tea @TeachersNeedTea
2K Followers 1K Following English teacher. Journaler. Sibling to sister with cerebral palsy, learning disabilities and autism🐝
Barbara O'Donnell �.. @BarbaraODonnell
3K Followers 5K Following Made of: West Cork & New Zealand, ODP/Resuscitation, writing, the sea, tea, reading, music, fairytales
Lauren Gardner @LaurieEmTweets
6K Followers 6K Following Agent @BLM_Agency Adult & Kids Non-Fic|Young Fiction|MG|Teen|YA| @thebookseller Rising Star ‘20 💫
Ian Cushing @ian_cushing
11K Followers 2K Following Senior Lecturer in Critical Applied Linguistics, Manchester Metropolitan University @ManMetUni. Language and in/equality in schools.
Amanda Pritchard @AmandaPritchard
38K Followers 288 Following Chief Executive of @NHSEngland. Proud to be part of the NHS.
Julie Morgan MS @JulieMorganLAB
11K Followers 2K Following Member of the Senedd for Cardiff North. 🌹 Always working hard for Cardiff North.
Dr. Glaucomflecken @DGlaucomflecken
710K Followers 438 Following Ophthalmologist. Comedian. Speaker. Tiktok. Contact: [email protected] *Personal views only* https://t.co/GMXSgqZUvF
Ruth Liptrot @Ruth5News
4K Followers 2K Following Reporter for @5_news. Journalist. Mum. Wiganer, Londoner. The three most important things to be are kind, kind and kind. #longcovid
J @anniehall1973
479 Followers 2K Following
Tom Hunt MP @tomhunt1988
15K Followers 3K Following Member of Parliament for Ipswich. For constituent enquiries please email: [email protected]
Hilary Wollis @HilaryWollis
2K Followers 862 Following 🇨🇦Limestone City #ygk #Ontario. #community #volunteer #publiceducation #hockey #CovidisAirborne 🌤️@hilarywollis.bsky.social 🐳 @HilaryWollis
Elena Filipczyk @ElenaFilipczyk
1K Followers 299 Following Writes about autism, disability, trauma, grief & animals. PhD candidate. Autistic. ADHD. Probably lying down. 🌱🛼💞🎸
Prof Sara Rankin @RankinProf
1K Followers 647 Following Professor, Regenerative Pharmacology. Loves interdisciplinary working with scientists and artists. Dyslexic /Dyspraxic founder of 2eMPowerUK
Isabelle Finn-Kelcey @isabelle_finn
568 Followers 747 Following MEd, MRes. Interested in narratives of neurodiversity and the double empathy problem. Neurocosmopolitan. She/her.
Fareeha Jay @FareehaJay
5K Followers 958 Following Award winning Dietitian. Chair of BDA Freelance Group /Specialise in Diabetes & South Asian Diets. Founder of South Asian Women’s Health UK @fareehajayrd
@JGjanegreen @CharteredColl @Super_KAT1 @AlisonMPeacock Love this!
@JGjanegreen @CharteredColl @Super_KAT1 @AlisonMPeacock This sounds fantastic 😊
@CentreforMH @CYPMentalHealth Sorry but you forgot long covid and autism ADHD and physical health. They said you should join it together with hypermobility. Why aren’t you doing it see @SEDSConnective for their stuff on this
@SEDSConnective As a child I honestly believed assemblies were for pain endurance training. And that I was failing.
@TheEDSociety @BSMSMedSchool As a hEDS person, I was recently told by one mental health team "No ADHD, Autism, or anything like that, probably menopause and the medi cannabis". A further (more in-depth assessment) resulted in 'likely some Autism, but hard to see behind the suspected ADHD. I gave up.
@TheEDSociety @EDSFinland @BSMSMedSchool Was very exhausting to get ADD diagnosed "if it even is the correct diagnose!?" as a 30year old. And to try and get EDS diagnosed i can only imagine what that will be like. Knowing how 🇫🇮 system works, that will not be enough for sick pension. It is cheaper for me to buy a rope
@help_force @neilgchurchill @Mark_HelpForce @CNOEngland @emmaeaston12 @AACE_org Perhaps allow user led charities to do this instead and then give them shared power ? Just a thought
Following the recent paper at bmjpublichealth.bmj.com/content/2/1/e0… Delighted to be hosting Dr Eccles to discuss the findings that over 30% of people with GJH (hypermobility) are at risk of long Covid. Must be key for schools #education health care practitioners funders and policy makers?
⭐Connections between #LongCovid & #Hypermobility members only webinar with our Patron @BendyBrain 📅19th May 🕝from 3:30pm 💻online via Zoom 👉Register as a member here: bit.ly/4aUYFTA 👉Book your spot here: bit.ly/3QkqoEF #EDS #HSD #Hypermobilityawareness
Latest long Covid survey analysed. A million or more people. One third with symptons lasting more than 3 years. Needs more research for new treatments. substack.com/home/post/p-14…
The latest ONS data shows that Long Covid remains a serious issue - we urgently need to find better ways to prevent and treat. Read more on my blog post open.substack.com/pub/christinap…
"Using the most recent data, ONS estimates that about 1.1 million people over 3 y.o. in England and Scotland are living with Long Covid for at least 12 weeks, representing just under 2% of the whole population." Summary of ONS Long Covid from @chrischirp christinapagel.substack.com/p/updated-esti…
No but I’m serious, and sorry, I don’t just mean Long Covid. I genuinely think we need a neuroimmune disease lobby (incl. ME/CFS, POTs, MCAS, Long Covid etc.) that we can fund to push for solutions in this bleak, profit interested world.
Can we start a Long Covid lobby? I’m pretty broke but I’d contribute €5 a month for one. I’m so sick of our advocacy efforts being torn apart by other players with more money & influence/power.
@SEDSConnective @JGjanegreen @tes STOP FIDGETTJNG... all my childhood. Now I if I see a fidgety child in the shops, I often go stand next to him and join in fidgets, for moral support. Harder for adults to tell off another adult.
@SEDSConnective @JGjanegreen @tes My fisgeting sometimes looks like a need a Wee, swapping feet etc I'm ACUTELY aware of how it makes others feel, how annoying it can be to witness or be near, and maybe sometimes they do actually need a wee.... ;)
@mrsdenyer @SEDSConnective Already follow, thanks, they are fab. Will have investigate website more. Hypermobility in there too!!
Cat is in Sutton today talking to SENCOs about #dyscalculia and #mathsdifficulties. Great to be able to talk to such amazing dedicated SENCOs who make such a difference to learners in so many schools!
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